I have a 80+ degree dorsal bend and hourglass from Peyronies. I went to see Dr. Levine, and after a followup visit 3 months later, we agreed on the PEG surgery. It was set for the end of March, and I received a call with a cancellation, and I'm going in one week from today. I'd nervous, scared, excited, and full of all sorts of crazy thoughts. All I can say is, I'm looking forward to getting this all behind me. I'm holding onto the HOPE that there are no complications, no permanent Erectile Dysfunction, and everything just heals correctly. I'll be happy to follow up with my surgery and recovery if anyone is interested in those details.
Wish me luck.
Good luck with your surgery... Quite the time to go under the knife..... Please keep us posted!
What does Peg stand for
All the best and please keep us posted about how surgery went.... we all would like to know.
Covid test at the surgery center today. As long at thats negative (and I have no doubt it will be) I'll be all set for Wednesday. it's getting closer and closer, and the fear and anxiety is starting to set in. Obviously no man ever wants to have surgery on his penis, but I also don't wish Peyronies on anyone either. To prepare, I've been scouring these forums for positive stories and outcomes. I want to be one of those stories. Fully healed in 8 weeks, back to normal, no need for ED medications... All the good stuff. Time will tell!
I'll be back when I get my call the day before surgery.
Got my call today. I'm all set for 11am check in tomorrow. I think this just hit me, and how real this is. The nerves are setting in, and along with nerves and anxiety, I keep running the typical gamut of questions like "Am I doing the right thing? What if there's permanent damage? Am I SURE I can't live like this?" I'm absolutely sure this is normal since it's so close. All I know, and I keep telling myself is, in 16+ hours from right now, this will FINALLY be behind you, the problem will be fixed, and it's just healing from that point forward.
I'm scared. 100%.
I'll be back tomorrow. :)
We all are with you and praying for your success ! :)
You definitely have my prayers, brother. I just spoke to Dr. Brian Christine yesterday and that is one of the two surgical options he's thinking for me. I also have a 80 degree curve. Keep us posted!
Good luck buddy, youve got a army of support here behind you. Bustedchubb, Im seeing Dr. Christine at the end of February. Good luck and I may have some questions for you later.
good luck man :)
I really wanted to post yesterday but I was a bit out of it with the Anesthesia and pain meds. But here I am, the day after surgery, 18 hours later. I'll give you the details up to right now...
I arrived early for surgery, around 11am. I had my procedure done at the Surgical Center, and not the actual Hospital, as I wasn't a high risk for any complications. No one else was allowed in, so my Fiancé had to wait in the car. Covid, I get it. It doesn't make things any easier on the nerves though. Check in. Paperwork, the usual. I was brought back to my bed around 11:10, so it was quick! I changed into my hospital gown, and socks, and got into bed. Lots of questions, and then the IV is started, with some electrolytes to get things started.
The Anesthesiologist came in at about 11:45 and said Dr. Levine was half way through his current surgery, it was trickier then planned, but I would be up next. She asked if I had questions. Since this was my first surgery, going under scared me. I said to her "You're the most important person in my world today." She said "Yes I am. What are your concerns?" I said simply "It's not my time. Please make sure you wake me." and she promised.
Let me just say, the staff was amazing. WONDERFUL people, and you can feel the actual care they all have. Can't speak highly enough about the staff!
at about 1:25 Dr. Levine came in after his first surgery, to prep me, told me exactly what he was going to do, and said he's all warmed up now, the previous was tricky and he's hoping mine goes easier. (Spoiler alert, it didn't! haha)
Now it just got very real. Nerves are kicking in. I'm second guessing everything while I sit alone and wait.
What felt like 30 minutes was actually 10, and at 1:35 they came to take me to the OR. At this point, its a nurse and the Anesthesiologist. I was asked if I was OK. I said "To he honest, I'm starting to get REALLY nervous!" The Anesthesiologist said "Don't worry, I just gave you something and in 30 seconds, you won't be nervous anymore. She was right. :)
In the OR room, cold, bright, large room. They wheeled me up the other bed, I had to scoot over to it and get into position, and then, boom. I opened my eyes and it was over. Seriously, I wasn't even told I was about to go out. I literally remember getting on the table, and I woke up. BRILLIANT! If there's ANYTHING I can tell you, They did everything while under. From disrobing, to shaving. All the prep. It really helps save you from any possible modesty or embarrassment, or uncomfortableness. It was great.
OK, so I wake up back in my original room. As soon as I open my eyes, I request my phone to text my Fiancé and tell her Im out. This is the point I thought about how to word this, so I don't scare anyone... Just after opening my eyes, I feel the pain. Searing pain in my penis. It was bad. ALSO I need to mention, I have sever Spinal Stenosis, so laying flat on that'll table as long as I did made my spine really sore, so I have to contend with sever lower back pain, and the new surgery pain.
Dr. Levine came in to see me, they got me immediate pain medication into my IV, and it helped almost instantly. (Within 5 minutes)
SO, my actual surgery... It was more challenging and difficult then he anticipated. What was estimated at 45 minutes took 2.5 hours. There was deeper and more plaque then he anticipated, but he said it went perfectly. He also called and told my fiancé that it's now straight as an arrow! The extra time and cutting and grafting will be the cause of the pain, and other than that, things look good!
Next up, Cookies! haha! They give you water, and cookies. They actually brought me coffee too. You must urinate before you leave. That was a problem for me at first. Since I have Spinal Stenosis, I already have issues there. I trickle, and though this was going to mean I need a Catheter. I stood in my room and tried for 10 minutes. I had to , I just couldn't go. They laid me back down, and gave me another bottle of water to drink. At this point, Im thinking "This isn't going to happen..." and I asked to go try in the restroom.
As im walking, and here another scary part for some, Im dripping blood. I get into the bathroom, and this theres a lot of blood dripping to the floor. Again, Im thinking the worst. Good news, I was able to uriniate. Some blood in the urine, not too bad. Back to the bed, and they were pleased with the output, and told me I could get dressed, it was time I could go!
I got home, about an hour from the center, and felt OK. Drugs were still working, I was uncomfortable, but OK. I had some soup, and laid in bed early and let out a huge sigh of relief. Its over. Now I just heal.
Dr. wants me laying down for one week. Doing NOTHING. Take the compression bandage off in 3 days, and in one week, nightly low doses of Cialis to promote blood flow. Let me tell you, that isn't an issue for me. Last night, I was already woken up several times due to nighttime erection pain, only with the compression bandage, and this being so soon after surgery, I didn't notice anything yet, other then the pain. If you have experienced Peyronies pain with an erection, this is like that, only a bit worse.
Urinating is easier then I thought, I've gone about 10 times since I got home, I assume all the IV and such. No burning, and it's actually easier then I thought.
Glans is swollen I can feel the glans, but it's dull and numb. There's constant pressure youre aware of, due to the bandage. There's some pinching pain now and then, which I can only assume is the stitches. So far, I've only take 2 pain pills, the antibiotic they prescribed, and 2 tylonol to help bring down the low grade fever after the surgery.
I explained it to my fiancé last night, From the top of my head to my toes, my body feels like it KNOWS it's had trauma. It's a weird feeling for me.
There are many moments of discomfort and pain. Not going to lie. It's not as easy as I expected, but right now, It's just uncomfortable, and mangle. if THIS is as bad as it gets, I got this. The WORST pain so far, other then the initial waking up. is the night time erection blood flow. That is brutal, but If I make my way to the bathroom to urinate, I can get that to go away quickly.
Here's a tip... SIT DOWN to urinate. The glans is so swollen, you urine stream will go anywhere but straight, and cleaning up a bathroom was not something I wanted to do after my first standing pee at home. LOL
So far, I'm dealing with it. In my heart, I know this was the best thing I could have done. I'll keep updating!
Great to know, man!
Please keep updating us!
Quote from: postrocker on February 11, 2021, 12:52:34 PM
Great to know, man!
Please keep updating us!
I will, 100%!
Quick update. Still don't need pain meds today. Bruising is starting to collect in the scrotum and just forming on the rim of the lower glans. Not painful, just... Alarming at first site? LOL
Still good!
I'm getting nervous just reading your ordeal. You are doing great, man! We got (well I still got) the same situation as you, 80 deg dorsal bend with good erectile quality. Looking forward to hearing how well you keep doing and hope you make a speedy recovery in all ways.
