Is it safe to take Finasteride if I have Peyronies Disease?

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PTalk

Hey all,

I have read through the forums and all I can find are people advising AGAINST the use of Finasteride for hair loss due to the potential side effects, or that it may have caused their Peyronies.  Out of the many people who take it I suspect it is more of a vocal minority, but I do not disregard their concerns, hence why I'm asking..

I am wondering if anyone here has taken Finasteride (Propecia) successfully while already having Peyronies?

3 years after getting Peyronies I still have pain a lot of days, and after sex will leave my penis worse-for-wear for at least a few days after (if not more) and bring on a lot more pain etc.

In saying that, I'm losing 120-200 hairs a day easily and I've definitely begun to thin out on top and around the crown.

I basically have no other options that'll work other than Fin, so I ask, has anyone here been on Finasteride with Peyronies?  Did it make things worse?  Or was it just fine?  I know it changes hormones etc, but I've been putting it off for about a year now but getting to the point where I really want to do something about this hair loss :(   Hoping to hear some accounts other than disaster stories ha ha!  Otherwise it's baldness and a ruined dick in my late 20's....I want to save my hair.


popopo

As a 22 year old who got peyronies from jelqing/ved use and stretching etc etc. (AKA self harm for vanity) who also has borderline low testosterone and STILL is almost bald I have to say..It would be vain and dumb to take finasteride for baldness. It will work, sure it will. But you might know why too. It blocks dihydrotestosterone in your blood. The hormone responsible for penis growth, beard growth and the development of other secundairy male characteristics in puberty. By blocking this you might slow down the progression of balding, but at what cost? You'll never know untill you try and I think being bald but having all your male  in check sure as hell beats having a full head of hair but losing your virility along the way. Who am I to judge tho? But I hope you do the right thing. Finasteride is known to cause depression, lack of libido, anxiety and a lot of other low t3stosterone symptoms and I dont know how, but A LOT of men will never recover and will be left with permanent side effects.
Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

popopo

There is a big chance nothing will go wrong, but having low dht is not a good thing. I understand why you don't want to lose your hairs I have issues with it as well, but low dht is a problem in and on itself. There is a reason you naturally have it. It's not that you dht is "too high" causing balding. You're genetically predisposed and any "normal" leven of dht will cause you to lose hair. It sucks, I know.. but why dont you look into other (in my opinion superior) treatments like hair transplants. Or if that wont give you what youre looking for I'd just  wait before the treatment is perfected.
Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

Reascot

Fin can have devastating side effects. It may end up costing you the use of your penis. Are you willing to trade in your penis for a head of hair?  

james1947

QuoteI am wondering if anyone here has taken Finasteride (Propecia) successfully
I take it before Peyronies, It made me hair grout on all my body, not just the head, made me ED and was a contributor to my Peyronies!!!

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Crooked_Stick

It's better to be bald and have a penis that works as opposed to the opposite, Finesteride is poison.....I used it and here I am.  :-[
Born 1960, Diagnosed 2013
Initial 40 degree bend, 1" loss, Xiaflex 3 rds of 2 injections
Current 25 degree bend, no palpable plaque, 1/4" loss
VED 5-6 days/week, traction daily,
TRT 20 ml twice weekly, Cialas 3 mg - No ED - Doing Well!

Tychy

All I've read about it, I'd rather go Captain Picard than further into Hook territory.

(Don't use it)

JayGould

Just a quick read on propeciahelp.com should make anyone thinking of getting on Finasteride forget about the idea immediately.

Man, if we think we have it crappy ...those guys have it even worse.

Toronto34

Yeah, if you look under the symptoms on that propecia help page, it's pretty scary.

Pfract

Yes... Go ahead, take it and enjoy your limp penis afterwards. But yeah, you will have hair. It's your choice.  

Graggaxy

Asking this myself. Would it be stupid to take finasteride while battling peyronies?
Replace this text with critical info about your case
such as age
first symptoms (deformity, Erectile Dysfunction)
official diagnosis
treatments tried
relationship status
Etc

TonySa

PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

anchorout

I have been on Fin for 23 years, without noticeable problems until Peyronies Disease starting about 2 years ago. It is of course impossible to know for sure if there is a correlation, but current research seems to indicate caution.  
Age 60, first erectile pain mid-2018. Noticed hourglass deformity late 2019 (hadn't actually been looking prior). Now moderate bend, hourglass turned into overall reduction of about 40% in girth and length, cannot have intercourse.

peter123

Quote from: anchorout on August 09, 2020, 02:57:19 PM
I have been on Fin for 23 years, without noticeable problems until Peyronies Disease starting about 2 years ago. It is of course impossible to know for sure if there is a correlation, but current research seems to indicate caution.

the level of research is the lowest of levels though, there is nothing besides case reports. what people are getting now is that animals are really not great way to draw conclusions to what happens in humans. remember based on this "research" we should have multiple treatments fro peyronies already but it often does not translate in a clinical setting. you'd probably have to be severely androgen deficient for it to actually cause peyronies
THIS USER HAS BEEN BANNED FROM FORUM FOR REPEATED RULE VIOLATIONS He never had Peyronies Disease but has body dysmorphia and his pastime was to attack all treatments, medical resources, and opinions.

