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Peyronies Disease TREATMENT Discussion Boards => Developmental Drugs & Treatments => Topic started by: incautious on February 12, 2014, 03:36:28 PM

Title: Priapus shot
Post by: incautious on February 12, 2014, 03:36:28 PM
Ok so I got the pirapus shot on 2/11/14. Dr Varano and staff were very professional about performing this procedure. Basically it takes about an hour for the procedure. The Dr. takes 60 cc’s of your blood and inserts it into the Magellan centrifuge. In about 20 min 10 cc’s of PRP is ready to be injected in 5-6 locations. Your using a numbing cream and there was only minor discomfort and just a little bruising. You must then use a vacuum pump that you bring with you for 10 minuets at 10 in HG, in order to more evenly distribute the PRP. It is claimed that you will see maximum results with in six weeks, all the while using the vacuum pump twice a day for 10 min and at 10 in HG. Dr Varano feels that this procedure works better for those who have right or left curvature because he can only inject on the sides and the glans. My curvature is upwards and between 30-40 degrees, and I feel optimistic that this will reduce my curvature. There is a significant increase in girth after 24 hours, and after pumping this morning a significant reduction in curvature. Pumping is one thing; the morning wood will really be the test to see if there is a reduction in peyronies. The science of PRP and its ability to help heal injuries is gaining recognition in the medical world, so the theory that it can help those with peryronies is a sound one. One other thing, Dr Runels the inventor of the pirapus shot, is asking the Dr’s who perform this procedure to have patients fill out an erectile dysfunction questionnaire before the shot and 6 weeks later. I’m guessing, and it is only a guess, that if Dr. Runels can show clinical data that it improves Erectile Dysfunction, there may be some insurance reimbursement of the $2000 cost. He is expected to present the data later this year. Also this is a new procedure and the cost of the centrifuge is high. As time goes by and more Dr’s start doing this procedure the cost will come down. Already there are Dr’s in 23 states and in just the three months that I started looking into this, there are now two in NJ. where there were none. 
Title: Re: Priapus shot
Post by: IhatePD on February 12, 2014, 05:12:02 PM
incautious,

First of all, I wish you the best of luck and hope that this works out well for you.

Can you explain what you mean when you wrote that you used your VAC for "10 minutes at 10 in HG"?  I have a manual vacuame pump and I don't understand what you mean by that.

Also, where is Dr. Vargano located?

Thanks.
Title: Re: Priapus shot
Post by: MattFoley on February 12, 2014, 05:25:03 PM
incautious, thank you for that great info. You're definitely on the cutting edge of curing Peyronie's.

I've been having regular conversations with Dr. Runels regarding this treatment and have been urging him to move towards aiming this procedure at Peyronie's patients. I emphasized to him that he's got essentially a captive audience of men who are willing to try just about anything to heal from this horrific disorder. The market here is greater than his initial demographic of men who want to simply enlarge their penis. Those men will use any extra money they have to go through with the Priapus Shot whereas Peyronie's sufferers will expend every last penny to be free of this nightmare.

While improvement in curvature should be expected, it won't likely be dramatic. However, girth and length improvement and angiogenesis is our ideal expectations and men being treated with this process are seeing that happen with the Priapus Shot.

Please keep us up to date. Thank you and God bless.
Title: Re: Priapus shot
Post by: james1947 on February 12, 2014, 07:00:57 PM
incautious

Thanks for the info. As Matt has said, many of us (maybe all of us?) are interested to get back girth and length lost to Peyronies and solve the Erectile Dysfunction associated by some of us. $2,000 is big money (for me in any case) but worth a try before surgery and implant.
Wish you excellent outcome from the treatment.

James
Title: Re: Priapus shot
Post by: emasculated on February 13, 2014, 08:39:50 AM
I think 2000 is not that much compared to say surgery. I'm very curious to hear about the results. When I'm in the US the coming months I could benefit from the knowledge of some of the cutting edge treatments that could help me while there.

Title: Re: Priapus shot
Post by: Chef Chris on February 13, 2014, 01:03:21 PM
Thanks for the info incautious
Do you just need one treatment whit this?
It sounds really interesting I would love to try it I wouldn't mind coming to the stats just for this
Title: Re: Priapus shot
Post by: incautious on February 14, 2014, 11:14:00 AM
IhatePD, 10 in of HG is a measurement for vacuum just like PSI is a measurement for pressure. It stands for 10 inches of mercury. Dr Varano is located in Conshohocken PA. There is a list of Dr. performing this procedure here at this link

Directory | Priapus Shot (R) (http://www.priapusshot.com/members/directory/)
Title: Re: Priapus shot
Post by: incautious on February 14, 2014, 11:33:00 AM
I hope I don't get long winded here. I have to say that I am very encouraged and that I have to agree with Mikehawk, that this treatment is very promising. After 3 days there is noticeable reduction in curvature and an increase in girth. It is still way to early to tell if this will be permanent and if it will work on everyone, but $2000 is cheap compared to surgery, and the price will come down as more Dr's perform this procedure. Dr Runnels invented this procedure for PE, penile enlargement(a muilt Billion dollar Business full of charlatans), and while the results for PE are mixed at best, the side effects of improved erectile function as well as an improvement in curvature are a very welcome result. They say that only one shot is needed for peyronies as well as Erectile Dysfunction. However factors such as smoking, obesity, cardio vascular issues ect all may play a roll  on the effectiveness of this procedure . I will try and get some pics up in the surgery section when I can, and will document any results what ever they me be , in order to help keep all informed. Good Luck to all. I know it is a difficult thing and there have been many promising treatments that don't come out to much, all we can do is keep our fingers crossed.
Title: Re: Priapus shot
Post by: james1947 on February 14, 2014, 07:11:32 PM
incautious

What you are writing are amazing results after 3 days.
Please keep updating us.
Chef Chris have asked:
Quote
Do you just need one treatment whit this?
Do you have the answer?

James
Title: Re: Priapus shot
Post by: MattFoley on February 14, 2014, 10:03:47 PM
incautious, thanks for that great info. This is exactly what I was hoping you would report back and say. Great news.
Title: Re: Priapus shot
Post by: emasculated on February 15, 2014, 02:07:36 PM
That is a fairly aggressive VED protocol (twice a day, 6 weeks). How do you know that any improvement in girth / length, curvature is not simply due to the VED and not the injection at all? Also when it comes to data we only have some rat models right now. But I would be interested to hear more testimonials from people and maybe eventually see a study.
Title: Re: Priapus shot
Post by: james1947 on February 15, 2014, 05:35:59 PM
emasculated

Trust me, VED will not give those results. The time is too short.
Please don't quote just if it is from long ago. Your post is understandable also without quoting :)

James
Title: Re: Priapus shot
Post by: ifxne on February 15, 2014, 11:08:45 PM
Incautious. Did the treatment include Acell (extracellular matrix)?
Title: Re: Priapus shot
Post by: damian on February 16, 2014, 04:58:37 PM
twice a day for 10 minuets isn't that much, or am I wrong?
Title: Re: Priapus shot
Post by: MattFoley on February 17, 2014, 12:36:02 AM
Guys, my understanding is that the reason for the VED along with the Priapus Shot is so that the PRP will remain active and focused on repairing and building the penile tissue fibers, hyperplasia, and angiogenesis. The Priapus Shot PRP remains active up until the 6th week after the injection. Without the PRP treatment, the amount of time using the VED would be far too short to see any real gains.

Title: Re: Priapus shot
Post by: incautious on February 17, 2014, 08:05:18 AM
This is an aggressive vacuum pressure that they are recommending and it is indeed required in order to keep everything active as Foley has stated. No other things were added to the PRP. I know Runnels was messing with things like HGH etc. It appears that one treatment is all that is needed, at least for Peyronies. As for the added girth, it is real in that it is still there, so much so that I had to order the next larger diameter tube. VED therapy usually lasts only a short time and then you contract back to normal, but I find that I pack my tube instantly now and that it is difficult to maintain the time frame, even though I have routinely halved used pressures this high in the past, and had been "training"  at this pressure in anticipation of having to pump at this pressure. I will try and post pics tonight where you can judge for yourselves the results after only just one week.
Title: Re: Priapus shot
Post by: incautious on February 17, 2014, 08:46:58 AM
photos are up in the child boards in the surgery section.
Title: Re: Priapus shot
Post by: Knight on February 17, 2014, 08:53:44 AM
This is very encouraging information. Please keep updating your progress.

Good luck and God bless!
Title: Re: Priapus shot
Post by: Mentos on February 17, 2014, 10:51:09 AM
INCATUOUS!!

So great to hear about your experience and see your before and after pics!! Your giving me some much needed hope brother.

Question: what does the PRP do to the scar tissue? Does it shrink it? Make it more maleable to streth? Very curious to hear more.

Thanks!!
Title: Re: Priapus shot
Post by: incautious on February 17, 2014, 11:13:20 AM
mentos, that's good question about scar tissue. After all a scar will stay a scar. It may be that it's just adding elasticity to it which can relax the surrounding area. When I went for the procedure I showed Dr. Varano my before pic, so he would have an idea as to where to inject the PRP, a customized treatment so to speak. There was an area where he had difficulty injecting(push back) the PRP which he thought was and area of heavy plaque buildup or scaring, and had to move locations a bit. This procedure is so new for Peyronies, that they are still on a major learning curve.  I know Dr. Varano Has done quite a few of these shots, however I would suspect that it was more for PE than for Peyronies. He has an email on his site so he may be able to answer some of the more technical questions. I told him about this site and that there were many others out there that were interested in this procedure, so he is receptive to inquires. Feel free to reference my name, Bill and the date of my procedure 2/11.
Title: Re: Priapus shot
Post by: Japanfour on February 17, 2014, 04:28:55 PM
Finally! incautious, you're the first person I've seen on these forums post pictures with positive results girth wise from almost ANY procedure, and they look amazing! I don't want to jump the gun here, but couldn't this be considered a cure? It looks incredible!

Also, did you have any hourglass or indentation before hand? This is what I have, so I'm curious if it effected you as well.
Title: Re: Priapus shot
Post by: MattFoley on February 17, 2014, 04:34:59 PM
incautious, thanks so very much for sharing your Priapus Shot experience and the pictures. Seeing is believing so I think anyone that had been doubting that this procedure can expand the girth, hopefully will feel a great deal less anxious about it.

I'm sure you realize that your experience with regard to the Priapus Shot is going to change the lives of a lot of men if your experience is duplicated for them as well.

As a reminder to anybody who's going to have the procedure done, DON'T SMOKE!! If you don't smoke, DON"T START!! If you are smoking now, STOP NOW!! If you are having problems breaking this horrific habit, try using "Chantix". This is a wonderful drug that will help you stop smoking.

You will be wasting your money if you have the P-Shot done and you're smoking. Tar makes it difficult for the penis to properly expand. Nicotine is a vasoconstrictor and it keeps the penis from expanding. Allow a couple of months from the time you last smoked to when you have the shot done. Waiting 2 months is my opinion and not based on any clinical data.

incautious, I think your efforts have just given hope to a whole bunch of guys.


I think a new era may just have dawned in the war on Peyronie's. The tide may just have turned in our favor.  :)

Thank you and God bless us all.









Title: Re: Priapus shot
Post by: james1947 on February 17, 2014, 06:30:04 PM
I made a search by the Internet and I find many posts stating big success of this treatment. Much more than Xiaflex and any other treatment. Seems to me a real successful Peyronies treatment. I am very excited, but maybe this is the SILVER BULLET for Peyronies!!!
This is the link to Priapus Shots website, worth reading:
Priapus Shot (R) | The Official Website. Description of how the penis can be rejuvenated and enlarged using platelet- derived growth factors (or Platelet-Rich Plasma). (http://priapusshot.com/)
By the way, have a very long list of doctors that are doing Priapus Shots.
incautious and others, I have tendency to move the topic to Development of Drugs and Treatments board. Opinions?

James
Title: Re: Priapus shot
Post by: james1947 on February 17, 2014, 07:02:17 PM
I found an other article from August 2013
http://www.foxnews.com/health/2013/08/25/new-treatment-for-sexual-dysfunction/
James
Title: Re: Priapus shot
Post by: IhatePD on February 17, 2014, 07:13:17 PM
incautious, how long are yu supposed to wait before resuming sexual activity after the Priaous shot?
Title: Re: Priapus shot
Post by: Knight on February 18, 2014, 12:41:17 AM
Nice work on the links to more information James! I've already located a local doctor from the 1st link you posted and sent him an email asking if he has any experience in this application for a Peyroines sufferer.

Who knows.... ;)
Title: Re: Priapus shot
Post by: Knight on February 18, 2014, 08:22:04 AM
I have already received a response from the doctor I sent the email to last night. This is what he said,

"If you are afflicted with Peyronies Disease, then you would probably benefit from a Priapus shot into the fibrotic plaque area of your penis with activated PRP. The cost is $1400 for the Priapus shot. You need to be off aspirin and NSAIDS for at least 7 days. If you want to schedule a procedure appointment with me, call my office at 763-447-2500.

I would wait on an appointment with me if your still doing personal research on Peyronies Disease and the Priapus Shot until you decide whether or not to proceed.

Dr. Hogue

Roger S. Hogue, MD, RVT
Sent from my iPhone"

The only thing that makes me nervous is that last sentence about waiting if I'm still doing research.

Thoughts anyone?

Knight
Title: Re: Priapus shot
Post by: MattFoley on February 18, 2014, 08:41:19 AM
Knight, he just wants you to be knowledgeable about Peyronie's before you proceed, that's all. He wants you to understand your own Peyronie's issue before moving forward on any therapy. I think that is a very appropriate thing to say. Remember, everyone's Peyronie's is different.

James, thanks for the follow up info.
Title: Re: Priapus shot
Post by: james1947 on February 18, 2014, 11:15:01 AM
Knight

His sentence is just fine:
Quote
waiting if I'm still doing research
In my opinion he means that if you are not enough confident regarding the treatment, take time and research the subject.
This sentence was relaxing me, not making me nervous, it shows he is not pushing you in the direction.
I wish I had a doctor here where I am living now that makes Priapus injections, I was in his office tomorrow morning.
For me $1,400 is big money, but I was trying it based on incautious results

James
Title: Re: Priapus shot
Post by: incautious on February 18, 2014, 01:19:55 PM
WOW $$1400 already the price is coming down somewhat. The number of Dr's now performing this procedure has doubled just since I started researching this back in the summer. Mattfoley is right about the smoking and limited success of this. Dr Runels also states that you also start doing some sort of cardio if not doing that already. It appears that the healthier you are the better the results. I had just emailed a member that I was so frustrated with the curvature,  the beginning of Erectile Dysfunction and the reduction of size, and the somewhat slow progress I was getting,that I was willing to try almost anything. In response to Japanfour I did at one time have the hourglass and indentation, I was able to "fix" most of that before hand. See my other posts under promising treatment. about traction, VED, Vit E ect. As for Ihate Peyronies Disease I got my shot on the 2/11. Let's just say that Valentines Day was a success three days later. One thing to note about sex, the increase in girth is a welcome blessing , however at the moment without a tension ring it's not quite as firm as say when I was 20 not bad but not like back then. This, Im sure is due to the added blood need to fully stiffen things up( although I did have several cocktails that night). Since the most positive results with the shot so far have been with Erectile Dysfunction, I'm sure that as this whole healing process evolves, things will improve in that department. As for moving this to the treatments board that's up to the administrators , keep in mind that this is still very early in the development of this treatment and the primary goal of this procedure is not Peyronie's, At this time.
Title: Re: Priapus shot
Post by: IhatePD on February 18, 2014, 02:53:11 PM
incautious, WOW, 3 days before you had sex after the shot. I would have been too paranoid to have sex so soon fearing damaging myself. I am real happy for you! Keep us posted.
Title: Re: Priapus shot
Post by: incautious on February 18, 2014, 03:16:24 PM
Hey it was valentines day and unfortunately the wife's libido is not what it used to be.  Actually you couldn't have sex any sooner that's for sure. Heck I still had some minor bruising but when opportunity knocks...
Title: Re: Priapus shot
Post by: Mentos on February 18, 2014, 04:44:17 PM
INCATUOUS what is your response to people's thoughts that it looks swollen?
Title: Re: Priapus shot
Post by: incautious on February 19, 2014, 09:18:50 AM
It is indeed a bit swollen. But a little bit less now. Look at it this way, your manhood is like a balloon. Only it expands and contracts with blood instead of air. Now I was injected with 10'cc of PRP. Now if you look at a 10 cc syringe its about 3" x 1/2" which is probably about 50% of my flaccid member. Now add 50% more volume to that and just like a balloon it's going to expand. i was very surprised at the increase in girth. Here is the quote from the Runels site:
"So, volume goes up IMMEDIATELY, then goes down to various degrees but slowly over the next three days. In some people this decrease in volume is very small, in others it is a more noticeable decrease. In some, I’m seeing a growth back to where it was with the initial injection or better. In others, there is growth but not quite back to where we started. Smokers have the least amount of growth"
Title: Re: Priapus shot
Post by: incautious on February 19, 2014, 09:33:11 AM
There are some other factors which may explain my swollen member and while it is still rather quite large. Since Dr Varano was 2 hours away I took the whole day off. I got home at around 1:30-2:00 Not having anything to do, i figured, I would do a more thorough job of distributing the PRP. So I pumped at LOW (3-5 HG) pressure for a total of 2 hours. I would pump for 10 min and then relax for 5 min.  During the relaxation period I would roll my manhood in between my palms trying to distribute the PRP much better. This may be why the next evening I saw a remarkable reduction in curvature and a big increase in girth.  Also I've Never Smoked, I do 30 min of cardio everyday and walk a total of between 8-10 miles a day . Also I'm taking Azor 10/20 for blood pressure. Azor is a VERY strong vasodilator. I believe that all these factors are contributing to the swollen appearance which is starting to abate. Remember PRP basically is mimicking an INJURY. Look what happens when you get a sprained ankle, it can stay swollen for days if not weeks.
Title: Re: Priapus shot
Post by: damian on February 19, 2014, 10:25:24 AM
So the girth gain is only due a kind of hematoma. If so, it'll go back with time.
Title: Re: Priapus shot
Post by: Knight on February 19, 2014, 11:34:31 PM
What about plaque? Does the Priapus shot do anything with, or too, existing plaque? Does it soften and/or dissolve it or is it still buried in there?

I know it's early but do you feel these results will be somewhat permanent or will you require another treatment in 18 months? Did your doctor discuss any of these issues with you?

Thanks for sharing this and explaining the process so well.
Title: Re: Priapus shot
Post by: MattFoley on February 20, 2014, 01:47:58 AM
damian, there is some hematoma so it will shrink a bit but that is normal and expected. You will retain the vast majority of the increase in girth.


Knight, I know you're directing your questions to incautious so I hope you don't mind me helping to answer them for him.

Yes, the P-Shot will likely have some effect on the plaque. The increase in circulation, angiogenesis, and hyperplasia will all have some bearing on the integrity of the plaque. It can soften and/or dissolve it. There are a number of factors that will determine what happens to the plaque including how thick the plaque is, where it's located, how your body responds to the PRP, etc.

The results are permanent however you can build upon the results with multiple shots. You can get another shot after 6 weeks if you don't mind spending the money for it.
Title: Re: Priapus shot
Post by: incautious on February 20, 2014, 08:04:14 AM
Thanks Matt for the help. Please anyone chime with info/answers if you know it. I wish MikeHawk would comment as he was the one with his posts that got me to the decision that I should get this. I know there were some who were skeptical of his claims, but I for one say he was right on the money . As for the plaque right now I cant feel it, the Urologist showed me where it was right off the bat, felt like a pea, and I cant' feel it now. I think that it is a combo of softening, maybe dissolving a bit and with the added girth a bit more difficult to find.  I will try and post another pic hopefully within a week( I do have to be discreet ), as things firm up better, I'm actually taking 5 mg of cialis every day as opposed to 3 times a week, and as most of the swelling has subsided I will get something up soon on the Surgery site.( having sex on V day was probably not the best idea ;-)) Most of you will be amazed how much straighter it is getting. Will it last, I don't know. Dr Varano, didn't think another shot was necessary for peyronies, and that if i did i should wait wait 3-6 months.
Title: Re: Priapus shot
Post by: damian on February 20, 2014, 11:27:06 AM
Matt. Is there any way to prove that? I think you are desperately expecting too much. I hope that I'm wrong.
Title: Re: Priapus shot
Post by: emasculated on February 20, 2014, 11:58:57 AM
I hope everyone on here who tries this treatment will be as kind and forthcoming with information as incautious.
Title: Re: Priapus shot
Post by: MattFoley on February 20, 2014, 02:03:37 PM
damian, I can only go by what others have said about their experience with the P-Shot and what Dr. Runels has explained and what he has seen happen with both Peyronie's and non-Peyronie's patients.
Title: Re: Priapus shot
Post by: james1947 on February 20, 2014, 03:07:18 PM
Why not just wait for incautious new picture at 26 or 27 of this month?
The results will be clear than, so for what all the speculations?

James
Title: Re: Priapus shot
Post by: MIKEHAWK on February 20, 2014, 03:50:51 PM
my penis is straighten out and back to it's original size.I don't think PRP shot enlarge the penis but it does give back your original size, i measured the girth since i was a teenager, and i'm back to my teenage size.

The Chinese does one thing different with their shots though, they use Super Oxide dimutase to speed up the recovery process. Super Oxide Dimutase also needs to be injected.

http://en.wikipedia.org/wiki/Peyronie's_disease

Formulations of superoxide dismutase are also reported to be effective in Peyronie's disease.[24]

It's been noted in wikipedia, with the source linked.


Also one thing they told me to do while i was in China is to eat Papaya Fruit 3 times a week during the recovery, Take out the seeds of the Papaya and mix it with honey and drink it down with the papaya seed. I have no idea why i was told to do this.
Title: Re: Priapus shot
Post by: MIKEHAWK on February 20, 2014, 03:54:00 PM
Papaya - Wikipedia, the free encyclopedia (http://en.wikipedia.org/wiki/Papaya)

Meat tenderizing[edit]
Both green papaya fruit and the tree's latex are rich in papain, a protease used for tenderizing meat and other proteins. Its ability to break down tough meat fibers was used for thousands of years by indigenous Americans. It is now included as a component in powdered meat tenderizers.

woops meant to post this.

Probably why it actually helped, it did feel a lot less rigid, those Chinese are pretty smart.
To clarify the necessity of the post, Papaya was given to MIKEHAWK after the shots - James
Title: Re: Priapus shot
Post by: MIKEHAWK on February 20, 2014, 04:04:51 PM
I think it made a huge difference during the recovery process while eating it after the PRP shots.

it looks a lot smoother too,  there were hard like dents around my penis that are completely gone now.
Title: Re: Priapus shot
Post by: MIKEHAWK on February 20, 2014, 04:10:41 PM
I'm also trying to convince doctors to do the PRP shot in the Bulbospongiosus, the muscle that closes off the blood flow causing an erection,


Male Pelvic Floor: Advanced Massage and Bodywork (http://malepelvicfloor.com/sd.html)

"Contraction of the bulbospongiosus muscle blocks blood from escaping by pressing on the deep dorsal vein of the penis." [2]. When weak, these muscles cannot effectively inhibit this outflow, resulting in partial or total flaccidity, or Erectile Dysfunction. "

I thought that because of how important it is for men to have morning erections to keep the penis flexible. this muscle is probably pretty important in preventing Peyronies. I'm going to try to get an injection for this muscle group next, once i can convince someone to give me a shot. As my morning erections have been getting weaker as i age.




A Highly Scientific, Medically Detailed Discussion of Why Men Get Morning Wood (http://gizmodo.com/5960534/a-highly-scientific-medically-detailed-discussion-of-why-men-get-morning-wood)


It's now understood that morning erections are important, but the problem is mine is getting pretty weak which probably lowered the flexibility of the penile tissue.
Title: Re: Priapus shot
Post by: emasculated on February 20, 2014, 04:43:49 PM
MIKEHAWK: Did they also tell you to do VED after the injections or have you not done VED therapy?
It is correct what you write about superoxide dismutase, there is some data there in connection with Peyronies Disease. I have read about this.
Title: Re: Priapus shot
Post by: MIKEHAWK on February 20, 2014, 04:46:01 PM
VED was done but not much, it was just used to get regular blood flow towards the penis, someone who gets regular night erections won't even need it.
Title: Re: Priapus shot
Post by: james1947 on February 20, 2014, 05:01:47 PM
MIKEHAWK

Where in China you have done the PRP and how much you pay for it?

James
Title: Re: Priapus shot
Post by: emasculated on February 20, 2014, 05:16:04 PM
He's not at liberty to disclose that information. I already PM'd him. ;-)
Title: Re: Priapus shot
Post by: MIKEHAWK on February 20, 2014, 05:44:51 PM
My friend decided to give me the shots for free, but they are planning to charge 150$ per shot when they get enough data on it's effects for Erectile Dysfunction. As penile enlargement doesn't really raise any interest in China, it's not going to do well being marketed as a penile enlarger lol.


Which is actually really expensive if you think about it.

In Canada PRP injected for injuries is only 350$! per injury site, the Priapus shots are 1400$.

the 150$ is the cost of material, and they still earn a 200$ profit per shot in physiotherapy centers.

Those that are performing these penile shots are earning mad money.
Title: Re: Priapus shot
Post by: james1947 on February 20, 2014, 06:40:36 PM
Thanks for the info MIKEHAWK

Somehow confused. What is the difference between Priapus shot and PRP?
incautious says at his first post when he opened the topic:
Quote
10 cc’s of PRP is ready to be injected in 5-6 locations

So the Priapus shot is PRP shot?

An other question:
How long time after the Priapus shot can resume sexual activity?

James
Title: Re: Priapus shot
Post by: incautious on February 20, 2014, 07:10:57 PM
new pics are up. I know its only 10 days but every one seems to really want to see if there is any change. the results are very noticeable.
I tried to capture the original  angle so that you can see the vein pattern and know that this is the same pattern as my before shot pic.
Title: Re: Priapus shot
Post by: incautious on February 20, 2014, 07:15:38 PM
mikehawk, thanks for coming back on. I know that you got some chit about your original post, but you inspired me to go ahead and get this. And you are so right about how much money they are making on this. other that the cost of the centrifuge its all profit. The cost will come down its only a matter of time.
Title: Re: Priapus shot
Post by: MIKEHAWK on February 20, 2014, 07:28:10 PM
Priapus shot is the name they decided to patent, it's like a Burger is a burger, but restaurant franchises can decide to give their burger a different name.

Their Vampire facelift is more impressive though cause that requires a lot of skill to inject properly, you'll have to be knowledgeable with cosmetics.

But yes PRP and Priapus shot is the same thing, but the centrifuge matters, so i do like where Dr. Charles runels is going with this. It offers a place to get quality PRP shots that have hospital grade Centrifuges.


I didn't really care about the criticism anyways, PRP made sense to me because many high profile celebrities are using it. Such as Athletes and even people in show business. if it didn't work and posed a health risk, people wouldn't be doing it.
Title: Re: Priapus shot
Post by: MIKEHAWK on February 20, 2014, 08:48:42 PM
BBC News - Stem cell 'major discovery' claimed (http://www.bbc.co.uk/news/health-25917270)

It also turns out that blood can also be changed into Stem Cells, who would have thought. By shocking blood with acid they manage to turn the blood cells into stem cells.

Blood has an array of abilities to heal the body it seems.

Now a study shows that shocking blood cells with acid could also trigger the transformation into stem cells - this time termed STAP (stimulus-triggered acquisition of pluripotency) cells.

Dr Haruko Obokata, from the Riken Centre for Developmental Biology in Japan, said she was "really surprised" that cells could respond to their environment in this way.

She added: "It's exciting to think about the new possibilities these findings offer us, not only in regenerative medicine, but cancer as well."



I completely support research of blood, it's so interesting.
Title: Re: Priapus shot
Post by: james1947 on February 20, 2014, 10:06:14 PM
Thanks for the answer MIKEHWK.
I am waiting from a clinic in Jakarta to know the price. They answer me that they are doing Priapus shots.

james
Title: Re: Priapus shot
Post by: MIKEHAWK on February 20, 2014, 10:17:53 PM
Directory | Priapus Shot (R) (http://www.priapusshot.com/members/directory/)


Priapus shots is a Patented name and is only available in the United states. I'd be careful if i were you, if they're using that name then they might not care too much about the law because that's copy right. this is a bad thing when it comes to a medical practitioner.
Title: Re: Priapus shot
Post by: james1947 on February 20, 2014, 10:20:48 PM
I know is a patented name, but here in the far east they don't give too much on it.
It may be also that the name will be PRP, I am waiting for they answer an will update the forum

James
Title: Re: Priapus shot
Post by: MattFoley on February 21, 2014, 12:38:54 AM
The P-Shot is definitely a different process than just PRP. For one thing, with regular PRP you don't inject the glan (head). The centrifuge is very specific, along with the blood, calcium chloride is injected as well, and there are multiple shots around the penis.

I'm stuck in a weird place.

I'm not interested in losing my 45% curve. I satisfy the hell out of my girlfriend since I can constantly press on her g-spot because of that bend. On the other hand, if that plaque causing the bend is also causing my venous leakage, then yes, I have to get rid of the plaque.

I don't know.
Title: Re: Priapus shot
Post by: Knight on February 21, 2014, 12:50:23 AM
Are you in any pain Matt?
Title: Re: Priapus shot
Post by: MIKEHAWK on February 21, 2014, 01:24:59 AM
Matt you might have an Issue with the  bulbospongiosus muscle.

Test this out by lift weights, do Squats for 3 months and see if you notice a huge difference in erectile quality.

I'm having an issue with this also, in keeping a firm erection. I notice when lifting weights, doing exercises such as squats, my erections are dramatically different.  those quality erections are short lived, i've probably damaged the bulbospongiosus muscle.
Title: Re: Priapus shot
Post by: Iceman on February 21, 2014, 01:59:31 AM
is this shot available in Australia and is it a viable treatment option??
Title: Re: Priapus shot
Post by: james1947 on February 21, 2014, 02:45:06 AM
Someone from Australia posted at Dec 29, 2013 that he got Priapus shot there.
The post is on:
Penis Enlargement at Thunder's Place (http://www.thundersplace.org/)
www.thundersplace.org/.../so-i-got-the-m-shot-or-priapus-shot-today-2.h...‎
I can't access it because I am in Indonesia  and the "Access is restricted by AMA", the censorship.
Try to access it from Australia.

James
Title: Re: Priapus shot
Post by: MattFoley on February 21, 2014, 04:45:38 AM
Knight, no pain. Thankfully the painful days are behind me. Unless, of course, I start smoking then the pain returns.

Title: Re: Priapus shot
Post by: ifxne on February 21, 2014, 09:11:49 AM
I was told to avoid NSAIDs, Fish Oil and anything that thins the blood 2 weeks before PRP and 4 weeks after PRP. Did you guys change your diet to avoid Omega 3s and Turmeric etc?
Title: Re: Priapus shot
Post by: incautious on February 21, 2014, 09:52:53 AM
no fish oil and no aspirin that was it for me
Title: Re: Priapus shot
Post by: incautious on February 26, 2014, 07:53:36 AM
2 week photo's are posted in surgery child boards
Title: Re: Priapus shot
Post by: james1947 on March 04, 2014, 10:48:53 PM
incautious

Sorry if I am pushing you, how are you after three weeks?
Have something new?

James
Title: Re: Priapus shot
Post by: incautious on March 05, 2014, 02:32:56 PM
Not much new to report. Curvature is still better than before, and the increase in girth( about 1/2 circumference) is still there. Can't really tell if there is any major improvement in Erectile Dysfunction yet but it seems promising at this point. Most improvements are apparent in 6-12 week range according to Runnels site, so I will wait and see. I've had absolutely no adverse reactions which is expected with using one's own blood, but there was always some concern in the back of my mind that something can happen. A couple of other members here are going forward with this procedure, so hopefully we will have our own set of clinical data so to speak about the effectiveness of this procedure. I am very diligent with pumping so that's one variable that will not effect the outcome of my procedure. 
Title: Re: Priapus shot
Post by: james1947 on March 05, 2014, 04:34:51 PM
Thanks incautious

For me, your statement after three weeks:
Quote
Curvature is still better than before, and the increase in girth( about 1/2 circumference) is still there.
is very encouraging.
I am still searching here around my area who can make Priapus or PRP shots. I found just stem cells treatment and I will not go for that.

James
Title: Re: Priapus shot
Post by: NDfan on March 16, 2014, 07:18:02 PM
This looks pretty awesome. Like everyone else, hoping for more success stories before dropping a lot of money.
Title: Re: Priapus shot
Post by: incautious on March 17, 2014, 07:51:00 AM
ND fan the price seems to be dropping in some areas to around $1400. Quite honestly, for me It was money well spent.
Title: Re: Priapus shot
Post by: james1947 on March 17, 2014, 04:15:30 PM
I will get it $275 including everything for one session. :)
But should understand that here where I am living everything is cheaper, can have local breakfast for $0.50 :)

James
Title: Re: Priapus shot
Post by: IhatePD on March 17, 2014, 05:54:33 PM
James1947, my apoligies in advance but in what country are you living? I don't recognize your flag.

