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Welcome to J Francois Eid, MD - Directly answering member questions in the "Medical Professionals" section below the Treatment boards.
https://www.peyroniesforum.net/index.php/topic,17819.0.html

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Author Topic: ORAL TREATMENTS – Questions & Suggestions  (Read 34906 times)

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james1947

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Re: No Deformation at the Moment - what should i do - Cialis?
« Reply #50 on: May 02, 2012, 08:19:12 AM »

Marc

Welcome to the forum, even that I suppose you was preferring not to be here.

You are stating that you have IPP without deformity. Is a doctor that diagnosed you? How he know it is Peyronie's (IPP)?
If yes, he had not proposed you any treatmet except the Cialis?
If you will give us some more details, forum members will be able to give you some advice.

In any case, if you will reduce the Cialis intake to 2.5mg daily (cut the 5mg pill in two peaces) it may help with the morning erections to be less strong and painfull.

Regarding your English, don't worry, it is enough clear, my English is not better.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

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Re: No Deformation at the Moment - what should i do - Cialis?
« Reply #51 on: May 02, 2012, 08:57:52 AM »

Hello James,

thank you very much for you quick reply. I appreciate it.

Yes, you are right with "preferring not to be here" but thank you for the warm welcome.

Ok, I will cut the pill and take only 2.5mg.

My Story:

A doctor (urologist) diagnosed me 6 month ago, but without sono. I told him, that i have a pain during my erection and sometimes its possible to touch a little plaque or something else.

Then he touched my penis and he said, well, you have IPP. When it is not gone in the next 6 month, please come again.

Last week I had my second visit after 6 month. I told him again, that I still feel the pain during my erection.

He asked me: "do you have a already a deformity?".
I said "No".
He said: "Ok, then take Vitamin E."
I said: I do already since 5 month. I found out that Vitamin could help..or not...(placebo etc. i know)
I asked him: Do you really think I have IPP or could this be something else.
He said: No, I am pretty sure its IPP. I can feel the plaque on your penis...

After he said to me, I should try Vitamin E, I knew, he is not the right urogolist for me.

The last 7 days I read everything about IPP / Peyronie's Disease.

5 days ago, I found on some websites, that cialis might be an option for me. I talked to my family doctor and I asked him for cialis. In germany you need a recipe to get it.

I hope I answered all your questions?

I am so scared about the future.

I have next week a second date with a other urologist (he is more friendly but no IPP specialist). In one month (its not possible to get a date before) I have a date with a IPP specialist in germany......but when I read across the web, there is really no hope or isnt it? Maybe 1 month could be to late. I would like to do everything what I can do, because I know, when the plaque is chronically, the deformity is close.

Thanks for giving me advice, what I can do at the moment, without a deformity but in the first step of Peyronie's Disease.

I appreciate any help...
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Luciano

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Re: No Deformation at the Moment - what should i do - Cialis?
« Reply #52 on: May 02, 2012, 09:09:51 AM »

Hi marc, and welcome.
I think I read you already once in a german forum.
You should do some reading here, because all the information I gave you there comes from here.

The problem with the help site you are talking about, ...com its a site that wants to sell its treatment.
Now I am NOT saying everything there is wrong, but they have their own product line, their own excercises and they sell everything.
if you want to do some stretching, you have to buy their cd. They also have a deal with neprinol, so basically they want to make money.

I think I read there that a VED is no good, but here people are getting good results. ( they want to sell their penis excericise cd instead)
YOU have to make your own opinion.
I'm just saying, that lots of people here have had good results with VED. so do not take everything  you read in the net.

Luc
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james1947

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Re: No Deformation at the Moment - what should i do - Cialis?
« Reply #53 on: May 02, 2012, 10:21:17 AM »

Marc

I will second Luciano regarding websites that are giving advices and selling products to implement them. Have many websites in this style.

Regarding treatments, I am proposing you to read this forum. Have huge knowledge accumulated during the years that this forum exists and also knowledge accumulated by the veterans on this forum before this forum was established.

Your first doctor is typical one that is NOT Peyronie's specialist in my opinion. My first doctor was the same. The second one feel the plaques and also made me ultrasound to be sure and to see the exact locations and shape of the plaques.
Hope your second doctor will be different than the first.

