Greetings all, just in case anyone would be interested, I have a this idea of publishing a few notes on the topic of my personal experience of the RestoreX device here on the forum. For you, and as a personal log. Y'know, I wouldn't put it on Facebook. ;)
Day D-X (X as "Unknown")
Ordered the RestoreX device.... To Stockholm, which is a problem in itself. Therefore X is unknown. Fingers crossed it actually makes it over the Atlantic.
The intention from my side is to add info to this thread as things get going.
I don't think there is a big issue with customs, even though the EU safety body hasn't approved it yet, it's not outlawed in any way, so customs won't bother with it. It might get a bit expensive though, I'd guess with shipping and taxes I'd pay roughly 200USD extra for it.
Quote from: thinkpositive on January 31, 2019, 03:52:50 AM
Hoping you get it, what stage are you in?
I really don't have an up to date diagnose :-(
I got diagnosed and tried Xiapex with no success (not really a full treatment due to insurance issues, only two injections) a couple of years ago, but now I need to address this issue again. That's why I decided to try traction as an experiment after reading up on the new studies from the designers of the device. I'll try to do reasonable logging and not fiddle with any other parameters (medication etc) but just keep up the fairly healthy lifestyle I normally enjoy.
That's a good idea. I have really had incredible results given how hard it is to resolve this issue. I'm living a healthy life, taking some supplements but not overdoing it. Look at the difference over the last 3 months using RestoreX once a day. I'm now moving to twice a day for the next 3 months.
BTW... started using RestoreX within 4 weeks of first noticing I have Peyronies Disease. May 1 it will be 1 year for me and I have used it all this time, more or less.. took a month off here and there due to travel. However the last 3 months I was using much more force and also directing the stretch based on Doctor Landon's advice. This made a big difference.
For those of you with educated gray matter, the slight curve you see is actually up and to the left a bit. I have always had the to the left a bit, but the damage is on top so it pulls up a bit. As I stretch more and more, the areas of damaged tissue that are not so severely damaged begin to relax. Luckily, the severely damaged area is like a small C on the upper to slightly left side that effects about 25% of the circumference of my shaft. The traction keeps pulling all that scarred tissue apart. Scars take a few years to settle, so hopefully I can continue to effect it as I have. Or maybe it's the Multi-Vitamin
Let's not come down on Forrest too hard. He's most likely having a rough time accepting the fact that he voted for the Manchurian candidate.
I agree, we are all here to try to help each other... and discuss how traction has been for us. I think there is a separate Xiaflex forum right?
It depends now which stage you are in. But careful doctors do not like to inject or cut straight away as they know the level of risk increases quickly. If you are just experiencing Peyronies Disease for the first time, see a doctor who is familiar with RestoreX and get some advise. From what my doctor told me, if you use RestoreX while you are acute it can decrease the possibility of damage (down to near 0) that could require surgery or injections if you do nothing. Obviously, for the guy who ignored his case for a few years... traction might have less of an impact as a first line treatment, but its certainly worth a try. I think the most important thing is to identify early and take this situation straight on like I did... getting onto RestoreX within 30 days.
I would say VED or Traction. If I had to bet, I would go with Traction. I feel like its safer with the RestoreX and with deep pulls it effects the biology of the damaged tissue more aggressively than VED can. I might look at VED down the road. I took Pentax for the first 3 months, but then stopped. I have a family and cannot risk any health issues, side effects from taking Pentax. I do take 5mg Cialis a few times a week, but it sometimes causes too many erections for me. My supplement intake:
5,000 - 10,000IU Vitamin D Daily
Low dose Vegan Multi- Vitamin
Stronvino (Arg, Cit, Carn, Mag, Zinc)
Tocopherols in the morning
Tocotrienols in the evening
Curcumin
current intake is Vitamin E (not regular vitamin E as I have mentioned here many times), vegan multi,
Hey MrDan: mind if I create a post showing others how to ship restorex internationally using your method?
