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Peyronies Disease TREATMENT Discussion Boards => Experience using Combination of Treatments => Topic started by: DonForGood on March 25, 2020, 04:20:19 AM

Title: Combination of Treatments: Verapamil/Traction/Xiaflex
Post by: DonForGood on March 25, 2020, 04:20:19 AM
Hello Friends,
I haven't been here in years because things have been much better for me in the Peyronies Disease department. Let me reintroduce myself:
I have suffered with and have been treated for Peyronie's Disease. It all began 11 years ago. I started out with a very distorted, pained penis. It started by bending to the right, then to the left, then upward, where it became an upside-down J, with a very strong constriction ring in the middle. All the while, it was shrinking and losing function. It was so depressing and terrible. I was treated early on mostly with Verapamil/saline injections and by using a penis stretcher, and some VED. That took about 18 months. I continued using a penis stretcher for many years. Then, beginning this past fall, I had 8 Xiaflex treatments. I had very positive responses to all of these treatments and my penis is truly almost its old self. However, my journey was very difficult, like most of you. The psychological component was simply horrendous. But I did pull through. (I wrote a book about the ordeal and that helped me and others.) I am posting a blog post here of my eleven years of treatment to encourage people to NOT GIVE UP! I did now want surgery, so I stayed the course. I know some men have no choice but to get surgery. But for me, the slow and steady treatments really did do the trick and I want to list the detailed treatment schedule here for the purpose of encouragement. Good luck to everyone. This is no fun. But as one of my doctors said, "No one ever died from Peyronie's disease!"  Keep living! Keep going! Yours, in admiration for persevering, Don Cummings.  <a href="http://opentrench.blogspot.com/2020/03/appendix-to-bent-but-not-broken.html">Eleven Year Treatment Schedule</a>
Title: Re: Combination of Treatments: Verapamil/Traction/Xiaflex
Post by: anchorout on March 31, 2020, 06:49:54 PM
Are you back to pre-Peyronie's condition, without any need to continue use of devices and/or other types of treatment?
Title: Re: Combination of Treatments: Verapamil/Traction/Xiaflex
Post by: TonySa on March 31, 2020, 07:25:03 PM
Sounds like an interesting book on the emotions of going through Peyronies Disease and it's treatment
Title: Re: Combination of Treatments: Verapamil/Traction/Xiaflex
Post by: BrettC on June 08, 2020, 07:26:24 PM
Thanks for dropping in Don.  I read your book.   

I am currently being treated by a doctor here in Houston who works at Baylor.  He did an interesting study that when they were doing the Xiaflex trial they found the placebo patients also saw improvements.  Apparently simply the action of the injections may break up the plaque a bit. 

Anyways... thanks for writing the book.  Sounded like you went through a lot in many ways from reading it.