Folks- thought I would share some feedback on my decision of whether or not to have penoscrotal plication or a penile implant for my Peyronies based on conversations with 2 surgeons. One surgeon recommended plication and one recommended implant. After a phone consult (yesterday) and reviewing pictures (this morning) with Dr. Eid I am starting the process of moving forward with an implant. I will share pictures of the "before" case in the near future and want to know if starting a new thread is more appropriate for those considering an implant to manage Peyronies vs those with Erectile Dysfunction and Peyronies. My case is a bit different because I do not have Erectile Dysfunction yet, but my curvature makes sexual relations unsatisfactory.
Rightfully, Dr. Eid seemed a bit hesitant to recommend an implant for me for a couple of reasons. First, this was a phone consult and really needed to see pictures in the erect state to know what the extent of the issues were if he wasn't going to be able to examine me in person. Secondly, because I was able to penetrate (although not fully thrust) and did not have severe Erectile Dysfunction it really came down to how unsatisfactory the sexual relations were. This was an extremely positive conversation. He was open, forthright and clearly had my best interests in mind.
After reviewing my pictures I sent him he responded within 30 minutes and said implant was the way to go "you also have significant narrowing of the distal shaft. The implant will be a good option for you, it will straighten the distal shaft and glans also may give you more girth as well".
I am happy to answer questions and will keep everyone posted.
Fascinating to read this great success story. I will start another thread on my implant journey as I get a bit closer to surgery. I am hoping to get my surgery with Dr. Eid scheduled next week and look to early March for the procedure. I did have a couple of questions I am hoping those that have gotten an implant can provide their perspectives on. I will be flying in to NY... any sense of how many days I should stay prior to returning? Dr Eid said 2-3 days but I am a bit worried about the awkwardness/discomfort on the flight home. How long before I could return to work? I have an office job and am sitting a fair amount of the day. At what point does the implant become unnoticeable in the flaccid state when wearing khakis or jeans (e.g. will keeping it "up" with tighter briefs help conceal it right away)? How long before folks felt comfortable returning to their athletic activities ( I lift weights and am an avid golfer... have some golf trips planned and in a perfect world could have the surgery done and still be able to go on the trips). Thanks in advance for responses. BTW these implant journals have been invaluable as I have considered options.... thanks.
Try reading Merrix's thread. I think it will answer most of you questions about work, clothing, and weight lifting. He did have it a little rougher at first than most of us though, likely because Dr. Eid installed and removed the implant 3 times before he was satisfied it was perfect. Cheers man. I think this will be the wiser choice.
Thanks Alibaba! just downloaded Merrix's journal and will get started.
Okay... so here I go. Surgery scheduled for Thursday with dr. Eid. Here are before pics. I will readily admit... I was average and lost too much length to make sex okay for me with my wife. Wish me luck ... and to everyone it there .. hang in and stay strong
Here is ved ... not pumped too hard... if I could update get this back it would be fantastic... would love nor be about half inch from normal
Sorry for the bad images ... will try and do better. Under VED it was close to 5.5 inches. I know guys are worried about length... trust me I know!
Your date is almost here! Be brave man... I'm very curious to see how your curve will stretch out on the implant. Best of luck!
Curved, you have the start of a great journal. Your before and after photos will tell much of the story because of the clearly visible deformity. I think it is critical however that you take some accurate BPSFL measurements and three erect girth measurements 1. Behind the glans 2. midshaft 3. at the base. If you like you can photo-document them or just list the data. I am not sure if you or any doctor has measured your angle but my guess is that it is about 90 degrees.
These measurements and the photos you have taken, along with your written posts about your physical and psychological progress will not only be interesting, but it will also be a great educational resource for others facing similar issues that have often either disregarded an implant for deformity correction or been turned down by a surgeon.
I agree hawk, I wish I had been more diligent about measurements through my almost two year process of different treatments,
Crazy how peyronies works. I have 5 different areas of scarring yet never had a bend. Just a blood flow issue. Everyones different i guess
Headed to Dr Eids office in a bit for pre op visit. Just got off the phone with the surgery center and all set for 730am tomorrow. Just a note for any out of towners coming to NYC for the procedure. Be prepared for relaTIvely smaller hotel rooms in NYC vs other cities. I am at the Bentley which is convenient in terms of location but on the smallish side and an older hotel that has limited amenities. Will update measurements after visit with Dr Eid
You are almost there curved! Heard about the Bentley before :D best of luck on it. Pretty soon you will have a new toy to play with haha
Good luck. One thing to think about positively. Your hotel room is probably larger than most residents apartments in the city.
Thanks guys for all the good wishes. Here is a quick summary on my meeting with Dr Eid. Super guy and as others have said his staff is great. The cystoscope kinda sucked. They shoot some lidocaine gel down your urethra which burns a bit but not bad. The instrument used to take measurements is manageable but pretty uncomfortable when it passes the prostate on way to the bladder.... that was a bit painful. After you get cleared from the cystoscope to ensure you can have a catheter you get a Doppler on your penis to measure blood flow and check for plaques. Unfortunately, here is where I ran into some issues. Dr Eid said I had some seriously impressive plaque.... one of the worst 5 or 6 cases he has seen. Given where the plaque was.... at least one of which was calcified could be a significant issue during the surgery. He prepared me for not being able to put in a 3 piece inflatable and instead having to put in a temporary 1 piece malleable implant. He hopes this is not the case but won't know until he gets in fo sure but the Doppler was pretty bad. The concept of the malleable is to put it in with the expectation that over time (3-12 months) it will stretch the plaque to where it can be replaced by a 3 piece inflatable. I am hoping for the best but have to plan for the worst. I do really appreciate his upfront honesty and I know he will do his best.
In terms of measurements, he had me at 14cm on bone pressed flaccid stretch and induced erection. As I mentioned before the Peyronies Disease has cost me at least 1/2 -1 inch in length. My girth measurements tell the Peyronies Disease story. At base, I am an average 14 but mid shaft where my plaque is I am at 12. This is where his big concern is on whether he can get through there or not. If he can do a 3 piece he said he was aiming for a 20cm titan.
Will let everyone know tomorrow after I get out. Hoping for the best. Best to everyone out there
Wow, best wishes. You're in good hands which such an extreme case.
Back at hotel and all went better than expected. Dr Eid is a magician and was able to put a 20cm with 1 cm rte on right and 2cm rte on left. He said when fully pumped I was much straighter than he expected. He was very happy and so am I. Will post more later
great news!
That is so nice to read man!! So curious to see more pictures of your outcome and how straight it is going to be after this ordeal. Fingers crossed for you curved 8)
It will be interesting to here if he did excisions (and/or grafting) to release the heavy plaque and any modeling.
Just up from a nap and took my first Percocet. Might have been able to get by with the Motrin but my wife convinced me to go a bit heavier on pain relief at outset. Surgery was over about 9 and the IV painkiller (fentanyl) lasted until about noon. I wouldn't describe the pain as sharp ... more of consistent ache. Does hurt to move around so trying to stay still for first 48 hours. I was given 3 different pain prescriptions to be used depending upon pain/ swelling. Percocet for severe pain ( thought to be first 3 days). Tylenol with codeine ( medium) and ibuprofen ( helps with swelling).
I had a robust conversation with dr Eid yesterday on his philosophy on how to handle the plaque. He is definitely about letting the implant do it's work and other than some mild modeling after implant prefers to see it straighten over time versus significant plaque disruption (excision or scratch technique). He just believes the plaquedisruption techniques carry more risk of infection or nerve damage than may be worth it. I think he will consider incisions if needed and if in a position he can get to easily.
I can't wait see how much straighter he got me when I unwrap Sunday. He came out to waiting room after surgery and told my wife he was really pleased...upon inflation the curve straightened quite a bit. My job will be to continue to gently model and hold when I start cycling Sunday/Monday
Congratulated Curved! That name really might not apply now but it is nice to keep it to remember how far you came.
