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Other Peyronies Disease Discussion Boards => Open Questions or General Comments (that won't fit under any other topics) => Topic started by: jj21 on January 31, 2019, 04:09:23 AM

Title: Surgery advice
Post by: jj21 on January 31, 2019, 04:09:23 AM
What is the general consensus on surgery - I know it's usually a last resort.

My curves are minimal, I can still have sex however it can be difficult at times.

The doctor advised he can do a light surgery to fix the curvature which will result in minimal loss of length.

Have people had good experiences with surgery? Were they able to regain their length with VED and Traction after?

At the moment it's been a month on pentox which seems to be helping, I haven't yet started traction or VED.

Hoping for some advice.

JJ
Title: Re: Surgery advice
Post by: TonySa on January 31, 2019, 09:06:17 PM
I'd try pentox and VED or traction first.  Plication surgery shortens the penis and cannot be reversed.  Excision and grafting can retain length but has some degree if risk for ED.  See the survival guide:  Peyronies Survival Guide - Information for New Members - Peyronies Society Forums (https://www.peyroniesforum.net/index.php/topic,3180.msg44057.html#msg44057)
Title: Re: Surgery advice
Post by: Bubba dawg on February 01, 2019, 06:58:28 AM
Looks more like a Surgery candidate since NO plaque was found. I don't think I would do anything other than what the doctor says if you don't have Plaque or calcification
Title: Re: Surgery advice
Post by: tonyode on February 01, 2019, 12:31:45 PM
I agree with TonySa, I would try other non invasive before I went to surgery. My doc offered me the option, but said a majority of people choose other option like I a flex injections. I think it all depends on the seriousness of the peyronies, if it is calcified or not. My doc said surgery is 95% successful, but as Tony stated, there are drawbacks. I think trying supplements and either manual modeling or traction would be my starting point. Then injections.....then surgery if those didn't work. Just my two cents.
Title: Re: Surgery advice
Post by: jj21 on February 02, 2019, 12:30:24 AM
Thanks guys, I think youre right I should try traction and VED first.
Title: Re: Surgery advice
Post by: tonyode on February 02, 2019, 12:02:37 PM
JJ...did doc offer xiaflex as an option for you?
Title: Re: Surgery advice
Post by: jj21 on February 02, 2019, 08:19:15 PM
He didn't, I'm presuming that's because there was no calcification found on the ultrasound ?
Title: Re: Surgery advice
Post by: TonySa on February 02, 2019, 10:08:21 PM
Xiaflex does not work well in calcification.  Perhaps doccwanted yo wait until you were out of acute phase or try noninvasive options first.
Title: Re: Surgery advice
Post by: jj21 on February 03, 2019, 11:02:13 AM
Thanks TonySa appreciate the advice. How was your excision and implant experience?
Title: Re: Surgery advice
Post by: Bubba dawg on February 03, 2019, 11:32:06 AM
Its says in your signature that you have no plaque. Possible ligament damage. Sounds different than peyrones. Maybe that is why the doctor suggested surgery? Man I would follow doctors advice or get a second opinion from a doctor. We are not doctors and we haven't physically examined you
Title: Re: Surgery advice
Post by: TonySa on February 03, 2019, 11:39:32 AM
Mine went well, excision and grafting for severe curve and hourglassing and implant for severe ED.
Title: Re: Surgery advice
Post by: tonyode on February 03, 2019, 12:28:11 PM
JJ...did doc say u had peyronies or another diagnosis? Maybe not xialfex because ur curve isn't severe enough. Usually xiaflex isn't recommended or covers by insurance unless u have at least a 30 degree curve or more.
Title: Re: Surgery advice
Post by: Pfract on February 03, 2019, 08:02:27 PM
Hey jj! Sorry for not being able to reply earlier. Been really busy. Like tonySa said, your best bet would be to try conservative treatments first and see how it goes after you have exhausted that avenue. You hardly can go wrong with traction and VED, and there is definitely gains you might have. Jumping in for surgery with minimal curve, while you can still have intercourse?

You have seen so many horror stories here in the board. People that go for just a "quick surgery" and then it goes wrong, and they wish they didn't have it done. Please, reconsider it!

Why not try restorex and VED? thinkpositive just had such great results! what's your take on that?
Title: Re: Surgery advice
Post by: jj21 on February 03, 2019, 11:48:26 PM
BubbaD - After my ultrasound the doc did state there was fibrosis and they did not find any significant ligament damage

My curve is probably 15-20 degrees can still have sex its just a bit difficult at times.

I think you guys are right, will try VED and traction first.

The doctor did state it was fibrosis which could later turn into peyronies.

Thanks heaps for your replies guys even just having the support of you guys in the forum makes a big difference on my mental health.

Cheers,
JJ
Title: Re: Surgery advice
Post by: Pfract on February 04, 2019, 03:10:32 AM
It def helps a lot to talk to somebody man. We are all in the same boat, though some are more understanding than others. And hey, i have the same curvature as you and i can tell you that i would not go for surgery just to fix it. As for fibrosis, you can always request an ultrasound later on it to check progress on it, on the same doctor (hopefully). And you could try, if you don't have any medical condition, to use the supplements here recommended. At least pentox. But even if you don't want too, those two things alone have shown very significant improvements to some members here.

Keep it up! :D
Title: Re: Surgery advice
Post by: Bubba dawg on February 04, 2019, 06:48:01 AM
Quote deleted by moderator (2)
Please read the forum rules regarding quotes

Would be a good idea to update your Signature
Title: Re: Surgery advice
Post by: TonySa on February 04, 2019, 08:54:12 PM
Is fibrosis the same as plaque?
Title: Re: Surgery advice
Post by: jj21 on February 04, 2019, 10:03:58 PM
Thanks guys, means a lot.

tonySa I am really not sure that's just the way the doctor explained it to me.