When you will see him, ask for Pentox prescription. Pentox has helped many and is helping me also to stop the progression of the disease and in many cases had also reversed the disease. L-Arginine is also an important component in the treatment. Have other supplements like like CoQ10 and Ubiquinol that helped many. Low dose Cialis is also an important component for the treatment. Download the relevant documentation regarding Pentox and show to your doctor.
Don't lose time and begin a treatment, but one month (to see the IPP specialist) is not long time.

I will second Luciano again regarding VED. VED has and is helping many to keep the penis healthy.

I am sure that you will have other children if you will want to. Regarding hope, there is hope!!! Many people was cured from Peyronie's. Unfortunately most of them after they solved they Peyronie's problems are disappearing and don't find necessary to continue to be on this forum. Your Peyronie's is in the acute phase, in the beginning, so you have good chances to overcome this disease.

I would like to say also that have many researches concentrating in solutions for this disease. One of them is Xiaflex, we hope it will be available by the end of this year.

Again, just don't lose hope!!!

James
 
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
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LWillisjr

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Re: No Deformation at the Moment - what should i do - Cialis?
« Reply #54 on: May 02, 2012, 09:49:11 PM »

Mark,
The fact you have no deformity is great, don't panic. I would encourage you to search here and start something called the PAV cocktail. The "P" is for Pentox which is a drug you will probably need a prescription for in Germany. This can help with the pain you are experiencing. Also look at the threads here on traction and VED. This can help to prevent and deformity from occurring or at least minimizing any deformity.

Your English is excellent by the way.
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Skjaldborg

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Re: No Deformation at the Moment - what should i do - Cialis?
« Reply #55 on: May 02, 2012, 11:35:06 PM »

Hi Mark,

I got IPP at age 29. I too experienced pain but I had (and have) some minor deformity. I took Pentoxyfylline for 8 months during which time the pain went away completely. I am now 33 and have continued healing in the last 3 years, The deformity is very minor.

Also, don't worry about fertility. My wife got pregnant with my now beautiful 19-month old daughter while I was taking pentox. Turns out that pentox increases sperm motility.

Best of luck,

Skjaldborg
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Mark

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Re: No Deformation at the Moment - what should i do - Cialis?
« Reply #56 on: May 03, 2012, 06:03:33 AM »

Hi all,

at first, thank you very much for you kind words. I appreciate any of them.

The german name for pentox is trental.

My Questions:

1. Would you take pentox and cialis together (cocktail) or should I try them one by one or only pentox?
Some of the forum use only pentax instead of the cocktail...its a bit unclear for me. I know, I have to make my own experience but I am very uncertain. Thank you.

2. When I have my date with the second urologist next week, I need some research documents about pentox and IPP. Because I am pretty sure, he don´t know it.

@Luciano:

Yes, you refered me this forum. Maybe you have some research documents about trental and ipp in german language? Where did you got your VED?

@James:

Thank you very much again

@lwillisjr:

Thank you :)

@Skjaldborg:

Congratulation and thank you. Did you took pentox alone or as a cocktail?

warm regards
marc
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Luciano

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Re: No Deformation at the Moment - what should i do - Cialis?
« Reply #57 on: May 03, 2012, 07:02:17 AM »

Well, pentox is also pentox or pentoxifylin in german.. its the "Wirkstoff"
It is also sold as trental by aventis in the united states, other companies have other names "generika". (Like hexapentox)

I do not have any research in german, because even german doctors publish in english. (because they want to publish in known medical journals, and there it has to be english.)

As for the ved i found it in great britain.
http://www.imedicare.eu/products.html
When you order it in german, (by clicking on the german flag it is more expensive) (399 euros)
I ordered it in britain from the english page. There it was 239 pounds which is 299 euros. Plus shipping is about 25 euros
DO NOT BUY THE BATTERY OPERATED ONE!!!


Luc
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Skjaldborg

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Re: No Deformation at the Moment - what should i do - Cialis?
« Reply #58 on: May 03, 2012, 10:56:50 AM »

I took pentox with L-Arginine.