In response to Tony, Dr. Eid NEVER does grafting. As far as I know, he does incision only along with manual remolding and lets the Titan implant do the rest. Makes for much more simple surgery, faster recovery, and less chance of bad outcomes like nerve damage and infection.
Just a couple follow up thoughts from day 1. On lodging if traveling from out of town for a procedure with dr Eid I can recommend the Bentley hotel but definitely get the suite. We moved to a suite and it is significantly bigger with 2 rooms allowing your partner to work/ watch TV in the " living" area while you sleep in the bedroom. We were lucky it was available because we originally just had a room with king sized bed.
Midtown surgery center was fantastic, very welcoming, caring and attentive to any needs.
One other thing on dr Eid. He spoke to my wife at length prior to surgery to answer all questions, explain the significant challenges with my case and prepare her for potential issues. He has done over 6000 implants but sometimes he encounters something he hasn't seen before and he thought that might happen in my case. He explained several techniques he may have to employ to get through my plaque as he really wanted to put 3 piece in for me. He said that ultimately he might have to go with 1 piece temporary and if so there would be a second charge for OR/anesthesia but he would not charge for his time for a second surgery if it was needed. This guy is truly passionate about his patients and wants to do the right thing every time.
When he was done he came out to talk to my wife , collapsed in a chair across from her and she said he was genuinely happy with the outcome and was really worried going into it. He said it looked great and all pieces were positioned perfectly.
I also texted him a couple quick questions as I was recovering and he responded within 10 min.
Honestly, to know Dr. Eid is to love the guy as far as I am concerned.
BTW, I took the liberty to update your signature line. Feel free to do whatever you want with it. I just wanted to put your latest most significant info there because your case is unique on this forum. You are the only men I have seen on any forum that got an implant solely for deformity correction.
Your journal will be a gold mine for other men.
Thanks Hawk and good call on degree of curvature. Dr Eid estimated 90 degrees
Congrats bro. I was there at the same place exactly 3 weeks ago. And yes the hotels are tiny. Good luck the rest of the way
Thanks xehonart!
Quick update to start of day 2. Pain definitely worse today and woke up at 4 am to get Percocet pill. This was just under 6 hours from the last one. They work pretty well for 4-5 hours. The directions call for 1 every 4-6 hours so I may be closer to every 4 hours today. Am going to read back over others journals to get a better sense of when pain started to dissipate. Next hurdle is catheter removal and plain flight home on Sunday
I can't warn you enough. Prescription pain meds constipate. Stay ahead of that with lots of stool softeners and or milk of magnesia. You won't enjoy being constipated or impacted at this stage after surgery. STAY AHEAD OF THE PROBLEM.
Thanks Hawk... have been taking colace 2x day.
Question for everyone on icing. The folks at surgery center said to ice as much as possible and tried twice yesterday but honestly the gauze and jocstrap is just about impenetrable and the ice doesn't seem to do anything. Any thoughts? Figured I would ice when I take bandage off on Sunday morning
Long term icing will get the cold through all of that, at least to some degree. Just have faith and do it. The more you control swelling the better you are. Also lay flat, not with your head propped up on a pillow. Your penis and scrotum should be as high as your highest body part most of the time. That is also why it is important to lay down once you start soaking. Sitting in a tub of hot water will cause swelling, not reduce it.
Dr Eid recommends the cold only until bandages come off. After that, you switch to hot soaks.
Hey curved! What de you mean by he collapsed on the chair? Like he was illdisposed?
Pfract- sorry didn't mean to give wrong impression. Per my wife he was very very relieved that he was able to successfully put the titan in. He really didn't know if he could get through the plaque and he knew how much I was hoping to get it done the first time without having to come back sometime later on. I got the impression that this was one of the more difficult cases he has had. Sorry for any confusion. He showed up at least an hour before surgery and was ready to go right away.
Curved. I am not sure if I missed this but I have a couple questions.
1, Was your insurance readily willing to pay for an implant to straighten a deformity without a diagnosis of ED?
2. I notice that your deformity worsened in recent month. Would you say you were in the active phase recently? If so how recent and did Dr. Eid have any concern about that?
Hawk- good question on insurance for all others out there considering this. Short answer is that I paid out of pocket for the coloplast, dr eids fee and or/anesthesia. I was told by dr eids office that the rate I was paying was a discounted rate but as I mentioned in an earlier post my all in costs excluding travel was $25k. What is interesting is that dr Eid is in network for united healthcare ( my insurance) but he doesn't take it. The only insurance he takes (to my knowledge) is Medicare. He is private pay for all others. Because he is considered in my network I am going to see if I can get anything from the insurance company on the backend. Obviously I couldn't get this preapproved for insurance purposes so it will be a bit of a fight.... my insurance requires pre approval for this procedure or you may only get reimbursed for approx 50% of your expenses.
In terms of curvature I definitely underestimated the degree of bend. My curve is (was!) worse now than it was 1 year ago but has been at the angle showed in the picture above for at least 6-8 months so I am comfortable classifying myself in the chronic phase. This is also my second bout with Peyronies Disease going from a 40 degree downward bend to what I now know was a 90 degree upward bend. It is a very interesting question for someone that may be in the active phase and not have ED but still considering an implant. The trade off of waiting until one gets to a chronic stage and potential loss of length with the potential to treat Peyronies Disease with traction, VED and Xiaflex is an individual one but I suspect most surgeons would take a very conservative posture. However I would be curious to Dr Eids perspective and will follow up. It was clear from my Doppler that I had 3 distinct plaques; 1 that was clearly calcified and 2 others significant in size....1 he said was about the size of a quarter.
On day 3 and looking forward to flying home tomorrow. Will get up early and take catheter out. Looking forward to unpacking all the gauze and see what it looks like. Felt a strain in my lower abdomen last night for first time which I bet is where the reservoir is. Nothing bad but I can tell it will restrict bending over to pick stuff up for a bit. Only needed one dose of Tylenol / codeine today so far but will take the Percocet prior to flight tomorrow. So far so good but real test will be locating pump and attempting inflation tomorrow in the tub. Will keep all posted.
Super curious to hear your next update! 8)
Since you are traveling tomorrow, I would not worry one wit whether you cycle or not. You will love the hot soak, however. Since you will not be laying flat most of the day, tomorrow could take a toll on you but you will bounce back.
Also, when you first see your penis it will likely seem like it is almost erect enough to have sex and sticking up at about 2 O'clock. That will be fluid and blood clots in the cavernosa surrounding the cylinders.
Thanks Hawk. Took out catheter about 2 hours ago and got to see the new tool for the first time. Still pretty swollen and Hawk was correct felt like a semi erect penis although I know I am deflated. Had a bit of difficulty feeling pump due to the swelling. I know where it is and can feel a vague outline but will wait until bath later to explore all the parts. A bit worried that I am to swollen to start cycling... definitely want to make sure I know where deflate valve is and am comfortable with that. Pump seems to be positioned great .... way back in the scrotum and can't be readily seen. With a semi erect penis I still have some curvature but not as bad as before. Dr Eid told my wife that when he inflated me he was really pleased with how much straighter I became immediately. He and I spoke about gently modeling when I was cycling to help with any residual curvature and he said not to worry that it could take up to 6 months to get perfectly straight but he had no doubt the implant would do its job. Pain is minimal and it felt great to get catheter out. That was a bit of an annoyance and just lying in bed without bandages felt great. Wearing the jockstrap over my underwear to ensure I keep myself pointed up for trip but really pleased with minimal amount of pain...l just feel pressure if I bend over to pick something up. Hopefully can cycle later so I can see where we are at in the erect state. Girth where my hourglassing was definitely looks better.