Oki doki... The wait is over. Yesterday a package appeared in the mailbox, after pretty much exactly 30 days. I used the Parcl - First Worldwide Shipping Community (http://www.parcl.com) service for the indirect shipment, and the device had a touch and go in Fair Oaks, CA, before turning straight north over the pole for Sweden using DHL. The carrier is selected on the Parcl - First Worldwide Shipping Community (http://www.parcl.com) site... So - here it is.
*Unboxing... :-)
This is amazing news! Thank you man! 8) best of luck with the device!
Day 1. A few first observations.
I fancy science, and figured I'd try to keep track of what's going on. Hence, we need "scientific" evidence, deep dig in drawers comes up with old digital camera and an old tripod (no, I don't want erect dicpics in my mobile). The thing that is interesting to me is curvature, nothing else, so by taking a pic and running it through Gimp w edge filter "Neon, 7x3" I got the attached reference curvature without revealing too much more than the shape. It also looks very "scientific", should it ever end up in Nature ;)
Observation no2 is that it gets really cold and it's easy to pinch oneself - I found the tubular bandage to help as protection of the skin from the cold, friction and pinching.
Observation no3 is that the tension sometime overcomes friction, and that the elastic tape provided in the package is the best so far in keeping the glans firmly in place, and that the adhesive on the tape is not as bad for me removing from the glans as I thought when reading @thinkpositive instruction. I have a few more options that I haven't tried yet too.
Observation no4, it does stretch. It really does stretch. And it hurts, for about 15s, until you have had time to open today's paper and read about Brexit, IS wives and other crap and the dick pain promptly fades in comparison.
Observation no5, 30mins is not much.
Now the plan is to do the prescribed dose of RestoreX and also keep the work days wearing of the low tension Phallosan stretcher that I've been doing since late 2016, and give you an update on about a monthly basis.
Hey man. Thank you so much for the pictures! On the last one it seems that it is going to slowly slip of the device! Am I wrong?
You also said it hurts.... Could you describe that better? Or are you joking around?
Hi fellow swede!
How much did it cost in total?
Quote from: pfract on March 03, 2019, 08:39:31 AM
Hey man. Thank you so much for the pictures! On the last one it seems that it is going to slowly slip of the device! Am I wrong?
No, you're right. It's not quite systematic yet, sometimes it slips, sometimes it's stuck in place. I have just adjusted the clamp hight to be able to fit in a bit more padding, and this last time that seemed to work. Anyway, it is probably to be expected that the process will require some tuning...
Quote from: pfract on March 03, 2019, 10:48:53 AM
You also said it hurts.... Could you describe that better? Or are you joking around?
It's the clamp that hurts a bit, especially just when the tension is applied. It might have to do with exactly where in the glans the edge of the clamp is located.. maybe...
Quote from: Dressa on March 03, 2019, 03:14:30 PM
Hi fellow swede!
How much did it cost in total?
Here's the snippet from the Parcl - First Worldwide Shipping Community (http://www.parcl.com) - however, I think this works like an auction, and you might not get exactly the same bid for your transport. It took 30d to get it.
Item:
Restorex
restorex.com
1 kg x 1 x $495 $495
Fees:
Purchase assistance $20
Customs declaration Free
Customs value modification $5
Insurance $13
Order processing fees $41.46
Shipping:
DHL DHL eCommerce $35
Estimated delivery time: 12 days
Tracking: Available
Total:
$609.46
I have plans on buying Restorex. A bit tired of vacuum-pump and oral supplements, but I will happily follow your journey and decide later. As of now I think my peyronies is in a stable phase. The bend is significant and I have hpurglassing when semierect. But intercourse works (not aall positions). It's either one more conservative go (restorex) or surgery on the horizon.
Mr.Dan, good luck. I'm also following your progress.
MrDan, is parcl fully trustworthy? I mean it's a lot of money for RestoreX and I would want to make sure that it gets sent properly. Do the forwarders allow express postage and full tracking to Australia, or is this all negotiable?
