I met with doctor eid today to discuss an implant.
1. My main two concerns were will this help with Peyronies pain?
And
2. Is there a reason I shouldn't get this done at a young age?
1. To my surprise he said that he doesn't know why, but the I'm Pam that tends to rid the patient of Peyronies pain and flair ups. He doesn't know how it is connected but he thinks it somehow reduces inflammation.
2. He didn't see my age as being a problem or a significant risk by any means and told me he has patients that are 17 who have an implant. He also is going to get me set up with young patients who have already been implanted so I can talk with them on a phone call ask whatever questions I can come up with etc.
I've now been to two peyronies specialists my preferred was eid because he gave me options and really listened to what I had to say. He also didn't jump right to implant initially he thought maybe a different surgery. But after more discussion he decided Implant is probably the way to go for me. He also said that my symptoms are a bit unusual as well as where my penis has plaque. Very close to the base on the underside. Because it is so close to the base the dent might be resolved, but he doesn't know for sure. But said stability will be restored
I found that interesting because when I asked another top doc doctor Trost, just as known if not more known for Peyronies said that :
"
Question - If pain persists would are there any surgery's that address pain such as implant?
Response - No, in general, surgery is rarely undertaken to fix pain. In most cases where that is done, it either won't improve the pain, or it can actually make symptoms worse. Implants are typically only done in cases where men have Erectile Dysfunction which is not responsive to PDE5 inhibitors and/or intracavernosal injection therapies. Implants are great surgeries, but they are not cure-alls, and when patients seek them for the wrong indications, they often are very dissatisfied long-term.
"
It just goes to show you how people's opinions differ because there really isnt that much known. But it makes it hard for the patient. Part of this is that each patient has different needs and wants so there isn't a standard as everyone is different.
doc A says X doc B says Y hopefully doc C says Y not Z or A
I am proud of you curvekiller. You are taking the necessary steps and asking the right people the right questions and doing your research, instead of whining and not taking any action like many of us.
Thank you, I appreciate that man! I do my fair share of whining you've seen some of my posts lol. I'm Seeing what is available asking a few different of the best people I possibly can speak with(I don't care if I have to work for it as long as there is at least some light at the end of the tunnel). Then I post my info from what I hear in hope that people will be able to piece things together if they have the same problem. Maybe skip a few steps by reading a post instead of going through it themselves.
Between all of us, we might not be able to find a cure soon, but we can probably find better routes to take. Especially for young people. I'm not saying it's not saying it's not bad if you're older. I'm just saying there is little guidelines for young patients it seems
are you doing traction? are you experiencing ED?
I'm not doing traction, I used to but it was making things even more painful. I do have mild Ed. The more concerning part is the instibaloty. I feel that I will definitely break my penis if the wrong move is made. I feel like a surgeon when trying to have sex lol
Instability is a bitch. You need to be very cautious when having sex or you can hurt yourself more.
I'm glad you are talking to great professionals and getting good opinions about what can be done.
Yeah for sure. I'm super careful and rarely have sex because of it.
Thanks man - you were the pioneer implant patient for the young people on the peyronie forums. You were the one who gave me the idea that it might not be such a bad idea after all just to looking into the implant.
I'm still on the fence, but recently I talked to my dad about it and he thinks I should most likely just do it. My dad is a retired foot and ankle surgeon and has had many different health problems. One of which was sarcoidosis which caused severe scarring in his lungs. Luckily he is fairly healthy these days. However, we have many different autoimmune disorders and he thinks because the scarring happened to me at a young age, he agreed with what doctor Trost said. He said I've thinks the other surgeries because they have curve and scar tissue reccurance rates that I would probably be better suited with an implant.
But I trust his opinion if he thinks I should get it and eid thinks it's a good fix, in another year or so if I am still having problems I will sign myself up. No reason in waiting. I need to figure out insurance first, but shouldn't be too hard.