Good luck to you. I hope things go great and recuperation goes smoothly.
Update on day 3. Got home and took bath which felt great. Was still pretty swollen and sore to cycle. Could feel parts better in bath and could easily identify pump and release valve. I currently just ache in my penis which feels like I have been walking around with an erection for 24:hours. The feeling is a bit like after I got the shot for induced erection for the Doppler test. I know I was sent out of the operation deflated but like others the first reaction is to wonder if I was sent home semi inflated. I am going to send some pictures to dr Eid and get his feedback. Going to try and cycle for the first time later this morning. Only worried about deflating fully since I am still sore. Any advice
Trust me, if your penis is not sticking at least straight out at a 3 o'clock position you are abnormal. That is especially true since you have not been laying flat on your back with no pillow and have been moving around a lot in the last day. Laying flat in long hot soaks with only your face out of the water at least 2 times a day will help a lot BUT it takes time. Everyone is dealing with a penis for weeks that they can't quite figure out how to position.
Thanks Hawk. Sent some pictures to Dr Eid and he said all looks good
Was able to cycle or at least attempt to cycle this morning. Today marks day 4 after surgery. One of the challenges I envision with the early days of cycling is to know when I am completely deflated because looking at the penis it looks like a semi erect penis with some residual curvature due to the swelling from surgery. Prior to attempting to cycle I can feel the cylinders and hear a "crinkle" if I bend the penis slightly. This is how I hope to identify that I am deflated for the first week or so. I pumped 17 times and candidly I could not fully compress the pump... more like half pumps. The pump is pretty darn hard. The last couple of pumps I was using 2 hands and like everyone, I had one incident where the "hard marble" slipped out of my fingers and it was a jolt. It didn't look like I had gained any length but the penis was definitely firmer. Since it was becoming a bit painful to try and compress the bulb I decided that was enough for my first attempt and started to deflate. The deflate valve is also very hard to compress. I pushed it pretty hard with my left hand and squeezed my penis the best i could with my right to deflate. I think it is the location in the scrotum but deflating was more painful than inflating. I did it 3 times to hopefully make sure i was deflated fully.
After deflating I looked like before... still erect with slight bend but I could hear the cylinders "crinkle" so I am hoping I am fully deflated. Called Dr Eid's office and spoke with one of his assistants (Sylvia) who walked me through the process and I think I have it... at least as far as we could tell over the phone.
She definitely thought I needed to push harder on the pumping. I say this because I suspect she thought I would see the penis lengthen as part of the cycling process.
Dr Eid measured me at 13.5-14cm in BPFL. He promised me at least 13cm and potentially a bit more but was concerned about all the plaque. My math may be a bit off here but he put 20cm titan in and somwehere between 5.5-6.5cms of that is in the body (assuming the 2/3rds outside to 1/3rd inside the body ratio is accurate) which would leave approx 13.5 - 14cm fully erect. I know I need to factor in the RTEs so if someone can help with that it would be appreciated.
I measured my pre cycle length at 12cm so tonight i will measure when I feel I have pumped fully to see what length I am at with the goal of gradually getting to 14cm over the next 2 weeks.
I didn't measure girth but will and can tell visually it is a great improvement from pre implant.
Measure if you can and If you want but I found a few issues measuring at this stage.
1. It was painful to bone press at this stage.
2. When I was inflated it was standing up at 1:00 O'clock and there was no bringing it down to a 3:00 o'clock position to measure.
3. Measuring girth was no problem.
Also, your length will rapidly progress over the next month couple months so don't worry much about the length at this point.
At some stage between today and 6 months from now, you will be able to squeeze the deflation valve for 2 seconds and let go and it will stay so you will not have to hold the valve while you squeeze your penis. The key is that your cylinders will feel flat rather than round like a drinking straw when completely deflated and you will likely feel some dog-ear, accordion-like bends in the cylinders at some point along the shaft. If you felt a "crinkle" feeling/sound you are probably good.
Big step forward tonight. Lost count of my pumps during cycling but went to the point my scrotum was on fire and felt like nothing more was coming into the cylinders. Measured length and was at 13.5 cm vs just under 12 before cycling. I believe my limit will be around 14 - 15 so still have some room but much better than this morning.
Was able to deflate and this time could really feel my penis losing the fluid as I squeezed it while depressing the deflate valve. Still stings to deflate when I depress the deflate valve but I will take what feels like great progress from my first time. Will admit my scrotum is on fire right now but Dr Eid said in my case I really had to push myself especially during the first few weeks.
Curvature is still there but is approx 50% less than before implant. Dr Eid said to feel like you are over inflating to help get rid of curve so will push harder tomorrow. Curve is towards the glans and I can feel the cylinders extend just into the glans. The curve is near the glans so when I model it will be towards the very end of the cylinders....will take the modeling slow and focus on pumping a bit more each time.
I read your posts and couldn't reply at the time. Came back and read some great news. Seems like you are on track curved! :D
Remember, it is not only the degree of inflation but the length of time of inflation. Trust me, I know the feeling of watching the second hand and literally doing a "5-4-3-2-1 RELEASE". I used to listen to music and try to hold on for one more song (hopefully not the 8-minute version of American Pie) :) After the last song I would round-up to the nearest minute to get every second I could endure.
I think (although I can't prove it) that there is some benefit if after you had all you can stand, just releasing a very tiny bit of pressure and staying comfortably inflated for an additional longer period of time.
Thanks Hawk. Just a quick thought on RTEs. I spoke to Dr Eid about his use of them on me because I knew he wasn't a fan. He said he only uses RTEs when the crus is deeper than he expected and are needed to fill the gap. He mentioned that he will often take a larger cylinder and cut a bit off the ends instead of RTEs if he can but in my case due to the Peyronies Disease the two sides/ cylinders needed to be different lengths hence the need for 1cm RTE on one side and 2cm RTE on the other. The most important thing is to insure the cylinders are at the same point inside the glans and are even. He said it would not effect my erection at all and I didn't need to worry about hinge effect.
Morning of day 6 post op and am pretty sore this morning. Today will be the 3rd day of cycling and my scrotum aches from th inflating deflating.
Spoke with Dr Eids office yesterday afternoon to get some feedback on how I knew I was fully inflated. Sylvia (one of Dr Eids assistants and an expert of workings of the titan) said I had to pump until I literally could not pump anymore. Said to use two hands if necessary.
I told I felt like my pumps towards the end are half or quarter pumps and she said that as okay because even then more fluid was going into the cylinders.
Last night I must have pumped what felt like 80+ times to where my hand was cramping. I found that towards the end I could half pump and then the bulb of th pump couldn't be moved but if I waited a second or two I could get a quarter pump in. Then it would be hard and I would wait and get a quarter pump in. In must have taken me 25 min to get fully inflated with this process. Is this remotely normal?
Thanks in advance for any feedback.
A couple of thoughts.
I think we all experienced that situation where we could not pump anymore, then we waited, and we could give one or two more pumps. It is often explained that the penile tissue stretches allowing the extra pumps and that might be true. I wonder however if there could be some slight backflow from the cylinders to the reservoir under that much pressure. At any rate I would do it because you have nothing to lose and everything to gain.
when I pump I can tell that the pump is sucking up more fluid when released. When it stops doing that you know you are not even getting partial pumps.
Got it... thanks Hawk. I definitely feel the fluid going in during the first 10-15 pumps. After that not as much. I will continue the course for the next week or so and see how it goes.
I think when pumping 80+ times were somehow deflating while inflating-thus pumping seems endless. Have to say this is easier to do w the AMS, I hear deflating with Titan is more difficult to do accidentally.
