Hello members
So, after 6 years of being sexually depraved and psychologically drained, and dealing with bullsh*t public healthcare queues, vague diagnoses and recommendations which do not agree with each other in the slightest--I am finally going to make the leap to getting either a proper traction device (looking at Restorex, since it has an actual clinical study backing it AND it is supposedly most effective) or surgery--whicever one is least risky (at this point I don't care much about loss of length).
I would love for some input from others who have tried either of these two solutions, successfully or not, or from those who recollect and can pool in other members' results. In general I have found that the follow-up in these threads are poor and the posted results so scattered and inconclusive that it is hard to make any sort of informed decision.
Please, share your thoughts, stories, information and even questions so we can come up with a pros/cons list or situational verdict that all members can benefit from.
#Bentbutnotbroken
Please share your Peyronies circumstances, preferably in signature line so it's always visible to those responding without having to read through all of your threads.
what do you mean? What signature line are you referring to?
Now see your sig line...cool
How bad is your ED and curvature?
There's not much risk with a traction device if you use it properly and smart.
It costs a lot of time and dedication, consistency. Daily. Progress can be very slow.
The way docs in Germany, socialized gov. run healthcare, presented surgery to me, I knew I rather "DIY" it.
Quote from: melting on May 28, 2020, 04:05:11 PM
There's not much risk with a traction device if you use it properly and smart.
It costs a lot of time and dedication, consistency. Daily. Progress can be very slow.
The way docs in Germany, socialized gov. run healthcare, presented surgery to me, I knew I rather "DIY" it.
German docs usually know crap all about Peyronies. one said we can't do anything just let it rest and report in 6 months, the other said potaba is poison and he does not think very highly of pentox(what the heck does that even mean) and I should wait 3 months and report back and that he can do surgery if it becomes a problem. the 3rd one recommended trying a vacuum device but wouldn't want to prescribe it. loss for words seriously
Hey, not to start a flame war or anything, but aren't the doctors more or less correct? I mean, by and large, every single treatment recommended here does not work. They do for some. But statistically, and that is what doctors are going by because they see hundreds of cases, all treatment besides surgery is almost total bull crap.
Quote from: samsung on June 25, 2020, 09:24:57 AM
Hey, not to start a flame war or anything, but aren't the doctors more or less correct? I mean, by and large, every single treatment recommended here does not work. They do for some. But statistically, and that is what doctors are going by because they see hundreds of cases, all treatment besides surgery is almost total bull crap.
most doctors are utter morons. their "wait and see" approach has been shown over and over again to be the single dumbest crap in scientific studies. none of them can explain to me why its not better to do some little things that have been shown to have some benefit than do nothing. my urologist said I shouldn't use taladafil and a pump because it costs os much money. are you kidding me, how much money is it worth to have a functioning dick? much more than that crap.
and why are they morons? they are often incapable to put themselves in the position of the patient. they do not understand how frustrating it can be to read a study as someone affected from 2003 that says "shows some benefit but further research is warranted" all nice and well but this further r4search will NEVER be conducted. that does not mean that those treatments have no benefit, it just means that there are not ENOUGH RIGOROUS studies to definitely proof it.
so lets say you have two options, do something that has shown to have some merit, like pentox over and over again in good studies, Cialis and lately ESPECIALLY traction in the restorex studies. sure it can't cure peyronies, it is not the holy grail but prevention in and of itself is much better than nothing. the second option is just wait it out with a 50% chance of it getting worse, even higher percentage in younger patients.
and you wanna talk about statistics, what about a pentox or traction study with hundreds of people is not statistics? 70% get better with traction, many stabilize, show me a comparable success rate with the just wait and see approach? exactly. most are most certainly garbage doctors and know less about peyronies than the average user here
so at last, the idea that you only try and prescribe something that has 100% been proven to completely get rid of all deformity is the dumbest practice you could possibly imagine.
