Peyronies Society Forums

Erectile Dysfunction Forum - for all men with ED => Penile Implants => Topic started by: Old Man on August 23, 2009, 02:12:14 PM

Title: Penile Implant Surgery
Post by: Old Man on August 23, 2009, 02:12:14 PM
This topic is being started to give those members considering the "last resort", penile implant, in therapy or treatment for ED and/or Peyronies Disease an opportunity to gather information relative having implant surgery. Please post any and all comments pertaining to your experiences or information pertinent to having the surgery done.

Please copy and paste posts you have made on the previous format of the forum on this subject to this topic.

Old Man
Title: Re: Penile Implant Surgery
Post by: jackp on August 23, 2009, 04:31:55 PM
Penile Implant Surgery

I am not a computer geek but I will try to copy and past some of my comments to this board. But first a few thoughts:

Today it has been 10 months since my implant surgery by Dr. Douglas Milam at
Vanderbilt.  My implant is the AMS 700 LGX that expands in length and girth. www.amslgx.com. Thanks to the VED exercise before surgery and the implants continuing length expansion I have gained back 90% of my penile length lost in 1995. This can only be done with the AMS 700 LGX.

I have an erection that would make a teenager jealous. I can have an erection for as long as I want, any time I want and for as long as I/she wants.

The best part of having an implant is now I feel NORMAL again.

There are still doctors that want to implant other implants in peyronies patients. These doctors simply are not up to date.


Jackp
Title: Re: Penile Implant Surgery
Post by: jackp on August 23, 2009, 04:34:57 PM
Original Post 8/20/09

I have chatted with a couple of gentlemen that have had the surgery Dr. Milam suggested for you and are quite pleased with the result. Unfortunately these men come and go once they get the result they desire.

I stay on the forum because I want to help others. I was helped by Old Man, Hawk, Les, Tim and others. If I can help one person deal with this affliction I will be glad to have stayed here.

Todd Doran is a great PA. He probaly thought you were talking ED issues when discussing the VED. You can read my history to see how it helped me.


Woodman

This is a copy and paste from Dr. Abe Morgentaler's blog on traction.

Dr. Abe Morgentaler of Men's Health Boston on Traction

Last week in the office I saw two young men who had experimented with new techniques to expand penis size. The first was a 33 year old married accountant, who used a traction device he obtained online for several months, and now complained of a variety of symptoms, including penile numbness, several areas of chronic discomfort, and a change in urination. This device attaches behind the head of the penis (the glans) and the other end pushes against the pubic bone, with various model-specific methods of stretching the penis away from the body. The user is instructed to wear this device for several hours daily for "optimal results." If this device were applied to an al-Qaeda terrorist, is there any question there would be protests in the street against this inhumane practice that violated the Geneva Conventions? Yet men actually purchase this device voluntarily and pay more than $200 for this penile version of The Rack.


Jackp

Title: Re: Penile Implant Surgery
Post by: Hawk on August 23, 2009, 04:52:04 PM
Jack,

I strongly consider this surgery.  I have held off for two main reasons.  One is that I had a diagnosis I have not shared with the forum that put Peyronies Disease on the back burner.  With some luck, it looks like that may be behind me, at least for a while.  Secondly, with ED drugs I am able to barely overcome ED enough to function, but not in any kind of free style event  ;D

I may start looking in the NE for an exceptional surgeon.  If not I may head south to Vanderbuilt.  There are some other renown penile surgeons like:

GERALD H. JORDAN, MD  (757)  457-5125
special interest is reconstructive  GU surgery.
Devine-Tidewater Urology, Norfolk, VA
http://www.urologyofva.com/devine-tidewater/physicians.asp#JORDAN

Tom F. Lue, MD
Professor and Vice Chair Urology
UCSF Medical Center, San Francisco, CA 94143-0330
http://urology.ucsf.edu/faculty/facLue.html

I am not sure how many implants they do but they do lots of reconstruction, grafting etc.
Title: Re: Penile Implant Surgery
Post by: jackp on August 23, 2009, 05:32:05 PM
Hawk

I can relate to having problems that had to be addressed before implant surgery. I had an implant scheduled for late 10/06, just before doing the pre op I had chest pains and had to have heart stents. My heart doctor said wait a year. 10/07 the "best urologist" in my area messed up my first implant attempt and punctured my urethra. It had to heal at least 6 months.

1/08 I had to have back surgery and that doctor said wait 6 more months. July August 08 I was in the hospital for 10 days and the complications when the doctor punctured my esophagus, collapsed my left lung and put my heart into A-fib I had to wait until 10/08. During this time I went to 3 other local urologist before being referred to Dr. Milam at Vanderbilt.

After the heart stents I was 99.999% impotent. The pills did not help at all. The Doctor prescribed a VED. The instructions were not good and did not help the pryronies at all. After the failed implant I found this forum and Old Man put me on the correct VED exercise. I started to regain length. I can truly say this forum and Old Man helped me keep on going.

Today I have regained my sexual function, gained back 90% of my loss to Peyronies Disease and feel Normal for the first time in years.

I know you do not want just any doctor to do the implant for you.  The only Implant that works for ED and Peyronies is the AMS700 LGX. Some doctors still try to use the old CX and others,  but it has now been shown that the LGX does a better job.

As for your other diagnosis I wish you a complete recovery and Gods Speed on your journey.

Jack





Title: Choosing a Implant Doctor
Post by: jackp on August 24, 2009, 04:21:29 PM
When choosing a doctor to do a penile implant do some research first. If you read my history I failed to do that with the first doctor that tried and messed up.

There are very few doctors that are Male Sexual Function Specialist. And those that are are often hard to find. Also a doctor that does multiple implants daily may not be right you want to check out his patient satisfaction and infection rate.

This is the reason I suggest that if you are looking to have an implant do some simple research. One excellent place is Bob Bacons Blog www.penileimplant.blogspot.com. The other is a graphic at www.amslgx.com.

Some doctors still insist on using the old implants like the AMS CX for peyronies. This is old school now that AMS has developed the AMS 700 LGX. There are several of us that can attest to the LGX working on peyronies and ED.

I am available to answer questions and do not mind using common language to describe our condition.  You can contact me either on this forum, PM or email (my email is posted with my profile).

If all else has failed and you want to keep or renew your sex life the implant may be the right option for you, it was me.

Always remember never-ever / never-ever ever give up. There is help.  Some ask have I been cured of peyronies? My answer is NO but I have looked the beast in the eye, and overcome.

Jackp
Title: Bionic Penis
Post by: jackp on September 04, 2009, 10:11:37 AM
This is a cut and paste from Frank on the implant group.

Who would ever imagine that a "Bionic Penis" would be the encouraging mechanism to send men and women into the gyms to improve their cardiovascular health and fitness.

For a change, a disclaimer as to side-effects as on TV, would be a "Positive" side-effect, LOL.

It is true that it also sent me to the gym to improve my fitness and cardiovascular health. I now walk at least 2 miles 5 days a week.

Now I can have a rock hard erection any time, any place for as long as I/she wants. Ejaculate and keep on going. Let a 20 year old try that.  :)  :o

Jackp

Title: Re: Penile Implant Surgery
Post by: ptowncp on September 10, 2009, 07:36:08 PM
Hi jackp

My name is chris and i have been having ed for about 6 years, the doctors say it a venous leak blood goes in just as fast as it goes out. He also told me I have a very mild peyronies that he felt near the base of my penis. I have tried all treatments of pills, injections, and a actis ring nothing works and im only 25 years old. If you could can you answer me a couple questions regarding implants.

You mentioned that dr milam is now recomending the use of LGX implants for the new implant for peyronies disease. Did he state why this implant is alot better and is it as durable as the others?

Since you had your implant, your back to almost your original length before peyronies? Do you think this is because the use of the VED that it streched the peyronies scar to maximixe the biggest length for the implant?

How is intercourse with the implant, are women satisfied with it? Does it compare with sex when you were in your 20s, can you do any position with the implant.

My doctor recommended I should consider the implant but being so young its really a hard decision because im going to have alot of revisions in my lifetime just trying to get alot of info from people who have one.
Dr Milam seems like a really good implant doc I might have to check him out. You mentioned on one of your previous blogs your other urologist reccomended you go to a urologist in texas as well, do you know what doc they were talking about because im 20 minutes from houston.
Sorry mr jack for all the questions.
Chris
Title: Re: Penile Implant Surgery
Post by: jackp on September 10, 2009, 10:58:36 PM
Chris

I will be happy to answer any question you have. If I miss one or you have others do not hesitate to ask.

Dr. Milam recommends the LGX for all implant patients. IMHO by the time most men reach the point of needing an implant they have started to have loss of penile size. The AMS LGX is the only implant that expands in length and girth all others only expand in girth and have an average loss of 1" in length. www.amslgx.com.

Yes the VED exercise was a great help. It is the only thing that helped keep my penis healthy while I had to wait.

When you first take "The Plunge" with the implant there is a slight learning curve. Intercourse is like, well for lack of a better word Normal. I can do thing most 20 year old's can not, erection/sex any time any where for as long as I/she likes, ejaculate and keep on going. Yes you can do any position including oral.

With your condition the only thing that will work is an implant. Your doctor is steering you in the right direction. IMHO Dr. Milam is the best implant doctor there is. He did things for me no other doctor could.

The other doctor in Texas is Dr. V. Gary Price in the DFW area. There is a up and coming doctor in Houston. I will forward your email address to Frank in your area and you can chat with him about him. Frank had his LGX implant in May and is very happy.

Chris, do not be sorry for the questions. I had a supervisor about 45 years ago tell me, Jack the only stupid question is one that you do not ask.

Good luck, keep me posted on your progress either on the forum or my email is in my profile.

Jackp

Title: Re: Penile Implant Surgery
Post by: ptowncp on September 15, 2009, 01:28:58 AM
Hi Jackp

My doctor told me I have mild peyronies, that he felt a scar on the base of my penis. I have a little small dent in the middle of my penis. I gave him a picture of my erection when i took a 100mg viagra and he said the curve looks normal and that it wasnt that bad at all. When you had your peyronies can you describe the effects you had, did you have a very noticable curve. What did the peyronies feel like were it was curved. Because it worries me that you lost length with peyronies.

I have a very hard time with erections I can get one on viagra, but it goes down within a few seconds. The doctor reccomended a implant in the near future but its a really hard decision to make because im only 25. Have you talked to anyone who has had a implant for 10 to 15 years, or has had a couple of revisions. Because me being so young I would probually need alot of revisions. I dont know what to do. Can you give me some advise.
Thank you mr jack
P.S  Thanks for emailing frank for me, he prefered me to a good urologist in houston im going to check out.
Title: Re: Penile Implant Surgery
Post by: newguy on September 15, 2009, 05:08:08 AM
ptowncp84 - If you are manually stimulating yourself is it possible to retain the erection for longer, or did you already fact that in to your reply below? I can understand that this must be very frustrating for you. Some people have euccess with a l-arginine and pycnogenol combo. Maybe viagra and l-arginine and pynogenol would help. Maybe your condition is beyond such solutions though, as you state that you have tried so many options.
Title: Re: Penile Implant Surgery
Post by: jackp on September 15, 2009, 06:59:01 AM
Chris
When my peyronies started I had about a 30% up curve from just behind the glans (head). Yes it felt like it was curved and there was a plaque there about size of a quarter. The short side of the curve when you crook your finger is approximately the amount of size you will loose. To combat the loss of length start on the VED exercise ASAP.

At 25 you have a lot of life in front of you. The only medical procedure for Peyronies with severe ED (where pills do not work) is an implant. I do not agree with the statement that if something better comes along you are out of luck. The implant is easily removed. Why wait 10 - 15 - 20 years for something that might come along.

I do not know much about Franks doctor in Houston. I do know that Dr. Milam and Dr. Price do 100's of implants. You can read My History for what Dr. Milam did for me.

I am going to send Art in Indiana your email address. He has had an implant since an early age and several revisions. He is now considering Dr. Milam because of his reputation and the fact that he only uses the AMS 700 LGX.

Frank said you were considering a doctor in New Orleans. I have heard of a doctor in New Orleans for peyronies but nothing on implants. Let me know what you find out.

Keep in touch and let me know what you decide. There are very few doctors and hospitals that are good at this.

Jackp
Title: Re: Penile Implant Surgery
Post by: ptowncp on September 15, 2009, 09:04:55 PM
Hi Jackp

Have you heard from any doctors of how long the ams lgx implant on average last?
Because at 25 years old I do have alot of life in front of me and im probually going to have alot of revisions, do you think i can still have a implant at the age of 65 if I get one at 25?

Can you be active with a penile implant, say like lift heavy things, stand 12 hours a day on a job, bend down all the time. The reason I ask is because I work in the construction field at gas plants and its a labor job will these things cause the implant to malfunction sooner. Once you get the implant do you have to live like your made of glass.
Thanks
chris
Title: Re: Penile Implant Surgery
Post by: jackp on September 15, 2009, 10:18:26 PM
Quote from: ptowncp84 on September 15, 2009, 09:04:55 PM
Have you heard from any doctors of how long the ams lgx implant on average last?
Because at 25 years old I do have alot of life in front of me and im probably going to have alot of revisions, do you think i can still have a implant at the age of 65 if I get one at 25?