Quote from: bustedchubb on February 11, 2021, 03:30:32 PM
I'm getting nervous just reading your ordeal. You are doing great, man! We got (well I still got) the same situation as you, 80 deg dorsal bend with good erectile quality. Looking forward to hearing how well you keep doing and hope you make a speedy recovery in all ways.
Honestly, the pain is more surprising and foreign feeling than unbearable. It's not great, but pain meds, especially at the time of surgery is great. Having my spine issue makes this harder on me then it should normally be. My back pain is worse then the surgery pain at the moment.
Don't get nervous. I know it's easier said then done, but in my case, this is the only "fix" and after a few weeks of discomfort, it's all behind me. If you go this route, we're here for you too, and I can offer any tips I can along the way.
I wouldn't wish Peyronies on an enemy, but we have a fix. If I can do this, so can you!
Daremo,
Your experience is very similar to mine. Dr. Levine did my surgery in 2008. I still follow up with him. Great Doctor, great staff, etc. It is good to hear you have the same experience. I can tell you for me the bruising got worse after a few days. Shades of purple and blue I never thought existed. But it all did heal and got better. Healing is a slow process. Take your time, don't rush anything. I feel I was completely healed in about 6 months. So follow completely Levine's instructions post surgery and don't try to speed up anything. Take your time and in the long run you will appreciate it. I am still grateful for my surgery and very active sex life still after 13 years.
Three questions:
How much length is loss with this procedure?
If you lose anything, can you do traction afterwards to regain length or not? And VED as well for girth.
After PEG can you put an implant if you need? After x years, for instance.
Quote from: postrocker on February 11, 2021, 06:01:26 PM
Three questions:
How much length is loss with this procedure?
If you lose anything, can you do traction afterwards to regain length or not? And VED as well for girth.
After PEG can you put an implant if you need? After x years, for instance.
For MY experience, I didn't lose length, he actually told me I gained 2.5 CM. This is POST Peyronies, as I never really measured length prior to the issue. Time will tell if my length is "Normal" but because this is the PEG and not Plication, there should be almost no loss, or minimal.
Traction is part of the recovery plan. I think I start traction in 2 weeks, after my follow up visit to go over modeling, and message to make sure it heals straight. During that time, I believe any loss of length will return.
From what I understand the grafting is actual tissue, so it returns the shape and penis to normal, so an implant is 100% doable later if needed. Some guys here have have this surgery and still needed the implant later.
Quote from: LWillisjr on February 11, 2021, 04:44:50 PM
Daremo,
Your experience is very similar to mine. Dr. Levine did my surgery in 2008. I still follow up with him. Great Doctor, great staff, etc. It is good to hear you have the same experience. I can tell you for me the bruising got worse after a few days. Shades of purple and blue I never thought existed. But it all did heal and got better. Healing is a slow process. Take your time, don't rush anything. I feel I was completely healed in about 6 months. So follow completely Levine's instructions post surgery and don't try to speed up anything. Take your time and in the long run you will appreciate it. I am still grateful for my surgery and very active sex life still after 13 years.
I LOVE the success stories. It gives me more hope this is all fixed. Congrats on yours! You're right on the shades of purple. Yikes! hahaha
Day 2 Post OP:
Yesterday, I was experiencing discomfort in odd places. My pelvis, all around the base was sore. They must have used some sort of device or pressure that pushed things down. Also, funny story I guess, I kept asking myself "Why does my skin burn?" and after looking at bandaged penis it dawned on me... Im shaved smooth. Everywhere, and the razor burn is real! hahaha!
So, today is a LITTLE better than yesterday. I assume each day will bring a little more relief. I assumed several days to a week or two will be uncomfortable. The swelling of the glans, and the bruising started yesterday. It's certainly a DARK purple. Less pain then I thought overall. It's more of an annoying deep throb then pain. It's manageable so far, and Im thankful for that.
Tomorrow morning, I was told to remove the compression bandage, and he told me to make sure I take my pain meds BEFORE I remove the bandage, because it will hurt. Anyone have experience on this, and how to make that process easier?
Peace of mind, I called the office to discuss swelling. I had to send pictures... awkward. But, looks good, no worries, totally normal.
Again, my very best tip I still stick to: SIT DOWN TO PEE. I felt like Jim Carry in "Me, Myself & Irene" if you get that bathroom reference. LOL
Excited for you !
Post OP Day 3:
Today I removed the compression bandage. Here's another tip for you guys who will go through this, and this made it EASY and completely painless. Use very warm / hot water and q-Tips. As you slowly peel back the bandage use the q-tips to "paint" the water along the stuck areas as it softens dried blood and it comes off easy. One you get the final skin layer, GO SLOW. Keep wetting as you go. This worked perfectly for me.
So, it's off and I can see everything clearly. First, what a feeling of RELEAF to have compression off. It feels 10 pounds lighter. There is significant swelling in the glans and rim, and bruising, and I expect the swelling to get better over the next couple days now that compression is off.
The incision and stitches surprised me the most. I expected a horror movie moment, and it's hardly noticeable. Seriously. They did an amazing job, where even if this scars, It will be so minimal, I won't notice much.
I'm please so far, Looks good, still tender, sore and I think now I can feel a bit of throb in the grafting area, but still manageable. I took a pain pill just in case, but didn't really NEED it.
My fear now, is nocturnal erection without the bandage. I can imagine this will be painful tonight. Bonus, I get to shower today! YAY! haha
I'l be back!
I'm happy for you! Keep us updated! ;)
Evening update:
Swelling of the glans is almost gone, and it moved down to the incision site, all the way around, deforming things oddly. Now it looks beat up! haha. Pain is still minimal. I figure a few more days of odd swelling.
Day 4:
This is where I begin to struggle with my own impatience. I KNOW this is going to take time. Lots of time. Maybe 6 month to "normal." But my impatience looks at it and starts to think "Oh man, this isn't fixed. It's not going to get better." and I know this isn't true. It's this weird doubt, because I that instant gratification person. If I want something, I'll scour 25 stores until I find it, pay more than I should have, and then not look at it more than twice, but I'm too much in a hurry. THAT bad personality trait makes healing difficult for me. Convincing my brain this is a marathon, and not a sprint.
SO, pain level is minimal. Swelling in some areas is going down, and showing up more in others. Im pretty sure the grafting area is tender on the inside. There's a deep "trauma" feeling. Not pain, but uncomfortable.
Showering last night was wonderful. No pain, no issues, and being clean again after surgery made me feel like a new man.
One bit at a time!
how is it to urinate? 100% normal? since day 1?
Quote from: postrocker on February 14, 2021, 02:19:07 PM
how is it to urinate? 100% normal? since day 1?
I was nervous about this, mainly because my urine stream is already weak because of my spine compression, I assumed it would be near impossible with a compression bandage. Not the case. Urinating is no problem at all. No burning, no discomfort at all. The worst part is the swelling makes the stream go in crazy directions, so like I said, best tip, SIT DOWN to pee! haha
Haha I sit down to pee for most of my marriage!😂. Been where you are. It gets better. Hopefully you are not numb from the neurovascular bundle movement. That could take months to heal. Good luck to you
Day 5 post op:
Im starting to wonder a few things. I was not told to do anything other than rest. I wasn't told to ice it for swelling, wasn't told to use neosporan on the incision after removing the bandage... With COVID, and my Fiancé not allowed in the building, and im given all this information in recovery, did I miss something? Hmmm...
Pain is about the same. It's deep and dull. Mainly in the shaft and pelvis area. I have zero sensation on the right side of my glans, but the left side is good. The right side is also much more swollen between the rim, and the incision. It does seem less than yesterday. It's concerning, but Im trusting the process. If it was getting worse, I'd call the doc.
No pain meds needed today, night time erection pain still there, but less, and its not really getting "erect", just enough I guess.
I wish I had more nerve to post photos. I take them every day to compare.
Looked through all my paperwork. Yes, I'm supposed to be using neosporan on the incision, so I started this after showering.
Tonight I think I see the swelling a bit less. Had a break though I suppose. The mrs helped me with a moisturizer on the glans. For some reason the skin is very dry and rough. This I have to admit excited me a bit. Even with little feeling, I did get an erection. About 60% maybe... straight as an arrow. This was the first time I think I believed I may actually come out of this fixed.
Back to resting! More tomorrow.
