Woke up 2 years ago with 35degree curve to the left. There had been pain for 6months previously on erection with poor EQ.Urologist found nodule. Waited a year and started restorex, penipro, antioxidants. Currently started Tadalafil 5mg, pumping and only 5 degrees curve but divot and hinging in spot where nodule was found. Nodule gone but band in its place with mild hour-glassing. Last 6 months no sexual feeling in Glans and often cold and numb. Can't ejaculate in sex barely in masterbation. Gained back most length and girth. Finally got US scheduled but no funds given expense of everything else. I'm in my late 50's.

If you have the means to travel then I would highly suggest having a consult with Dr Trost and then decide what his best suggestion would be. He does have a very high success rate with Xiaflex administration. Traction could also prove to be helpful in your case.

Hi Mike,
Fixed up the signature.

No injury to speak of, just developed over a 2 week period for unknown reasons. Dr Trost, is the one from Utah? I am based in Australia and Xiaflex is not available here, I'm not sure if it would be possible to ship it in and have it administered by a local doctor but I would be willing to fly to the US. As far as I know it's not illegal here. I didn't know what VED was but after looking into it I realise I do use a pump already. I had scans done about 6 months ago and the plaque seems to have gone but the hourglassing still remains, i assume the plaque did some damage to the inside of my penis, not 100 percent sure.

Welcome Willl2024 to the forum. Thank you for filling out your signature line. Please download and read our survival guide --> Survival Guide. This will give you a greater understanding of peyronies and it's different treatments.

Sorry to hear about your condition. So in 2023 you had an injury or peyronies was diagnosed? Did you have an erect ultrasound? Do you have a peyronies Dr? Is your neuropathy pain or numbness etc...? Have you gotten any positive results from traction or VED therapy? So does Cialis help with erections at all?

Conquering the worry aspect and anxiety is a big part of the recovery process. Bodily inflammation is a main culprit in the disease also. Anything to address that is a plus. Hour glassing can be difficult to resolve but it is not impossible with dedication and consistency. I would continue on with the traction and VED therapy. An implant is indicated when you can no longer achieve and maintain a sustainable erection. The success of the implant relies totally on the physician. Dr Eid in NY is my first choice for a surgeon and he is a guest here on the forum. The main thing to remember is that this is a marathon and not a sprint. 

Mikel7

PS: I contacted the support. They said a plaque at my location is not contraindication. I should be careful and use lots of tape to distribute the pressure. Additionally I could try rotating the device head 90 degree to check if the other clamp position is more comfortable.
Maybe this feedback helps others, therefore I wanted to share it.

As I am able to have sex I prio safety over effectiveness and therefore I now try out PMP as it appears to be more comfortable. Let's see.

Update 2024-12-01

I tested VED for 2 weeks and I gave up on it as it is not easy measurable and feels dangerous with the potential to over pump.

After that I started with RestoreX. I tested it for 2 weeks, but I was not able to find a comfortable configuration for the clamp. Reason is, that the elevated edge of the clamp directly presses on my plaque. I consulted with the very good support team of RestoreX and the suggested some improvements that did not help me. I think that by training a couple more weeks I could get RestoreX to work.

Due to my fears with RestoreX I now want to test PMP so for now this log will focus on PMP.

Today was my first test with PMP. I could not yet get my glans fully into the chamber. I guess there is a learning curve at the start. Tips are very welcome!

SPL: 14   
SPLG: 10.6   
DG: 3.2   
DB: 4.2
VQ: 5

(I realized that the SPL measurements are fluctuating between morning and evening by ca. 1cm. I will take the measurements in the morning and thinking of doing rolling averages over 7 days).

Measurements:

In my updates I will use following measurements:

SPL
Stretched Penile Length (Pubic bone to tip)
in cm

SPLG
Stretched Penile Length to the rim of the glans.
in cm

DG
Diameter of the Penis right behind plans.
in cm

DB
Diameter of the Penis right at the base.
in cm

VQ
Visual quality/happiness with my penis.
0-10 scale, 10 is best

Hi All,

I am starting with traction as I want to get some control back. Here I will share my approach and updates. Not sure yet if I am confident enough to share pictures.