Can you be active with a penile implant, say like lift heavy things, stand 12 hours a day on a job, bend down all the time. The reason I ask is because I work in the construction field at gas plants and its a labor job will these things cause the implant to malfunction sooner. Once you get the implant do you have to live like your made of glass.
Thanks
chris

Chris
Like any surgery in 6 weeks you can do all the things you did before. After 6 weeks I was lifting 30 pound jugs of Freon with no problem. The only caution that applies is like for all men avoid being hit hard in the genitals.

You sound like me intent on waring the implant out.  :o  With a normal life expectancy of about 15 years. I am retired from the HVAC industry and we tell customers the average life expenctancy of an A/C is 15 years. Some last a lot longer and some not as long. I know of A/C systems over 30 years old. Another way of putting it is; you can buy the best quality A/C on the market but it is only as good as the installer. This applies to implant surgeons also.

I am almost 67 and if in 10 years I have to have a revision so be it, I could also last as long as the implant.

No you do not have to live your life like you are made of glass with an implant. Just live, work and make love normally. The only way anyone would know you have an implant is if you tell them.

At 25 you did not say if you were married of single. If single you can romance a lady, discreetly inflate the implant during forplay, have sex and she would never know it.  

I understand your concerns. Just remember with an implant no more pills that may or may not work, no getting up and using the VED and putting on a restriction ring. You just keep the moment going. And you can do one thing your buddies can not, ejaculate and keep on going for as long as she likes.  ;)

Hope this give you a little insight into my prospective.

Jackp
Title: Penile Implant Surgery
Post by: jackp on September 15, 2009, 10:30:41 PM
Chris and all other young men.

There is a new story about a young Marine on Bob Bacons Blog www.penileimplant.blogspot.com.

It relates to you younger men better than I can.

Jackp
Title: Re: Penile Implant Surgery
Post by: Skjaldborg on September 16, 2009, 01:28:09 AM
Thanks Jackp, this is great reference for youngsters such as myself. As for surgery, I'm not quite there yet as my functioning is good so far but, as we all know, Peyronie's is unpredictable. I may need to make this choice down the road and it's very helpful to read stories like this.

-Skjald
Title: Re: Penile Implant Surgery
Post by: young25 on September 16, 2009, 03:35:39 AM
Quote from: ptowncp84 on September 15, 2009, 09:04:55 PM

Have you heard from any doctors of how long the ams lgx implant on average last?
Because at 25 years old I do have alot of life in front of me and im probually going to have alot of revisions, do you think i can still have a implant at the age of 65 if I get one at 25?


ptowncp84 check out post by caddyman & art on the below board. Art had his first implant @ 26 and is in his 50's now.. goin in for his 7th revision. Caddyman is young just like you and me & had implant 2 months back. The below thread is the update thread you can search the main thread and read all the details.

http://www.healthboards.com/boards/showthread.php?t=708684
Title: Re: Penile Implant Surgery
Post by: ptowncp on September 17, 2009, 11:11:14 AM
hey jackp

You said dr milam only implants lgx implants?

How many of the ams lgx implants does he implant a year?  Do you know what his infection rate is?

Because im going to get a referal from my uro to get a appointment with him.

Sincerely
chris
Title: Re: Penile Implant Surgery
Post by: jackp on September 17, 2009, 01:02:16 PM
Chris

Yes Dr. Milam told me he only implants the LGX.

He does over 100 a year. He did 5 the day I was there. He told me his infection rate is less then 1/2 of 1%.

IMHO he is the best implant doctor around.  I has having a conversation with Elizabeth Rea with AMS several weeks ago. She will not refere you to any particular doctor (ethics).  I was talking to her about my problems and what Dr. Milam did for me. She told me that Dr. Milam is highly successful with the most difficult cases.

Good Luck, Let me know how it turns out.

Jackp
Title: Re: Penile Implant Surgery
Post by: newguy on September 17, 2009, 02:38:06 PM
It definitely sounds like patients are in safe hands with this guy. Thanks for sharing your knowledge on these matters JackP. Without your input those interested in implants would be very much in the dark.
Title: Re: Penile Implant Surgery
Post by: Wintercookie on September 22, 2009, 03:41:52 AM
Does anybody know of Urologists in the UK who are well regarded in the field of Implant surgery?
Title: Re: Penile Implant Surgery
Post by: newguy on September 22, 2009, 09:25:09 AM
Quote from: Wintercookie on September 22, 2009, 03:41:52 AM
Does anybody know of Urologists in the UK who are well regarded in the field of Implant surgery?

David Ralph is highly respected I believe. At least Levine recommended him to me. He is the biggest implanter of penile prostheses in the UK (and teaches prostheses fellowship programmes).

As you're in the UK, you should be able to get an NHS appointment with him through your doctor. That way if you have to undergo surgery of any kind I "think" it won't cost you anything. It will probably take quite some time to get an appointment (a couple of months), and I would imagine that your condition would have to be stable before undergoing any procedure. I am happy to have another UK poster here, as we are quite a rare breed. Goodness knows why, maybe most suffer in silence.

Ralph works at the andrology clinic (http://andrology.co.uk/about-us.htm) though if you want to contact them I'd advise you to call rather than use the web form on the site. Also, you can check out his resume (pdf) (http://www.andrology.co.uk/cv/David-Ralph-CV.pdf) and see if you think he's up to the job. I am actually going to compile some UK patient urologist experiences at my UK peyronie's disease (http://www.peyronies-disease.co.uk/) blog, so if you eventually undergo this process please do report back. One other guy here (this guy --> UK (https://www.peyroniesforum.net/index.php?action=profile;u=2244)) has been an NHS and private patient of Ralph, so maybe drop him a PM or reading trough his experiences? It's worth noting that he hasn't has surgery, but he may have insights and observations to share with you.

Around these parts JackP is the go to guy for implant discussions, so he may be able to help you too :).

EDIT: I found David Ralphs direct email address, so if you need that let me know. It's probably best not to post it openly on the forum.
Title: Re: Penile Implant Surgery
Post by: newguy on September 22, 2009, 01:01:55 PM
Also, I have found David Ralphs Andrology email address, so if you'd like that I can PM it to you!
Title: Re: Penile Implant Surgery
Post by: Wintercookie on September 23, 2009, 01:38:46 AM
yes thankyou for that newguy,  I had read about Mr David Ralph and he has published a number of medical research papers regarding various complex procedures in implant surgery i.e Peyronies Disease, priapism, upsizing.  I think if I was to have a penile prosthesis he would be the surgeon most qualified to implant it.  In the UK context it is I am told difficult to get funding on the NHS for penile implants depending on the PCT and would come under the exceptional circumstances rule, even if a Consultant indicated it.

The NHS does however fund implant surgery in some instances for both semi rigid and inflatable devices.  These patients have usually failed other conservative measures and are generally older 50+.  The UK also has a higher than average revision rate of about 25% which isn't very encouraging.

The other option would be to pay for the surgery privately at considerable cost.
Title: Re: Penile Implant Surgery
Post by: newguy on September 23, 2009, 08:27:16 AM
Wintercookie - The revision rate is not great, but bare in mind that it probably accounts for implants across the board. If David Ralph is the goto guy for this then I would think that his success rates are higher than that. The same goes for getting any type of penile surgery from anyone oher than the top guys. People quote percentages that typically do not apply to the top guys.

You mention that most implants are carried out on those aged 50+. I would initially thnk that being younger and in the same condition would be an advantage, but I do understand that there are two ways of looking at the age factor. They may hesitate in fitting a young person with an implant, but if you have truly exhausted all other options then I really don't think that you're asking too much.

If there any way you can gain clarification on whether you'd be agiven the thumbs up to go ahead with this procedure? I wonder if there is a way to find out which area performs the most procedures of this type.

EDIT: I quick glance at a few PCT sites reveals that many of them stipulate that they do not carry out the procedure for cosmetic reasons, with wording along the line of "Reconstruction following surgery for non-aesthetic reasons (eg cancer ormajor trauma) is not affected by this policy." One of two stipulate cancer as the primary alloweance for reconstructure but do mention exceotion cirumstances too, so please don't give p hope. From what you say, you have been dealing with this condition for a very long time, and have tried various options, so maybe that will work in your favour?



Title: Blood Flow Enhances
Post by: jackp on October 12, 2009, 05:15:50 PM
I have gotten a few questions on blood flow to my glans.

First the implant has nothing to do with the glans. There are men that are showers and men that are growers, I'm a grower. The flaccid size of my glans is normal and the erect size of my glans is normal.

If you watched Dr. Oz today, he was talking about women, but the same applies to men. Enhanced blood flow to the glans increases the sensitivity of the nerves. That makes ejaculation easier for those of us that have a hard time ejaculating.

I have coronary artery disease (CAD). After heart stents 10/06 I was put on blood thinner. Last October a week before my implant my heart doctor took me off blood thinner.

While in the hospital for 10 days last year I was given blood thinner injections. As bad as I felt it made the nerves in my penis more sensitive.

After doing some research I came to the conclusion that my CAD was the problem and needed help. My primary doctor wanted me to talk with someone with more knowledge. Todd Doran and Dr. Milam agreed with my prospective and prescribed 5mg daily of Cialis. I can tell you for me it works.

No, Cialis or any of the other pills helped my ED, the venous leakage and corporal fibrosis was too bad. All it helps with is enhanced nerve function to the glans.

For men on testosterone gels, get your blood thickness checked. My arthritis doctor always complained that my blood was too thick. After I went on T shots it went back to normal. I think that the thick blood caused me to need heart stents.

Jackp
Title: Re: Penile Implant Surgery
Post by: magicus on October 13, 2009, 03:40:06 AM
Hello  everybody,  hello Jackp....

sorry if my English is not perfect. I'm Italian man and I read this forum again and again.  Thanks " with my heart " for the wonderful service. I would be happy if Jackp answer about my question . I'd be really happy to know what you think, Jackpot ...(I hope to write my story  with understandable language) ...


I do not respond to injections   already, and unfortunately I have developed ( two years now) a scar for use of alprostadil. so now I only use Viagra. But this is important: My scar is a small "dent ", is a "DIMPLE". I have no nodule, i have only a small dimple in the center of my penis. The result is small shrinkage in that area. I have no shortering and  small curvature ( 20 degrees about)..

Fortunatly I have a big penis. My girth is about 6 1/2   and in  dent area there is a small reduction of girth (few millimeters).  I would like
to know  this ,dear Jackpot:The inflatable penile implant  FILL the dent? the dimple ? ( hope " fill " is the exact  word....  ).Important: the dimple is visible only  when penis is100% erect. with flaccid penis this is minimal. the penis is tottally soft, there's no hard tissute...fortunatly..

what do you think  Jackp about the implant results ??

Jackpot Thanks I hope you will answer my question.

Title: Re: Penile Implant Surgery
Post by: skunkworks on October 13, 2009, 06:49:52 AM
From what I have read, if you can achieve functional erections then penile implants are definitely not recommended.

Title: Re: Penile Implant Surgery
Post by: jackp on October 13, 2009, 11:08:22 AM
skunkworks

If you have a suitable erection to complete intercourse you probally are not a candidate for a penile implant.

If the pills, L, C, or V are starting to fail you then you need to go to a Male Sexual Function Specialist not a general practice urologist for an evaluation.

Do Not try shots in the penis for ED. In most men they cause problems that include, but not limited to, peyronies and corporal fibrosis.

Jackp
Title: Re: Penile Implant Surgery
Post by: jackp on October 13, 2009, 01:05:43 PM
maguius3000

Your English is fine, I get the meaning of what you are trying to say.

First Welcome to the forum. Any way we can help we will be there for you.


Your statement on alprostadil (PGE1) Is why I tell men to stay away from penile injections for ED. They cause many problems and only made my condition worse.

First let me tell you to go to the VED board and start the exercise to help with the curve and stop the penile shrinkage. Old Man is an expert on the VED and helped me when I first came to this forum, either he or I will be glad to answer any question on the VED there.

You do have a nice size girth that is larger than normal. Yes the dent can cause a reduction in size.

The AMS 700 LGX can straighten the curve and over time increase your girth and length back to your normal size. As for the dent/dimple I simply do not know.

The results of my implant are amazing. See my recent post on my one year post op at Vanderbilt. Another place for factual stories is Bob Bocons Blog www.penileimplant.blogspot.com and for a good graphic of the LGX go to www.amslgx.com.

Any questions you have I will be glad to answer. You can either post it here on the forum, or send me a private message if you want to say something private.

Glad to help.

Jackp
Title: Re: Penile Implant Surgery
Post by: skunkworks on October 13, 2009, 10:06:25 PM
Quote from: jackp on October 13, 2009, 11:08:22 AM
skunkworks

If you have a suitable erection to complete intercourse you probally are not a candidate for a penile implant.

Isn't that what I said?
Title: Re: Penile Implant Surgery
Post by: magicus on October 14, 2009, 04:28:08 AM
Quote from: jackp on October 13, 2009, 01:05:43 PM
maguius3000

Your English is fine, I get the meaning of what you are trying to say.

First Welcome to the forum. Any way we can help we will be there for you.


Your statement on alprostadil (PGE1) Is why I tell men to stay away from penile injections for ED. They cause many problems and only made my condition worse.

