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Peyronies Disease TREATMENT Discussion Boards => Xiaflex Injections => Topic started by: glamrox92345 on April 01, 2021, 07:26:33 PM

Title: Started Xiaflex Today
Post by: glamrox92345 on April 01, 2021, 07:26:33 PM
Hey all,
Had my first shot of round one today. I was quite nervous but the doctor was really calm and that made it so much better. Shot two of round one comes Monday. Will keep everyone posted on the progress.
Title: Re: Started Xiaflex Today
Post by: GaussRifle on April 02, 2021, 04:01:48 AM
Great.... I'm scheduled to have my first shot about 3 weeks from now.
Title: Re: Started Xiaflex Today
Post by: Mikel7 on April 02, 2021, 04:29:56 AM
I have been contemplating this - keep us updated. :)
Title: Re: Started Xiaflex Today
Post by: john.doe.550 on April 08, 2021, 01:32:03 AM
HI, the 3 of you that posted above me my be interested in the exchange between a NorCAL forum member and me (SoCAL member).  We shared a lot about our xiaflex injections in another current thread.  I wanted to alert you because you 3 are just starting injections and have questions that are answered by us.  If you are interested, then please use this forum hyperlink: https://www.peyroniesforum.net/index.php/topic,15065.0.html

Oh, and best of luck and hope it works well for you!
Title: Re: Started Xiaflex Today
Post by: glamrox92345 on April 08, 2021, 07:15:00 PM
Hey guys,
So had second injection of the first cycle on Monday and in office modeling on Wednesday. Did see quite a bit of swelling and irritation for second injection but from what I've read I expected that. Relatively no pain just slight discomfort. Yesterday the doctor did the in office modeling exercise. Just did my first 3 30 second penile stretches today at home. Will hopefully start with Restorex again by tomorrow or Saturday at the latest. Just want a little more swelling to go down. All in all, a smooth first cycle. Hopefully some of this stuff will break up over the next six weeks. Keep everyone posted when I meet with the doc in six weeks to see about the next cycle.
Title: Re: Started Xiaflex Today
Post by: male_patient on April 29, 2021, 11:24:48 AM

Did the injection hurt?    I was screaming bloody murder during mine.  I never felt pain like this in my life in both sets of injections.  As a grown man, I was sobbing as I was exiting the office. Is this absurd pain normal when injecting?
thnx 
Title: Re: Started Xiaflex Today
Post by: glamrox92345 on May 20, 2021, 05:50:26 PM
For me the injections didn't hurt but the numbing injection hurt like crazy. The first one wasn't as bad but the one for round two of the first cycle and then when I went back two days later for modeling it was even worse because the area was so tender from two numbing injections already but surprisingly I guess no pain from the actual Xiaflex injection.

I go tomorrow to meet with my doctor about round 2 injections. It's been roughly six weeks since injection 2 of round one. It seems to me that the curvature has went down a bit so I am encouraged at least that we are going in the right direction. Will post again as round 2 progresses here tomorrow and through next week.
Title: Re: Started Xiaflex Today
Post by: Mikel7 on May 21, 2021, 05:57:26 AM
So you do notice some reduction in your curvature - tha's great!  Can you gestimate just how much?
Title: Re: Started Xiaflex Today
Post by: glamrox92345 on June 03, 2021, 07:05:56 PM
I went to see the urologist and I was right the curvature is down which is great. During the Doppler a few months back he had me at a 55-60 degree curvature and now I'm looking at about 35 degrees so definitely improvement. Now I have to get over my mental block and attempt sex with my girlfriend as the doctor is encouraging. Masturbation is successful so that's the next step. He said I still qualify for round 2 since I'm over a 30 degree curve but he left it up to me. At this point I think I want to do another round. Thoughts?
Title: Re: Started Xiaflex Today
Post by: PeteNYC10003 on June 07, 2021, 12:40:22 PM
You responded so well to one round, I'd go for it.
Title: Re: Started Xiaflex Today
Post by: LWillisjr on June 07, 2021, 01:20:55 PM
Based on current Xiaflex results, that is pretty significant after only one injection.
Auxilium Pharmaceuticals will be seeking you out to make commercial :-)
Title: Re: Started Xiaflex Today
Post by: glamrox92345 on June 13, 2021, 11:23:57 AM
I was using traction before round one and somewhat so after round one so not sure how much traction helped with the curvature versus Xiaflex. Xiaflex certainly helped reduce the curvature but again not sure if traction assisted as well as I didn't consistently check the degree of curvature. I just went off the original number when he did my Doppler and then the number about a month after the first injections. At this point I'm set up for round two at the end of August. I anticipate that to be my last round. I'll keep everyone posted.