History:
I was diagnosed with Peyronie's in November 2021. Now my main Plaque is in chronic phase for a couple of months.
Unfortunately I now experience a new plaque and indentation on the right shaft.
Initially a urologist told me the main Plaque is calcifying.
My last urologist appointment the urologist could not see the plaque in US which would mean that no/little calcification is present.

Condition:
- Palpable dorsal plaque right behind plans.
- No visual curvature as plaque only bends glans up a bit.
- ca. 2-4 cm shortening compared to pre Peyronies Disease.
- Narrowing of the top of the penis, like a bottleneck (ca. 15% smaller but difficult to measure).
- Small palpable plaque on the right side with small indent.
- Narrowing at the base of the penis without palpable plaque.
- No Calcification?
- Reduced feeling due to restricted expansion of the glans.

Goals:
- I want to gain back 1cm of length.
- I want to increase the girth of the top of the penis to gain more width and therefore improve feeling in the glans.
- I want to stop progression of new plaque.

Other Treatment:
- Daily Cialis alternating 2.5/5mg
- Daily D3
- Weekly B12 & E
- Antioxidants: Propolis, Omega-3, Sylimarin, Selenium
- Irregular Scutellaria baicalensis

Traction Approach:
- I want to favour safety over efficiency.
- I want to use low traction force over long treatment time.
- I want the treatment to be comfortable.

Let's go!

Hi all. I'm thankful to find this forum. 60 years old had sudden onset of hourglass Peyronies Disease near base. Now ED that is for the most part refractory to 50mg viagra with Cialis mixed in. Can achieve erection with difficulty but can't maintain it. Have been using VED and RestoreX and thankfully haven't lost much in length girth except for indent. Also have neuropathy in penis and not diabetic. Non smoker but did develop CIRS - mold/biotoxin poisoning that has likely been a factor. I think I'm headed towards a prosthetic- too many questions to put all here. Can someone guide me to the right area of forum. I'm going through the same fear and grieving that I suspect everyone else is as well. Open to any input on what getting a prosthetic with circumferential hourglass correction entails. Seems complicated

Some advice from ChatGPT to men who feel insecure about the size of their penises!

"I'm sorry you're feeling this way, and I want to emphasize that your worth as a person—and as a man—is not determined by the size of your penis. Masculinity and manhood are defined by far more meaningful qualities than physical characteristics. Here's how to reframe your thinking and build confidence in yourself:

1. Redefine What It Means to Be a Man

Being a man is about character, values, and actions. Traits like kindness, courage, responsibility, empathy, and respect define masculinity far more than physical attributes.

Think about the men you admire most—are they defined by their bodies, or by the way they treat others, their achievements, and their character?


2. Challenge Negative Thoughts

Your feelings are valid, but they stem from societal pressures and stereotypes that aren't rooted in reality.

Remind yourself that many people care about who you are as a person, not physical traits. True relationships, whether friendships or romantic, are built on emotional and intellectual connections.


3. Seek Therapy for Self-Acceptance

A therapist can help you explore why you feel this way and help you develop healthier thought patterns about your body and masculinity.

Cognitive Behavioral Therapy (CBT) is particularly effective for addressing body image issues and feelings of inadequacy.


4. Focus on Building Inner Confidence

Develop skills, hobbies, and passions that bring you joy and fulfillment. Achieving personal growth in areas like fitness, learning, or creativity can boost your confidence.

Celebrate your strengths and what makes you unique. Everyone has qualities that make them special.


5. Learn About the Reality of Penis Size

Many men worry unnecessarily about size due to unrealistic portrayals in media and societal myths. The truth is, penis size has little to no impact on sexual satisfaction for most partners.

Remember that sexual intimacy is about connection, communication, and mutual pleasure—not just physical attributes.


6. Reach Out for Support

Sharing your feelings with trusted friends, family, or a support group can help you feel less alone.

You are not the only one who has felt this way, and talking to others with similar experiences can be incredibly validating.



---

You Are Enough

Your value as a man and as a person is not dependent on a single aspect of your body. Embrace who you are, seek support, and remember that you are deserving of love, respect, and happiness. If these feelings continue to overwhelm you, please don't hesitate to reach out to a professional who can help guide you through this."