First let me tell you to go to the VED board and start the exercise to help with the curve and stop the penile shrinkage. Old Man is an expert on the VED and helped me when I first came to this forum, either he or I will be glad to answer any question on the VED there.

You do have a nice size girth that is larger than normal. Yes the dent can cause a reduction in size.

Jackp






Tank's for your response Jackp. I live in Italy but I want to  solve my ED problem  absolutely. I have consulted with some people in Europe (even with complex peyronies ) who have had surgery with a famous European urologist-surgeon ( he work in Serbia ). His name is Perovic.
In Europe he is considered number one for Peyronie's and penile implant.   After I meet him, I will inform you about what he recommended for my situation

Thank's so much
Title: Re: Penile Implant Surgery
Post by: jackp on October 14, 2009, 11:18:06 AM
magicus

One tip that help the doctors visit go easier. Have a printed list of questions. That way you will not forget to ask something and it tends to slow down the busy doctors.

Also before seeing the doctor have a print out of your urological history. Give it to the nurse or PA when you check in. That way the doctor can review your history and be knowledgeable of your situation.

Hope it helps. I worked for me.

Jackp
Title: Re: Penile Implant Surgery
Post by: jackp on October 14, 2009, 11:18:35 PM
I have been receiving messages recently about "floppy head" (glans) after reading some blogs on penile implants.

I do not have "floppy head" (glans). I have the AMS 700 LGX implant that expands in length as well as girth. Most men on these blogs have implants other than the LGX. If you look at the graphic at www.amslgx.com you will see that the implants extends into the head, the other implant the CX does not.

During my exam last Friday at Vanderbilt I pumped up my implant. The doctors showed the intern where the ends of my implant extended about 1/2 way into my glans. The implant holds the glans just like the erect corpora's.

Also during the exam Dr. Milam asked, "what is the most common complaint of men with peyronies." Loss of length and girth, that is why they recommend and use the LGX.

Jackp
Title: Re: Penile Implant Surgery
Post by: magicus on October 17, 2009, 11:16:30 AM
Quote from: jackp on October 13, 2009, 01:05:43 PM


As for the dent/dimple I simply do not know.



Scuse me Jack, I have another question for you: you told me " As for the dent/dimple I simply do not know "

I read in your story that you had  "scar"  caused by injections, as me. Fortunately, after penile implants, your  "girth" coming back. So I ask you this: your lgx implant has filled your dent,  okay? Your corpora scar  has not impeded the inflation of implant ?

if  these my considerations are correct, then I can think positively for my situation , too....


ps :  you've had dimples, like me, or just scars?

thank's


Title: Re: Penile Implant Surgery
Post by: jackp on October 17, 2009, 01:46:40 PM
magicus

I did not have a dent. All I have now is the scar on top of my penis just behind the glans.

The scar has not been a problem with the implant. An yes my girth has returned to my normal size in my late teen and early 20"s of approximately 6 1/4 inches.

As I understand the process the scar tissue in the corpora's is replaced by the implant.

FYI When I inflate the implant my girth increases to almost double the flaccid size.

Any questions I can answer I will be glad to.

Jackp
Title: Re: Penile Implant Surgery
Post by: skunkworks on November 04, 2009, 09:57:14 PM
How do you inflate the implant? Is there a switch and is it internal or external?

Does the implant ever run out of batteries?
Title: Re: Penile Implant Surgery
Post by: jackp on November 04, 2009, 10:11:41 PM
skunkworks

The implant is a hydraulic device. There is a pump in the scrotum that moves saline fluid from the reservoir to the tubes in your corpora that create an erection.

To make the penis flaccid there is a release button on the pump that when depressed lets the fluid move back from the corpora's to the reservoirs.

There is  good graphic at www.amslgx.com.

No batteries required.

Jackp
Title: Re: Penile Implant Surgery
Post by: skunkworks on November 05, 2009, 07:21:08 PM
It was looking at that graphic that prompted the questions :)

So you manually squeeze the pump, which is the part located in the scrotum? And the bit near the abdominal wall is the reservoir?

Does the reservoir ever need refilling? Is it at a set amount or does it draw fluid into the reservoir via an osmotic membrane?
Title: Re: Penile Implant Surgery
Post by: jackp on November 05, 2009, 08:49:15 PM
skunkworks

Yes you squeeze the pump located in the scrotum. The reservoir is located by  your bladder. No you can not feel it.

It is a closed hydraulic system. It does not need refilling. The size of the reservoir is determined by the size of the tubes in the corpora's. The 12 and 15cm get a 65ml, the 18 and 21cm get a 100ml.

Jackp
Title: Re: Penile Implant Surgery
Post by: skunkworks on November 05, 2009, 09:35:34 PM
Thanks Jackp, I have a much better understanding of how it works now
Title: Re: Penile Implant Surgery
Post by: jackp on November 10, 2009, 04:25:09 PM
I was at my hometown urologist today for my annual PSA and DRE. I also had X-rays this morning for my kidney stones.

I have a very large stone and I will have lipo on the 23rd.

Dr. Walzer was the doctor that sent me to Dr. Milam at Vanderbilt. He asked about the implant and then examined it. He asked if I go to use it and I told him YEA!!!.

We talked a little more and then I told him Dr. Milam said he did a ton of reversions. Dr. Walzer said Yes because a lot of doctors get it wrong. You had problems that is why I sent you to him.

My implant, the AMS 700 LGX, continues to expand and the wife and I have a very enjoyable sex life. 5-6 times a month for a couple 67 & 69 who would have guessed.

Jackp
Title: My Thoughts
Post by: jackp on November 16, 2009, 09:58:06 AM
I was luck enough to fall in love with and get married to a wonderful lady 41 years ago. Through the years we had our problems and worked them out.

One thing I learned with this lady is that there is sex and then there is making love. Two completely different things.

After my failed implant I lost my focus. I just wanted to have sex again. Fortunately she helped me bring my focus back to making love and not sex. There is a lot more to making love than just intercourse.

Today with my implant I have been able to renew my lost ability to have an erection. But I still remember her words to me during my darkest hour, "Jack, I did not marry you for your penis."

With the renewed ability to have intercourse with this lovely lady it has made making love the pleasure that God meant it to be. Not me not her but us.

For you men thinking about do I want to have the surgery or not remember if making love to your lady is your desire the reward will be greater than you expected.

Just my thoughts.

Jackp
Title: Penile Implant
Post by: etshy on November 17, 2009, 10:37:07 AM
I am new to this forum and I posted this on the off topic forum as I'm not sure where I'm allowed as I don't have Peyronies Disease.  I had penile implant surgery one month ago due to ED from Prostate Cancer surgery.  I had also developed scar tissue and some curvature due to penile injections.  They have the implant 3/4's inflated and I have it supported with an athletic support. I'm having difficulty with my stream as it goes in all directions.  I also experience pain in my penis as soon as I have an urge to urinate.

Are these things normal and do they get better with time?  They have not deflated the device as yet due to inflammation but the major pain has subsided.

TIA
Title: Re: Penile Implant
Post by: Tim468 on November 18, 2009, 09:12:21 PM
See my other response. Get to your urologist asap.

Tim
Title: Christmas Toy
Post by: jackp on December 09, 2009, 09:31:06 AM
I had my new toy last Christmas. It was new and like any new toy there were things I did not fully understand.

Some toys we put on the shelf or just leave idle. As my new toy became more and more a part of me I now understand how blessed I am. I can be normal again after years of pills, shots and botched surgery.

This toy is something that gave me back the intimacy with my lovely wife I had missed for years. The gleam in her eyes when the Doctor told her the implant was a success was worth more than gold.

The benefits of the toy are many. Erection whenever or whereever  wanted, for as long as wanted without worry about time constraints. No more cold to the touch, just warm and natural feeling. The return of a lot of lost size from peyronies and all the other complications is a big moral booster. Can do things now even a young man would envy.

The toy I received last Christmas is not one that you put on a shelf or disregard. It has now become a natural part of me.

The decision to go for the implant was not an easy one. There were many obstacles to overcome. Faith, hope and a lovely and caring wife helped me through the obstacles.

This Christmas I can say I am surely blessed. I have gift that keeps on giving.

Jackp
Title: Re: Penile Implant Surgery
Post by: MUSICMAN on December 09, 2009, 12:48:37 PM
Jack I am happy for your success although I do know you had a bunch of issues / problems before you received the implant. This disease offers few options. If a man has a slight bend and normal erections they can still function. Some men have had some success with medications, ved and we are still waiting for a medical break through. Some men have to have surgery to try and correct the problem as sex is not possible do to the degree of the disease. Surgery has it's risks but if it is the only real option then I feel it is the right choice. I fall into the class that meds & ved has not helped and I am not able to have sex. My option at this time is to have surgery and I am ready for that but, with no insurance coverage and no cash I am out of luck. I have come to accept that my sex life is over and the distance that grows between my wife of 37 years is the way the chips fall. It sad that there is medical help for conditions that people have but money talks and bull **** walks.
Title: Re: Penile Implant Surgery
Post by: chiguy on December 09, 2009, 03:06:51 PM
Musicman,

Not sure if you are in the United States, but if you are in the US and of a certain age, you are Medicare eligible. It is my understanding that Medicare does cover sexual dysfunction surgery. Maybe some of the other members can weigh in here.
Title: Re: Penile Implant Surgery
Post by: MUSICMAN on December 09, 2009, 03:36:34 PM
Too young for Medicare. I'm self employed and do make a living so can't get free homeless health care. Business is real bad and if I close my business ( real small business ) I can't even get unemployment benefits.
Title: Re: Penile Implant Surgery
Post by: jackp on December 09, 2009, 05:12:29 PM
Musicman

Wow do not know what to say off the top of my head.

Some men have had success in negoations with the doctor and hospital. That got the cost down to about 1/2 of the normal fee. 1/2 normal fee is usually more than the insurance companies pay. My bill at Vanderbilt before Medicare was $33,000.00. Medicare paid them $9,000.00 with my supplement paying 20%. Also some doctors will operate in the morning and let you go home that afternoon. That would save cost.

If you do not do heavy lifting you should be able to go back to work in a week or so depending on how you feel.

Yes, you are correct when the pills and everything else fails the implant is the only option left.

Good Luck

Jackp
Title: Re: Penile Implant Surgery
Post by: chiguy on December 09, 2009, 07:02:57 PM
I don't want this to get political, but there is some hope for Musicman with medicare. The final version of the US Senate Health Bill will lower Medicare age to 55 in many situations. Perhaps if you can wait it out until the health bill passes, you might be able to have them cover some of it.
Title: $64,000 ?
Post by: jackp on January 01, 2010, 12:33:34 PM
Most of us are cautious about asking the wife or partner the $64,000 question.

The only complaint my wife had about my implant was in the beginning, it caused her virginal soreness. We first thought it was just getting used to having intercourse with a hard penis again. Her Ob-GYN had retired and our PCP recommended a doctor that specialized in painful intercourse. She went to him and he gave her a prescription for a pill that she inserted twice a week. Almost instantly the soreness went away.

Back to the question.  After a romp the other evening I asked the question I never asked but assumed. How does my penis feel now? She said "Jack, it feels just like you always did. I can not tell the difference." This is from a lady that is known for being brutally honest.

All you guys out there considering an implant and wondering how the lady feels about it. Approximately 95% of couples are happy with the results.

Try everything you can first, keep your penis healthy with the VED protocol. When all the pills, shots and alternative therapy fail the IPP is the way to go. The AMS 700 LGX, www.amslgx.com, is the only IPP that will help restore your loss to peyronies and ED. In my case it has changed our lives for the best.

Good luck to all on this forum. Have a happy and safe new year.

Jackp
Title: Re: Penile Implant Surgery
Post by: Sony on January 02, 2010, 06:38:06 PM
Magicus...if you need some information about prof.dr.Sava Perovic and dr.Rados Djinjovič from Serbia..just ask.

Happy new year to all...
Title: Re: Penile Implant Surgery
Post by: voulezvous on January 04, 2010, 05:47:14 PM
I recently came accross this 2007 web video that, I think, does an excellent job of describing & showing the process of penile implant surgery:

http://video.google.com/videoplay?docid=3849174671169413222#

JackP continues to do a terrific job of responding to questions about this topic so there's no need for me (as a recent implantee) to add much other than my "seconding" his position about what a fantastic option it is for those Peyronies Disease sufferers like me who tried every other possibility without success.

If you watch the video to the end (its about an hour long) you will note that one of the drs. being intereviewed makes a strong point about the importance of continuing to do whatever you can to achieve some erection capability in order to avoid shrinkage. For those of us who have dealt with Peyronies Disease for years, it underscores the importance of regular usage of at least a VED even if for no other reason that there may be implant surgery somewhere in your future.

Its also worth noting that one of the comments made is that 80% of the implants done in the U.S. each year are by 10 drs.

Seems to me that this site should do all that it can to identify who these drs. are...
Title: Re: Penile Implant Surgery
Post by: jackp on January 04, 2010, 06:09:38 PM
voulezous

I have seen the video. It represents both the pubic and scrotal approach.

Glad to have a seconding. I agree 100% that the VED protocol is the best thing a man can do for himself by keeping his penis healthy.