I am hoping the shot works for you. I may try it myself but I want to meet with my urologist in April first and measure what progress I have made in the last five months.
Title: Re: Priapus shot
Post by: danbon on March 17, 2014, 06:58:36 PM
James1947, best of lucks and please report back with the results. I'm sure I'm not the only one waiting to see the results. I have pretty much decided to go for it anyway. I mean, I have a 90 degree bent,severe Erectile Dysfunction, barely feel anything, what do I have to lose? absolutely nothing, so I'm going for it. The cost is somewhat high where I live though almost $2000.00 I may try to negotiate or even see if insurance can help. The only thing that may hold me back is if the doctor judges not convenient to do it at the moment. I was diagnosed with a ventral calcified plaque back in in november. I took pentox for 2 months,but I'm not sure if it has worked or not because I know is a very short period of time. I will be very happy though if the calcification is gone, I do notice the plaque not as hard as before so it's possible that the calcification is gone. As soon as James reports I will go for it and will give my 2 cents with my experience.I'm happy to see that this treatment may help improve our condition.
Title: Re: Priapus shot
Post by: james1947 on March 17, 2014, 07:22:34 PM
IhatePD
The flag is the Romanian flag, but I am living in south east Asia.

Danbon
As I understand from the forum and also from making a very comprehensive Internet search that PRP and Priapus shots are the same.
It is used long time already for cosmetic purposes on the face, breast and all the body parts that ladies are interested to lock more young.
I read on our forum that the Priapus shot is $1,400 in the US.
Also PRP if I am not wrong $350.

James
Title: Re: Priapus shot
Post by: incautious on March 18, 2014, 08:18:37 AM
james you are right, priapus shot is just a trade name for prp. However most doctors doing prp never imagined injecting one's manhood. That's where Dr. Runnels came in.
Title: Re: Priapus shot
Post by: restore on March 18, 2014, 10:53:16 AM
This sounds like it might take the place of pentox as the first line of defense right after an injury to the penis.
Title: Re: Priapus shot
Post by: emasculated on March 18, 2014, 01:08:36 PM
Sorry, but I don't see much of any difference in these before / after pics. Am I the only one here who thinks this is mostly a powerful placebo effect? What makes me especially skeptical is the constant pumping before and after. How can you tell that any minor effect after the stuff was reabsorbed by the body is due to the treatment or just the pumping?
I also wonder about the question I asked earlier about ultrasound checkup. Then someone else here posted they don't even have an ultrasound where they do the treatment. Wouldn't that be a good idea to have ultrasound directed injection to at least get somewhere close to the scar tissue and then a month or so later check whether there has been any change to it? At the moment I don't see more than a powerful placebo effect. Which is understandable when someone injects you in this particular body part there is huge expectation from the patient.
Title: Re: Priapus shot
Post by: Skjaldborg on March 18, 2014, 01:55:14 PM
I am cautiously optimistic that this will become a viable treatment. However, Emasculated is correct regarding pre- and post-treatment ultrasounds; removal or shrinkage of scar tissue is the only way "cure" Peyronie's. Ultrasounds should be done before and after to get a good idea of what is happening with the scar tissue AND to ensure that the shots themselves aren't causing new scar growth.

Pumping with the VED will temporarily improve girth, so I am more interested in long term follow ups and improvement rather than immediate size increases. I think data, not anecdotes, will reveal if this is an effective treatment in the long run.

Not trying to be a wet blanket here, I want this to work too so I can use it, but I want science to do its job and show the data before I believe in it.

Good luck to everyone trying this and please keep us posted of your progress.

-Skjald
Title: Re: Priapus shot
Post by: MIKEHAWK on March 18, 2014, 04:31:06 PM
Well it's kinda odd that this has given people a "placebo effect" while everything else that people have tried so far didn't.

So what is so different about the Priapus shot compared to the drugs taken orally, or all the other Anti-inflammatory steroids that was injected previously before the shot?

lol i don't get why people got this so call placebo effect now and didn't get it before.

rellisacct has used PRP before i did at the Wake Forest clinic, even though it's not the Priapus shot it is still the same concept. He has noted that he couldn't get an erection before but now he can after the PRP treatment. So there are a lot of people on the forum with success when it came to prp.

Re: Promising treatment
« Reply #19 on: September 30, 2013, 10:05:23 AM »
ReplyQuote
Mike,

I'm not knocking what you're saying by any stretch of the imagination. Before injections, I couldn't even get an erection but now I can (albeit very weak). Additionally, I got my PRP injections performed by the lead researcher in penile tissue regeneration at Wake Forest University, so yes he was using the top of the line centrifuge. I have personallly seen my tissue regenerate from the point of there being huge indentions with hourglassing to looking somewhat straight and normal. I have been a proponent of people who have localized scarring to give it a try if they have the financial means to do it. This could very well lead to good recovery for those individuals. But a cure, this is not.

I am very interested in your Asian trip though. Please let us know how it goes and if you see some good results. I can't continue dropping $600 per individual shot when my penis has such a long ways to go.



Re: Promising treatment
« Reply #21 on: September 30, 2013, 01:47:22 PM »
ReplyQuote
Hey Matt,

Dr. Terlecki has been charging me $575 per injection and have received two injections each time I have gone, totalling $1,150. As we say down South, that ain't cheap. I feel that he is reluctant to give me more than 2 injections each time I go for some reason. I truly believe that with enough injections all throughout the penis, there could be some significant improvement, probably back to 75-80% of normal. But as I've said in previous posts, there is such a long ways to go and it could end up costing me well over $15,000 total. MIKEHAWK might be on the right track when he says that he is looking to Asia for further injections.
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Title: Re: Priapus shot
Post by: james1947 on March 18, 2014, 04:52:41 PM
MIKEHAWK I am with you on that.
Based on the amazing incautious improvements it worth $275 to try.
Even if it will not make nothing, I will make it again.
What other solution I have?
I got back 1/2" using VED, Pentox, low dose Cialis and Ubiquinol in the first month of treatment, now after 2 years no any new improvement.
Stopped Pentox because of side effects, stopped Ubiquinol because can't afford it financially.
Still missing 2" length, almost half of the girth and have Erectile Dysfunction

James
Title: Re: Priapus shot
Post by: Nemo on March 18, 2014, 04:58:24 PM
I would really like to get on the bandwagon here, but I have yet to see one picture that shows any perceptible change in anything other than swelling.  Given that you're injecting the penis with fluid, I would be shocked if I didn't see swelling - but I'm not seeing any change in curvature whatsoever.  People are saying they're having amazing results, but their before-and-after pictures looks, for all intents and purposes, identical to me. If I see a pic with even ten-degrees straightening, I'd be impressed. 

What am I missing here? 

Nemo
Title: Re: Priapus shot
Post by: james1947 on March 18, 2014, 05:10:42 PM
Quote
Ok so I got the pirapus shot on 2/11/14
The above quote is from incautious first post.
Quote
Curvature is still better than before, and the increase in girth( about 1/2 circumference) is still there
From incautious March 06, 2014, 02:32:56 AM
In my opinion, if it is just swelling will not be there after almost a month.
Quote
Most improvements are apparent in 6-12 week range according to Runnels site
So dear skeptical's, please wait and see what incautious will report at the end of march and mid May.
For me, incautious actual results are enough to give it a try :)

James
Title: Re: Priapus shot
Post by: loyalty on March 18, 2014, 05:50:00 PM
I read with interest the posts by Relliacct regarding his experience with PRP injections by Dr. Terlecki at Wake Forest Univ.  Based on his results, I then had a single PRP injection by Dr. Terlecki in December 2013, with a modest but significant improvement, indeed probably a greater improvement than I had with the Xiaflex injections. I plan to have additional injections, as Relliacct did and expect further improvements.

I am puzzled by the post injection instructions given to the members here who recently had the Priapus injections regarding the use of VED.  Immediately after my PRP injection, Dr. Terlecki specifically warned me about "washout".  He stated that erections are to be discouraged for at least a week after the injection to limit the washout of the PRP that would come from the increased blood flow from an erection.  I would assume that a VED session would washout the PRP at least as much and perhaps more than an erection.
Title: Re: Priapus shot
Post by: MIKEHAWK on March 18, 2014, 06:37:38 PM
Loyalty, maybe you should contact Doctor Runels himself regarding his procedure.

Priapus Shot (R) | The Official Website. Description of how the penis can be rejuvenated and enlarged using platelet- derived growth factors (or Platelet-Rich Plasma). (http://priapusshot.com/)


Nemo, what is there to lose in trying? most of the guys here probably dropped thousands on prescription medications over the long run.

1400$ isn't really that much, i can easily save up that much money in a month if i stopped partying or going to clubs. If i had given up on my luxuries and privileges, the money that the shot would have cost me would equal to nothing compare to the benefits.

also there hasn't been anyone with a really severe curvature that has gotten the injection yet.
Title: Re: Priapus shot
Post by: loyalty on March 18, 2014, 07:50:13 PM
MIKEHAWK. Why would I want to contact Dr. Runels regarding his rationale for recommending VED after PRP? Dr. Terlecki is one of the top Urologists in the country, while Dr. Runels is not even a Urologist (his specialty is Internal Medicine). If a top Urologist tells me erections are to be discouraged after PRP injection to avoid "washout" (his exact words), but an Internist tells his patients to use a VED after Priapus, I know which I advice I would follow. I merely put my experience with PRP out there so that those who are planning to get the Priapus injections have some additional information that might allow them to get more benefit from the PRP by not using the VED for the first week  If anyone should contact Dr. Runels about his rationale, it is you and especially anyone else who plans to receive this treatment.
Title: Re: Priapus shot
Post by: james1947 on March 18, 2014, 07:58:57 PM
Any information and discussions regarding Priapus/PRP injections are much welcomed as we can learn more and more regarding this new treatment.
Please all the forum members that had already the above treatment give us much input as possible.
I am making a compilation with names, dates and posted results, if possible the doctors name also.

James
Title: Re: Priapus shot
Post by: Mentos on March 18, 2014, 08:11:03 PM
Interesting point that Loyalty brings up regarding use of VED or not.

I used and have had improvements. My thinking was that as the VED stretched out my penis the PRP would model the extended length I was inducing.. But I have no idea whats right or wrong. i never heard of wash out really.

Something we need a defintete answer to tho.

Thanks for the input loyalty and Im glad you have had positive results also.
Title: Re: Priapus shot
Post by: MIKEHAWK on March 18, 2014, 09:11:59 PM
loyalty, you are the one wondering about this "washout" effect that VED causes and didn't even bother explaining to us what it is. So it made it sound like you cared about what Dr.Runel is doing, personally i don't buy into medical professionals saying that there is only "ONE" way of doing things.

Also if what you say is true, shouldn't PRP not work when injected into muscle tissue? if muscle tissue doesn't get constant blood flow Necrosis will follow right after. So can you please explain to me how can platelet rich plasma speed up recovery of soft tissue when there is constant flood flow? by the logic you had given PRP should not work with any body part. Necrosis is tissue death by the way.

Just because someone is assumed to be the top urologist in the country doesn't mean he is always right. History proves this time and time again, just go look up any well known scientist in this world and they have all been proven wrong at least once.

For decades people believed that Stem Cells cannot be created from mature cells and recently all that research has been proven wrong. By the way they did not just get proven wrong but in a Japanese Lab, and the labs in Japan are way weaker than the ones in the west.

Induced pluripotent stem cell - Wikipedia, the free encyclopedia (http://en.wikipedia.org/wiki/Induced_pluripotent_stem_cell)


Also one last thing, YOU GET ERECTIONS WHEN YOU GO TO SLEEP, people who don't get enough sleep lose length and girth because their penis lose flexibility. If what you say is true than you shouldn't go to bed the first night that you get your PRP injection.


The Science of 'Morning Wood' - YouTube (http://www.youtube.com/watch?v=D1et5NgT6bQ)


Yes, lets avoid sleeping when we get our PRP shots cause it's completely normal to get an erection during your sleep. You won't be able to stop the erection otherwise.

So this whole "washout" thing your talking about is non-sense when it's going to happen on the same day anyways. whether you use your VED or not, you're going to have an erection right in the middle of your sleep.

By the way the Science behind Sleep Erections are fairly new, I don't blame your top of the country Urologist for not knowing about this.


Although i'm pretty sure any humble doctor wouldn't tell any patient that there is only "one" way of doing things otherwise when new research comes out he would end up looking like a fool or a ego maniac.
Title: Re: Priapus shot
Post by: RoyHobbs on March 18, 2014, 09:46:32 PM
Merely trying to stay objective here but I think Loyalty, if you read previous posts, is saying that VED increases likelihood of "washout." My educated guess is that "washout" means that the shot is being washed away from the intended site of treatment with increased blood flow. Like a dam being opened and the current growing stronger.

Title: Re: Priapus shot
Post by: loyalty on March 18, 2014, 09:48:26 PM
PRP is used in Orthopedics and Sports Medicine for certain chronic injuries like Achilles tendinitis, rotator cuff syndrome, tennis elbow, etc.  in which it is injected into the area adjacent to the damaged tendon.  It is not injected into a muscle.  The post procedure instructions given after a PRP injection for a tendinitis / tendinopathy problem, inform the patient to apply ice to the treated area on and off for 2 days, then resume regular activities after 2 days, and physical therapy usually begins 1 month after the injection.  I know that after PRP injection for Achilles tendinitis a Post Op boot is usually prescribed for the first few days to limit movement of the ankle.  Therefore it would appear that a concern about "washout" is also being addressed by these instructions, as ice, limitations of usual activities, joint immobilization with a post op boot, and not beginning PT for 1 month, all serve to limit blood flow to the PRP treated area and hence limit washout.

Regarding nocturnal erections, they are of course spontaneous as differentiated from induced erections.  Nocturnal erections can be inhibited pharmacologically as is done after Nesbitt and excision and grafting operations.  I asked Dr. Terlecki if that would be helpful after PRP but he did not recommend it.  His instruction was that erections are to be discouraged which meant induced erections, like during sex.  A VED erection would obviously also be an induced erection.
Title: Re: Priapus shot
Post by: MIKEHAWK on March 18, 2014, 09:55:14 PM
Sorry but you are wrong. PRP is most popular among Muscle Tissue,Cartilage,nerves, and skin injuries.  The guy that pioneered the PRP treatment, He himself and many athletes claimed that they didn't notice any difference when it comes to injecting near tendon.

Most noticeable difference came from muscle tissue injections, This is words that came from athletes themselves, even Dr.KO himself didn't understand why it had no affect on tendons.

Title: Re: Priapus shot
Post by: emasculated on March 18, 2014, 10:01:15 PM
Why don't you guys get together and produce an infomercial for PRP? Your posts are more sounding like spam than anything else. How are these anecdotes informative? Show us studies etc..
Title: Re: Priapus shot
Post by: MIKEHAWK on March 18, 2014, 10:02:31 PM
Just replying to your comments, if you ask a question than you should expect a reply should you not?

By the way loyalty, i am an athlete and i should know that prolotherapy works way better than PRP injections when it's about tendon tears ;)

Prolotherapy - Wikipedia, the free encyclopedia (http://en.wikipedia.org/wiki/Prolotherapy)
Title: Re: Priapus shot
Post by: Nemo on March 18, 2014, 10:02:50 PM


Nemo, what is there to lose in trying?

also there hasn't been anyone with a really severe curvature that has gotten the injection yet.

As to whether $1400 is considered "a lot to lose" I'll let each decide for himself.  But to your point that no one with a really severe curve has gotten the injection yet - I would contend a less severe curve would be easier to "fix" being as the plaque causing it would be less severe.  I'm not looking for a 90-degree curve reduced to 10-degrees - I'd like to see even a 30-degree reduced to 10-degrees because of Priapus.  As yet, I haven't seen anything like that. 

Again, I would really like to have hope for this, but until I see some real results other than swelling, I'll let you brave souls do the experimenting. I consider my Peyronies Disease-stricken but usable penis "a lot to lose." 

Nemo
Title: Re: Priapus shot
Post by: RoyHobbs on March 18, 2014, 10:07:28 PM
Nemo, wondering the same. I have an 84 degree curve and about to embark on the xiaflex journey. I read through some old posts and saw some decrease but nothing major. That's my biggest concern. Would love to hear major decrease in curvature due to priapus shots.
Title: Re: Priapus shot
Post by: MIKEHAWK on March 18, 2014, 10:09:24 PM
well Nemo, in the end you'll still lose thousands popping pills, just keep track on how much you have spent on your condition already. I don't really see the difference, in the end it's all the same, whether it's money spent on pills or this.
Title: Re: Priapus shot
Post by: james1947 on March 18, 2014, 10:13:48 PM
Dear Friends

It will be more constructive to understand the subject of Pripus/PRP injection and the results of our forum members than endless trials to show that someone else is wrong.

James
Title: Re: Priapus shot
Post by: james1947 on March 18, 2014, 11:58:30 PM
MIKEHAWK

Can you post the date you have made the first and other PRP shots?

James
Title: Re: Priapus shot
Post by: james1947 on March 19, 2014, 12:42:53 AM
ifxne

Can you tell us when you had the Priapus shots (or PRP) and the results?

James
Title: Re: Priapus shot
Post by: james1947 on March 19, 2014, 12:49:27 AM
Loyalty

Can you give us some more details regarding your improvements?

James
Title: Re: Priapus shot
Post by: james1947 on March 19, 2014, 01:09:24 AM
To all members that got Priapus shots/PRP injections.

Please keep us posted on the results!!!

James
Title: Re: Priapus shot
Post by: NeoV on March 19, 2014, 02:49:19 AM
PRP Injections (Priapus Shots) are definitely the most exciting thing I can think of right now for Peyronies.

I have recently found that they are available in Tokyo.
Title: Re: Priapus shot
Post by: james1947 on March 19, 2014, 03:48:26 AM
Good luck Neo :)
Tell us the price also (not in Yen please) :)

James
Title: Re: Priapus shot
Post by: incautious on March 19, 2014, 08:48:51 AM
Wow, lot's of great comments/opinions. A tip of the hat about keeping things civil. All I can say from my perspective is, that there is an improvement in all aspects curvature, girth ,length, and Erectile Dysfunction. I will post pics next week which is 6 weeks, and you will have to judge for yourselves.
 A tip of the hat to Mikehawk, I know you get a lot of chit, but you had the guts to do this first.
James regarding you loss of length, did you try traction. That's where I regained over an inch. I like you stalled in my improvement after 6 months which is why I decided to get the shot. Also if you are over 45 you should get you T levels checked as this will contribute to shrinkage if it is very low.
Title: Re: Priapus shot
Post by: james1947 on March 19, 2014, 04:50:19 PM
incautious

I tried traction, was not able to use not the regular and not the cup.
I am using VED, the improvements were in the first two months, regained 1/2" so now I am on 5" with half of the original girth and 2" shorter. Sharp left bent close to the base, upward banana shape and Erectile Dysfunction. My main problem is that I have done nothing for the first three years.
Last time I checked the T levels it was much higher than average for my age (66), I will check again before that PRP because I can get it also in the same place.

James
Title: Re: Priapus shot
Post by: james1947 on March 19, 2014, 05:20:49 PM
I am moving the topic to, Developmental Drugs & Treatments.
In my opinion Priapus/PRP is becoming a main stream treatment.

James   
Title: Re: Priapus shot
Post by: emasculated on March 19, 2014, 07:08:49 PM
I found two studies where PRP did not fare so well:

Platelet-rich plasma injection for chronic Achilles ten... [JAMA. 2010] - PubMed - NCBI (http://www.ncbi.nlm.nih.gov/pubmed/20068208)

Platelet-Rich Plasma Injections in the Treatment of Chronic Rotator Cuff Tendinopathy (http://ajs.sagepub.com/content/early/2013/07/26/0363546513496542.abstract)

Quote
At 1-year follow-up, a PRP injection was found to be no more effective in improving quality of life, pain, disability, and shoulder range of motion than placebo in patients with chronic RCT who were treated with an exercise program.

Quote
Among patients with chronic Achilles tendinopathy who were treated with eccentric exercises, a PRP injection compared with a saline injection did not result in greater improvement in pain and activity.

Randomized trials are always the best.
Title: Re: Priapus shot
Post by: james1947 on March 19, 2014, 07:16:25 PM
Yes emasculated, no one made a randomized, double blind study on the effectiveness of PRP for Peyronies.
This is the reason why we are making our own simple study so our members and guests can decide themselves if it is good for them or not.

James
Title: Re: Priapus shot
Post by: james1947 on March 21, 2014, 05:48:18 AM
I have booked my PRP for April 4. :)
Will report how it was

James
Title: Re: Priapus shot
Post by: Nemo on March 21, 2014, 09:29:54 AM
James, best of luck!  Will be especially helpful to hear if you feel that any difference is detected in the actual plaques after the procedure - their size, hardness, "feel," etc.

Best,
Nemo
Title: Re: Priapus shot
Post by: incautious on March 21, 2014, 09:56:56 AM
good luck James. Do NOT pump the day before as you will want to be in as close to your natural state as possible. This way the injections are more ingrained in the tissue with  little chance of being diluted with any fluids that may be built up from pumping.
Title: Re: Priapus shot
Post by: IhatePD on March 21, 2014, 11:56:22 AM
Good luck Janes, I am hoping for the best for you!
Title: Re: Priapus shot
Post by: Mentos on March 21, 2014, 12:23:17 PM
Great to hear James!!! :)

Are you going to use VED after or not?

Your going to be happy you got PRP.
Title: Re: Priapus shot
Post by: anonpdacct on March 21, 2014, 12:57:16 PM
James,

Good luck man.  Wishing you tremendous success and sending good thoughts your way.

Anon
Title: Re: Priapus shot
Post by: MattFoley on March 21, 2014, 03:44:30 PM
Right on, James, welcome to the club!!  ;)

Title: Re: Priapus shot
Post by: james1947 on March 21, 2014, 04:00:17 PM
Thanks for all the wishes. ;)
I hope that it will help in my age (66) also. :)

James
Title: Re: Priapus shot
Post by: Mentos on March 21, 2014, 07:32:00 PM
James, It will help.
Title: Re: Priapus shot
Post by: Knight on March 21, 2014, 09:47:10 PM
All the best to you James! You deserve something good and hopefully this will be your miracle. I'm very grateful for all of you that are willing to step up and be pioneers in finding solutions to our common and most unfortunate dilemma. This treatment looks hopeful, I just hope it truly is a solution and doesn't turn out to be a cruel temporary mask.
Title: Re: Priapus shot
Post by: james1947 on March 22, 2014, 12:23:43 AM
Knight

I hope also that will not be:
Quote
a cruel temporary mask

But if yes, I will do it again and again and again if it will help for a while ;D

James
Title: Re: Priapus shot
Post by: NDfan on March 23, 2014, 11:12:05 AM
Again and again meaning $1400 out of pocket every time?
Title: Re: Priapus shot
Post by: james1947 on March 23, 2014, 03:47:57 PM
No NDfan, $275 again and again and again :)
In any case, for cosmetic treatments with PRP they are giving guaranty of two years.

James
Title: Re: Priapus shot
Post by: incautious on March 24, 2014, 08:08:25 AM
6 week pics are up. As for weather this is a a temporary or permanent cure/fix, I believe if one continues to use the VED or traction device the results will be permanent. A small price to pay to not have this condition return. Remember that you only have to use the VED 20min a day according to Dr Runnels.
Title: Re: Priapus shot
Post by: Japanfour on March 25, 2014, 12:21:05 AM
Would you say you feel like your condition is even better than pre-peyronies? I'm curious to see how this will effect people with the hourglass problem or major dents. It could save them from needing implant surgery...which would be pretty amazing.
Title: Re: Priapus shot
Post by: incautious on March 25, 2014, 07:33:35 AM
Well I wouldn't say that I was better that my  pre peyronies except for the increase in girth. I did not have Erectile Dysfunction back then and I'm still not at my original length.  My Erectile Dysfunction is getting way better. Was able to have relations with the wife for over an hour last week and stayed firm the whole time. I'm 59 so I don't know if I will ever get to the point where I was in my 30's, but I would get the shot before considering ANY type of surgery. There is always a risk in surgery, with PRP the risk is almost zero.
Title: Re: Priapus shot
Post by: james1947 on March 25, 2014, 06:17:08 PM
incautious

Quote
Was able to have relations with the wife for over an hour last week and stayed firm the whole time.
It is really significant!
Hope my improvements will be also in this scale :)

James
Title: Re: Priapus shot
Post by: Japanfour on March 25, 2014, 09:56:45 PM
Incautious, I know you initially had swelling...but you're saying that as of now your girth is still more than it was pre-peyronies? If so that's pretty amazing.

Also, is anyone else planning on getting this that's younger? I'm in my 20's, so it would be interesting to see if age plays any part in this.
Title: Re: Priapus shot
Post by: NDfan on March 25, 2014, 10:50:23 PM
I'm 30 and watching this closely to see what happens with James. My only major obstacle would be if this really costs 1400 and health insurance doesn't cover it. What I don't understand is - what happens to the plaque? 
Title: Re: Priapus shot
Post by: Nemo on March 25, 2014, 11:17:02 PM
Yes, incautious, what's the status of your plaque(s) - are they palpable? Any change in size/texture/feel since the shots?

Nemo
Title: Re: Priapus shot
Post by: incautious on March 26, 2014, 07:39:26 AM
I cannot feel any plaque at this time. It used to feel like a hard lump but it is not there now. As for girth, It's pretty amazing, it's at least 1/2" more in circumference than when when I was in my thirty's . As for you younger guys, it's hard to say how well this will work on you. A lot of issues with us older guys are age related, and this ,with testosterone replacement, can help to reverse the aging process. I guess we will have to wait for mentos, as i believe that he is younger. But I have no doubt that if you are in your 20's or 30's this will improve Erectile Dysfunction and girth, and should help in reducing curvature. And James one thing that this does is to increase the intensity of your climax. I wasn't kidding when I said that I saw start.
Title: Re: Priapus shot
Post by: sectorsurfer on March 26, 2014, 04:07:27 PM
Does anyone know a urologist in the San Francisco Bay Area or even in SoCal that does the PRP injections?  I notice that other specialists, i.e., sports medicine orthopedists, etc., are using this protocol; however, I cannot find any urologists at least not in California.
Title: Re: Priapus shot
Post by: Mentos on March 26, 2014, 06:23:24 PM
Sectorsurfer. yes I know a couple. Msg me.
Title: Re: Priapus shot
Post by: Nemo on March 26, 2014, 06:23:47 PM
incautious, I want to be very precise and clear for the sake of evaluating this as a treatment.  Are you saying that before the shots you had a plaque that was palpable when flaccid, and that after the shots, that plaque is not palpable? 

Nemo
Title: Re: Priapus shot
Post by: james1947 on March 26, 2014, 08:02:30 PM
Regarding Priapus shots providers see the link bellow:
Directory | Priapus Shot (R) (http://www.priapusshot.com/members/directory/)

About prices:
Quote
Dr. Terlecki has been charging me $575 per injection
Quote
In Canada PRP injected for injuries is only 350$! per injury site, the Priapus shots are 1400$.
the 150$ is the cost of material, and they still earn a 200$ profit per shot in physiotherapy centers.

Regarding young people, my opinion is that PRP may work even better than for old people because they body capability to hill is better.
(Sorry about my English, I don't know if I wrote correct "hill" or should be "heal")

incautious
Quote
....increase the intensity of your climax. I wasn't kidding when I said that I saw stars
I hope very much that it will work for e also in this subject because my climax is much less intense that before Peyronies.

James
Title: Re: Priapus shot
Post by: incautious on March 27, 2014, 07:21:05 AM
nemo that is correct, that while flaccid I can longer feel the plaque lump that was there before the shot. I june I will have my next check with the uro, he will be able to confirm weather is it all gone or not. Obviously I still have some curvature and indentation, what is the cause of that, I can only guess. But I am pleased with the progress I've made in the last 6 weeks
Title: Re: Priapus shot
Post by: NeoV on March 27, 2014, 08:54:01 AM
That is simply amazing news.

In Tokyo it's about 500 dollars from what I can tell.
I'm considering going abroad to get one but I can't yet tell if it's worth it.
If I visit the US this summer I'd live to get one.
Title: Re: Priapus shot
Post by: Nemo on March 27, 2014, 09:57:57 AM
incautious, if there is curvature and indentation, then there IS a plaque present, but the fact that you can no longer feel it after the shot is very intriguing, and reason to hope.  It would simply be miraculous if these shots resulted in a complete disappearance of damaged tissue and replacement with good tissue, but having no palpable plaque is certainly a good sign and a step in the right direction.  Please keep us posted on your progress. 

I am somewhat put in mind of the experience many of us had with DMSO experiments a few years ago - the so-called "Thacker's Formula."  Many, myself included, noticed better erections, fuller flaccid hang, and softer feeling tissue - some even noted they felt their plaque was breaking apart.  However, no one ever actually realized an improvement in curvature.  At the end of the day, I came away with the belief that you can "tenderize" and swell the penis with fluid, etc., and feel like you're making a gain, but because the plaque occupies tissue like concrete infused into a wire mesh, replacing damaged tissue with good tissue still eludes us. 

Nemo 
Title: Re: Priapus shot
Post by: incautious on March 27, 2014, 11:25:49 AM
nemo I agree 100% in what you are saying. But I for one am very happy where things are right now. Don't forget that prp is supposed to activate stem cells, if it truly does that, then theoretically it can fully heal damaged or injured body parts over time.   I've said that I will most likely use a VED and traction forever as a means of keeping peyronies at bay or from reoccurring.  If things stay right where they are now then I look at this as a success regardless of what caused the improvement. Hopefully we will have our own real data base of peyronies sufferers here who will be able to document their experiences with the p shot. Then and only then we we be able to say for certain about the effectiveness of this procedure.   
Title: Re: Priapus shot
Post by: james1947 on March 28, 2014, 06:33:15 PM
NeoV

Why to get the PRP in the US in the summer if in Japan you can get it now and is $500?

James
Title: Re: Priapus shot
Post by: NeoV on March 31, 2014, 04:35:29 AM
The Uro's here want to use PRP shots with fat cells and shockwave therapy. I don't think I want any of that, and I don't really understand it.
They are doing it as a way to increase the size of your penis.
I'm not sure if anyone does plain PRP injection therapy :(

This is all quite frustrating. I don't think Japan is the place to do ANY medical procedure to be honest. Doctors here all tell me that Japan simply lags behind other countries, I need to figure out which doc to go to in the US and get this done this year.. Can we find any consensus here on the forums for who to go to ? And how therapies and prices differ??

James , any chance we could list the therapy details and urologists used along with the comments in the forum trials thread?
Title: Re: Priapus shot
Post by: james1947 on March 31, 2014, 06:22:39 PM
NeoV, I had made the topic bellow exactly for what you have asked.
PRIAPUS/PRP Injections Trial (forum) - Peyronies Society Forums (http://www.peyroniesforum.net/index.php/topic,4788.0.html)

James
Title: Re: Priapus shot
Post by: MIKEHAWK on April 01, 2014, 03:22:34 AM
NeoV, i don't believe that's true, Stem Cell Breast enlargement is pioneered in Japan and it's proven to be successful and later brought to America. the problem with Japan is that they are cheap with their Facility, but for something as simple as PRP injections i don't think Japan would be a issue.

Japan only has problems with scientific research because of the cheap facilities they have to work with.

Chef Chris, you should get your shots in before the inflammation process ends.
Title: Re: Priapus shot
Post by: NeoV on April 01, 2014, 04:11:42 AM
Japan has PRP injections, but they don`t do it stand alone, they use shockwave therapy and fat cell injections along with it. They have a lot of package things like that, this one is called the "magnum 1000". Its for enlargement. Japan has a lot of gimmicky stuff like that, it's offered at a clinic that is all about penis enlargement, with silly advertisements all over it. They also offer Peyronie`s surgery, and have cartoony pictures showing how it works with almost no real details. Its advertised like its a cure all.

I agree with you on the problem with their facilities. A lot of advanced stuff exists here, but it's not accessible.
Major hospitals including the one that specializes in Peyronies don't use PRP at all for any kind of Erectile Dysfunction. That was the same hospital that told me that ultrasounds were pointless. The uro was 30 years old and had no experience with Peyronies, he could barely comprehend that I had edema in my penis nor did he know what a Lymphocele was. My Japanese is perfect, so that isn't the problem. I've moved on to clinics, because for some reason Japan's clinics offer more treatments than major hospitals. Health insurance is dirt cheap here, so large hospitals are reserved for minor issues.

I'm still in the process of making phone calls and asking if I can get stand-alone PRP injections, but I'm a bit afraid I'll get worse service since they do it just as a part of a fat injection enlargement scheme. I'm a bit more optimistic of getting one done in the US when I visit home, maybe even with my father who suffers from the disease as well.

Title: Re: Priapus shot
Post by: Norm on April 01, 2014, 09:07:44 AM
Neo,
I understand that things are different in your world, but I am wondering. Have you actually spoken to one of the doctors who offer these packages? Remember that you are in charge. You are the customer. That much has to be the same. The doctor works for you. If you want only the PRP injection, then he is obliged to give you that or send you away. I would speak with them until you find one that will listen and give you only what you want. There is such a doctor. You just have to be assertive and find him. Good luck.
Norm
Title: Re: Priapus shot
Post by: james1947 on April 01, 2014, 05:25:17 PM
NeoV

I have done what Norm advising you to do and found one after four weeks and 12 emails.