Day 7: One week Post OP
Swelling around the incision site is very slowly going down. Slower than I expected it to be. The stitches are a bit pokey, and the incision site is a bit tender, but I think the grafting area is the deep throbbing, dull discomfort. It's not horrible, but you're aware something isn't right. It's odd feeling.
So, things seem to be moving in the right direction. Slow heal, slow to lower swelling. Im supposed to start low dose Cialis tonight, but I won't have those meds for a few more days. My follow up visit is in just under a week and a half, and I'm supposed to start stretching and remodeling I was told... I don't see how that will be possible this soon. Time will tell!
Day 8 Post Op:
It's getting harder to post updates at this stage, because it's just little steps each day. A little less swelling, and little less pain. This morning is the first morning I'm starting to feel a bit more normal where I don't have as strong of that over all "Trauma" feeling. I have no other way to describe it. Your body just knows something isn't right, and you feel that weirdness from head to toe. But today, that is less. So far, so good!
FedEx is coming today with my Cialis medication for nighttime, so I start that tonight. Oh boy. Not looking forward to that. I'll let you know of that goes, tomorrow!
Did Levine say to start the Cialis already. I think for me it was like 6 weeks post op.
Quote from: LWillisjr on February 18, 2021, 06:36:31 PM
Did Levine say to start the Cialis already. I think for me it was like 6 weeks post op.
Yes. It's a low dose, 5mg one week after surgery for 90 days. I had to double check my paperwork to make sure I wasn't about to make a mistake here!
Day 9 Post Op:
Well, Cialis isn't fun. I know this is way too soon to judge anything, but the Cialis does in fact cause blood flow and erections, but it doesn't rise. It's harder and painful, but doesn't stand up. I'm only guessing this comes in time. I hope.
Other than that, same old. LITTLE better on the swelling, and a LITTLE better with discomfort.
great to know, man. keep on!
Day 10 post op:
Same news to report. Swelling and pain is slowly getting better. Night time Cialis is uncomfortable, and the pain does wake me. I think the grating site throbs from time to time, and the stitches and incision line is tender. The stitches are annoying. Sharp, pinchy, snags on clothes. Looking forward to these falling out!
Interesting to see you say it doesn't rise. With all the trauma down there... From the surgery, maybe it is to be expected?
Quote from: pfract on February 21, 2021, 12:43:34 AM
Interesting to see you say it doesn't rise. With all the trauma down there... From the surgery, maybe it is to be expected?
I guess last night was better in that area. It gets erect from top to bottom, but I'd say about 65% at the moment. I'm telling myself, it's only been 10 days, once I start the therapy of traction and remodeling, and based on what I've read from others, this should return in time.
Day 11 post op:
Cialis was rough last night. I think it's because nerves are starting to wake up more and more. Being shot awake from penis pain is not fun. haha!
Swelling is better! One day at a time!
Day 12 Post op:
First day I can't really say anything has improved. Swelling is the same, discomfort is the same. Night time Cialis remains painful.
I think some of the sharp sutures are coming off. My paperwork says to keep using the neosporan on the incision until all the stitches dissolve.
One thing I noticed, I hang differently. It's like the grafted tissue seems heavier and more solid then natural. This possibly changes with healing / remodeling? Just an observation really.
I think my impatience is getting the better of my brain again. I'm feeling a bit down, I keep thinking "What if this didn't work? What if I can't get a full erection again?" It's difficult when negative thoughts start to consume you.
Try not to go there with those thoughts. Just a month or so ago I thought my post voiding burning and issues were going to be a way of life for me, and here I am a month later and after suffering for over a year, nearly back to normal.
Daremo I if I were you I wouldn't bother with negative thoughts at all. You have manned up and made a decision to better yourself. Give it time, patience is key, body needs time to heal. Think of it this way, worst case scenario you'll end up with a penile implant if it ever comes to that. This means your worst case is on demand erection for however long you want and that too at the age of almost 50. A lot of people your age would be jealous.
Moreover, if you give up hope and start feeling defeated, it really breaks moral of younger men on this forum like me who are in their twenties, single and just starting their lives with this stupid condition. Consider yourself fortunate and count your blessings.
Thank you guys for the support. It's difficult for any of us with this, and being human, I have my good days and bad days with this, physically and mentally. I have high hopes this was successful and I have a lot of confidence in Dr Levine. I know this will take time, and I need patience.
Thank you!
Day 13 Post Op:
Not much to report. If there's improvement, it's slight. I think i'm at that point now, stitches are starting to dissolve, skin on the glans is quite sensitive. Direct shower water on the glans can feel like electricity, but easy to work around. I assume I have at least another week of where Im at now. I have more discomfort then pain, the only irritating pain is the night time Cialis erections. It's not unbearable, but not pleasant either. I keep telling myself, it's a good this It means it's getting the blood flow needed for healing, and it means its working.
My follow up visit is in 6 days, that will tell me more I believe.
Day 14 Post op:
2 weeks after surgery, and as with each day, swelling goes down a tiny bit more each day. Skin sensitivity in some area are going back stronger. Incision site is less painful. Nightly Cialis is getting more bearable. My only concern now is my erections are only at about 50-60% and I don't know if this is normal for 2 weeks out. Follow up visit in 5 days, and I can't wait, I have so many questions.
Day 15 Post Op:
SO, last night I had a moment where for the first time I felt like things are going to work. First of all, swelling is going down, sensitivity is slowly returning, meaning the skin is starting to have feeling again where the swelling is going down. The stitches are dissolving and falling out. I think at least 65% of them are gone. That's becoming more comfortable. Each day now, I'm seeing more and more improvement.
As a test, and with very gentle help from the Mrs, I had my first "full" erection. Even the glans. I was so happy, the pain didn't matter. Id say, for 2 weeks to be able to get what I'd consider 85-90% full a big win for me. It tells me, blood flow is good, and this should only improve with time. Seeing it straight, with no hour glassing too? Amazing. I did however notice the size was shorter. Im hoping through traction and time, that will return too.
So, 15 days out of surgery, I'm pretty damn happy and in good spirits! Can't wait for the follow up. 4 days!
There you go ! Ask the doctor if you need to do traction eventually to restore length.
Did Levine encourage you to use traction.
I gotta tell you, I had Plication with a synthetic graft and there is no way that I'm going to be monkeying with my penis...
Quote from: Benjamin62 on February 25, 2021, 05:24:09 PM
Did Levine encourage you to use traction.
I gotta tell you, I had Plication with a synthetic graft and there is no way that I'm going to be monkeying with my penis...
Dr Levine has already had me on Traction BEFORE the surgery, and said I will be using it again in recovery. Im not sure if it will be used this soon, but I'll know more in 4 days. I have tried both Restorex and Penimaster pro.
Don't worry about size right now, that will improve with time. You had a lot of trauma down there and body's reflex is to tighten up. My pelvic floor was super tight for a good 4 months, then with a little therapy it all relaxed
Quote from: TDix on February 25, 2021, 06:52:45 PM
Don't worry about size right now, that will improve with time. You had a lot of trauma down there and body's reflex is to tighten up. My pelvic floor was super tight for a good 4 months, then with a little therapy it all relaxed
This is the exact sort of information I hunt for. Thank you for posting. I'm new, and unsure of so much, it's good to hear people who have gone through it. That also makes sense. I even told the Mrs yesterday, I could work with this if we have to. haha
Day 16 Post Op:
About the same as yesterday, so far today!
As embarrassing as pelvic floor therapy is for a man, I truly believe it would help your situation. PM me with any questions
Yeah, it can be a little embarrassing, but I've been getting therapy for 8 months now and has done wonders and it really isn't that bad.
Quote from: TDix on February 26, 2021, 06:37:33 PM
As embarrassing as pelvic floor therapy is for a man, I truly believe it would help your situation. PM me with any questions
PM sent! Thanks!
Day 17 Post Op:
A little better each day! I'm pretty sure all the showing stitches have come out. Im thankful for that, a bit less itch and irritation. Pain is better, swelling is better. Going well!
Bravo !
Day 18 Post Op:
Again, like a broken record, it's a little bit better each day. Swelling slowly going down, the only place left with swelling is around the incision area. Thats also the are with some feeling loss, which is coming back a tiny bit. More on one side than the other. Stitches are 95% gone as far as I can tell. I can feel one or 2 in there still. Since swelling's gone down, theres a few bumps I can feel under the still. I figure internal stitches perhaps? one is quite high for where the graft was, I'll ask tomorrow.
