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[Walleye]

So I’m unfortunately thinking i have Peyronies Disease, yet still unsure and unconfirmed. I have an appointment with a Peyronies Disease urologist but my appointment is 6 months away. My dr got my referal and at the time all I had was 2 small roundish lumps that seemed to be on top of my urethra in the foreskin area.
Not a week later after my visit I got other ‘lumps’ and seen him again. He sent me for an ultrasound and said he’ll try to get me in sooner with the Urologist depending on the results.
 So here’s my story. I was having Erectile Dysfunction issues, mainly maintaining erections and quality of errections. Had my Testosterone checked and found it was low, so started therapy injections. 100mg a week. I also started taking Metformin to help with my prediabetes which was right at the line between type 2 and prediabetes.
 At this time, 6-8 months ago I started Jelqing following Pegym directions. I did that for 6 to 8 weeks tops. No moment of injury or anomaly during or after. I may have a couple times jelqed with a near full erection, and that is the only source of potential injury I can think of. My libido went through the roof and I sex was a daily thing if my wife was willing.
Erectile Dysfunction issues seemed to go away and I figured eating better, lowering Blood sugar and I lost around 25 pounds was why.
About 3 months ago I noticed the small 2 bumps, yet they stayed the same for over 2 months. I figured blocked lymph vessel or something. I dismissed the Peyronies Disease potential for obvious reasons. I’m still desperate to find out it’s anything else.
Last dr appointment I suggested it might be UTI, and urethral stricture since I was feeling the occasional pain or burning while urinating. Also feeling kinda sick and low stomach pain. Been on antibiotics for 3-4 days now and no change. Urine test strips showed minor levels of White blood cells but UTI didn’t look promising and certainly not serious as to explain my lumps as abscesses. Did read about Spongiofibrosis from stricture as my spongiosum has been completely firm ever since the 2 bumps became much more.
As of now I have mild pain, and pain when touching various parts of the entire shaft but not excruciating or anything. Behind my glans till just past my foreskin area it feels as though I have an erection, yet with flaccid size. In fact to an extent my entire Corpus cavernouses feel firm.
There is some ‘hard flaccid’ condition associated with PE (Penile enlargement), and doesn’t seem to be a Peyronies Disease thing.
Yet as vague and varrying as Peyronies Disease seems to be, it’s almost impossible to understand if that’s what I’m dealing with. Oh, and I don’t have any bending. Well I have a congenital curve to the left, and at times I think I see a bend in the same direction starting at the foreskin area, yet it’s not always there. Hard to explain that part, but my natural bend has either varried a bit at times, or I just don’t notice it at times.
With a rock hard errection my curve seems less present, and it’s been a few weeks since I’ve managed a 100% errection so the bend is hard to confirm what was before or happening now. Plus it seems either ironic or odd it would bent the same way, but it’s a 25% chance at worst so not a real puzzle.
Obviously my mood is horrible, and my stress and anxiety is hard to cope with. I’m also facing this criminal case that is torture. In part because I’m innocent and secondly because my trial if it gets there is in April, which is 14 months from when they charged me. It’s complicated, but essentially a guy I know put stolen vehicles on my acreage without asking, and since he’s human scum and won’t admit he did it, I have to live in limbo.
Anyways, my life is a mess and it feels like this is becoming the straw that’s gonna break the camels back and I’m about to have a break down. I’m 42 years old, have 3 kids and I understand men aren’t walking penises to women. And my wife is supportive and such. Yet I don’t need to tell any of you how waiting to see if my penis will either make sex impossible, or any degree in between in the next year or forever is almost unbearable. To top it off all I can do is diagnose myself till July if my Dr can’t get me in quicker.
I’m in Canada and our health care system has issues with wait times at the moment. Yet I know I’m not waiting a year to finally see someone. I’ll walk to Mexico if I have to, just to see a specialist.
Anyways (again) if anyone can help me out with this issue I’d be greatly thankful. I know nobody can say anything with certainty but if you went through the same, or similar, or better yet remember some guy who’s story was just like yours but turns out he had something cureable, lol.

[suicidecomingsoon]

What caused your peyronie and your Erectile Dysfunction? Did you get injured having sex? Did you say that you have hard flaccid of PE? Have you soft glans now?