There are very few medical centers like Vanderbilt. The good news is Dr. Milam has several interns in training to become Male Sexual Function Specialist. One of the interns that assisted with my implant was a lady board certified urologist. Dr. Milam said she was in the second year of his four year program. She actually told me she was going to practice implant surgery.

I hear good and bad about other centers. Some of the "best" refuse to recognise that the LGX actually works. I hope Dr. Milams paper in an upcoming publication of the Journal Urology will help. On the bright side more and more doctors are recognising the advantage of the LGX.

Enjoy your new toy.

Jackp
Title: Re: Penile Implant Surgery
Post by: Old Man on January 08, 2010, 08:56:42 AM
grayling:

OK, have no idea why you should have missed the VED procedure. There is a complete board listed on the home page of the main forum. There are many and varied subtopics listed there.

Anyway, I will go into somewhat detail about what a VED and it procedure is and how to use it. VED stands for Vacuum Erection Device. It was originally developed by a company in Augusta, GA for the purpose of obtaining better erections for sexual activity. It was soon discovered that it would produce relief from peyronies disease symptoms by stretching the penile plaque and nodules. In most cases this stretching helps relieve the symptoms and can return ones penis to somewhat of its original state before peyronies struck.

Suggestion: Log in to the Peyronies Disease forum, look for the home page link. Scroll down through the main headings until you find the one on VEDs. Look for a topic that interests you and open it. There you will find the posts and answers that has been posted on that particular subject. There are several protocols listed based on which VED one chooses to use. There is also one listed for using the VED after penile surgery written by JackP who has had an implant done. He gives specific instructions on the VED use.

I am sure that you have many questions at this time, so feel free to ask any and all that come to mind for you. This forum has more current information about Peyronies Disease than most on the web.

Old Man
Title: Re: Penile Implant Surgery
Post by: timk on February 06, 2010, 10:49:24 AM
jackp

In the video (Reply #53), didn't the Coral Gables doctor say his operation only costs $10,000-$20,000. He was finished in less than 15 minutes with an infection rate of under 1% (one patient who didn't follow orders - twice). Impressive!

What method do they use in Vanderbilt? How long did the OP take?

timk
Title: Re: Penile Implant Surgery
Post by: jackp on February 06, 2010, 04:37:29 PM
timk

I do not remember what the video said he charged. There are a couple of stories you need to read about this doctor. One is Curt's story on Bob Bacon's Blog www.penileimplant.blogspot.com. Another is to google his name and read about the gentleman in Miami FL before making up your mind to go see him.

Dr. Milam at Vanderbilt uses the infrapubic approach and 98% of his implants are the AMS 700 LGX. For a good graphic go to www.amslgx.com and it will show the comparison between an implant that expands in length and one that does not.

Surgery takes less than 75 minutes. For me that was about the time from leaving the room to recovery. 

If you need anymore information just let me know.

Jackp


Title: Re: Penile Implant Surgery
Post by: timk on February 13, 2010, 03:31:25 AM
jackp,

Thanks for the tip about the Coral Gables guy; I got an email from him saying his total all-in cost is $19,000.

I'm going to try to find a doc here who does the operation - my urologist is looking for me - but it doesn't seem to have caught on over here yet. It's a shame there aren't more men like you reporting on the experiences with an implant. If the majority of implant recipients were as positive as you, there would be a lot more done.

I just got a VED and started using it yesterday, and I have to say, god help us if that's the only way to have sex. You have to have a patient and desperate partner to use that thing regularly.

timk
Title: Re: Penile Implant Surgery
Post by: jackp on February 13, 2010, 07:15:30 AM
timk

I checked with Vanderbilt and the average cost for a patient without insurance is just over $20,000.00. That includes doctor, clinic and hospital cost. Also, they said there are other ways to help reduce cost if needed.

I agree on the VED, I had a lover hate relationship with using it. The daily exercise got to be a regular routine but those darn constriction rings. I tried all the rings and found that the Osborn worked best.

Good Luck on your search. I sent you a PM a few minutes ago.

Jack
Title: Re: Penile Implant Surgery
Post by: timk on February 19, 2010, 03:54:39 AM
I've been doing more research myself and found that the university hospital in Freiburg was given the "Center of Excellence" award by AMS. I e-mailed AMS here and asked if there were other such centers. It seems one more was just awarded last week to a hospital in northern Germany.

I wrote an e-mail to Freiburg and got an answer within hours. They said that according to AMS they were the leader in implants in 2008 having performed (only) 41 in two years. They use the method developed by Dr. Steven K. Wilson, who has visited them 3 times over the last few years to give them pointers.

They want to keep me in the hospital for 5 days, which might be good if there are complications since Freiburg is a 3 hour drive from here. Although it still seems like a long time. They are sure my insurance will cover all costs.

I'll be sending an e-mail to the other hospital shortly to see what they have to say.
Title: Re: Penile Implant Surgery
Post by: timk on February 20, 2010, 01:23:42 PM
I got a reply from the other hospital (Ammerland-Klinik - Dr Schattka). It's located in Westerstede by Bremen. They say that only about 400 implants are made a year in Germany, which is probably because the insurance only pays if there is an organic cause of the ED. They also recommend a 5 day hospital stay and have done 39 operations in the past year.
Title: Re: Penile Implant Surgery
Post by: desertman on March 02, 2010, 07:35:37 PM
Quote from: Sony on January 02, 2010, 06:38:06 PM... if you need some information about Prof. Dr. Sava Perovic and Dr. Rados Djinjovič from Serbia ... just ask.
Whatever you have - can you share that with us?

I stumbled upon him in my research on Peyronies Disease surgery. He might be a very interesting option. You can download his quite impressive CV from the website of failedhypospadias_dot_com (unfortunately I cannot post a direct link here, you have to find the right page yourself).

If you have any information about Sava Perovic or even personal experiences it would be great if you could put them up here!
Title: Re: Penile Implant Surgery
Post by: timk on March 08, 2010, 12:39:14 PM
Jackp,

You recommend using a VED; I noticed you used the one cylinder device but recommend the 3 cylinder one. Can I ask you why and what were the results with the one cylinder?

Before I got Peyronies Disease, I had about 18cm; now after following your instructions for the 1 cylinder device, I have about 16cm at the end of the 100% 5 minutes - I've been using it about 3 weeks now. How much improvement can I expect? How much longer should I use the VED before getting an implant?

Timk
Title: Re: Penile Implant Surgery
Post by: jackp on March 11, 2010, 10:56:03 PM
timk

It can take 3 months + to notice a gain in penile length.

In one year I gained almost 3/4" in length. All of us are different so I can not tell you what to expect but it should show improvement in three months, some take longer.

I would use a VED at least 2 months before getting an implant. It will help keep your penis healthy, similar to night time erections. Dr. Milam recommended using the VED up to about 48 hours before surgery.

My penile loss to peyronies was 1 1/2". I am happy to report that with the AMS 700 LGX I have regained 90% of that back. Without the VED exercise I would not have been as lucky.

Jackp
Title: Re: Penile Implant Surgery
Post by: kendotx on April 20, 2010, 01:22:41 PM
Quote from: jackp on March 11, 2010, 10:56:03 PM
timk

It can take 3 months + to notice a gain in penile length.

In one year I gained almost 3/4" in length. All of us are different so I can not tell you what to expect but it should show improvement in three months, some take longer.

I would use a VED at least 2 months before getting an implant. It will help keep your penis healthy, similar to night time erections. Dr. Milam recommended using the VED up to about 48 hours before surgery.

My penile loss to peyronies was 1 1/2". I am happy to report that with the AMS 700 LGX I have regained 90% of that back. Without the VED exercise I would not have been as lucky.

Jackp
Title: Re: Penile Implant Surgery
Post by: jackp on May 17, 2010, 04:40:16 PM
It has now been about 19 months since my penile implant surgery at Vanderbilt by Dr. Douglas Milam.

When I posted my one year story I did not think things could get any better. I am delited to tell you that things have improved since then.

I have gained back over 90% of my length lost to peyronies and my normal girth has been restored.

Now it is like peyronies, ED, venous leakage, loss of night time erections, and corporal fibrosis never happend. Making love to my lovely wife of 41 years is some of the best of our lives.

Yes, there was the pain of surgery, the fumbling like a horny teen at first, the learning curve of first use and the travel to Nashville. All the discomfort is a distant memory. The only way I know to describe things now is like two people very much in love making love to each other. The awesome feeling of being NORMAL again.

Jackp
Title: Re: Penile Implant Surgery
Post by: magicus on June 01, 2010, 03:33:15 PM
Sony,  there is  message private for you....  thank's
Title: Re: Penile Implant Surgery
Post by: HOJO on June 10, 2010, 01:23:15 PM
I have recently been diagnosed with Peyronies and here is a laugh, I think I may have had it for about a year and being totally ignorant of this disease I thought all kinds of things like maybe my I should not wear briefs because my underwear was too tight when I was getting night time erections etc., anyway I am scheduled for surgery for the peyronie's and an implant in August 2010. I've read a lot about restoring length using a VED, however I asked my doctor about such things as traction devices (which I am assuming takes VED into account) and he has discouraged me from this saying that "these are only for very severe peyronies" (mine is about 40-50 degree curvature).
erections come and go but do not stay for very long. I have also been put on Postaglandin injections from my first Urologist saying if I develop peyronies on the other side it may straighten out the penis or the strength of the injections may straighten the penis. I have also been told that vitamin E is useless.
I have also been reading about Xiaflex therapy which sounds promising but not available until an expected date of 2011.
Does anyone have any comments on what I any going through as I am a little confused with all the differing opinions and not sure now if I should postpone the surgery. ???
Title: Re: Penile Implant Surgery
Post by: GS on June 10, 2010, 03:19:45 PM
HOJO,

This is only my opinion, but it sounds to me like you are moving pretty fast.  I have had peyronies for a couple of years now and I also have a 45 degree curve.  But, with a willing partner, I can still have intercourse.  I don't know your situation on that, but that's probably going to be my determining factor for considering surgery.

I am sure you will get feedback from more knowledgeable people than me, but good luck on whatever you decide.
Title: Re: Penile Implant Surgery
Post by: Old Man on June 10, 2010, 03:24:10 PM
HOJO:

First, welcome to the forum. You have come to a place where the members here have gone through many and varied types and forms of Peyronies Disease. Along with this they have encountered erectile dysfunction as well. The members here have many years of experience with both disorder/diseases and have much knowledge about how to deal with them. You should do some deep research on the many forum boards about Peyronies Disease before you consent to any form of surgery if your bend/curve is no worse than you mention in your post.

Second, penile implant very well have their place in treating ED and Peyronies Disease. However, it is our considered recommendation that you get at least a second opinion from a more qualified uro than your present on appears to be. Apparently, he has very little knowledge about vacuum erection devices as well as traction devices based on what his comments to you were about them. VED therapy following the 26 week protocol for the three cylinder VEDs has proven to be a valuable weapon in treating Peyronies Disease as well as ED for many guys on this forum. IMHO, you should consider this therapy before consenting to implant surgery for the reason stated below.

I would strongly urge you to contact JackP on this forum before you embark on a course of penile implant surgery based on your present diagnoses. From your post, I gather that you do need to do some more searching for a therapy before the surgery. JackP is the resident expert on implant surgery and he can steer you very well in the course of action you should follow first.

We are all here to help in any way, so feel free to ask questions of anyone on the forum. Lastly, IMHO, implant surgery is the "last resort" after all other options are exhausted. Once done, implant surgery cannot be reversed, so be careful with your choice about it. However, it would only be fair to relate that there are some cases of Peyronies Disease and/or ED that only surgery can successfully help. So, bottom line of what I am saying is, do your homework before finalizing plans for surgery. Again, welcome aboard one of the best Peyronies Disease forums around!!!

Old Man
Title: Re: Penile Implant Surgery
Post by: cowboyfood on June 10, 2010, 04:06:30 PM
Quote from: HOJO on June 10, 2010, 01:23:15 PM
I have recently been diagnosed with Peyronies and here is a laugh . . . anyway I am scheduled for surgery for the peyronie's and an implant in August 2010. I've read a lot about restoring length using a VED, however I asked my doctor about such things as traction devices (which I am assuming takes VED into account) and he has discouraged me from this saying that "these are only for very severe peyronies" (mine is about 40-50 degree curvature).


HOJO,

I'm confused by your post because the above comment does not make sense to me about your condition; I would imagine that surgery and implant are the "very severe condition" treatments

CF
Title: Re: Penile Implant Surgery
Post by: BrooksBro on June 11, 2010, 06:49:10 AM
I concur with the comments of those already posting a reply.

It appears to me the urologists most experienced in treating Peyronies consider the ability to achieve erections and subsequent penetration as critical markers for therapy, especially plication, graft, or implant surgery.  The first requirement is achieving an erection.  Obviously, without one, you won't penetrate.  (At least I never could, but maybe there is some technique that I never learned.)  If you can achieve erections (by any means) AND penetrate, then surgery is not appropriate.  This is regardless of the severity of angulation or the direction. 

Since your urologist said traction and VED therapy are only for the "most severe" angulation, (and most of us here would STRONGLY disagree with that statement!), that implies to me that your angulation is "less severe," which is even less reason for implant surgery.

I am skeptical that there are reliable angle measurement techniques for this condition.  There seem to be too many variables for more than +/- 10 or 20 degrees of accuracy.  So, is that 20 degrees, or 40 degrees?  There is a big difference between them in my opinion.

