Peyronies Society Forums

Read This First => Introduce Yourself => Topic started by: picknick99 on April 30, 2014, 05:25:03 AM

Title: newspaper article query
Post by: picknick99 on April 30, 2014, 05:25:03 AM
Hello

I am writing a piece for the Daily Mail about Peyronies and the long wait for a non surgical treatment - i.e Xiapex - here in the UK. I gather it is already in use as a treatment for Dupuytrens, but still have some way to go before its use for Peyronies.

Would anyone have some comments I can use in my piece about this long long wait that British suffers have had? I wonder if the change from Pfizer to Sobi has set things back and people you feel about that.

PS. I tried to use the contact info [email protected] - but it doesn't work!
Title: Re: newspaper article query
Post by: james1947 on April 30, 2014, 06:47:05 AM
picknick99

Did you mean Xiaflex or Xiapex is a new treatment?

James
Title: Re: newspaper article query
Post by: Chef Chris on April 30, 2014, 01:11:06 PM
James Xiaflex is caled Xiapex in Europe
Title: Re: newspaper article query
Post by: nemo on April 30, 2014, 01:52:47 PM
Here's a quote you can use. 

"One of the most frustrating aspects of suffering Peyronie's Disease is the sense that nothing is being done to find a cure; treatment has remained basically the same for the last half century or more, and primarily centers around 'hoping' the body will fix itself to some degree. Very little research money or scientific talent is afforded this condition which affects comparatively few men. But to those it affects, it can be profoundly life-changing. So to have a viable treatment available, but just out of reach is especially frustrating."
Title: Re: newspaper article query
Post by: james1947 on April 30, 2014, 06:31:50 PM
Thanks Chris for the information.
It is not approved yet in Europe to treat Peyronies?
The trials were made in the UK also.

James
Title: Re: newspaper article query
Post by: Chef Chris on May 04, 2014, 06:05:27 PM
No James it will be available in Sweden earliest in the spring of 2015 according to a urologist here that was a part of the face 3 trails