James
Title: Re: Priapus shot
Post by: Chef Chris on April 02, 2014, 03:43:47 AM
Maybe I found a doctor here in Sweden ho can give me the shots. She said that she have a lot of experience in prp this procedure. She said that there are studies in the subject that she will read up on then get back to me. She said that the cost should be around 500 dollar (5000sek)
I am going to See my urology doctor tomorrow after Mondays insistent but the swelling is going down I am praying that there will be no more damage. 
Title: Re: Priapus shot
Post by: Chef Chris on April 02, 2014, 03:48:11 AM
I mean she have a lot of experience in prp but not in the penis that is what she will read up on it
and I meant that I am going to the urology doctor after this Mondays incident. My English is not that great and nether is the auto spelling.
Title: Re: Priapus shot
Post by: Chef Chris on April 02, 2014, 03:50:23 AM
Ps I ordered the calis online I hope it will work thanks for the tips James and skald.
Title: Re: Priapus shot
Post by: james1947 on April 04, 2014, 05:04:47 PM
We got off topic for a few posts, so let's go back.
I had yesterday the PRP shots.
Didn't posted yesterday as driving there is more that 3 hours, waiting, injections and driving back more that 3 hours I was very tired.
The doctor is not urologists. She is a doctor specialized on anti aging treatment with master degree, 3 years experience with PRP shots.
Very pleasant and professional. She invested time to study about Peyronies and got good knowledge.

She told me that were no clinical trials made so she can't promise the results I am expecting , I told her that on our forum the results are very positive. She was also interested to know if we have people that had the second or third shots already, I told her that not yet. Promised to update her. I will give her also the link to our forum.
Many foreigner customers around for anti aging treatment. The PRP can be repeated every two months.

The blood was taken from my arm, numbing cream applied to my penis and waited in the treatment room that the machine will make the PRP. After 20 minutes the PRP was ready.
I got one injection into my plaque close to the base on the left side. I felt the injection, the numbing cream didn't worked well close to the base. She injected directly into the plaque (as I told her to do if can).
I was surprised because the urologist told me that my plaques are calcified and strong like bone.
My conclusion is that the 18 months Pentox, Cialis and VED softened the plaque. Otherwise, don't understand how can inject in calcified plaque.
Three more injections into the chord like plaque that runs on the upper side from the base to the glans. Close to the base I felt the injection, mid shaft and up felt very little bit. Also those three injections were onto the plaque.
The pain gone almost immediately when the needle come out.
I had to say again that she is very professional. No bruising so she didn't hit any blood vessels (imagine bruising on someone face after PRP :() Can see just small red spots where the needle gone in.

As for results in this moment, I just can say that in general my flaccid is much more soft. I didn't take yesterday night the 5 mg Cialis so I didn't had an erection yet. I will take tonight.
I will start with VED tomorrow morning.
That's all for now.

James
Title: Re: Priapus shot
Post by: james1947 on April 04, 2014, 05:13:02 PM
Can get an update regarding the progress?
MIKEHAWK
loyalty
incautious
Mentos
MattFoley

Thans, James
Title: Re: Priapus shot
Post by: Knight on April 04, 2014, 09:00:18 PM
God bless you James! I sure hope this works out for all of you.
Title: Re: Priapus shot
Post by: Norm on April 04, 2014, 09:20:18 PM
Best of luck, James! We are all pulling for you. I hope this is the answer for you.
Norm
Title: Re: Priapus shot
Post by: NeoV on April 05, 2014, 05:07:40 AM
James,
You had the injection into the scar itself? The prp shot should go into the penis not the fibrotic tissue. Fibrotic tissue can't absorb blood am I wrong?

My understanding was that this "priapus shot" was a penile injection that just so happened to help eliminate Peyronies symptoms, not a treatment to be used specifically on scars. I don't even think it can effect scar tissue directly. Sorry for my confusion, but I guess I need some clarification, did you end up getting something different?
Other than that, let us know how u feel ASAP!
Title: Re: Priapus shot
Post by: james1947 on April 05, 2014, 06:17:43 PM
Thanks for all the wishes.

The injections were in the scar tissues and around. The scar tissues are close to the surface, the needle gone more deep also.
I am the first the doctor is injecting for Peyronies and she injected according to my suggestion.

As I wrote in my previous post, I was surprised by the softening of the plaques. The urologist, two years ago told me after palpating and ultrasound that my two plaques are calcified, can't inject into them because the needle will broke or bend so I will not be a candidate for Xiaflex.
But now, after 2 years VED, low dose Cialis and Pentox the plaques are soft. This is the main point. In my case, this combination worked!!!

What I can see as results from the PRP two days after the injections:
* Flaccid more soft and slightly bigger.
* After 3 pumping's with the VED (one minute more or less) the length is on the 13 cm mark. Before the injections I needed 15 to 20
   minutes pumping to get there.
I am not expecting fast/radical changes because my age is 66. In two months I will do the injections again for sure or even less if the injected quantity was less than the standard.

I have two questions:
* I forget if somebody that had PRP/Priapus stated, how much blood was taken and how much PRP was injected back.
   I will ask my doctor also, but I would like to have this information for the next time.
* Where the PRP supposed to be injected? Around the plaque? Into the plaque?

I will continue to update when I will have something new.
James
Title: Re: Priapus shot
Post by: james1947 on April 06, 2014, 05:50:31 PM
Small update:
Today during VED session passed the 13 cm mark by 3 mm, the girth bigger slightly, upward curve less and the left bend slightly smaller.
Sounds not to much, but is encouraging taking in consideration the is the second VED session and just two days after the PRP shots.
Also last time I was on the 13.3 cm mark was July 2012.
The doctor had taken just 20 cc blood for the PRP, Chris has PM me that it should be 60 cc.

James
Title: Re: Priapus shot
Post by: jon on April 07, 2014, 04:18:10 AM
ok, this is all very exciting, and tbh, I'm going to have some unexpected spare money in the coming few weeks. I've not been here on the forums in a few years.. kinda discouraged by the whole apparent lack of progress, and things have been static with me anyways. But this.. this is hopeful crap after having dealt with this for over a decade ( I'm in my mid 30s now). And apparently there's multiple docs in San Antonio and Austin. So add me to the list of those heading in for a round of shots, and I'll report back as we go.

Gentlemen, wish me luck, and wish us all luck.
Title: Re: Priapus shot
Post by: Chef Chris on April 07, 2014, 04:47:09 AM
Good luck Jon i hope it will give you the progress we all hope for.
as James said i read on line that the right amount off blood for this should be 60cc
MIKEHAWK
loyalty
incautious
Mentos
MattFoley
can one off you tell us how much blood the doctor used when you hade the shots?
thanks in advance.

Chris
Title: Re: Priapus shot
Post by: james1947 on April 07, 2014, 05:28:29 AM
Good luck Jon, wish you very successful outcome :)
Don't forget to report back.

James
Title: Re: Priapus shot
Post by: Milione on April 07, 2014, 06:51:51 AM
Hi james! Great to hear you took a prp shot. Where did you do it? Are you going to post any before/after shot pics?
Title: Re: Priapus shot
Post by: james1947 on April 07, 2014, 07:11:02 AM
I have done the PRP in south east Asia with an excellent and very cooperative doctor.
I will PM you all the details if you wish.
I will not post before/after pics just when I will see major changes, in my case I think after the second shots I am planning in May, so pictures maybe in June.

James
Title: Re: Priapus shot
Post by: Milione on April 07, 2014, 07:22:54 AM
Pm details are extra welcome. Thanks
Title: Re: Priapus shot
Post by: NeoV on April 07, 2014, 07:32:34 AM
We need a consensus on what a "Priapus Shot" is and should be, here on the forums not through PMs!
Keep in mind James, for all we know you may have received a far less effective treatment, or miraculously, a far better one.

Dr. Runels, the "inventor" injects into the head of the penis using one injection (possibly another area?). on his website it says that penis volume goes up immediately, followed by a slow slight decrease in size over time.

Good luck Jon! And bless you James I'm hoping you see some real improvement! Sounds promising already.

Keep us posted, and for the sake of everyone, keep details public.

-V
Title: Re: Priapus shot
Post by: incautious on April 07, 2014, 09:11:08 AM
I'm back from vacation in Atlantic City, and I see there has been much going on here. Hopefully I can answer a few questions. 60'cc of blood was drawn from me , placed in a prp specific centrifuge and then 10'cc of prp are injected. In my case there were five sites total, 2 on the base 2 around mid shaft where the plaque/scar tissue was and one in the glans. The centrifuge is very import and should be specifically made for prp with the Magellan brand, the desired machine. I saw an increase in girth right away and an improvement in curvature in just a couple of days. Now after almost 8 weeks I can  say that I am straighter, thicker, longer and firmer than before the shot. My wife commented that I felt amazing the other night( she even dug her claws into me). I think that this is a combo of every thing with the final part being the Erectile Dysfunction part. It took 6 weeks but the Erectile Dysfunction part caught up with the rest of the improvements. The last two weeks we are able to have prolonged relations with no lack of firmness during the whole time, something Erectile Dysfunction sufferers know a bit about. Yes I'm still taking 5 mg generic cialis 3 times a week , but now things are firmer than they have been in a long time, and the wife has noticed. I think that this procedure can improve on most of the issues that we have here provided that one takes the time to do traction and VED plus the other anti inflammatory treatments. I think that is why I have seen good results. I had stated in previous posts that I did see improvement using traction ect over a 6 month period. I also stated that I thought that this shot would turbo charge my improvements, and I believe that it has done just that. I see no need for a second or third shot in my case and as long as I keep up with the VED, I can't see how I could ever regress. James keep at the VED and traction if you can. The Cialis too. At least 30 min each time if you can. I also believe that this procedure works better for us older guys because of all the other issues that are going on. But for almost everyone here, I still say that this is way better than surgery and if you are diligent in your workouts so to speak, you will see improvement.
Title: Re: Priapus shot
Post by: damian on April 08, 2014, 12:38:17 AM
Finally is something happening again on this forum.

James
Is it possible that you were misdiagnosed with calcified plaque?
Title: Re: Priapus shot
Post by: james1947 on April 08, 2014, 12:45:09 AM
Impossible I was miss-diagnosed regarding my calcified plaques.
I was tested by to urologists from two different first class hospitals with color Doppler ultrasound two years ago, before I started treatment.

James
Title: Re: Priapus shot
Post by: edzo67 on April 08, 2014, 12:49:37 AM
This is very interesting. im going to call my uro this week and see if he has any knowledge of this procedure. Im ready to try something new. Please keep us updated fellas.
Title: Re: Priapus shot
Post by: edzo67 on April 08, 2014, 12:51:55 AM
James, I too was diagnosed with calcified plaques. Hope my luck is as good as yours
Title: Re: Priapus shot
Post by: james1947 on April 08, 2014, 01:10:06 AM
edzo67

I don't think the softening of the plaques is a matter of luck.
I think is a matter of two years VED, two years low dose Cialis and 18 months 3*400 mg Pentox per day.

James
Title: Re: Priapus shot
Post by: incautious on April 08, 2014, 08:19:52 AM
I agree with what james said. I've been preaching here from the very beginning that "diligence" is the main weapon we have against this condition. You have to attack it every day.
Title: Re: Priapus shot
Post by: james1947 on April 08, 2014, 08:37:37 AM
Yes, everyone can chose a way to fight this disease.
I have chosen mine based on the forum experience and the forum veterans advice's:
VED, low dose Cialis, Pentox and Ubiquinol (stopped Ubiquinol first because of financial barrier)

James
Title: Re: Priapus shot
Post by: MattFoley on April 09, 2014, 05:12:05 PM
I'm still seeing progress. I just increased the size of the cylinders I'm using. I'm greatly encouraged.

If anyone is looking for a good clinic to go to for the Priapus Shot in CA, I highly recommend the clinic at totalmale.com. I told that clinic that I was going to be referring Peyronie's people to them and in turn they spoke with Dr. Runels who explained to them how to modify their technique so as to address the Peyronie's matter optimally. I worked out an agreement with them to give our group here a discount so if you're going to use them. Be sure to tell them that you're a member of the PDS forum. PM me and I'll give you my real name so they know who referred you. That way you'll get a discount for the shot.

I'm looking forward to my next shot soon.

Good luck & continued healing to us all.
Title: Re: Priapus shot
Post by: james1947 on April 09, 2014, 05:14:36 PM
Matt

Can you give us some details regarding your progress?

James
Title: Re: Priapus shot
Post by: MattFoley on April 09, 2014, 05:19:46 PM
Hi James,

My curve is the same. But for me, I don't want to lose the curve. The girls I sleep with love the fact that I can hit their g-spot like no other man can. :)  So, that's all good.

In terms of girth, there's no question that it's gotten thicker. As I mentioned, I've had to increase my cylinders. The battery operated Encore VED I bought is now practically useless because I can't get my penis out of it very easily since I now fill up the entire tube.

My progress would be even greater if I didn't smoke. I have really screwed myself up because of the smoking.
Title: Re: Priapus shot
Post by: james1947 on April 09, 2014, 05:25:58 PM
Thanks Matt for the update.

James
Title: Re: Priapus shot
Post by: damian on April 09, 2014, 06:48:59 PM
are you guys really sure about the impact of smoking on this treatment?
Title: Re: Priapus shot
Post by: james1947 on April 09, 2014, 07:11:43 PM
Don't have any specific research regarding the smoking impact on PRP.
What have are the many researches that blames smoking on almost everything that is health related.

James
Title: Re: Priapus shot
Post by: NDfan on April 09, 2014, 09:05:11 PM
Matt says curve is the same but others have said it has been straightened. Confused. But interested to see if my Uro thinks this is a waste or a good idea.
Title: Re: Priapus shot
Post by: james1947 on April 09, 2014, 10:58:11 PM
The reaction of each one to PRP may be different, also the quantity of PRP is influencing the results.
If your uro injecting PRP he will tell you that is excellent. :)
If he is not injecting, probably will tel you that PRP for Peyronies is a crap. :)

James
Title: Re: Priapus shot
Post by: NeoV on April 10, 2014, 09:09:11 AM
Thanks for the info Matt! Sounds like it helped you out.

I will most likely (99%) get my shot in San Jose. It might not be till the summer or next year, who knows but I have contacts there and a place to stay : )
Title: Re: Priapus shot
Post by: james1947 on April 10, 2014, 05:52:46 PM
NeoV

Wait and see my results.
Maybe you will want to make a holiday in Bali? 8)
I think can find very cheap tickets from Japan to here and the PRP shots are $200

James
Title: Re: Priapus shot
Post by: Japanfour on April 10, 2014, 10:21:21 PM
I'm curious, has anyone who's received this shot so far had any sort of dent or hourglass before going in? If so, did the shot help smooth those issues out?
Title: Re: Priapus shot
Post by: dioporcolorisolvo on April 11, 2014, 01:10:16 AM
I'll go in USA for the priapus shot at the end of April (Dr.Varano).
I'll update you...
Title: Re: Priapus shot
Post by: Milione on April 11, 2014, 07:43:28 AM
Hi James, bali? Well well well, i m planning a holiday there....plus i truly like asian chicks. It may be a good occasion to have fun, explore the world, get treated and also test my junk before and after prp :D
Title: Re: Priapus shot
Post by: james1947 on April 11, 2014, 08:06:18 AM
Yes Milione

I will send you a PM

James
Title: Re: Priapus shot
Post by: james1947 on April 16, 2014, 07:40:36 PM
Short update
I am still in the same place as one week ago.
Using VED, the size is 13.3 cm after 2 minutes pumping (to remind I had 12.7 - 13.0 after 20 minutes of pumping)
The girth increased slightly also.
Hangs fuller and is not "hard flaccid" anymore.
Also to remind that I was injected just 4.5 ml PRP and not 10 ml as others had stated.
Beginning of May I will be injected 10 ml.
I would like to ask if injecting to the glans is mandatory? I was not injected in the glans the first time, I would like to have answer before the second injections session.
I would like also to mention again that my plaques were calcified and now after 2 years VED and low dose Cialis and 18 months 3*400 mg Pentox per day they are soft and the thin needle penetrated them without any problem.

James
Title: Re: Priapus shot
Post by: leftleaningpeen on April 16, 2014, 11:18:44 PM
Wow, I realise it's still early days but this is all very exciting. Does anyone know if this is available anywhere in the UK?

Leftie
Title: Re: Priapus shot
Post by: james1947 on April 17, 2014, 01:15:38 AM
leftleaningpeen

Try to find a good doctor at cosmeticians clinics. The are injecting PRP as anti aging for wrinkles for more than 20 years already.

James
Title: Re: Priapus shot
Post by: IhatePD on April 17, 2014, 12:38:52 PM
incautious, just wondering how you are making out. I am considering getting the PRP shot from Dr. Verano as I am in the Philadephia area.
Title: Re: Priapus shot
Post by: incautious on April 17, 2014, 03:02:50 PM
Peyronies Disease, Doing very well. It's now 9 weeks since I go my shot. I'm straighter I've gained 1/2" in both length and girth, and my Erectile Dysfunction is much reduced. For me the results are great as is the sex. I'm still at about 20 degrees of curvature which is fine with me. I don't think I will ever be arrow strait again, but that's not necessary with the other improvements. Dr. Varano was great and takes this very seriously. Pm me if you are going to make an appointment and i will give my name so you can reference me.
James, I don't know if injecting the glans is mandatory, but that was the area that was least sensitive to the injection if you can believe that. The middle where my scaring/plaque is were I felt the pinch. The glans may just be to make everything symmetrical. I'm curious to hear from you about the follow up shot, esp since you only received 1/2 the dosage. I have no intention of getting a second shot since I'm happy right where I am. But I'm sure that you will see an additional benefit from getting a second shot, and that may be necessary for some.
Title: Re: Priapus shot
Post by: james1947 on April 17, 2014, 03:10:53 PM
incautious

Thank you for the update and info.
I hope also that the second session will help more.
If not, I will make a third one. :)

James

Title: Re: Priapus shot
Post by: incautious on April 18, 2014, 07:53:43 AM
one other thing about the shot in the glans, most likely that's the shot that increases the sensitivity during sex, so that is something to consider if you are wary of getting part of the shot there.
Title: Re: Priapus shot
Post by: op on April 21, 2014, 05:23:28 PM
Iam also very interested how to get a Priapus Shot in Europe...


Wow, I realise it's still early days but this is all very exciting. Does anyone know if this is available anywhere in the UK?

Leftie
Title: Re: Priapus shot
Post by: james1947 on April 21, 2014, 05:33:23 PM
op

A small effort. Make a search on the Internet for "Anti Aging Clinic" and PRP as I said before.
Quote
Try to find a good doctor at cosmeticians clinics. The are injecting PRP as anti aging for wrinkles for more than 20 years already.
Then write some emails. Hopefully you will find one that can inject you PRP.

James
Title: Re: Priapus shot
Post by: op on April 22, 2014, 06:42:02 AM
Hi, thanks.
I have no doubt about simple PRP injection & to get it in EU, but I have heard that PriapusShot is a different one with it injection technique & chemical structure - which was developed in last few years... Maybe Iam wrong... any Anti Aging PRP can bring the same results as Priapus Shot?




[Full quote removed by admin]
Title: Re: Priapus shot
Post by: incautious on April 22, 2014, 07:34:26 AM
op, initially Dr. Runnels was trying a cocktail of things in his Priapus shot trying to improve the efficacy of the product for penis enlargement. But as of now it is strait PRP. Keep in mind that the centrifuge is the most important device for this procedure, and only centrifuges specifically manufactured for the production of PRP give the best results. 
Title: Re: Priapus shot
Post by: james1947 on April 23, 2014, 05:15:38 PM
Back to PRP results.
Yesterday I had a natural good erection that lasted long as I wanted for intercourse.
It was first time in more that 3 years that I had such an erection without Viagra.
I must to attribute it to the PRP treatment, as nothing else changed in my treatment and life stile.

James
Title: Re: Priapus shot
Post by: incautious on April 24, 2014, 08:01:07 AM
wow lots of good stuff here. As for how much prp to inject and where, 10'cc is the dosage, and there are established specific sites to inject the prp, although these sites can be modified slightly to the individual person. All the people at least in the US are Medical Doctors doing this procedure, and actually they are the specialist now in this procedure as opposed to my uro who would rather charge 10-20 thousand for surgery which may or may not work as opposed to $1400 for the shot. I have maintained that this is not a cure, but another weapon, another choice in our fight of this disease. It may work better for some and not at all for others.  I personally am straighter, thicker, longer and have way better erections after almost 12 weeks of getting the shot. The mechanism for how this works is no different , than the mechanism on how traction works. That is that you are triggering a immune response to a perceived injury on the body, which "can" promote the use of stem cells in order to help heal the injury.
Title: Re: Priapus shot
Post by: incautious on April 24, 2014, 08:07:46 AM
james, congrats on you progress with Erectile Dysfunction. 3 weeks is when I saw real progress, and it appears that that's the case with you. My Erectile Dysfunction is completely gone right now. I'm finding that I'm getting erections during the day just like when I was a kid.
Title: Re: Priapus shot
Post by: james1947 on April 24, 2014, 07:27:26 PM
This topic become a confrontational issue and not a debate regarding Priapus/PRP.
The position of all the members participating in this debate is clear already for everybody.
The topic was originally opened by incautious to report about his experience with Priapus shots.
incautious intention was to let us know that he is experimenting with something new and what are the results of his experiment.
He didn't mean to promote Priapus shots.
So please, let this topic go back to the initial target, to update the forum by members that decided to try Priapus/PRP.
This debate is hijacking the topic!!! I will split the topic and move all the debate posts to the new topic:
"Debate on Pripapus/PRP efficiency for Peyronies"

James
Title: Re: Priapus shot
Post by: james1947 on April 24, 2014, 08:02:55 PM
To all forum members.
This topic is for results updates from forum members that are doing Priapus/PRP injections, remarks and questions regarding the results
This topic is not a debate topic. Any debate post regarding Priapus/PRP injections should be posted on:
Debate on Pripapus/PRP efficiency for Peyronies - Peyronies Society Forums (http://www.peyroniesforum.net/index.php/topic,4920.0.html)
Any debate post on this topic will be deleted.

James
Title: Re: Priapus shot
Post by: james1947 on April 24, 2014, 08:25:27 PM
Small update, again.
Yesterday I had again an erection with no Erectile Dysfunction drugs and it was very good for sex. :)
I don't remember when it was last time that it happened to have two erections and intercourse in two consecutive days with no Erectile Dysfunction drugs.
I am attributing that to the PRP, as nothing else changed in my treatment.

James
Title: Re: Priapus shot
Post by: dioporcolorisolvo on April 24, 2014, 09:41:20 PM
This Monday i will take off for USA where i will do the priapus shot Wednesday. It's a long and expensive travel, but i have to attempt all possibilities.
Let's hope...
Title: Re: Priapus shot
Post by: james1947 on April 24, 2014, 09:57:46 PM
dioporcolorisolvo

Wish you all the best and very good results :)
Talk with the shots provider regarding the quantity (10 ml) and the injections location.
Let us know how was

James
Title: Re: Priapus shot
Post by: dioporcolorisolvo on April 24, 2014, 10:34:48 PM

James

I will go to Dr.Varano, where incautious has gone.
Thanks....
Title: Re: Priapus shot
Post by: james1947 on April 25, 2014, 01:45:49 AM
You are in good hands dioporcolorisolvo  :)

James
Title: Re: Priapus shot
Post by: edzo67 on April 25, 2014, 04:11:38 AM
Great news James! Im glad you are having a positive reaction to your PRP injections.
Title: Re: Priapus shot
Post by: Milione on April 25, 2014, 08:56:58 AM
Dioporcolorisolvo in bocca al lupo :)

Title: Re: Priapus shot
Post by: jmsurfer on April 25, 2014, 08:15:31 PM
Glad to hear you're getting good results James!
Title: Re: Priapus shot
Post by: Chef Chris on April 30, 2014, 12:48:13 PM
Hi i got the PRP shot today from a doctor here in Sweden but she only agreed up on giving me 5cc PRP
and she focused on the plaque she treated fibrous whit PRP before in the stomach of a women who had a lot of fibrous after a operation going bad i saw before and after pictures and it was a big differens all of the area was cleared up so i trusted here judgment but she said i would need two treatments i am scheduled to do a second treatment in a month.
but if i don't see any progress before that i will insist of 10cc and that the procedure will be done after doctor Runnels protocol i did use the pump for 15 minutes after.
i paid 750 dollars (5000 sek) 10cc PRP will cost 900 dollars.
if or when i see any progress i will post before and after pictures i am keeping my fingers crossed.

Chris
Title: Re: Priapus shot
Post by: IhatePD on April 30, 2014, 12:54:03 PM
Good luck, I am hoping for the best for you.
Title: Re: Priapus shot
Post by: james1947 on April 30, 2014, 06:15:10 PM
Chris

Welcome to the "PRP research group". :)
Wish you very good outcome, but I really believe the injected quantity should be 10 ml PRP.
I will get my next injections hope next week, will be 10 ml and I will use VED after 15 minutes also.

James
Title: Re: Priapus shot
Post by: dioporcolorisolvo on April 30, 2014, 11:55:15 PM
I've done priapus shot today. First impressions have been good.
Compared to verapamil infiltrations i have felt no pain. I have done two sets of 10 minutes
Once of Ved this evening after 6 hours the shot.
I will write you next week to say if have noticed some improvments.
Let s hope...
Title: Re: Priapus shot
Post by: james1947 on May 01, 2014, 12:01:06 AM
Wish you good results dioporcolorisolvo

James
Title: Re: Priapus shot
Post by: dioporcolorisolvo on May 01, 2014, 02:50:31 AM
I didn't understood only one thing regarding VED.
Must i pump and hold the penis inflated for 10 consecutive minutes or hold for 10 seconds and release for a total of a session of 10 minutes as is written in the VED protocol of the forum?
How do you use exactly the VED?
Title: Re: Priapus shot
Post by: james1947 on May 01, 2014, 05:43:42 AM
I am using the VED as per the forum protocol.
Quote
hold for 10 seconds and release for a total of a session of 10 minutes
Even if Dr. Varano will say something else, I will not take any risk. Is my penis.

James
Title: Re: Priapus shot
Post by: dioporcolorisolvo on May 01, 2014, 09:18:04 PM
I don t know what Dr.Varano says regarding this particular aspect, i will ask him what is the best way to use VED in his opinion.
Title: Re: Priapus shot
Post by: Chef Chris on May 02, 2014, 01:41:58 AM
Hi i have a question for MIKEHAWK sins you seams to be the one ho had the best results whit this treatment.
When you got the PRP shot did you get them after doctor Runnels protocol or did you get them in the plaque?
Title: Re: Priapus shot
Post by: incautious on May 02, 2014, 07:26:25 AM
diopo, use the VED for at least 10 minutes each time. Should pump to 10 in Hg if you have a gauge.
Chef, Dr Varanno tries to custom taylor the shot( but based of Runnels protocol) near and around the plaque. If the plaque is real hard the Dr will not be able to inject the PRP as you can get push back in the syringe. Keep in mind that they have to avoid the veins.
Title: Re: Priapus shot
Post by: james1947 on May 02, 2014, 08:10:31 AM
And avoid the urethrae!!!

James
Title: Re: Priapus shot
Post by: Chef Chris on May 02, 2014, 09:50:32 AM
Ok thank you guys
Title: Re: Priapus shot
Post by: Old Man on May 02, 2014, 10:06:30 AM
Hey guys:

Just want to jump in here off topic. But, need to let everyone know that a new and revised VED protocol for the one cylinder VED is now published in the VED board section of the home page index. A number of things has been changed to enhance the procedures. Many guys felt that the old protocol was confusing so items have been changed and updated.

It is the very top posting there now and states it is for the Vitality OTC one cylinder. However, this protocol will work with any brand of one cylinder VED.

Old Man

Update edit:  There are some minor changes being made as of 5/5//14.
Title: Re: Priapus shot
Post by: james1947 on May 03, 2014, 11:31:18 PM
My next shots at May 7, this time 10 ml PRP

James
Title: Re: Priapus shot
Post by: IhatePD on May 05, 2014, 01:25:35 PM

Has anyone that had the PRP shot done traction afterwards in addition to or in place of the VED therapy?
Title: Re: Priapus shot
Post by: Chef Chris on May 05, 2014, 01:32:08 PM
I am doing traction 3 hours a day and VED 2x15 minutes a day I am yet to see any benefits but not even a week has past since I got the shots
Title: Re: Priapus shot
Post by: james1947 on May 05, 2014, 04:58:21 PM
Chris

You was advised by the doctor to use traction or is your own decision?

James
Title: Re: Priapus shot
Post by: edzo67 on May 06, 2014, 03:43:35 AM
have all of you guys who have had the prp shots seen increase in girth and/or length? any worth noting?
I know for some , erections have been much better. any of you with hour glassing seen improvement?
I havendt exactly seen you guys lighting up the board with any breaking updates.
I know this isn't billed to be a permanent fix, but does it seem worth it for minor short term changes?
I would trade a few good weeks of ANY improvement. no matter how slight. have you guys taken any before and after measurements?
a couple of u have posted some photos that show some improvement in bend, but its hard to tell if theres been any increase in girth or length. James I know u have said your erections were much improved. are there any size gains to report? Thanks and sorry if I missed any answers to these questions that are already in the posts, that I may have overlooked.
Title: Re: Priapus shot
Post by: james1947 on May 06, 2014, 03:56:55 AM
I can't mention any drastic improvements, 4 weeks after the PRP.
My flaccid girth and length are a little bit increased and I had two erection without Viagra.
I am attributing that to being older (66+) and I got just 4.5 ml PRP.
Tomorrow I will get 10 ml, will make VED for 10 minutes and will see the results during a period of 4 - 6 weeks.
Hope to much more that from the first PRP session.

James
Title: Re: Priapus shot
Post by: edzo67 on May 06, 2014, 04:07:24 AM
good luck tomorrow James
Title: Re: Priapus shot
Post by: incautious on May 06, 2014, 07:49:27 AM
edzo, my personal experience has been much much better erections, a reduction in curvature from about 40 degrees to about 20 degrees. I've regained 1/2" in lengthen and gained 1/2" in circumference. I still have some hour glassing where the curvature starts. I will try and get 12 week photos up when I get a chance. i saw reduction in curvature with a few days of the shot but real improvement started after 4 weeks, and way better erections after 6 weeks.
Peyronies Disease, I still use traction in addition to VED. However I use the ESL-40 ADS as opposed to my old traction device, because of girth issues.
Title: Re: Priapus shot
Post by: IhatePD on May 06, 2014, 03:18:58 PM
James, I wish you the best tomorrow!
Title: Re: Priapus shot
Post by: james1947 on May 06, 2014, 03:29:14 PM
Thanks for all the wishes, here is "tomorrow" already :)
Have to drive 3:30 hours to the doctor so wake-up already

James
Title: Re: Priapus shot
Post by: Chef Chris on May 06, 2014, 03:44:09 PM
Good luck James
Title: Re: Priapus shot
Post by: dioporcolorisolvo on May 06, 2014, 10:02:18 PM
Good luck James...

After 1 week from the shot... Things are going well...maybe there is hope for me!
Girth has improved of 0,5-0,7 centimeter...yes not a drastic improvment but if you consider that ALL the other treatments have worsened or done nothing for my case...for now things are going well and i have the most important thing: the hope.
Also the curvature is a little less hard and the erections are more easy.
I hope to gain some other millimiter in girth. No change in lenght but i have lost girth with peyronies, not lenght.
The war goes on, but now i have a strong friend with me that is the trust.
Title: Re: Priapus shot
Post by: danbon on May 07, 2014, 01:41:30 AM
Once again I just want to say how excited about your diligence, progress, and overall with the treatment. Please keep us updated with any information. Even though the injections do not cost that much. In my case, where I live I only have one doctor near by and he's charging $2000.00 even though for many of you it may not be a lot for me it actually is and that's why I cannot afford it at the moment, but hopefully by next month I can, or maybe I can even work out a deal to finance we'll see...Thanks again for your determination and I am eager to hear your results.
Title: Re: Priapus shot
Post by: james1947 on May 07, 2014, 06:11:48 AM
Back home after 9 ml PRP shots. Drive 3:30 to the doctor, drive 3:30 back home.
Not the doctor and not me could feel the plaques today, but she injected in the place that the plaques supposed to be.
I attribute the "not feeling the plaques" to the first injections one month ago. I think is a big achievement:
* First softening the plaques by VED, Pentox and low dose Cialis
* Not feeling the plaques one month after the 4.5 ml PRP shots.
A little bit swollen, made VED just 3 minutes because blood or maybe PRP started to come out from one of the injected spots.
Added: No any bruising as the doctor was careful not to hit some veins.
Hope to see bigger improvements this time.

James
Title: Re: Priapus shot
Post by: james1947 on May 07, 2014, 06:16:48 AM
danbon

No any reason for the doctor to charge $2,000. Is a ripoff, as others in the US are charging $1,400 and even much less.
Try to find a solution. Even if it was easy for me to pay $2,000 I was not paying!!!

James
Title: Re: Priapus shot
Post by: Nemo on May 07, 2014, 09:24:20 AM
James, if you're not able to find a plaque manually anymore, that is truly wonderful news!

Nemo
Title: Re: Priapus shot
Post by: incautious on May 07, 2014, 09:26:28 AM
wow James some great news there. As you know I too have been saying that I cannot find the plaque anymore. My next appt. with the uro is 6/12 so I will have definite answers weather the plaque is fully gone.
dio: it takes about 3-4 weeks to see really significant results. Keep pumping every day twice a day for at least 10 min at a time. I still pump about 1/2 hr twice a day. I will try and get 3 month pics up soon.
danbon, check runnels website for a list of Dr's. near you. As more and more sign up the price will come down. I do know that each Dr. pays a fee to Runnels for each shot, which keeps the price a bit high at this time. If Runnels can prove that this treatment is effective for Erectile Dysfunction( which he is in the process of doing, and I was a part of this data) then insurance may cover this in a few years. After one shot is way cheaper that a lifetime of Cialis.
Title: Re: Priapus shot
Post by: incautious on May 07, 2014, 09:35:30 AM
janes, one question, did you get a shot in the glans this time. I know that the first time you did not. And with 9'cc, you should see an improvement in girth.
Title: Re: Priapus shot
Post by: IhatePD on May 07, 2014, 12:08:26 PM
Guys, I am very happy and hopeful for each of you. I have taken a blood test for the PRP shot with Dr. Varano and will make a decision soon.

I am leaning towards trying the PRP shot. I am still a little nervous about Xiaflex although I think it might be a good way to treat Peyronies Disease. A lot to think about.
Title: Re: Priapus shot
Post by: james1947 on May 07, 2014, 04:17:50 PM
incautious

I didn't get directly in the glans as the glans size is OK, but very near because my plaque ending there.
I hope also that the 9 ml will help more than the 4.5 ml.
This time I will wait 7 or 8 week before making an other one if this will not help significantly.

James
Title: Re: Priapus shot
Post by: james1947 on May 07, 2014, 04:21:20 PM
IhatePD

I agree not an easy decision.
Xiaflex an approved Peyronies treatment but somehow scary.
PRP not approved but more simple.
But I think, from reading the results some people are getting from Xiaflex that is a real treatment.
I was very skeptical after the trial, I am not anymore.

James
Title: Re: Priapus shot
Post by: IhatePD on May 07, 2014, 04:28:23 PM
James,

I agree, I am not that skeptical of the Xiaflex any longer, just nervous. Reading the instructions post procedure, you are supposed to gently stretch your penis opposite the curve if you get a spontaneous erection. They also say to wait two weeks before having sex.

Having sex will put a lot more than a gentle stretch (and stress) on an erection. I am worried about causing more damage or a rupture as I "think" my penis might be weakend by the Xiaflex injections. I don't know if the underlying tissue is a strong as it used to be?
Title: Re: Priapus shot
Post by: james1947 on May 07, 2014, 04:31:45 PM
IhatePD

You are right, sex after Xiaflex maybe an issue.
What the doctor said?

James
Title: Re: Priapus shot
Post by: incautious on May 08, 2014, 09:58:37 AM
12 week pics are up on the surgery child boards.
Title: Re: Priapus shot
Post by: Chef Chris on May 08, 2014, 11:18:00 AM
James gratulations on your progress that you can't feel the plaque any more that's a big deal. Have there bean any redaction in curve?
I haven't experienced any difference so far but then again only a week has past since I got the 4,5 ml shot.
Title: Re: Priapus shot
Post by: rellisacct on May 08, 2014, 01:02:20 PM
I have a question guys. With the Priapus shot, do they inject all over the penis or just in one localized spot?
Title: Re: Priapus shot
Post by: incautious on May 08, 2014, 01:49:00 PM
rell, The Protocol that Dr. Runnels specified is 5 locations of 2ml each for a total of 10ml PRP.
Two at the base and two at mid shaft( one on each side) and one into the Glans on top. For Peyrones the Dr will try and localize the injections close to the plaque/scar tissue.
Title: Re: Priapus shot
Post by: rellisacct on May 08, 2014, 02:52:25 PM
Great...Thanks Inc.

This is better than the PRP procedures that I received last year where there were only 2 injections. Just got stem cell procedure done 1.5 months ago and hope to improve on that with some girth.
Title: Re: Priapus shot
Post by: james1947 on May 08, 2014, 05:10:29 PM
Chris
No improvement yet with the bent and curve, but I got the PRP just at May 7.
Also not yet morning woods, just some half erections, even I am taking low dose Cialis every evening. Just l have to remember that had no morning woods for almost 3 years now.
I am waiting to see how the erection will be bent, curve, size and rigidity wise next time when I will try it for sex.

rellisacct
I got my 9 ml PRP in 5 places.
* Two at left side down in the plaque area that makes the sharp left bent close to the base.
* Three more along the shaft, top, when the cord like plaques runs all along, one of the three at the base of the glans.
As I mention previously, we (doctor and me) can't feel the plaques but the bed, curve are still there.

incautious
Check in from time to time, even just to see how others are progressing and give a remark :)

James
 
Title: Re: Priapus shot
Post by: emasculated on May 08, 2014, 05:12:28 PM
james / incautious: Reading your progress I'm sure looking forward until you visit a specialist next time an learn the ultrasound results.
Title: Re: Priapus shot
Post by: james1947 on May 08, 2014, 05:21:12 PM
emasculated
I am planning to make an ultrasound 8 weeks from now to see the difference in the plaques. Again a trip of 7 hours go and return. :(
This will show the effect/no effect of the PRP on the plaques.

MIKEHAWK & loyalty
Give us an update how is your progress.

James
Title: Re: Priapus shot
Post by: RoyHobbs on May 08, 2014, 08:27:41 PM
So as far as injection points, the locations are identified by touch only, correct? Or did the administrator of the shots do an initial ultrasound.

My apologies if I missed this information in a previous post.

Title: Re: Priapus shot
Post by: james1947 on May 08, 2014, 08:34:01 PM
No Roy, you don't missed nothing.
The doctor and me tried to feel the plaques as she felt them before the first shots but didn't feel them.
We know they exact location so the Doctor injected there.
Some Urologists have ultrasound device in they clinic, hospital office so they can do an ultrasound if they want.

James
Title: Re: Priapus shot
Post by: bonsomi on May 08, 2014, 09:54:23 PM
James, i think that the matter is functionality. Whats the point in being unable to feel the plaque if size, Erectile Dysfunction and curve remain the same?

Regards.

Bonsomi.
Title: Re: Priapus shot
Post by: james1947 on May 08, 2014, 11:16:33 PM
You are right bonsomi, the functionality what matters.
I have posted in the past a few things in the functionality subject.
Also other members that made PRP posted on the functionality subject, including bend, curve and Erectile Dysfunction.
If you will read down the topic, you may find those posts.
You also ca see functionality changes in a concentrated way at:
PRIAPUS/PRP Injections Trial (forum) - Peyronies Society Forums (http://www.peyroniesforum.net/index.php/topic,4788.0.html)
Regarding not feeling the plaques, I suppose it is because the plaque is softer. I hope that the VED now will be able to straiten the bend and the curve.

James
Title: Re: Priapus shot
Post by: edzo67 on May 09, 2014, 12:10:20 AM
Question for the guys who have had prp shots in the USA. where were the dr.s located? I would prefer to travel if needed to find someone to inject my penis, who has done those type of injections before
Title: Re: Priapus shot
Post by: james1947 on May 09, 2014, 12:14:24 AM
edzo67

If you will read the posts on this topic, you will find them.

James
Title: Re: Priapus shot
Post by: bonsomi on May 09, 2014, 08:28:14 AM
James, I'm aware of the post below and i think that is extraordinary the kind of progress that some people is having with this treatment. I was just asking because i thought that i was missing something, since i understood that pain, size loss, Erectile Dysfunction and curve are usually the enemies, i was confuse to the idea that not being able to feel the plaque is in it self a progress, i think that the bottom line question is this: Is being unable to feel the plaque (therefore plaque reduction or softening) is a base, indicator or a symptom for future improvements in the subjects from above?

Regards.

Bonsomi.
Title: Re: Priapus shot
Post by: Norm on May 09, 2014, 08:36:41 AM
Bon,
This whole field of PRP shots is very new to us here. No one has had overnight success using it. I think James' point is that the first indicator of success, in his case, is that he can no longer feel the plaques. That is not the end goal, but it is an early indicator that things are changing for the good. He has a long way to go, but he is going the right direction.
Norm
Title: Re: Priapus shot
Post by: incautious on May 09, 2014, 09:08:42 AM
james, I'm not going anywhere, it's just that unless something drastic happens, I don't think any more photo's are necessary, except maybe 1 and 2 years down to road, to see the long term effects. My whole purpose with the photos is that nowhere on the ENTIRE web was there ANY photographic before and after evidence of what happens after Priapus shot/PRP and weather there was any sort of improvement, be it size curvature Erectile Dysfunction ect. Not even on Runnel's site.
As for the Erectile Dysfunction it took really 6-7 weeks before I really saw major improvement, before that it actually was a bit worse if you remember. Also you only got about 1/3 the recommend prp the first time. I'm sure Runnel's experimented( at least I hope so) for quite some time before he determined the proper dosage of prp 
Title: Re: Priapus shot
Post by: james1947 on May 09, 2014, 05:17:18 PM
incautious

I was worry, I understand you wrong.
I was thinking that you will stop being active for one year :)

James
Title: Re: Priapus shot
Post by: james1947 on May 09, 2014, 05:30:18 PM
I give it a try yesterday.
My wife mentioned that the erection is more full (girth) and more strong.
Also lasted long as I wanted.
It was with the help of 25 mg Viagra. This dosage was not helping anymore in the past.

James
Title: Re: Priapus shot
Post by: IhatePD on May 09, 2014, 05:41:12 PM
Go James go!!!!
Title: Re: Priapus shot
Post by: Knight on May 09, 2014, 08:19:34 PM
Good for you James! I have to admit I've been sitting back, watching and waiting and you've all got me about ready to give this a shot.

No pun intended!

Congrats!
Title: Re: Priapus shot
Post by: james1947 on May 11, 2014, 07:36:47 PM
bonsomi

Sorry, I miss your second post on May 9.
In my opinion, improvements can be considered as bellow:
* Improvements in Erectile Dysfunction/erection
* Improvements in deformity (bend, curve, dent, hourglasses)
* Gaining back lost length
* Gaining back lost girth
* Eliminating pain
Not feeling the plaques is a progress if the plaques really gone a way or at least softened to the point that they are not hard and are flexible like the tissues around.
My two plaques were calcified, very hard, can feel them very easy.
As I wrote before, I assume the VED, Pentox, Cialis, Ubiquinol softened them to the level that my doctor was able to inject into the plaques in the first PRP injections session.
After a month, before the second PRP injections sessions, can't feel the plaques. I assume that the first PRP injections has done that.
If the plaques gone, I am expecting to see the improvements I have stated above.
Hope I am right in my assumptions.
At the end of two months after the second PRP, I will check by ultrasound to see the plaques.

James
Title: Re: Priapus shot
Post by: Conway96 on May 13, 2014, 08:50:09 PM
Hi everyone,

Ive been following this forum for a while now, and the prp injections sound very promising. However, I have a question regarding the legality (in countries like the US, Canada) of this treatment. Seeing as the use of this procedure for Peyronie's and Erectile Dysfunction is relatively new, wouldn't it have to go through clinical studies and receive some sort of government approval before becoming so widely available? I feel as though stem cell therapy for Peyronie's and Erectile Dysfunction is not yet available in the US and Canada, despite very encouraging studies, because we are waiting for more clinical studies, and government approval, yet the prp injections are already widely available without any studies or government oversight. This seems very odd to me.

Why do you think stem cell therapy is not yet available, but prp for Peyronie's and Erectile Dysfunction is?

Conway
Title: Re: Priapus shot
Post by: james1947 on May 13, 2014, 09:20:02 PM
Conway96

PRP is not an approved treatment for Peyronies and Erectile Dysfunction.
It is used for many years as an anti-aging treatment.
The advantage of PRP on other treatments is that it is from your own blood so no rejections and allergies reported.
I don't know if it is approved by the FDA for cosmetic uses, but have hundreds of providers in the US and all over the world.
It is used also for penis enlargement treatment, I don't know if it is working or not.
Because don't have any researches in the subject, a few forum members decided to give it a try and we are collecting the data regarding the results.

James
Title: Re: Priapus shot
Post by: incautious on May 14, 2014, 08:19:16 AM
conway, I believe that clinical trials are not needed because no drugs are being used, only your own blood. As for stem cells unfortunately , the US is way behind many countries in it's usage due to political reasons, although the theory with using PRP is that your body will generate to some extent new stem cells, because the body perceives that it is injured( because of the high Platelets) and your natural ability to heal will encourage some new stem cells to be produced. Part of the problem with the Priapus shot is it's inventor Dr Runnels. I believe that there may have been some malpractice claims in the past(not that unusual in this country full of lawyers). Also his outrageous claims that you will gain 2" at least on your manhood, without any clinical data or photographs to support such claims. Runnel's first injected himself, yet you never see any pictures of his manhood which should be about 13" at least (lol) if one were to believe his claims. It's only when people who initially  got the shot for enlargement purposes, and reported that they had a reduction in curvature and better erections, did Runnel's start making these other claims. Previously I've mentioned that Runnel"s IS now collecting Clinical data from the Doctor's who are performing this procedure in order to "substantiate" his claims that the shot will cure Erectile Dysfunction. This would be the first real step of legitimize this procedure for mainstream acceptance.
Title: Re: Priapus shot
Post by: Conway96 on May 14, 2014, 10:24:05 AM
Oh, ok. Thank you both for your quick replies. You guys are all doing an amazing job at tackling your issues head on, and have encouraged me to do the same. I'm sure there are many other people just like me who have been monitoring this forum for a while, and are taking advantage of all your information.

I've just recently seen a top urologist here in Canada, and had an ultrasound done two days ago which revealed light scarring (I have a 20 degree downward curve and Erectile Dysfunction). I have a follow up appointment in June in which we will sit down and discuss my options moving forward. I will ask him about prp, and let you guys what he says.

Conway

Title: Re: Priapus shot
Post by: james1947 on May 14, 2014, 06:41:06 PM
Conway96
Can you give us some more information regarding your doctor? We don't have too much info regarding doctors in Canada.
June is not so far, but you should start treatment as soon as you can to stop the Peyronies from advancing and reverse the symptoms.
I don't know what will be your doctor opinion regarding PRP because not too many urologists are updated with the subject and see it as a potential treatment.
Let's don't forget that PRP injections are much less profitable than surgery or Xiaflex :(
Don't forget to update us

James
Title: Re: Priapus shot
Post by: james1947 on May 15, 2014, 05:44:18 PM
Conway96

Thanks for the info, we have him already on our doctors list, but with no remarks about him.
Good luck in your next appointment with him.
It is very sad that you pay social and medical insurance all your life and the doctor is so short time with you and have to wait an other months to get (maybe) a treatment.

James
Title: Re: Priapus shot
Post by: fredjones on May 20, 2014, 08:34:15 AM
for those that have had the shot, is "pumping" still part of the overall plan and if so, how long do the drs want you to continue doing it? also, do you believe that the pumping is the reason for the increase in girth?
Title: Re: Priapus shot
Post by: james1947 on May 20, 2014, 09:01:51 AM
fredjones

We had some discussions on this subject, you will find the posts if you will continues to read down (6 pages) on this topic.
As a summary, some doctors advising using VED after the PRP injections to spread the PRP, others are against VED after PRP, they are concerned that the PRP is washed out from where is supposed to stay.
So here on the forum, each one deciding what to do.
Pumping (using VED) may be also a reason of increasing the girth in addition to the increase from the PRP.
Before doing PRP, I had increase in girth from using VED, I got back 20% from what I have lost to Peyronies.

James
Title: Re: Priapus shot
Post by: incautious on May 20, 2014, 11:53:52 AM
fred, after 14 weeks since I got my shot I continue to pump ever day 1/2 hr in the morning and 1/2 hr in the evening. I believe that pumping continues to "stress" for a better word the area where I got the shot which in may help in the whole stem cell/regeneration process. I continue to see results and am now back to 20 cm, I was 18cm before the shot and 16 cm before any treatment. All other areas , curvature, Erectile Dysfunction and girth are much improved from the beginning. I plan to pump for as long I can, as I believe that as long as I'm careful I will never have a relapse with this disease . Just my 2 cents.
Title: Re: Priapus shot
Post by: IhatePD on May 20, 2014, 07:20:15 PM
Hi everyone.  I have decided to try the Priapus shot with Dr. Varano in the Philadelphia area. I have my appointment set up for June 18th.

Logically, it seems to me that going the Xiaflex route first followed by the PRP makes the most sense but I am hoping that the PRP alone will "set me straight" enough without the Xiaflex. If it doesn't, I may still try the Xiaflex and possibly PRP again afterwards.

FYI, I was told to stop Pentox at least a week ahead of the PRP procedure and the doctor will let me know when he feels I can go back on it. He said possibly six weeks later on.  He is concerned that it could interfere with the PRP.  Also have to stop aspirin if you are on it as well.
Title: Re: Priapus shot
Post by: james1947 on May 20, 2014, 08:20:46 PM
IhatePD

Good luck, wish you very good results.
Regarding Aspirin and Pentox or any blood thinner, for any kind of surgery or intervention that may result in bleeding, one should stop one week before and not restart one week after.

James
Title: Re: Priapus shot
Post by: Chef Chris on May 21, 2014, 09:59:50 AM
Hi everybody it's 3 weeks since I got my shots and so far I had no results same curve and plaque.
But next time I will tell her to give me double dose. I was on pentox and cialis the hole time was that a bad idea? I stopped pentox now since it's a week until my next treatment but should I stop cialis to and how about Arganine I just started that again.
I also haw a question about traction maybe I should take a break from that to when I am doing the treatment?
Any body have some advise about this?
Thanks
Title: Re: Priapus shot
Post by: incautious on May 21, 2014, 10:55:36 AM
Chris you really "should" be using a VED as this helps keep the prp localized. I personally pumped for 2 hours total after the shot, in order to avoid the washout( 10 min on 5 min off with rolling my manhood in between my hands in order to get some king of dispersion around the plaque).  The specification  says to pump immediately after receiving the shot for 10 minuets at 10hg of vacuum. Also did you bring a pic of your curvature for the Dr. to see. They really want to try and inject around the plaque. Read the most recent posting about the french prp study. It is truly amazing the results. The age group again my make a difference at the average of the French study was 57.5 years old. I was 58 when I got my shot. Also 10 ml was my dosage the French injected 4-8 ml a total of 4 times over a two month period. The dosage in the French may have been varied due to flaccid size, or the ability to inject a certain volume in an individual: ie if you have a lot a plaque you may not be able to inject the full dosage of prp due to push back in the syringe. When pumping I have found it better to be erect or semi erect before entering the tube. Use lots of lube!
Title: Re: Priapus shot
Post by: Chef Chris on May 21, 2014, 12:30:04 PM
Incautious i plan to keep using the VED 2 times a day for as long as I am doing this treatment.
Last time I had 4ml prp injected around and in the plaque witch is easy to locate on me this time I will ask her to use 8 ml she use the same brand as they have in the French study regenlab prp.
My concern is about the drugs I am taking if it in any way interferes whit the prp and if I should take a break while I am doing the treatment and the same when it comes to traction do it interfere white the healing of prp?
My age is 35.
Title: Re: Priapus shot
Post by: IhatePD on May 21, 2014, 12:53:47 PM
Chef,

I am getting the PRP shot on June 18th. I told my Dr. that I am taking L Arginine and Acetyl L Carnatine and they said it was OK to continue.  They told me to stop the Pentox and Ubiquinol and he said he will let me know when I can go back on the the Pentox, possible six weeks later.

I would check with you doctor and see what he/she says.  Good luck!
Title: Re: Priapus shot
Post by: incautious on May 21, 2014, 01:27:54 PM
Chef, I would ask the Dr about pentox, as I have no experience with it, in The French study it appears that they did not take anything, nor does it mention if they used VED.  If you are using VED then traction is good too. From your post I thought that you were doing traction only, I do both myself still. It took me really 4 week plus before I really started seeing real improvements even though my curvature saw improvement within a couple of days.  Maybe because of your age it may take longer to see results. That issue has been talked about a bit and may have some real merit.   
Title: Re: Priapus shot
Post by: Chef Chris on May 21, 2014, 02:54:11 PM
Ok thanks for the reply guys I will just stop whit all of the oral treatment until I talked to the doctor I don't want to risk that it will have a negative effect on the prp   
Title: Re: Priapus shot
Post by: james1947 on May 21, 2014, 03:15:16 PM
Any blood thinner, including Pentox, should stop a week before the injections.
Cialis is not a blood thinner, don't have any reason to stop.

James
Title: Re: Priapus shot
Post by: Chef Chris on May 21, 2014, 03:51:59 PM
Ok James thanks for the info
Incautious do you mean that you are suppose to pump to full erect and then hold it in full erect 10 min directly after the injection?
Title: Re: Priapus shot
Post by: incautious on May 22, 2014, 07:24:09 AM
james yes that is the procedure that Dr. Runnels has specified. You are supposed to bring your pump  with you and then immediately after the PRP injections, you are supposed to pump to full and VERY firm erection and  and hold it for 10 min. This is supposed to evenly distribute the PRP as well as to localize it to just your manhood
Title: Re: Priapus shot
Post by: RoyHobbs on May 22, 2014, 01:23:18 PM
Dr. Lue prescribes 5 cycles of VED with hold times of 6 min per cycle. But 10 minutes seems extremely dangerous. Are you holding for 10 min every time you do this?
Title: Re: Priapus shot
Post by: james1947 on May 22, 2014, 06:02:13 PM
Myself stopped the VED after the injections (I mentioned already in an other post) because while pumping up the blood was coming out from one of the injections spots.
Continued just for 10 minutes in total, but just pumping up and releasing after 10 seconds.
I am afraid to pump to a high pressure, scared of new damage.

James
Title: Re: Priapus shot
Post by: stopthismadness on May 23, 2014, 12:42:11 AM
I've been keeping an eye on this thread for awhile and I have a few questions.

-Has anyone seen a resolution in the "tightness" or feeling of lack of blood flow where each of you respective plaques are located?

- How would you say it has helped erectile dysfunction thus far? Has anyone that couldn't have erections without the aid of a pill had any spontaneous erections besides the ones from waking up?  My main issue is the Erectile Dysfunction caused from this mess, if it could help clear that up I would probably go for this as well.

- How exactly do they remove the blood from you? Is it a standard syringe to the arm, and is it a lot?  I'm a bit confused about the whole procedure as a whole. How is the pain afterward?

- Is pumping ABSOLUTELY necessary?  I tried the pumping with the VED for a week and within that week I found cords running up and down both sides of my penis that were not there before. Honestly the VED scares me quite a bit.  Is there really any proof backing up this claim of keeping the blood from flooding out of the penis? That is what happens naturally, and if the blood doesn't escape the same detrimental results of priapism can set in causing further tissue damage.  I would think that any activity from the PRP would happen within the same day and that it would inevitably drain out from the penile tissues because that is the nature of how erections behave.  How much can be attributed to PRP and how much is it really just the pumping?

- This is more of a statement.. but I personally would like to see a list on this forum of where each of you has gone to have this done, and the cost of the injection.. just to make it more easily accessible to read. I know that might be asking a bit much for the sake of convenience, but I think it would be a good idea.

best regards to all of you brave ones to have tried this and the ones continuing to embark on the frontier of this.
Title: Re: Priapus shot
Post by: james1947 on May 23, 2014, 01:38:38 AM
stopthismadness

You will find answer to most of your question in the link bellow. It is a concentration of the relevant posts of forum members that are doing the Priapus/PRP shots:
PRIAPUS/PRP Injections Trial (forum) - Peyronies Society Forums (http://www.peyroniesforum.net/index.php/topic,4788.0.html)
I am updating the file on the link above each time when someone posts a change or a result.
You will find also in the above file the doctors names and location if the people posted them.
Regarding prices, I am paying $200 for a session of injections, some payed up to $1400. The prices are going down, as more and more providers in the market.
They are taking your own blood from the arm, 60 ml to get 10 ml of PRP.

James
Title: Re: Priapus shot
Post by: stopthismadness on May 23, 2014, 01:53:58 AM
Thanks James that does answer many of my questions I'm not sure how I missed that one  :-X
Title: Re: Priapus shot
Post by: edzo67 on May 23, 2014, 04:21:17 AM
who has used a dr. for prp shots on the US east coast? im in Massachusetts but willing to travel. im going to my peyronies specialist june 2 to get an up to date ultrasound so I can document if these prp shots work in helping plaque. I would like for someone who has had a good experience, recommend where I can go to get prp shots. im freaking out again and need to do something. my penis has gone from a 45 degree downward bend to a 45 degree upward bend and is still changind. its changed a total of 90 degrees! and I have lost another 1/4in. of circum. and 3/4 in of length. I started out with a little over 7 1/4 inches in length and 5 3/4 circum. its now 5 3/4 length and 5 inch in circum. this crap is driving me batshit crazy! HELP
Title: Re: Priapus shot
Post by: incautious on May 23, 2014, 09:04:44 AM
Edzo, Check Dr. Runnels site he has a list of Dr's. There is someone in Peabody. I went to Dr Varano who is near Philly. Just now in NJ my home state a  Dr.Berberian who is a specialist in PRP  is now doing the shot. As for VED one has to be very careful and start very slow. That's why a gauge comes in handy( I also use the vitality which has no gauge because it is more discreet than the separate pump and cylinder.) .You would start at like 2-3Hg of vacuum maybe for a couple of min. and then eventually build up the pressure and time. It's just like trying to build big biceps. You don't start doing 100 curls with 50lb weights you start slow. If you don't have a gauge it's best to start fully erect and just do a couple of pumps for a min or two and go on from there over time. There is a whole thing about pumping else ware on this site.  I am seeing remarkable results(in length) lately because of the VED/traction but I have been reluctant to post those because I don't want people misconstruing my intentions or worse damaging them self's by trying to mimic my routine overnight. I've been doing this for over a year now and if you go SLOW, your body(manhood) will tell you when to stop. Also I am using Testosterone as well as DHT. I don't know if these are helping with my overall results, although I have seen some medical papers suggesting that the high incidence of Peyronies in older men(as much as 25%) MAY be caused, in part because of low T.
Title: Re: Priapus shot
Post by: james1947 on May 23, 2014, 09:17:28 AM
Good post incautious. :)
VED is a dangerous tool if not used carefully. :(

James
Title: Re: Priapus shot
Post by: incautious on May 23, 2014, 11:17:52 AM
madness, my personal experience with Erectile Dysfunction, is now it is completely gone at this time. Even when on hormone treatment for 6 months and cialis staying firm was a problem and the loss of length and curvature made things a nightmare. I also had no morning wood in years. Even 4-5 weeks after the shot it seemed that it got worse. As previously posted around 6 weeks  things changed dramatically. I now can stay firm the whole time. I now get "very" firm erections every morning and even in the middle of the night, just like old times even without the cialis. One thing that helped was taking l-citrulline(or arginine) with pine bark extract. Do an internet search on this. Also working out helps with circulation. I exercise every day, I don't smoke and I try and not overindulge the booze:-)
Title: Re: Priapus shot
Post by: Chef Chris on May 23, 2014, 01:40:08 PM
So Arganine is also ok to take when you are getting this treatment?
Title: Re: Priapus shot
Post by: james1947 on May 23, 2014, 06:27:52 PM
All the members that made Priapus/PRP injections, please be kind and post the doctor name and his website.
It will help other members that want to make this treatment.

James
Title: Re: Priapus shot
Post by: Chef Chris on May 24, 2014, 03:25:45 AM
Läkarmottagning Vasa Viktoria
Doctor: Johanna Carlsson.
Website: Om Vasa Viktoria | Läkarmottagning Vasa Viktoria (http://www.vasaviktoria.com/om-vasa-viktoria-9643909)
Title: Re: Priapus shot
Post by: dioporcolorisolvo on May 24, 2014, 10:42:34 AM
Dr.Varano, Philadelphia PA
Title: Re: Priapus shot
Post by: incautious on May 25, 2014, 09:39:11 AM
Yes arginine/citrulline is fine while on prp. Its supposed to increase NO production which is supposed to help maintain erections. There are several studies on this. For some reason the pinebark improved Erectile Dysfunction even in stubborn cases when combined with arginine. Im on vacation till tues. I will go into detail the other supplements I take at times
Title: Re: Priapus shot
Post by: Chef Chris on May 25, 2014, 10:55:55 AM
Ok thanks incautious i will start poping arganine again tonight.
Title: Re: Priapus shot
Post by: powderpowder on May 27, 2014, 02:06:14 AM
A couple questions regarding PRP...

What is being injected into you?

Would PRP help flaccid hang better, thus making your stretched flaccid length results better?  Also, would a PRP injection be good for a person who is on the road to an implant?

Is it a botox like substance or something else?

Title: Re: Priapus shot
Post by: james1947 on May 27, 2014, 04:44:32 AM
powderpowder

They are taking 60 cc from your own blood, usually from your arm, same as for lab tests.
Using a centrifugal machine, they are concentrating the PRP to 10 cc and injecting you into your penis, in 2 to 6 places, depends on the plaques.
PRP helps flaccid hang better, but you it will not making your stretched flaccid length results better in the short term.
I don't know in the long term, I have to wait and see. Theoretically, if it is softening the plaques or making them disappear, your stretched flaccid should be longer.
In my private opinion it may improve the results of the implant.
Botox is a substance, a chemical injected to your body, so PRP, as I explained before is a completely different thing.

James
Title: Re: Priapus shot
Post by: incautious on May 27, 2014, 07:34:12 AM
powder, Cant say if PRP is good for a person who is on the road for an implant, but I would always consider surgery as a last resort as there is always the small possibility that something can go wrong. Using your own blood prevents any complications and the cost is much less. As for flaccid, a couple of guys have asked me that question and for pics. I personally have seen a dramatic increase in flaccid lengthen and girth. I did not take any before shots of my flaccid state as I've always viewed flaccid state as a non issue as in most instances one cannot tell much of anything from that state. My uro was able to easily find my plaque in that state even though I showed no signs of Pyronies while flaccid. I can't wait until 6/12 which is my next visit with him to see what he says about the plaque.
 I originally said that I did not think that I would post any new pics for awhile as I have not seen any more reduction in curvature. I have, however, still  been seeing increases is length which surprises me. I've been documenting this in pics for my own personal  record in order to track my results. Since almost everyone here has lost length and that this is the 16th week since I got my shot, I will try and get something up in a day or two.
Title: Re: Priapus shot
Post by: dioporcolorisolvo on May 27, 2014, 09:05:18 PM
Update after 4 weeks since the shot.

Unfortunately since 1 week i notice a worsening of the situation.
Compared before the shot, i notice only a better curvature, but the girth, the lenght, and the hardness of fibrosis in the maximum erection seem the same compared before the shot.
I don't know what to say...

Title: Re: Priapus shot
Post by: james1947 on May 27, 2014, 10:46:47 PM
I understand you are disappointed Dio.
I can say the same after the second PRP injections session, three weeks, no new development.
I will wait to the 8 weeks mark, but in any case I will make a new session in the beginning of July.

James
Title: Re: Priapus shot
Post by: Chef Chris on May 28, 2014, 02:14:53 AM
I will have my second round today double dose this time I haven't seen any improvement yet ether after 4 weeks but I hope this second round will do the trick I am prepared to get more shouts if I se some improvement whit this one other wise I will save my money for something else
Title: Re: Priapus shot
Post by: james1947 on May 28, 2014, 02:23:51 AM
Good luck Chris with the double dose.
Hope it will work for you.

James
Title: Re: Priapus shot
Post by: Chef Chris on May 28, 2014, 02:33:30 AM
Thanks James
Title: Re: Priapus shot
Post by: incautious on May 28, 2014, 07:15:27 AM
dio, you see a reduction in curvature and that's a bad thing?
Title: Re: Priapus shot
Post by: incautious on May 28, 2014, 08:42:45 AM
dio your mail box is full
Title: Re: Priapus shot
Post by: incautious on May 28, 2014, 08:56:43 AM
16 week pics are posted in surgery child boards. Comments about them should be kept there as to not make this already long post even longer
Title: Re: Priapus shot
Post by: dioporcolorisolvo on May 28, 2014, 11:14:39 AM
A better curvature is a good thing, but my main problem is the loss of girth provoked by the hardness of the tissue...

Now my mail box is not full :)
Title: Re: Priapus shot
Post by: fredjones on May 28, 2014, 02:46:12 PM
those that have taken the shot...are you still pumping?   what have your drs. said about having to continue pumping?  forever to maintain or for a certain amount of time?  the place i'm looking at just said that they are following runnels protocol...
Title: Re: Priapus shot
Post by: james1947 on May 28, 2014, 06:32:31 PM
Dear friends.
This topic is about results from PRP and not debate to do or not to do PRP shots.
The debate topic on PRP is here:
Debate on Pripapus/PRP efficiency for Peyronies - Peyronies Society Forums (http://www.peyroniesforum.net/index.php/topic,4920.0.html)
The posts debating PRP were moved to the above topic.