 

[Walleye]

Thanks for the reply.
I’ve never seen a urologist or gotten a reason for my Erectile Dysfunction issues. Maybe Low-T, maybe my family history of heart disease, or being boarderline type 2 diabetic? My Dr said he has no idea what’s going on but acknowledged PyD was a possibility.
I’m not sure if I have or had hard-flaccid and I’ve never really fully read in to it. Yet I’d suspect it’s rare or unheard of to get hard-flaccid 3+ months after last jelqing. My Glans are not effected or soft when I’m erect.
I suspect I’m days away from hearing a pretty clear yes or no for PyD with my ultrasound results. And personally I don’t know what else it could be, and I’ve done lots of Reasearch.

[Walleye]

Oh and no serious injury in the past 20 years. With my testosterone therapy I was getting morning wood like never before, and I even wondered if I unknowingly had pryapism (4 hr errections). They were sometimes somewhat vaguely painful if I recall right.
And from some recent learning ‘micro’injury is more often the culprit. And Low testosterone and PyD have a good association.

[LWillisjr]

The stress from what you have going on in your life with the case would also be causing your Erectile Dysfunction. Beyond that I don't read anything that would imply Peyronies to me.

[Walleye]

The stress from what you have going on in your life with the case would also be causing your Erectile Dysfunction. Beyond that I don't read anything that would imply Peyronies to me.

Interesting, and thanks for the reply. I’m holding out hope it’s not Peyronies Disease and something less serious. Yet for all the reading I’ve done I can’t find any other condition that includes hard lumps in a penis. Yet of course you can only learn so much through google.

Would you happen to have any idea what might be the cause of these ‘lumps’ or firm masses? Lump isn’t the best descriptor since it suggests it’s on a surface. I’ve never examined my own penis as much as I have recently and it’s difficult to properly describe what I’m feeling.

I should be getting some kind of an answer soon from my dr regarding the ultrasound.

Thanks again.

[Walleye]

So now I’m getting a for sure bend, and zero doubt I have Peyronies Disease. I’m trying to be hopeful and positive but it’s been hard. I can’t help but feel like I did this to myself from trying jelqing, even though I thought I was being cautious. It’s possible my initial issue of Erectile Dysfunction was the first symptom of Peyronies Disease, which is what led me to try jelqing to help with Erectile Dysfunction. Yet the sense of this being my fault is there.

Drs appointment in a week, yet I’m not hopeful even the Peyronies Disease urologist is going to be much help. My cousin has 6 months at best after a long battle with cancer, so I feel I have little right to feel sorry for myself. A bent penis is far from the worst issue out there. Peyronies Disease seems worse than things like complete Erectile Dysfunction, even though functionally it’s not. Not like I have to explain this to anyone here, but having my manhood distorted is like a cruel punishment.

I’m thinking of getting a traction and maybe a pump thing (VED?) and try to do what I can, while I can. Even though wasting $300 or so on a traction device seems like it’s well worth the risk, I’d like to find some real reviews. 99% of what’s out there is from a sales motivated angle. Even the ‘MyPeyronies’ website feels like he has an alterior motive. I wrote on what I thought was a medical discussion blog, and thought how nice it’s was for this Dr Herzay (sp?) to give me such a full reply. Then I realized he’s running the PDI ‘institute’ and for only $x hundreds will get me proprietary supplements and such.

It’s a catch 22. Maybe it works and the guy is legit, or it’s snake oil and it’s essentially a scam. And there’s no way to know which one it is, even if you tried it. If it’s a scam he/they will burn in hell for taking advantage of men with Peyronies Disease. Hell with a perpetual flaming penis agony.

Anyways, boohoo poor me. One thing I found interesting on that PDI Site was his thoughts on Peyronies Disease forums. He said there not as active as they could be. Mainly because men learn there’s little to do, and don’t want to dwell on things out of your control. To me it seemed to be correct to an extent. I mean I’m part of forums about fishing, or pretty specific unimportant things and there’s ten times the involvement as there is on Peyronies Disease discussion. And as I write this I’m feeling like I’m talking to myself, lol.

[Paolo]

Walleye, I feel for you dude, it's despicable the amount of companies getting rich from this f'^+'ing disease 

And you have 'every' right to feel sorry for yourself.

These 'numerous' sites promoting penis exercises are IMO a 'joke', a cruel one at that!, what you are born with and develop during puberty is your penis length for life, to promise otherwise is opportunist.

Take care before spending 'endless' money on supplements and devices, members on here can recommend VED's and traction devices.