PEYRONIE'S TREATMENTS - Questions, Plans & Remarks

[james1947]

soroxas

I see you are still active on the forum. Have you done some treatment from your last post at October,31, 2011?
You had some results from the treatments?

James

[james1947]

My treatment update and results, June 08, 2012

October 10, 2011- VED – single cylinder, not medical grade, 30 minutes daily. Lost 2&1/2" to Peyronies.
November 11, 2011 – 12.5mg Viagra added daily; gain back ½" in one month (actual penis length 13cm).
January 19, 2012 – 2*400mg Pentox daily added gradually
February 27, 2012 – the daily Viagra dosage increase to 16.7mg
April 20, 2012 – Changed the daily Viagra to 4mg daily Cialis.
June 8, 2012 – Length 13 cm
Next week will add L – Arginine 1000mg daily
      Ubiquinol 2*100mg daily
Results until now:
In addition to the ½" length gain,
Flaccid state increased in girth and length, out from my abdomen when hided gradually after the Peyronies onset.
The nocturnal and morning erections are back.
No change yet in the libido that is very low even my testosterone is 497, much over the maximum expected for my age (64+)

James

[peterjackson]

I met one gay man whose dick was completly taken over by peyronies.  Only his glands would swell when he was erect.  

[GaryNC]

Well guy,  It has been nearly a year since you joined Peyronies Forum.  I got my right curve back when I was 19.   I know how you feel. I have had scar tissue develop in the middle of the shaft and then vanish.  My right bend  of about 30 degrees was rigid when I was young, but as I have gotten older (now 56) the curve is not so rigid but bendable which makes intercourse easier.  This will probably happen to you as you mature as well.  I was a shy young man and a bit socially awkward but managed to marry at age 26.  I showed my bend to my fiancee before we married but did not attempt intercourse until the wedding night.  Everything worked out OK with just a little difficulty, and I have 4 children and 7 grandchildren so far. We have had a a couple of bad divorces but children bring us back together. I am guessing your left bend is more severe since you have tried intercourse without any luck.  There is always a strap on for her and masturbation for you.  You can still have kids with a willing mate.  Only sperm needed for this. I met a man once that has a penis smaller than my little finger and he can't get it up either.  He has been married twice and probably never was able to penetrate due to his small size.  He seemed happy with his new wife.  Intercourse alone is never enough for my wife and I am still a premature ejaculation guy.  Power tools do wonders.  There are many women who could care less about sex.  Lots of men find this out once they are married.  You just never know.

[2bent4me]

Sorry Im really new to this forum (about 25 minutes old), it took me that long to find my way around and find reply then find someone online. So I hope to get direction here. How do I find the Womens forum??? Please.

K never mind Im goimg to just read forums for a while  

[james1947]

2bent4me

The woman only forum is not visible except to registered woman.
Write a PM (Private Message) to Christine, she is the moderator of the woman forum.
To write a PM, click MY MESSAGES button, New Message, write Christine in To and write the message text.

James

[Norm]

 There are many women who could care less about sex.  Lots of men find this out once they are married.  You just never know.
[/quote]

I wish I had known this 40 years and a crooked cock ago! I would have interviewed them all.  

[james1947]

Regarding interview:
The problem is that you will never know until you will marry.
So just an interview or a "close" friendship   will not tell you nothing
But again, is just my private opinion and experience

James

[dioporcolorisolvo]

You are not facing terminal cancer or a life threatening chronic illness.  What you are facing is something that is VERY treatable.

George, honestly i didn't understand.
I'm 29 years old and i have peyronies since 2 years ago.
All treatments have been not useful. I haven't any more solution.
My life is a nightmare and i would prefer 100 times a terminal cancer rather this dripping.
I can seem drastic but my life has changed drastically after this disease and i don't see hope anymore.
Of course there will be many people that will have good improvments, but for other many people this disease seem be unsolvable.

[skunkworks]

You are not facing terminal cancer or a life threatening chronic illness.  What you are facing is something that is VERY treatable.

George, honestly i didn't understand.
I'm 29 years old and i have peyronies since 2 years ago.
All treatments have been not useful. I haven't any more solution.
My life is a nightmare and i would prefer 100 times a terminal cancer rather this dripping.
I can seem drastic but my life has changed drastically after this disease and i don't see hope anymore.
Of course there will be many people that will have good improvments, but for other many people this disease seem be unsolvable.

What is your diet like? One of the exclusion criteria for most all studies on medications is diabetes and insulin resistance. So we have no idea if these drugs will work well on people who have those conditions.