Not only do I think Tony is correct, I think it is an understatement to say the Titan is more difficult to deflate accidentally. If anyone ever told me they were accidentally deflating a Titan I would have to conclude they were a TOTAL idiot or a liar. I don't think it is possible to deflate a Titan without making a deliberate, thought-through effort as evidenced by SW01 having to drive to his surgeon's office because he could not deflate even after trying for days. Men often run into some trouble deflating a Titan when they are new at it. I have never heard of anyone accidentally deflating a Titan.
Hey curved:.I don't mean to be disrespectful or pushy in any way, but would there be a chance you can share a picture or two of the current curvature status with the implant inflated? It would very nice to see a comparison between pre-op and your current status, considering how you had your penis curved.
Very interesting thread. I would be interested how you come out on the insurance too. Per your comment, "What is interesting is that dr Eid is in network for united healthcare ( my insurance) but he doesn't take it.", that was an issue I had when I was trying to get my revision 25 months ago. Cheers man. Reads like a great story to me.
Pfract- Attached you will find some pictures from last night. I sent these to Dr Eid this morning to make sure he felt I was progressing appropriately. The first 2 are pre-inflation and what I am like in flaccid state since implant. Still a fair amount of swelling but the cylinders will turn me more into a "shower" than the "grower" I was before. The second 3 are pictures inflated. There is still residual curvature that Dr Eid approximated at 20%. I was approximately 90% prior to implant. I still have a ways to go and Dr Eid promises that it will straighten more with time and to focus on cycling with modeling... as much as I can through the day. Not the immediate improvement that others have had (e.g. SW01) but certainly better than before. Dr Eid and I spoke a fair amount about this prior to surgery and he has a philosophy on Plaque/Peyronies Disease that will differ from some surgeons. He definitely feels "less" is more.... meaning less modeling, less incision of plaque and certainly less excision of plaque. He prefers to put implant in, size appropriately and as he said "let mother nature" straighten it over time. This means less trauma at time of implant so a faster recovery and perhaps more importantly less risk of infection. Also very heavy modeling can damage uretha if not careful. And lastly, all Peyronies Disease cases/plaque are different and how one responds to the implant will greatly depend on size, location and density of plaque. Mine (3) ranged from calcified to very hard. I know he would have done some minor incision if possible but the plaque location may it impossible through the penascrotal incision. I am already at the 13.5cm he promised and with further straightening really think I can get another cm.
Thank you so much curved! I went back to the other page to check the pictures you posted first, and it's amazing the curvature correction the implant alone does.... I believe you and Dr eid, about achieving a close to 100% straightening. I also hope this gives some hope to people in this board, in that if everything conservative fails to treat their curvature, they will have this very effective, albeit different option.
Thanks Pfract. Peyronies Disease is obviously devasting and I would advise everyone to try the first lines of defense of supplements, traction and VED. If they so choose perhaps even Xiaflex. In the end an implant is a huge step but I believe in time will just create a "new" normal for me. Although I did not have full blown ED, intimacy with my wife was being damaged. Not by her, she was great and said intercourse was still great but the inability to have sex in any position other than missionary and the obvious shortening really hit me hard... to where rationally or not I began to feel inadequate as a man.
I am only one week post surgery so I expect to continue to straighten over the coming months and will continue to document. I will supply measurements in a few days although I can tell,with certitude that the distal narrowing I had prior to implant is significantly improved.
Just a quick update. 12 days post op and cycling 2x a day with the exception of yesterday where I only got in one cycle. I went pretty hard on Sunday and did some more aggressive modeling so I was pretty sore yesterday. That coupled with getting as much fluid into the cylinders as possible really caused the plaque to stretch. I feel like this is a battle between me and my plaque.... and the plaque is one tough competitor! Dr Eid said he wants me cycling as much as possible and to to continue that until there is no pain when fully inflated. So a couple of questions for the bionic folks out there:
1- Approx how long were you cycling until there wasn't any real pain when fully inflated (recognize results will vary)?
2- I notice sometimes that when I feel fully inflated I wait a few seconds and can get a half pump in (could be tissue stretching as Hawk as suggested), but had a curiosity is it possible that I pump a bit of fluid in and then it retracts into the reservoir? Guess looking for some confirmation on how to know when I am fully inflated.... haven't been able to have the last pump end with the bulb left in depressed state yet.
3- Haven't had sexual stimulation yet but worried about glans engorgement .... any ideas just in case? Read that sildenafil can help but just checking for advice if and when needed.
Thanks!
I wasn't fully inflating for a couple months. Now, fully pumped the bulb does not collapse because I still have fluid in the reservoir (I'd rather have more than less than needed). If you find your glans is not aroused w sex you can take a PDE5i (as I do). Works great in rounding out my dick-but works without it.
Thanks TonySa... really appreciate the feedback.
I think I was about 6 weeks before I could fully inflate for 1 hour with only minor discomfort. It might have been longer. I am sure it is in my journal. By that time I was opting for one 1hour session rather than (2) 30-minute sessions. It saved one cycle on the pump and supposedly accomplished the same thing.
I don't have the answer to number 2. I wonder the same thing although if it is stretch you will get to the point that you cannot pump after waiting. There would only be so many times in a single session you could wait and add a pump or two. If it is leakage it should have no limit in a single session.
Thanks Hawk
Day 13 post-op and latest observations. Haven't gotten the recommended 2x cycling for the last 2 days... only have done once ... but held inflated for at least 30 min. Absolutely have to force myself to find the time to do 2x per day. The really good news is that I was back o work for a few hours the Monday after my surgery which was on the Thursday before. I was able to be there 3-4 hours the first week without a problem but it was a bit uncomfortable. Two weeks later there is no limitation with my office job and getting around is better achy day.
Like everyone else it's a new implant the semi-erection is a bit problematic and uncomfortable... I keep my penis upright with boxer shorts (under armor or reebok) but when I get out of my chair my penis is starting to drop to the 12 o'clock position so I have to readjust and put it back more upright.
It is a bit noticeable so I am trying to wear shirts untucked to cover the area which helps. If I wear a shirt tucked I feel like I have a somewhat noticeable bulge... which may seem like a good thing... but trust me at this point you don't anyone looking at you that way.... maybe I am just very conscious about it.
I still have a residual curve which Dr. Eid said will get better with time. When I inflate fully I am definitely longer than pre-surgery but have that 20-30 degrees that I desperately want to remove.
I have found that in the last couple of days my sexual arousal has come back and was super curious if I could get glans engorgement to come back. For the last two weeks I had zero thinking about sex so was worried if I had somehow lost some feeling "down there". It has come back full throttle the last two days and I was really hoping excited that last night after pumping and being sexually aroused that my penis was engorged and the glans full.
To be candid it was not the same as when I was young pre-Peyronies Disease but it was so much better than then the last two years.
I will post pictures and measurements in the next week or so to document progress but anecdotally I am comfortable with my progress thus far. I know I can get at least another 1/2 -1 cm over the next month in length.
I have tried pumping and deflating out of the bathtub and it is a bit painful.... so continuing the baths for at least the next month.
I have no scientific basis for this opinion but getting an implant for Peyronies Disease and not just Erectile Dysfunction is completely different and one needs to understand that before getting an implant just for Peyronies Disease.
Will it help your curve.... yes! Will, it immediately fix your curve... completely depends on a variety of factors.
First and foremost it depends on the severity of your plaque and bend. If you have moderate plaque then the implant alone may fix the curve very quickly. If you have severe plaque or if it is calcified it will take longer to fix.
It will also depend upon your surgeons perspective.... some may propose incisions, or significant modeling as part of the surgery which can help but bring complexities. Some may propose "breaking the plaque" during surgery (eg dr Parito).
I chose a doctor that prescribes a longer view with less surgical complications.....put the implant in... insure no infection and let the implant do its thing over 6-12 months.
I am not suggesting there is one right answer....what I am saying is that if you have severely calcified plaque and you are hoping that an implant will cure everything overnight it will not happen.
