Peyronies Society Forums

Other Peyronies Disease Discussion Boards => Open Questions or General Comments (that won't fit under any other topics) => Topic started by: HARA on November 14, 2014, 02:05:49 PM

Title: How many people here are located in the UK?
Post by: HARA on November 14, 2014, 02:05:49 PM
I am interested in how many people are located in the UK?

And the real reason i am asking this question.

Is anyone interested in setting up a charity with me? I want to actually do something productive that will help us all.
Its very clear to me that regenerative medicine is the only real solution to end our suffering so generating money to funnel into
that has to be the main focus. 

Socially speaking talking about penis and penis problems is still a major taboo. It would be great to actually break down this barrier.
My guess is that there are many men out there suffering form all sorts of problems with their penis that do not go online and talk about it.

If a therapy hit the market that would solve these problems you can bet your bottom Dollar that all these men would suddenly come out of the
woodwork.



Title: Re: How many people here are located in the UK?
Post by: LWillisjr on November 14, 2014, 08:31:28 PM
If you got to the members listed you can see those who have registered with UK flags if that helps
Title: Re: How many people here are located in the UK?
Post by: welshwales on November 15, 2014, 02:49:54 PM
There are a few of us brits on here. Apparently in the UK (according to my specialist) the average man waits 4 years before going to the doc about their peyronie's. So yes, there is certainly a taboo regarding male genitalia (at least in the average male mind). Penis problems are often the butt of jokes, particularly prem-ej and Peyronies Disease. But if a woman finds a lump in her breast, she would be straight down to see a GP, without the associated embarrassment and humiliation when confiding in friends and loved ones. Things certainly need to change regarding equality, and it starts with the young. And things are changing, men under the age of 35 are much more likely to see a doctor about penis problems within weeks of symptom development (again I got that info off my specialist).
Title: Re: How many people here are located in the UK?
Post by: Kipper on November 17, 2014, 04:18:39 AM
Hi guys, I feel lucky in that I finally saw a locum doctor who referred me immediately to the urologist, who then referred me to Mr Ralph at UCHL. Finally had surgery last Friday 14th November and can honestly say I am already feeling so much more confident about the future.
Almost everybody through friends and family have been very positive as I have not kept it hidden and a secret, men need to know that Peyronies is not life threatening and something can be done about it.
I have a review this week so will be posting a full account of my experience as soon as I am fully back on my feet, but I've already had an urge for an erection so looking positive.
I did find it strange that even whilst in hospital, Peyronies wasn't mentioned other than by the surgical staff, the nursing staff I felt didn't understand the procedure I had gone through!
Title: Re: How many people here are located in the UK?
Post by: james1947 on December 01, 2014, 05:08:25 AM
Read LWillisjr answer:
Quote
If you got to the members listed you can see those who have registered with UK flags
It will take 30 minutes from your time

James