As long as I can achieve erections and penetrate, I am willing to try nearly any other therapy.  It appears to me that implant surgery is not always a one-time event.  Depending on many factors, these devices can and do fail, which requires replacement.  At $20,000+, an implant is NOT something that I would ever consider, until all other therapy methods have been tried and proven unsuccessful.  I consider it irresponsible for a urologist to recommend surgery as the initial or only treatment, when there are published medical studies that both traction and VED therapy can be helpful in restoring function.

Perhaps the patient's satisfaction is also an important factor.  If we (and our partner) are satisfied with our ability to engage in intercourse, despite any difficulties, then surgery seems less desired.  If we are not satisfied with it, then surgery seems more like a possibility.

One reason to quickly seek implant surgery might be if I were a professional male dancer (low risk of that being a successful endeavor for me!), where the size and appearance of the bulge in my g-string was critical to my income.

Title: Re: Penile Implant Surgery
Post by: voulezvous on June 12, 2010, 11:42:38 AM
Hojo,

There's another consideration to be made before you move to implant surgery. What is your age?

I am 68 & had an implant done last August. Like JackP, I am very pleased with the outcome BUT I had it done under Medicare AND I was already unable to sustain an erection even pre-Peyronies Disease.

My opinion - as it seems to be with others - is to go slowly. If you are able to achieve penetration & please yourself as well as your partner, I would try to take an optimistic approach that other, less drastic, methods of correction will be coming along within a few years.

I waited 2 1/2 years before I decided to go with the implant. And I did a lot of research on my own.

Don't underestimate the pain, recovery & irreversibility aspects also of the penile implant.  Its no picnic, believe me.
Title: Re: Penile Implant Surgery
Post by: HOJO on June 13, 2010, 08:19:59 AM
voulezvous:
I am 58 and viagra does not work for me nor do any of the other ED pills, It only gives me headaches and makes me very flushed, what does work is Postaglandin injections, this allows me to penetrate about 40% of the time.
I have been doing a lot of research on the web and am now on my second opinon doctor that I actually found through this forum.
Dr. Milam from Vanderbilt was the one to confirm what my first urologist had recommended however, the first urologist had also mentioned having the surgery to only take care of the peyronies and just use injections after that but from what I have read that is even worse than the implant surgery.
I plan on asking Dr. Milam about a drug that is being released in 2011 (Xiaflex) to date they seem to have a 67% effective rate on peyronies I don't know if this takes care of the ED also.
I have also been reading a lot of how the injections can cause Peyronies, so I see my only choices are to wait and do nothing or keep injecting and doing more harm or surgery.
So with those being my options, I'm not sure at this point what to do
If anyone has any other suggestions, please let me know.
Thank you all.
Title: Re: Penile Implant Surgery
Post by: Old Man on June 13, 2010, 02:08:32 PM
HOJO:

Sorry to hear about your ED as well as Peyronies Disease problems. I went down the penile injections road for ED as well as Peyronies Disease. Took twelve of the shots for Peyronies Disease with each one causing more and more problems. Injections for ED only gave me more plaque and nodules and they did not solve the ED problem at all either.

After the pills failed to work for me, the impotence evaluation therapist at my uro office suggested trying the VED therapy. At the time the three cylinder VED models were not on the market. I was prescribed an Osbon Esteem one cylinder VED. The therapist taught me how to use it and the exercise sessions started relieving some of my problems immediately.

After a bit of practice, I learned how to use the VED for erections in order to have sex. The Peyronies Disease problems took about a year to get rid of and all of my curves/bends and nodules/plaque. And, today after 14 years, I am as straight as I ever was before ED and/or Peyronies Disease. I can get natural erections firm enough for sex by hand manipulation to an erection and then placing a retainer ring on the base of my penis to hold it up. BTW, I reach the age of 81 in September this year ;D ;D :)

So, I would strongly urge you to check out the VED board on the home page of the forum when you sign in. There is a wealth of information there about our histories with VED therapy as well as positive results. There is thread that discusses the different models of VEDs, three cylinders, one cylinders, and also one for those guys who made their own VED with the protocol for their use.

So, bottom line, do some more homework by reading up on the many and varied treatments guys have tried on this forum. Some had success with one therapy, others had success with the VEDs and some had success with the shots and traction therapy.

You owe to yourself to explore all the options open for you at this time. Do not go off on a tangent and do something you would regret later for having done. We are all here to help, so make use of our expertise on the subject of ED and Peyronies Disease.

Old Man
Title: Re: Penile Implant Surgery
Post by: timk on August 28, 2010, 12:37:36 PM
I just wanted to report back that I had the implant done 3 weeks ago. I went to the University Hospital in Freiburg (Germany) on Thursday, Aug 5 to be checked over, had the OP on Friday, the implant was left fully inflated for 24 hours and half inflated for another 24 - to force the blood out, they said. The catheter was pulled on Sunday and the drainage tube on Monday, and I went home Tuesday.

In total I spent 5 nights in the hospital, and the whole thing cost Euro 10,000 or about $13,000. My (private) insurance covered it all, and I was told that the German public insurance companies would have covered it, too, if the cause of the ED is organic.

Dr. Christian Leiber (christian.leiber@uniklinik-freiburg.de - (49) 0761 270 2891) performed the OP and was assisted by his boss, the head of Urology, Prof. Wetterauer. I had the AMS 700 LGX implanted; afterwards Dr Leiber said he put 3 "extensions" on the base and "cracked" the Peyronies Disease plaque, which, as far as I can tell, has straightened things out entirely - Peyronies Disease problem solved!

There was a dull pain, similar to having an erection for a very long time, for about 10 days getting steadily better all the time. The pump in the scrotum is still something I'm getting used to, but again, it's getting less noticeable by the day. And I think it's the 3 extensions that have been forcing me to sit down very gingerly.

I go back to have it activated in the end of Sept.

I'll keep you informed.
Title: Re: Penile Implant Surgery
Post by: LWillisjr on August 28, 2010, 02:29:40 PM
Thanks timk!  Please keep us updated. Hopefully we will have another successful surgery story to add to our archives.
Title: Re: Penile Implant Surgery
Post by: fubar on August 28, 2010, 05:21:41 PM
Tim
hope all is good and you are healing nicely. Reading your story confused me.I'm not sure what three extensions are for.also he cracked the plaque that is more alarming. As from what I have read  when given a implant. The tunica is removed plaque would not be an issue as the surgeon  would simply pull off the tunica with the Peyronie's intact.meaning the plaque is basically attached to the tissue that makes you a man. Once that is removed no need for plaque.

It is no longer an issue because it has been removed. So cracking up plaque I do not understand with your surgery. That said I wish you the very best and many healthy erections.

Good luck keep us posted
Fubar
Title: Re: Penile Implant Surgery
Post by: LWillisjr on August 28, 2010, 07:42:31 PM
I'll add my .02 and hope the jackp weighs in here. For the implant surgery they DO NOT remove the tunica. They remove the corpora chambers which are inside the tunica, and the corpora chambers are replaced with inflatable "balloons".

I'm not sure how the plaque on the tunica would be "cracked", but I can understand either breaking up the plaque or making slight incisions across it to loosen it up so that the tunica can stretch back to its original size/shape.

Les
Title: Re: Penile Implant Surgery
Post by: Old Man on August 28, 2010, 08:06:42 PM
Les:

If I may add my 2 cents in here. The surgery does not remove the corpora chambers, only the erectile tissue contained within them. The tunica along with the septum that divides the corporal chambers is left intact and the surgeon simply strips out the spongy erectile tissue inside the chambers or tubes if you may call them that.

This why that any person considering implant surgery must be absolutely certain and convinced that implants are the "last resort". There are cases where implants must be done in the interest of correcting really bad Peyronies Disease symptoms and other urinary problems. A diabetic that has no means of achieving erections are good candidates of implant surgery.

I am sure that JackP can step in here and give us much more insight about this subject.

Old Man
Title: Re: Penile Implant Surgery
Post by: jackp on August 29, 2010, 09:16:01 PM
OK let me see if I can inform you as to what happens with an implant (IPP).

First off nothing is removed. The corpora's are simply dilated.

In Europe they do some things differently that here in the states. One thing it is only a over night stay, what they call 23 hour surgery.  Dr. Milam only leaves the penis one and a half squeezes on the pump inflated or 20-30% inflated. That is to help with soreness at activation in six weeks. It stays that way for the entire 6 weeks. A fully inflated penis will be painful after a few hours.

There will be some pain and soreness for several weeks, mostly soreness. The pump is another subject. It is hard to get used to, it took me 6 weeks before I could cross my legs. Waring a Jock Strap for a couple of weeks along with Jockey Pouch Briefs for the entire 6 weeks will help. Be sure to ware your penis up on your belly pointing to your navel. That will help keep it straight and reduce pain.

The 3 extension he is talking about are rear tip extenders. They come in 1/2 cm and 1 cm sizes. These are used to custom fit the cylinders to your corpora. They are at the base of your penis and are hard to find and/or feel, but they can be sore for several days.

What he mean by cracking the peyronies is during surgery the surgeon simply breaks up the plaque. This will let the penis become straight again. Again nothing is removed.

There is a myth that parts of the penis are removed for the IPP. That is completely false. The pump and/or reservoir are placed through your groin where your testicle descended at birth. The pump with the pubic approach or the reservoir with the scrotal approach.

With the AMS 700 LGX after activation he will regain 15 to 20% more length. The LGX is the only IPP that expands in length and girth, all others only expand in girth and will not restore lost penile length.

Hope this clears up the confusion.

Jackp
Title: Re: Penile Implant Surgery
Post by: Old Man on August 29, 2010, 10:55:15 PM
JackP:

Thanks a million for your explanation of what happens with implant surgery. For some reason, I was under the wrong impression or misinformed about the removal of the erectile tissue from the corporal chambers.

Might have been in the early days that this was the case and the procedure was updated. At any rate, your post cleared up that for me and I am sure others. Thanks again.

Old Man
Title: Re: Penile Implant Surgery
Post by: timk on August 30, 2010, 12:27:11 PM
There is a California doctor (by way of Arkansas, I think), Dr. Steve Wilson, who has been to Freiburg 3 or 4 times giving advice on how to do implants. I understand he is one of the leading implant doctors in the USA. Anyway, my doctor was following his advice. As far as I have been able to determine, Europeans have little experience with implants and are using methods developed in the USA. Dr. Wilson seems to have established a beachhead here in Germany; I've seen that he has also been advising other doctors here, as well.

Dr Leiber did indeed remove (at least some of) the spongy material in the penis; he said it was necessary to make room for the cylinders. (I signed a release form to allow him to do research with that which he took out.)

Wilson and Milam seem to have developed slightly different methods as far as inflation is concerned. I'll post again after the activation to let you know how that works out.

I agree wearing tight fitting briefs helps reduce the pain and discomfort. Being totally deflated, though, I can let it hang down more or less normally.

It's only been three weeks, but so far, so good.


Title: Re: Penile Implant Surgery
Post by: jackp on August 30, 2010, 01:35:38 PM
timik

Glad to hear you are progressing well.

Dr. Wilson is from Little Rock AR. I considered him but at the time he was not using the LGX so I opted to go to Vanderbilt and use Dr. Milam.

More and more doctors are coming to the realization that the LGX will help men regain lost size due to peyronies, prostate cancer and other penile problems.

The sample that was taken was probally part of the spongy material in your corpora and in no way removed any part of the corpora or other penile tissue.

Dr. Milam has a special surgical instrument to dialate the corpora. He instructs his students on it's use and always cautions against puncturing the urethra.

Good Luck and enjoy your new toy.

Jackp
Title: Re: Penile Implant Surgery
Post by: Jeffrey on August 31, 2010, 05:35:40 AM
I wish I had found this site sooner.  After enduring verapamil injections (I passed out the first time) and plaque removal/skin graft surgery, I opted for an implant

My first implant was in 05', I got the Titan.  It was presented to me as a decision between length or girth.  When I had a blow-out last year I tried to switch makes.  Because the Mentor had a warranty, they replaced it with the same.  I did get an upgrade to the one touch release valve.

Even with same brand, it has taken time for my wife and I to get use to the new tool.  Actually, she has about given up on it.  My erection is perpendicular to my body.  When I enter her it pushes straight down and has no flexibility.  Because the glans are not engorged (and naturally small) the tips of the implant has no padding.  It is like having sex with chopsticks. 

My urologist says it is where it should be, her gynecologist says she is anatomically correct.  Is there hope?

Jeffrey
48 in Tulsa 
Title: Re: Penile Implant Surgery
Post by: jackp on August 31, 2010, 10:14:15 AM
Jeffery


See the PM I just sent you.

As for the glans try 5mg of daily Cialis. Some guys this helps and some it does not. You can get a coupon for a free months supply at www.cialis.com or from your urologist. Worth a try.

Now there does not have to be a decision between length and girth. The AMS 700 LGX expands in both and is the only implant that does.

Hope this helps. There are also some other suggestions I can give you that are a little personal.

Jackp

Note: As with any prescription medication you need a prescription from your doctor for the free Cialis.