Once you have severe Peyronies Disease you are screwed.... unfortunately you (me) will never get back to pre-Peyronies Disease life. Accept it, hate it, curse it and get pissed....but do something about it.... don't be a victim.
I will move forward with a bit smaller penis, but if I did nothing I really believe I would have fallen into a victim trap and blamed my bad luck on anything rather than taking action.
My distal narrowing has greatly improved and if I can get back to 5.5 inches life will be great. I won't ever get back to my pre-Peyronies Disease 6 inches but as I continue to stretch the plaque and hole still hard and sore (a good sign) I am confident I can get to 5.5 in the next few months.
Dr. Eid promised me at least 13 cm post-implant and I am already there... the last measurement was 13.5.... the goal is 14.5 which would put be near 5.7 inches. Most guys have reported 1-1.5 cm gain 2-3 months post-implant so I think I am on schedule.
I wish everyone the best and thank everyone for there support
Good report Curved. There is just one area I am confused about. You said:
Quote from: curved on April 12, 2019, 11:36:13 PM
Like everyone else, it's a new implant the semi-erection is a bit problematic and uncomfortable... I keep my penis upright with boxer shorts (under armor or reebok) but when I get out of my chair my penis is starting to drop to the 12 o'clock position so I have to readjust and put it back more upright.
12 O'clock would be your penis laying against your body and pointing straight up to your navel Like the hands on a clock pointing towards the ceiling at 12 O'clock). Depending on your perspective, 3:00 O'clock would either be sticking out from your body parallel to the floor (the usual meaning) or laying against your body parallel to the floor and pointing toward your left arm.
I have NO doubt you will get a minimum of another CM although my gains might partly be because I lost so much from Peyronies Disease and ED. If you pump up in the morning and stay inflated while you eat breakfast, shave, and shower, you will have 30 minutes in. It should be easy in the evening to pump up when you lay down in bed. Even if you doze off it is not a problem. You need at least an hour a day if you are trying to gain size and remold.
Thanks Hawk.... you are correct I am at 3 o'clock. I will aim for at least a hour a day....good tangible goal to have out there
Thank you for coming back and updating your diary curved. I see very positive things here, namely you having glans engorgement, having your promised length and possibly looking at regaining more and the curve correction you already have. At this point, based on everything I read and also doctors recommendations please try as best as you can to stretch it out twice daily for the indicated amount of time.
That will insure the best outcome possible. There is also vacuum therapy post implant to help stretch out even more the penis but that is considered by many uncharted territory and so far there's very few doctors talking about it and not many documentation and proof of results.
I repeat that I really appreciate the pictures you so kindly shared. One thing is to cure ed with the implant, the other is showing the amount of curvature correction you can get with it alone even at such an early stage. best of luck with your new toy. :)
Yesterday marked day 18 post op and thought I would update 2 milestones in the last day or two. The first was the ability to achieve orgasm over the weekend. My wife and I did not have intercourse.... still waiting to between week 3-4 to attempt that. I am not much one to provide detail on the specifics but did want to comment on the orgasm itself which was different than what I have experienced in the past. A bit difficult to describe but prior orgasms culminated in a significant 1-2 second release whereas this was a more sustained 15-20 second slower culmination. I suspect it is because all of this is still new and may take a bit to adjust to. It was still very pleasureable but different.
Secondly was able to get back in the gym yesterday. While I certainly didn't push it was able to get a decent chest/tri split and was not limited on any of my typical lifting movements. I did hold off on decline presses but flat, incline and flys were fine. I made sure I had compression underwear on to keep me pointed upwards to 12 o'clock and minimize any awkwardness of a semi erect penis sticking out. Plan on slowly getting back into it the rest of the week but do feel I am a couple of weeks out from working lower body hard, particularly squats or deadlifts. The only discomfort would seem to be in those exercises that require significant bending at the waist or a squatting movement. Nonetheless think this was a great recovery for day 18.
Finally took a quick measurement last night and was pretty easily at 13.5cm.... although the slight upward bend makes it a little bit challenging to get the most accurate read.... kinda have to bend the penis straight. Will get pictures and more measurements in a few days.
Thanks for the update and sharing. Your sharing will make the psychological part of this implant journey easier for others....or at least it does for me. Thanks and continue to give us updates. By the way, I like the idea of a longer climax. Very interesting.
Interesting. I have never heard anyone say the sensation of orgasm was any different regardless of the implant manufacturer or surgeon as long as there were not some unusual complication. I wonder (since you did not have intercourse) if the method used to reach orgasm or your psychological state (nervous about discomfort etc) had some effect.
Hawk---- very well could be. Obviously the penis itself "feels" different than before so I wonder if this a psychological thing more than a physical thing. Prior to implant I could tell pretty quickly when about to reach orgasm whereas this time it certainly felt like a longer, steady build with an elongated climax. Again, not necessarily bad, but different. Hopefully over the next few weeks I will get some more data points to make a more informed report as to whether this a new norm or part of the recovery process. Thanks to all for the encouragement.
Hey guys....question on how long to continue the hot baths with inflation. I am at the three week post implant mark today and was wondering when the hot baths were not necessary as part of the inflated process? I recognize that the baths help with inflammation but my has pretty much subsided and I am comfortable inflating outside of the tub... in fact the last week or so I would inflate as best I could in tub (approx 10 min) and then lay on the bed and inflate to max and hold for another 20 min. I would then get back in tub and deflate which was easier in tub than out of tub. Today it seems just as easy in tub or it of tub. Any thoughts? Thanks.
I understand the baths are just for comfort to allow easier use of the pump until your scrotum toughens up. I only have a shower so never did the hot baths.
Generally, once you start sex around day 21 you can discontinue hot soaks. One might still be soothing now and then for a couple weeks if you feel any discomfort after sex or other activity.
Thanks for the feedback. A couple of thoughts for those considering an implant with significant Peyronies Disease and hardened plaques. Every patient will be different and the curvature reduction post implant will depend on many factors but there are 3 that jump to mind to consider.
1- Dr's philosophy on plaque removal/incisions/modeling. Lots of issues to consider that are specific to each patient and severity/location of plaques. There is a spectrum of potential considerations from excision and grafting, to incisions and scratch technique to break up plaque, to implant insertion and modeling. The more invasive the approach the greater the chance for infection but in the hands of an experienced surgeon risk of infection is greatly reduced.
2- The severity of plaques and approach taken will dictate to an extent the immediate reduction of curvature post implant. Some patients with less dense plaque can go from severe curvature to completely straight with implant alone. Others may need significant modeling and still others will take time with the cylinders slowly expanding the plaques/tissue over time. It is really important that when the surgeon does the doppler you have the discussion and determine what is expected to be the approach and what expectations can be post surgery. In my case it was pretty severe and the Dr. didn't want to even promise the ability to put in a 3 piece implant and prepared me that if he couldn't successfully dilate he would place a 1 piece malleable implant and I would have to return for a second surgery after the tissue had successfully been expanded. Fortunately this was not the case and he was able to implant the Titan.
3- Everyone wants to max their size and for those with Peyronies Disease it comes down to expanding the diseased tissue (assuming you haven't have it excised) and this takes time. It is somewhat analogous to using the restoreX... it takes time. When inflated the cylinders will put tremendous pressure on expanding the plaques so critical to do it the recommended 2x a day.
One thing that I have found when inflating is that at the very end I can get a very minor squeeze on the pump in but it doesn't feel like the penis is expanding.... like it has hit its limit of how much fluid can enter the cylinders but their is still a small amount of fluid in the reservoir. I suspect that I am hitting the limit of what I can expand given the constriction of the plaque.... meaning absence plaque I could get a bit more fluid in the cylinders but the plaque at this point wont allow any more expansion. This is also visually seen because i have a residual curve. I wish there was a quick solution but this remains a marathon and I need to continue to trying to push a bit more each time and have been given assurances that over time (e.g. 6-9 months) things will improve even more.
