I just want to place this post here in case anyone else becomes interested in decentralized autonomous organizations for patient groups like people with Peyronie's. I keep thinking about ways that we could work together to advance research, treatments, awareness, organize resources etc.
These DAO's seem promising, although it's early days and a somewhat complicated concept. I'm not going to attempt to explain it all here but here are some starter links. If anyone else is thinking along these lines and finds this post via search, please leave a comment below. If enough people express interest maybe we get something rolling?
https://youtube.com/watch?v=SYPzqRaN4zA
https://kinjal.mirror.xyz/eD3-Sgv2h50j-kwjHQCOnwqMKqSLTfnrqrtNypU-P5k