Nightly Cialis is much better. There's mild discomfort, and the pain no longer wakes me up. Erections are still not "full" but decent. Getting "urges" again, but knowing I can't do anything with the mrs for at least a month yet, possibly longer, is frustrating, but I'm good with going slow, to make sure it stays fixed.
I've been doing more day to day things, I can wear regular pants now without much discomfort. By the end of the say, it's sore.
Day 20 Post Op:
Yesterday was my follow up with the Dr. Everything is perfectly on par with normal, and everything I am experiencing is common. This took a bit of worry off of my mind!
Manual stretching and remodeling with message twice a day for 5 to 10 minutes a day, and traction begins at 6 weeks post op. We try to do 1 hour a day, with the goal of 3 hours per day after that.
I had so many questions, and here's some of the take aways...
The internal stitches will likely always be felt. They will soften, but never disappear. Get used to the lumps.
It is extremely rare for someone to develop Peyronies again after the surgery.
There COULD be a natural curve appear over time up to 30 degrees in any direction. This is considered normal. 30 degrees seems extreme to me for normal.
In 6 months the graft will harden and stretch less. This is why traction is important to continue use, as it takes almost a full 12 months for the graft to full incorporate into my own tissue. Eventually, it will soften again, and stretch.
6-8 weeks before sexual activity (Intercourse)
I won't feel "Normal" again for 6 months.
They consider fully healed 12 months after surgery.
As far as me today? Pain is better, squeezing the glans to manually stretch is tender. I figured that would be difficult but it's better then expected. Swelling is better. Night and day from a week ago. Erections are already getting a bit better. No where near "ready" but each day I get closer to being over this.
Day 22 Post Op:
I think these may become a bit less frequent as I really don't have much to add at this moment. Im just taking it as slow as possible. The stretching and remodeling can be a bit difficult to will yourself to do, because it's tender, and sore still. I still am swollen a bit around the base and the incision, so it's hard to motivate myself to put myself thought more discomfort. Just keep on doing what Im supposed to and see how it goes!
Day 23 Post Op:
One thing I am learning, and to help others in the same state as me, I have never had surgery before. So, I can't say I knew what to expect. I have always bounced back from things quickly, so in my mind, I said this would be bad for a few days, but I'd be back on my feet and feeling good in 3 days to a week. Man, was I wrong. 23 days later and im no where near feeling normal. It's a process. A long process. This has kicked my ass more then I expected. Not in a painful, excruciating way, but sensitivity, and tenderness, being sore, and careful. I can see how this can mentally stress you out and make you worry about using it sexually. There's going to be a lot of mental healing with this im sure.
Quote from: Daremo on March 05, 2021, 04:46:05 PM
Day 23 Post Op:
One thing I am learning, and to help others in the same state as me, I have never had surgery before. So, I can't say I knew what to expect. I have always bounced back from things quickly, so in my mind, I said this would be bad for a few days, but I'd be back on my feet and feeling good in 3 days to a week. Man, was I wrong. 23 days later and im no where near feeling normal. It's a process. A long process. This has kicked my ass more then I expected. Not in a painful, excruciating way, but sensitivity, and tenderness, being sore, and careful. I can see how this can mentally stress you out and make you worry about using it sexually. There's going to be a lot of mental healing with this im sure.
I say you are doing an excellent job at recovering! Dr Levine is my Dr and it gives me the courage to know that if I need this surgery in the future I get an idea of what to expect. Keep on healing man. I have had about 7 major surgeries in my life ,(one was heart surgery) and they all take time to recover from it. After my heart surgery I dealt with severe fatigue and worrying at times if my heart was going
to stop. The mental challenges are there ,but try to only focus on the good positive things that are happening in your body. :) You are an inspiration to all of us!!
Quote from: mikel7 on March 06, 2021, 12:06:40 PM
I say you are doing an excellent job at recovering! Dr Levine is my Dr and it gives me the courage to know that if I need this surgery in the future I get an idea of what to expect. Keep on healing man. I have had about 7 major surgeries in my life ,(one was heart surgery) and they all take time to recover from it. After my heart surgery I dealt with severe fatigue and worrying at times if my heart was going
to stop. The mental challenges are there ,but try to only focus on the good positive things that are happening in your body. :) You are an inspiration to all of us!!
I don't envy you all the surgery. And heart on top of it, that's certainly something not to take lightly. All that PLUS Peyronies? Man, I'm sorry!
When I first looked up my symptoms (Pain, hour glassing, hard lump, and the hinge) I figured out quickly this was Peyronies. I then found this forum. I talked to my regular urologist who had me purchase Restorex. So, in the beginning, I went through this forum and tried all the other methods to fix me first. The most intriguing one for me was the use of DMSO with Vitamin C, and Xantham Gum to make this slurry. That, and heat with restorex for hours and hours, did zero for me. The only option I found was surgery. I think Dr. Levine feels like everything else is either snake oil. Restorex is not for me. Penimaster Pro is SO much better. I start that again in 3 weeks.
Basically, If you do need the surgery, Levine is a very smart choice. I trust the DR and the process. My dark and inpatient mind can sometimes spin me in the wrong direction, but this little journal actually helps. This isn't exactly a surgery I told many people about, some of the closest people in my life don't know, so this is a huge help for me mentally to talk things out here. I DO hope it helps someone here, or at least eases someone's mind.
I was TERRIFIED of this surgery. What I thought was going to be horrible, wasn't, and what I thought was going to be a piece of cake wasn't. Over all, I'm glad I did this. I keep telling myself "Have the surgery, it's an instant fix, then you heal. Done." I simplify it, and take it day to day.
Day 24 Post Op:
Same today as yesterday. Stretching and remodeling is still a challenge. The glans and tip is still very sensitive. Remodeling only raises dumb questions in my mind like "Why is there a stitch way over here?" and things like that.
I almost wish I had my surgery on video, so I can see exactly what I'm feeling.
Day 25 Post Op:
First day where the sensitivity is better. It's the best I've felt since day one. Of course, long way from good, but this is a welcomed improvement. Amazing how one day can change things! Well... It is early in the day. haha
That's great news, yeah it really is a day to day recovery. Keep up with the updates, gives us that are in the on deck circle for surgery hope.
Day 27 Post Op:
Tomorrow is 4 weeks. Today, incision is healing up, and honestly looks better then I expected after the first couple of weeks. In the beginning things look so deformed and swollen, I figured it would take much longer. There's still swelling at the base, and above the incision but to be expected. Sensitivity at the tip is still very high. Direct shower water or soaping up, or the worst one, a towel to dry off is jarring. The thought of being clear to attempt intercourse in 2 weeks? In my mind now, with this sensitivity, there's no possible way. I'll be surprised if my erectins would even be good enough to try in 2 weeks. I'm not discouraged, I just think the healing time of 6 weeks is being optimistic. I think a more realistic goal is more like 8 to 10 weeks. Hopefully Im wrong. I'll be happy if I can return to a normal sex life by May.
Daremo, do you know which type of graft did your doctor use ? E.x. Sis, dermal, bovine, tachosil etc. Also do you know if your doctor does grafting for ventral ( downward curve ) . In that case graft would go on the underside of urethra. Thanks.
Quote from: gaussrifle on March 09, 2021, 07:13:10 PM
Daremo, do you know which type of graft did your doctor use ? E.x. Sis, dermal, bovine, tachosil etc. Also do you know if your doctor does grafting for ventral ( downward curve ) . In that case graft would go on the underside of urethra. Thanks.
All I was told, that I remember was the graft was a Pericardial Graft from processed Cadaveric tissue. He said it was tissue that surrounds the heart, and they found to be the best match for the graft.
I don't know about his techniques for a downward curve, but he did say, if my plaque was close to the urethra, they leave it, as they don't want to get too close and damage the urethra at all.
That is awesome! It is only going to improve and heal more with time - we must thank our wives for supporting us through something like this. Keep posting.
That's amazing results!
When are you starting with traction? For how long will you have to do traction?
What about your hourglass? Can you say it has been solved with the surgery?
Keep posting, this is really useful. I am planning to have PEG surgery with Dr. Levine in May.
Quote from: Ontheroad on March 10, 2021, 06:54:32 AM
That's amazing results!