I am going to attempt VED later tonight and will report back tomorrow with first thoughts.
Is Dr Eid on board with the post implant VED? If so, what protocol does he recommend? Before inflation or after inflation, length of time, frequency, etc?
It only takes me about 10ish pumps to get pretty hard. Then the pump gets hard to press and I pump 5ish more times to get more fluid in. As for the baths I stopped around day 40. Now i just pump once a day for 30 minutes and have a shower and what not. This way too it conserves the duration of my implant instead of cycling twice a day
Thanks for the feedback. TonySa- to my knowledge Dr Eid is against post implant VED as he doesn't think it would help any more than aggressive inflating would.
How does modeling work after an implant? Did dr Eid give instructions?
I recently read that modeling after an implant does not work unless it is started immediately and continued through the 3rd week of healing. The doctors in the study DID have to prescribe pain meds for the test subjects to do it. That I believe!
"I don't think it is possible to deflate a Titan without making a deliberate, thought-through effort". I agree Hawk.
Hey Ali! Is there any chance you can share that study with us?
Would be interested as well to see the post implant study on modeling. TonySa- I was given real detailed instructions from Dr. Eid. Essentially when inflated i am to push against the curve using two hands but needing to be careful on the force as to not injure the urethra. I read somewhere that it should be held for 90 seconds. I try to do this 3-4 times during my cycling. It is fairly painful and I am sore afterwards. It has been just under 4 weeks and I can't say that I have seen much improvement but I imagine the improvement comes with time and having the plaque consistently stretched. I view it very much like using the RestoreX where results will come after several months. I do remember reading that those achieving good results with the RestoreX saw their progress improve after they aggressively used the counter bend feature in the device and not just a pure straight stretch. I think the same principle applies here but since you are in the inflated state one would need to be careful to not damage the cylinders so some caution should be taken. At a close to full inflation without bending/modeling I can feel the plaque being stretched so I am still making progress even when not modeling. I approximate my upward curve to be 20-25 degrees and have a goal of getting to 10 degrees in within the next 3 months.
Thxs, very interesting!
I also have a slight curve still. Not sure what he had to back it up but my doc told me it should straighten little by little over the next year. I did not get any instructions on doing any modeling other than pumping it up.
I have to say though I do gently bend it against the curve when pumped and also deflated a couple times each day. Figure if I am gentle it should be ok and might help straighten it quicker.
Quote from: pfract on April 24, 2019, 07:33:02 AM
Hey Ali! Is there any chance you can share that study with us?
Be glad to if I could just find it. Google is not my friend tonight!
Just a couple of quick thoughts/update.... have been traveling a bit so haven't had the time I would have liked to post.
First--- in a response to a question from TonySa I saw a typo in my answer. It read "I was given real detailed instructions"... it should have read "I wasn't give real detailed instructions. Kinda important mistake by me... apologies. So for those modeling post implant would love any thoughts you have that may differ from the high level info I was given by Dr Eid. I did get the sense that further straightening through cycling would take place but it would take several months.
Second thought is based on recent experience with my wife. Long story short she is incredibly happy with where we are at. She said it really felt like the old me and she didn't have to worry about another injury and could "let herself go and not be so self conscious". This was significant for us and basically the big reason we went down this path. An important point she indicated was that she actually prefers me at about 80 - 90% pumped vs fully inflated to the max. I believe this echos what others have said on this board. For her fully inflated doesn't feel as natural and feels too hard. She also said at 80-90% inflated is was more than adequate in terms of length and she could definitely feel the glans engorgement which makes a significant difference for her in terms of feel/fullness. Also, while a bit sore immediately after having sex the second time I felt normal within 24 hours whereas our first attempt took me a bit longer for the aching to subside. So recovery post sex is getting faster which is great.
So I think my plan is to continue to push full inflation when cycling to stretch plaque as much as possible and dial it back a bit for sex.
Quick comment of my flaccid state. My penis hangs a bit to the left in the flaccid state... almost like the left cylinder contracts more than the right when deflated. I have more plaque on my right side so then may be playing a part. I will send pictures later this week. Regardless this is not a big deal to me at all because when inflated I am straight at the one o"clock position with the 20% upward curve.
Finally for what it is worth I am just over 4 weeks out and am back to close to normal daily routine. Will attempt golf later this week but don't foresee and issues and have been back in gym for the past 2 weeks with only limitations on squats, deadlifts or anything requiring significant bending.
Glad to hear things are moving along.
Thanks for sharing.
I think the talk with the spouse about what feels best is the BEST way to go. All too often, we tend to think we are having a good time, so they must be too.
Hopefully at the 4 week mark, I can say I am almost back to a normal routine too.
Awesome!
Haven't checked in for awhile ...apologies. Today marks 10 weeks post implant surgery and things are going very well. I measure between 13.5 and 14 cm and most importantly have reduced by curvature to approx. 20 degrees upward. I texted with Dr Eid and he felt these results were even better than he expected at this point in time given the severity of my Peyronies Disease. He measured me prior to implant at 13 - 13.5 cm so the fact that I am there and perhaps slightly above that was encouraging. He believes I can get to consistently at 14cm+ as the plaque stretches over time. He felt the improvement to 20 degrees was "amazing" and he thinks it will continue to improve over the next 9 months.
Sex with my wife has steadily gotten better. It is definitely a better experience for her than before surgery and I couldn't be happier about that. There are 2 things we are still working through. The first is getting past her concerns about causing another injury. My Peyronies Disease was triggered by an injury during intercourse which is what set me down this path several years ago. She still has a concern despite my reassurances so I suspect this will come with time. The second is just getting used to inflating as part of "foreplay". We are still getting the right cadence for us.
Daily activities are completely back to normal. I will say that in the flaccid state it hangs a bit to the left and there is still a bit of residual curvature so I sometimes have to reposition it so it doesn't look like it is sticking out a bit. Compression type underwear helps and it is only slightly noticeable when wearing looser sweat type pants. Not an issue with jeans or khakis at all.
All in all we are very happy with the decision we made. I can't stress enough how important it was for us to once again have an intimate relationship that is physically fulfilling for both of us.
Best to all
We have missed your input Curved but glad to hear the report. Going from a 90-degree bend to 20-degree at this point is awesome. Since it is upward, any residual curve will just seem normal and maybe even preferred.
I am interested in your experiences with inflating and working it into your routine during sex. I am mainly interested because it could not be much more of a non-issue for me. I find it easy to pump up with one hand whether under the covers or even through sweat pants if I am standing. If I were going to initiate I just pump up part way under the covers or through pants. I find it easy to do the final inflate during foreplay. The majority of the time my wife initiates since she knows I am always interested. It is seldom that I don't sense her interest and get good quick partial inflation before her hand is on my penis, and again, I just top-off during foreplay. I can have both hands on her and briefly move one for a few seconds to inflate then repeat if necessary. It is even easier if I am engaged in giving oral sex.
If by chance she just randomly grabs me with not even a subtle warning, it only takes 4 or 5 quick pumps before all dogears or folds are out of the Titan cylinders and I proceed as above. Also, readers should keep in mind that we both know I have an implant. I would have no hesitation to pumping up in front of her on a sunny deserted beach. In fact, she would likely enjoy watching it. I do the above just because it seems to be what just naturally happens between us most of the time.
PS: If I were single and on a date that could result in a first contact I would be partially pumped up when I got dressed to go out or at least after a bathroom break. I do find pumping up easy enough that I am sure I could discreetly do it in her presence.
Curved thanks for posting and always nice to hear from the "seasoned" Hawk. I am still new to restarting my sex life. Trying to get the right moved, but so far the spouse and I are working through our moves with the new improved penis. Lol
I like to hear about all the different approaches and yes I find giving some enjoyable oral to the spouse gives me some time to be pumping it up.
