Peyronies Society Forums

Read This First => Introduce Yourself => Topic started by: jibalaomak on January 20, 2022, 09:54:22 PM

Title: Hi All
Post by: jibalaomak on January 20, 2022, 09:54:22 PM
Hello there all,

Just wanted to welcome myself here.
I’m a 30 year old male, from Brisbane that have been dealing with devil this on/off for 4 years now.

I was diagnosed around January of 2018 and have since been progressively getting worse.
My curvature stands at around 15-20 degrees, with some level of torsion to the left.

The worst part about this is the pain - chronic full aching pain that persists, hard, flaccid, doesn’t matter.
I’ve seen numerous urologists, but they all have had differing Oooo ions and strategies to deal with this. I’ve also purchased a few traction devices, but they hurt when I use them and I feel they worsen my symptoms and the progression of the disease - so I’ve avoided touching my penis altogether.

I’ve tried numerous antioxidants, and supplements to no avail - these include - dopa mucuna, alcar, paba, pentoxifylline, alpha lipoic acid, coq10, curcumin and vitamin E (mixed tocophérols).
I have also been on and off corticosteroids, which used to help earlier in the disease, but do not any more. I suffer from UC and have been out on both adalimumab and golimumab (at varying stages) and although these help with my colitis, they do not with the peyronies.

After desperation I had a urologist suggest colchicine, and started this a couple of days ago.
I’m really lost and single and can see my dick whittle away, day by day - and this has affected my ability to find the courage to date.
I need some serious help and can use all the advice I can get.

Cheers
Title: Re: Hi All
Post by: letzgo on January 20, 2022, 10:10:01 PM
Hello Jibalaomak,

Welcome to the site!

Is your pain during erect or flaccid and is it at a specific spot or all over your penis?