Quote from: nycpdguy on April 12, 2024, 01:46:08 PMHey RBD87 - hope you're doing well.
Seems like we're in pretty similar boats as 36 year olds in NYC with symptoms that started around the same time (I was August 2022). I had a 2 rounds of measurements and an ultrasound by Dr. Najari, but ended up getting a third opinion and going with Dr. Mulhall at MSK for my treamtment. That said, Dr. Najari was so thorough and really took his time with me. He definitely spent more time than Mulhall ever has, but here I am - having just had my first Xiaflex injection yesterday from Mulhall.
I'm really keen to here how you're progressing, any improvements you're seeing since you're a bit further along with Xiaflex, and what the traction protocol looks like.
Are you using RestoreX? How many times a day and for how long? And when did you start with molding and traction after your injections?
For context, I had injection #1 yesterday and my second will be next week (7 days later). I'm instructed to begin traction 7 days from that second injection, but this seems to be different from your timeline and definitely different from the aggresive methods of Dr. Trost in Utah.
Anyway, it would be amazing if you continue keeping us posted. I'm going to share an introductory thread of my own to chronicle my journey as well.
Wishing you all the best of luck - we got this, man.