Great job talking to Dr. Eid. If anything, his confidence puts us at ease :)
The reason why your pain may ease is because your penis will be stretched out indefinitely with an implant (at least with a Titan). The reason why it may not is because the tissue that is damaged is not replaced. Therefore its a crap shoot whether your pain will subside. But pain also means you're still most likely in the chronic phase. So please give VED a shot for 3 months. I've gained better stability from it. Maybe not enough for some amazing cow girl/boy (sigh), but enough where I question now whether I will get an implant (at least put it off for a bit longer).
Re your pain: Do you notice that your pain feels more distributed when your penis is stretched out? Before jumping into an implant, I would try to see if you can find a way to ease your pain. The implant is going to help with having a firm erection, that's about it. There may be auxiliary effects that in turn fix other issues, but once you're implanted your tissue may be more or less stuck in that state (good if your situation is getting worse, bad if you want to make some improvements before).
Anyways if you're going to get implanted you need to do VED before for 3 months (helps reduce chances of infection) so get on VED! And get on some cialis!
I had a bad experience with VED and I would not like to do that again. I have waited a year since onset. I will wait about her 8-12 months before surgery. Pain goes away if I do absolutely nothing no erections, no stimulation, but comes back with sex and prolonged sitting. The implant is to fix the instability, hour glassing, mild ed, and curve. I was just hoping it would cancel out pain too hopefully. Thank you for your responses!
It must be a great relief just to know that if you want the implant option, it is available for you.
In my view the greatest advantage has to be getting one's mind free from the shackles of Peyronies Disease. The idea of waking up one morning and not thinking about it... ...unbelievable.
I know the conventional route is to try other graft or plication procedures that may correct the shape somewhat but will not stop Peyronies Disease, and then, wait for the onset of ED to be considered for an implant. If that journey takes 10 years it may save you a revision(or not) but how much can one sacrifice in physical and mental wellbeing during those 10 years? Specially when you are young.
It is a nuclear option but perhaps the one that wins the war. I'm new to this and may be putting excessive optimism on the outcome of implantation but that's how I see it.
I'm glad that's what you took away from my post that's why I posted it. Of course it isn't the best option, but it is an option and I think for most younger patients it should probably be offered given they have to live an entire life time dealing with these uncertainties as well as the uncertainties of life itself.
It is one thing living in pain but living and pain and uncertainty is very hard and this was an attempt to take some of that uncertainty away from people.
I'm in a situation at school that is very challenging. I'm in my last semester of the electrical engineering technician program I've completed calc physics 1 and 2, calculus 1 and 2, complex circuit courses ac, dc, electronic circuits, digital for circuits, I could go on and on. But recently the school switched all of our classes from 16 weeks to 8 weeks and there is no way to transfer out early unless you finish your assositates from this school then it is a nationally accredited degree. But in order to do so I need to pass an 8 week calc 3 no graphing calculators, notes, and no toned down subject matter, not even a homework grade. There are no full lectures for class, there are no instructors in the math center that know this level of math, I am left to learn it on my own and in 8 weeks when I'm in the middle of several different health problems. 2 being peyronies and ED. This alone would be enough to stress anyone out without any health problems.
It has helped me to know that If things don't go my with with my disease I can just get a surgery and never worry again about it until another 10-15 years. There are pornstars with penile implants so they must work great. One of them is Roman Nomar. Again not advocating for them but I'm saying it is an actual option opposed to the world of maybes.
I would trust Dr. Eid's opinion about the implant reducing pain and inflammation, given that he's done such a large number of them and has such a high patient satisfaction. I feel that it's the best option for you so you don't have to stress anymore about Peyronie's disease. The only thing you'd have to worry about is getting a revision later. But at least you'll have 10-15 years, perhaps more, of worry free sex.
Yup that is pretty much where I am at. I am just covering all my bases and giving it a bit of time to see if anything chances. Chances are I'm getting the implant at this post in my life
Curvekiller from your posts you have done your homework. I believe Dr Eid is the only Dr I would let operate on me and put in an implant. When the time is right for you - you will know it. I'm going to sound like a dad now. You should put your energies into your schooling and focus on your education. You have a good grasp on your peyronies and you know as such. Your career and what you enjoy at making a living at helps your self esteem tremendously whether you believe me or not. When you are done with your education and start actually doing what you've studied for life will change for the better. Things will smooth out. This time in your life is not forever - it is a time for doing something difficult now to obtain something you'll enjoy later. :) Mikel7
CurveKiller94 did you follow up with Dr.Eid, I thought he was going to give you contact details of some younger men so you could talk to them and what they felt about their implants at this age. Thanks.
