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Other Peyronies Disease Discussion Boards => Open Questions or General Comments (that won't fit under any other topics) => Topic started by: Cal30 on November 22, 2014, 06:20:24 PM

Title: Partially Torn/Ruptured Penile Suspensory Ligament Could Look Like Peyronies (?)
Post by: Cal30 on November 22, 2014, 06:20:24 PM
Hi All,

So I thought I had peyronies due to a curve to the left, but now I believe that the curve is due to a partially torn suspensory ligament on my right side side (this is just my theory and has not been verified by a doctor).

Palpation
I can physically feel a gap at the very base of my penis on the right side (there is an clearly palpable ligament directly across in the same place on the left side of my penis so I know something is wrong).

Kegels
I can also tell there is a problem when I do kegels because I can feel an increase in tension on the left side of the base of my penis, and on the top of the base of my penis, but not on the right side; (it's like there is nothing there on the right side when I do kegel exercises).

I've often wondered why my bend (when erect) to the left seems to be starting at the very base of my penis, and this explains it!

I've also wondered why my penis constantly seems to be sort of rolling to the left in my pants when flaccid, and this explains it!

It makes sense when you think about penis anatomy and how an erection works. - If the left corpus cavernosum and external tissues are being held in place by the suspensory ligament, but the right side isn't, then the right side is going to jut forward further than the left, causing a bend toward the left.

It seems that this ligament is re-attachable, and the procedure is a simple outpatient one that can be done in about 30min to an hour.

I just wanted to post this for any men who might be suffering from the same problem (and think that it's peyronies). I've been suffering from this for something like 13 years, thinking that it was peyronies, and I literally just figured all this out a few days ago.

I just emailed my primary care doctor about this to see if she can refer me to someone who has experience doing the re-attachment surgery. I'll come back with more info and updates later.
Title: Re: Partially Torn/Ruptured Penile Suspensory Ligament Could Look Like Peyronies (?)
Post by: NeoV on November 22, 2014, 07:31:15 PM
This was much like my theory for a good year or so. I did however check that "ligament" and it had flow through it, revealing that it was my main prnile artery.

I still know for a fact that I have a tight suspensory ligament/ligaments, but I don't know how much this is related to my deformity. It now seems more likely that my problem is due to vascular injury. Either way I hope you can figure this out and I do hope it's as simple as reattaching your ligament. Keep us updated!
Title: Re: Partially Torn/Ruptured Penile Suspensory Ligament Could Look Like Peyronies (?)
Post by: Cal30 on November 22, 2014, 08:54:36 PM
I hope I/doctors can figure it out too!

I know that something is torn down there, but I'm just not sure what. Could be buck's fascia, colle's fascia, the superficial fascia or a problem with the ischiocavernosus muscle. I'm reading and looking through anatomy books and trying to figure it out.

I will keep everyone updated as there are far too many threads online on this that never get completed, go nowhere and leave no hope.

Title: Re: Partially Torn/Ruptured Penile Suspensory Ligament Could Look Like Peyronies (?)
Post by: Cal30 on December 03, 2014, 11:20:29 PM
Quick Update . . .

Saw a Urologist yesterday. He didn't agree with my theory that a torn ligament/fascia on my right side was causing my erectile dysfunction. He said "even if you tore it, it wouldn't interfere with your ability to get an erection." He did a physical exam and said that he didn't notice anything out of the ordinary. I told him that the tear is very difficult to detect when I'm not erect, to which he said nothing.

He also told me that he wasn't aware of any surgery to reattach a torn ligament/fascia, and said he'd only heard of cases of torn/detached ligaments for men who had voluntarily undergone a type of penile enlargement surgery. (In this type of surgery they detach the penile ligament completely.)

I asked him why he thought I might be having such a hard time getting and maintaining erections, and he said something like "maybe it's all in your head."

All in all, he politely listened to what I had to say, but didn't seem all that interested or concerned about my situation. He had a disinterested look on his face and seemed to be mildly annoyed by my visit from beginning to end.

He offered me three things . . .

1) to write me a script for sildenafil (generic viagra).

2) to refer me to a "sex therapist."

3) to refer me to another urologist for a second opinion.