James
Title: Re: Priapus shot
Post by: incautious on May 28, 2014, 07:16:21 PM
fred, I believe that Runnels says to pump for 12 weeks. I don't remember if there was any specification for anything longer. I'm pumping because I still see improvement, and will continue to do so until things taper off. Then I would probably pump just to try and maintain my results and hopefully keep Peyronie's from ever returning
Title: Re: Priapus shot
Post by: incautious on May 29, 2014, 07:25:45 AM
dio, you are showing major improvement already after only 4 weeks. Be patient it takes time, Just as your loss of girth did not happen overnight so improvement will not happen over night. As one person has said here " keep pumping and keep stretching" It was between 6 and 8 weeks when things really started to happen for me.
Title: Re: Priapus shot
Post by: Japanfour on May 29, 2014, 11:02:29 PM
dioporcolorisolvo,

If everything has remained the same and the only thing that's changed is a reduction in curve...how are things worse?
Title: Re: Priapus shot
Post by: dioporcolorisolvo on May 30, 2014, 10:27:05 AM
I have never said that things are worse.
Title: Re: Priapus shot
Post by: james1947 on May 30, 2014, 10:34:38 AM
Dio

What confused Japanfour is your sentence from one of your posts:
Quote
Unfortunately since 1 week i notice a worsening of the situation.
From the next sentence on your post can understand different:
Quote
Compared before the shot, i notice only a better curvature....

james
Title: Re: Priapus shot
Post by: dioporcolorisolvo on May 30, 2014, 10:07:29 PM
Ok, i wanted to say that i noticed a worsening of situation compared the first three weeks after the shot, not compared before the shot.
Title: Re: Priapus shot
Post by: james1947 on May 30, 2014, 10:13:17 PM
Clear Dio :)

James
Title: Re: Priapus shot
Post by: edzo67 on May 31, 2014, 11:43:23 PM
James1947, I was concerned where my comments from the priapus shot thread were moved to? and why they were removed in the first place? are members not allowed to share concerns here? where would be the best place to do that? Thanks edzo
Title: Re: Priapus shot
Post by: Chef Chris on June 03, 2014, 03:04:08 PM
Ok so it's been 5 weeks since my first injection 4,5 ml and 1 week tomorrow since my second injection 9 ml so far no improvement actually the plaque on my left side is bigger I read on line that I made a mistake I have bean eating fish oil and pentox and other supplement before and after the first treatment and also fish oil until the day before the second treatment I am off everything now but I wonder if this has effected the treatment some how I have also been using traction everyday for 3 hours I wonder if that might have had a negative impact on the wound healing (I read on line that people ho are doing this for sport injury is suppose to rest the injured body part after injection) then again Incautious is doing traction everyday and he is the one ho has had the best results besides MIKEHAWK. Then again maybe I just is experiencing some bad luck or maybe this just don't work for everybody I don't know but it's very frustrating. Anybody have any tips for me?
Title: Re: Priapus shot
Post by: james1947 on June 03, 2014, 05:46:58 PM
Chris

As I have reported, after second PRP I don't see yet improvements also.
I don't have any tip, except to say that myself waiting to the 6 & 8 weeks mark to see if something will happen.

James
Title: Re: Priapus shot
Post by: yyy on June 06, 2014, 12:20:37 AM
James,

Where did you have your PRP?
Is it possible to get some local anesthesia before the injections??

Do you all know a reliable doctor in Europe? Thanks
Title: Re: Priapus shot
Post by: james1947 on June 06, 2014, 01:25:17 AM
YYY

I am getting my PRP in Bali. The doctor proposed me local anesthesia but I wanted the numbing cream to avoid additional injection and because this what they are doing in the US.
Regarding doctors in Europe, I was writing to the doctors involved in the French trial:
Recent French article : New treatment ??? (own plasma with hyaluronic acid) - Peyronies Society Forums (http://www.peyroniesforum.net/index.php/topic,5004.0.html)

James
Title: Re: Priapus shot
Post by: chandnitare on June 06, 2014, 05:05:11 AM
Hi,

Some general question regarding PRP to those who are being treated :

1. Can take it while disease still progressing?

2. Can take it after one or two years after the first cycle ?

3. Will it help to grow new tissue? or how it repairs plaque?

4. Will it help to reduce calcification?

5. What is the bad thing about it?

Sorry, some questions might be answered already somewhere in the forum , still I think the answers will be helpful as a ready reference for all who is following PRP issues here.

Best regards,

Chand
 
Title: Re: Priapus shot
Post by: liber on June 06, 2014, 06:23:14 AM
chand

no one knows the answers to your questions. if they say they do i would not trust their words.
Title: Re: Priapus shot
Post by: james1947 on June 06, 2014, 05:50:29 PM
Chand

I will second liber:
Quote
no one knows the answers to your questions.

James
Title: Re: Priapus shot
Post by: incautious on June 09, 2014, 01:45:05 PM
Chand, the theory is that you can grow new cells which may generate new tissue. It's the same theory as using an extender. You use an extender which causes micro tears. The bodies response is to repair the damage with new (stem?)cells, which can turn into tissue. Much like a cut on your hand forms a scar after it's healed. All this is supposed to happen on a microscopic level, which can take  time. PRP is thought to help speed up this process by tricking your body into thinking that it is injured. The bad is it may not work for everyone and your out $1500 or more. read the post on the french study about PRP, as it is the first real scientific study on using PRP for peyronies.
Title: Re: Priapus shot
Post by: chandnitare on June 09, 2014, 06:05:30 PM
Hi incautious,

Thanks for your 2 cents. So VED is working same way of traction? Yesterday I find  doctors here who agreed to give PRP shots to me while no doctor I find really understand what Peyronies Disease is! I show them your PRP stories and they are convinced to give a try. I have sent u an inbox pls reply.

Best regards,

Chand
Title: Re: Priapus shot
Post by: NeoV on June 10, 2014, 12:08:56 AM
Traction and VED are not the same.
The benefit if VED after prp is to get the blood into the small injured areas of the penis.
Title: Re: Priapus shot
Post by: incautious on June 10, 2014, 07:37:08 AM
 what NeoV said for PRP is correct. What I was saying is that traction and VED works in the same way, in that basically you are creating micro tears, and your body is trying to repair the tears. You want to use VED because you to want to distribute the PRP through out the area, not just the 4 or 5 locations where they inject it. You want to keep using VED in order to try and keep the PRP localized for as long as possible. Part of the argument about PRP( weather it is true or not, I don't know) is that you get wash out, which means that it does not stay localized in one area for a long time even thought you are injecting into tissue. It is thought that VED helps keep it there longer. That's also why it is very important to use the VED in the Doctors office right after one gets the shot.
Title: Re: Priapus shot
Post by: incautious on June 16, 2014, 07:18:29 AM
My appointment with the Uro of Friday went very well. He could not locate any plaque at all and said everything appears to be 100% normal. Since I did have plaque present at the time I received the Priapus shot, one has to conclude that this procedure did indeed help in making it go away.
Title: Re: Priapus shot
Post by: chandnitare on June 16, 2014, 09:17:57 AM
I am scheduled to have PRP in August 11, 2014. Before that I shall be watching the results for those who are having it now. My doctor never do it for Peyronies Disease but for other skin problems. In fact, he heard it from me for the 1st time that PRP can be done for Peyronies Disease.
 
incautious: very encouraging indeed!

Specially following the results of James1945 after his 2nd shoot!
Title: Re: Priapus shot
Post by: incautious on June 16, 2014, 09:26:59 AM
Chand, thanks. Make sure you take a pic so your Dr. can get an idea of where to inject. Keep in mind that they have to avoid the veins( that's why they inject into the sides, but you want them to inject close to the plaque.
Title: Re: Priapus shot
Post by: james1947 on June 16, 2014, 05:42:30 PM
Unfortunately at the 6 weeks mark, no new developments.

James
Title: Re: Priapus shot
Post by: chandnitare on June 16, 2014, 10:41:03 PM

incautious,

Noted your advise with many thanks.

James,

after 2nd shot there is no further development for last 6 weeks. But u did have good improvement after the 1st shoot! That improvement still present? If yes, how do u rate the experience? Even for that much improvement one should go for it, right?
 
Title: Re: Priapus shot
Post by: james1947 on June 17, 2014, 01:17:52 AM
The improvements I had after the first shots are still there.
The improvements after the second shots are very limited, but I am waiting the 8 weeks mark and will make the third session.

James
Title: Re: Priapus shot
Post by: IhatePD on June 17, 2014, 03:26:25 PM
Hey everyone, tomorrow I am going for my PRP shot with Dr. Varano in the Philadelphia area. I am optimistic but I really don't like the idea of a needle in my penis.

I will go the PRP route first although logically, I think that I should go with Xiaflex first and then PRP. If I don't see the results I want with PRP, I may go with Xiaflex next. That's assuming I don't chicken out due to the needles tomorrow.

I will keep everyone posted. I have current pictures but not measurements. I can't manage the camera, ruler and erection all at the same time. I am more concerned about the angle and healing than increased size, although I sure would love to be back where I was before Peyronies Disease.

My girlfriend loves my dorsal curve but it still freaks me out.
Title: Re: Priapus shot
Post by: UrsusMinor on June 17, 2014, 07:43:48 PM
Personally, I think you're doing it in the right order. So far the main downside to PRP might be that it doesn't work, so you're out some money.

Some of the side-effects shots I've seen of XIaflex make me a bit nervous!

Best of luck, and keep us posted!
Title: Re: Priapus shot
Post by: chandnitare on June 17, 2014, 07:46:32 PM
IhatePD,

Anxiously waiting your result.

Wish you all the best! Pls do share the procedure step by step so that we can be benefited.

Best regards,

Chand
Title: Re: Priapus shot
Post by: loyalty on June 17, 2014, 10:37:06 PM
It has been 7 days since I had 8cc PRFM (Selphyl, not Priapus).  I received 4cc each side, after having received a single 4cc injection in December 2013.  One injection was under the plaque which is located in the L corpora and involves the septum. The other was in the R corpora immediately opposite from the L sided plaque.  I was originally scheduled to have this done on 5/20/14 but there was a scheduling conflict.  I have just resumed VED today and was pleasantly surprised to see a 1 cm length increase at -10mm Hg from my last VED session which was 8 days ago.  I know that the Priapus patients are advised to use VED immediately after their injections and twice daily thereafter.  I continue to believe that the better strategy is to have no induced erections, such as VED for 1 week after the injections.  PRFM is platelet rich plasma suspended in a fibrin matrix, so it is essentially a "blood clot", that is injected near the plaque and intended to release the platelet factors responsible for wound healing into the immediate area of the wound (plaque in the case of Peyronies).  An erection, especially one caused by a VED using -10mm, will bring a large amount of blood into the chambers for 10 minutes, then when the vacuum is released that large amount of blood leaves the chambers, and likely carries some of that blood clot and platelet factors with it, hence the term "wash out".  The strategy of using VED immediately after and subsequent to the injection was developed by Dr Runels (who is not a Urologist), and was intended for penile enlargement.  The strategy of avoiding wash out was developed by a Urologist, Dr Terlecki, for treatment of Peyronies.
Title: Re: Priapus shot
Post by: james1947 on June 17, 2014, 11:16:35 PM
loyalty

One cm gain is great!!!
I have still the dilemma of to use or not VED in the first week after the next PRP. ???

James
Title: Re: Priapus shot
Post by: chandnitare on June 18, 2014, 12:25:40 AM
Hi Loyalty,

Good logic about VED or not. You can ignore my inbox to you, as all my questions are answered in your feedback here. Thanks.

Hi all,

I want to know PRP shot is to given under/near the plaque or into the plaque?

Regards,

Chand
Title: Re: Priapus shot
Post by: incautious on June 18, 2014, 10:15:38 AM
Peyronies Disease . good luck. The shot really isn't too bad. Just put the numbing cream ALL over your manhood.
Title: Re: Priapus shot
Post by: incautious on June 18, 2014, 10:30:09 AM
Loyalty. Interesting about the PRFM. I believe Runnels experimented with fibrin matrix in trying to get a bigger bang so to speak, but I don't know what happened with that. I think that he also was trying HGH too, but can't remember. 1 cm in a week is impressive. I saw immediate increase in girth but took about a few weeks to see an increase in length. Once urologist's embrace  PRP and perfect it , I'm sure that this procedure will be common place for treating Peyronies. My neighbor just had PRP injected into her shoulder. She could not even lift her arm more that a few inches. After a week she could raise her arm over her head. Simply amazing, and she was in a lot pain, and now there is none. So again the theory of PRP is a sound one in helping to heal injury's. 
Title: Re: Priapus shot
Post by: IhatePD on June 23, 2014, 04:28:46 PM
Hi everyone, just a quick update as I have been away since my PRP shots last Wednesday.

The shots were not fun but bearable with the numbing cream. I have a little more plaque on my top left side (all of it is on my dorsal side) and the shot where most of the plaque is located was the most painful. Dr. Varano injected the needle through my plaque and injected the PRP just under it.

I can see a slight increase in girth on my left distal side of my penis where I have narrowing. I did have sex Saturday night, three days afterwards and it was really pretty good without discomfort. I am definately thicker where I had narrowed previously but I would say no effect on the curve yet. I am sure it is too early for it to help.

Unfortunately, I am having a prostate issue right now which is unrelated to the PRP. I had this before and I think it might have indirectly led to my Peyronies Disease. I am bleeding in my urethera where it passes through the prostate. In November 2011, I had the same problem and it is hard to stop because it is caused by the enlarged prostate forcing me to strain the urine through, causing the urethera to scrape and cause bleeding where it passes in the prostate. As it starts to cooagulate, it blocks the urethera and everytime you force urine out it starts bleeding again. Back then, my urologist did a cytoscopy where the put a camera through your penis into your bladder to check for cancer, etc. To begin the procedure, he injects novacaine through the penis and into the bladder and put a "clamp" on my penis to hold it inside me while it takes effect. Six months later, I developed my first sign of Peyronies Disease exactly on the spot the clamp was applied.

So, that is happening right now which really suckds because I am leaving for a five day camp trip on Wednesday and I am not going to be near any sort of medical facilities and the possibility of getting clogged up enough to require a catheter is very real.
Title: Re: Priapus shot
Post by: james1947 on June 23, 2014, 08:13:40 PM
IhatePD

Wish you good results with the PRP, keep updating us.
Wish you also to have a pleasant camp with no urinary problems.

James
Title: Re: Priapus shot
Post by: NYC on June 23, 2014, 09:09:16 PM
Can anyone recommend a urologist in or near NYC that will perform the priapus shot? My urologist is clueless about peyronie's.
Title: Re: Priapus shot
Post by: james1947 on June 24, 2014, 03:51:20 AM
Directory | Priapus Shot (R) (http://www.priapusshot.com/members/directory/)

James
Title: Re: Priapus shot
Post by: Chef Chris on June 26, 2014, 12:35:04 AM
Hi everybody it's bean a while since I have posted but here comes a update. It's bean 4 weeks since my second injection an I finally started to notice some improvement my curve has gone down from a 30 degree dorsal to a 20 degree dorsal and my big plaque on my right side has become smaller and on the left side where I have a long plaque it has dispersed on some of the area. I am feeling confident now that this will work and are planing to do a third injection in July.
I have bean pumping and holding 10 min in the morning and 10 in the evening everyday and I have also bean wearing traction for 3 hours everyday.
Title: Re: Priapus shot
Post by: incautious on June 26, 2014, 07:31:56 AM
chris, congrats!!! 4 weeks is when is when I started seeing major improvement so hopefully you are on the same track. As noted earlier, my plaque is now completely gone as of my last appointment with my Urologist, so here's hoping that you get the same result. Good luck and God bless
Title: Re: Priapus shot
Post by: james1947 on June 26, 2014, 07:32:39 AM
Chris

Encouraging results.
Keep us updated.

James
Title: Re: Priapus shot
Post by: chandnitare on June 29, 2014, 01:02:40 AM
Chris,

Congrats!

Very much happy for your result.

Did u do VED just after the shot?

Best regards,

Chand
Title: Re: Priapus shot
Post by: Chef Chris on June 29, 2014, 02:44:50 PM
Yes i did I pumped to fully erect and hold it for 10 min
Title: Re: Priapus shot
Post by: UrsusMinor on July 01, 2014, 09:17:18 PM
Well, I've decided to join the crowd and get the shot. I'm not going to do it until late August, as I have a lot of travel until then, and don't think that sitting crunched in an airline seat is good for my junk, whether healing or otherwise.

I'm going to go with Jason Sachman, MD, at Total Male in San Jose, CA. He's done a handful of Peyronie's patients already, including one of our forum participants. (I won't name our forum participant, as he PM'Erectile Dysfunction me the contact, for which I am grateful. But he's welcome to step up and take credit if he likes.) The Doc is easy to talk to, sounds totally sane, and has even done the injections on himself to make sure he understands the experience. (My hat is off to him in that regard. I wish more docs were self-experimenting.)

I can't guarantee any ultrasound details. I will try and get before and after pics taken from the same distance and angle, even though I never thought I'd be posting pictures of my penis on the internet. (Especially in its present state.) I now wish I'd taken pics of myself, with rulers and all, before onset, but I used to think that was the kind of thing only crazy people would do. As Vonnegut titled one of his story collections, Welcome to the Monkey House!
Title: Re: Priapus shot
Post by: incautious on July 02, 2014, 10:12:36 AM
ursus. Good Luck. make sure you bring pics with you to the Dr. so that he gets a good idea of where to inject. There are now twice as many Dr's now doing this procedure compared to last year. It is becoming more and more accepted. Be diligent about pumping!
Title: Re: Priapus shot
Post by: james1947 on July 02, 2014, 10:37:07 PM
I am sorry to post a non positive result, but 8 weeks after my second session of the PRP injections the results are nothing.
I mean even the improvements I posted after the first session have gone.
I am planning to get the third session in a month.

James
Title: Re: Priapus shot
Post by: chandnitare on July 03, 2014, 04:36:20 AM
James:

Very sorry to your final outcome. Anything to think about the clinic who are doing PRP?
Would you consider not to do VED during third session?


Any one else here with such no improvement?

Best regards,

Chand
Title: Re: Priapus shot
Post by: Knight on July 03, 2014, 05:43:23 PM
Very sorry James.
Title: Re: Priapus shot
Post by: Nordicz on July 03, 2014, 07:30:29 PM
James,

I'm sorry to hear your outcome wasn't positive. Don't loose faith and keep positive.

Z
Title: Re: Priapus shot
Post by: james1947 on July 03, 2014, 07:42:05 PM
No, I am not losing faith, this is the reason I will make the third session of PRP.
It seems to me that PRP, like any other Peyronies treatment it helps some, but not all.
Regarding VED, next time I will not use and will see the results.

James
Title: Re: Priapus shot
Post by: UrsusMinor on July 03, 2014, 09:53:45 PM
I had a nice chat with the doc I'm considering, and he thought the strongest effects of the injections seem to come after a number of months.

But he also said that results vary, and that Peyronie's is a mysterious disease--and that it might actually be more than one disease in the first place. Judging from what I hear around here, I can believe that.

I haven't had this condition very long, but I'm 60 years old, so I'm not expecting miracles.

On the other hand, a miracle would be okay.
Title: Re: Priapus shot
Post by: NeoV on July 03, 2014, 10:17:45 PM
Sorry to hear that James!

Ursus I get the same feeling as well. Peyronie's comes with a bunch of other issues it seems or is a result of them. My impression is that PRP injections are fairly low risk, and after all, we have not heard of a case of scarring after a shot yet. Though perhaps even that would be inevitable eventually.

Still, it seems low risk and effective for some, and this is why I haven't been to critical of it so far. Compared to surgery or Xiaflex, PRP is cheap, and moreover safe.

More than anything I'm just curious how your experience with it (and others) from here on out will go! I do plan on getting it next time I'm in the states.
Title: Re: Priapus shot
Post by: George999 on July 04, 2014, 07:36:14 PM
I agree with Neo and other posters here as to Peyronie's.  I consider it more of a syndrome than a disease.  It is a result of healing dysfunction in the tissues and there are probably numerous factors that provoke it which can vary by individual.  Nevertheless, Priapus shot will have to be judged more on its long term results than short term.  Until some of you who have undergone treatment have a few years under your belt, the benefits, or lack of, are really not going to be clear.  But we all owe a big debt of gratitude to those of you who are willing to pay for this treatment and give it a try.  Hopefully you will ALL let us know how you are doing as time goes on and not just drop out of sight if things are disappointing.  All information is extremely valuable, even negative information.
Title: Re: Priapus shot
Post by: emasculated on July 04, 2014, 08:49:05 PM
@George999: I have read some of your posts. Apparently, you suffer from this now for 13 years? You have amassed almost 3000 posts. I'm just wondering whether you still think there is going to be any progress in your lifetime and where you get the motivation from to hope for decades and decades. (Sorry for picking you out like this)
Title: Re: Priapus shot
Post by: UrsusMinor on July 04, 2014, 11:46:49 PM
Hopefully you will ALL let us know how you are doing as time goes on and not just drop out of sight if things are disappointing.  All information is extremely valuable, even negative information.

Right on!
Title: Re: Priapus shot
Post by: George999 on July 05, 2014, 01:04:30 AM
@George999: I have read some of your posts. Apparently, you suffer from this now for 13 years? You have amassed almost 3000 posts. I'm just wondering whether you still think there is going to be any progress in your lifetime and where you get the motivation from to hope for decades and decades. (Sorry for picking you out like this)

No problem!  You have to understand that back when I started on this adventure, there was nothing really.  Pentox was being touted, but was still largely inaccessible.  The stuff the docs were giving Peyronie's patients back then were no better than sugar pills.  Some guys were finding VED extremely helpful but most docs were still not supportive of it.  Since then we have both Pentox and CoQ10, both were very effective in my case and even more effective combined.  Additionally, during that time a lot of docs have embraced VED and traction, and the community that makes up this forum had a lot to do with that.  My condition pretty much stabilized long ago.  A couple of flare ups were easily and instantly controlled by Pentox.  So I am very thankful actually that after literally centuries of a "you just have to live with it" attitude from the doctors, we now within the last few years have multiple resources available.  When you really look back on my story as I perceive it, you will understand why I am more hopeful now than ever.  The guys on this forum are trying all sorts of things and the researchers are working on things like Xiaflex and we are learning new things every day.  Most things, of course, won't work out.  But every now and then, something will, and the cumulative effect of all of this will be to continually increase our quality of life over time.  If you think things are depressing now, you can't imagine how much more depressing they were a few years back.  I am just so happy with the outlook today, medically.  Other areas, not so much, but in the area of medicine we are on the cusp of huge breakthroughs across the board.  Of that I have no doubt.  So why sulk in a pity party?  You have to have patience, learn everything you can and apply as much of it as you can.  Not only in terms of treatments, but also in terms of diet and lifestyle.  It can change your life and make it so much richer.  It can also save you from far worse things than Peyronie's coming your way in the future.  I am thankful in that regard for Peyronie's.  Who knows what it might have saved me from?  I much prefer it to end stage heart disease, liver disease, kidney disease, cancer, and so many other things that are so much more devastating than Peyronie's.  Peyronie's only takes you down if you let it conquer you.  Once your life is no longer centered around yourself, the burden becomes a whole lot lighter.
Title: Re: Priapus shot
Post by: james1947 on July 05, 2014, 06:55:28 PM
Thank you for the good advice George:
Quote
Peyronie's only takes you down if you let it conquer you.  Once your life is no longer centered around yourself, the burden becomes a whole lot lighter.

James
Title: Re: Priapus shot
Post by: Chef Chris on July 08, 2014, 05:02:45 PM
James I am sorry to here that your not having any progress I hope it will turn around for you soon
Title: Re: Priapus shot
Post by: james1947 on July 08, 2014, 07:30:02 PM
Will see after the third shots.
If also no significant improvements, the only thing will be an implant.

James
Title: Re: Priapus shot
Post by: IhatePD on July 10, 2014, 02:40:49 PM
Hello all I just want to give an update.  I got the PRP shot on June 18th and did my VED for the first week. I was supposed to go away camping on June 25th but that didn't happen. as I mentioned in my last post I had an issue with a bleeding prostate which happened 3 years earlier also.

Well, I went to my urologist on the 24th and then straight to the emergency room and in the hospital for 8 days.  I had a ruptured blood vessel in my prostate that they couldn't get to stop bleeding. The last 16 days of my life have been a living hell that's hard to explain. I've had 6 different catheters, a sysoscopy cauterization of the prostate, emergency room visit last night to irrigate and change a blocked catheter making it three times I almost ruptured my bladder. The ultrasound for bladder retention only measures up to 1,000 cc's and I emptied over 1,400 cc's in just five minutes after they out in the new catheter.  The pain was unbelievable.

In the last 16 days the amount of pain and abuse I've taken on my penis, urethra, prostate and bladder is beyond what I can explain. I've had a catheter inside me the whole time except for one day, this passed Monday when we took it out had to put it back in yesterday after I couldn't pass urine, only to have that catheter block sending me to the emergency room last night.  I have to keep this catheter in me until at least this coming Monday.

Ultimately, I will probably have to have prostate surgery, Transurethral Resection of the Prostate (TURP). I am not happy about that either.

I can't give an update on my PRP because I haven't been able to have an erection during this time and of course no traction or VED. I've got to say as bad as Peyronies Disease is, when you can't urinate and you're about to explode your bladder, Peyronies Disease doesn't even enter the picture.

I have no idea what is happening since my PRP shot but I will let you know as soon as I do. I've got to say that I am very concerned about all the objects that have been jammed in and out of my penis. I don't want to think about the possibility of more damage leading to more Peyronies Disease, but now I can't help but think about it.
Title: Re: Priapus shot
Post by: Nemo on July 10, 2014, 03:08:38 PM
My god man, I'm so sorry about the hell you're going through.  Truly sounds horrible and I know the Peyronie's drifts in and out of your consciousness in the midst of all this.  All I can say is we're pulling for you and wish you the best.  Hang in there and take care of each challenge in turn ... the prostate/bladder is issue is obviously No.1 ... deal with Peyronie's when things settle down.  Peyronie's can be your "long game" ... this other stuff is hopefully a short-term challenge. 

Best,
Nemo
Title: Re: Priapus shot
Post by: james1947 on July 10, 2014, 06:45:55 PM
IhatePD

Sorry to read what you are going true.
Wish you all the best, my prayers with you for successful outcome from everything you will do.

James
Title: Re: Priapus shot
Post by: dioporcolorisolvo on July 10, 2014, 08:12:08 PM
I did Priapus Shot in 30 April 2014.
After 2 months and half, i've seen no changes in dimensions.
I didn't repeat the treatment.

An italian urologist, after an ultrasound of penis, said me that my disease is stabilised, the situation in his opinion is not grave, but in these years i've lost the elastic fibers and this has provoked the loss of girth.
This situation very likely is not reversible.

In other words, i've not more a fibrous but tissue is not elastic as before.

The life is beatiful....
Title: Re: Priapus shot
Post by: james1947 on July 11, 2014, 02:36:03 AM
Sorry Dio the PRP didn't helped you.
It didn't helped me either, but I will make a third treatment soon.

James
Title: Re: Priapus shot
Post by: yyy on July 11, 2014, 08:50:27 AM
Hi dioporco (ahah bel nick :D)

Did you have a fibrosis before your prp injection? If so, Did it dissolve? This would be a great result
Title: Re: Priapus shot
Post by: RoyHobbs on July 11, 2014, 07:35:05 PM
James-

I thought you saw some improvement in your Erectile Dysfunction?

Also if it hasn't worked why go for a 3rd round? Just curious.
Title: Re: Priapus shot
Post by: james1947 on July 11, 2014, 07:58:26 PM
Roy

I had some Erectile Dysfunction improvements after the first shots, but now all are gone, back to phase 1.
The reason I want to try the third time is to give it one more chance. I am taking in consideration that the poor results are maybe because of my not too healthy life stile.
I am paying $ 180 for one session of shots, so is not too much to give it a last chance.

James
Title: Re: Priapus shot
Post by: RoyHobbs on July 11, 2014, 11:55:31 PM
Yes, 180 is not bad at all. So why not!

I wish you luck.
Title: Re: Priapus shot
Post by: Bjbroken on July 12, 2014, 08:07:28 AM
180.00 seems very reasonable, what are guys paying in the US?
Title: Re: Priapus shot
Post by: UrsusMinor on July 12, 2014, 01:49:51 PM
Costs used to be about $1,800-2,000 in the US, but it seems to be falling. I'm hearing $1,600 and even $1,400, and it wouldn't surprise me if it is available cheaper from some folks.

Still, it's so much cheaper in Indonesia that if you could get a discounted fare it might be about the same to get the shot in the US, or get it in Indonesia and have a vacation at the same time!
Title: Re: Priapus shot
Post by: james1947 on July 12, 2014, 05:52:16 PM
The first session was much more expensive at $ 200 ;D
Second I got 10% discount so became more cheap at $ 180. ;D
Regarding holiday, when you are living here you feel always in holiday, even while you are working and it is dangerous because you get lazy 8)

James
Title: Re: Priapus shot
Post by: yyy on July 13, 2014, 07:07:36 AM
I have some questions for you all.

How Many Cc of blood do they take and how Many cc do they inject?

Any reliable doctor here in Europe? Thank you
Title: Re: Priapus shot
Post by: james1947 on July 13, 2014, 04:50:00 PM
In my case, because my platelets counts are around 1,000,000 the quantities were different that usual.
Extracted 30 ml, injected 9 ml.
Usually should be 60 ml extracted for 10 ml PRP.

James
Title: Re: Priapus shot
Post by: fredjones on July 21, 2014, 09:03:49 AM
Getting my shot early august..still unsure about doing it.  some fear, some uncertainty.   haven't seen any updates recently from others. you other guys that have had it, can you give some updates, positive or negative?
Title: Re: Priapus shot
Post by: incautious on July 22, 2014, 07:39:18 AM
fred, nothing new to report in my case. Every thing seems to have leveled off.  My plaque is gone, and every thing else is the same as back at the 16 week mark. For me it was money well spent.
Title: Re: Priapus shot
Post by: NeoV on July 24, 2014, 11:33:00 AM
I also plan to go to Totalmale to see dr. Sachman in San Jose this September and am making plans now. Since my scars seem soft ( if they are scars ) I'm quite hopeful. Any more improvement at this point and I'll be without a doubt in pre-peyronies condition.

Regardless of whether the prp works or the benefits are from the fluid injected expanding the tissue, I'm going to try it. I'll take plenty if pictures showing my deformity before hand, flaccid, partially erect, and max, so we can all have a good look. I already have plenty :)

By the way, Mentos where'd you go?
Title: Re: Priapus shot
Post by: UrsusMinor on July 25, 2014, 11:18:20 PM
Fred, if you don't mind my asking, who are you thinking about going to for the shots? I think it would be good if we could track who we visit. Most of the members who have done the shots have said who they saw--although I haven't been able to locate the doctors seen by MikeHawk and Mentos.

I'm tentatively scheduled to do the PRP shots next week with Jason Sachman (the same guy Neo is seeing in September). Sachman has already done one of the other guys from this forum. That's  one of the reasons I was comfortable with going to him, even though he's 400 miles from me. (There is another guy 7 miles from my house, but as far as I can tell he hasn't treated anyone from this forum and apparently hasn't used the shot for Peyronie's. So I'd rather jump on a plane and use somebody who has at least one endorsement from someone I trust.)

Sachman has done a lot of Priapus shots. Only three of those have been for Peyronie's, I believe, but in the world of Priapus therapy for Peyronie's that makes him pretty experienced. (After I and Neo have both seen him, he may have caught up with Varano, who seems to have treated more PDS forum members than anyone.)

I admit that, like FredJones, I'm a little nervous. I've been dithering about it. My first symptoms emerged in February of this year, so nothing is really stabilized yet, and part of me wants to think oral meds and VED could completely reverse things.

On the other hand, maybe the shots will do more for me if I do them sooner rather than later.

Most of the people on this forum who have done the shots were happy with the results; a few had no change, or had improvements that then disappeared. But so far no one seems to have reported a problem from it. So it seems like a pretty minor commitment compared to implants, or surgery, or even Xiaflex.


I'm not expecting miracles--though I'd be happy to have one!

--------------------------------------

And, yes, I have taken a BEFORE photo from a standardized, reproducible height and distance, with a bone-pressed ruler for reference. I may not have a whole gallery, like Neo, but he's living in Japan, where they take pictures of everything.
Title: Re: Priapus shot
Post by: fredjones on July 26, 2014, 06:07:03 PM
I'm seeing Jason in San Jose also....in a couple of weeks....i'll let all know how things go.   looking more for increased sensation and trying to get off cialis (Erectile Dysfunction)...good luck to all.
Title: Re: Priapus shot
Post by: fredjones on July 26, 2014, 06:55:45 PM
Im also looking for recommendations for a VED.  the dr. is giving an encore vet-u with the P shot.  he said that i could get 80 dollars back if i buy another one. i just don't know anything out there effectiveness wise nor quality wise or ease of use.   your input will be much appreciated.
Title: Re: Priapus shot
Post by: NeoV on July 26, 2014, 11:56:57 PM
Hey fredjones, I haven't heard of that VED but my opinion is that any VED works, even a cheap sex toy one. The factors to watch out for are is it manual or battery operated? And how big or long is the tube? I recommend a manual pump for safety and convenience, but you may want to ask around.