I reached out to one young patient and didn't hear back I was waiting for my schedule to free up I was in a really hard condensed calculus 3&4 class and working so I didn't have any time until recently. But work has been very very busy I I worked until 3am last week week and was back in the office at 7 am. That's the problem with a small company if you don't do it who will lol?
But I'm planning on looking into it now that I have the time not in a huge rush as he doesn't do surgery until 18 months after onset of peyronies. So I'll continue to update as I hear more.
There are young patients with implants that post to FT they have some interesting threads there for younger patients dr. Eid pointed me in that direction during the appointment
Ok, thanks. Keep us updated.
Thanks for all your posts.
I'm particularly interested to know if an implant would relieve the chronic pain some, including me, experience with peyronie's.
I am sure having the penis stretched out would stop the rubbing on underwear etc that seems to trigger tingling/burning. But I'm not sure it would help with the dull ache.
How many people have excision and grafting to remove any plaque before or at the same time as an implant?
Excision and grafting greatly complicate implant surgery and healing time. Some surgeons do it, but to me, the question is not can it be done. The question is should it be done and can it be avoided. I would much rather a surgeon tell me he can get me at least functionally straight with an implant alone than for him to tell me he is very good at excision and grafting along with implants.
It is much better to start with the outcome in mind (a functionally straight penis, reliable erections, some regain of length) and then let the surgeon tell you if and how he can get you there rather than telling the surgeon what kind of surgery you want.
Getting a little frustrated so far none of the young patients I've texted have responded so I'm texting the redst of the young patient list today. I wonder why no one replies. All I am saying is that I'm a patient of doctor eids and I'm asking if they have time to text or talk about a few questions. And no replies yet . With full time work I might be taking over to be an engineer soon and school on top of that is insane a bit annoying when I'm already on a time crunch and people don't reply at all
Is this list given by Dr. Eid ? I'm surprised he keeps a list of patients who don't respond if they've volunteered to be contacted.
The list is provided by eid. I finally got a reply today the patient had all great things to say literally no negatives and said it was the best thing he ever done much like how you read on the journals
How old is he and for how many years has he had the implant ?
I had pain in my peyronies plaque before the implant surgery.
Now I do not. Not sure why, but all is well (relatively speaking).
@gaus I didn't ask specific age but he is definitely under 40 and has had it for 8 years. He said he hasn't been easy on it what so ever and it's the best thing he has done for his confidence and himself. He didn't have peyronies just ed. i will be texting people on the peyornies list too I wanted to see what young people thought of it.
Ok, thanks... good to hear positive feedback. keep us posted.
I am seriously considering this now. I inquired previously with other uros even a implant specialist here in Montreal. They all told me it would be the biggest mistake of my life, so I opted to do xiaflex which cost me another inch and more curve plus $12000 of my own money. So here I am, I am just hoping an implant can resolve this pain and give me back some more size. It has shrunken incredibly since xiaflex and it's shocking everyday to look at, literally approaching micro. Unbelievable how they tell me it's the worst mistake of my life and give me another choice that infact was the worst mistake of my life.
If you were on Xiaflex without using a traction device like restore x with it daily, I absolutely believe you if you lost size, I shrunk too after Xiaflex for a week but I was doing restore x everyday , so it was continuously remodeling scar tissue , therefore the scar tissue from injections dint cause much permanent length loss thanks to restore X, but I still lost about a quarter of an inch.
I had a hematoma and the pain was too great, even light manual stretching was causing so much pain and the doctor told me to stop if I have pain. How could I use restorex felt like would have given me a fracture.
It's not your fault, I had a small hematoma too after round 2 , for which I did not stretch at all for a couple of days and I think that's when I lost the 0.25 inches. So, it's not your fault at all, I get it completely. We'll get through this , come what may