Title: Re: Penile Implant Surgery
Post by: voulezvous on August 31, 2010, 04:34:06 PM
I'm not going to contradict anything that JackP has written about the implant procedure & how it is done. As he has said, different doctors have different methods of dealing with the corpora. I also have had the implanting of a LGX last August (almost exactly a year ago) & am delighted with the outcome. In my case, my urologist also "cracked" the plaque causing my Peyronies Disease. The thing I wanted to emphasize, however, is that anyone considering the surgery should be aware that, regardless of the type of implant or even the method used to remove or adapt the spongy material in the corpora, it is unlikely that you will be "what you were" in terms of length & girth. One of the most pleasant surprises that I found after my 1st 6 months of recovery, however, is that I can actually become semi-rigid without activating the pump. All I need is the same ingredient that I did before my Peyronies Disease ; good old-fashioned arousal. In other words, my surgeon left me with the ability to obtain natural erection transition. Thank God. The pump gives me the rigidity necessary for penetration as well as some additional expansion of the tissue. It is still a mystery to me but I am very pleased. I think, if anything made the difference it was the selection of a surgeon/urologist who has vast experience with implant surgery as well as sexual disorders.
Title: Re: Penile Implant Surgery
Post by: jackp on August 31, 2010, 09:15:44 PM
voulezvous

Your size after surgery depends upon several factors. Some of these factors are the skill of the doctor, how long you have waited and if you have lost penile length.

My research indicates the sooner you have a implant after all else fails the better your outcome. Several men I chat with that have a implant 6 months after peyronies starts and have severe ED have a better outcome.

In my case I contribute my good outcome to the daily VED exercise for the years I had to wait on my implant.

There are 3 corpus chambers in the penis. Two Corpus Cavernosum (CC) and the Corpus Spongiosum (CS).

The two cylinders of the implant are placed in the CC. The CS contains the urethra and is part of the glans. It is not involved in the implant. For a good graphic go to the Resource Library on this forum, it is at the bottom of the thread.

The reason several of us have a partial erection with the implant is the CS is stimulated. That stimulation comes back after surgery faster from some than others. I know a young man that has glans erections before the 6 week waiting period for sex. Myself it took several months.

If your glans became erect before an implant it should afterward, but it could take a little time. A couple of things could help. If you are on blood thinner for your heart that helps the most. Others try a daily dose of V, C or L and that works for them.

If you have lost the ability for the glans to become erect before an implant you want the AMS 700 LGX. It will expand into the glans and hold it for penetration. The LGX is the only implant that expands in length as well as girth. A good graphic is at www.amslgx.com.

Hope this helps clear up some of the thoughts on an implant.

Jackp

Note: As with any prescription medication you need a prescription from your doctor for the free Cialis.

Title: Re: Penile Implant Surgery
Post by: peyroninsidepglans on September 01, 2010, 12:35:00 AM
I was wondering can the squeeze button be seen? have you been with a girl using this implant without her noticing that you have an implant, as I'm only 31 and still out partying out with mates, can the pump be seen on the scrotum by the female?
Title: Re: Penile Implant Surgery
Post by: voulezvous on September 01, 2010, 08:29:10 PM
Petroninsideglans,

Well, unless a woman has never felt a testicle before, she will know that "something" is different. The button used to deflate is located in a small rectangular box (about the size of a lego toy) and below that is the bulb used to activate or inflate the prosthesis. I have never heard of a man with rectangular testicles (moreso only one) so that's a dead giveaway. There is also tubing that can be felt.
In my case my current partner was frankly quite fascinated with the hardware & has even learned how to inflate & deflate. However, if a woman is not into touching your scrotum there is no way that she will tell by appearance. Believe it or not, there is room in there for the pump mechanism as well as your 2 testicles.
If I were you I would be sure to tell a sex partner before intercourse about your implant. It is a lot more honest & you'll avoid having to explain why you are squeezing your own ballsack in order to become erect. That would really freak someone out! I am older than you but also single. Both partners I have had since my surgery were mature women & were probably more curious than turned off.
Hope this explanation helps.
Title: Re: Penile Implant Surgery
Post by: Brightdog on September 27, 2010, 12:51:39 PM
Has anyone in here had experience with Paul Perito`s minimally invasive implant surgery at Coral Gables in Miami? It looks like he uses equipment that doesn't have the edges. He has a website - Peritourology.com.
Title: Re: Penile Implant Surgery
Post by: jackp on September 27, 2010, 01:59:45 PM
I suggest you go to Bob Bacons Blog www.penileimplant.blogspot.com and read Court's story. It may be in the archive.

Also google him and read about the gentleman from Miami that lost most of his penis because of improper treatment for an infection.

Jackp
Title: Re: Penile Implant Surgery
Post by: jackp on October 23, 2010, 09:05:26 PM
Today the wife and I celebrate the two year mark of my penile implant surgery at Vanderbilt.

It has been an amazing adventure. The pain and discomfort of surgery are a distant memory. The joy of having a normal sexual relationship with my lovely wife of 42 years is best described as spiritual.

Our advice to anyone thinking about an implant, find a great doctor like Dr. Douglas Milam at Vanderbilt. The results for us is I have gained back over 90% of my penile length lost to peyronies, ED, venous leakage and corporal fibrosis. The bonus was the gain in girth. I am back to my youthful girth of 6.28".

If you read my story it was a long and difficult one. If I had it to go through again I would for the same results.

To Dr. Douglas Milam, Todd Doran MS PA-C and the staff at Vanderbilt Thank You seems so inadequate. You are amazing people doing amazing work. God Bless You.

JackP
Title: Re: Penile Implant Surgery
Post by: timk on October 27, 2010, 03:18:15 PM
Well, it's been activated and in use. My partner, who complained about the bend before, was happy with the straightness (if that's a word).

I'm experiencing no problems, no pain in daily life anymore.

But I was (am) shocked by the loss of size. It's about 1 1/2 inches shorter and thiner, too - although I used a VED regularly for about 6 months before the operation.

I now pump it up once or twice a day for 10 minutes or so in the hopes it'll grow over time.

It also seems that I have lost sensitivity - of course where the scar is - but also in general. A somewhat worrying development.

More later.
Title: Re: Penile Implant Surgery
Post by: jackp on October 27, 2010, 08:38:39 PM
timk

For best results in expanding the implant inflate it at lease twice a day. Once  you have it inflated after 3 or 4 minutes try squeezing the pump a couple more times, you may get a little extra length and firmness that way.

The sensitivity should return in several weeks. Younger men seem to recover faster.

Keep up posted on your progress.

Jackp
Title: Re: Penile Implant Surgery
Post by: jackp on November 03, 2010, 07:04:07 PM
grayling

Seems like you did not do any basic research before your implant surgery or check out the doctor. The implant manufactures web sites are clear that the implant has a antbiotic coating. No good doctor would even attempt to do surgery on you if you did not have antibiotics during and after the surgery.

Yes with the wrong doctor and the wrong implant you will loose penile size. With the right doctor and right implant you will gain back very close to your natural length and girth within 18 months.

You did not use all the options before you had an implant. NO ONE should have an implant unless that is the only option left. The person you should be the most upset with is yourself. There is "tons" of information on this forum and others. If you had bothered to read My History and ask me or others that have been down the road to an implant questions before jumping head first you would have been better informed.

My 2 cents.

JackP
Penile Implant 10/08
Dr. Douglas Milam @ Vanderbilt

Better than normal just like a 20 year old again.
Title: Re: Penile Implant Surgery
Post by: not9inches on November 17, 2010, 06:33:21 PM
I have a quick question for anyone with an implant. Does your insurance cover the implant and surgery or not? If yours did...who was your provider? 
Title: Re: Penile Implant Surgery
Post by: jackp on November 17, 2010, 10:08:06 PM
It is covered by insurance unless specifically excluded. It is covered like the loss of a limb, eye, etc. Make sure the doctor uses the proper codes. Some insurance will not pay if it is just for ED.

I have Medicare and Part B along with my supplement paid all but $8.34. I also had to pay for the travel to Vanderbilt but that was only 220 miles one way for me.

Jackp
Title: Re: Penile Implant Surgery
Post by: jackp on November 22, 2010, 04:09:15 PM
grayling

With a man that has had the AMS 700 MS LGX for over 25 months my only thought is:

AMEN

My next thought is for the best outcome use the best possible doctor. I found my doctor at Vanderbilt after going through several local urologist and a failed local implant attempt.

Research not only the product but the doctor. There are many General Practice Urologist but very few Male Sexual Function Specialist.

Jackp
Title: Re: Penile Implant Surgery
Post by: voulezvous on November 23, 2010, 07:13:10 PM
grayling,

I must jump in here & second everything that Jackp has said. I also had the LGX implant about 2 years ago & could not be more pleased. I will certainly not deny that it is a painful & lengthy recovery but, in the final analysis, I believe that I made the right decision. No amount of Viagra or cialis was going to give the ability to perform as well as my implant has. There has been very little loss of length - in fact I gained back about an inch that was lost to the Peyronies.
Absolutely - make surgery decisions after very careful deliberation & be responsible to check on 2nd or third opinions but to assume that all results will be as disappointing as yours is a mistake. As Jackp says, seek & utilize a male sexual health specialist as a urologist even if it requires travel. I am sorry that you are unhappy with your result.
Title: Re: Penile Implant Surgery
Post by: timk on November 27, 2010, 03:26:09 AM
Has anybody with an implant gone through airport security recently?

What happened?
Title: Re: Penile Implant Surgery
Post by: jackp on November 27, 2010, 08:44:15 AM
A gentleman on another forum went through air port security this week just after his implant. No Problems with the scanners.

Jackp
Title: Re: Penile Implant Surgery
Post by: jackp on November 30, 2010, 08:33:27 PM
Nick

The pain is not that bad. I have had lots worse done to me. I only took one pain pill after I went home.

I am sending you a PM with me cell phone number. Lets chat a few minutes.

Jackp
Title: Re: Penile Implant Surgery
Post by: tmwstw on December 04, 2010, 01:04:01 PM
Hi all,
I've been reading up on penile implant. On the bright side, we can expect a anytime, anywhere erection and firmness of the shaft. However i did read some negative side effect of the implant. I wonder if this is true and how does it affect you. Please inform me on this procedure.
1. Is it true that the glan will be softer and smaller? since the implant doesn't expand into the glan? I saw alot of after photos and the glan looks normal when erect, but i dont know how firm it feels?
2. Immidiately post op, there will be a significant loss of lenghth (up to 1 inch) and you may gain back some lenght later, but it will not be the same lenght you had before the implant - Is this true and to be expected?
Title: Re: Penile Implant Surgery
Post by: jackp on December 04, 2010, 09:22:16 PM
1. It will take the LGX a few weeks to expand into the glans. Mine now gots almost 1/2" intomy glans.  The glans will appear softer at first because the shaft will be harder than ever. If you have venous leakage over several weeks the blood will redirect itself from the CC to the CS and the glans. Now my glans become normally hard when sexually excited. In younger men this happens sooner than for us older gentlemen. The glans will look and feel normal.

2. Depending on the skill of the doctor and the implant used at activation you may be somewhat smaller than you expected. I was 1/4 inch longer at activation than I was before the implant.  With the LGX I gained back over 90% of my lost length. The most was in the first 3 months and the rest over 18 months. I am now about 1cm shorter then my pre peyronies size. I can not gain that back because of the peyronies scar on top of my penis.

With the wrong implant and a unskilled doctor you could very well loose 1". It all depends on the skill of the doctor, the implant and the condition of your penis. Choose your doctor wisely.

Jackp
Title: Re: Penile Implant Surgery
Post by: BrooksBro on March 11, 2011, 07:46:48 AM
For the first time in the 2+ years I have been coping with this condition, I am thinking that I may eventually need an implant.  My urologist (Dr. Larry Lipshultz) brought this up last week when I asked about excision and grafting.  Yes, he does excision and grafting, but the long term patient satisfaction for this procedure is low.  His experience is backed up in medical reports I have read.

With both Peyronies and ED, he suggested my best option may be an implant.  Because of the size of my plaque, he said during the implant procedure, he will simply cut it so that it is not limiting expansion on the upper side.  That sort of begs the question, if it is so simple to do and effective, then why not do it now?

Back on subject, in watching some youtube videos, it appears to me that the LGX may well be the best device currently available.

Perhaps the most important thing I learned in reading about implants is that long term (12+ months), pre-surgery, traction can allow a longer implant to be placed (12 cm versus 9 cm in one case).  After months of not doing traction, this was sufficient motivation for me to resume traction therapy.
Title: Re: Penile Implant Surgery
Post by: jackp on March 12, 2011, 07:31:24 AM
For men that have peyronies with ED the "gold standard" is a penile implant with modeling. As I understand it modeling is a simple procedure that does not require and incision.

One of the side effects of peyronies is penile shortening. The LGX can expand up to 20% in length and is the only implant that is length expanding.

I know little about Dr. Lipsultz the only contact I have that went to him for an implant has never responded to let us know how he came out (not uncommon). I do have a contact in Houston that may know him. I will see and send you let you know.

As always a second opinion is in order, either Dr. Henry in Shreveport or Dr. Milam at Vanderbilt.

I did not use traction for my peyronies. I did use a VED for a couple of years before my implant (was the only option I had). As with both traction and the VED use caution not to hurt yourself. IMHO I would not delay the implant just to use the VED or traction.

