Hello Dave,

Welcome on the forum. Sorry to hear your problem.

I agree with what is said here on the topic.
- You need to do a full examination of your body. The problem can be Peyronies Disease alone. Or Peyronies Disease + another problem(s). And so on.
- What is your general health condition ? Weight ? Sport ? Food ? Stress ? Other medicines you take ?
- Of what I could read, your penis was straight when you were an adolescent and now curved ? How much curved ? If there are dents, hourglass, etc. it can avoid a good bloodflow.
- The psychological aspect of this disease takes a HUGE part. Everyone underestimates this. I'm in Peyronies Disease since 18 months and the psych aspect has taken more than 50% of the problem. I'm seeing a psychologist since december 2024 and it helped me a lot ! I encourage you to do this.
- Traction can help for correcting curvature. It helped me with 40° !!! (check out my pics on my journal topic under traction topic).
- VED can help also but be careful not to overpump.
- If nothing helps, before undergoing surgery, you could take the paths of alternative therapies ? For example the WHM (Wim Hof Method) which is basically breathing and cold exposure has helped me these last year in other life aspects. I'm sceptical about the guy himself (Wim Hof, I red his book), but I know the therapy cures diseases (I red many many testemonies of people curing their disease (many different ones)). There are also other alternative therapies.
- Last option, after chemical options, mecanical options and alternative therapies, is the surgery option.

Best of luck and keep us updated. DM me if I can help.

I'm curious if anyone has gone down the ETG (ExtraTunical Grafting) route and can share their experience. When searching the forum, it seems like a few have considered it but not many have tried. I have a few indentations but one main area on the right side mid-shaft. No symptoms of ED. Things seemed to stabilize after a year or so but have definitely gotten worse recently (6 years in)... not sure if it's reactivation of the disease or things just calcifying. Either way, what was once something I learned to accept is now a bit more than I'm comfortable leaving alone as is.

Any and all feedback is helpful and appreciated, but I'm primarily curious if anyone can share longer term outcomes. This is a relatively newer procedure so I know there probably isn't much that can be shared.

I'm also curious if there are top rated surgeons for this particular procedure - I believe I have seen Dr Christine and Lue mentioned on the forum, and have seen a video from Dr Ziegelmann with Mayo Clinic. ChatGPT seems to be under the impression this has been performed no more than 100 times, certainly not encouraging but this does seem to make the most sense with where I am at.

Thank you in advance for any feedback!!

Quote from: Ukguy1234 on Today at 12:14:55 AMIt sounds to me that your main issue is ED and your curvature is just congenital, nothing to do with peyronies.

No definitely not congenital. This happened somewhere in my teens. I remember I had done a rough masturbation session and started experience a lot of pain down there. I suspect that's when my issues started occurring though I can't remember when exactly. But I'm pretty damn sure this is due to my prone masturbation.

Quote from: tek on February 07, 2026, 06:04:14 PMscars didnt go away by stop using ?

The scar is still there. I asked Dr Trost on his question board and he doesn't even know about this.

However many others on here have had similar.

From my experience, sex and masturbating after getting the implant were mostly fine once the initial soreness went away. I waited a couple of days until the arm felt normal again, and after that there was no real issue—just some light tenderness at first. Hormone-wise, I did notice my libido changed a bit in the first month, but it settled down.

My advice is to listen to your body and don't rush it if your arm still hurts or feels bruised. Everyone reacts differently, so a short adjustment period is normal.

For some people, distractions like mobile porn games can help take the focus off anxiety around libido changes. It's just another way people explore arousal while their body adjusts.

Quote from: dave1211 on Yesterday at 11:39:41 PMThank you for your reply. Yes I know they are separate issues but regarding my phimosis that's the first thing most of the docs noticed when they examined me. Anyway I'm really glad I did it though.

Well I have a pretty significant curvature actually that's why I suspect I have peyronies. This is probably to over 20 years of very rough prone masturbation. I used to even masturbate on hard floors as a kid (dont ask my why i did it). In fact I used to have very strong erections as a teenage and I totally damaged it due to the proning.

Yes, I have gotten over the fear now of seeing a doctor. I'm just frustrated why my doctor didn't even bother to do a Doppler ultrasound for my issue and instead did it on my scrotum.

It sounds to me that your main issue is ED and your curvature is just congenital, nothing to do with peyronies.

