Peyronies Society Forums

Please login or register.

Login with username, password and session length
Pages: [1] 2 3 ... 10
 1 
 on: Yesterday at 11:56:58 PM 
Started by Bud luck - Last post by GaussRifle
Torsten, pthis is nit the graft you are thinking about. We are talking about extra tunical grafting, not plaque infusion/excision grafting. This procedure doesn’t cause Erectile Dysfunction at all because your existing tunica is not touched at all. They just add the layer on top of the defect to thicken it up,this incorporates with your natural tunica over time and gives you more stability. This is Avery recent procedure that began being used first in 2018 and it has been catching on since, due to not effecting erection quality at all.

 2 
 on: Yesterday at 11:40:33 PM 
Started by Bud luck - Last post by Torsten64
Budluck, did they tell you in the US you’d risk 40% Erectile Dysfunction with tunica grafting, like with me? I would have had the surgery if there were no Erectile Dysfunction risk. But, when I was 56 (a lot older than you) Dr Lue never mentioned it. I wish I had had the surgery then, that was dumb of me. Now I’m too old without the Erectile Dysfunction risk, and I sure don’t want that. I’d look into that tunica grafting if I were your age. I wish you all the best my friend. Let us know what you decide. I personally would not have an implant. But, that’s just me. Others are certainly entitled to disagree and I respect that. But not for this man. No thanks to an implant.

 3 
 on: Yesterday at 10:00:01 PM 
Started by Bud luck - Last post by Bud luck
Well, here in the US the treatments are the same as in Europe. For my hourglass shape the only treatment is surgery: implant or Extra Tunical Grafting.

 4 
 on: Yesterday at 09:08:50 PM 
Started by Bud luck - Last post by Torsten64
And you know, I wanted to say one thing. This disease is a bugaboo to treat. It’s extremely difficult! All we have is surgery or Xiaflex with Traktion. All the urologists say they have either little experience with it or it’s hard to treat, like the German urologists have told me. Well thanks a lot. Only in the US do few doctors care enough to do anything about it. That annoying.

 5 
 on: Yesterday at 09:00:21 PM 
Started by Bud luck - Last post by Torsten64
Gaussrifle and westerntown, oh I agree with you dudes totally. And you both are young guys. I got Peyroines around the median age, which is 55 (I got this crappy disease at 56- what luck. And my dad had it but I had no idea till my mom told me his was like a banana later in life, but he wasn’t the kind to care).

Not having sex again is scary. Yes. Totally agree, but what if you’re like me and have no Erectile Dysfunction and just are just messed up and have a shrunken down penis! That’s a bummer. They tell me my length is „average“ but that’s no solace since I was used to a heck of a lot bigger and straight as an arrow penis too. Now I have this mess to deal with. I really sympathize with you younger guys because when I was your age I had never heard of Peyroines. No problems at all till 56. But, now everyone’s attitude is „Well, your 63, so what do you care?“ Well, I care a lot! Even at 63, it’s not like „game over for you pal. You’ve had your kids.“ Huh? Yeah, my sons are 27 and daughter 31, but what’s that got to do with anything. I’m not dead yet!

I just can’t do the implant deal. It’s like a one way street. And with good erectile function, all I have left is Xiaflex. Hope that works and I have to fly to the States for that and it costs a ton. (So do implants).  8)

 6 
 on: Yesterday at 08:43:23 PM 
Started by Days_For_Hope - Last post by Bud luck
Do you have a curve/dent/hourglass shape, or is just pain?

 7 
 on: Yesterday at 08:39:28 PM 
Started by LightAtTheEndOfTheTunnel - Last post by Bud luck
JB999, if you feel the tubing, would the partner feel it also?.

 8 
 on: Yesterday at 08:32:12 PM 
Started by LightAtTheEndOfTheTunnel - Last post by JB999
Agree with Rake on both points.  We all heal at our own paces, so unless you think something does need immediate attention, let yourself heal and then you can make the best decision.  FYI, for me, 3 months post surgery, I can feel the tubing on my left side.  It’s not prominent, but if I feel/press, I can feel them, more on the groin area.  Seems normal to me.  Took weeks before I felt this, not until swelling finally went down

 9 
 on: Yesterday at 08:13:43 PM 
Started by Days_For_Hope - Last post by Days_For_Hope
It’s true that I don’t have confirmed peyronies. It’s true that I created this injury. I’m just looking for people who have had a similar situation to me to see what worked for them to heal. I am certainly no longer “jelquing”  I just need guidance and support, just like others on this forum.

Thank you for reading.

 10 
 on: Yesterday at 07:01:58 PM 
Started by westerntown - Last post by westerntown
Before I got penile deformity- before the pandemic when gysm were opened- I was in the gym 4 hours a day 6 days of the week. It was a natrual dopamine boost and loved it there.

Well ever since the pandemic and the gyms closing, I havent been able to get back on the wagon. When the gyms first opened, I went everyday straight for a cool 90 days. However, everytime I would go to the restroom I would notice a profound worsening in the pronouncement of my flaccid hourglass. It was disgusting! SO i stopped working out.

I want to get back into working out as Ive gained quite a bit of weight eating my hear out, however I just feel like I am making my Peyronies Disease situation worse when i do. This is quite the conundrum for a 20 year old boy like. My roomate works out quite a bunch and he takes collagen peptides. We were talking abut experimenting with HGH even..

I am scared to eat more collagen or take hgh because I feel like its going to further my fibrosis but honestly as it stands already, my hourglass and Erectile Dysfunction are already severe enough to the point where I am honestly ready to not care and just go for it.

The reason I think I would need collagen is because I was on pentox for quite a while and I feel like it made my body weaker. I found my knees and shoulders and back were much weaker when on pentox and cialis and those were one of the reasons i quit working out. Well, I recently quit cialis and pentox as i felt it wasnt helping my penis but rather just exhausting the vessels and tissue in with a constant low flow priapism.

in short, I want to work out but that requires potentially worsening my Peyronies Disease, which is suboptimal.

I want peoples opinions on what they think my best course of action would be

Pages: [1] 2 3 ... 10