Send me an email to jwp104@att.net I have some information that I can foreward to you that I can not here.

Good Luck and keep in touch.

Jackp
http://jackp-penileimplant.blogspot.com/

Title: Re: Penile Implant Surgery
Post by: voulezvous on March 12, 2011, 11:07:22 AM
As a fellow "implanter", allow me to add a little to Jack's comments.
When the dr. models the penis during the implant procedure, he or she uses the cylinders of the LGX to actually crack the plaque from the inside of the corpus. Its not something that is done from the outside. In other words, your question about why a dr. can't do it as a simple operation apart from an implant is understandable but the difference between the excision/grafting and implant is that the former is based on saving the corpus (but avoiding nerve damage) and the latter is based on removing the corpus completely and replacing it with 2 cylinders that expand (ie: the LGX).
I would be very careful about using a traction device. You may do more damage than good. As Jack suggests, use the VED until you are ready for surgery. If you decide to never have the implant, it won't do any harm if you do it right.
I've had my LGX now for about 1 1/2 years and am very pleased with the results. I pretty much had the same results as Jack in restoring some (but not all) of my lost length. Be v-e-r-y careful, however, about choosing a urologist who has had a lot of experience with Peyronies Disease and implants. If you have to travel, by all means, do it!
Title: Re: Penile Implant Surgery
Post by: jackp on March 12, 2011, 11:52:25 AM
I just received a message from my contact in Houston. He only knows of one person that had a implant by Dr. Lipshultz and he used the AMS CX not the length expanding LGX.

Like Voulezvous said be very careful if the doctor wants to do an incision for the pryronies in the shaft during implant surgery. Dr. Milam has a procedure where he does "modeling" during the implant surgery.

Like Todd Doran MS PA-C told me and an intern at my one year check up. Our peyronies patients turn out like Jack. "An erection that sticks straight out, looks and feels normal."

The ongoing research into length expanding implants, by many doctors, has proven that it will help those of us with peyronies gain back some of the lost length. Most are within 1cm+- of there pre peyronies length, with there normal girth after 18 months.

I would suggest you talk to Dr. Lipshultz about his skills with the AMS 700 LGX. If he trys to switch you to the CX he is not doing you any favor. A lot of major implant centers have already switched to the LGX for pryronies, Vanderbilt, The Mayo Clinic, and Kaiser are some.

A good graphic of the LGX is at www.amslgx.com it show how the LGX works when compared to the CX.

I have some additional information I can email to you if you like. Send me an email to jwp104@att.net/

Good Luck and keep us posted.

Jack


I thought I would share the emails between Todd Doran and myself. Private information has been deleted.

--------------------------------------------------------------------------------
On Nov 9, 2010 8:04 PM, Jack P***** <jwp104@att.net> wrote:

Todd

I am working with **** in **. He is to have his LGX at Mayo Clinic the end of this month. He asked me about modeling and how it was done. I honestly told him I don't have a clue but have seen pictures of the great job Dr. Milam did for ***** in **.

It it is not too much trouble would you give us a description of modeling and how it is done, In lay terms of course.

Thanks

Jack P*****

--------------------------------------------------------------------------------

Pump device fully and bend penis in opposite direction and hold for 30-90 sec and repeat a few times. Done commonly. I will sometimes do it to a lesser degree in clinic early on post-op when needed.


Todd



-- Sent from my Palm Pre
Title: Re: Penile Implant Surgery
Post by: Worried Guy on March 27, 2011, 06:18:11 PM
Jack, implant surgery damages the tissue of the penis when placing the implant inside right?  The tissue is not removed so what stops the whole of the penis turning to scar tissue and becoming hard and full pieces of bone?
Title: Re: Penile Implant Surgery
Post by: jackp on March 27, 2011, 09:34:38 PM
I will try to answere as best I can.

The implant only goes into the CC. No tissue is removed. The blood supply to the CC is still intact. When flaccid you have blood flow to the CC. The CS, glans and urethra are not involved in the implant. Blood flow in the penis is not disrupted.

My penis feels warm, looks and feels normal erect of flaccid.

Jackp
http://jackp-penileimplant.blogspot.com/
Title: Re: Penile Implant Surgery
Post by: Scuba on May 20, 2011, 11:46:21 PM
Jackp,
I had my prostate removed three years ago due to cancer. This has left me with ED. I seem to be in the same situation that you were in. If I take the blue pills I get the headaches, backaches vision turns blue and have very little if any affect on attaining an erection. I have been using my VED every other day for the past three years. I talked to my urologist at my last checkup about an implant. He suggested that we start the insurance application process to see it they will approve the procedure. I have no idea which type of implant that he will suggest. My question is this, how do I find the best doctor to do this procedure? I have tried google searches with no luck. I live about 30 miles north of Cincinnati, Ohio. I live in a small town called Middletown, Ohio. My urologist belongs to one of the largest groups in the city called the urology center of cincinnati. I want to make sure and find a surgeon who is the best. Any help would be greatly appreciated.
I also want to thank you for taking the time to help those like me on this site.
Title: Re: Penile Implant Surgery
Post by: jackp on May 21, 2011, 07:19:48 AM
scuba

I sent you and email with several attachments. It should answer a lot of your questions and probably raise several others. Don't hesitate to ask questions.

You want a Male Sexual Function Specialist not a general practice urologist or oncologist. The closest to you would be at Vanderbilt in Nashville TN. Read my story I call "One Mans Journey" posted here and on my blog.

Those of us that have an implant will tell you that, I wish I had it years ago. The return to a normal sex life is almost spiritual.

Jackp
http://jackp-penileimplant.blogspot.com/

Title: Re: Penile Implant Surgery
Post by: whizzer on June 07, 2011, 03:46:12 AM
Who do I see in Houston for an implant? I have moderate-bad Peyronie's, and my penis was above average in length and very above average in girth. I'd like to get that back obviously.
Title: Re: Penile Implant Surgery
Post by: jackp on June 07, 2011, 07:39:42 AM
Whizzer

For men with a penis over 7" in length, which very few of us are, the implant of choice is the Coloplast Titan. For those of us 7" or less the implant of choice is the AMS 700 LGX.

The closest good doctor for implants is Dr. Henry in Shreveport LA. Several men from the Houston area have been to Dr. Milam at Vanderbilt in Nashville TN. I am told Dr. Henry is good but Dr. Milam is best especially if you have problems other than ED.

Any way I can help, let me know. Personal questions send me a email to jwp104@att.net or a PM on this forum. I also have information on my blog http://jackp-penileimplant.blogspot.com/

Good Luck

Jackp
Title: Re: Penile Implant Surgery
Post by: whizzer on June 08, 2011, 11:36:58 PM
What about Dr. Goldfarb in Houston? He is board certified, but I cannot get info about the number of surgeries he has done, etc. Last year he suggested it be done, but at that time I was not ready. He also said that since my erections were not very firm beyond the point of the plaque that just excision was not going to provide satisfactory results, and he REFUSED to do it.

On size, girth approx. 6.5 at the base even now, and I would like to keep that if possible. How do I ensure I get fitted correctly?
Title: Re: Penile Implant Surgery
Post by: jackp on June 09, 2011, 08:14:19 AM
whizzer

In the last 4+ years that I have been on this and other forums I have never heard anyone talk about Dr. Goldfab. Sounds like he is a general practice urologist and not a Male Sexual Function Specialist.

My story I call "One Mans Journey" is on my blog that tells of my experience with the best known local urologist that punctured my urethra when he tried to do an implant for me. That story is on this forum and in my blog http://jackp-penileimlant.blogspot.com/ You do have to scroll down to find it.

There are only about 3 or 4 great implant doctors. You will have to travel to see one of them. IMHO you do not want a general practice urologist to do an implant if you have peyronies or other penile problems.

"Board Certified" only tells you he is a general practice urologist. Please be very careful of who you let do this. Dr. Milam at Vanderbilt does a "ton" of revisions because some local doctor messed up.

My 2 cents.

Jackp
Title: Re: Penile Implant Surgery
Post by: Scuba on July 27, 2011, 04:11:33 PM
Jack,
  Plans are in the works. I have a consultation with Dr. Milam on Aug.26th with surgery scheduled for Sept.7. They said that there should be no problems with my insurance. After the consultation Dr. Milam will decide which device is best for me, then they  submit the paperwork to the insurance for a pre certification approval. The nurse said there should be enough time after the consulataion visit to get the approval. I told them I was comming down from Cincinnati. After the consultation visit I go immediatly in for the pre op paper work and to get all the medical info that they need. They gave me a list of local motels that give medical rates. I am going to drive down and back home right after the consultation visit. Then I will drive down the night before my surgery and I think I will stay at the Hampton Inn nearby. I will keep you updated. Just FYI I am 57 and have had ED since I had my prostate removed (due to cancer) 3 1/2 years ago. I had the  da vinci nerve sparring procedure done but still ended up with ED.
I have a question regarding recovery after the surgery. When I had a vasectomy done 28 years ago I found out that a normal jock strap did not do very well to support and hold me still. My father in law had an old type supporter that only held the scrotum and this helped a lot better because the scrotum was never disturbed when going to the bathroom. I think I read on Dr. Milam's website that the penis needs to be held up against the abdomen for a period of time during recovery. Is there any type of supporter that you can recommend to help with the discomfort. When I had the vasectomy I really swelled up then so my thinking is that I probably will have a lot of swelling after this procedure. Any help would be greatly appreciated.
Title: Re: Penile Implant Surgery
Post by: jackp on July 27, 2011, 10:24:19 PM
I may see you about that time I have to schedule an appoint for a consultation with my prostate (BPH). 

One good thing the hotels do offer special rates for patients and a shuttle service also.

Post op you most likely come out of surgery with a jock strap for support, I had extra padding to help hold my testicles still. You may want to get an extra that you like. For continued support and to help hold your penis up for about 6 weeks I recommend the Jockey Pouch Briefs. The "H" cut will help hold you up. I got mine at Macy's and Kohl's, they have the normal rise style. I like the support so well that I still ware them today but I like the low rise style that I have only found at www.jockey.com/ Side Note: One morning I put on a regular pair of Jockeys. My wife looked at me and said "Jack you look much better in the others." Women. One thing they do enhance the look of your "package".

Dr. Milam uses the pubic approach but still has to put the pump in your scrotum through the canal where your testicles dropped at birth. You will still be swollen but not as bad as the scrotal approach.

Keep in touch.

Jackp
http://jackp-penileimplant.blogspot.com/
Title: Re: Penile Implant Surgery
Post by: BrooksBro on August 09, 2011, 05:47:53 AM
As the overall health of my penis has been restored, meaning frequent and strong spontaneous and stimulated erections, I find the angulation is making penetration more difficult.  The stronger my erection is, the greater the angulation, and the more difficult is penetration.  My wife has not commented about it being uncomfortable for her. 

I have effectively abandoned hope that traction and VED will ever resolve my curve.

I am going to ask my physician - Dr. Larry Lipshultz in Houston - to proceed with insurance pre-approval for implant surgery.  If insurance does not approve (my employer has some exclusions) I may borrow from what is now left of my 401(k).
Title: Re: Penile Implant Surgery
Post by: jackp on August 09, 2011, 06:45:04 AM
Quote from: BrooksBro on August 09, 2011, 05:47:53 AM
As the overall health of my penis has been restored, meaning frequent and strong spontaneous and stimulated erections, I find the angulation is making penetration more difficult.  The stronger my erection is, the greater the angulation, and the more difficult is penetration.  My wife has not commented about it being uncomfortable for her. 

If you are having these kind of erections and the wife has not commented, can I ask a question, Why an implant?

The normal protocol for an implant is you are unable to keep an erection long enough to complete intercourse. First trying all the other ED protocol first.

My 2 cents.

Jackp
http://jackp-penileimplant.blogspot.com/
Title: Re: Penile Implant Surgery
Post by: Worried Guy on August 09, 2011, 08:44:46 AM
You would do better to have a nesbit procedure rather than an implant if you can still maintain an erection! I can't see a doctor giving you one! 
Title: Re: Penile Implant Surgery
Post by: fubar on August 09, 2011, 01:11:50 PM
Brooks

I agree I would much rather have an implant than the nesbit procedure or any of the three surgerys.It is true that they will not do the implant if you can maintain an erection though.If you have ed you may still qualify.I do not think having to use cialis would disqualify.

Not sure I would look into it if I were you.I personally have made that decision my self. I most definately would have the implant surgery before Any grafting or plication surgery.

I  never hear anyone overjoyed about a nesbit procedure.You never know how much you are going to lose or if it will work.Not to mention you may lose everything or have to have more surgery.

Regardless of what you decide remember the change is forever and depending on your age you will have to have another implant surgery in the future because implants only work for so long 15 to 20 years.Everyone that recieves one seems very happy.But like all things some are not satisfied.


Fubar
Title: Re: Penile Implant Surgery
Post by: Worried Guy on August 09, 2011, 06:18:09 PM
The nesbit is a pretty simple operation.  You may loose a few centermetres but will still be able to get a spontaneous erection.   The implant is the last option and should not be seen as away of straightening the penis.  That is a bonus. Anyone considering surgery should try and hold out for Xiaflex.  It sounds like you can still have sex at the moment!?
Title: Re: Penile Implant Surgery
Post by: fubar on August 09, 2011, 11:01:10 PM
Worriedguy

You are excluding alot of variables of the disease.There are many factors that make up ones decision I'm what survey they decide on.I for one will not consider nesbit because of my age and other factors.Brooks has been here for atleast three years and I am sure has much knowledge of this disease.