I am 31 and have had this since 28. Have treated it very successfully in my opinion, in the very first year.

Edit. Have read some of your posts. Yep you need to sort out your diet, and 80/20 does not work.

Get an A1c test.

[james1947]

dioporcolorisolvo

I had exactly the same feeling:

but for other many people this disease seem be unsolvable

I was at this side also and then suddenly one month ago some improvements begin.
I don't know what your treatment is/was and how long time you have done this treatment.
Can you give some details?
Don't lose hope, from time to time have something new in the subject. Maybe Xiaflex will work for you?

James

[dioporcolorisolvo]

Edit. Have read some of your posts. Yep you need to sort out your diet, and 80/20 does not work.

Get an A1c test.

I didn't understand.
I follow Paleodiet, the best diet for these diseases.

[dioporcolorisolvo]

I don't know what your treatment is/was and how long time you have done this treatment.
Can you give some details?
Don't lose hope, from time to time have something new in the subject. Maybe Xiaflex will work for you?

I made every treatment possible in these 2 years.
Some treatments have worsened condition, as VI and ALSO pentox ( i don't know why...this is a big mistery).
Now i take carnitine and i follow the paleodiet.
I have problems with traction and VED because i have also pelvic chronic pain (another crap disease) and these instruments worsen symptoms.
I am in a cage and i try all solutions but without benefits.
I'm still alive only because in Italy it's hard to raise a gun.
If i lived in USA i was already died.
I don't want depress other members of forum but my situation is this.

I add that you are 65 years old. You are not old but you are not 27 years old....at my age this disease isn't tolerable.

[skunkworks]

Edit. Have read some of your posts. Yep you need to sort out your diet, and 80/20 does not work.

Get an A1c test.

I didn't understand.
I follow Paleodiet, the best diet for these diseases.

I must say that it's a hard diet, and when i'm very depressed i eat sugar, so i'm not able to follow ever this diet, but is my reference point.

You need to follow it all the time, some of the time is not good enough.

An a1c test will tell whether you have glucose control issues.

[dioporcolorisolvo]

You need to follow it all the time, some of the time is not good enough.

An a1c test will tell whether you have glucose control issues.

Since 2 months i follow it bolt.

[skunkworks]

'Bolt' meaning all the time or strict?

And you are currently taking pentox, arginine and cialis? How about coq10?

Do you have a traction device?

[dioporcolorisolvo]

'Bolt' meaning all the time or strict?

And you are currently taking pentox, arginine and cialis? How about coq10?

Do you have a traction device?

Bolt means all the time, without exeptions.
I took Ubiquinol for 7 months, without benefits.
Same thing for Vit E, Propionil Carnitine, Colchicine, Pentox (this drug has worsened my condition, strange but true), Arginine.
My problem is not erection: my problem is loss of ghirt and deformation and none drug helped me.
I used traction for 1 months one years ago, 7 hours daily, but i stopped it because pain.
As i said before, traction and VED are not very good for my chronic pelvic pain.

[james1947]

dioporcolorisolvo

I agree with your sentence:

I add that you are 65 years old. You are not old but you are not 27 years old....at my age this disease isn't tolerable.

After your answers to me and to Skunkworks I am out of advices.
I hope George or someone else with more knowledge than mine will have some advice.
What about Acetyl L-Carnitine and CoQ10? In George opinion, those are the best things for Peyronies.

Just one more question:
Your plaques that makes the deformity are palpable? Can see them by ultrasound?

James

[George999]

My ONLY advice would be to thoroughly investigate your glucose metabolism and to get a thorough investigative exam looking at things like serum nutrient levels etc.  If none of the usual treatments is providing relief, that would seem to indicate something seriously wrong on a deeper level, glucose would be the number one suspect.  - George

[skunkworks]

My ONLY advice would be to thoroughly investigate your glucose metabolism and to get a thorough investigative exam looking at things like serum nutrient levels etc.  If none of the usual treatments is providing relief, that would seem to indicate something seriously wrong on a deeper level, glucose would be the number one suspect.  - George

I think this is a problem for a lot of treatments, and is why the general public does not seem to see the same percentage of relief as the subjects in the study for whichever medication.

This line is attached to pretty much every study done on humans out there:

Be judged to be in good health, based upon the results of a medical history, physical examination, and laboratory profile.

Diabetes or any kind of glucose control issues would turn up in the lab work and that person would be excluded from the trial.