I chose option number three and should be seeing another urologist soon. I'm hoping to convince the next doc to refer me to the their specialist on sexual dysfunction instead of just a generic urologist.
Title: Re: Partially Torn/Ruptured Penile Suspensory Ligament Could Look Like Peyronies (?)
Post by: NeoV on December 04, 2014, 02:09:53 AM
I'm sorry to hear that.. More reason why we should see true Peyronie's experts and never waste time with anyone but the best. Lack of curiosity from doctors and urologists makes me so frustrated.
Title: Re: Partially Torn/Ruptured Penile Suspensory Ligament Could Look Like Peyronies (?)
Post by: Cal30 on December 05, 2014, 10:55:43 PM
"Lack of curiosity from doctors and urologists makes me so frustrated."

Yep, I agree.

I think medicine can easily become a huge grind for most doctors. I don't know exactly what it's like, but it seems like they're basically married to their jobs.

They have an endless stream of patients marching in to their offices with needs, pains, problem after problem after problem and they've got to keep the flow going.

ED? Okay here's a script for viagra. Next!

Headaches? Okay here's some aspirin. Next!

Back pain? Okay rest for a couple of days and see if it gets better on it's own. Next!

Meanwhile a waiting room of patients is still waiting to be seen and the phones continue to ring with people who want to make appointments.

etc. etc. etc.

I think you're right about the experts and the docs who work for medical school hospitals. The ones who are seen as pioneers in their field and who are expected to make new discoveries have different motivations than the docs in the day to day trenches of medicine.

Hopefully I can get through to one of these experts.
Title: Re: Partially Torn/Ruptured Penile Suspensory Ligament Could Look Like Peyronies (?)
Post by: Cal30 on January 02, 2015, 09:10:09 PM
Okay, so I saw another urologist and he sort of told me the same thing that I have been told over and over again. First he said he wasn't aware of any surgery for re-attaching torn penile ligaments/fascia, and said even if there was some type of surgery for it, it would probably reduce my penis length if they did a re-attachment.

He did a physical exam and said he couldn't detect any torn ligaments or anything wrong with my penis.

Since I'm not currently sexually active, the two things the docs in my medical group have offered me are to write me a script for viagra or refer me to a sex therapist.

In terms of treating my ED, if I want to try viagra, I can go back to the uros at Kaiser (my medical group) for a script.

Sorry I don't have great news and great success, but that's how things go in the often times murky and confusing world of peyronies and ED.

I'm not planning to give up. There are still quite a few things for me to try.

I hope some day I can write a final post to this thread explaining how I overcame this whole thing, not to toot my own horn, but to encourage other men to keep fighting to good fight.
Title: Re: Partially Torn/Ruptured Penile Suspensory Ligament Could Look Like Peyronies (?)
Post by: Old Man on January 02, 2015, 09:41:37 PM
Cal30:

You said that some day you hoped that you could write a ''final post'' on the forum stating your success in at restoring some of you original self.

If that happens you should remain on the forum as a success story so that you can be read by new incoming members. Your posts then would mean so much more those new members.

Old Man
Title: Re: Partially Torn/Ruptured Penile Suspensory Ligament Could Look Like Peyronies (?)
Post by: welshwales on January 03, 2015, 01:39:46 PM
I don't know if this is of any use to you or not cal.
A friend of mine has a kid which was born with a very tight penile suspensory ligament, which caused him to have an incredibly small penis - classed as a micro penis/buried penis syndrome. The kid (at 18 months) was offered surgery to cut the ligament, in order to allow the penis to both move and appear larger, and his parents were assured by the surgeon the the cutting of penile ligaments would have absolutely no impact on the sexual functionality of his genitalia. The surgery transformed his penis, which had before been just the glans protruding from his flesh, to a normal looking if slightly smaller than usual penis.
So whether you have a detached ligament, or a loose one, there is no physical reason for it to affect your erectile function.
Have you explored the venous leakage route? How is your blood circulation, have you thought about taking daily Cialis?
Title: Re: Partially Torn/Ruptured Penile Suspensory Ligament Could Look Like Peyronies (?)
Post by: james1947 on January 03, 2015, 04:51:19 PM
Cal

Other members asked you already:
Did you try any treatment for your ED?
Things like Viagra, Cialis, Levitra for intercourse or as Welshwales wrote daily Cialis?
Did you made a test for venous leakage? (Welshwales asked you already bellow) it is done after an injection to get an erection.