VED is effective, and I highly recommend you research our VED forum. I consider it a near miracle device for penile health and reduction of deformity, but of course as with all things we have against this disease, some people are not helped by them (it would seem). Check out the forum section and message Old Man with any questions, he's the most experienced with VED here.
Title: Re: Priapus shot
Post by: fredjones on July 27, 2014, 09:26:35 AM
thanks again for all your help.  Old Man has contacted me and has also helped a lot
Title: Re: Priapus shot
Post by: Nemo on July 28, 2014, 11:03:31 AM
Here's an article published today in the Washington Post on PRP - I can't link to it since it's a pay site, but am attaching the text pasted here. - Nemo


Jury still out on plasma therapy

CHRISTIE ASCHWANDEN
THE WASHINGTON POST

    They might as well call it magic. One clinic’s website dubs platelet-rich plasma (PRP) therapy “revolutionary.” Other purveyors call it a “breakthrough” and “a paradigm shift.”
    The treatment involves injecting concentrated platelets, taken from the patient’s blood, into the site of injury to speed recovery. Stories of PRP’s use by high-profile athletes have turned it into a lucrative business.
    Tennis star Maria Sharapova turned to it for a shoulder injury, and Hines Ward used it to overcome a knee injury in time to help the Pittsburgh Steelers win the 2009 Super Bowl. The PRP market was valued at $45 million in 2009, and it is expected to grow to $126 million by 2016.
    Yet the question remains: Does it work? The evidence remains questionable.
    In April, the Cochrane Collaborative, a group of independent medical experts, examined 19 trials of PRP for eight conditions and concluded that the evidence is insufficient to recommend PRP for musculoskeletal soft-tissue injuries.
    A PRP treatment begins with a blood draw from the patient. Next, the blood is spun to separate platelets from the other blood cells. The process creates a solution of concentrated platelets and growth factors that is injected into the injured area to promote healing.
    “We don’t know if it helps people,” says Frederick Azar, president of the American Academy of Orthopaedic Surgeons. “The clinical evidence is controversial.” Some studies show a benefit, some don’t, he says.
    A randomized, double-blind study published last year found that PRP outperformed a placebo for osteoarthritis of the knee. A review published last year noted increasing numbers of clinical studies of PRP, turning up positive and negative evidence for its effectiveness, but concluded that there is still little evidence that PRP works better than a placebo in most cases. Similarly, a review published in June concluded that there is “strong evidence” that PRP is not effective for treating tennis elbow. A randomized, double-blind trial published as a letter in the New England Journal of Medicine in June concluded that PRP was no better than a placebo for hamstring strain.
    The Cochrane review found that most studies are small and not definitive. The wide variety of methods used to deliver PRP and the absence of a standard methodology may explain why studies have reached such different results, Azar says: They’re comparing different ways of delivering the treatment.
    MANY USES
    Despite the lack of standardization and definitive evidence, PRP is used to treat a wide range of maladies, including chronic tendon injuries, acute muscle and ligament injuries, osteoarthritis of the knee, and to speed recovery from surgery and fractures.
    If PRP hasn’t been validated in studies, why is it in such widespread use? Because even without conclusive evidence, those who provide PRP believe in it.
    “We don’t have enough information to show that it works, but we believe it has great potential to work,” Azar says. “There’s little downside or risk that would prohibit us from offering this.”
    Some patients might point to the cost — which can range from $500 to $1,200 for a single treatment — as a downside. Most insurance companies won’t pay, since the treatment is experimental.
    But that doesn’t stop doctors and clinics from marketing PRP to patients, some of whom are desperate to return to their previous activities. “This is one of those things that falls between the cracks,” says Karen Maschke, a bioethics scholar at the Hastings Center in Garrison, N.Y., because PRP doesn’t fall under the Food and Drug Administration’s jurisdiction. As a result, patients have to rely on their physician to “do no harm,” she says.
    “Orthopedic medicine has a long history of pushing procedures and devices that don’t fall under FDA regulation,” Maschke says. “They’re engaging in entrepreneurial medicine.” Procedures such as PRP can generate a lot of income for doctors and clinics, and if the practitioners providing the treatment really believe in it, they may think they have a right to offer it, even if there’s not strong evidence to support it, Maschke says.
    DOING NO HARM
    When asked whether it’s ethical to market an unvalidated treatment, Azar replied, “I’m comfortable with it. My son has had a couple of these injections, and I’m comfortable because the downside from a patient-safety standpoint is minimal.”
    He doesn’t see the cost as a problem. “If the patient is fully informed and they want to do it and they want to pay for it, I think it is ethical,” Azar says.
    “Usually, I won’t offer it upfront,” says Bryan Murtaugh, a sports medicine physician at MedStar National Rehabilitation Network in Washington. He calls PRP “part of the spectrum of treatment options” and says he normally recommends other approaches first, such as physical therapy, medication, activity modification, bracing or even steroid injections.
    If those don’t work, “I always tell patients that it’s a treatment option,” Murtaugh says. “There is a part of it that’s still experimental.”
    Patients may not get this cautious message by perusing MedStar’s website, which describes PRP as a “paradigm shift” and refers to “convincing evidence of its efficacy” for certain problems.
    Murtaugh readily acknowledges that “studies have shown mixed results.” He can’t say for sure how effective PRP is. “It’s really hard to quantify anecdotally,” he says, and since he doesn’t systematically track its outcomes in his patients, he can make only ballpark estimates of what proportion of his patients benefit from the procedure. “I’d say at least two-thirds to 75 percent might see a partial response. Some people get a complete response, and a percentage don’t get any improvement,” he says. “I wouldn’t say it’s perfect science.”
Title: Re: Priapus shot
Post by: UrsusMinor on July 28, 2014, 01:57:56 PM
Thanks, Nemo.

“I’d say at least two-thirds to 75 percent might see a partial response. Some people get a complete response, and a percentage don’t get any improvement,” he says. “I wouldn’t say it’s perfect science.”

I'd settle for that!

Here is the Cochrane review mentioned. http://summaries.cochrane.org/CD010071/MUSKINJ_platelet-rich-therapies-for-musculoskeletal-soft-tissue-injuries (http://summaries.cochrane.org/CD010071/MUSKINJ_platelet-rich-therapies-for-musculoskeletal-soft-tissue-injuries) .

The authors of both the Cochrane review and of this Washington Post article are way behind the curve (oops--no pun intended, really, this is an edit!), since they are lumping many different kinds of treatments together. As the NY Times article we have previously discussed put it:

But, he said, there are fundamental differences between overuse injuries, such as tendinopathies, and acute wounds, like those created in animal experiments. In acute injuries, the body initiates a robust healing response, which, Dr. de Vos said, P.R.P. may intensify. But in overuse injuries, the healing process is often blunted, and P.R.P. seems unable to augment it much.

Where does Peyronie's fit into those categories? Hard to say.

Just for the record, here's a summary of the forum results, with "1" meaning improvements; "0" meaning no change, temporary improvements that then disappeared, or nothing reported; and "-1" for a net negative change. I apologize to anyone who feels I have mischaracterized their results; they weren't reported in a standard way, and many people did not mention various factors. (Erectile Dysfunction in particular was often not mentioned--possibly because it wasn't a problem for the person reporting.)


                        Curve      Size       Erectile Dysfunction
MikeHawk                  1         1         1
loyalty*                  0         1         0
Incautious                1         1         1
Mentos                    1         1         0
MattFoley                 0         1         0
James**                   0         0         0
ChefChris                 1         0         0
dioporcolorisolvo         1         0         0
IhatePD                   1         0         0

TOTAL                     9         5         2
% improved               66%       56%       22%             

*Not Priapus shot, but treatment included PRP
**Saw initial improvements, but they were temporary.
In this regard, a number of Priapus shot practitioners
are reporting good results for Erectile Dysfunction--but the shots need
to be done again every so often to maintain the effect.


Now, this would never qualify as a clinical study. The only real commonality in the group is some form of Peyronie's. They are different ages, have had the conditions for different numbers of years; some may still be acute, while others may have longstanding plaque that has been calcified. Improvements are all self-reported rather than measured by thrid parties (although this is often true for some factors in clinical studies, too--for example, pain, or erectile function). It is certainly not double-blind--although there are no double-blind studies to back up many common medical procedures. (There are no double-blind studies of heart bypass surgery, for example. There aren't even any single-blind studies.)

One thing that I do like, however, is that there are no "-1" entries in the list. With almost everything else I have seen reported on in this forum, including Pentox, someone has reported ending up worse off. (Possibly just because of disease progression.) So far, no worsening reported with PRP.

Now, it could be that the positives we see reported here are simply the placebo effect at work. (If a placebo can give me inprovement in my condition, bring it on!). It could be that the improvements are all wishful thinking...though that seems improbable to me. They could be spontaneous improvements.

Or it could be that the people reporting major improvements are young, and I'm out of luck. Or their Peyronie's could still be recent and acute, in which case I might be lucky.

Who knows? In any case, based on our fragmentary data, it looks to me as if the reward-to-risk ratio is very favorable.

I'm scheduled for Dr. Sachman this Thursday.
Title: Re: Priapus shot
Post by: james1947 on July 28, 2014, 05:46:27 PM
fredjones

VED procurement issue is off topic here, but I want you to get a second opinion.
I will second NeoV regarding the sex toy shop VED, I am using one at $35.
In my opinion, manually operated is much safer than the electric pump one.
I just want to add that that it must have a fast release button.

James
Title: Re: Priapus shot
Post by: james1947 on July 28, 2014, 05:58:36 PM
Nemo
Thank you for the post.
As I understand from the article, the people pushing hard the PRP treatment are people that can get big profit from it. Maybe I am wrong.

Ursus
Thanks for the summary you have made.
I attribute my zero gains to my age, 3 years not treated Peyronies and not healthy living.
From the other side, my calcified plaques became soft to the level that the doctor was able to inject into them.
I attribute the softening to VED, Pentox and low dose Cialis.
I will made the third PRP in August because it cost me $180 and I can afford this amount.
If it will help this time, I will continue to the fourth. If no help, the only remaining option will be an implant.

James
Title: Re: Priapus shot
Post by: UrsusMinor on July 28, 2014, 07:21:45 PM
Hey, James--

Who knows? It might be that us old people require repeated attacks.

I was encouraged by the fact that you had positive results for a time. That seems to suggest that something is going on. Maybe it's enough to cure some of us, but not all of us.

Or maybe a fourth shot will turn the trick. I have to say that softening of plaques seems like a good thing!
Title: Re: Priapus shot
Post by: Litani on July 28, 2014, 07:49:08 PM
I am thinking about getting the Praipus shot.  I have a single plaque and has started to calcify so I am not a xiaflex candidate.  I would be really happy if the shot softens then plaque so I can become a xiaflex candidate.

James.  At some point, you were not able to feel the plaque.  Is it still the case?
Title: Re: Priapus shot
Post by: incautious on July 29, 2014, 07:41:30 AM
Hey Ursus, great post. Its somewhat unfortunate that we are really the guinea pigs so to speak at this time for this treatment, which is why it's very important for every one to post their results regardless of the outcome. A 66% improvement in curvature is amazing when you think about all the other treatments that have been tried in the past.
James It might be a good Idea to start  a new thread based on Ursus initial data and only add new data as it comes in from the other members. Just a tabulation no other info on that thread. This way we will have our own database where others who may be considering this treatment can get an idea of the effectiveness of this treatment.
Title: Re: Priapus shot
Post by: Nemo on July 29, 2014, 10:39:04 AM
Again, I'm going to take the contrarian approach here, as I believe it has a valid place in this discussion, especially considering the high cost of this treatment in the US.

Before we declare that Priapus/PRP injections have a "66%" success rate in reducing curvature, let's qualify that rather impressive statistic.  Let's recall that some of these self-reports were supported with images that caused debate as to whether there was actually any reduction in curvature present at all.  Hand-in-hand with this is the "56%" size increase - let's assume this is from fluid swelling, which would make sense when injecting a volume of blood/fluid into the penis.  It would stand to reason that such swelling would appear to reduce curvature - operative word being "appear" to reduce curvature. 

My point is only that distilling forum members' self-reporting down into percentages can be misleading. Relying on self-reporting is necessary, absolutely - you guys are indeed the brave guinea pigs with Priapus.  But we can't overlook the method by which this "66%" was arrived at.  If I were to read this stat table, as a new Peyronies Disease sufferer, I'd burn rubber getting to the Priapus doc.  As always, the devil is in the details. 

The most encouraging aspect I've seen from any of this is James's report that his plaque was softened by the shots and at one point, as I recall, non-palpable. Would like to hear how he's doing in this regard currently, but as I've contended from the beginning, until someone can have a scan that conclusively documents a true plaque reduction following these shots, I think we're dealing as much with "perception" as we are "reality" - and that can easily be misleading statistically. 

Nemo
Title: Re: Priapus shot
Post by: UrsusMinor on July 29, 2014, 02:08:15 PM
If I were to read this stat table, as a new Peyronies Disease sufferer, I'd burn rubber getting to the Priapus doc.

That is, in fact, what I'm doing. Except I'm taking a plane. I will have before and after pictures--taken in profile (my curve is dorsal) with a bone-pressed ruler and the camera at a set height and distance. Alas, no ultrasounds.

You're welcome to be as contrarian as you like. I think it's a useful role.

The reason I compiled that table was for my own information, because I wanted to see how many people had reported improvements in particular parameters. I have followed the individual posts with great attention, but I found that I still wasn't sure how many people reported one kind of effect and how many reported another kind of effect. My impression was that more people had reported improvements in Erectile Dysfunction than actually did; my impression was that less people reported improvement in curvature than did.

There is nothing 'misleading statistically' about any of this. Those are exactly the percentages of people who reported improvement in those parameters. You are free to question whether the improvements were real, but the statistics are the statistics.

If I encountered this table without the totals and percentages, the first thing I would do is tally up the numbers and calculate the percentages. I actually think that most of the members here are capable of calculating percentages.

We are assuming here that forum members, new and old, are savvy enough to work with VEDs and traction devices (both have real risks). We assume that they are smart enough to handle the risks of taking off-label prescription drugs--or even the risks of buying and consuming drugs without prescriptions. We assume that they are clever enough to sort through advice--which are only opinions--about which urologist to visit.

But apparently they can't be trusted with a percentage?
Title: Re: Priapus shot
Post by: Nemo on July 29, 2014, 05:19:20 PM
"There is nothing 'misleading statistically' about any of this. Those are exactly the percentages of people who reported improvement in those parameters. You are free to question whether the improvements were real, but the statistics are the statistics."

Yes, exactly. That's precisely what I was saying. The chart depicts (accurately, I'm sure) self-reporting.  I was simply emphasizing that such self-reporting is itself often caught in a balance between perception and reality.

I wish you the best in your treatment and do look forward to your documentation of it. Believe me when I say I hope you make my jaw drop — you may find me on the plane next time!   

Nemo
Title: Re: Priapus shot
Post by: james1947 on July 29, 2014, 05:53:40 PM
I think I expressed myself wrong, form there the wrong understanding of the plaques softening reason.
The plaques, I am sure were softened by my long time treatment that the main components were:
VED - 30 minutes daily, 3 years with some breaks for up to one month.
Pentox - 3*400 mg daily for 18 months. Had to stop some 6 months ago because it weakened my immune system.
Low dose Cialis - 4 mg daily (approximately because is difficult to cut the 20 mg precisely)
What I mentioned is that the plaques were calcified (according to three urologists) and felt very hard before.
The doctor that administered the PRP penetrated very easily the plaques because they were softened already.
I will mention again that the temporary gains were after the first shots of just 4.5 ml and I didn't used VED in the first week after.
I had no any gains after second shots, 9 ml and using VED immediately after the shots. Used the VED just some 5 minutes because blood started to leak from the injections places.
I know that most of the people using VED immediately after the PRP to spread the PRP. In my case I think it was batter not using VED for one week.
Next time I will not use VED after the injections for one week.
Sadly for me, the curve, bend, length lost, girth lost and Erectile Dysfunction are same as before the PRP shots.

James
Title: Re: Priapus shot
Post by: Litani on July 30, 2014, 10:18:04 AM
It would be interesting to know how many people from that chart have calcified plaques. Maybe priapus does not benefit people with calcification similar to xiaflex.
Title: Re: Priapus shot
Post by: UrsusMinor on July 30, 2014, 12:44:38 PM
That could be. I also wish we knew how old everyone was, and how long they had Peyronie's.

It's not clear, though, that Xiaflex doesn't benefit people with calcification. All we know for sure is that they were excluded from the drug trials. But that's not surprising: the company wanted the best possible results, so as to win approval. In addition, it would have complicated the trials and statistics, as they would have had to subdivide the population into calcified and non-calcified.

A couple of forum members have reported they read it is being used on calcified plaques.
Title: Re: Priapus shot
Post by: james1947 on July 31, 2014, 09:02:48 AM
I will check it, but I think my plaques are not calcified anymore.
Otherwise was not so easy for the doctor to inject directly into the plaque with the thin needle.
As I have posted, I am 66+, Peyronies 5+ years.

James 
Title: Re: Priapus shot
Post by: UrsusMinor on July 31, 2014, 09:07:14 AM
That's interesting indeed, James!
Title: Re: Priapus shot
Post by: UrsusMinor on August 02, 2014, 02:07:22 PM
Well, I had the shots two days ago. First, the good news: My total bill was $1,200. So prices are definitely coming down.

The Total Male clinic in San Jose is a great place. The staff is casual, but savvy and experienced with all things related to your penis. The tone of the place is a little different from your average doctor's office; more like being here on the forum, where very personal things can be discussed without any discomfort. Jason Sachman is a great guy.

The needle and syringe they use to draw blood is effing HUGE. Since they want at least 10 ml of PRP, they need to take considerably more whole blood than that.

While they were spinning it down, I rubbed the numbing cream on myself, and then the three of us--there were two doctors for the procedure--we looked at the picture of my erection which I had brought and they tried to sort out the details of what was happening. My curvature is out just an inch or two back from the glans, and in that area there is some baggy skin where things no longer expand properly; it made it obvious where the loss in length is.

One of the interesting things about this clinic is that both docs have had the shots, just so they know exactly how it feels. (In fact, one of them has had the shots twice, once without the numbing cream "to see if it made any difference." The answer, was, yes, definitely--don't do this without the cream!)

Once I lay down on the table they messed around with my penis, trying to understand the distribution of the plaque. I have a thin, symmetrical shield-shaped plaque (sort of like a fingernail, if that makes sense) that is easy to find. But they spent more time fiddling with the two long cords that extend from the plaque up toward the glans. I had felt these before, but assumed they were veins or something. They told me that they were definitely fibrous growths, and one of them said that he thought those cords, rather than the flat plaque, were the major cause of the curvature--he described them as acting like the reins on a horse, pulling the horse's head back.

Anyhow, I ended up with 12 ml of PRP solution, and they used it all. My plaque turned out to be reasonably soft so it could be easily penetrated with the needle. They also gave me shots right under the two cords, a subcutaneous shot of the area where I had lost the most length and girth, and a couple at the base of the glans. I am sorry to say I lost count at some point; it was either 7 shots, or 9.

Afterwards they massaged my penis, trying to move the PRP around in the tissues.

I won't say it was exactly painless, but it wasn't really too bad, considering that they are sticking needles into your penis.

Although I brought my VED because I thought I would need to pump right after, they told me to give it a rest for at least a few hours, or even until the next day. Unlike the logic I have heard several times that the VED is to sort of keep the PRP in the area, I was told that the VED was to ensure that it spreads around locally. They also told me that erections were just as helpful as the VED, so if any popped up they should be greeted with a smile. (As a number of people have noted, their VED protocol is to pump up and hold it at fairly high pressure, rather than our pump-and-relax cycle protocol.)

The worst part of the process for me was going back to my hotel with a numb penis. That just feels all wrong.

There was a little pain afterwards, once the numbing cream wore off. In a few places, I could feel where I had been punctured. Although they told me there might be bruising, I didn't have any.

I had erections that night, and morning wood. Same thing again last night. The curve, of course, is the same as ever.

The main things I have noticed so far are a more relaxed flaccid hang, and a lessening of the chronic pain I have when flaccid. Both are welcome.

They told me not to expect any major changes for at least 3-6 weeks, and that for Peyronie's some of the full benefits may not be seen for 5 months. They also told me what I have heard here a thousand times (it ought to be the PDS motto), "Blood in the penis is good."

So, now we'll see!
Title: Re: Priapus shot
Post by: NeoV on August 02, 2014, 02:35:20 PM
Keep us informed Ursus, wow 1200 dollars is great!

I am relieved to hear that think they found your plaques. I am dying to know if I have plaques, or just crazy messed up veins. Mine also are like reigns that wrap around my penis and pull on it from the underside.

I'm also happy to hear that the doc and the team are good guys.

As for your results, I guess only time will tell. If it does work via all the stem cells and stuff, I guess it makes sense that it should take several weeks. You've been brave Ursus, really hope this helps!!!!!!!! Now it's time for you to let the PRP magic (or not) work so sit back and relax ;D

I'll most likely be getting those shots soon as well
Title: Re: Priapus shot
Post by: fredjones on August 02, 2014, 04:20:58 PM
I'm seeing Jason next thursday...nice to have info on them even though i've chatted with him several times.  when you say that you had erections that night and morning wood, had you not been having them and is this, you believe, a outcome of the shot?
Title: Re: Priapus shot
Post by: UrsusMinor on August 02, 2014, 04:44:08 PM
Hi, Fred--No, I have night erections and usually have morning wood. I was just a little surprised to have them so soon and so forcefully just a few hours after having my penis repeatedly pierced with a needle. I figured Mr Happy would probably want the night off. (Not to get too graphic, but they were unusually stiff, too--the kind you can hang bath towels on.)

I'm not sure if it had anything to do with the PRP, or if my penis was just celebrating having survived being stabbed.

Neo, I'm sure they will have some opinions about what is going on inside there. These guys seem to know their way around penises. I suppose that makes sense. Normal urologists have a lot of body parts to worry about (including female ones). I guess these guys spend a lot less time on bladders and urethras and infections and whatnot, and spend a lot more time on penises!

As to stem cells, they were actually chatting with me about that: they both think that the optimal therapy in the future may be PRP plus stem cells, injected at the same time.

Since you have a number of unusual thoughts about Peyronie's, I expect that you will have fun chatting with them.
Title: Re: Priapus shot
Post by: Douglas Hall on August 05, 2014, 04:18:52 PM

Fascinating! Thank you for the update Ursus, hope this treatment gives you
maximum benefit!

Did the doctors tell you more about the origin of the fibrous cords?
Are they common in Peyronie's Disease?

I feel as though I may have similar tissue.
Title: Re: Priapus shot
Post by: Thisismyusername on August 05, 2014, 05:44:13 PM
I'm going to have to agree with Nemo on this one.  I have to say that based on the pictures I've seen I haven't been impressed with PRP.  I also think that self reporting is extremely unreliable.  I haven't seen anything that I would call "objective" improvement from PRP.

I will also say that I received a corticosteroid shot into my penis for the purpose of getting rid of pain and I noticed that it hung fuller and I had less hard flaccid for a few days, and I had less penis pain for a few days.  I attribute the fullness to fluid build up and the reduction in pain to the anesthetic used.  After a few days both these effects wore off.  By default I assume that other people who have similar experiences from PRP are having them for the same reason.  And it seems that PRP tends to keep the penis swollen for longer resulting in an "increase in size" although in my opinion not the kind of increase in size that I would personally want. 

With that said I'm grateful for people who are reporting honestly about their experiences with PRP and especially those willing to post pictures.  I just have to say that I'm not seeing any clear benefit to the procedure at this point.  And it is expensive, and of course involves a needle in the penis which always carries some risk of aggravating things. 
Title: Re: Priapus shot
Post by: UrsusMinor on August 05, 2014, 07:42:23 PM
Douglas--

The docs said nothing about the origins of the cords, but they didn't seem to think they were especially unusual.

They did seem to think that they were one of the major causes of the curvature.

I've heard a few other members mention similar cords, but I haven't heard any of them say anything about their urologists mentioning it. Puzzling, huh?
Title: Re: Priapus shot
Post by: Douglas Hall on August 05, 2014, 07:49:03 PM

Ursus,

The PA who did my Doppler noticed mine, and thought they were causing my indentation.
However, my Urologist did not mention them at all.

So, yes, puzzling is a great word to describe this disease! ;)
Title: Re: Priapus shot
Post by: james1947 on August 05, 2014, 07:54:26 PM
I have stated in the past that my cord like plaques was detected in ultrasound by three different urologists.
All of them were in opinion that this cord is causing my upward banana shape.

James
Title: Re: Priapus shot
Post by: UrsusMinor on August 05, 2014, 08:09:26 PM
Thisismyusername--

I haven't seen that many pictures from different people after PRP. (A lot of pictures from one person, I think. Are there several people who have posted before-and-after? I don't seem to be able to find the thread in question anymore!)

If I show any improvement, I will at least have a standardized before-and-after. I don't think I'll bother to post pictures if nothing happens!

As to the cost, what is 'expensive' is a matter of opinion. PRP is expensive compared to, say, a bottle of CoQ10. My cost was $1,200, which is about the co-pay on one round (of the four recommended rounds?) of Xiaflex.

If you look at cost-benefit ratios, I guess anything is expensive if you get no results.

I don't even know how to evaluate the cost of something where you pay a lot of money and risk major side effects.

The few things that have firm scientific evidence on their side either don't have high success rates, or are accompanied by serious side effects--or both. Basically, we're screwed.
Title: Re: Priapus shot
Post by: NeoV on August 06, 2014, 12:56:18 PM
How's it hanging Ursus?

Anyone else who had it done have any comments?
Title: Re: Priapus shot
Post by: IhatePD on August 06, 2014, 01:23:18 PM
Hello All,

I just want to give everyone an update since my Priapus shot. Unfortunately, I can't give much information on the state of my penis since the shot. I have been battling a ruptured blood vessel in my prostate and after spending eight days in the hospital a week after the Priapus shot, I have since had to have two more catheters inserted into me in order to urinate since leaving the hospital.

I am currently still using the second catheter for eight days now and I am waiting for the surgical scheduling nurse to call to set up a date to have TURP (trasnuretheral resection of the prostate) surgery. During this time, I did have sex twice followed by resumed bleeding the next day which is probably why I had to have two catheters since the hospital stay.

I never really got a good look at my penis since the sex was rather spontaneous and perhaps too lengthy which may have caused the bleeding. I can tell you that the narrowing on the distal left side of my penis felt fuller when I touched it initiating sex. I really can't tell you how much but I know it felt different. My plaque seems to be smaller but it is hard to really tell with a tube stuck in my penis.

If trauma and Cipro are causes of Peyronies Disease, then I am screwed.  I have had a total of six catheters, one cystoscopy and one cauterization of the prostate since June 24th. Now I am going in for the TURP surgery followed by another catheter.

With all that said, I am very optimistice that I will beat Peyronies Disease. I have never walked away from a challenge and I won't start now. This is my life and I will live it on my own terms, period!
Title: Re: Priapus shot
Post by: Thisismyusername on August 06, 2014, 01:45:30 PM
Ursus,

The two people I remember who documented their before and after with PRP were incautious and mentos.  I'm not sure if there are more people who posted pictures. 
Title: Re: Priapus shot
Post by: NeoV on August 10, 2014, 11:55:31 PM
Hang in there IhatePD, wow what a crazy ride! Like you say, once this is all over just keep on attacking Peyronie's and everything with all you got. I'm hoping the PRP is doing some good work, if anything maybe it will prevent some damage from anything going on right now. Things will be better soon for you I hope. Stay positive and thanks a lot for the details.
Title: Re: Priapus shot
Post by: NeoV on August 12, 2014, 09:46:24 AM
So is there a consensus yet on whether pumping is good or not after PRP? It seems odd to me that two doctors differ on their approach with this. Runnels seems to think pumping is good but another thinks it would actually be bad.. that's quite a difference of opinion, and I sure wouldn't want to mess that up.
Title: Re: Priapus shot
Post by: liber on August 12, 2014, 02:11:27 PM
is there any consensus prp really helps peyronie's.
Title: Re: Priapus shot
Post by: james1947 on August 12, 2014, 07:23:38 PM
No, there is not consensus regarding PRP helping Peyronies.
Regarding pumping, my experience was temporary improvements from 4.5 ml PRP with no pumping, no improvements at all from 9 ml PRP with pumping.
I will go with no pumping with the next shots.

James
Title: Re: Priapus shot
Post by: incautious on August 13, 2014, 09:06:39 AM
James, Interesting that you feel you got better results without pumping. I know that "washout" has been a topic of some discussion with PRP, and as to weather its better to pump or not to pump. If you recall my original post right after I received my shot, I went home and pumped for 2 hours(because I had time to kill) and rolled my manhood in between my hands say every 15 minuets in an effort to evenly distribute the PRP.  Did this help with my results, I can not say, but intuitively, I felt that it was necessary in order to localize the PRP.   It has been 6 full months since I've gotten the shot, and while I have nothing new to report, all the improvements that I have reported, are still there. Quite honestly, if it wasn't so expensive, I would probably get another shot just to see if there were any thing more, since I've seemed to have plateaued out at this time.
Title: Re: Priapus shot
Post by: Nemo on August 13, 2014, 10:50:33 AM
I guess I don't understand how pumping would prevent "washout" of PRP or anything else in the penis.  Maybe if one were to pump and hold, yes, but pumping and releasing, if anything, constantly recycles blood through the penis. 

Nemo
Title: Re: Priapus shot
Post by: incautious on August 13, 2014, 11:30:58 AM
 Remember you are not injecting PRP into veins or capillaries but tissue and hopefully in our case plaque, which should take much longer to drain out. After all, when one pumps vigorously, there is significant time,several hours, that things stay engorged. Is that enough time to get things started and make a difference? I don't know.
Title: Re: Priapus shot
Post by: Nemo on August 13, 2014, 11:40:52 AM
But the penis is comprised of essentially hollow or spongy "tubes" - the corpora cavernosa - which engorge with blood to produce an erection. This has to be where the bulk of the PRP resides - in the corpora, in the spongy void.  And each time an erection is produced, the volume within these corpora is replenished/replaced. At least this would be my understanding. There's no way the volume of PRP could be injected directly into tissue like the septum or corpora walls - it has to be within the relative "void" of the corpora itself, I'd think.   
Title: Re: Priapus shot
Post by: incautious on August 13, 2014, 03:51:35 PM
Nemo good question. The following patent, by Biomet Biologics llc, explains how the mechanism PRP would work on the penis. Keep in mind that this patent is for Erectile Dysfunction, but the principal of using PRP is the same since Runnels also makes the Erectile Dysfunction claim with his shot.. 
 http://www.google.com/patents/US20120183519

Biomet was a publicly traded company until it was purchased back in 2007 and taken private. They had sales of around 2.5 billion back then, so they will have much more credibility than the good Dr R.  Since they are private ,numbers are hard get, but if one assumes just a 7% growth until now, they would have sales in excess of 5 Billion US dollars.
Title: Re: Priapus shot
Post by: james1947 on August 13, 2014, 06:58:13 PM
I want to mention again that after the second shots I pumped for less than 10 minutes because the blood (injected PRP?) started to get out from two of the injection holes. But continues to pump after getting home (3 hour drive) every day twice.
I don't know why in my case was like that even my blood is sticky and I didn't take my daily 100 mg aspirin.

James
Title: Re: Priapus shot
Post by: UrsusMinor on August 14, 2014, 05:46:21 AM
Well, there are two theories on the table (pumping prevents washout, and pumping can cause washout). The third theory, from my docs, is that pumping is to distribute the PRP into adjacent tissues. They massaged it ("rolling" ala Incautious below), but told me there was no big rush in getting to the pumping, They also said that erections were equally good.

The platelet solution is treated with an anticoagulant to keep it injectable, otherwise it would just be a clot. But I can believe that the platelets have a tendency to clump in the tissues once injected, and need to be persuaded to migrate.

"Washing out," pro or con, never made much sense to me, but I guess there isn't much evidence one way or another. These platelets are not active cells who are going to rush toward the nearest blood stream to try to get into circulation. They are strongly inclined to adhere to tissues, especially damaged tissues. The PRP theory, right or wrong, is that the platelets contain growth and repair stimulating factors. So I can see my doctors' point of view: the problem is to move the platelets from the site of injection to the neighboring tissues.
Title: Re: Priapus shot
Post by: incautious on August 14, 2014, 07:23:14 AM
Ursus , good post. I hope that your results will be positive
Title: Re: Priapus shot
Post by: LarrySauce on August 14, 2014, 10:45:50 PM
Hi all, I am new to this forum but was diagnosed with Peyronies Disease about 18 months ago. After unsuccessful Verapamil treatment with Dr. Mulhall in NYC, I'm ready to give this a shot.

Im aware that there is a list of doctors who administer the shot, but I would rather use one that has administered to one of you who have had positive results. Can one of you let me know which doctor you got your priapus shot from?

Thanks for your time.
Title: Re: Priapus shot
Post by: fredjones on August 14, 2014, 11:09:08 PM
just an update.  i've talked to a few of you on this site and stated that i do not have peyronies disease but found this as the only site with real life experience with the P shot.  i've researched the shot for over a year and found that you guys here are the only ones i trust with their comments as other places sound like salesmen for a product.  i had my shot a week ago from jason sachman in san jose california.  he has performed the shot for a couple of you here.  he is honest and forthright and charges less than others.  i paid 1120 as i already had a pump and he gave me 80 dollars credit otherwise it would have been 1200.  i've check with others and the want to do test after test and will eventually cost more than 3 grand.  jason has had the injection twice, both times giving it to himself to see how product feels going in and the effects that it may or may not have.  i'm doing it mainly to improve Erectile Dysfunction and the loss of feeling in my head of my penis.  jason injected more in the head as that is where i wanted more of the improvement.  my wife was there holding my hand.  it did hurt...some....the initial insertion and the feeling of the pro going into the penis...i'd do it again if i do find results happening.  had sex that night and the head hurt somewhat.  no bruising, little pain in the other injection sights.  6 days in my wife noticed that the penis looked larger. no increased feeling as of today but it should take awhile it it will at all.  i did pump before and a few days as i was on vacation.   after one week, i'm 1/2 longer in the pump (which may or may not be accurate). we (my wife and I) will measure width later and see if there is any increase (at the base, mid shaft and the head).  good luck for all of you in fighting this.
Title: Re: Priapus shot
Post by: james1947 on August 15, 2014, 03:17:31 AM
fredjones

Good luck with the treatment and thanks for the update.
What you are expecting to achieve with the PRP treatment?