Hey bent.... Those questions are all on their website. FAQ. Check them out!
OK thanks for that. It's a bit risky as it's lot of money and the forwarder could always take the money and not buy but given that there are no other ways to get RestoreX outside of the US, I guess I will give it a go.
Has anyone else besides MrDan used this service?
Quote from: Bent Ding Dong on March 08, 2019, 05:23:46 AM
MrDan, is parcl fully trustworthy? I mean it's a lot of money for RestoreX and I would want to make sure that it gets sent properly. Do the forwarders allow express postage and full tracking to Australia, or is this all negotiable?
No idea... I just googled on the type of service I wanted and picked the one that had the best reviews. :-)
Parcl is a peer to peer service with reviews of providers, so it's about as safe as buying from Ebay. Paypal gives you 180 days of protection which would be applicable here I think.
There are quite a few companies that do exactly the same thing as Parcl.
OK, well I will have to try it.
Ordered using parcl. Will post again once it arrives to the forwarder.
Very nice man! Fingers crossed for you! 8)
Day 7 observation
After one week the wrapping procedure has converged. Lo and behold - in the same preferred wrapping strategy as advocated by @thinkpositive. :)
Thanks pfract. I literally joined up and put in a request and within 5 minutes, a trusted user contacted me and said he has already sent a RestoreX device before so I accepted his offer.
MrDan, any progress with length or straightening so far or too early to tell?
Well, the RestoreX arrived today. Very impressed with the parcl service.
How long did it take to you exactly? I was under the impression you were going to wait a month too, don't know why?
make sure you pull out any folds underneath the wrapping before clamping. I focus my wrapping and clamping 50/50 shaft head and try to clamp just below the head. The only time I have pain is when I have folded skin which I can quickly adjust. You need to wrap and then pinch the tip of your head and pull on the shaft to release the folds... it's so important.
Quote from: pfract on March 20, 2019, 10:37:21 AM
How long did it take to you exactly? I was under the impression you were going to wait a month too, don't know why?
It took 10 days to deliver from the US to Aus using DHL Express through parcl.
Quote from: thinkpositive on March 20, 2019, 11:15:34 PM
make sure you pull out any folds underneath the wrapping before clamping. I focus my wrapping and clamping 50/50 shaft head and try to clamp just below the head. The only time I have pain is when I have folded skin which I can quickly adjust. You need to wrap and then pinch the tip of your head and pull on the shaft to release the folds... it's so important.
OK cheers for the tips.
So, here's a 8wks image, having been very diligent and applied a fairly high degree of tension.
A few conclusions:
- No measurable changes so far. Obviously this tissue is tough... :-[
- The local pharmacies don't have the exact same tape as provided with the device, but it works well with self-adhesive gauze without the tape too
- Beware folded skin. That hurts....
- I often lay in bed and meditate (aka sleep) while wearing the device. Sometimes the duration is more than the stipulated 30mins, but it doesn't seem to damage anything.
I will look into the research on xiapex + restorex and perhaps go check if it's possible to administer another sequence of xiapex to top it of.
This is what I have been saying all along but I get shot down being as too negative. You need something to soften up the Plaque. I don't think it is enough just to try and break it up with traction. Xiaflex attempts to soften and break up the plaque, so it can be molded by hand exercises or traction. Will be rough trying to do Xiaflex with Restorex because injections can make your dick sore. But you can try it. Seems to me that traction alone would cause more trauma and irritation. I tried hand way after Xiaflex treatment and it just irritated the remaining calcification. I got swelling at the bottom half and soft erections. This disease is not at all easy as stretching it away imo. But then again I am not the mighty Mayo clinic. I am just someone who has it
Let me add that some have a different type of damage that might benefit from traction alone
Well it's been working for me in just over 6 weeks and I've had my peyronie's issue for 7 years. I think there will no doubt be other factors that contribute how well RestoreX works such as your age, genetics, lifestyle, supplements and diet. I was on keto for 3 months before using RestoreX and the last 2 weeks I've been on carnivore diet and these last 2 weeks I've seen the most improvements. I'm 39 by the way so still relatively young so this could give me an advantage in quicker recovery.
