I wrote an email to the scientist named in the article. She actually responded directly. she wrote the following

Thank you for reaching out. We are moving forward with our peptide development as funds become available. You will be happy to know that Peyronie's disease is in our top list of diseases to consider testing, so we definitely have interest in the disease.


I would say it is really a promising and encouraging, but also vague answer. it would be great to find out more. Are we talking about one two years or ten years?

If you have an EXPERT doctor AND you are diligent, you may well retain your size, but you could be non-functional for months with the risk of infection return.  I sure would not want to deal with it.

Quote from: pauli on April 19, 2024, 05:33:39 PMhow long do we have to wait until there will be a test with a peyronie patient? what do you think? maybe it is possible to get in touch we the research team?

I'm all for this. I was wondering the same thing..

There have been reports of members throughout the years that had surgery done to deal with this and their outcome Wwas successful. You need to find a reputable sexual medicine specialist that handles these cases. The type of surgery will be dependant on your curvature.

Be careful of the doctor you chose to have this procedure done with. You want to have the best outcome possible on your first surgery.

If you are willing to travel and have the financial means for it, you may able to see some of the surgeons mentioned by members on this forum. How exactly are you in regards to this matter?

I'm suffering from some indentations and I think I would greatly benefit from a VED. The problem is that my injury is that very base of the underside of my penis and my fear is that the vacuum seal would create an unbearable amount of pressure. Are there any workarounds for this?

I am sorry but It was difficult for me to understand what you wrote, it was as you say, "scattered all over the place".

So basically you have tried Restorex and VED therapy have been on Cialis for over 10 years and just finished your 3rd round of Xiaflex. You do have questions on the Dr's actual procedure with the injection protocol he used on you.  Pentox now is even questionable if it even works. You say your only improvement now is that the hourglass indentation is gone. You are now questioning a fourth round of Xiaflex. I personally would not go forward with this Dr.

Have you read any of the success stories from Dr Trosts's patients on Xiaflex? He actually invented his own personal protocol and has great success with it. Many men have been very pleased with their final result. My first concern was where you said your urologists didn't even recommend traction. That for me would be a red flag on changing Dr's.  If I was in your position I would at least have a consult with Dr Trost to discuss his personal opinion on the matter. Yes you could go forward and try for an implant but I would be very careful in my selection of a surgeon. Only choose a highly qualified one surgeon who has done thousands of them, Dr Eid in NY is one of them.

yes, exactly on existing circumcision scar. Looks the same before and after.

It doesn't sound like you properly read what I wrote.  I did not just recently discover I have Peyronie's.  It's been close to 2 years since I was injured, 1.5 years since I noticed the plaque forming, and more than a year since the bend started.  I am past the acute stage.  I started using a VED 1 week after the bend popped up when I realized what I had.  It was one of the things I could immediately do before I went and saw my urologist for an official diagnosis.  After diagnosis, I was prescribed Pentox last summer during the acute phase.  I started using the RestoreX months before my 1st round of Xiaflex in Sep 2023.  My doctor did not even recommend traction, though he said I could do it if I wanted.  I have been doing it ever since last summer.  I have already done 3 of 4 rounds of Xiaflex.  I can hardly see how 1 more round of injections could help me, even if I went to a new doctor.  I have been on Cialis for over 10 years, so that is not an issue.

I was fortunate to never having had Peyronies Disease. Hawk suggested that I could possibly help, so I lurk here.
My doctor refused to do a stretch nor even want to know what I thought my size would be.

He was right and was mildly aggressive with sizing and I gained about a CM after surgery.
If you are able, I would recommend using a VED before your surgical date.

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Hello! Apologies, I'm just seeing this.

I think I'm progressing pretty well. It's been three weeks since my second round of injections and I'm continuing to see improvement!

I've been following the stretching instructions given to me which were three times a day for 30 seconds and one 30 second stretch when erect.

I haven't been using a traction device yet, but plan to discuss that with my doctor at my next appointment. To be honest I've been a little nervous to use the traction device and somehow cause more damage. I've read some Xiaflex horror stories that have given me a bit of caution in this whole process haha. But the three and one stretch routine seems to be working for me!

Next Thursday being my fourth week after the second round, I'll have measurements taken at the doctors and then I have round three two weeks after.

Wishing you all the best in your journey and I'll be following along on your updates!