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Author Topic: New to Peyronie's. Abstinence?  (Read 2603 times)

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New to Peyronie's. Abstinence?
« on: June 27, 2017, 09:09:12 PM »

Hi All,

Firstly, thank you to the founders and members of this forum. What a great resource for information and support.

I have read the excellent Survival Guide and I am looking for urgent, specific advice about whether I should abstain from sex or not. Avoid erections or promote, through VED or. Assuming I am about 6 months into what I assume to be the acute phase.

I am 53 years old and have curvature (not yet properly measured) but about 20 deg upward curvature, 30-40 deg pointing to the left and shortening of about 2cm. I can feel the area of firm plaque along the whole length of the top of the shaft. About 6 months ago I noticed some lumpiness, assumed I had just over-worked things and although I got a referral from my doctor to a urologist, some life events got in the way and I let it slide. But on resuming relations in the last couple of months it has really become obvious. I have made an appointment with my regular doctor but I am not yet formally diagnosed and will need a referral to a urologist, probably about a 6 week wait. I have Dupyteren's contracture in both hands so I think it is very likely to be Peyronie's Disease.

I will follow the advice in the Survival Guide, but given the fact I won't be able to see a urologist immediately. I want to take every possible precaution as early as I can and since I am likely in the acute phase, I wonder if any of the Survival Guide advise differs from when in the stable phase? I have seen mention of abstinence on here to avoid further trauma, but also advice to use VEDs and Erectile Dysfunction meds. They seem to be in conflict.

Some specific questions, assuming I am in acute phase:
  • Should I abstain from sex or not?
    Should I seek to have more erections through using Erectile Dysfunction meds and/or VED or not?
    I'm inclined to wait until seeing urologist before considering traction. Does that make sense?

Dietary supplements, I will do. I don't know if I will be able to get a Pentox prescription but plan to ask my doctor. BTW, I have no pain. I do have somewhat diminished sensation though, due to a spinal injury. I already use EDs, Cialis and/or Levitra

Any advice is very much appreciated.


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Re: New to Peyronie's. Abstinence?
« Reply #1 on: June 28, 2017, 02:30:36 AM »

Hey Philby,

welcome to the forum!

It's a good approach to wait with traction until you have a diagnosis. Six weeks should be tolerable in terms of waiting without traction (I started after acute phase).
Cialis should be dosed 2.5 to 5mg daily, instead of 20 before intercourse, to have a steady bioavailability. As you have Erectile Dysfunction, dose at 5mg.
You can start supplements now (CoQ10, Bromelain, VitaminK and ALCAR) without diagnosis. They won't do bad to a healthy person. Research their side effects with Wikipedia / google.
You may start heat treatment now, using a washcloth, IR lamp or hand warmers.

Abstain from sex if you have pain afterwards or see dramatic worsening of curvature. Be gentle (general good consideration). If you masturbate, concentrate more on the glans and be also gentle. It may not work at first due to being used to more vigorous action, but will do soon. Always sexual activities with full erection only! No 2 hour edging!
Otherwise erections and sex are supposed to be healthy, as they stretch the tissue and promote blood flow to it. Especially nighttime erections, so get a solid 8 hours of sleep without alcohol to promote REM sleep.

Pentox seems to be a good idea, if you can get it through the primary care doc.

Get well soon!


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Re: New to Peyronie's. Abstinence?
« Reply #2 on: June 28, 2017, 11:56:35 AM »

I agree with everything Tychy said! Definitely get on CoQ10 or Ubiquinol instead if you can afford it. I personally would start traction as soon as possible with gentle care.


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Re: New to Peyronie's. Abstinence?
« Reply #3 on: June 28, 2017, 07:36:01 PM »

Thanks both for the advice.
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