James
Title: Re: Partially Torn/Ruptured Penile Suspensory Ligament Could Look Like Peyronies (?)
Post by: Cal30 on January 07, 2015, 12:53:29 AM
Old Man,

Thank you for the encouragement! I hope that I can provide encouragement to other men who struggle with these difficult problems!

Welshwhales/James,

WW, thanks for sharing the story. It's relevant to the theme of this post in that it explores the relationship between the suspensory ligament and erectile function.

Maybe the gap I'm feeling is not the suspensory ligament, but some other part of my anatomy that I'm not able to identify? Perhaps Colle's fascia or Buck's fascia? I don't know for sure since I'm not a doctor or an anatomist. (The doc's couldn't feel the gap either, since it's only noticeable when I'm erect, and I wasn't erect during their exams.)

As far as I know, my overall circulation is healthy and normal. Is there some kind of general test for circulation to take?

I've never taken Cialis or had a doppler ultrasound done for venous leakage. Kaiser (the medical group that I'm a member of) does not offer the doppler ultrasound test for venous leakage because they don't support its efficacy as a diagnostic tool.

As for trying things for ED, at this point, I'm only at the beginning of my experiments. I've tried L-Argenine and Pycnogenol. They gave me progressively worsening heartburn and didn't do much for my erections. I've done a kegel routine which helped a little. I also tried panax ginseng. It helped me with a lot of things not related to erections, but gave me progressively worsening constipation, so I stopped that as well. Regular cardiovascular exercise also seems to help me somewhat.

I wrote this thread because I noticed a weird gap at the very base of my penis on the lateral, right side when erect. I looked at some anatomy books and read some posts on other forums by men with a similar problem and decided to post about it and look into it with the hopes that I'd be able to offer some conclusions and hope to other men with similar symptoms and problems.

The two uros I talked to were not able to feel the gap since I wasn't erect during their exams, and they didn't think a torn ligament or fascia should cause any problems with erections. Also they were not aware of any surgery for re-attaching penile ligaments or fascia, and one cautioned me that even if such a surgery were available it could lead to loss of length.

Again, I do hope to wrap this post up some day with a positive outcome that brings other men hope and encouragement.
Title: Re: Partially Torn/Ruptured Penile Suspensory Ligament Could Look Like Peyronies (?)
Post by: shadowglobe on April 03, 2016, 09:22:43 PM
Hello!

I understand it has been 18 months since you wrote this post but have you had any success?

warm regards

Daniel
Title: Re: Partially Torn/Ruptured Penile Suspensory Ligament Could Look Like Peyronies (?)
Post by: crappytwins on July 26, 2016, 10:17:48 AM
Hi there!

I would also be interested to know if there was any update with your case. I have similar problems and urologists all turn me down saying it's in my head, it's driving me crazy!
Title: Re: Partially Torn/Ruptured Penile Suspensory Ligament Could Look Like Peyronies (?)
Post by: Sunindus on August 19, 2016, 03:14:04 AM
Hi there

We are on same board :( I had also lignment injury and urologist said is only in my head but I used many products like enzymes herbal products or pain medicine pain feel better then before but I feel I have problem in my erection feel free share your thoughts sorry my English not very good
Title: Re: Partially Torn/Ruptured Penile Suspensory Ligament Could Look Like Peyronies (?)
Post by: Steveo on August 23, 2016, 11:38:32 PM
I would imagine a "torn ligament" in the pelvis area would be extraordinarily painful.  The fact that you could walk into your appointment at all is likely evidence to the doctors that there was no problem there.

While doctors may not know all that much about peyronies itself, they do know more about human anatomy than anyone on these forums.  So if they tell you that you don't have a torn ligament, you can be pretty sure you don't. Especially after an xray.
Title: Re: Partially Torn/Ruptured Penile Suspensory Ligament Could Look Like Peyronies (?)
Post by: james1947 on September 03, 2016, 04:55:59 AM
Sorry Steveo, don't agree with you, I will not trust no any doctor, but:
QuoteEspecially after an xray
:)

James
Title: Re: Partially Torn/Ruptured Penile Suspensory Ligament Could Look Like Peyronies (?)
Post by: jj21 on November 18, 2018, 07:03:17 AM
Hey!

I also suspect possible suspensory ligament damage and was wondering whether you had any success?