Quote from: samsung on June 25, 2020, 09:24:57 AM
Hey, not to start a flame war or anything, but aren't the doctors more or less correct? I mean, by and large, every single treatment recommended here does not work. They do for some. But statistically, and that is what doctors are going by because they see hundreds of cases, all treatment besides surgery is almost total bull crap.
american specialists who at least have competency all recommend to treat it and aggressively so especially in younger patients due to its unpredictability in that demographic. and here we are telling a 22 year old to just wait and carefully watch his dick get deformed more and more so in 12 months you can do your shady surgery. bonus points for making stupid jokes about "good that you dont have a partner right now heheh"
Quote from: peter123 on June 25, 2020, 10:50:54 AM
most doctors are utter morons. their "wait and see" approach has been shown over and over again to be the single dumbest crap in scientific studies. none of them can explain to me why its not better to do some little things that have been shown to have some benefit than do nothing. my urologist said I shouldn't use taladafil and a pump because it costs os much money. are you kidding me, how much money is it worth to have a functioning dick? much more than that crap.
and why are they morons? they are often incapable to put themselves in the position of the patient. they do not understand how frustrating it can be to read a study as someone affected from 2003 that says "shows some benefit but further research is warranted" all nice and well but this further r4search will NEVER be conducted. that does not mean that those treatments have no benefit, it just means that there are not ENOUGH RIGOROUS studies to definitely proof it.
so lets say you have two options, do something that has shown to have some merit, like pentox over and over again in good studies, Cialis and lately ESPECIALLY traction in the restorex studies. sure it can't cure peyronies, it is not the holy grail but prevention in and of itself is much better than nothing. the second option is just wait it out with a 50% chance of it getting worse, even higher percentage in younger patients.
and you wanna talk about statistics, what about a pentox or traction study with hundreds of people is not statistics? 70% get better with traction, many stabilize, show me a comparable success rate with the just wait and see approach? exactly. most are most certainly garbage doctors and know less about peyronies than the average user here. do you think all those studies showing statistically meaningful differences between various treatments and placebo are done by amateurs?
so at last, the idea that you only try and prescribe something that has 100% been proven to completely get rid of all deformity is the dumbest practice you could possibly imagine.
I agree with a lot of what you say. Except about the part that 70% get better with traction. Doesn't matter anyway. I should not have said anything. Unhelpful on my part. I'm just trying to make the point that although doctors are largely unhelpful and uncaring (by virtue of probably cynicism and seeing dozens of people per day) they do have a point in that peyronie's is not curable. And that the best they have to offer is surgery. For the most part.
Quote from: samsung on June 25, 2020, 11:22:23 AM
I agree with a lot of what you say. Except about the part that 70% get better with traction. Doesn't matter anyway. I should not have said anything. Unhelpful on my part. I'm just trying to make the point that although doctors are largely unhelpful and uncaring (by virtue of probably cynicism and seeing dozens of people per day) they do have a point in that peyronie's is not curable. And that the best they have to offer is surgery. For the most part.
but there is a massive difference. glioblastoma is a very aggressive form of brain cancer. there is no cure for it and average life time expectancy is around 15 months. that's it. but that doesn't mean you should not TRY various approaches that MIGHT help. especially if there are studies indicating that there is reasonable evidence that they do. imagine someone with cancer being told, hey that type of cancer we cannot treat effectively because our drugs cannot penetrate the brain blood barrier, lets just wait and see what happens and if it grows well just do surgery. unacceptable.
here is a study
https://www.restorex.com/clinical-results/
70% was even an underestimate based on that study. sure it may be a little biased because mayo did the study themselves but there are many other traction studies that show MORE than 50% having significant improvement and traction having a strong benefit over doing nothing at all. if a urologist does not recommend this and is not even aware this research exists, then he is an idiot in my opinion, a failure at doing his job
ESPECIALLY and I cannot stress this enough, especially when the patient is in his early 20ties where mental health is more more affected and Peyronies Disease can be much more progressive. but I guess wanting to be treated like an actual patient makes me an entitled bitch