Peyronies Society Forums

Other Peyronies Disease Discussion Boards => Progression of Peyronies Disease => Topic started by: Winter on April 30, 2021, 01:00:30 PM

Title: Question about progression for veterans.
Post by: Winter on April 30, 2021, 01:00:30 PM
Hi everybody.
I'd like to question the veterans of this forum on how their cases progressed after a while.
Usually the ones that got the implant are a lot more present and communicative. However, I don't see many men that experienced all the cycles of this disease and just carried on.
I guess that most that reached a balanced level of existence usually departs from the forum and choose to stay away. Therefore it remains a biased picture of the possible progression leaned to the conclusion of, either get an implant or to live with a everlasting slow downfall.
But I'll try to see what I can get in terms of answer. I know every person has a different history with this disease, but if anyone could answer, I will be very grateful.
Thank you very much!

(Assuming you feel you are on a, somewhat, stable phase)
1. How long did the pain lasted?
2. How long did the disease progressed?
3. Have any of the symptoms improved over time?
4. How are you today? Was there a time when you managed to have a moderately normal sex life?

Title: Re: Question about progression for veterans.
Post by: MauvaisCoton on April 30, 2021, 10:22:17 PM
Good idea! I'd like to know more as well.

Here's my contribution:

Hope that helps.
Title: Re: Question about progression for veterans.
Post by: Xavier99 on May 01, 2021, 08:17:47 AM

1. How long did the pain lasted? It was was brutal flaccid and hard for about 4-5 months. Literally hurt to rub in my pants while walking. I was loaded up on pentoxofylinne and Viagra which didn’t do much. It did help sex though which I managed with my wife the whole time.. at least once every two weeks. Couldn’t do much besides soft and slow.


2. How long did the disease progressed? It kept bending/changing  may-aug 2020.. started with a titled head..little bottleneck and narrowing. Then just stayed as is


3. Have any of the symptoms improved over time? No it’s just stayed as is.. if I touch the nodule/plaque is can be irradiated again. I’ve tried manual traction and it also still causes discomfort.. it feels like the plaque is retracting and almost creaking all day if I do it. It’s better when I feel nothing and not reminded all day about Peyronie’s.


4.How are you today? Was there a time when you managed to have a moderately normal sex life?
I was lucky to not have a bend that made sex difficult. My wife doesn’t even feel a difference but my confidence isn’t great and I certainly don’t feel sexy looking at it in bed. I used to have  straight arrow decent thickness 7in dick and now it’s def a bit shorter and narrower. I take 25mg viagra before sex and It helps with stiffness.. I can go without if needed but it gives me a little confidence. Pain is all but gone a year later but I def take it easy.. I make sure I’m rock solid before use.. I don’t jerk off near plaque site. It’s a different sex life but could have been worse
Title: Re: Question about progression for veterans.
Post by: Winter on May 01, 2021, 10:21:35 AM
To Xavier and MalvaisCoton.
Thank you guys very much for writing down those long and careful replies. As someone who is living the dreadfully unpredictable acute stage, it is very meaningful to hear from you. It is a very grim disease, but it may have light at the end of the journey, even if it only means some sort of stoic peace on a painless stability. 
Title: Re: Question about progression for veterans.
Post by: Winter on May 13, 2021, 11:27:43 AM
Would anyone else like to post their experiences?
Title: Re: Question about progression for veterans.
Post by: LWillisjr on May 13, 2021, 11:49:17 AM
I don't normally respond to these on an individual thread, because most of us veterans have a "My History" link in our signature.



(Assuming you feel you are on a, somewhat, stable phase)
1. How long did the pain lasted?      Peyronies onset June 2007 40 degree curve. Pain lasted about 6 weeks as curve progressed
2. How long did the disease progressed?   about 6 weeks progressed to 70+ degrees dorsal
3. Have any of the symptoms improved over time?   No, had a series of Varapamil (before Xiaflex) injections. Excision/grafting surgery July 2008
4. How are you today? Was there a time when you managed to have a moderately normal sex life?  Great, good erections, great sex life