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NewGuy - 8/25/09
Welcome to Dr. Landon Trost - Directly answering member questions in the "Medical Professionals" section below.
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NewGuy - 8/25/09
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Location: United Kingdom
NewGuy - 8/25/09
August 25, 2009, 01:03:52 PM
Age at onset of Peyronies Disease / or I have had Peyronies Disease for X Years
- 15 years
Very First Symptoms
- When I was 15 I distinctly remember an occasion, which I can describe as over enthusiastic / rough masturbation. Afterwards I noticed that there was a swelling on the left side of my penis. There wasn't much pain and the swelling went down after a few days. I didn't think much more about it but in the following months a curve to the left started to develop. This was quite alarming to me. The curve reached maybe 25 degrees but over a long period of time (to the extent where I didn't think too much about it).
My Peyronies Disease progression, Treatments (in order), Doctors, Psychological Stages, observable changes
- Years later, I noticed what I saw to be a slight progression of this curve that was hard for me to pinpoint timewise. It reached around 35 degrees and I finally decided to get it checked out. I was diagnosed with peyronie's and basically told that there was very little that could be done for me. This was all extremely disheartening because it happened at such an age that relationships have always difficult for me... and that has pretty much remained the case. It's hard to explain peyronie's to people because there is little understanding or appreciation of it in a wide sense.
I found this forum about 3 years ago and decided to have another stab at improving my situation. Over the past 2-3 years I've slowly added components to what was first just a basic vitamin E and general multi Vit regime. I began using the VED, ALC and so on, and after a few months noticed what I deemed to be an improvement of maybe 5 degrees. That's not life changing of course, but it's something. Over time, I noticed a further improvement to perhaps 25-30 degrees. This was very encouraging, and almost at a point that I was deem to be acceptable or feel less bad about... but unfortunately the start of a rather worrying chapter that I'm currently in the midst of. In April 2008 an injury set me back resulting in pain and trouble with erections for a while. This led me to using the PAV cocktail, which as it happens appeared to over time (as in two years+) reduce the curve a little more. I still experience occasional slight pain/itching as of late 2010, which is a worry, but erections are very good, and shape is better than it has been in years, so it's possible it's a nerve issue. Time will tell.
24th Jan 2010 - Not much change from above really, over 20 mnths on. There have been what I can identify as two slight changes to my penis. A slight indentation which isn't really an idea, and a few months back a small hard lump in one part of my penis. This has since disappeared. I'm not sure if that's due to part of an ongoing process, or possibly the regimen I take gets to work on these abnormalities as such as they appear. There is still slight pain, which comes and goes, but is basically always in the same area. It's hard to move beyond this issue because its ongoing, but I'm still doing all I can. I'll keep you updated. I detail any major changes or new treatments at the peyronie's disease
4th December 2010 - The slight indentation is reduced somewhat. For all intents and purpsoes nobosy else would know that it's there. I is worrying that it appeared almost overnight, after a slight pain developed there, but nothing similiar has happened since. The lump is gone as far as I know. I'm still on the PAV cocktail, though I take cialis instead of viagra, and not as frequently as I used to. I also take pycnogenol, and coq10. I figure that the treatment regimen along with VED/ manual stretching use keeps negative changes as may.
2012 - Time flies. I'm still taking pentox and coq10 (though did have a break from them). I think the pentox and Vit E had a negative affect on my VED useage, resulting in bloodspots and swelling. All in all though I think VED is a very worthwhile treatment. I had quite a break from mechanical therapies, but for the past month have been back on the traction. It's going well in terms of hours and I think I've made a bit if an improvement. I'm going to report back in 3-4 months.
2013 - I'm no longer taking oral supplements, partly because of concerns about taking them for years and also because I feel that I've got as much mileage out of them as I can. I'm still using a traction device, and am basically at a point where peyronie's disease is somewhat less of a concern than it has been. I'm still not in an ideal situation, but find other life concerns pushing this aside from time to time, which certainly tells me something.
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