-Skjaldborg
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james1947

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Re: No Deformation at the Moment - what should i do - Cialis?
« Reply #59 on: May 03, 2012, 01:17:16 PM »

I am taking Pentox 2*400mg daily with the meals. I begin to take Pentox 400mg one daily for a week and then increased to 2*400mg daily because I was afraid from side effects. No side effects at the moment, 3 months on.
I am taking low dose Cialis (approximately 3mg by braking the 20mg, can't find the 5mg where I am living now, will increase to 5mg to see the results) in the evening, after dinner.
I will add L-Arginine when I will find here or CoQ10.

And of course daily VED (30 minutes, one cylinder, Jackp protocol developed by Old Man).

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

LWillisjr

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Re: No Deformation at the Moment - what should i do - Cialis?
« Reply #60 on: May 03, 2012, 06:05:27 PM »

I took pentox with L-Arginine.

-Skjaldborg

Same but use in conjunction with traction.
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Re: No Deformation at the Moment - what should i do - Cialis?
« Reply #61 on: May 07, 2012, 07:43:06 AM »

Hi,

I use now since 6 days Cialis 2,5 mg. At the moment is the pain with "NO" erection (normal condition) stronger as before and I can feel 1 new plaque. Do you think this comes from the cialis? Maybe I should dont use it anymore? I am scared a bit...thank you.
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james1947

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Re: No Deformation at the Moment - what should i do - Cialis?
« Reply #62 on: May 07, 2012, 09:28:21 AM »

Mark

Don't be in panic because the 2.5mg Cialis can't make you new plaques!!!
Your new plaques may be a natural development of your Peyronie's.
I am taking now 4mg Cialis daily after four months on low dose Viagra and I think Cialis is better.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

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Re: No Deformation at the Moment - what should i do - Cialis?
« Reply #63 on: May 07, 2012, 03:57:02 PM »

Mark:
One German mention of Pentox for IPP is in the German Potaba website.  There Glenwood acknowledges that Pentox has "Effekt in kontrollierter, doppel-blinder Studie".  There also Glenwood boasts that only Potaba has "Zulassung (BfArM)".  Until the Bundesinstitut für Arzneimittel und Medizinprodukte approves Pentox for IPP, German insurances won't pay for it for IPP, and worse, conservative German urologists won't prescribe it for IPP.  Germany is Potaba-land.

Show your German urologist both San Francisco studies (Brant 2006 and Smith 2011) as well as the Tehran study (Safarinejad 2009) and hope they add up to a prescription.  Foo on the insurance.  Pentox is cheap in Germany, 100 Stada 600mg Retardtableten costing just €18.72. 
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yyy

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I tried PENTOX but...
« Reply #64 on: May 08, 2012, 03:27:56 PM »

Hi everyone

I had a Nesbit procedure in 2008 that caused me a fibrotic plaque, but this was not the only problem: from that moment I do not have fuller erections as before.

Last week I decided to try pentox, 600mg twice a day, but I started to have nausea (revulsion of the stomach) and I had to stop it

Is there anything I can do to cancel this side effect??

I have a couple of questions more:

1. I heard about dr Levine's method: what can be real expectations? fuller erections? reduction of the plaque? increase of sexual desire?

2. What can I take in your opinion to improve erections and increase sexual desire? I tried Cialis but erections are more or less the same, I mean the penis is stiff but still not lenghten as it should (because of that bloody plaque)

By the way, I'm using a VED and I can reach complete full erections, but once I stop it the effect disappears (also using a costriction ring the erection decreases a little bit, is not 100%)

Hope to receive some help, sorry for my poor English
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ThisWontWork

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Re: I tried PENTOX but...
« Reply #65 on: May 08, 2012, 03:57:26 PM »

@YYY

I try to answer your first question about pentox. Me 2 take pentox  since one month back - 400mg twice a day but ALWAYS with food. In the beginning I had side effects from the stomach (3x400mg) but I reduced it to 2x400mg a day and now no trouble with the supervisor down under.

I hope someone else here can answer the other questions.

Hi everyone

I had a Nesbit procedure in 2008 that caused me a fibrotic plaque, but this was not the only problem: from that moment I do not have fuller erections as before.

Last week I decided to try pentox, 600mg twice a day, but I started to have nausea (revulsion of the stomach) and I had to stop it

Is there anything I can do to cancel this side effect??