Since I get up earlier than the spouse, I can walk throughout the house naked with a full pump. As Hawk suggested, I can be having some coffee, etc., while my penis has total freedom to stretch.
Hey Curved! so nice to see you coe back with excellent news like that. I also think that with the stretching you will keep seeing an improvement to your condition as time goes by.
You already contributed so much to the board by posting your diary and providing pictures, don't feel guilty. Hopefully it will encourage other members in a similar situation.
Enjoy sir! 8)
Thanks for the responses everyone... as others have said the forum is incredibly important to those tackling a host of these issues and the support keeps our heads up.
Hawk- to address your question... I hadn't really thought of a partial inflate prior to sex so that the one could only need a few pumps to be fully inflated. For a single guy that makes a lot of sense. I haven't quite mastered the one handed pump just yet. I can get 80% of the way there with one hand but stretching that plaque to get another 10% sometimes requires an extra effort with the second hand. I am sure it will get better with time. More importantly is helping her get past the concern for future injury.
The pump continues to get easier to manipulate but I would estimate that I need 12 pumps to get to my max inflate right now. Part of the challenge is that the final pumps still have a little give in them vs fully inflated and feeling like you are "squeezing on a marble". I believe it is because of the residual plaque I have and it not being totally straight therefore not allowing me to pump to max. My math may be a bit off but with a 20cm implant I should have roughly 5cm in the body and roughly a maximum of 15cm for max inflation. Since I am getting close to 14cm consistently I believe I have potential for 1 cm or so for continued length which might explain the minor partial squeezes toward the end.
Anyone have any thoughts?
Thanks everyone and best to all!
Thanks for posting again. I am not quite sure when I have maximized the pump. It seems like I have pumped all the way, but a few minutes later, it seems like I can pump one or two times. I am thinking the tissues are stretched and then they relax and I can get in a few more pumps. I feel like I have totally maximized, when I feel the pain deep in my groin or at the tip. Is this what you have felt?
On another thought, I still can't seem to get my penis fully deflated. Maybe I've time my penis will soften more and it will hang? But at the present, it seems like I have a "semi" all the time. I could never get naked at the gym as I would look excited. Will this eventually relax? Should I start trying to point my dick down or am I too early for that.
Reminder, I am going on 6 weeks now.
Thanks
Stepone--- thanks for responding. Your sensations with pumping were/are similar to mine. Let me try and explain the "were/are". I would say the first six weeks I had a very similar experience where I would feel like I fully pumped and then wait 15 seconds and could get another partial pump. I could do this 5 or 6 times and would push to where i felt pain.... mostly for me was around where my plaque was which I take as a good sign. That covers the "were". Now when fully pumped (or what I believe is the max I can get now) the plaque area isn't as painful... maybe a bit uncomfortable but any additional discomfort is in the glans where the tips are. When sexually aroused (vs just pumping) I can still get engorged and I don't notice the tips at all... so the "are" part. All in all with continued pumping any discomfort/pain will subside with time. I am still a little sore after sex but that goes away within a hour whereas the first few times I was a bit sore the next day.
I am just over 10 weeks and in the flaccid state my penis doesn't hang straight down ... more out a bit and to the left. However, I can point it down or up with out any discomfort as long as I wear compression type underwear. I think part of the challenge is that I was a "grower" before and now with the implant I am clearly larger in the flaccid state but the implant is not quite soft enough yet to hang completely down. It has definitely gotten better in the last month so I would hang in there and be patient for awhile longer for the flaccid appearance to be exactly where you want it to be. I would be interested to hear from others on which way to point your penis at this point.... but to be safe I would definitely err on the side of caution and have your penis pointing up as much as possible. For me I did this every day until it seemed like one day, out of nowhere, it just wanted to point downwards and to the left. Today I try to keep it up when sitting for comfort and let it go where it wants when walking and just make sure it doesn't stick out too much to be noticeable.
Hey curved. Not exactly sure on the measurements side of things. Maybe hawk or Tony will be able to provide you with some ideas. I do have two questions:
-did you kept doing the modeling exercises since last time you mentioned it? How has that been in particular?
-did you get around to test the vacuum device post inflation? Did you feel anything in particular? Have you been incorporating it into your routine?
I will generally say to Curved and others that one of two things will happen when you really pump a Titan to the max.
1. The bulb will get so hard that you cannot squeeze it anymore and if you do manage to squeeze it a little, there will be no feeling/sound of it sucking up fluid when you let go.
(this means the penis is exerting so much resistance you cannot force another pump)
2. If you drain the resevoir the bulb will go flat or dimpled and not round out when you release. When you hit deflate it will then round out.
(This means that the capacity of the fluid is used up)
Granted, you might get to the point that your penis does not want to tolerate any further inflation before either of these things happen but if the implant is to its capacity, one of the previous two things will occur.
By 90 days your penis will hang almost as lose and downward as it is likely to when deflated. You might get some VERY slow minor additional downward hang after that but I think it will be minimal. The degree of hang has a little to do with your external length. Obviously, an 9" penis will exert more downward leverage than a 3" penis. If you are 100% deflated with a Titan, then you will actually be able to visually distort your penis to a flat shape in spots and it will stay like that for at least several minutes. If you cannot do that then you are not 100% deflated.
Thanks Hawk.... I will continue to push until I hopefully one day to get the reservoir drained. I do believe getting the calcified plaque to stretch is what limits me today. As I mentioned earlier my wife actually prefers me at 80%-90% pumped versus maxed out. She says it feels too hard at maxed out and a bit unnatural. I think by continuing to try and max out and stretch the plaque today's 100% size can become tomorrow's 90% size thus giving me a bit more length and a better feel at that length.
Pfract- I try and pump 1x daily to max to stretch the plaque consistently but I haven't been modeling as much if for no other reason that my wife prefers the slight upward bend and believes it hits particular spots for her ("G spot"). Also thank you for the follow up question on the VED. I neglected to post when i tried that several weeks ago. As mentioned by someone else (Hawk?) Dr Eid does not recommend post implant VED and focuses on stretching the tissue/plaque through consistent inflation. I tried VED after inflating and found it very painful and quickly abandoned the idea. I have not tried a second time.
Hey, Curved. Thanks for your journal - I read with much interest. I don't know if you've read any of my journal on here - From 90 degree bend to straight - Roddy's Implant Journal? Given your 90 degree turn (up) and my 90 degree turn (down), I wonder how similar the early days were for you compared to me in terms of pain from inflation? I'm Day 12 now and had my return to my surgeon on Wednesday there - I was left inflated by him until then to try and remodel my shape. Strange that I had little pain in my actual penis during the first 9 days until Wednesday night when I tried to inflate for the first time. Essentially Wed, Thursday, Friday and this morning (Sat) have given me horrific pain when I inflate. Like I said on my journal page, it's definitely feeling that my penis wants to bend down the way as it inflates but the implant is trying to force it straight. The outcome is breathtaking sharp pain. The longest I've been able to stay inflated is 30 minutes. I'm honestly not normally one who goes overboard and exaggerates in terms of pain etc but in this case it really is sickening. Did you experience this? Did it ever get better? Any pearls of wisdom for me?