James
Title: Re: Priapus shot
Post by: fredjones on August 15, 2014, 09:35:54 AM
hoping for return of sensitivity.  not having to take cialis.
Title: Re: Priapus shot
Post by: incautious on August 15, 2014, 09:42:02 AM
fred, thanks for the initial observations. As you have mentioned, this is the only site on the entire internet, where one can get, at the very least, real world observations about this procedure. The more people that report their experiences, good ,bad or neutral, helps all of us. I to, as did James see a 1/2 inch increase while pumping within a short period of time. Weather it is real or permanent has been debated. But that is a good thing ,as at least there is serious discussions about this procedure.
As for having sex that day, wow you are a brave soul. I at least waited 3 days lol. You will see improvements in week or two. In my case the sweet spot started around 3-4 weeks. The fact your wife is aware of what you have done is great. She will encourage you to be diligent in doing  the required pumping, which I believe is necessary. Keep marking any benefits you get on the VED tube as this is a great way to chart if anything is happening.
Title: Re: Priapus shot
Post by: fredjones on August 15, 2014, 12:53:16 PM
incautious...what specifically happened in your "sweet spot" time frame?
Title: Re: Priapus shot
Post by: incautious on August 15, 2014, 01:19:06 PM
Much increased sensitivity. Vast improvement in Erectile Dysfunction, plus a real reduction in curvature. Your body responds to PRP like an injury. Think of it like you get a cut. It takes days and weeks for the body to heal it, it does not happen over night The same is said of PRP.
Title: Re: Priapus shot
Post by: op on August 15, 2014, 03:29:59 PM
Injection to penis glans isn't it dangerous? There are many nerve endings, which are responsible for sensivity. To prevent glans damage during injection is impossible I guess... Just curious
Title: Re: Priapus shot
Post by: incautious on August 15, 2014, 03:49:06 PM
actually the injection into the glans didn't hurt at all, if you can believe that. The middle around where the plaque was, well it was a pinch+
Title: Re: Priapus shot
Post by: op on August 16, 2014, 04:09:07 PM
ok, thanks
Title: Re: Priapus shot
Post by: UrsusMinor on August 16, 2014, 05:56:25 PM
larrysauce1--

In a few cases I'm not sure who the PRP doctors were for people on this forum. The two who have done the most treatments for us, however, are

Dr. Kenneth Varano, Philadelphia, PA http://www.drvarano.com/priapusshot/ (http://www.drvarano.com/priapusshot/)

Dr. Jason Sachman, San Jose, CA http://www.totalmale.com/author/jason/page/2/ (http://www.totalmale.com/author/jason/page/2/)

I did mine with Sachman, based on geography and PMs from others on this forum, but the people who have gone to Varano also seemed happy with him.
Title: Re: Priapus shot
Post by: LarrySauce on August 17, 2014, 07:05:34 PM
Ok thanks a lot UrsusMinor. Dr. Varano is drivable from where I live so I will give him a call in the morning. I will also post before and afters as I track my progress.
Title: Re: Priapus shot
Post by: incautious on August 18, 2014, 09:04:46 AM
Larry, mention To Dr Verano that you got his name from the Peyronie's forum.
Title: Re: Priapus shot
Post by: NeoV on September 02, 2014, 02:02:52 PM
Hey everyone, just wanted to say that I'm going in for my Priapus shot from Dr. Sachman and first ultrasound ever tomorrow morning here in San Jose. I'll post my findings and results or general thoughts soon after, maybe even tomorrow. I've been having a great time here in CA with family, it's nice to be back in the US, as strange to me as it is. Did some wine tasting in Napa for the first time the other day, it was just great. 

That being said I'm quite nervous about this. Thanks I all of you for trying this out and posting your results, good or not, here I go!

-V
Title: Re: Priapus shot
Post by: Douglas Hall on September 02, 2014, 04:48:03 PM

NeoV,

Happy that you are having a good time back stateside.
Thank you for the updates, looking forward to hearing about your positive experience!

-Douglas
Title: Re: Priapus shot
Post by: james1947 on September 04, 2014, 12:12:36 AM
NeoV

Quote
Did some wine tasting in Napa for the first time the other day, it was just great. 
Send me some samples to Bali.
Wish you good outcome from the PRP

James
Title: Re: Priapus shot
Post by: NeoV on September 04, 2014, 11:40:41 AM
Thanks a lot guys. Having a great trip and would if u could James!

It's now the following day after receiving my shot from Jason Sachman at 6 injection sites. I had two injections on each side, one in the glans and one under the skin just above my scarring or indentations on my urethra.

Jason and Adam are really cool guys and make the whole experience easy and comforting. I first had a good while to talk to the guys about my symptoms and then I had a Doppler ultrasound. Apparently I had been clueless about what kinda of ultrasounds existed, but now I'm aware that there's quite a difference between Doppler and one used for imaging. The Doppler was useful in that it clarified that the two cords most troublesome which come out of my body are as I thought my penile arteries. They wrap around my penis and appear to bunch up on the ventral side near the indentation. I can't be sure yet about the nature of my scarring at this point but it seems unlikely that it's purely vascular given my symptoms. Still, I'm a bit relieved and next time will pursue a different type of scan when I see Lue in the future. Jason also offered to get me a separate scan elsewhere and offered to interpret it.

After chatting a while I said I was ready for the shot and we drew my blood and spun it. I was dreading the needle for drawing my blood but it wasn't particularly large nor was the process uncomfortable.

The shots did hurt but not terrible enough to not do it again if one was interested.

I was sore for 30 minutes after and then all pain went away and I enjoyed the numb car ride home. Numbness wore off quickly an hour later and I had some minor swelling which also went away as soon as I got home and examined myself trying to massage it lightly.

As expected, my penis immediately grew in volume, girth and length while flaccid due to the extra fluid. My penis feels heavy and hangs a bit better. Last night my flaccid appeared very long. This morning I had an erection and I'll just say I'm very happy with how this feels and looks. My erect penis feels and looks thicker, longer, harder and the area with indentations is a bit more filled out. I would not call these initial results dramatic, but they are there, and that's a good thing.

Now I understand that this is to be expected at first due to the increase in volume, so I can't say anything definitive yet, but I can understand now why anyone would repeat this, since my penis feels full and stable, almost pornographic. Keep in mind that this is my first erection in one week! So I'm undoubtedly having extremely hard erections today regardless of the PRP. Even so, I have no doubts that my penis is thicker and firmer than before. I would love to be like this always!   

For me, harder and larger erections have been an important part of my recovery (reduced sexual activity), so while I don't have any expectations I know what's helpful when I feel it. Erections with the PRP feels amazing, even if it's the saline effect. I do however trust the science mostly and am optimistic.

The biggest question remains, to pump or not to pump? Since full and hard erections help me so much I will probably at least continue to induce them at least.

It's all very early to tell but I'm very happy with the initial results. If I can take some illuminating photos or measurements they will be shared. Will give more brief updates after this much too long post. Currently, feeling pretty happy.

-Neo


Title: Re: Priapus shot
Post by: incautious on September 04, 2014, 01:29:00 PM
NeoV. Wow i just missed you in napa, was there 8/27-30 awesome time esp Chandon and Coppola. I feel pumping helped me, others may not feel the same. It is very interesting the way this procedure effects everyone differently. While I saw immediate increase in girth and an a reduction in curvature, erections were some what weak for the first 4-5 weeks. Just goes to show that everyone is different. Good luck and keep us all posted
Title: Re: Priapus shot
Post by: aazmaish on September 04, 2014, 03:52:16 PM
Dear incautious ..
how much deegre of curvature was reduced due to PP shot .
my question to Neo is .... the cost ofbfull session of PP shot.   ( my good wishes are with you ... ).
THANKS ..
Aazmaish
Title: Re: Priapus shot
Post by: incautious on September 05, 2014, 07:45:43 AM
Aazmaish, I went from about 40-45 degrees to about 15-20 degrees. So you could say a reduction of about 50%. This has made a world of difference as you can imagine when it comes to intimacy. I've managed to keep all my improvement after 7 months. I do still pump twice a day if I can, plus I try and use traction once in awhile, plus I do still use the ESL40 ADS silicone traction device.
Title: Re: Priapus shot
Post by: fredjones on September 05, 2014, 10:11:32 AM
one month update.  not a whole lot to report.  1/4 inch increase in width on shaft but no noticeable increase in sensitivity.
Title: Re: Priapus shot
Post by: NeoV on September 05, 2014, 10:42:59 AM
I would imagine that nerve regeneration would take a long time.

I am still conflicted about pumping.. But I've decided to do it at least at very low pressures.

I still love the way the PRP feels, pumping sessions are way more effective with all that extra volume. Also for some reason my urethral pain has been gone as of yesterday, I'm wondering why that is.

Does anyone know how soon it's safe to pump after injections? I started one day after.
Title: Re: Priapus shot
Post by: incautious on September 05, 2014, 12:52:19 PM
NeoV Dr.Varano had me pumping right after the shot at  10hg vacuum which is also the procedure that Dr Runnels recommends. It was a little weird because that was some minimal blood leakage from one of the injection sites. I would pump with what you are comfortable with. Since you have had urethral pain in the past, low pressures is probably smart, just enough that it feels like its doing something. And I agree with your observations about nerve regeneration with fred, it may just take longer to heal that area, just like with my Erectile Dysfunction it took a full 6 weeks before it got better. It was even a bit worse after 2-3 weeks after the shot which had me worried.
Title: Re: Priapus shot
Post by: aazmaish on September 05, 2014, 03:50:33 PM
Dear incautious.. 
thanks for the inf .that is  remarkable achievement
.. wish i could have same recovery .. :( ( i am sure PP shot is not available in this part of the world ( I am in Saudia ) ..
my congratulations to u ..
Dear Neo.
pls help by informing the cost of PP shot .. .. full session..
thanks ..
Aazmaish
Title: Re: Priapus shot
Post by: UrsusMinor on September 06, 2014, 02:00:24 PM
aazmaish--I paid $1,200 at the same place NeoV went--but I didn't have the ultrasound, etc. Just the shots. The price generally seems to be coming down fast; when I first heard about it, $1,800-2,400 was more common.
Title: Re: Priapus shot
Post by: NeoV on September 06, 2014, 02:04:54 PM
(to be deleted)
Title: Re: Priapus shot
Post by: UrsusMinor on September 06, 2014, 02:07:14 PM
Neo--Sounds like your reactions were very similar to mine. If nothing else, I felt a whole lot better after the shots.

The reduction in pain has been progressive and very very welcome, as I had pain both erect and flaccid, and had pain and discomfort a lot of the time.

Of course, that doesn't prove anything, as pain tends to diminish with time, so it could be a coincidence. In any case, I'm glad I did the shots.

I haven't had any obvious change in my curve or erect length. We shall see...

-----------------------
Napa is great. But my favorite place for wine has become Paso Robles. Not only many great vineyards, but way less smug than Napa!
Title: Re: Priapus shot
Post by: aazmaish on September 06, 2014, 04:42:21 PM
Thanks my friend ..
besides price factor lets hope it becomes  available in other Parts of the world the way it is easily available in USA ..
 :).
Aazmaish
Title: Re: Priapus shot
Post by: lee407 on September 11, 2014, 04:15:26 PM
Is the procedure just one shot every 6-12 months or do you have to take an injection each time you have sex? Thanks
Title: Re: Priapus shot
Post by: NeoV on September 11, 2014, 06:31:11 PM
It's one shot. The effects are supposed to last for 18 months or even be permanent. There are no scientific studies to prove this yet however. In my opinion, studies on PRP in general and the basic sense of what is contained in it should create some sort of permanent changes in your penis. I can't say that these changes will be at all noticeable, but I'm hopeful, since I am noticing nice effects as of now

Multiple shots certainly may be beneficial, but we don't know yet.

(Ursus, thanks for the tip!  Paso Robles looks really nice and I will go there next time I visit my family, looking forward to it!!)
Title: Re: Priapus shot
Post by: james1947 on September 11, 2014, 06:45:18 PM
Neo

Have doctors are saying to pump immediately after the shots. It not worked for me, as when I tried to do that, blood (maybe the PRP itself) started to come out from the injections places.
Sorry, I missed, when you got the shots? Any improvements as for now? I want to update your shots and progress.

James
Title: Re: Priapus shot
Post by: NeoV on September 11, 2014, 07:29:19 PM
Hey James, I didn't want to pump due to my edema but I decided to anyway since so many men went that route.

How big was the needle she used?

I couldn't tell if the pump was "washing" the PRP out, but just like I was told, in 3 days the extra volume decreased dramatically. When I get the Priapus shot again some day in the future (many years from now), I will avoid it and let you know if I hold my volume for more than 3 days!

I guess we should keep in mind that it isn't the PRP itself that does the work, it's the stem cells that are already in the penis which are activated by the PRP (?). Perhaps all it takes is the PRP to send it's signals via growth factors etc, and then peace itself out. In that sense a pump would help get the PRP to those damaged areas where you want it most.
Still, this is just one of those points James that none of us, and I certainly, do not understand. : / It definitely keeps me up at night.

I got my shots 8 days ago, and I can still feel the extra volumization which alone seems to be helpful in maintaining straightness and shape, as well as harder and more stable erections. My penis hangs better as of now and my erections are still feeling very good since the shots.

I am probably entering the waiting phase between the initial benefits and the long term ones that I might see in weeks or months, I'll keep everyone posted.
Title: Re: Priapus shot
Post by: james1947 on September 11, 2014, 08:39:51 PM
Neo

Your theory sounds me logic. I assume the reason for my not lasting improvements to my age (67) and not healthy life stile.
I will make the 4th PRP shots next week, if no results after then I will not do more.
I don't know the needle #, but it was very thin, same as they are injecting for face wrinkles. I will ask the doctor next time.

James
Title: Re: Priapus shot
Post by: james1947 on September 16, 2014, 07:40:16 PM
Tomorrow my third PRP session.
I will get 10 ml PRP from 60 ml blood.
Will be injected per NeoV advice.
Will not use VED for two days.
Hope this time will have changes that will not fade away quickly. :)

James
Title: Re: Priapus shot
Post by: aazmaish on September 16, 2014, 11:07:31 PM
James .
you can count on good wishes and prays from my side ...
Aazmaish.
Title: Re: Priapus shot
Post by: NeoV on September 16, 2014, 11:48:30 PM
Good luck James!

The standard for the Priapus shot I think is 5 injections. Two on each side slightly dorsal, and one in the glans.

I hope you have better results this time getting all the PRP in the corpus cavernosum.
Title: Re: Priapus shot
Post by: Knight on September 17, 2014, 01:37:17 AM
Good luck James!
Title: Re: Priapus shot
Post by: james1947 on September 17, 2014, 01:54:18 AM
Thanks for all the good wishes

James
Title: Re: Priapus shot
Post by: james1947 on September 18, 2014, 05:06:53 AM
I got today my third PRP session. 10 ml PRP extracted from 60 ml of blood.
Injected as Neo suggested, two on each side but the one to the glans I opted to be on the top, just at the end of the glans. The pain was a little bit more than before, but nothing serious. The pain ended immediately when the PRP injection was done.
The swelling followed by the injection is reduced now, after 7 hours very much. Almost normal.
This time the price was US$ 290.
Will see the results.

James
Title: Re: Priapus shot
Post by: james1947 on September 18, 2014, 05:14:26 AM
By the way, I will be happy to get updates from all our Guinean pigs ;D on the "Forum PRP trial" regarding they advancements.

James
Title: Re: Priapus shot
Post by: incautious on September 18, 2014, 07:31:41 AM
James good luck to you this time around. You are right about life style changes though. Dr Runnels claims that this procedure works best if you are in shape or make life style changes like stop smoking, exercise daily and reduce alcohol consumption. Do a search on "Endothelial Dysfunction". I'm going to post a new topic on this in the Erectile Dysfunction section, but basically it is the beginning of hardening of the arteries and cardiovascular disease. The good news is that you can reverse it's effects with things like anti oxidants, ubiquinol, magnesium, beet root juice and Viagra.  Raw beets have the most nitrates of any food which the body turns into Nitric Oxide which is needed for erectile function
Title: Re: Priapus shot
Post by: james1947 on September 18, 2014, 07:40:18 AM
I am sure you are right Incautious.
Just need to be able to make this switch. ;D

James
Title: Re: Priapus shot
Post by: NeoV on September 18, 2014, 09:11:58 AM
Nice job James. Regardless of the outcome I still say the science is sound, and under 300 bucks is a steal!
Title: Re: Priapus shot
Post by: UrsusMinor on September 18, 2014, 01:47:20 PM
Good luck with the current round, James.

Meanwhile, Incautious is right about beets and endothelial function. The nitrates have a powerful effect on NO production. This is one of the reasons--but possibly not the only reason--that beets clobber blood pressure:

http://www.dailymail.co.uk/health/article-2309667/Beetroot-juice-helps-lower-blood-pressure-A-glass-day-reduce-7--say-researchers.html (http://www.dailymail.co.uk/health/article-2309667/Beetroot-juice-helps-lower-blood-pressure-A-glass-day-reduce-7--say-researchers.html)

A lot of other vegetables have the same effect, but not as strongly as beets.

Celery and celery seed tea also have a strong effect on blood pressure, but even though they contain nitrates, the effect seems to be due to the phthalides that give celery that odd smell. Celery has long been used in Asian medicine for Erectile Dysfunction, so there may be a connection there.
Title: Re: Priapus shot
Post by: chandnitare on September 19, 2014, 11:01:57 PM
James,

All the best.

Best regards,

Chand
Title: Re: Priapus shot
Post by: incautious on September 22, 2014, 10:45:00 AM
latest use for PRP growing hair!

Kim Kardashian's blood facial now transformed to use your blood to lengthen and strengthen locks  | Daily Mail Online (http://www.dailymail.co.uk/femail/article-2764957/One-Kim-Kardashian-Vampire-HAIR-lift-uses-technology-gruesome-facial-beloved-reality-star-uses-blood-lengthen-strengthen-locks.html)
Title: Re: Priapus shot
Post by: UrsusMinor on September 23, 2014, 05:11:44 PM
Great, just what I need--a really hairy penis!
Title: Re: Priapus shot
Post by: NeoV on September 24, 2014, 10:06:33 AM
lol, now that would be hilarious!

On a different note, I am seeing something different from pre-PRP. I can't say for sure that the PRP caused it, but I can say that I have had yet more improvement sense I had it. I have noticed that my penile sensitivity has increased. I orgasm a bit sooner and even the lightest touch gets me harder than usual. Perhaps part of the harder erections is from me more aggressively manually stretching, but, either way things are yet again improving.

I think today I had one of the best erections of my life. I feel very fortunate to still be recovering, even though I do have some symptoms. I think I will do the PRP again some day even if only for the volumization effect, and next time have them inject it all in the main part of my penis (not the glans), and then do manual stretching only.

Bad news is I still have edema, and in fact it's my 1 year anniversary, hurray for a year of a squishy fluid filled penis.. As much as I agree with VED, I regret using it entirely. I feel more sadness and grief almost than my Peyronie's itself. Having to tell girls "oh by the way my penis is squishy and feels soft" is hell. I still do believe that it works quite well and I do recommend it. The tragedy is that my injury was the result of holding for only about 5 minutes and at not even that high pressure from what I could tell. I think most people will not have this problem and I don't mean to give VED a bad rep, but I have to be honest about exactly what happened. What happened was I was using the VED within what I thought was reasonable, and ended up with a chronically swollen penis for the duration of 1 year so far, with no signs of improvement. Warning signs were minor, only a mild tightness and itching on the shaft.

For those on the fence about VED, I do highly recommend it and it's helped many men. My case may be a rare one due to a variety of factors. Use at the lowest pressure possible. Avoid any tightness or itching sensations, even if they are minor.
Title: Re: Priapus shot
Post by: Knight on September 26, 2014, 11:07:28 PM
I agree NeoV! The VED seems to a great help for most but for me it was not a good experience and may have made things worse rather than better. I don't understand why the guys getting Priapus shots would use the VED, especially too soon after receiving the injections for fear of wash out but it seems to helping some.

Whatever works is good by me! Good luck to all!
Title: Re: Priapus shot
Post by: UrsusMinor on September 27, 2014, 04:04:21 AM
Hi, Knight--

I guess the theory with the VED after PRP is to spread the stuff around a little.

I know that a lot of folks have speculated about the possible problem of "wash-out," but that seems kind of improbable to me. After all, these are platelets. True, they have been treated with an anticoagulant before centrifugation, so they aren't trying to inject us with blood clots. But they are still somewhat sticky, and compared to drugs they are gigantic, and they aren't being injected into major blood vessels.

My doctors encouraged me to use a VED to help distribute it, but they also said there was no big rush, and that waiting until the next day was fine. They also suggested that erections were pretty good at moving things around.
Title: Re: Priapus shot
Post by: james1947 on September 27, 2014, 04:56:49 AM
Basically, nothing to report after 10 days, can't see/feel any change.
It was a little swollen after the injections, now back to the size before the injections.
Started VED two days after the injections.

James
Title: Re: Priapus shot
Post by: NeoV on September 27, 2014, 05:40:30 AM
That's helpful information Ursus, I'm still unclear about how the stuff works. James I'm sorry to hear that.. Have you not noticed harder erections or increased sensitivity?
Title: Re: Priapus shot
Post by: james1947 on September 27, 2014, 07:39:13 AM
No harder erections (I can say not erections at all), no increase in sensitivity. :(

James
Title: Re: Priapus shot
Post by: james1947 on September 27, 2014, 04:33:07 PM
I would like also to add that during the daily VED, I am now 12.7 cm.
Before the last PRP I was 13.2 cm. I know is "just" 0.5 cm, but at this length also 0.5 cm counts.
I don't think the shrinking is from the PRP, just wandering.

James
Title: Re: Priapus shot
Post by: fredjones on September 27, 2014, 06:07:42 PM
don't know if this helps but i fluctuate up to nearly an inch while in the pump...don't know why, just do..hope things improve
Title: Re: Priapus shot
Post by: incautious on September 30, 2014, 07:36:27 AM
James i too see variations of about .5 cm i guess there are a lot of factors out there that determine that. You may want to mix the VED with traction once in awhile as I think that it helps.
Title: Re: Priapus shot
Post by: james1947 on September 30, 2014, 08:03:03 AM
Can't do traction as my glans are becoming white and cold after 10 - 15 minutes.
Any case, thanks for the advice Incautious.

James
Title: Re: Priapus shot
Post by: UrsusMinor on September 30, 2014, 05:54:04 PM
I for one find 0.5 cm too small to measure effectively, as I can make much large changes with how hard I press the ruler.
Title: Re: Priapus shot
Post by: james1947 on October 08, 2014, 03:49:10 AM
Just an update:
No news after three weeks from the third PRP session. Everything as old.

James
Title: Re: Priapus shot
Post by: MikeSmith0 on October 08, 2014, 04:46:22 AM
I contacted one of the top Peyronies urologists frequently mentioned on here (who I also consulted in the past as a patient, in person) - and he said that he thinks it won't help and might even hurt.  I was surprised... thought he'd be more open minded.  But, just FYI... that's his opinion.  Seems like guys are getting great Erection Quality results if not more size or curve reduction... wonder how that works.  I am tempted to do it - sorta disappointed my doc said he is not a fan. I could use the EQ. I am sick of viagra headaches!
Title: Re: Priapus shot
Post by: james1947 on October 08, 2014, 04:53:58 AM
Mike


You can read a summary from all the posts regarding Priapus/PRP and get to conclusion if you want to proceed or not, not too many updates in the last period:
PRIAPUS/PRP Injections Trial (forum) - Peyronies Society Forums (http://www.peyroniesforum.net/index.php/topic,4788.0.html)
I am sick of Viagra headaches too, but this is the only way to get an erection.

James
Title: Re: Priapus shot
Post by: yyy on October 09, 2014, 06:07:32 PM
James, try avanafil instead of Viagra. no headaches at all
Title: Re: Priapus shot
Post by: james1947 on October 09, 2014, 06:26:41 PM
Thanks for the advice yyy.
I didn't find it at river.
Can buy Avanafil in Europe without prescription?
I am flying to Europe tomorrow, so I would like to buy it there.

James
Title: Re: Priapus shot
Post by: incautious on October 13, 2014, 09:34:29 AM
James, you may want to switch BP meds. I will post a BP topic in the Erectile Dysfunction section but beta blockers and diuretics are associated with causing Erectile Dysfunction while ACE inhibitors alpha blockers and  ARB's  have shown to IMPROVE Erectile Dysfunction. As for Viagra, you may want to use Levitra instead as this med was specifically formulated to be a PDE-5 inhibitor. Viagra was initially looked at as a  BP med that happened to have this side effect of improving Erectile Dysfunction also through PDE-5 inhibition. Levitra is stronger, works faster, isn't affected by alcohol consumption and most foods( except very high fat meals) won't delay or minimize it's efficacy. I've found Levitra works for up to 12 hours where as Viagra is done by 4 hours.   
Title: Re: Priapus shot
Post by: Chef Chris on October 13, 2014, 11:24:42 AM
Hi guys I haven't posted anything in a while but here is a update.
The plaque on the left side is now almost completely gone and I use to have a lot there I still have the first plaque that I got on the right side of my penis. I don't know if that has decreased in sice but it has not grown any way. The curve is the same since my last update but I have been lasy and have not been doing any traction or VED since July and have not been taking any suplimants and eating bad. But I am very happy that the plaque on the left side is almost gone. I am going to do my third (3) shot tomorrow. And are going to be starting whit a healthy diet and VED again.
All the best to all of you
Title: Re: Priapus shot
Post by: fredjones on October 19, 2014, 10:39:27 AM
a little over 2 month and nothing new to report. the only disapointment is still the lack of improvement in sensitivity.
Title: Re: Priapus shot
Post by: NeoV on October 19, 2014, 10:50:16 AM
That's great Chris. Fred sorry to hear that about the sensitivity.

Somehow it did increase my sensitivity, even after 6 weeks. I still seem to have a larger and harder penis. When I am stimulated for a while it's as if that extra volume comes back, almost mysteriously.Still very happy I did it, but it has not yet proved itself to be any Peyronie's miracle cure. Then again, who actually expected it to be one? I think it's great, and if the science is sound more benefits should keep on coming in time, even up to several years from what I think I read.

Title: Re: Priapus shot
Post by: drew67 on October 28, 2014, 04:45:12 PM
How much could PRP help with about a 20% curve at the base?  I'm nervous that it could make it worse
Title: Re: Priapus shot
Post by: james1947 on October 28, 2014, 07:35:17 PM
Drew

The answer is very simple:
You will never know if you will not make the PRP.

James
Title: Re: Priapus shot
Post by: NeoV on October 28, 2014, 09:51:26 PM
James means that there's no good way to know what will happen, since PRP hasn't been studied for Peyronie's. It will certainly make your penis harder and more full, which helps expand the damaged area. Personally I'm all for it though I hate needles. What treatments are you using?
Title: Re: Priapus shot
Post by: Nemo on October 28, 2014, 11:29:36 PM
NeoV, I think it's overstatement to say "It will certainly make your penis harder and more full ..." or to suggest it will "expand the damaged area" any more than a normal erection would.

If anything, I think this forum's experience with "Priapus" reflects that there is nothing "certain" about it.   

Nemo
Title: Re: Priapus shot
Post by: NeoV on October 28, 2014, 11:36:05 PM
Maybe so, I don't recommend anyone jump into it. Did anyone here not experience the extra volume in the beginning? I can't imagine that. But thanks Nemo, we don't know if the PRP will permanently do anything, and you do run the risk of scarring since you're getting an injection, and there is no certainty of anything.

Personally, I at least think it will temporarily expand every penis you inject it into, unless it leaks out somehow. But do your own research and check everyone's opinions Drew. I liked it a lot.
Title: Re: Priapus shot
Post by: james1947 on October 29, 2014, 12:44:33 AM
As I have written a few times, it not helped me, but helped others.
So it is very individual, as the decision to make PRP or not.

James
Title: Re: Priapus shot
Post by: UrsusMinor on October 29, 2014, 03:40:54 AM
Well, after the shots I experienced better volume when flaccid, and better flaccid 'hang.'

I had a large decrease in pain following the injections. So far, erections have been the same general size (some people here seem to be able to measure plus or minus a quarter inch with confidence, but I can't), and I can't see any indication that the bend has decreased. But the docs who gave the shots said that they looked for changes in things like that about 5-7 months after treatment, so I'm still waiting.

My pain levels have decreased significantly after the shots, and my erections are rock-hard. So, unfortunately, is the bend, at leat so far.

This could have nothing to do with the shots. Perhaps the pain was ready to disappear; and I have been taking 2.5 mg of Cialis for a few months. There is no way to tell.

Contrary to popular belief, there is no way to tell even with a large, double-blind study. Such studies tell you what to expect on the average, but they don't tell you what to expect for an individual. A therapy that has no benefit on average can have dramatic positive effects on some people; and a therapy that has positive effects on the average can be horribly debilitating for some individuals. Statistical, 'evidence-based' medicine will be laughed at twenty years from now, because it is applying a mathematical average to individual cases, without any reference to genetics. We are in the Dark Ages here, folks.

Am I glad I had the shots? Yes. Do I know they had benefits? No. Could whatever benefits they had be due to the placebo effect? Yes--but study after study shows that the placebo effect is often far stronger than the effect of the medication being tested.

As I promised, if I get to the point where I have something to show in the way of photographic evidence regarding curvature or size, I will do so. Right now, all I have are a couple of pictures of my bent penis pre-shots, and I don't see that they would really contribute to the discussion!
Title: Re: Priapus shot
Post by: C_lab34 on October 29, 2014, 07:45:17 AM
I will be getting the shot later today at 3 pm. I am fully aware of the variation in response to this procedure, and expect nothing but hope for some improvement. I have general scarring that is restricting girth, limiting length, and impeding erections. I also have reduced sensitivity. I've probably lost about .25 to .50 girth and about the same in length. If I get anything back at all, I'll be pretty pleased. Plus the clinic I'm going to is offering to do two shots for the price of one, so if the first doesn't produce results, I'll get another. I'll let you all know how it goes.
Title: Re: Priapus shot
Post by: NeoV on October 29, 2014, 07:53:53 AM
Great Clab, let us know how u feel. Expect to be a bit swollen for a half hour after.
Title: Re: Priapus shot
Post by: james1947 on October 29, 2014, 07:57:53 AM
C_lab34

Update us how it was, and wish you good outcome.

James
Title: Re: Priapus shot
Post by: drew67 on October 29, 2014, 07:03:18 PM
James means that there's no good way to know what will happen, since PRP hasn't been studied for Peyronie's. It will certainly make your penis harder and more full, which helps expand the damaged area. Personally I'm all for it though I hate needles. What treatments are you using?

I'm not using any treatments other than 2.5 - 5mg cialis which I recently started.  I have reduced sensitivity at the base but no pain.  I had inflammatory issues 10 years ago which lead to mild crohn's, psoriasis, dermatitis which may have lead to my peyronies.  I'm 36 years old.
Title: Re: Priapus shot
Post by: C_lab34 on November 01, 2014, 11:59:18 AM
I had the shot on wednesday. Have to say it really hurt when they injected into the head. They gave me three injection, two in the in the shaft and one in the head. Pretty uncomfortable. The bad news is that my head is still sore and there is a hard and sore spot right where they injected. I fear this is fibrosis but am hoping it's just swelling or a temporary reaction. Also on the bad side is that I have that hard cord that people get sometimes after pumping running up and down my shaft. Hope that goes away too. The good news is that I am much more sensitive right now, and I get harder faster. I'm also a little thicker but I think that's just fluid and should be going down anytime now. We'll see what happens from here.
Title: Re: Priapus shot
Post by: james1947 on November 01, 2014, 03:22:12 PM
C_lab34

Two early to say if it will help you or not.
You have to give it some time, also I don't think and hope for you that the hard spot where they injected is not a scar. I think the time is too short to develop a scar.
It is indeed good news that you get hard faster and you feel more sensitive, please keep us updated how is going.

James
Title: Re: Priapus shot
Post by: fredjones on November 01, 2014, 06:13:55 PM
nearly 3 months...have kept the 1/4 in increase in girth but really no noticeable difference in sensitivity..  one difference that i can say is noticeable is that the flaccid length is longer and stays.   may get another shot, not sure.  it's expensive ad the dr. i used lives quite a ways away. by the way, clab34, where is your dr and name that is giving the 2 for one deal? and what was the price of this deal?  thanks
Title: Re: Priapus shot
Post by: james1947 on November 01, 2014, 07:27:00 PM
fredjones

I don't know how I miss your previous posts, but better later than never :)
Encouraging that the 1/4" girth remained.
I updated the PRP/Priapus shots forum experience

James
Title: Re: Priapus shot
Post by: UrsusMinor on November 04, 2014, 12:22:51 AM
hey, fred--

I agree, the biggest effect I have seen so far was on flaccid hang...and on decreasing pain.
Title: Re: Priapus shot
Post by: C_lab34 on November 05, 2014, 10:21:37 AM
I'm just about one week out. The size is back to where it was and the swelling is completely gone now. So is that hard edema cord. I think I've been more responsive and sensitive, and a little harder. I think I'm at the point before the healing process has really kicked in so I'm hoping for more benefits. More time is needed.

Fredjones, I went to a clinic in Indianapolis, IN, run by Dr. Sumrall. I had to pay 1900, but like I said, I can get another shot in a few months.
Title: Re: Priapus shot
Post by: incautious on November 05, 2014, 10:37:44 AM
 Update, after 9 months since I got my shot there is still a significant improvement in all areas vs my baseline. I am amazed in that the curvature is all but gone. Once the plaque completely dissipated I continued to see a reduction in curvature. It took 18 plus months of traction, pumping, ect to get where I am right now. There is no quick fix, if at all for some, but hopefully others will be as diligent as I was, and see improvement.  Even my wife has noticed, and "feels" the difference and complains of being sore just like in the old days. I blamed the improvements on the testosterone therapy  .lol
Title: Re: Priapus shot
Post by: james1947 on November 05, 2014, 04:37:23 PM
Good to read again about your improvements. I have a few questions, just to make more clear what you have written. So the result is from the combination of:
*Priapus shot
*VED
*Traction
*Testosterone therapy
I am right?