I have a couple of questions more:

1. I heard about dr Levine's method: what can be real expectations? fuller erections? reduction of the plaque? increase of sexual desire?

2. What can I take in your opinion to improve erections and increase sexual desire? I tried Cialis but erections are more or less the same, I mean the penis is stiff but still not lenghten as it should (because of that bloody plaque)

By the way, I'm using a VED and I can reach complete full erections, but once I stop it the effect disappears (also using a costriction ring the erection decreases a little bit, is not 100%)

Hope to receive some help, sorry for my poor English
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Pentox, CoQ-10, L-Arginine, VED, some Chinese herbs

yyy

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Re: I tried PENTOX but...
« Reply #66 on: May 08, 2012, 04:00:49 PM »

Thanks for your reply, I really do appreciate it  :)
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james1947

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Re: I tried PENTOX but...
« Reply #67 on: May 08, 2012, 05:29:05 PM »

yyy

Welcome to the forum. (I am sure you was preferring not to be here).

Regarding Pentox, you mean 600mg or 400mg?
I am taking 2*400mg daily but with a few rules.

I am taking them one in the morning one in the evening, not later than 05:30 PM, maximum 06:00 PM.
Taking them during the meal, I mean eating half of the meal, taking the 400mg Pentox and continuing my meal.
I get this advise from the forum and is working, no side effects.

When started Pentox I was taking 400mg daily in the morning only. After one week increased to 2*400mg daily.
If even 400mg daily make you side effects, take just one for longer time until your body get used to it, before increasing to two.
By the way, I was on 100mg daily aspirin and stopped for the first two weeks of Pentox.

Regarding question 1.
Dr. Levine method, what you mean? Can you detail?

Regarding question 2.
Cialis 20mg or Viagra 50mg (or Viagra 100mg) should help you with erections for intercourse. What dose of Cialis you have tried?

I am proposing you to get on a daily treatment that includes:
2*400mg Pentox (after your body will get used to it)
2.5mg Cialis (you can cut the 5mg in two pcs)
L-Arginine 1000mg (some experienced forum members preferring other supplements like CoQ10 or ubiquinol)
VED daily usage for 30 minutes, at the time that is comfortable to you. If you have one or three cylinders VED, follow the specific VED protocols developed by Old Man. Do it carefully, DO NOT OVERPUMP.

Finally I will advise you to spend time on the forum and read the topics that you think are relevant to you. It will give you knowledge and better tools to fight this disease.
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

james1947

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Posting "Quote"
« Reply #68 on: May 08, 2012, 05:37:05 PM »

All members

It is off topic but:
Try to restrict "Quote" to minimum necessary because it take place on the server.
It is not necessary to quote if you are answering to somebody by mentioning his name on the top and his post not down far away.
It is necessary to quote the specific sentence you are answering to if the question is too far down the topic, more clear and understandable.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
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Re: I tried PENTOX but...
« Reply #69 on: May 08, 2012, 06:10:50 PM »

Hi James, Thanks for your reply

- I tried a 600mg dose x 2 daily.
- I come from Italy. Here cialis costs 70 Us Dollars for 4 cps. It would be really expensive to take 2,5 mg per day, I don't know how I can solve this problem
- I tried 20mg cialis, penis is harder but not longer as when I use the pump...with the pump my penis is long as if I have not a plaque, but it works only with the pump
- About dr Levine, I meant the PAV cocktail
- For what concerns the pump, I've been using it for 6 months now, with that method that I read here (15 minutes total,5 minute for each step)

To be honest the only thing that causes me problems is the difference of lenght. I feel my penis can be longer than it appears now, and the pump demonstrate it. I just don't know I can reach this ;/ Really look forward to trying Xiaflex, I have the impression it could be my last chance to turn back as before the procedure
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Re: I tried PENTOX but...
« Reply #70 on: May 08, 2012, 06:15:14 PM »


I am proposing you to get on a daily treatment that includes:
2*400mg Pentox (after your body will get used to it)
2.5mg Cialis (you can cut the 5mg in two pcs)
L-Arginine 1000mg (some experienced forum members preferring other supplements like CoQ10 or ubiquinol)
VED daily usage for 30 minutes, at the time that is comfortable to you. If you have one or three cylinders VED, follow the specific VED protocols developed by Old Man. Do it carefully, DO NOT OVERPUMP.


