Nesbit procedure didn't work

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Suejan

My partner of 19 years had the Nesbit procedure in September 2016. All seemed to go well but my partner has said it hasn't worked. He told me in April of this year that they have cut off the top of his knob and with that they have taken away all emotions and feelings he could possibly have for me. He doesn't talk to me otherwise about anything to do with what he calls private. He has kept me at arms length for quite a while and I have tried everything I possibly could to keep our love alive and together. The rejection has been really hard to deal with and I have shed many private tears generally when I am driving to work in the mornings. He now sleeps in the spare room and has done for the past couple of months. This has been like a knife to my heart. He has stopped all communication with me and I can't live like this any longer. I have now found somewhere to live and will be moving out in the next couple of weeks. I am devastated but feel if I stay I will have a nervous breakdown. I have told him I am leaving and he just shrugs his shoulders and says ok. I don't even know how financially I will survive but feel I am left with no option  

Stabler

Suejan,

I'm sorry that it has come to this. If he is unwilling to communicate or try and work through this with you I'm not sure what else you can't try. I know you have been trying to find a common ground for some time now. Has he talked with the surgeon to inquire as to what happened in surgery? Did he question him at all? I understand that he is in a bad place as Im sure you do but for now this may be something he needs to work on by himself. Please stay on with the forum and reach out to us when you need to.

Stabler67
Moderator since 2015- Missouri- I work in the medical field and have strong knowledge of insurance and how to obtain coverage for medication and other treatments. Being a woman I do not have Peyronies but you can ask me anything. I am happy to help.

TonySa

Suejan, is there any chance he would consider couples counseling with the hope of reopening communication?  Also, maybe he would consider counseling for himself fir the loss he has endured.  If not, it seems like you must take care of yourself while maybe letting him know if he's willing later to talk, you would welcome that.  Re finances, if you are in a common law state, long term partners may be entitled to 1/2 of everything accrued during the time of the relationship.  You might want to call a low fee or pro bono law clinic if there is one in your community.  Please take care.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

JohnWright

Men are a slippery bunch, and I rarely believe what we lead our stories with. More often than not, we'll toss something up that has an ounce of truth and a hundred pounds of smoke screen.

Sorry, paint me skeptical, but I'd want to know: Is he having an affair? Is he addicted to porn? Did a rich relative die and leave him some money and he just doesn't want to share it with you? What is he up to? What is he planning?

19 years -- sorry -- I'm not buying the dick thing.

And, there is no surgery where the tip is cut off. Not even in Nesbitt.


Jack1909

Most of penile surgeries cut it off instead..
31 yrs old
Severe congenital curvature. 3 straightening surgeries
Big lump/stitch w/ left deviation after 2012 surgery
Severe ED after last one in 2014. Still crooked
Slightly improved w/ shockwave therapy
Looks like only one side of my penis works

Suejan

Thank you for your replies. And John I agree with you and who knows what he is or isant doing in his own time. All I know is that I am an honest and open person who has loved this man with all my heart. If he is cheating or lying to me then that is now up to him - he has to live with himself! I don't think he believes I am leaving and even though at 56 I find it so scary and daunting I will be leaving within the next couple of weeks. Thank you all once again 😊

NeoV

I haven't heard of any operation that would cut off the tip of the penis either.

Was the nesbit a failure somehow? He definitely should communicate with you. It's a huge mistake if he thinks you will leave him unless he is distant. I know I have said in the past that "communicate more" isn't always the best solution, but he really should open up and tell you how bad he feels. That must be awful for both of you, I really hope it works out.

Lastly, why did he go for nesbit over natural therapies?

LWillisjr

Suejan,
Not that it may matter, dut I wonder if he is referring to the fact he may have been circumcised during the surgery. Seeing you are from Great Brittan I know that circumcision is NOT common in your country.

I can also tell you that circumcised or not..... that it does take some time to get feeling back from this type of surgery. And it is too soon to start having intercourse yet. I know that doesn't explain his "pulling away", but I would encourage you to give it some time. It has only been 4 weeks since the surgery and he is dealing with some post-op stress. This isn't the type of surgery where you walk in, have it done, and the next day everything is better.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

JohnWright

LWillisJr -- Suejan said the surgery was 13 months ago (Sept 2016).

Suejan -- I am curious about the last six months of time:

- Have you seen his penis while erect? Was it straightish? (Some men have a penis that presents challenges to even the best surgery strategy, thus straightish is the goal -- I speak from experience).

- Is there anything unusual about his penis at this point that gets your attention, and you think, "Hmmm..."?

- Have you and he had sex at all during these last six months? If so, thinking back to months 6 and 7 after the surgery, how was he during sex? Did he seem normal? Did he have complaints about function?

Suejan

We have only had sex twice since the op and it seems to be painful when he orgasms. He was already circumcised  

JohnWright

Has he been tested for an infection, or possible prostatitis?

Pain during orgasm doesn't align with surgery. It is something else. In the right place, that kind of infection could make him all kinds of bat crazy.

4Gmom

When I first met up with this condition in 97 as a newlywed there was nothing on it on the internet. I just didnt know if I could do it, sex was painful for me. He told me no one else ever complanied. he wasnt open to anythingfor the first 10years but finally had 2 surgeries that were failures. First was nesbit, cant remember the other. His condition was a huge wall of communication in our marriage. We tried counseling but he would never accept the lack of intimacy with me was a huge root cause of a lot of problems.
Our marriage ended after 20 years. I feel like I carried his shame all through the marriage because he either did nothing or blamed me for the failures.
I gave him 2 beautiful girls but he isnt thankful at all for everything I went through trying to help him and accept things.
SomI am just here to read the wives feelings and get the validation I desperately needed going through this as it was so taboo. I need to shed the shame Ive carried and move on.  

Sueb123

I am sorry to hear about your upset. I just got on this site for the first time.
I know your pain. My husband has not been able to talk with me. In fact he blamed my
Sling surgery I could not figure out why Sex was so painful. Five years later he tells me of his
Diagnosis Peyronies. He blamed me said I caused it. Then sex stopped and we grew apart. He watches a lot of tv. I took my ring off after 25 years of marriage I asked him for a separation: I went to Italy for two months Now we are living a sexless marriage and I'm like you
Losing my mind. Communication is key but he's so shut down. I told him we don't have to be traditional their are lots of ways to be close . No kissing touching I am so unhappy but I live my family . I hope some of you can make some suggestions. He has not tried any treatment he's 68
I'm 63 Not sure I can keep going this direction without help .  
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Hawk

Sue,  

Thank you so much for joining and posting.  This truly takes both parties to conquer.  The first step is to identify the psychological issues and the actual physical issues because Peyronies Disease comes with a wide range of symptoms.  Some are annoying, some make intercourse impossible.

1. Would you say you had a good marriage with a strong bond prior to issues with Peyronies Disease?
2. Was sex satisfactory prior to Peyronies Disease or was there a lack of interest?
3. What is the main issue that is preventing sex?  (a deformity such as serious bend or curve, ED, anger, embarrassment)
4. Do you have good moments of humor, sharing interests, or serious conversations with each other?
5. If your husband knew there were things he could do whether with surgery or other treatments, would he do them in your opinion?
6. Would he ever  join this forum and seek answers?
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums