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 on: Today at 03:58:57 PM 
Started by Anbil - Last post by Anbil
I progressed from 2 months ago from pain on the left shaft below the glans to noticeable narrowing/flattening of few mm measured this week.

It is also noticeable in my hand as much narrower than before.

Currently I'm waiting on a traction device that I ordered. I cannot use VED since it exacerbates Mondor's disease for me.

I am also on daily 5mg Cialis and 3 x pentoxy.

I'm wondering if theres anything else I can do. It seems it has progressed from pain and tenderness to current narrowing.

I can't really palate or feel any sort of "plaque".

Looking for advice from anyone who has been through this .

 on: Today at 03:55:29 PM 
Started by samsam - Last post by samsam
Indeed completely agree 20y and kobegianna.

Here it’s also about the sensation. The feeling of really being horny and wanting to have sex. That I miss. Knowing that you can have sex any time any place, that I miss.
If the spontaneous erections would have disappeared without anything I don’t think I would mind.

I know it’s not the place here but could VED help with the above?

 on: Today at 02:57:31 PM 
Started by Kobegianna - Last post by benraycamp0
I see. I would just contextualize that Dr. Trost's opinion is just one doctor's opinion. I'd also remember that Dr. Trost is a very evidence-based kind of doctor, in that he doesn't like to support treatments without very solid studies backing them up. Which is why his recommended treatment strategy is exclusively traction, Xiaflex, and surgery.

There isn't anything particularly wrong about that treatment strategy, in my opinion it is the one with the highest chance of improvement. In any Peyronies Disease case with any deformity, I think traction with Penimaster Pro or RestoreX serves as the best nonsurgical therapy we can do.

Some people have found success with VED and I do believe some doctors still recommend it as a treatment option. As a Peyronies Disease treatment, I just think we have limited evidence of VED being beneficial.
Definitely all Peyronies Disease specialists encourage traction so I'd recommend trying that if you haven't already!

 on: Today at 02:35:53 PM 
Started by samsam - Last post by Kobegianna
It’s the sense you are not whole. You had something that was perfectly fine and now you don’t. For those with severe curve they may look at your situation and wonder why you are complaining. But for you a change from normal is still change.

A completely bald man might question why someone with a slight receding hairline is complaing. But to the man with the receding hairline he is still losing something he had. So it is still devasting to him. They are both I still balding even though one person may be in a more advanced stage.

Just like with Peyronie’s. The fear is it may get worse.

 on: Today at 02:23:04 PM 
Started by samsam - Last post by 20yo
in my opinion a big thing is the loss of sensation.
I think i am not feeling as much pleasure as i used to, maybe due to erectyle dysfunction. Maybe it's psychological.
That plus uncertainty about the future messes up with you

 on: Today at 01:25:11 PM 
Started by Kobegianna - Last post by Kobegianna
The appointment I made I wasn’t really in a private setting and was a little embarrassed and scared that my friends would over hear. So I had to cut the appointment short. Also I wasn’t in the right state of mind. When he told me about ved and that it didn’t do much at that point I just became more depressed as it seemed like there’s no options. Just pretty much wait and see till it gets to the point of implants.

 on: Today at 01:23:45 PM 
Started by orriw - Last post by porterrobinson
i can recommend the uni klinik in freiburg, it should be near you. i have seen Dr Schlager. he is knowledgeable in peyronies disease and he was part of the xiaflex trials in germany have been conducted. so he has seen a bunch of peyronies disease.he offered constructive advice and prescribed a VED pump on insurance. probably the only doctor that took me seriously, did actual proper diagnosis and even offered a treatment plan. plus, it was easy to get appointments. second best i would say is the uni klinik in Gießen and you want to see Dr Diemer there.

in general i would highly avoid private practicioners like Dr Porst who is just a quack or the urology in cologne who will want to offer you shockwave therapy without any clinical evidence. they will tell you you need this to get better and its totally made up. but they have good online presence which is what gets them many young patients.

 on: Today at 12:33:27 PM 
Started by orriw - Last post by orriw
Best near Thuringen or Baden Würtemberg but anywhere in Germany is good

Where in Germany? Maybe i can help.

 on: Today at 12:23:40 PM 
Started by orriw - Last post by pauli
Where in Germany? Maybe i can help.

 on: Today at 12:08:04 PM 
Started by unfortunateanon - Last post by LWillisjr
This introductory topic is reaching the limit of 10 posts as an introductory topic. So will lock it now and feel free to start new topics in other areas of the forum

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