@MrDan, I just use 3M Coban Self-Adherent Wrap 1581 25mm x 2m - 1 Roll. It's not exactly the same as the one provided with RestoreX but it's close with the only difference being it doesn't stick to your skin but still sticks to itself which is better when taking it off. I order it online from a pharmacy in Aus.
Falling asleep whilst using it is probably not the best idea as the clamp clamps down pretty hard and cutting off the circulation to the head of the penis for more than 20 mins a time can do more damage due to lack of blood flow to the area. I always stop after 15 mins and let my penis out of the clamp for a few mins to let the blood flow come back as my penis head is dark purple and not looking great, then once the blood is back, I clamp it for another 15 mins with the reverse angle.
Thanks for the tip on the 3M product. I'll check it out.
As for sleeping, it's more of a snooze and I have none of the discomforts I associate w lack of circulation when I unclamp. I'd expect pain receptors to alert before any harm... hopefully. :)
A month later, very disciplined, but not much has changed. Today is xiapex injection day, hope that helps soften things up a bit.
Yours looks repairable MrDan. The injections should speed up the process. They take time to work too. So you got to be patient. Do rigorous hand modeling or whatever. That is very important. I would take at least 200 iu of Vitamin E daily
I am going to order the restorex through parcl.com I need some help with placing the order on parcl.com
they ask if i need, any of these services:
- Products photo
Contents check
Insurance
Customs declaration
Package consolidation
Additional packaging
Electronics check
Removal of prohibited items
Customs value modification
Priority handling
Shopping assistance
can someone help me here? please
How do i get this device delivered to the uk? England
Quote
I am going to order the restorex through parcl.com I need some help with placing the order on parcl.com
they ask if i need, any of these services:
- Products photo
Contents check
Insurance
Customs declaration
Package consolidation
Additional packaging
Electronics check
Removal of prohibited items
Customs value modification
Priority handling
Shopping assistance
can someone help me here? please
Hey man. I am not sure what to say. Have you checked the help pages on parcl? what exactly is your doubt here?
Quote
How do i get this device delivered to the uk? England
Hey curvature. Check this thread please.
*----> How to ship restorex worldwide! link inside (https://www.peyroniesforum.net/index.php/topic,11551.0.html)
You have to be consistent, results with RestoreX are slow. Faster if you are in the accute stage like I was when I started to use it. Everyone has a different scar, some scars are bigger, some are smaller, different shapes and locations... but if you keep at it, and take plenty of photos for comparison, you will see improvement.
Xiaflex is a great drug, no doubt, but its not approved for everyone's case (you have to be bent enough and not approved last I checked for hour glassing) and it should be used AFTER you cannot get improvement from traction... as per Doctor Trost. His quote "You get one shot at good results from Xiaflex, so save it as your silver bullet." Xiaflex is not available in Thailand, but my insurance would surely cover me for injections somewhere in the world. However, I just knocked up my wife and things are working quite well so I'm in no rush and happy to do 30 minutes of traction each morning while I read the news. In a year or so, once I'm 2+ years into this, then ill decide if it's right for me. Again, each person has a unique case. I'm grateful RestoreX took me from 90 degrees to straight again, but i started within a month of waking up bent.
The take away, do not wait, start immediately with traction. You have to be patient and consistent. Use a photo journal. Do not let your scar heal in a contracted position.
Here's a sit-rep from the land of Aurora Borealis, after two additional xiapex injections (May and June) and RestoreX stretching.
Observation #1 - this scar is really tough and there is no (?) progress.
Observation #2 - summer holidays, travel, parties etc are detrimental to treatment discipline, but wtf - they are good for other life aspects!
Observation #3 - new photo to the photo log follows.
In another thread, I commented on the clamping procedure, and I copy my reply below.
I can tell you the following about my procedure.
