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Peyronies Society Forums

Other Peyronies Disease Discussion Boards => Open Questions or General Comments (that won't fit under any other topics) => Topic started by: Markyj on March 13, 2019, 09:13:03 PM

Title: Diagnosis methods
Post by: Markyj on March 13, 2019, 09:13:03 PM
I went to a world renowned peyronies specialist and he did a physical exam and flaccid ultrasound and didn't find any plaques.  I have noticed that many of you have done an erect ultrasound as well, is this worth doing in addition to what I have done or is a flaccid ultrasound usually sufficient? 
Title: Re: Diagnosis methods
Post by: TonySa on March 13, 2019, 09:15:57 PM
Flaccid is fine for diagnosing peyronies, but an erect ultrasound is needed to diagnose ED.
Title: Re: Diagnosis methods
Post by: Markyj on March 13, 2019, 10:19:47 PM
ah ok, so more vascular issues rather than scarring? 

Also, is ultrasound generally considered better than MRI and X ray for this?

Thanks
Title: Re: Diagnosis methods
Post by: TonySa on March 14, 2019, 08:05:10 PM
Yes, erect to look at Vascular flow, specifically venous leakage.  Do you have any symptoms?
Title: Re: Diagnosis methods
Post by: Markyj on March 14, 2019, 09:58:13 PM
My symptoms are a couple small hard lumps and I do have some symptoms that sound like venous leak but my urologist (Dr. Tom Lue) said it was pelvic tension causing my problems so maybe that is why he didn't do an erect test or MRI/Xray.   
Title: Re: Diagnosis methods
Post by: TonySa on March 14, 2019, 11:03:41 PM
Dr Lue is vey knowlegeable and a peyronies expert, I'd def trust his diagnosis and recommendations!
Title: Re: Diagnosis methods
Post by: Markyj on March 15, 2019, 01:12:36 AM
Yeah, It seems I'm overthinking it.  The first urologists I saw weren't especially helpful but Dr. Lue seemed very Knowledgeable.  I suppose if he suspected anything wrong he would have done more tests.  He would be a doctor who would most likely be able to diagnose mild cases right?

Thanks for your input!
Title: Re: Diagnosis methods
Post by: Whyisthishappening on March 15, 2019, 11:56:15 AM
i wish you are Peyronies Disease free markyj,did he recommended anything for pelvic floor tension?
Title: Re: Diagnosis methods
Post by: TonySa on March 15, 2019, 10:42:35 PM
Yes, he would be the best diagnostician.
Title: Re: Diagnosis methods
Post by: Markyj on March 20, 2019, 10:00:42 PM
TonySa, do most doctors not even do an ultrasound?  I went to 2 other urologists before Dr. Lue and they just did a physical examination with no ultrasound.  I have thought about getting one more opinion because I still don't know what the small hard nodules I have are but it seems that most urologists won't do imaging
Title: Re: Diagnosis methods
Post by: TonySa on March 20, 2019, 10:59:31 PM
In my book, if they don't do ultrasounds...they are not a specialist.  Trust Dr Lue and his ultrasound!
Title: Re: Diagnosis methods
Post by: Markyj on March 21, 2019, 12:03:09 AM
Yeah, it was such a lengthy and expensive process going through all of this the first time in order to get to a true specialist that I probably shouldn't put myself through that again.  Also, the average urologist at the local strip mall probably won't be much help anyway.

Could it be worth seeing Dr. Lue again for him to take another look or am I really overthinking this?

Thanks again for the advice, I'll stop asking questions on the topic...I've just been a bit anxious recently
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