what can be the final purpose and results of that? Will the plaque decrease or what?
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james1947

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Re: I tried PENTOX but...
« Reply #71 on: May 08, 2012, 07:10:58 PM »

yyy

The final purpose of the treatment is to stop progression of the disease and to revers it.
Pentox is increasing the blood flow to the penis by modifying the red cells to be more flexible and move more easy especially to the small veins. This will increase the oxygen supply.
2.5mg Cialis is promoting nocturnal erection that is good for Erectile Dysfunction. The price of $US 70 is really high, I can get it here for $US 15. Is not fake, maybe smugled, I don't know. I had here problem with Pentox at $1,5 per pill, I have ordered from abroad, 15 cent per pill.
Maybe if you will tell us where you are located, someone can jump in and advice you regarding the Cialis high price.
L-Arginine is a supplement (used by body builders) that is helping with the blood flow and erection also. Unfortunately myself not using it, I can't find it locally.
The VED is keeping the penis healthy by forcing blood flow to the penis. In the beginning of my treatment I used just VED and I gain back 1.2cm in 6 weeks from the 5cm I have lost to the Peyronie's

You have to understand that all the treatment above is a marathon, don't expect fast results, even that some forum members get fast results.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
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Re: I tried PENTOX but...
« Reply #72 on: May 09, 2012, 12:59:20 PM »

I come from North Italy, Here generic Cialis or Viagra does not exist in pharmacies, so it's a big problem because I don't know trusted online pharmacies. Who can help me?

VED in 6 months gave me back only 0,5 cm, I would need more results
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Re: I tried PENTOX but...
« Reply #73 on: May 09, 2012, 05:46:53 PM »

I don't know the on-line pharmacies available in Italy but be aware that (as I have read on the forum) you can't get medicines in Europe from outside the EU, they will be confiscated by the customs and you will be fined also.
Hope some Europe located members will jump in and give an advice.

Regarding VED, is a marathon. The gains are slow, as I have written in my previous post the 1.2cm gain (I have written wrong, the gain is from more than 6cm I have lost, from 18cm to 12cm and now 13cm) was in the first six weeks and in the following 4 months until now is static and no change. I am continuing because it is keeping the penis healthy and I am sure I will gain more during the time. I am using one cylinder VED, the 3 cylinders VED giving much better results from the lengthening point of view.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
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Re: I tried PENTOX but...
« Reply #74 on: May 10, 2012, 07:55:50 AM »

I'm also using the one cylinder, can you explain me more about the 3 cylinder VED? I bought My VED from fir.ma medical
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Re: I tried PENTOX but...
« Reply #75 on: May 10, 2012, 05:19:08 PM »

yyy:

OK, the three cylinders are known as A small, B medium and C large sizes.

The small cylinder is designed to be rather small so the penis shaft is held in a confined and  elongated shape helping to remold the curves/bends as well as helping in remove indentations.

The medium cylinder is designed to let the penis shaft expand in girth and length to further increase the size by allowing the extra room in the cylinder.

The large cylinder is designed larger so that the entire penis is allowed to expand to its fullest size with the vacuum pressure.

The VED board section shows various protocols based on the one cylinder as well as the three cylinder VEDs. There is also a topic/thread that lists how to make a three cylinder VED as some on the forum have done. Some have even adapted plastic tubing to make the two extra cylinders so the one cylinder then can be used as a three cylinder. I am sure that you can find the exact instructions they used and will be glad to share their expertise, etc.

Old Man
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Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

yyy

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Re: I tried PENTOX but...
« Reply #76 on: May 14, 2012, 01:50:42 PM »

Thank you for your help, Old Man.