Implants have a better chance saving your size and making your penis straight.I do not believe xiaflex is a miracle drug or you would here men raving about it.

Brooks is almost sixty and I am sure he has experience some type of ed I do not know for sure.I can not remember your age but I believe it to be between 27 and 30.This definately makes you a candidate for nesbit.If you are still functioning and have a bend I would not recommend this for you.And you are correct that this should be the last choice for you.Any surgery should be your last choice 69% post operation of Any of the plicatiom, grafting, nesbit men are dissatisfied.Most that I have read about implants the guys are tickled to death.They are straight,  erection om demand ams cqm go on all night long. Just imagine having a bionic penis!
I do think some young guys would not know how to handle somthimg like this.I spoke to jackp on one occasion and a Guy he was helping just had am implant surgery at 26.

So even young guys have to make this decision. Surgery yes should be a last resort,  implants no.Just ask the ladies that have to have perfect breast big round and hard like basketball's.I would think they would have considered that surgery as a last resort.But oh well to each their own.I like the natural ones.

So I agree surgery to be last resort but I think everyone has the right to decide what procedure is good for them.

Fubar

.
Title: Re: Penile Implant Surgery
Post by: Worried Guy on August 10, 2011, 05:07:35 AM
Most guys lose some length with an implant. In the uk they implant the Titan model which is supposed to be the strongest but does not grow. From what Ive read the implant guys seem to lose length but gain girth. If the guy needs drugs for ED and is likely to need an implant soon anyway then he should have it. I'm not in that situation yet so I'm not sure what I would do.
Title: Re: Penile Implant Surgery
Post by: BrooksBro on August 10, 2011, 06:14:27 AM
Thanks for everyone's comments.

Achieving and maintaining an adequate erection are different things.  I can only maintain an adequate erection long enough for satisfactory sex by using a constricting band, applied with a VED.  This is because the inelastic nature of the plaque prevents compression of the veins sufficient to retain enough blood for a solid erection.  This is sometimes called venous leakage.

With a near 90 degree bend mid-shaft, plication would result in shortening of at least 25%, and my urologist does not recommend it for me.

When I asked about excision and grafting, he said there is more than 60% patient dissatisfaction with the results.  On the other hand, there is more than 90% satisfaction with all types of inflatable  implants; that satisfaction includes both men and their partners.  The AMX 700 LGX (length & girth expanding) is the one of choice.

This is sort of like 5 frogs sitting on a log; 3 decide to jump off; how many are left?  The right answer is 5.  There is a difference between deciding to do something and actually doing it.  Mentally, I am at the point where implant surgery appears to be the best choice among several not-so-good choices.  Going through with it has yet to happen.
Title: Re: Penile Implant Surgery
Post by: jackp on August 10, 2011, 10:02:10 PM
BrooksBro

With the additional information you have posted then I agree you are a prime candidate for an implant.

There is still some resistance from the "old school" doctors about a length expanding implant for men with peyronies. Thanks to the work of Dr. Douglas Milam, and others, reasonable doctors have made the switch. The switch was also helped by public opinion of men learning about the LGX and insisting on it.

You will be the first I have chatted with that had an implant by Dr. Lipshultz. Please keep us informed of your progress. Any questions I can answer let me know, either on the forum, PM or email.

Good Luck and keep us informed.

Jackp
http://jackp-penileimplant.blogspot.com/   
Title: Re: Penile Implant Surgery
Post by: LWillisjr on August 10, 2011, 10:05:35 PM
Quoteauthor=fubar link=topic=884.msg32618#msg32618 date=1312945270]
1. Implants have a better chance saving your size and making your penis straight.

2. I can not remember your age but I believe it to be between 27 and 30.This definitely makes you a candidate for nesbit.

3. So even young guys have to make this decision. Surgery yes should be a last resort,  implants no.

4. So I agree surgery to be last resort but I think everyone has the right to decide what procedure is good for them.

Fubar

Fubar,
I have to interject here. I appreciate your input but you have your facts slightly mixed.

1. There is nothing that supports implants conserving size. There is a risk of some loss of length with any surgery. I have spoken to men who have had various types of surgeries (plication, grafting, and implants). Some lost length and some did not. I always point out there is a risk of loss of length with ANY surgery.

2. Age does not make one a better or worse candidate for a particular type of surgery. There are other factors that must be considered. If one is able to achieve and maintain a satisfactory erection, then an implant is not necessary. Then you have to consider the angle of curvature. I do not recommend plication for anyone who has a greater the 45 degree curve. This increases the chance of loss of length, and the risk is that you won't be totally straight afterwards. Excision and grafting is the recommended surgery for extreme curves greater then 45-50 degrees.

3. Surgery is a last resort.  If one is not able to achieve an erection regardless of age, then an implant is the way to go.

4. We are in total agreement that surgery is a last resort, and the type of surgery is a personal decision based on a consultation with a respected and qualified Peyronies specialist.

Les
Title: Re: Penile Implant Surgery
Post by: fubar on August 11, 2011, 12:32:24 AM
Totally agree with all that maybe I chose words badly as I was agreeing with brooks and what point I was try to get across to worried Guy thought I covered that stuff.Oh well geuss everyone will have an opinion does not mean mine or your is wrong of course anything goes with surgery.But I do not consider an lgx a last resort.

Worried Guy does and told brooks not to get one. I simply stated their are variables or factors In ones choices and and hehas  problems maintaining erections men are 90%satisfied with implants and the other. Surgerys 60 % dissatisfied with grate ams the like. We are getting our information from the same places or  close In accuracy.

Yes age does not determine what procedure one should consider but what's best for them that is what I was trying to get across. In fact if you have read the thread I have said that men at 26 have decided to get implants.

And yes you do have a better chance in restoring your side with am implant that extents ams expands. I do notbget your argument oh well.

Sorry if I made a mistake but I still support Brooks decision!
Title: Re: Penile Implant Surgery
Post by: fubar on August 11, 2011, 12:52:52 AM
Yes I stand behind my post it has my mark on it makes perfect sense to me the information is good. Spelling is bad but I'm working off a little. Broken phone keyboard. I often have to go back and fix things as I was confusing you for Brooks at first.Look I was speaking to two different mind's and not the masses so not everthing I want to say is there. The information is good , spelling bad.I have exchanged pm's with worriedguy andknow him also not so much Brooks.So what is important to me is that worriedguy does not think implants are the end of the world.I know Brooks has his information and knowlendge.Just read the post under this thread
No disrespect to you I know you have been here for more than a minute.I am not the expert here but I am no dummy.I'm going to get a new phone today to much work typing with cracked glass keyboard.

Fubar.  
Title: Re: Penile Implant Surgery
Post by: NoworNever on August 11, 2011, 10:16:29 AM
Hi guys, this is my FIRST post...so please take it easy on me. I'm 35 and I recently had the AMX 700 LGX implanted in July 25th by Dr. Larry Lipshultz here in Houston. (He's head of Urology at Baylor and supposedly one of the best.) So far I'm healing up nicely, although still in a lot of pain. Because of a concern Dr. Lipshultz's PA had, he inflated everything yesterday...and I when I saw the length AND girth I had lost I almost went through the roof!!! Unlike some of you, I have TONS of pictures of my penis pre-surgery and was still able to get hard...I just couldn't maintain it. We'll see what happens in a few weeks when this thing is fully healed, but after 3 weeks of healing I am NOT impressed!!!!!!!! I want my old dick back!
Title: Re: Penile Implant Surgery
Post by: voulezvous on August 11, 2011, 12:38:06 PM
You are still only a month past surgery so DO NOT despair! I can tell you from my own personal experience (AMS LGX) that it took well over a year for the size to return. Healing from the trauma of the procedure is different from the time it takes for size to recover. I too was also disappointed at first but you will improve over time if you follow the instructions of activating your device at least once a day. Overall, I lost about a 1/2 inch & that ain't bad considering how much I had lost from the Peyronies Disease. Initially, I had lost about 1 1/2 inches. Remember, be grateful for what modern day improvements have been made & how you felt about your sexuality before you had the surgery.
Title: Re: Penile Implant Surgery
Post by: jackp on August 12, 2011, 09:55:45 PM
nowornever

I just sent you a PM with some tips. Recovery and regaining size takes some time and effort on your part. Remember the LGX will expand up to 20% but takes up to 2 years.

Let me know if I can be of help.

Jackp
http://jackp-penileimplant.blogspot.com/
Title: Re: Penile Implant Surgery
Post by: timk on August 13, 2011, 10:08:20 AM
I agree with Voulezvous. I was just as shocked as you when I first inflated it. It took about 6 months to get to about 16-17cm. I was 18cm before.

Be patient. And learn to inflate it properly; I had trouble with that in the beginning.
Title: Re: Penile Implant Surgery
Post by: jackp on August 13, 2011, 10:54:50 PM
As all of us that have an implant know when you first start to use the pump it is very stiff. The double handed mothod of inflation is a lot easier to start with. Any one getting an implant that would like a copy just send me an email and I will be glad to forward it to you.

Jackp
http://jackp-penileimplant.blogspot.com/
Title: Re: Penile Implant Surgery
Post by: fubar on August 14, 2011, 01:34:49 PM
Vouslezvous

Amen to your post.Others considering implant surgery check out jackp's blog and post.Great Guy and has alot.of information.

Fubar
Title: Re: Penile Implant Surgery
Post by: NoworNever on August 15, 2011, 09:24:33 PM
Thanks for the advice/support/emails guys...I was actually starting to feel better but then I went to visit Dr.Lipshultz today because I still have A LOT of pain and an odd "bulge" where the shaft of my penis meets my body. After 5 1/2 hours of being poked/prodded/and finally MRI'ed, Dr. Lipshultz says one of my rear-extenders on the implant has buckled and will need to be surgically replaced. I STILL HAVEN'T HEALED FROM THE DAMNED IMPLANT SURGERY!!!!!!!!!!! (I just had it put in on July 25th!) I can't bring myself to go under the knife again so soon...and I'm scheduled leave for Gallaudet University on Thursday to start my semester. (I'm working on another Masters Degree and will be living in DC until December.) Do I let Dr. Lipshultz operate again so soon after the first surgery and skip the semester? Do I give myself time to heal up from the first surgery and suffer the pain until the end of the semester, then get the implant fixed over Christmas break? Or do I find a doctor in DC to fix it during the semester? Any advice? (Sorry to be burdening you guys, but I don't know who to ask?) Have any of you had problems with your implant and/or extenders?
Title: Re: Penile Implant Surgery
Post by: fubar on August 15, 2011, 10:12:45 PM
I do suspect some  have had problems with their implant I am waiting to hear from a recipient .But know word yet.personally I would get it fixed I am from DC and it cam wait really.School or not the place sucks and will only bring your morale down. Get fixed go to Tennessee not to far from DC amd one of the best implant surgeons in the world of Peyronie's. Check out jackps blog and.post.He is a strong Guy and a big heart if you need his number I have it.
Vandebuilt Dr milam I believe still Jack cqm set you straight he is the only Guy I trust on this.


Fubar
Title: Re: Penile Implant Surgery
Post by: jackp on August 15, 2011, 10:27:50 PM
nowover

I hear and read this story so many times. IMHO Dr. Lipshultz messed up. He did not have the skills you need with peyronies.

I am sending you another email. Will be glad to talk with you.

Jackp
http://jackp-penileimplant.blogspot.com/
Title: Re: Penile Implant Surgery
Post by: kendotx on August 16, 2011, 09:52:39 AM
Jack - Are you sure the problem with nowornever was caused by Dr. Lipschultz lack of skill? The man is a renown urological surgeon. Is it possible there was a mechanical failure due to a manufacturer defect or some other circumstance beyond the doctor's knowledge? Dr. Lipschultz is also my Urologist and I am sure a prosthesis is in my future at some point. I live in the Houston area and it just makes logistical sense to have the surgery performed here and not somewhere thousands of miles away. I obviously want to ensure I get the best care available so I want to choose wisely. I believe that Dr. Milam is an excellent surgeon but surely he's not the only doctor with the skills necessary to operate on Peyronie's patients??
Title: Re: Penile Implant Surgery
Post by: voulezvous on August 16, 2011, 06:28:07 PM
Seems to me that some of the questions that need answering here relate to insurance issues as well as timing. Is Dr. Lipshultz going to do the revision surgery under the same coverage or through malpractice insurance? I would certainly think that a 2nd opinion is in order whether in Houston with another urologist who has considerable implant experience or with Dr. Milam.
I doubt that any reputable dr. would operate again so soon after the original surgery unless it were safe to do so. If it were me, I think I would opt to get it over with & suffer the inconvenience of another painful recovery.
I agree with kendotox that there could be a variety of reasons why the extenders buckled & it may have nothing to do with Dr. Lipshultz's skills. I would be surprised if even Dr. Milam hasn't had to do revision surgery at least once.
Whatever you decide, nowornever, you have my sympathy. I'm sure that you are distressed as well as disappointed. Hang in there.