Hello mates. Do your neighbours know about your disease? Do your colleagues know? What about the community around you?
Neighbours probably know by now because I get mentally insane and scream it lol. Also, the girl I been dating knows as well and she's been great to me, but I still feel lost. My best buddy and my family knows too. As bad as it has become I am almost at a point whrre I wanna scream it out and let everyone know cause I will become impotent anyway and wanna start not giving a fck.
I walk around with a sign that says "I have Peyronie's, what do you want to know" 😆. Now seriously, the people that know about are: my girlfriend, the "doctor" and the owner of the clinic where they gave me the Trimix shot that caused me the problem and the two "Peyronie experts" that did absolutely nothing to help.
My wife knows and I had a talk with my 23 year old son. He was thankful that I let him know.
My brothers know. My solicitor knows (long story). My partner knows. My mum has an inclin but I haven't told her. Bless her.
All my friends knows that, also because it was a really huge toll for me to take it, both for the young age and both for the coincidence of how it happened.
To be fair, i thought they would be more comprehensive. They knew i was in depression for 4 long years and that i started to feel great again exactly because I started to go out with really beatiful women.
So this problem was really like the worse thing it could ever happen in that period.
But they are not that much.
They kinda replied: "we all have problems" and that a lot of people have a curve cock.
So to be honest, i sometimes wish i never did it lol.
To be fair, it's something that you understand only when it happens to you.
Some girls or ex girlfriends knows that too; and to be fair, they are not that sensitive.
For example, my ex knows that, but she does not care that much; she literally said something like "Well it can be curved but at least you have not a small penis like my boyfriend" lol
Which is not the greatest thing to hear when you don't know if you can use it without break it again lol.
Just one of my friends agreed with me that "it's somehow worse than a cancer,at least with cancer you die or you overcome it, but eventually you will have a "solution" anyways".
Which is orrible to say, but at least i feel like someone understands me a bit more.
So idk, generally speaking, people will just say "if it's not mortal and you can have some sort of sex, why blaming"
Which is kinda true in some sense...
I tried to tell them that this disease usually happens to 50yo man with family etc, and there are almost a 60% ratio of depression about that anyways. So i thought that they would imagine how diffucult it could be to me at 25 yo, caused after finally having sex with your crush, after 4 years on not having sex....
But they just don't.
To be fair the only thing they say is something like "it's 2023 there will be a cure" and it's pretty hard to explain to them that there is not lol because they think i am overreacting also on that.
So yeah, idk guys
I often feel my generation is really really selfish, so they just don't care that much: at the end of the day, the problem is yours, and they will compare it to theirs "big problem"; to be fair, I have to hear them saying things like "i'm depressed too because I do i job i don't like".
And when I try to say that this problem is a bit more "complex" them theirs, they just go with something like "all the problems are the same you are not that special"
So to be fair idk, it' something really personal that people will just not understand that much nor care that much
Three of my friends know. Two are freaked out and really don't wanna talk about it. The other wants to know everything and once in a while does his own research. He's been there with me almost through this whole thing. I say almost because I didn't tell anyone the first two months or so. I give him updates all the time.
For me, certain things feel good to get off my chest to family/friend. This is not one of them. Personally I would not benefit or get any sense of relief telling this to anyone in person. This is why I joined this forum. Here I can interact and learn from other men with the disease. I generally feel like there is much more sympathy, support and understanding towards one and other on here because others who have it know the struggle.
I think I would be much worse off mentally without this forum.
Quote from: Sonic on March 29, 2023, 08:55:39 AMFor me, certain things feel good to get off my chest to family/friend. This is not one of them. Personally I would not benefit or get any sense of relief telling this to anyone in person. This is why I joined this forum. Here I can interact and learn from other men with the disease. I generally feel like there is much more sympathy, support and understanding towards one and other on here because others who have it know the struggle.
I think I would be much worse off mentally without this forum.
I agree with Sonic. This forum helped me in more ways than one. Can't imagine living with Peyronies Disease without it.