When are you starting with traction? For how long will you have to do traction?
What about your hourglass? Can you say it has been solved with the surgery?
Keep posting, this is really useful. I am planning to have PEG surgery with Dr. Levine in May.
I was told, If I can handle it, to start traction at 6 weeks. I am 4 weeks today, so in two weeks. For Traction, I have both Restorex, and Penimaster Pro. I will be using the Penimaster Pro, as it's much more comfortable to use. The Restorex is REALLY high tension, and quite rough on the glans. To be honest Im still not 100% in believing I'll be able to do this in 2 weeks, but then again, I AM getting better every day.
So, the hourglass is gone. The hinge that was was is gone. I am as far as I can tell, 95% straight. I feel the grafting area still, I have some swelling there, so there is a "Ridge" I can feel where the grafting starts and my old tissue is, so an semi erection, I panic as there's what I call a "Weak spot" that feels like it could be a hinge point. I have to keep reminding myself, I will never be "normal" pre Peyronies, and one the swelling goes down, this ledge I feel will go away. I notice a SLIGHT indentation on the left side, that I can see an ever so slight curve to the left, but again, I think with healing, stretching, remodeling and time, this will work itself out.
Not sure which facility you plan on getting the surgery at, you have 2 options, RUSH in the city, or the surgical center near O'hare airport. I went to the surgical center, and HIGHLY recommend there. Its low key, and the staff is incredible. I was terrified. 100%. Never had surgery before, and on my penis? I was a mental mess. Trust me when I tell you, this is no cake walk, but it's NOT as bad as your mind expects it to be. With an advanced case, this is the only fix. And it's an INSTANT fix. You walk in with Peyronies, and walk out fixed. The surgery itself is easy. The healing is uncomfortable, but mostly mental. Have a strong support system by your side, and be prepared for a long healing. One month later, I feel so much better, but still far form healed. Go slow, trust Dr Levine, follow his instructions to the letter and you'll be so happy you did!
Day 28 Post op:
4 weeks Today!
I have taken photos every night since day one, to catalog and be able to actually view healing progression. I feel like a complete creeper with more dick picks on my phone, then topless photos of the Mrs, but I'll have to remedy that when im healed. hahaha!
Seriously though... After 4 weeks, there is still some swelling, sensitivity and some uncomfortable areas and positions. I am FAR from healed. I know theres a lot left. BUT, 4 weeks later and I'm feeling better. Its looking great, well on its way to normal. There's an overall rigidness, 24 hours a day. I think it's a combo of the nightly Cialis and the graft itself, along with being still swollen a bit and tense over all. Time will help soften and heal, and im actually looking forward to 6 weeks, where I can start traction and get things back to normal.
Would I do this again? Im asked this from family and friends who know... I can't answer that just yet, honestly, but at gun point? Yes. I would do this again. If it remains as it is, and erections improve and I can use it sexually, then YES. This was so worth it. Time. Healing. Mental healing... This all plays a part.
So far, I'm pleased and looking forward to the next stages. The next two weeks leading up to the start of traction, I just need some of this sensitivity to get better, and I'll be good to go! I think I'll be there!
Quote from: Daremo on March 10, 2021, 03:48:56 PM
So, the hourglass is gone. The hinge that was was is gone. I am as far as I can tell, 95% straight. I feel the grafting area still, I have some swelling there, so there is a "Ridge" I can feel where the grafting starts and my old tissue is, so an semi erection, I panic as there's what I call a "Weak spot" that feels like it could be a hinge point. I have to keep reminding myself, I will never be "normal" pre Peyronies, and one the swelling goes down, this ledge I feel will go away. I notice a SLIGHT indentation on the left side, that I can see an ever so slight curve to the left, but again, I think with healing, stretching, remodeling and time, this will work itself out.
Not sure which facility you plan on getting the surgery at, you have 2 options, RUSH in the city, or the surgical center near O'hare airport. I went to the surgical center, and HIGHLY recommend there. Its low key, and the staff is incredible. I was terrified. 100%. Never had surgery before, and on my penis? I was a mental mess. Trust me when I tell you, this is no cake walk, but it's NOT as bad as your mind expects it to be. With an advanced case, this is the only fix. And it's an INSTANT fix. You walk in with Peyronies, and walk out fixed. The surgery itself is easy. The healing is uncomfortable, but mostly mental. Have a strong support system by your side, and be prepared for a long healing. One month later, I feel so much better, but still far form healed. Go slow, trust Dr Levine, follow his instructions to the letter and you'll be so happy you did!
When you talk about the graft and stitches being felt for ever, the new "normal" with maybe a 30° natural curvature and some of the other surgery outcomes we may have, it makes me think twice about surgery. It is clear that I cannot have sex with my current state penis but if I will have a half functioning penis after surgery, I would go directly for an implant. Do not take it personal, I am just sharing my thoughts and I am sure that I am being really pessimist, it is in my personality. haha Please feel free to comment on this. I am open to read anything. :)
Regarding surgery, it would be at the same place you had yours, in the surgical centre near to the airport.
Thank you for sharing your journey with us!
Quote from: Ontheroad on March 10, 2021, 06:54:32 AM
That's amazing results!
When are you starting with traction? For how long will you have to do traction?
What about your hourglass? Can you say it has been solved with the surgery?
Keep posting, this is really useful. I am planning to have PEG surgery with Dr. Levine in May.
Can you go to the US in But for surgery? I thought the borders were still closed to Europe.
Why are you considering Levine at Gelman or B. Christine?
Borders are closed but since I am traveling for medical reasons, you can get an authorization to fly.
I had a consultation with Dr. Gelman last year and he just suggested plication, what I don't want to do. It seems that he doesn't do many grafting surgeries. When it comes to grafting, Dr. Levine is the highest volume grafting surgeries surgeon in the world with the best outcomes if I am not mistaken. This is why I have decided to go to him. (Correct me if I am wrong)
Regarding B. Christine, I haven't contacted him neither research about his surgical outcomes.
Quote from: Ontheroad on March 11, 2021, 07:56:21 AM
Borders are closed but since I am traveling for medical reasons, you can get an authorization to fly.
I had a consultation with Dr. Gelman last year and he just suggested plication, what I don't want to do. It seems that he doesn't do many grafting surgeries. When it comes to grafting, Dr. Levine is the highest volume grafting surgeries surgeon in the world with the best outcomes if I am not mistaken. This is why I have decided to go to him. (Correct me if I am wrong)
Regarding B. Christine, I haven't contacted him neither research about his surgical outcomes.
Okay, thanks for your answer!
But why are you opting for a grafting? You are young from what I understand and this is going to be your first surgery, right?
Do you have peyronie or congenital curvature?
Alex
Quote from: Ontheroad on March 11, 2021, 07:56:21 AM
This is why I have decided to go to him.
How much the surgery costs with dr Levine?
And why u don't want to have plication?
Day 29 Post Op:
Here's something new for you guys, to add to this crazy story...
3 days ago, the weather got nice, and I started to get a bit of a runny nose. I figured allergies. Today, I woke up, made coffee and couldn't taste it. Decided for peace of mind, I'd go get a covid test just to be safe. Rapid results, POSITIVE.
So, the best part? I've been at home, recovering from the surgery for the past 4 weeks, I've done almost nothing except a week and a half ago, I went to RUSH in Chicago for my follow up exam. There's no doubt in my mind I picked this up from RUSH hospital. FML.
Not sure how this will impact my recovery, if at all. At the moment, everything is normal and healing in the surgery department, and I actually feel fine. It feels like I have a VERY mild head cold, and I lost my taste and smell. Here's hoping this is as bad as its going to get for me.
What a month so far. LOL
Wow - my son, wife and daughter all had it with mild symptoms. Some loss of smell and slight fever with
a head cold. You just take it easy and continue to heal up. Take zinc and vit d and drink lots of OJ.
Quote from: mikel7 on March 12, 2021, 05:46:23 AM
Wow - my son, wife and daughter all had it with mild symptoms. Some loss of smell and slight fever with
a head cold. You just take it easy and continue to heal up. Take zinc and vit d and drink lots of OJ.
Good to hear your family had minor symptoms! This could potentially be devastating, so things like this are great to hear!
Day 30 Post Op:
I am considering myself VERY lucky with Covid symptoms. Nothing bad to say here. Its actually forcing me to relax more and rest.
