My appointment with the Urologist has been moved forward. Consequently i have taken some new phitos to show him.
I can see fhat since the start of January, after constant VED use and more Recently 6 weeks of restorex, nothing has changed. If he says that enough time has passed and he can operate then I think that I shall pursue that option.
I dont think that i can do this another 4 or 5 monrhs. It is all consuming and I want my life back. The only thing is that with a 60 or 70 degree bend at the end, I stand to lose significant length from a nesbit or face the risks that come with an incision.
Anyway, i shall see what be thinks. Maybe it won't be all doom and gloom but I don't feel very hopeful to be honest.
If you do move forward with surgery, be sure to spend the resources to go to the best surgeon(s). It's worth eliminating any risks of inexperience that causes unwanted issues.
Thanks Richard,
Although I am using the NHS (free (sort of) state owned health service), the Uro in question is considered to be one of the very best in the UK. He also does a lot of private work as well. He has had his detractors on this site, it's true but he has been at the top for some decades and I suppose there will always some instances where things don't always turn out as planned. i just hope that won't be me if I go down that path.
Quote from: Muttley on April 28, 2022, 09:31:46 AM
Thanks Richard,
Although I am using the NHS (free (sort of) state owned health service), the Uro in question is considered to be one of the very best in the UK. He also does a lot of private work as well. He has had his detractors on this site, it's true but he has been at the top for some decades and I suppose there will always some instances where things don't always turn out as planned. i just hope that won't be me if I go down that path.
Hi, we're in very similar situations, I'm also in the UK with a bend around 60-70 and considering surgery but also concerned about length loss or ED/sensation loss that could come with incision and grafting. Who is your urologist/surgeon? I've been referred to Dr Rowland Rees who has received some criticism here but seemed OK to me when I met with him. Impossible to tell really and you can't choose on the NHS (or if you can the choice is very limited). Feel free to pm if you prefer.
Hi MAM,
I did send you a PM a few days about this. I am not sure if you have checked your inbox.
I saw Prof. Ralph today. I am now in the queue for a Nesbit. I asked my GP to refer to Prof. Ralph and it seemed to work. Maybe you can do the same. I must say that I feel very confident about the future and being free from this miserable affliction in the not too distant future. I am also relieved not to be looking at any incision or excision procedure as well. I did not expect to be able to have the Nesbit with a 70 degree bend. Happy days!
Cheers!
Hi Muttley, thanks for the message, I hadn't checked my mailbox for a while. When is your surgery scheduled for? What did Prof Ralph say about length loss and other possible complications, and why did he go with the Nesbit procedure rather than grafting in your case? Will he use the degloving procedure or the lateral incisions (which is thought to have lesser risk of sensory loss)? Dr Rees does about 10 plications a year and the same number of grafting procedures, I imagine that's similar to Prof Ralph but beyond that I can't tell who is more likely to do a better job.
Muttley me personally I would go for an implant if I were in your shoes. With such severe curve an implant would help straighten it and may even help get size back. At your age you will likely at most need 2 revisions
Thanks for the advice CurveKiller. However, the suggestion of an implant did not arise at any time during my appointment. The Urologist whom I saw is generally considered to be the best in the country here in England and so I would have thought that he would have suggested it had he thought it would be either the optimal approach or an alternative.
I do understand why you are suggesting it and, to be quite frank, I was quite prepared to be told that it would be my best option. However, much to my surprise, the Nesbit was offered along with the alternative of incision and grafting.
I can certainly ask the question next time I speak to him. However, I tend to be of the mind that he is the expert and the top choice for many people with Peyronies Disease here in England (and possibly further abroad, I dare say). As such , his professional opinion is what guides me. That is not to say that I accept what anybody tells me willy-nilly; of course not. But at the end of the appointment I felt that both he and I were well enough informed and that I could trust his opinion.
Hi Muttley,
Curious about what Prof Ralph told you and what made him suggest the Nesbit procedure given your curvature. Does he do the normal degloving procedure or the lateral incision type, which is supposed to reeduce the risk of sensory loss?
Hi MAM,
The Nesbit is possible owing to the fact that nearly all the loss of length has taken place already as a result of Peyronies Disease. In addition, "His majesty" is still on the long side. Consequently, the additional loss of length would small and would be tolerable.
I did not ask about the specific re degloving. I can ask him at the next appointment. I am not sure when you ask about incision whether you still refer to the Nesbit? He did say that all "the work" would be on the underside thus avoiding the area where the nerves are concentrated. Maybe that answers the question?
I would at least ask him what he thinks of an implant for you. The problem I had with other surgeries not saying they don't work but there is a pretty high reoccurrence rate meaning curvature comes back. I would hate to get surgery to not have a "permanent fix" even if you need revisions you know you will be able to preform and cover Ayyee won't come back.
That is just my opinion please talk to docs about it I'm not a doc