TonySa

The most ED problems are especially correlated with the higher doses used for prostate cancer.  That said, I'd avoid it at all costs as there have been some reports of the ED not being reversible when stopping the med.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

jan.schaller1958

I agree with Tony. Never take Finasteride. I had hair transplants back in 2012. 3000 grafts cost a bit, but worth it. They offered me Finasteride, and I said no way. They had that junk out to you like candy if you want it, but I said no. Hair transplants do the trick. Forget that Finasteride  
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Graggaxy

I think I'll hop on finasteride. I'm only 23. if I can't have a functioning dick I at least want some good hair. How is finasteride gonna make an already fckd dick any worse?
Replace this text with critical info about your case
such as age
first symptoms (deformity, Erectile Dysfunction)
official diagnosis
treatments tried
relationship status
Etc

peter123

I probably won't have much effect.. After all one needs to realize that just bc there is a scientific theory it doesn't need to pan out. The theory is that steroids have anti inflammatory properties, dht stimulates no synthase which reduces inflammation in theory. But that theory doesn't need to be true for example in theory many drugs make sense for treatment of peyronies but most don't have any effect. But personally I'll definitely avoid it at least in the active phase. I do believe it's an important aspect of wound healing and be it psychological or not my peyronies appears to get worse while I was on fin. Honestly I'm so depressed, I can't have anything, I'm the height of a child, dick of a 10 year old and bald like a 60 year old. I just feel like giving up on the idea of feeling happy and confident with my own body
THIS USER HAS BEEN BANNED FROM FORUM FOR REPEATED RULE VIOLATIONS He never had Peyronies Disease but has body dysmorphia and his pastime was to attack all treatments, medical resources, and opinions.

Graggaxy

Do you think topical finasteride mixed with minoxidil would be better suited for me?
Replace this text with critical info about your case
such as age
first symptoms (deformity, Erectile Dysfunction)
official diagnosis
treatments tried
relationship status
Etc

loumw77

I tried Finesteride for 5 months and stopped because of breast tenderness and loss of erections. Both returned to normal, but a few weeks later I developed Peyronie's and now have 60'-50' curve. I do believe Finesteride made me more susceptible to Peyronie's and I wish I had never taken it, even for just a short while.
In my opinion, don't do it.
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jan.schaller1958

I know this board is about Peyroines, not male pattern baldness, but to be honest, male pattern baldness is a much easier fix than Peyroines. 1000% easier if you have the money.

Finasteride is just 1/2 the dose of proscar, a drug for middle aged men with benign prostatic enlargement. So, it inhibits certain hormones which cause hair loss on the top of the head in men genetically predisposed to it. I never had any baldness until 50 (I don't know why these issues started hitting me after 50)- before the Peyroines. Up to 50, I never thought I'd ever lose any hair. But even then, I didn't lose that much, just a bit up top. I was afraid to take finasteride because I had heard all the horror stories. So, i can't comment on it. So I just saved up the money and had hair transplants. They just move some of the hair from the sides to the top and it works great. I had 3000 grafts of 3 or 4 hair follicles each graft. I could use another 3000 grafts, to be fully covered. But, it costs a bit and insurance won't cover it.

So, with male pattern baldness, that's fixable. Expensive but easily fixable. Peyroines is so much more difficult and it's never really fully able to be cured, but fixing baldness is nothing by comparison to Peyroines.  
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Juan

I can't tell more beyond my personal experience.

Currently I'm 38 and diagnosed a month ago. Decided to quit finasteride 2 weeks ago.

I've been taking finasteride 1mg everyday day from age 24 to 30 and from 30 to 38 1mg three times a week.

Never experienced erecting disfunction.
39 yo. Onset Oct/20. 25ยบ dorsal bend 1cm before glans + high erection angle.
Pentoxifiline 400x3. Tadalafil 2,5. Vit E, D3, K2. Zinc.Omega3. Ubiquinol. ALCAR.
Traction with PMP.

jan.schaller1958

Juan,

I don't have any experience with Finasteride, as I mentioned, since these stories of it causing ED have been around for 10+ years. So, I just skipped it and went straight to hair transplants at age 50, since I never had hair loss before that. Maybe it doesn't cause ED. I have heard of quite a few men on it and never had any ED problems.  
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TonySa

In studies it seems Erectile Dysfunction is more likely when taking higher doses of finisteride for enlarged prostrate rather than the lower dose for hair loss.  Still, there are reports of men who took the lower dose and report Erectile Dysfunction.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

jan.schaller1958

Juan,

Fixing hair loss is easy. Not cheap and not covered by insurance, but transplants have been available for at least 10 years, the good ones (not those crappy old corn row plugs they had in the 80s), but you don't need finasteride for transplants. I refused it, even though hair transplant docs hand them out like jelly beans, because I heard all the stories of it messing with your hormones. I would think in younger men it would be less an issue. But, having never tried fin I can't speak from experience. I don't have strong feelings about it one way or the other.  
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