Sensitivity is better overall. It's slowly getting a little better each day. it almost seems like over night it can change. Still only able to reach about 80% or so with erections.
5 weeks Post Op:
Things are moving along. Sensitivity is getting better. Erections are still about 80 to 85%. Slight hour glass in the same place, and I can feel the thicker area of the graft. There's what Im calling a weak spot where the old hinge used to be, and it sits right where the graft starts. I think once my erections get back to a full 100%, this will hopefully fill out. Im staying positive, it's still early in recovery. The hard stitches that are "permanent" under the skin have subsided more. I feel them less. Other then the graft area discomfort, the real pain is from the incision site. That is still the most sensitive area. The opposite of what I expected.
Covid is fine. Only symptoms were taste and smell (Still mostly gone) and I'm getting close to my quarantine being over. I am so very lucky this was as mild for me as this.
I'll check back in a week, unless I have something to add! Recovery now is slow go. Minor improvements each day.
5 weeks, 2 days post op:
SO, sort of jumped ahead of the 6 weeks "clearance" by a few days and was intimate with the Mrs last night. Basically, we're trying to have a baby, so we didn't want to miss another months window of opportunity. I was beyond slow, and overly careful. There is more of a mental fear then anything else. For me, good news bad news I suppose. Good news, pain was minimal, I had more pain with the Peyronies band then I did yesterday. I'm still at only about 80% erect, so it was more difficult then I should have been. Just took it very slow, and at happy to say, it worked.
Now, I'm still way too early in recovery to judge the 80% just yet. I'm hoping this improves over time. I am supposed to start traction next week on Wednesday, so here's hoping things keep improving!
So my question is to those gentlemen who've gone through this... How long did it take for your erections to be back to a full 100%?
Quote from: Daremo on March 19, 2021, 11:39:11 PM
5 weeks, 2 days post op:
SO, sort of jumped ahead of the 6 weeks "clearance" by a few days and was intimate with the Mrs last night. Basically, we're trying to have a baby, so we didn't want to miss another months window of opportunity.
Sounds like you are recovering great! Good luck on trying for a baby! I have 4 of them.
Does anybody know how much surgery with dr Levine cost? Does he accept patients outside the United States?
Quote from: miracleman on March 22, 2021, 04:24:26 PM
Does anybody know how much surgery with dr Levine cost? Does he accept patients outside the United States?
He is my Dr and he will accept anyone from out of US. His number is 312 563-5000. His main office is attached with Rush Medical center in Western Sub of Chicago. Very easy to find. I also know he does procedures close to Ohare Airport. You can check him out here : https://www.drlevinemenshealth.com/
Quote from: mikel7 on March 22, 2021, 06:11:21 PM
He is my Dr and he will accept anyone from out of US. His number is 312 563-5000. His main office is attached with Rush Medical center in Western Sub of Chicago. Very easy to find. I also know he does procedures close to Ohare Airport. You can check him out here : https://www.drlevinemenshealth.com/
Thank you so much!
Quote from: miracleman on March 22, 2021, 04:24:26 PM
Does anybody know how much surgery with dr Levine cost? Does he accept patients outside the United States?
I just got my insurance update today, and it looks like their initial asking price all in for my surgery was about $17,000. What insurance pays is different. Also, im sure the cost differs from person to person based on severity.
To be honest I don't think that is bad. I know there will be the facility cost and the anesthesiologist cost. My heart surgery cost for the Dr alone was 176,000 - not including hospital stay and being put under. Insurance does adjust things out.
Six weeks Post Op:
Last night was 6 weeks, and night number one of traction. I am using the Penimaster Pro, instead of Restorex. Clamping the Glans with Restorex and the strength of the stretch would be too much to handle. So, if you're familiar with PMP, the glans is captured into the device by suction, and thats what holds it in place. At first, the suction and the sensitivity of the glans itself took a few minutes to get comfortable. One think I noticed, is my length loss, or I'll call it tightening for now. I had the rail system set up from when I was using this before surgery, and I was able to stretch things FAR further, maybe an inch or inch and half more. I'm NOT discouraged by this. I'm sure after therapy and healing, I will regain this length. Once in the device, I was told to start low, try for an hour, and then work my way up to 3-4 hours a day for 3 months. The first few minutes was difficult. The discomfort was in the incision area, as well as the graft. In the stretched position, you can really see the graft under the skin. It's wider then my actual girth. This is that "Ledge" I mentioned before. Again, Im sure once this softens up, things will get closer to normal. After 5 mins, I settled into some TV and before I knew it, and hour had passed. Not as bad as I was expecting for day one!
Erections are still 80%, still hoping this improves.
Sounds great! and as you stated you will regain your length back in time.
Glad you can finally start traction,
I'm not sure you mentioned this somewhere, but do you have absorbable or non-absorbable stitches inside the penis?
Quote from: Alex83 on March 26, 2021, 11:23:40 AM
Glad you can finally start traction,
I'm not sure you mentioned this somewhere, but do you have absorbable or non-absorbable stitches inside the penis?
Well, I was told originally it was absorbing stitches. At my follow up, I didn't see Dr Levine, I saw an associate. She told me, she thought the stitches we're permanent but will soften over time. So, I'm not sure what I have. I wish my follow up was with Dr Levine himself.
6 weeks 2 days Post op:
Traction last night was easier than night one. I was able to get 2 hours in with fair ease. Tonight, I'll attempt 3 hours!
Quote from: Daremo on March 26, 2021, 05:08:58 PM
Well, I was told originally it was absorbing stitches. At my follow up, I didn't see Dr Levine, I saw an associate. She told me, she thought the stitches we're permanent but will soften over time. So, I'm not sure what I have. I wish my follow up was with Dr Levine himself.
Okay, thank you very much,
Can you ask Levine what kind of stitches he has the next time you see him?
Thanks
Great recovering!
6 weeks 3 day post op:
Was able to do 3 hours or traction last night. Fairly easily. Had (tried?) to have sex with the mrs. Still only about 80% erection strength, and makes it very difficult to use. Also, a bit defeating. I think I'll hold off attempting that again for a few weeks to see if I regain more use.
You are still healing - I'm sure things will continue to improve. You don't want to jump the gun. LOL . :)
I have a question. Why was this surgery plaque excision and nkt incision to reduce risk of worsening erections ? Also bucol mucosa grafts seem to have excellent outcomes. Why was this a different graft ? Not saying you won't improve , just curios based on my research.
Quote from: gaussrifle on March 30, 2021, 03:05:48 PM
I have a question. Why was this surgery plaque excision and nkt incision to reduce risk of worsening erections ? Also bucol mucosa grafts seem to have excellent outcomes. Why was this a different graft ? Not saying you won't improve , just curios based on my research.
Based on the severity of the hour glassing and the bend, coupled with the ultrasound and my pre surgery erections were still 100%, Dr. Levine felt that I was a perfect patient for the procedure he had. He said the graft I was given had proven to him to be the most effective for a positive recovery in the long run...
BUT, after surgery in recovery, he did tell me once he got in there, the plaque was much more extensive then the ultrasound showed. He was still confident I will make a full recovery.
7 weeks Post Op:
Everything is near the same for me. I'm able to do 3 hours of traction at night fairly comfortably. The last 20-30 minutes gets a bit uncomfortable. I'm still only seeing about 80% erectile fullness. I was expecting more by now. Still hoping this improves.
So, if anyone is still reading this who has gone through this, Obviously, the more excited you get, the stronger your erections are. Should I be having the Mrs help me with that part of it nightly? It's going to sound shady as hell asking her, but I have this dumb theory that if I'm trying to force more blood to the erection, it would only help with getting things back to normal.
Amazing results just after 2 weeks! I'm sure Dr Levine will love to hear this also! Please don't push yourself too fast. I'm sure it is a relief to experience the result you are getting. :) Mike
How is your pain level post surgery?
Quote from: Curvekiller94 on April 04, 2021, 10:51:33 PM
How is your pain level post surgery?
The first 2 weeks are rough of course as expected. It's painful, but not horrible. It's a deep throbbing discomfort and medium pain. Once the first couple of weeks pass, and healing really starts to take hold it's more about sensitivity and discomfort.
Almost 8 weeks since surgery, I still have discomfort. It's the sensitivity on the head, which IS getting better. The grafting area isn't bad, surprisingly. The "Pain" is all around the incision site. I didn't expect that area to be the worst of it all, but it is. I think it has everything to do with nerves and needing time for that to heal.