- I always remove the clamp from the device, hang the device on the penis, clamp the glans in the clamp and snap the clamp in position in the device. Beware pinching. Much easier than trying to clamp with the clamp in its position in the device
- I always set the device in the tilt position that makes it easy to snap the clamp into the device (hold a finger under the penis to avoid pinching), and once the clamp is snapped into the device, I adjust the angle to straight or/and-later "tougher"
- I often wake up with an erection and follow the same procedure. Then it's not possible to tighten the clamp the same number of clicks as when flaccid, but it sticks ok with less clicks, and can be tightened once the erection wears off. Curve is quite severe with an erection, so it's a bit of a wrestle to by force straighten the device once the clamp is snapped back in position, but it takes no more than 2-3mins for the erection to yield once the device spring force is applied. Poor Dick just gives up. ;D
- The tape has no adhesive, sticks anyway (don't ask me how) and comes off reasonably easy.
So - all in all - not much progress (if any) but I'll just keep going.
Hey Mr Dan. It's sad to see you have had no improvement so far. As I was reading your post did I read right when you said you clamped your penis with an erection? Are you nuts? :o can you please explain better if I am wrong in my thinking?
No, I don't clamp the nuts.
;D
Just kidding.
Actually, for me it is possible to take down the erection a bit by manually stretching the penis, bending it counter curve. Then clamp as per procedure in previous post.
What's so nutty?
What's. So nutty is that you should avoid at all costs bending or manipulating your penis while it has an erection. That is one major cause of peyronies.
Quote from: pfract on August 23, 2019, 05:38:25 AMavoid at all costs bending or manipulating your penis while it has an erection.
Hm, the xiapex manual actually has a section on erection stretching. The indication there is "avoid significant pain". That seems to indicate that this stretching is just as any other stretching, like yoga. Slow, steady and below significant pain level does not induce trauma.
I do believe there is a very gentle counter stretch to bend w erection
after injections, see pharma's instructions.
It's something which is out of my league, so i will refrain from commenting further and accept the input from others that know more than me on this!
Here are the modeling instructions. https://peyronies-disease.xiaflex.com/public/pdf/xiaflex-at-home-modeling-activities.pdf
Well folks, it may be time to finish this thread with a final sit-rep.
While there has been no medical progress, I might be able to share another aspect that has allowed me to put life in a different perspective.
Some 15 months ago, when this thread was initiated, my life situation was less than perfect. I was separated since about a year, and even though it probably had little to do with the disease, the fact that my penis was crooked was a serious cause for concern. I had taken the first year alone to focus on my abilities to enjoy life by myself, and that worked out well, but at that point in time I was also realigning to allow for new relationships. I expanded on an old hobby (ballroom dancing), changed styles and took a beginner's course. And as can be expected, I was not the only one in that stage of realignment. So was P.
I was really very aware of the deficiencies caused by the disease but anyway slowly (over a period of half a year) let P in on the secret. Gradually and to my fundamental relief, it turned out that there was an alternative mindset to my own crooked-penis-problem thinking. More like - Interesting, what can we do with this fellow.
That mindset allowed me, or us rather, to accept and enjoy what we have and not focus on angles and curvature. Actually, it turned out that there were locations very well suited for my specific shape, and to my profound astonishment, P turned a perceived liability to an actual asset.
Of course, this may not be of any help to you, and I was definitely not the one in the worst condition, but nevertheless - as of this post I regard myself as an ex victim to Peyronies and living example that there may be a sweet spot to be found even if one doesn't go straight at it.
Congrats! Sounds like a great partner and willing to take advantage of a curved dick!
Hey Mrdan! It was an interesting twist to your story, but, encouraging nonetheless. If you have found a supportive partner, maybe as time goes by you are more relaxed to try other things or even keep going with restorex/vacuum just for the sake of it.
And if not, well, at least you are in a better place.
Hello! Which courier inside Parcl did u choose to make the transaction? I'm thinking on ordering it now and I'm looking for one with experience on sending RestoreX.