Roddy- sorry for the delay in responding... just checking the board this morning. To answer your question... yes. The pain for the first 4 weeks was pretty tough. I did have some experience with the RestoreX traction device prior to surgery so it was similar to that for me. The RestoreX puts a tremendous amount of stretch/force, especially when bending the penis in the opposite direction of the curve. For me I could really feel my plaque being stretched when inflating. I could only handle 20 min or so the first couple of weeks (2x a day in warm bath). By the end of the first month I was up to 45 min, out of a bath lying on the bed fairly easily but still with some pain. I am currently approx 11 weeks post surgery and everything is feeling good. I am a bit sore after intercourse but that goes away within an hour and has dissipated a great amount from the first time I had intercourse which was at 4 weeks post surgery. I still have an approximate 20 degree bend upwards and I can absolutely feel the tension of the implant wanting to straighten the penis vs the plaque that doesn't want to stretch to allow complete straightening. My plaque is calcified so it will take some time for me to get completely straight (Dr estimated it could take up to a year). Luckily the curve is upward and my wife actually prefers a slight upward curvature so I will take it as it is.
My first bout of Peyronies Disease started with a downward curve and that is no fun so I empathize with you and am hoping for the best for you. From your picture it looks like you have already made tremendous progress with implant alone and I am sure with consistent inflation that curve will continue to improve over time. As others have said patience is the key.... although not easy. My dr did want me to model (bend and hold penis downward when inflated... upward for you) and that may be something to ask to see if Dr Fraser wants you to do that to help speed the curvature remodeling. It was suggested i hold the bend for 90 seconds several times while inflated. Please let me know what other questions you might have and best of luck!
Thanks for getting back to me, Curved. By the sounds of it you've been through hell as well! Delighted that you are making good progress like you describe. The bending your penis in the opposite direction of the curve while inflated is an interesting concept. Can't say I've never wondered about it and if your surgeon recommended it to improve your curvature then it makes sense to try it. 90 seconds you say? Might give that a gentle try.
I don't know if you've read my own journal at all but I've really turned a corner yesterday and today in terms of me being inflated for a long time with minimal pain. The ironic thing today is that whilst I was inflated for 4 hours this morning, I had little if any pain. In fact, the longer I stayed inflated, the less the pain got. Now, however, my penis is aching and I can't stand up for any length of time without lots of pain in the penis. It feels like it's going to explode! I wonder if that is simply a reaction to having a 4 hour erection - real or prosthetic?
Anyways, great to chat with you, Curved.
Take care and good luck,
Roddy
Roddy- 2 quick thoughts. First on the modeling. I do recommend as you mention to take it easy on the modeling. My Dr wanted me to be somewhat aggressive but without sign off from your doc I would take it slow and gently bend in opposite direction and see how it feels. In regards to the pain after the 4 hour inflation I too would have some aching after a particularly long inflation... for me the inflation time would have been 45 min or so. I would get used the continual stretch but after deflation did have an ache for a bit. Almost 3 months post surgery and I do not have that anymore although as I mentioned earlier a bit sore after intercourse but that goes away pretty quickly.
Also I read about your dent due to the collapsed graft. I had pretty extreme hourglassing/narrowing in my shaft due to the Peyronies Disease. While not back to normal the implant did help quite a bit will filling out that narrowing. I am not perfectly uniform in girth from base to glans but the implant and helped quit a bit so hopefully you will experience that as well.
All the best.
Roger all that.
Curved - to compare with you almost 12 weeks in, what is your daily routine in terms of inflating/deflating?
Hey Guys- hope everyone is doing as well as they can under their individual circumstances. Not much new to report. I am just past 12 weeks post implant and remain at 13.5 cm in length and approx 20 degree upwards. I originally thought that I would try and get that 20 degree bend to perfectly straight but am not really that worried about anymore. My wife insists she prefers it just the way it is. I know it will straighten out with more time but I am not as focused on getting in inflations 2x/day. Currently I try and stretch 1x day for 30 min but we are getting back to a much more normal (pre Peyronies Disease) sex routine so on days where we are having sex I don't worry about inflating.
Some others have said that at 3 months you don't notice that you have an implant. I am not sure I would go that far but I will say that I don't go every second of the day worried about my penis and sex, etc like I did prior to implant. I do occasionally worry about whether or not I am too noticeable with a penis that hangs at about 4 o'clock and seems to stick out a bit. I solve for this by wearing boxer briefs and keep my penis in the upright position. For me the upright position is just more comfortable that letting it hang down. The only time it becomes any issue is if I am wearing sweat pants with loose underwear so that it will hang at 4 o"clock and protrude a bit.
I am back to a normal daily routine (have been for several weeks) which includes hitting the gym and golf course and have no limitations in any activity. Life as it relates to my penis continues to get better. Two thoughts for others to consider:
1- I mentioned in an earlier post about some worry about awkwardness of pumping during foreplay and how it would take 15 pumps or so to get fully inflated. Follow Hawk's advice and simply pump a bit in the bathroom prior to going to bed (or wherever) and it only takes a few more pumps to "top off" and can do that very discreetly in just a few seconds during foreplay
2- I did not have ED prior to implant so I still have glans engorgement naturally post implant. I have started taking a generic viagra on days we have sex and have found that it greatly helps fullness of the shaft. I had significant distal narrowing from Peyronies Disease and the implant helped quite a bit but the viagra really helps round it out and gives it a fuller feel and apperance.
All I can say is that life is getting better and the painful (physical and more importantly psychological) Peyronies Disease days seem to be behind me. Best to all and I know I owe some pictures... everytime I tell my wife I need her to help with pictures I inflate and we end up getting side tracked!! Not a bad thing but I will follow through with that commitment.
Curved, great journal entry!!!!!!!
I can see that I will be right there at about 3 months too.
Same with the hang thing
Same with "a few pumps" prior to
Same with the routine
I still have little feeling on the underside of my shaft, but the sides top and end are working. Sometimes it requires just a little harder work on my end.
I am very happy for you and thanks so much for sharing.
I still have to post some after pics to in my journal, so perhaps your courage will give me the same.
By the way, interesting about the Viagra, I tried using one day, and it delayed my ejaculation too much, but I may try a lower dose sometime.
Looking forward to you staying in touch,
StepOne
Stepone-- thanks for the feedback. I too have some sensitivity on the underside .... close to wear the incision was. I think this will continue to get better as it is much less sensitive today than it was 2 months ago and 1 month ago. I generally feel it when puling up my underwear or pants and if the clothes rub against the sensitive area. Wonder if others have had that sensitivity as well and if it passed with time.
I had loss of sensitivity which continued to improve over 9 mos (but I also had excision and grafting). I love the part you went to take pics and got distracted!
Hi Curved. Thanks for posting your 12 week update. Delighted that your progress is as good as you report. I laughed at your comment about how you no longer think about your penis every moment of the day - at only 4 weeks in my thoughts never stray from my dick for more than 5 minutes. Good to know it becomes less of an issue as time passes.
I like that you're back having a normal life again. Getting to the gym and playing golf. How do you find your reservoir? Does it not feel as though it will burst or empty when you bend over or put any kind of pressure on it? Mine does - even tho I know it won't, I kinda feel that it could. Still just feels a bit alien but it's early days.
I only tried the viagra once, about 2 years ago, felt as tho my dick was gonna explode and would be a good feeling with a well shaped penis - just that mine was in some mess at the time. Like you, I'd like to try it again tho and see the effect it would have on my glans.
Great progress you and Stepone. And with both of you being 3 months in, you have a lot of similar experiences. Keep us all up to date please.
It is so nice to see you come back with a such a great update curved! Enjoy that toy as much as you can please! 8)
The support and encouragement on this board is tremendous....thanks to all for the positive feedback. Roddy- I have had zero issues with my reservoir while playing golf or any other physical activity. Early on (weeks 5-7 post implant) when I went to the gym I could feel the bulb in my scrotum when sitting down on certain exercises like a lat pulldown or seated incline press. I just took extra care, did not lift heavy and inched my way closer to the edge of the seat so as to not put too much pressure on the bulb while exercising. For the last couple of weeks I haven't even noticed the bulb or any other part of the implant when exercising except for the fact that my penis sticks out a bit more than before which, again, I solve for with compression type boxer briefs. Best to all