Quote from: Pfract on Yesterday at 10:39:33 PMI would say that you stll have a fair amount of things you can try. The fact that you have erections even if mild is encouraging.

You can....

-try cialis with l-arginine
-try these two and use a constriction ring
-use a vacuum pump to achieve an erection first, then use a constriction ring, in conjunction with those two
-try cialis daily 2.5 with viagra 25mg and up the dosage from there

what you also need to do is try to find a sexual medicine specialist. But if you can't find one, there's several videos online that can help you better understand your condition.

Also, you need to understand why you have those symptoms. As in, having a full examination. Is it heart disease? venous leak? hormonal? Post finasteride syndrome? that will help you in chosing the treatment path.

And yes, the implant is there as a solution for you! Also, if you have the financial means, you can always travel abroad to get the care you need!

Thank you for your helpful reply Pfract. I shall try out the treatment methods you suggested. Only issue regarding the vacuum pump is I don't know if it's available here as I'm in a Muslim country. I had tried checking this out before too.

Thought it's not confirmed yet I'm almost certain this is due to a venous leak. One of my other docs said it as well but since he was in India I wasn't able to do a follow up test with him.

I also have severe numbness and no sensation at all. Not sure what is the reason for this but I guess it's due to the scar tissue blocking my nerves. It really feels like my dick is totally dead and without the 10g cialus I get O random erections. With the cialus it literally lasts for 2 seconds and goes down.

I have never had penetrative sex because of this issue and I'm getting frustrated. I'm also not sure if my insurance would cover my medical costs were I to do an implant in the US. I think there are implant surgeons in Dubai too but I feel it's too risky to do it with them.

Quote from: Mikel7 on Yesterday at 07:26:43 PMI'm sorry to hear about what you are going through. For your testosterone replacement I question if your Dr really knows how to treat your low T. I had to go through several Dr's before I found a knowledgeable one who knew just what tests to perform. It is not your total testosterone that should be looked at. It is the free testosterone that is the liquid gold. Also has your estrogen levels and prolactin checked as both of these will cause ED.

Seeking out a new Dr if you have to is not fun. Don't give up hope!! You will find a solution if you don't give up. Implants are successful if you can find a high volume surgeon.

Thank you for your encouragement Mike. Yeah, I guess I will have to see another doctor. This whole process already took 6-7 months. I definitely did notice some improvement with the TRT though but it gave me a lot of acne that was the only issue.

I'm totally worried at the moment I'm gonna turn 34 soon and see no solution in sight.

Quote from: Ukguy1234 on Yesterday at 05:53:26 PMI also had severe phimosis when I was younger and had to get a circumcision to fix it. I also had a varicocele that with operated on to reduce it. Neither of these things directly correlate to Peyronies. They are separate issues.

I notice you haven't mentioned any deformity, curvature, plaque, scar tissue, lumps or indentations...What makes you suspect you have peyronies specifically? Did your Urologist diagnose you?

With regards to your ED, I'm surprised that Cialis hasnt done anything for you. It might be useful to have a Penile Doppler Ultrasound, which analysis bloodflow and can identify any contributing structural issues.

As a final point, never be too ashamed to see a doctor. Its a mistake far too many men are still making and a stigma that had no place in the modern day.

Thank you for your reply. Yes I know they are separate issues but regarding my phimosis that's the first thing most of the docs noticed when they examined me. Anyway I'm really glad I did it though.

Well I have a pretty significant curvature actually that's why I suspect I have peyronies. This is probably to over 20 years of very rough prone masturbation. I used to even masturbate on hard floors as a kid (dont ask my why i did it). In fact I used to have very strong erections as a teenage and I totally damaged it due to the proning.

Yes, I have gotten over the fear now of seeing a doctor. I'm just frustrated why my doctor didn't even bother to do a Doppler ultrasound for my issue and instead did it on my scrotum.

Interesting. In Germany we only have 5mg pills and the pharmacy said I can't split them...

I would really like to test 2.5mg over some time.

I now paused Cialis two days. First night was amazing 9h sleep, second night back to waking up early 6h sleep and not refreshed, but I have young kids so I never know what was waking me up in the first place.

I have a GP and urologist visit coming up in March and will consult this topic. I hope I find a good balance here as without Cialis my morning wood is not really there and this feels like the most effective therapy for my Peyronies Disease.

Also I will now go back to taking it in the Morning starting today. I want to see if that improves feeling refreshed as the side effects should be strongest couple hours after taking it.