All in all, total pain, on a scale of 0 to 10... Week 1: 7. Week 2: 6. Weeks 3-6: 5. Weeks 7-8: 4. It's getting better and better.
Being inpatient like I am, Im frustrated 8 weeks out, I thought I'd be further along in healing, but I have to keep reminding myself, this is a process, and not a race. I started traction only 2 weeks ago so I have 2.5 months more of that before me.
Patience....You are not 17 and healing takes time. :)
8 Weeks Post OP:
Today is 8 weeks. For the most part, swelling is down. Maybe 15% remains in the incision area. 2 weeks of traction, at 3 hours per day. This isn't bad. I expected much worse discomfort, but it's tolerable. Sensitivity of the head is better. Still hyper sensitive but calming down more and more. The graft area is pretty solid. From what Ive read, this could take a full 12 months to soften.
Things I noticed: I'm still at about 80% for full erections. It's usable, with caution. The area that had the hinge still feels like a weak spot. It can bend in that same spot, not hinged, but weakened. It causes fear of re-injury to use it, so I've decided to hold off for a few weeks, to allow more healing. The last thing I want is to have to go through this a second time.
Over all after 8 weeks, I'm healing up. It can get frustrating being impatient. I want faster results, but I know this isn't a race. At only 2 months in, I'm better then I was before the surgery. Less pain, no bend in the erection, so now I keep doing what the Dr says to do, and healing up, and hope that 80% turns into 100% in the coming months!
Good news! You won't have to go through this a second time. :)
Daremo, yours is a really great story. You're brave, too. Thank you for sharing your story. You're going to be in tip top shape soon.
Encouraging news Daremo! Here's hoping you keep healing and have a good outcome!
9 Weeks Post Op:
9 weeks today. Traction is fine, 3 hours every night. Very minimal discomfort while doing traction.
Overall discomfort and pain... Still deep throb occasionally in the graft area. Since most swelling is gone, the graft area while doing traction is visible. It's solid, looking forward to it softening a bit, possibly aiding in gaining length back.
Still now, the most discomfort / pain is in the incision area and what I believe to be internal stitches at the incision site. I think they must stitch the incision to tissue inside, and not just skin to skin. The stitch knots is what I feel and I believe to be the source of 75% of my discomfort. Im wondering if when all is said and done, I might need to go in and have these removed inside.
I have not attempted to have sex since the last time we tried. I'm not confident in the stability of the erections. I still can't get things above 80% full, even with Cialis. I CAN use it, but for now, it's more mental. Im worried about hurting myself again, which also makes it difficult to maintain the erection thinking about it, so I'm waiting a bit to try again. More time, more healing, just hoping it gets better as I heal over time.
Daremo, the continuous detail sharing you've undertaken are greatly appreciated. Thank you. There are more than a few forum readers interested in how it goes for you. Wishing you maximum success.
10 weeks, 1 day Post Op
It seems to be at the point where things have slowed down, giving little to report. Swelling is almost completely gone, other than a small bit of tissue around the incision. Traction is fine, and sensitivity is about the same. Still hyper sensitive but only in the head and incision area.
Still only 80% erection. No better than that, yet.
Other than the same discomfort due to the incision areas sensitivity, and possibly the stitches under the incision, It's moving along.
11 weeks Post Op
Absolutely nothing new to report. I feel I'm exactly in the same place I was a week about. Same sensitivity, same 80% erections, same discomfort and still taking Cialis nightly and 3 hours of traction. I'm still waiting to get over this plateau and see something new in healing.
Are you able to do VED?
Before my surgery, I was doing VED 2x a day and I was amazed by how it made my erections stronger, especially morning woods.
I think you should try if your doctor allows you. Be very careful in the beginnig.
I will ask my doctor about this. Thank you!
12 weeks Post Op:
Things are improving in regards to sensitivity and such. It's very slowly coming back. Still not much more to offer at the moment. Erections are decent, but still a "weak" spot where the initial bend was. I still need to ask Dr Levine if VED is OK to try, and if it could help with this. Still the incision area is the main source of my discomfort. I WISH I had a surgery video of my procedure and I might be able to pinpoint exactly what hurts and answer so many of my own questions about where certain things are inside, and why. I think the most frustrating part of this surgery is the follow up, and seeing other team members and not Dr Levine. It's hard to get accurate answers for specific questions.
Quote from: Daremo on May 06, 2021, 12:57:21 PM
I think the most frustrating part of this surgery is the follow up, and seeing other team members and not Dr Levine. It's hard to get accurate answers for specific questions.
Since you are a patient of Dr Levine you can use the patient portal -->https://uropartners.followmyhealth.com/Login/Home/Index?authproviders=0&returnArea=PatientAccess#!/default . This should allow you to ask a question and get a response in a reasonable amount of time. I have access to my account and all of my billing, etc.....
Fantastic information! Thank you!
13 weeks post op:
Same story today! Im getting close to being out of the 90 day Cialis supply. I still have not heard back through the patient portal, so I am calling today for a couple of answers. Nothing good or bad to report, just still healing my way through this, with the same 80% I've been dealing with.
Do you mind posting photos or are you still uncomfortable?
13 Week post op update:
I was able to talk to one of Dr. Levine's team members. I discussed several things. 1, the internal stitches and discomfort around the incision area. As I suspected, I shouldn't have this sort of discomfort and pain in that area still. I explained it's the stitch knots, I can feel them on both sides, and they are the source of the shooting pain. I have a in person follow up 6 weeks or so, so I was told to message the area while in traction to help loosen the scar tissue around the stitches, but was told this isn't quite normal. I MAY have to have them removed at some point. Yay.
I asked about the use of a VED device to help bring more blood to the erections and help to strengthen them. I was told NO. Do NOT use a VED device for at LEAST one full year after surgery. It was explained to me drawing to much blood in the graft area could cause blood to get under the graft and force the graft to separate. This is something to try in the future, but not now.
I was also told erection strength might get better still, but it seem likely I may be close to "as is" so we upped the Cialis from 5mg to the 20mg to see if that helps. I was also informed that the "weak" area where the bend used to be is nothing to be worried about, that even if it remains a weaker area, there's no risk of re-injury. This one, I had a hard tome believing. I don't want to take any chances with this.
SO, on the positive side. Sex is doable. I just have to keep it slow and careful. It works, and the promise of my erections being straight are 100%. It's perfectly straight. There's the possibility of improvement, so even if it stays like this, and gets no better, I'm in a better position then I was the day before Surgery. I'd consider things a success with a couple minor hiccups, that can still be worked out.
So far so good, Im still following all directions, traction, Cialis, and so on. The stitch pain isn't unbearable but if I can get these out, and release that discomfort, I will consider that down the line. I'm assuming it would be 2 small incisions, to get them out, and then just some surface skin healing.
I'll consider the photos at some point, as asked in the post above me.
14 week Post Op:
Nothing new to report. Just sticking to the routine, and healing. Everything remains the same. I am done with my 5mg of nightly Cialis, and was given 20MG of Cialis to try prior to sexual activity. Haven't had the time to give this a shot yet. Soon I hope.
How are you doing, Daremo? Hope everything is going well!
Hi Tortao Pra Direita, How do you feel after your surgery in general? Would you recommend it? Thanks in advance. Sincerely.
Wilson,
I updated my journal. Take a look!
Tortao, Ok. Thanks for reply.
Any news Daremo? How has your recovery been since May?
22 week post op update!
Hey gang! Sorry for not updating more often, but I honestly didn't have much to add, until now...
I had my 5 month follow up visit, and I had some concerns and questions. Before I get to that, how am I doing?
I'm doing well. The pain level has dropped. I still have some discomfort around the incision area, and some slight numbness in the incision area but overall not too bad.
My erection strength is about 85-90% what it was before surgery. Cialis does help with stronger erections, but its still usable without it, but its a nice to use to give her more normal feeling sex.
So, onto the new development. I have noticed deformation is starting. Its forming almost a slight "S" pattern, where there's a protrusion in the graft area on the left side, and an indentation on the right side, and when erect, the glans is twisting overall to the left. I'm still straight(ish) and its totally usable, but the deformation is a deflating to say the least.