James
Title: Re: Priapus shot
Post by: incautious on November 06, 2014, 07:25:48 AM
yes james. I do believe that it was the combination of all those things that gave me the results that i got. I still say that I would not have responded as well to the priapus shot with out first using traction/VED/Testosterone for 6 months prior.
Title: Re: Priapus shot
Post by: Traveller on November 09, 2014, 01:21:50 PM
Has anyone here tried priapus while not doing VED or a separate therapy?

Also Ursusmino (and others), how significant was your pain reduction after priapus?
Title: Re: Priapus shot
Post by: james1947 on November 09, 2014, 04:49:32 PM
 Traveller

I tried not doing VED after the shots, with or without VED, I had no improvements.

James
Title: Re: Priapus shot
Post by: NeoV on November 09, 2014, 09:38:31 PM
Hey there traveller,

My discomfort went away after the shots probably due to the extra volume pushing my scarring away from the nerves in my penis. The volumization effect cannot be denied, just remember that it goes down in 3 days or a week. After that period it's hard for some of us to say what was carried over if anything at all. Personally I think I kept part of the extra size. I'd consider PRP just something to try based on intriguing and pretty sound science, but the effects may be hard to gauge.

I think some studies showed that PRP took up to 18 months to finish doing its job on some other body parts.
Title: Re: Priapus shot
Post by: Traveller on November 10, 2014, 01:44:21 PM
Did your pain return after the volunization went down?
Title: Re: Priapus shot
Post by: NeoV on November 10, 2014, 10:27:11 PM
I may not be the one to ask since I don't have as much pain as others. In my case some discomfort came back. But maybe someone else can answer for ya. Anyone?
Title: Re: Priapus shot
Post by: drew67 on November 20, 2014, 09:50:07 PM
This clinic offers mesenchymal stem cell injections in addition to PRP:
http://www.truongrehab.com/Stem_Cell_Regenerative_Therapy
 (http://www.truongrehab.com/Stem_Cell_Regenerative_Therapy)
Title: Re: Priapus shot
Post by: UrsusMinor on November 23, 2014, 04:08:52 AM
Traveller--

My pain reduction was massive--but I was in a lot of pain! (Both flaccid and erect.)

I can't swear it was from the shots, but the pain drop-off happened right after the shots. And it seems to be permanent. It's not like I now have zero discomfort, but before the shots I often was reluctant to do even simple things, like gardening or going for a walk because I felt so inflamed.

My penis is still bent so far. But it feels better and works better.

It could be that I just passed from the acute to the chronic phase. I truly don't know. But I'm glad I got the shots!
Title: Re: Priapus shot
Post by: Traveller on December 03, 2014, 09:32:05 PM
UrsusMinor

Thanks for the response. It is good to hear that you experienced such improvement.
Title: Re: Priapus shot
Post by: drew67 on December 05, 2014, 05:07:45 PM
I am still doing my research on traction but was wondering if I should go for the p-shot even though I haven;t started traction yet.  My uro said that after feeling around he could detect some fibrous tissue but no obvious plaque even though I've had the condition for 10+ years.  Is that even possible?  Can you still be in an acute phase after 10 years wit the condition?  He wouldn't give me a doppler ultrasound.

Anyway, assuming minimal plaque, would I be wise to get the shot ASAP or start traction first?  I'm thinking get the shot then start traction as I can always just go for another shot.  Whereas if I wait, any potential window of reversing the curve with the shot may close as I move out of the acute phase, which I still find hard to believe that I'm in. 
Title: Re: Priapus shot
Post by: Nemo on December 05, 2014, 06:06:39 PM
Drew, if you've had Peyronies Disease for 10 years and it hasn't changed recently, you're not in an acute phase.  And bear in mind, it's way more difficult for a Uro to feel what you feel when he's examining your penis - when you do it, your brain and fingertips are working together - when he does it, he's just going on what he can feel, which may not be much.  I too have had Peyronies Disease for 13+ years, and my scarring feels like soft, thick, fibrous tissue - there's no palpable "hardness" to it. So this is probably what your doc is feeling in you. 

As to timing of the Priapus shot, honestly, I don't think it makes any difference ... but rest assured, if you haven't had some new symptoms, pain or distortion in your penis, you're not in an acute phase - it just doesn't last 10 years - if it did, your penis would be tied in about three separate knots by now! 

Best to you,
Nemo
Title: Re: Priapus shot
Post by: incautious on December 09, 2014, 02:28:16 PM
drew, I would do the traction first as well as VED. I truly believe, that in my case, this is what really helped with my peyronie's. 3-6 months of both . It's a lot of time, but little expense. then if you see improvement then spend the $$ on the shot. just my 2 cents
Title: Re: Priapus shot
Post by: james1947 on March 14, 2015, 05:13:39 PM
Quiet on the topic for more than 3 months.
No one have an update on the subject?


Except me, that the results are zero on the long range too. :(

James
Title: Re: Priapus shot
Post by: Chef Chris on March 14, 2015, 08:03:42 PM
I have hade some improvements. My plaque on the left side of my penis is gone. I don't know if the prp helped or it would have been better in time anyway whit out the prp. After the last shot I haven't seen any improvement. I am currently locking in to getting xiaflex here in Sweden.
Title: Re: Priapus shot
Post by: james1947 on March 25, 2015, 11:44:35 PM
I don't want to be annoying, but please, all the PRP/Priapus members club, give us an update regarding the actual status of improvements or not :)

James
Title: Re: Priapus shot
Post by: incautious on March 26, 2015, 03:21:58 PM
13 months and everything is still good. Plaque is gone and I have very little curvature. Erectile Dysfunction is much improved also. Length gains are still there and I am still seeing gains in girth which is quite amazing as I am almost too girthy now.  I continue to use VED once or twice a day for about 10 minutes and still do the Ubiquinol/Vit. E/L-Citrulline/Pine Bark supplements 3-4 times a week. Again I must state that the priapus shot alone is not the reason for my results, as I used traction and VED diligently for several months prior to receiving the shot. The shot, I believe, hasten the positive results that I was already seeing.
Title: Re: Priapus shot
Post by: koolx on March 28, 2015, 06:26:50 AM
Unfortunately, PRP only lasts between 3 - 5 months. Afterwards, you will have to inject again. Its a temporary crutch, nothing more.
Title: Re: Priapus shot
Post by: dioporcolorisolvo on April 30, 2015, 07:44:10 AM
after 1 year, no improvments.
Title: Re: Priapus shot
Post by: leland_mack on May 09, 2015, 10:26:15 AM
@ koolx, you say PRP is not permanent. Do you know why that is the case? Wouldn't that mean that the plaque remains and is not replaced by normal tissue? If that's the case then you better be a rich man if you go the PRP route.
Title: Re: Priapus shot
Post by: kuaka on May 11, 2015, 01:54:20 PM
I've found Levitra works for up to 12 hours where as Viagra is done by 4 hours.

Interesting.  Back a few years ago, in the early stages of my PIED, I tried Viagra (before learning about PIED) and found it actually effective up to 24 hours later.  It was the side effects of the headache and stuffy nose that I could not tolerate.
Title: Re: Priapus shot
Post by: GuitarHero on May 29, 2015, 03:17:10 PM

Hey guys, lots of info about this PRP shot in this forum. I've been reading this for some time without posting anything, but now I noticed this new thing I haven't heard about before.

I wonder if there's already some doctors in Europe that you guys could recommend? This sounds interesting but I wouldn't dare to give some cosmetic nurse do it, it needs to be a professional urologist who knows how to use it (just my opinion). I live in north europe so trip to US would quickly become pretty expensive and difficult, however a short trip to London or other place wouldn't be a problem.

Has anybody heard about BAD results with PRP? Like extra scarring or other problems that might worsen this condition.

Title: Re: Priapus shot
Post by: Steveo on June 12, 2015, 09:47:11 AM
So if the shot is "only good for a few months," what exactly does it do to the peyronie's scars?
Title: Re: Priapus shot
Post by: james1947 on June 12, 2015, 03:23:44 PM
I don't know about bad results from PRP, but every injection into the penis increasing the chance for a new scar.
I done the PRP with zero results.
Some reported very good results.
PRIAPUS/PRP Injections Trial (forum) - Peyronies Society Forums (http://www.peyroniesforum.net/index.php/topic,4788.0.html)
Debate on Pripapus/PRP efficiency for Peyronies - Peyronies Society Forums (http://www.peyroniesforum.net/index.php/topic,4920.0.html)

James
Title: Re: Priapus shot
Post by: Freemason on August 11, 2015, 10:38:47 AM
oddly..I was watching the Drs show this morning and they were discussing this new treatment for women and it was PRP shot. Also discussed how it is showing benefit for men with Erectile Dysfunction/Peyronies Disease and that in theory makes sense.  I've read on here that it has helped some and others not. Guess no therapy is 100% for everyone.  I'm intrigued by this.  It's is pricey and appears that you have to come back every 3-4 months.  So if it does work then its roughly $6000 a year from what I'm seeing.  The good news is that some sites that offer it say you will see effects right away so I guess you will know fairly soon if it works.  I can certainly see what James had mentioned as far as additional risk of scaring but it's only 1 shot and into the corpus cavern I believe? So I'd think the risk of creating another scar with a small needle one shot would be pretty low.

Just wanted to mention that they were discussing today on TV..not sure if some recent data had been published?
Title: Re: Priapus shot
Post by: yyy on August 11, 2015, 06:13:59 PM
I believe the key can be the quantity of PRP injected which should be high and the frequency of the treatment, at least 4-6 shots every 2-3 weeks. It must be injected into the plaque of course. Will go to Paris at the beginning of September for my first shot of PRP+hyaluronic acid, stay tuned
Title: Re: Priapus shot
Post by: Jack1909 on August 12, 2015, 01:51:02 AM
Full quote removed......  Admin

Vedrai che migliorerai, anche dopo 2..
Title: Re: Priapus shot
Post by: james1947 on August 16, 2015, 01:17:32 PM
Wish you good results with the treatment yyy
Will stay tuned for sure

James
Title: Re: Priapus shot
Post by: BigJoe11 on January 26, 2016, 07:34:36 PM
Hey guys, I know there's a lot of interest on the boards regarding PRP/stem cells so wanted to tell you about my experience.  First off, I have damage to the penis and Erectile Dysfunction, but not sure if I technically have Peyronies Disease (no curve and never been diagnosed).  I received the treatment about a year ago.  It was definitely more painful than I expected.  I can say without a doubt I experienced an increase in size and functionality immediately (and I'm not talking about the increased volume) and lasted for about 6-8 months.  The most noticeable difference was how responsive my penis was.  It was like going from trying to start a car in the winter to a sports car in the summer.  It was always ready and firm.  I also took daily Cialis, 1 pentox and arginine and used the pump in the beginning, but stopped.    Recently it seems if the results have diminished, but I am trying to determine if that's reality or if its because I came off a cycle of testosterone and my body is still rebalancing.  Just wanted to share and hopefully improvements to the treatment will provide lasting effects. 
Title: Re: Priapus shot
Post by: james1947 on January 27, 2016, 12:51:21 AM
Thank you for posting your experience BigJoe11. :)
You are between the few lucky ones that got good results from PRP.
I am not, as the PRP done nothing to me :(

James
Title: Re: Priapus shot
Post by: overcomethis on February 23, 2016, 04:26:13 AM
Hi all, during an appointment with my Urologist I raised the Priapus shot.  He explained that he would not do this, let alone be able to get in Australia as it is not approved for such use.  There are no studies out there to support it and all reports seem to be anecdotal, so I can see where he is coming from. 

I found on www.priapusshot.com a list of practitioners in Australia who apparently do the priapus shot. (despite what my Urologist said about it's presence/availability here?) 
This is the website for one Australian provider. http://www.oshotaustralia.com.au/oshot-procedure-lp/
He can do the procedure and offered to have a free consultation to discuss it further if I would like. I'm not sure if he has done this before for Peyronies.

The website looks somewhat questionable, so I ask if anyone in Australia has any insight into this?
Are there any independent studies available that support priapus shot for treatment?
Title: Re: Priapus shot
Post by: NeoV on February 23, 2016, 04:42:05 AM
For me, PRP was something that was available and close to home. It also seemed low risk at the time and was quite new and seemed promising. I think it helped but can't say I have any real benefits at this time. The science seems like it makes sense. The best results I ever had were from traction and supplements.
Title: Re: Priapus shot
Post by: james1947 on February 23, 2016, 06:07:19 PM
I went to the PRP way, was one of the most enthusiastic on the forum, unfortunately it didn't helped me at all :(
And no, don't have any serious independent studies on the PRP subject!!!

James
Title: Re: Priapus shot
Post by: Nemo on February 24, 2016, 09:13:45 PM
overcomethis, your urologist doesn't believe in it, the majority of real world experience men undertook on this forum did little or nothing to support it as a viable treatment, and you have a legitimate suspicion regarding the Priapus website itself. I think your gut is trying to tell you something. I say go with your gut.

Nemo
Title: Re: Priapus shot
Post by: james1947 on February 25, 2016, 03:45:52 AM
overcomethis

You may want to read also:
PRIAPUS/PRP Injections Trial (forum) - Peyronies Society Forums (http://www.peyroniesforum.net/index.php/topic,4788.0.html)
&
Debate on Pripapus/PRP efficiency for Peyronies - Peyronies Society Forums (http://www.peyroniesforum.net/index.php/topic,4920.0.html)

James
Title: Re: Priapus shot
Post by: Humble8228 on February 26, 2016, 08:56:38 PM
Has anyone ever experience a rash, itching and swelling around area of the groin
Concerned something is wrong
Got a shot for peroinies
And using ved twice a day
Title: Re: Priapus shot
Post by: NeoV on February 26, 2016, 08:59:56 PM
Hey Humble, could you give us more specifics? Where exactly is it, when did it start?

It's best that you see a doctor if you are unsure and if it seems like something isn't right.

The PRP injections made me very swollen the first day, and I'm not talking about the fluid retention from PRP itself. My penis looked awful for the first 24 hours I think.
Title: Re: Priapus shot
Post by: Humble8228 on February 26, 2016, 09:09:50 PM
Within the first 24 hours like you said was swollen
But then broke out in a rash everywhere the ved was
My groin area
Inside leg
Red and some swelling concerned had allergic reaction to silicone lubricant so stopped using it
Didn't know if anyone else had same experience or something similar
If normal or close to
Title: Re: Priapus shot
Post by: Silver177 on April 03, 2016, 06:59:24 PM
Hello all,
I have been looking into Peyronies treatments for about a year and there seem to be variable results with every treatment.  I have had a mild case of Peyronies for about 15 years, which is nearly half my life, and it's been a very slow development over that time.  But in this last year it it increased dramatically. The curve increased, pain increased, I developed noticeable scars, and lost about 3/4" in both length and girth.  The only thing that changed in that time was my stress level. I had several major life crisis within a few months.  Ive read this forum and others as well as information on the Peyronies Disease Institute website.  But it wasn't until I was trying to find a treatment for some other health issues that I found something promising.
Some treatments operate on the theory that if you heal the man (restore good health) the Peyronies will heal itself. Makes sense, but I eat and live healthy and still have a ton of issues.
The PRP treatment makes sense in theory but it seems like the guys who need it most don't see as good of results as those who don't need it but get it purely for enhancement purposes.
Now, I just got done reading a book called "The Amazing Liver And Gallbladder Flush" by Andreas Moritz.  After reading that book I have formed a theory...the PRP or platelet rich plasma shot is dependent on health of the platelets in your own blood.  If your liver (which is responsible for many systems in the body) is healthy our bodies naturally heal themselves.  The amount of stress I had last year took a toll on my liver which showed up as multiple health issues. So it only makes that those of us with Peyronies likely have poor blood and therefore don't get the results of someone who has great health already.  I hope that made sense. 
Anyway, I have spent tons of money on remedies with no good results so far.  I'm going to do this liver cleanse for a few months and then get the PRP shot to test my theory.

Any thought or opinions on that?
Title: Re: Priapus shot
Post by: james1947 on April 08, 2016, 12:43:18 AM
Silver177

You may want to read the forum experience with the PRP here:
PRIAPUS/PRP Injections Trial (forum) - Peyronies Society Forums (http://www.peyroniesforum.net/index.php/topic,4788.0.html)
and many other topics on this very board.
Be careful with the liver cleans!!!
I made such a cleanse for my prostate according to a book publishes by a Dr. that cured himself from prostate cancer without surgery or medications. He died one year after I bought his book ($30) from prostate cancer :( After he cured himself already. How sad!!!
I still have side effects from the cleansing, like losing slowly my tooth's after taking out all the amalgam fillings :(

James
Title: Re: Priapus shot
Post by: toofoolish on August 20, 2016, 03:56:29 PM
Has anyone ever really had a negative reaction to the priapus shot?   I have had some minor scaring in my penis for over 10 years and it has not cause much curve or deformation of my penis.  Just a couple of barely noticeable dents.  My biggest problem is chronic pain in the areas of the scars that always has me scared of the disease progressing.  I wonder if the priapus shot might be able to do something for my pain.  I don't even care if it reverses anything, I'd just like to be pain free.  My biggest concern would be making my condition worse and the disease progressing more because of the shot.  People who have had the shot tell me what you think. 
Title: Re: Priapus shot
Post by: james1947 on August 21, 2016, 03:23:41 AM
Quote
Has anyone ever really had a negative reaction to the priapus shot?
Not as I know, but you may want to read the topics related to Priapus/PRP, have many
Dis you see a Urologist/Peyronies expert?
Did you try Pentox for the pain? Many on the forum got helped by Pentox regarding pain

James
Title: Re: Priapus shot
Post by: toofoolish on August 21, 2016, 04:19:45 AM
Yes I've seen several Urologists and have tried Pentox.  The Pentox does relieve the pain somewhat if I take it long enough but if I stop taking it the pain comes back.  I'm currently not taking any and am in a considerable amount of pain.  My current Urologist wants me to see a pain management specialist.  It would be really nice to find a fix that didn't rely on having to take pills everyday.  I think I am going to see if I can get another script for some Pentox on Monday though.  My scarring is pretty minor and it would be nice if something like PRP or stem cells could reduce it to where the pain goes away permanently.  It just doesn't seem like there is that much info out there on it that I really trust.  Even on here it seems like a lot of the people that post on something don't stay active long enough to really know what their long term results are.  I wouldn't expect any miracles from a priapus shot like growing longer, thicker, with a complete resolution of all my symptoms.  No pain with no meds would be nice though.     
Title: Re: Priapus shot
Post by: Jack1909 on August 21, 2016, 02:32:13 PM
Everbody in here has been waiting for better treatments than the bunch of ridiculous snake oil we are offered. I live in 24h pain  and I cannot do any activity, I've tried so many stuff and obtained nothing. I understand you but I don't know how much time we have to wait before something decent..it could be years or decades..
Title: Re: Priapus shot
Post by: lespleen on September 09, 2016, 12:47:07 PM
The PRP shot will encourage the proliferation of a certain category of stem cell. So the distinction between PRP and stem cells is not a binary one. PRP is not a monolithic entity like Tylenol or Advil that remains invariant across space and time. There are about 16 + companies offering PRP devices of one kind or the other. These machines vary greatly in PRP concentration, PRP retention -- meaning that some devices require that more blood be drawn in order to achieve  PRP concentrations comparable to those achieved by other machines using less blood--, White Blood Count (WBC), and some produce PRP that is leukocyte poor and others leukocyte rich PRP. This latter distinction is an important one because leukocytes can be pro inflammatory. This can be helpful when injecting PRP into joints, but whether or not soft tissue can stand to benefit from these pro-inflammatory agents is another question. There is also debate about whether or not higher concentrations of PRP lead to better results.  There are invivo studies demonstrating that anything beyond a 2.5 fold increase in the patient's baseline platelet concentration leads to a less  favorable outcome than do lesser concentrations. Many of the more popular devices out there increase the baseline concentration by a factor of 8! These products also vary in terms of the anticoagulant used: some anticoagulants are outright acidic, others are neutral. I suffer from the same symptoms you describe, toofoolish. I would add low dose cialis to your pentox. The cialis helps a lot with the pain....in other words vascularizing the penis seems to help reduce pain. The P shot is designed to rejuvenate the penis generally...this would have to include increased vascularization. The risks with PRP are low and the potential benefits are great. Just be sure to inquire as to what kind of device they're using. Regenlab errs on the low end of PRP concentration ( between 2.5 and 3) and their product is leukocyte poor. Dr. Virag uses this product. Harvest, Biomet GPS, and Megellan offer somewhere in the order of a 5 to 8 fold increase and are leukocyte rich. I know of clinics that have transitioned from low PRP concentration products to higher concentration products and have met with greater success. I think it's important to keep these issues in mind. PRP produced via a lower concentration product might be less effective than a highttp://orthodoc.aaos.org/WilliamFBennettMD/Growth%20Factor%20Platelet%20Concentration%20from%20Commercial%20PRP.pdf her concentration product and vice versa. Here's a link to a relevant article written a few years back:
Comparison of Growth Factor and Platelet Concentration From Commercial Platelet-Rich Plasma Separation Systems (http://ajs.sagepub.com/content/39/2/266.abstract)

Title: Re: Priapus shot
Post by: Humble8228 on October 06, 2016, 11:22:29 AM
after 2 shots... no positive results... still curved...
trying to focus on using the VED everyday....

Title: Re: Priapus shot
Post by: HealthGAINS on February 16, 2017, 05:17:21 PM
HealthGAINS has been treating men with erectile dysfunction and Peyronie's Disease using the Priapus Shot (P-Shot). Dr. Richard Gaines is a Harvard trained, hormone optimization and sexual health expert who has literally written books about these topics.

Peyronie's Disease is a painful and unfortunate disease but it does not have to be permanent. Our patients have seen noticeable improvements that can have a drastic impact in the patient's well-being and in reducing discomfort and pain.

In addition to using the P-Shot by itself, it is now also possible to use the Priapus Shot in combination with the GAINSWave™. The GAINSWave™ uses high frequency acoustical waves to open up old blood vessels, and to stimulate the formation of new vessels. The resulting improved blood flow helps any man, and not just those with Erectile Dysfunction, to obtain stronger and more sustainable erections.

With all that said, it's clear that there are a significant amount of Peyronies Disease sufferers on this forum that have found little to no relief with the Priapus Shot. Over the years, Dr. Gaines has been making the necessary adjustments to the protocol to ensure the best possible result for each patient.

We are here to help and answer any necessary questions and concerns you all may have. Our goal is to educate and treat Peyronies Disease for those who are having to unfortunately endure it.

If you want to speak on the phone to someone on our medical team, please contact us through the site and mention that you are coming from the Peyronie's Forum.

Thank you.


LINKS TO COMMERCIAL SITE DELETED BY MODERATOR!!!
PLEASE READ THE FORUM RULES




Title: Re: Priapus shot
Post by: james1947 on February 16, 2017, 11:20:18 PM
A search for Priapus will give you 57 results on the forum
A search for PRP will give you 159 posts
Many of us had done Priapus shots, PRP shots and other combinations and we know the efficacy for Peyronies from our our experience!!!
All the information is on this specific board!!!

James
Title: Re: Priapus shot
Post by: Nemo on February 16, 2017, 11:24:28 PM
HealthGains, Dr. Gaines, as you appear to have come on our forum to solicit business, I would challenge you to share some of the case histories (anonymous, of course) of men who you claim have enjoyed "noticeable improvements" to their Peyronie's through your Priapus and GAINSWave techniques.

Specifically, we would need to see before and after photos of measurable, recognizable improvement in curvature or deformity, along with accounts of the treatment protocol, etc.

Simply telling us a technique that has been - through many anecdotal accounts here, as well as photographic evidence - proven to be a waste of both time and money (a lot of money) is not helpful in any way.  We need to see evidence. What Priapus has lacked all along is evidence. In theory, it works miracles - in reality, it empties wallets.

If you cannot provide substantive evidence of results gained by Dr. Gaines' "necessary adjustments to the protocol" than, like others before you, you are wasting time here and creating false hope.

Sincerely,
Nemo
Title: Re: Priapus shot
Post by: getting_there_in_oregon on June 19, 2017, 03:23:06 PM
I'm interested in knowing more about Gainswave... I was watching one of my favorite health podcasts.
It's about a bunch of erectile dysfunctions but I wish I could have asked about plaque from peyronies, but apparently it can break it down.
Link to commercial site deleted by moderator. Read the forum rules!

there's also this going specifically into gainswave:
Link to commercial site deleted by moderator. Read the forum rules!

Has this angle of discussion penetrated this forum? Please watch the first video (or listen to it in the podcast version) and we should be talking about this.

This was the only thing that even came up when I searched for it.
Title: Re: Priapus shot
Post by: james1947 on June 20, 2017, 10:25:44 PM
getting_there_in_oregon

HealthGains, Dr. Gaines, didn't find the time to answer to Nemo from February 17, 2017.
He was here just to make money!!!
Your links were deleted by a moderator, I suppose for good reasons. Are you a Dr. Gaines fan?

James
Title: Re: Priapus shot
Post by: JayGould on September 29, 2017, 07:15:33 PM
I had the Priapus shot yesterday. Five injections total. Two on either side plus one in the glans. My penis is now all black from the bruising. They did the injections while I was erect (following a doppler ultrasound) and used 25g (usually for IM injections) needles. Is that the normal process? Seems a bit unnecessary. Why not use 30 or 31g needles and do it while flaccid?
Title: Re: Priapus shot
Post by: skunkworks on September 29, 2017, 08:41:09 PM
I am not 100% sure 31 comes in a long enough needle, but yeah they 100% should have used 30. If they'd come at my dick with a 25g I'd be out the door. It has also been confirmed with studies that the platelets come through a 30g needle with zero issues.

I have no idea about whether or not it should be erect or non erect.
Title: Re: Priapus shot
Post by: Christopher1 on September 30, 2017, 12:12:37 PM
Tell us your results! = )
Title: Re: Priapus shot
Post by: james1947 on October 01, 2017, 02:20:39 AM
Non of my PRP shots were done in erect state, it is not necessary to be erect.
The needle was 30, had no any bruising, a numbing cream before the injections, pain 1 on the scale of 10.

James
Title: Re: Priapus shot
Post by: Christopher1 on October 09, 2017, 06:54:33 PM
Any news?
Title: Re: Priapus shot
Post by: JayGould on October 11, 2017, 04:56:19 PM
Not yet. The Doc said it was going to take a minimum of 3 months before any possible effect would be seen.
Title: Re: Priapus shot
Post by: skunkworks on October 11, 2017, 07:20:15 PM
How is the bruising?
Title: Re: Priapus shot
Post by: Christopher1 on October 21, 2017, 09:55:48 AM
Bump.
Title: Re: Priapus shot
Post by: curved on November 06, 2017, 05:40:14 PM
Just curious if anyone has experienced significant hematoma with the priapus shot.  I finished up 4 rounds of Xiaflex several months ago with decent results but still have a bit of hourglassing and was wondering if the priapus shot might help.  I will say that the hematomas (had 3) from xiaflex was quite painful and a documented side effect of the procedure.  Really hoping to avoid that if I go the priapus route.  Thx.
Title: Re: Priapus shot
Post by: TonySa on November 06, 2017, 06:12:08 PM
How many degrees of curve did you lose w the Xiaflex?
Title: Re: Priapus shot
Post by: james1947 on November 07, 2017, 08:51:24 AM
Curved

I didn't had any hematoma, but also any gain I had (maybe imaginary) gone after a month.
Proposing you to read the links bellow:
PRIAPUS/PRP Injections Trial (forum) - Peyronies Society Forums (http://www.peyroniesforum.net/index.php/topic,4788.0.html)
Debate on Pripapus/PRP efficiency for Peyronies - Peyronies Society Forums (http://www.peyroniesforum.net/index.php/topic,4920.0.html)

James
Title: Re: Priapus shot
Post by: curved on November 08, 2017, 09:51:47 AM
Tsanchez--- I had significant reduction with Xiaflex.  I went from 40 degree downward and to left curve to approx 10 degree downward.  Note that this is not typical success and is above average for the process.  I have not regained full length from prior to Peyronies Disease but am much straighter.  I highly recommend using traction as part of the protocol, although check with your DR.  Typically they will suggest manual stretching (different docs have slightl;y different protocols).  Finally be aware that hematomas are a potential side effect and these can be quite painful.  These are caused by nicking a blood vessel when the doc is spreading the Xiaflex in the plaque.
Title: Re: Priapus shot
Post by: curved on November 08, 2017, 09:53:05 AM
James- Thanks for the feedback... will let everyone know how it goes.
Title: Re: Priapus shot
Post by: Sadguy on November 24, 2017, 05:08:29 PM
I had the Priapus shot yesterday. Five injections total. Two on either side plus one in the glans. My penis is now all black from the bruising. They did the injections while I was erect (following a doppler ultrasound) and used 25g (usually for IM injections) needles. Is that the normal process? Seems a bit unnecessary. Why not use 30 or 31g needles and do it while flaccid?
keep us informed about your situation please!
Title: Re: Priapus shot
Post by: jameschen730101 on March 11, 2018, 09:38:21 PM
Hi there,

I wonder how long the improvement on curvature made by priapus (or PRP) shot can last?

I just saw Dr. Robert's site http://www.roberthcohenmd.com/pshot.html (http://www.roberthcohenmd.com/pshot.html).
It says:
"After a course of P-Shot treatments, patients experience a straightening of the penile shaft. The results are usually experienced within two weeks and may last up to a year."

Does that mean the Dr himself expects the improvement on curvature only lasts for a year?

It seems some members here experienced improvements on curvature after priapus (PRP) shot. Does that result stay?
I am considering to get a priapus shot, but I am very confused now. :-\

Title: Re: Priapus shot
Post by: ray jones on April 28, 2018, 08:45:18 AM
Ihad this shot 2000.00 it didnt help
Title: Re: Priapus shot
Post by: TonySa on April 28, 2018, 12:20:46 PM
Run the other direction, spend your money on treatments that have evidence of working.
Title: Re: Priapus shot
Post by: james1947 on April 29, 2018, 02:37:17 AM
After PRP shots, the doctors pocket is straitening down from the weight of the $$$

James
Title: Re: Priapus shot
Post by: TonySa on April 29, 2018, 12:12:09 PM
LOL
Title: Re: Priapus shot
Post by: sivadj on May 10, 2018, 11:33:34 PM
IhatePD, 10 in of HG is a measurement for vacuum just like PSI is a measurement for pressure. It stands for 10 inches of mercury. Dr Varano is located in Conshohocken PA. There is a list of Dr. performing this procedure here at this link

Directory | Priapus Shot (R) (http://www.priapusshot.com/members/directory/)
. I had PRP shot done 3/2018. It cost $1900.00 and did. NOTHING !
Title: Re: Priapus shot
Post by: Christopher1 on May 15, 2018, 06:43:19 PM
Well - that is unfortunate.

I am considering doing PRP for people with Peyronies Disease under my medical license (for very cheap - given I have Peyronies Disease, too, and don't want to make money off it), but this is not very encouraging.
Title: Re: Priapus shot
Post by: TonySa on May 15, 2018, 10:04:34 PM
Christopher, if you’re able to offer it Low priced you might do it for those who have both Erectile Dysfunction and peyronies.  Chances are better it would improve Erectile Dysfunction and may help a few w peyronies.  It’s great you’re willing to help others!  tony
Title: Re: Priapus shot
Post by: Christopher1 on May 18, 2018, 03:40:33 PM
Yes - I am going to do sexual medicine (internal medicine; not urology and urologic surgery). Just need to get my board-certification before I do.

People with Peyronies Disease can come in free. Not going to charge them.
Title: Re: Priapus shot
Post by: ray jones on June 12, 2018, 05:27:32 PM
The priapus shot did nothing for me ,i got worse i dont know if disease was progressing was in my 13,14 month or the shot did it ,all i know is  it cost 2000.00
Title: Re: Priapus shot
Post by: Christopher1 on June 15, 2018, 08:18:21 PM
Unfortunate. = /
Title: Re: Priapus shot
Post by: james1947 on June 18, 2018, 04:31:03 AM
I am unfortunate also with the PRP :(
Luckily my prices were $100 to $200 for each treatment :)

James
Title: Re: Priapus shot
Post by: JasperTJ on June 21, 2018, 11:12:45 AM
Ihad this shot 2000.00 it didnt help


Nothing?? Still no results? Did you do other treatments or a few rounds of it?
Title: Re: Priapus shot
Post by: jj21 on March 13, 2020, 08:31:42 AM
After reading this forum I have concluded that the consensus is that the shot will most likely offer no benefit or temporary benefit which will later be lost.

The best route is to stick to VED and traction??
Title: Re: Priapus shot
Post by: Pfract on March 13, 2020, 02:16:39 PM
I couldn't agree more JJ. But a lot of people find solace and confort in the idea of a couple of shots of something with no proven benefits will cure their condition. Funny enough, the ones who claim improvement never show any tangible, visual proof. Pages and pages of claims.

PRP.. Priapus.. Bathmate... Jelquing.... Amazing benefits. Few, if any, credible evidence/proof.
Title: Re: Priapus shot
Post by: jj21 on March 15, 2020, 02:46:44 AM
Cheers Pfract,

When I first started reading about PRP I almost considered it a miracle cure but I guess there is no such thing. Stick to traction and VED and wait for slow, steady results.

This disease can really ruin lives, I'm so surprised after so many years they still havent come up with a cure and even doctors are completely lost.

JJ