Peyronies Society Forums

Peyronies Disease TREATMENT Discussion Boards => Xiaflex Injections => Topic started by: NSAWQ on April 23, 2019, 11:36:12 AM

Title: About Xiaflex treatment
Post by: NSAWQ on April 23, 2019, 11:36:12 AM
Hi guys.
I have a question about  Xiaflex treatment.
I do not quite understand, Is treatment possible only if the plaque is soft?
What would be possible to pierce a plaque with a needle or perhaps a treatment even in very late stages of the disease when the plaque is hard ?
Title: Re: About Xiaflex treatment
Post by: TDix on April 23, 2019, 01:32:07 PM
If you have calcified plaque the injection is more difficult and may not work effectively based on my experience and dr conversations
Title: Re: About Xiaflex treatment
Post by: NSAWQ on April 23, 2019, 01:37:57 PM
Thanks for the answer .
I just have a peyronie for 5 years, the problem is the loss of penis size.
I'm trying to figure out if I have hope to return my size in the future.
Title: Re: About Xiaflex treatment
Post by: TDix on April 23, 2019, 01:52:30 PM
I was in the same boat.  Hoped Xiaflex would be my miracle, but I had calcified plaque that was spreading.  I did not want to wait and possibly lose any more length, so I searched out a specialist who recommended surgery.  I went that route a month ago
Title: Re: About Xiaflex treatment
Post by: NSAWQ on April 23, 2019, 02:08:41 PM
Successful surgery ?
My peyronie does not develop,without changes.
I have a moderate thickening of the tunica ,me and the doctor cannot feel the plaque using palpation,this is visible only on the ultrasound.

BUT nevertheless, I have significantly lost in  the size .

And I thought, theoretically, with my little plaque Xiaflex could completely destroy her and restore my old penis.
I am skeptical about this, but hope .....
Title: Re: About Xiaflex treatment
Post by: TDix on April 23, 2019, 02:15:01 PM
 Xiaflex is always worth a try if you are covered for it.  Try whatever you can and more importantly don't give up.  Everyone is different and what works for some does not for others.  Whatever you decide make sure you find the best doctor possible.  Good luck to you
Title: Re: About Xiaflex treatment
Post by: NSAWQ on April 23, 2019, 02:16:43 PM
Thank you.
Good luck to all of us.
Title: Re: About Xiaflex treatment
Post by: TDix on April 23, 2019, 02:22:46 PM
I will say my surgery, 4 weeks in, was successful in that I am now straight.  I am now modeling to get my elasticity back, and when I am fully healed I hope to see that I didn't lose much length
Title: Re: About Xiaflex treatment
Post by: NSAWQ on April 23, 2019, 02:27:32 PM
Good luck !

I have 15 cm after my illness and  I can't do surgery and lose yet.
My main problem in the loss of diameter or girth.
Title: Re: About Xiaflex treatment
Post by: TDix on April 23, 2019, 02:36:37 PM
Have you seen a specialist yet?  Someone who specializes in Peyronie's?
Title: Re: About Xiaflex treatment
Post by: NSAWQ on April 23, 2019, 02:46:15 PM
I visited about 7 doctors .
Half of them were useless.
I had treatment in a private clinic but not for long.
I quit treatment after I learned that this disease is incurable (Incurable using traditional treatment).
Title: Re: About Xiaflex treatment
Post by: TDix on April 23, 2019, 03:43:42 PM
I would see if you can find an andrologist if possible.  Wouldn't hurt
Title: Re: About Xiaflex treatment
Post by: TonySa on April 23, 2019, 04:35:53 PM
NASQW, peyronies is treatable w the right doc.  The approach has to be tailored to the individual and their circumstances.  Check out the survival guide:  Peyronies Survival Guide - Information for New Members - Peyronies Society Forums (https://www.peyroniesforum.net/index.php/topic,3180.msg44057.html#msg44057)
Title: Re: About Xiaflex treatment
Post by: Bubba dawg on April 23, 2019, 04:43:13 PM
I had 5 rounds of Xiaflex. Plaque is hard. Calcified plaque is like cement. Xiaflex can soften regular plaque so it can be molded. I have some calcification so mine did not turn out perfectly straight. Makes me ill that I went through that crap and I am still not straight as I would like. Still much better off than before treatment. Like Dix said everybody responds differently to any of these treatments. Sometimes things go terribly wrong with any treatment