Peyronies Society Forums

Other Peyronies Disease Discussion Boards => Psychological Component - Coping with Peyronies Disease => Topic started by: GS on February 28, 2011, 11:07:43 AM

Title: Where would we be without this forum?
Post by: GS on February 28, 2011, 11:07:43 AM
Gentlemen,

Until I found this website and the forum, I was lost, scared and totally vulnerable to all the websites selling who knows what for Peyronies.  With the help of our members, I don't even look at all the junk being sold on line anymore.  Who knows how much money and time I have saved.

We don't have a cure yet, but we have things we can do to help ourselves and we have a wealth of information on what works and what doesn't work.  The "what doesn't work and could be harmful" is probably as, or even more, important to us in the long run.

So, I just wanted to say "thanks for being there" to the people that started this website and to all the people that continue to try to help the rest of us.

GS
Title: Re: Where would we be without this forum?
Post by: newguy on February 28, 2011, 12:01:08 PM
It's a godsend really. A little while back I typed peyronie's disease into facebook, which has pages and groups for just about everything. Over 40% of the US population has a facebok account. 600 million users worldwide. The biggest peyronie's disease group I could find had less than 30 members. People just don't speak up publicly, so without this forum there would be nowhere to relate to others in the same position, share knowledge, and seek support.
Title: Re: Where would we be without this forum?
Post by: Worried Guy on February 28, 2011, 12:36:19 PM
I second that.  I really hate my job at the moment as the company is struggling and I've been going nowhere fast for a few years.  There are no other jobs out there so I was feeling pretty down anyway.  Then the peyronies disease came along and I thought my life was over. My Uro told me to go home and come back if my curvature got so bad I could not have sex!!!  He told me that if I had to have an operation my penis would be tiny and would look horrible!!!  Those were his exact words! You can imagine how I felt after that appointment.  He did say that only 5% of the people he has ever seen have had to be operated on and it was unlikely I would be one of them.  However, he does not know how my condition is going to progress.  I want to say thanks to the people who have already given me advise and hope in the last few weeks.  You have already been 1000 times more helpful than the medical professionals i've seen so far.
Title: Re: Where would we be without this forum?
Post by: chefcasey on February 28, 2011, 12:38:30 PM
Kudos to that.  Before finding this forum, I was actually about to dump $600 on one of those bs "packages" from Herazy at the Peyronies Disease institute (an institute with only one researcher....him lol)
Title: Re: Where would we be without this forum?
Post by: Worried Guy on February 28, 2011, 12:43:49 PM
And I was going to purchase Serracor-NK and a manual stretching video!!!  An amazing product which can dissolve scar tissue in only 3 months!!! Jesus I think we would all be taking that. 
Title: Re: Where would we be without this forum?
Post by: newguy on February 28, 2011, 12:59:58 PM
And I was going to purchase Serracor-NK and a manual stretching video!!!  An amazing product which can dissolve scar tissue in only 3 months!!! Jesus I think we would all be taking that. 

I do occasional manual stretching, but in such a basic way that if someone put it on a video, it would be about 30 seconds long! All of the herbal products on offer are rip-offs and seem to have the same ingredients in no matters what they're aimed at curing.
Title: Re: Where would we be without this forum?
Post by: henny on April 06, 2021, 09:53:17 PM
It's a godsend really. A little while back I typed peyronie's disease into facebook, which has pages and groups for just about everything. Over 40% of the US population has a facebok account. 600 million users worldwide. The biggest peyronie's disease group I could find had less than 30 members. People just don't speak up publicly, so without this forum there would be nowhere to relate to others in the same position, share knowledge, and seek support.

This forum will be godsend to those who are in need of your support and this will spread awareness of this content. This will be able people to feel that they're not alone in this battle. Thank you for this.
Title: Re: Where would we be without this forum?
Post by: Mikel7 on April 07, 2021, 06:18:21 AM
It is very true that peyronies has been a disease that hasn't received any attention in the medical community. This is probably because of the shame and embarrassment accompanying it. This forum is actually a miracle.

 Of all of the crap on the internet - and there is a lot. This forum is a beacon of hope and everyone here should thank its creator Hawk and all of his moderators .  A lot of time and effort goes into maintaining a forum on the internet. Reading, moving, deleting posts, and warning members about their posts is a very daunting task. It probably takes about 8 to 16 hours a day to run this forum. You couldn't even put a price tag on the wealth of knowledge contained within.

 So we should give the thanks and appreciation to its originator;  Thank you Hawk!  For the rest of us members we also have our role here.  Our posts give  direction and hope to others in trying to beat this dreadful disease that the medical community has ignored for years. There is no other forum like this one.
Title: Re: Where would we be without this forum?
Post by: Hawk on April 07, 2021, 11:28:26 PM
As I sit here drowsy, and ready to crash.  I am grateful as I come to my last post to see this topic and the comments.

I want to echo "Our posts give direction and hope to others in trying to beat this dreadful disease that the medical community has ignored for years. There is no other forum like this one."

Ultimately this forum is only as successful as the member's posts make it.  Everyone has a role and a responsibility.  Thanks to all of you who make an effort to keep the forum grounded and to lend a helping hand to others.

Hawk