I'm gonna start pentox 2x400 and cialis 2,5 together with VED
The only thing I want is to gain something in lenght, I'm pretty sure the plaque will not decrease or soften...
I'll keep you updated  ;)
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pless

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Re: I tried PENTOX but...
« Reply #77 on: May 14, 2012, 11:19:31 PM »

The penis length reduction (18cm to 12cm) reported by James1947 is not so unusual for Peyronie's sufferers.  It would seem to require a general loss of elasticity in the tunica albuginea, rather than localized plaques, to explain so much loss of length.  In my own Peyronie's case there is not much curvature and not much indentation, but very much reduction in size (although I haven't the nerve to make the measurement).  When all or most of the tunica albuginea is implicated in the disease, how can elasticity-restoring treatments that are aimed at particular locations, such as the Xiaflex injections, be right?  I wonder how prevalent such non-localized Peyronie's cases are, and whether they're handled reasonably in clinical trials.
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yyy

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Re: I tried PENTOX but...
« Reply #78 on: May 17, 2012, 08:32:51 PM »

Pentox is giving me side effects.
I can accept them only if there's a real possibility to reduce plaque and curvature
If it is useful only to avoid worsening, I will stop it because plaque will not get worse, as it was caused only by surgery

Did anynone see results about curvature/plaque by taking pentox?
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james1947

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Re: I tried PENTOX but...
« Reply #79 on: May 17, 2012, 09:18:33 PM »

yyy

Pentox is giving side effects to some. How much you are taking daily and when?

I begin with 400mg daily in the morning with the meal, I eat half of the meal, takes 400mg Pentox pill with a cup of water, eat the second half of the meal.
After a week, I begin with 2*400mg daily, the second one in the evening meal not late than 5:30 PM (latest 6:00 PM), in the middle, same as in the morning.

Try it, it may work not to have side effects.

I can say that I am taking it for three months, so I am not expecting serious improvements before the end of first six months.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

yyy

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Re: I tried PENTOX but...
« Reply #80 on: May 18, 2012, 08:02:55 AM »

James

Pentox is giving me stomach pain, not always but somtimes
Hope it will reduce plaque and curvature a little after 6 months
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james1947

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Re: I tried PENTOX but...
« Reply #81 on: May 20, 2012, 06:25:27 PM »

yyy

I have tacked ones the Pentox not in the middle of my meal and it made also to me stomach pain.
How you are taking it regarding the meals?
Not connected to Peyronies, Valentino back on the podium  ;D

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

slowandsteady

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Re: Guaifenesin
« Reply #82 on: May 21, 2012, 02:16:36 PM »

Hey James. If you look at very my first post, you'll see that I quoted that same website. ;) I thought the criticism very well written. Fibromyalgia seems to be a deep rabbit hole, and if guaifenesin helps it, it may be by different mechanisms than it's supporters claim.

Still, for plantar fasciitis, when I take guaifenesin I feel the inflammation go away and an itchy healing sensation in my feet. Lately I've only taken it once a week or so for maintenance. I've also felt that same feeling yesterday in an area where I still have a touch of somewhat active Peyronies Disease.

It would be a shame if this works well but no one tries it.

For someone willing to give it a go, I'd recommend 1-3 days of taking 1200 mg of Mucinex in the morning, since that seems to work better than 600 mg 2x daily for my plantar fasciitis. It's extended release. This should be a safe dose for a few days (people on the guaifenesin protocol for fibromyalgia can be on it at this level for years).

From trying to understand how to categorise this medicine I come over:
http://web.mit.edu/london/www/guai.html
Quote
The Truths and Myths of the use of Guaifenesin for Fibromyalgia
or
Guaifenesin:  One Medicine, Several Effects
by Mark London

slowandsteady
As you are taking this drug, maybe will be interesting for you to read the document (if you didn't read it yet).
How you categorise this medicine? As pain killer or something else?

James
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james1947

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Re: Guaifenesin
« Reply #83 on: May 21, 2012, 03:50:32 PM »

Hi slowandsteady

Yes you are right, the same website. I didn't notice while click on the "blue" words in your post lead me to the same place.  :-[

How are you categorising Guaifenesin?
Is a pain killer, anti inflammatory medicine, natural anti inflammatory medication or something else?

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

slowandsteady

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Re: Guaifenesin
« Reply #84 on: May 21, 2012, 04:21:15 PM »

I'm not sure. I see that there is a trial in progress of guaifenesin as a muscle relaxant for upper back pain and spasming (NCT01562548).

My guess is that if it were only an anti-inflammatory, I would not get that itchy healing feeling in my feet. I never got that with just ibuprofen.
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