At my follow up, I saw one of Dr Levines associates, who checked everything out, length is slowly coming back, gained a half inch, and she told me not to panic about the deformation. She feels its the healing, and in a few more months the graft will soften more, and it should straighten out. She said it would be an anomaly if it didn't. Well, with my luck, it wont heal right. Haha
I have a follow up in November with Dr Levine himself, IF I need it. Meaning, if the deformation doesn't work itself out with healing and continued traction, then I see him in November, they will induce an erection and I'll get everything scanned and checked and we'll talk options then. If I feel I'm good, I can just cancel the appointment and I'm good to go.
If it gets no worse then it is, I think I can live with it. It works, she's happy, I'm not in pain... I'm hoping it gets better in time.
SO I ask anyone who has gone through this... Is deformation during healing normal, and did yours get better with time as I WAS TOLD? I have this feeling I'm going to end up seeing him in November and a second surgery may be needed to fix this. God, I hope I'm wrong.
To answer a couple questions above:
I'm doing well. Not perfect, but much better than before surgery. I would absolutely have the surgery again, so if you're on the fence, and weigh the risks, and go to a reputable expert in the field, it's made my sex life enjoyable again. I do have a mental block of hurting myself again, so sex is different than it was. I take things slow, and less aggressive then I did. Not sure ill ever get over that, but hey, I can have sex with my own erection.
The thing I was reminded of from the follow up visit, and its a good thing to beat in your head in case you are considering the surgery, you will NEVER be the way you were pre peryonies. Things will feel weird, foreign, and you'll constantly be comparing things post surgery to before. Impossible to not, but keep it in mind. You wont be the same, but if its successful, you will be fixed to a point where it's usable. I'm sure in time it will be "normal" to me, but I will have 7 months more of healing.
Daremo, Thanks for your update and input. We waited you. So, that's all what Mr Levine can do for all of us? I know that he is not a magician, but I expected more from him. I don't really know and a bit in doubts now - will this Demon's disorder forever be removed by a specialist surgeon!? However, Thanks for reply and Happy for you.
Thanks for getting back and updating! I also see Dr Levine and if I feel comfortable with his judgements.
Don't wanna be harsh on you but a second surgery would mean worsening ED almost surely, so do not rush into it whatever the Doctor says.
Quote from: Wilson on July 18, 2021, 04:38:40 AM
Daremo, Thanks for your update and input. We waited you. So, that's all what Mr Levine can do for all of us? I know that he is not a magician, but I expected more from him. I don't really know and a bit in doubts now - will this Demon's disorder forever be removed by a specialist surgeon!? However, Thanks for reply and Happy for you.
This disease is very frustrating. Since there's no cure, and it's damaging, and we're all seeking for a miracle worker to save us. Dr. Levine did exactly what he said he would. He straight into my dick. I was warned from everybody at the doctors office from my very first visit, that I would never be the same before the disease again. My normal would be a new normal. The surgery in my eyes was a success. It did exactly what it was supposed to. My healing is going well, my only concern now is this new deformation, and I can't blame the doctor for that because for 4 1/2 months it was straight. I don't know if my body is not healing correctly, I don't know if the graft didn't heal correctly, I don't know if in another two months everything will straighten out and I will be completely straight again. All I can do is wait, trust the doctor, he has not steered me wrong yet.
Quote from: Mikel7 on July 18, 2021, 07:05:50 AM
Thanks for getting back and updating! I also see Dr Levine and if I feel comfortable with his judgements.
I do too. Very much so. My only frustration is, I have not seen him since the surgery. All of my follow ups have been with his associates.
Quote from: Jack1909 on July 19, 2021, 12:30:39 PM
Don't wanna be harsh on you but a second surgery would mean worsening Erectile Dysfunction almost surely, so do not rush into it whatever the Doctor says.
I already thought of that, and trust me the last thing I want is another surgery. I am hoping that this either gets better, or doesn't get any worse. If it doesn't get worse, I could live like this. No problem, it still works, she still pleased, it's hard enough to compare to the way things were before the disease. But if this is how I have to live the rest of my life, I can live the rest of my life happy. If it gets worse, then we talk about a second surgery. I'm hoping not to get there.
Daremo, Thanks for reply. So, you are saying that there is no cure? What do you mean by that? Pills etc? I know that there is no magic cure pills. But, what about surgery? I know, it is makes a member straight again. But, what the real point of the surgery? Does the successful surgery cure peyronie by golden hands of the surgeon? What Mr. Levine says related to this issue? Thanks in advance. Sincerely. (Don't delete this message as I replied on Daremo's message to me)
Quote from: Wilson on July 22, 2021, 07:49:28 AM
Daremo, Thanks for reply. So, you are saying that there is no cure? What do you mean by that? Pills etc? I know that there is no magic cure pills. But, what about surgery? I know, it is makes a member straight again. But, what the real point of the surgery? Does the successful surgery cure peyronie by golden hands of the surgeon? What Mr. Levine says related to this issue? Thanks in advance. Sincerely. (Don't delete this message as I replied on Daremo's message to me)
Hey Wilson, I mean once you get Peyronies, there's no medicine to reverse the effects. The surgery only corrects the damage that the disease has done. I've been told it's unlikely to happen again, but anything is possible I suppose. One the damage sets in, all you can do is basically get surgery to make your erections straight again, and that comes with risk as well as you needing to lower your expectations. Once the disease causes it's damage, even with surgery, you will never be the same again. Period. A reputable doctor can make you straight, and by removing the scar tissue and plaque buildup, remove the pain, it still won't be what you had before the damage. This is the hardest thing for us to adjust to. I was very happy with my erections. Strong, straight, and no complaints from the ladies. Where my fiancé now tells me after surgery, sex feels normal to her, and she's satisfied, it's still not normal to me. This is a mental hurdle I need to get passed. And I will. I have no choice.
My best advice... don't look for miracles. Just look for a new normal. As long as it's straight, and pain free, and you can use it sexually, then it's a complete success. It may never be as long, or as hard as it was, but it's better the. Painful and unusable. Dr Levine never gave me false hope or expectations. He was honest with me, and he did what he said he could do. When my procedure was supposed to take 45 minutes, and it took 3 hours, and he said it was much more extensive then he thought, I figured I was in trouble, but honestly, I'm happy with the results. I'm still healing, and anything could change in the next 7 months, but right now, my sex life is back to "normal" and we just adjust to the new normal. Find a good doctor, trust him, keep your expectations realistic, and you'll come out of this happy!
Daremo, Thanks for detailed answer. Now, I got you. I will try to be a realistic, even though - it's very hard. Many Thanks for the concern. All the Best. Sincerely.
Daremo, I finally got around to reading your journal from start to finish, it seemed like things are slowly getting better and your mindset is very positive. You did mention that The Dr. said you should visit in November for some of your lingering issues if they are still around by then. I know you have not visited the site in a while, but I am hoping that is because everything has worked out. Either way since I spent the last 10 minutes just reading your journal, I feel like there are a few pages left to read:). If you get back on at some point....I and I think others would like to know how you are now.
Quote from: howtheheck on December 30, 2021, 07:41:00 PM
Daremo, I finally got around to reading your journal from start to finish, it seemed like things are slowly getting better and your mindset is very positive. You did mention that The Dr. said you should visit in November for some of your lingering issues if they are still around by then. I know you have not visited the site in a while, but I am hoping that is because everything has worked out. Either way since I spent the last 10 minutes just reading your journal, I feel like there are a few pages left to read:). If you get back on at some point....I and I think others would like to know how you are now.
It's been awhile since I've posted!
So, where am I at? I'd say... 85% back to "normal". The good news, in the attempt to fix the issue, the surgery was a success. My issue, I'm fairly certain the graft shifted inside, likely do to too much tension on the stretching unit. It caused a slight twist to the left, and a tissue lump that moved, so erect, it's still "deformed" BUT straight, and it works for me. SO, I'd consider this a win. It's MUCH better then living with the painful bend. Feeling in the glans and around the incision area is also about 85% as it was. Still a bit dull to the touch.
This was a brutal and looooooong recovery for me. I still have some depression and mental trauma from it all, so Im working on that. It helps to have a partner who understands and isn't fazed by any of it. Going through a hard break up right after the surgery wasn't easy on me either.
Anyway, I'm OK. Not as good as I had hoped, but better then I was post peyronies.
Congrats man! I'm happy you find your surgery a success and you ended up with a good outcome. I hope that everything continues well for you.