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Author Topic: Nutritionist and Anti-Inflammation Diet  (Read 4917 times)

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Toronto34

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Nutritionist and Anti-Inflammation Diet
« on: June 22, 2017, 09:58:56 AM »

Hello,

I know there’s a lot of discussion about the anti-inflammation diet and I’ve been trying to adhere to it since I was diagnosed 4 months ago. Mostly I’ve been successful, but I cheat and forget sometimes. In an effort to get more on top of it I actually saw a nutritionist yesterday. I figured I’d share this experience and her advice about an anti-inflammatory diet.

When I met with her I explained my specific issues, including Peyronies and CPPS and I took her through my current diet, sleeping habits and exercise routine, which she felt was pretty good. She’d never heard of Peyronies (understandable), but would look into it before our next session. After that she did some diagnostic, electro-acupuncture testing to determine what were the most inflammatory foods for me specifically.

Now the whole testing is a bit suspect and after researching it post-appointment I've found there’s not much real scientific support for it, but the results were interesting and I am going to follow the nutritionist’s advice to see how it goes. Basically it indicated that dairy and corn were big inflammatory agents for me, while beer was the biggest. Other things like sugar were bad but not especially so.  She test dozens of different foods, spices and alcohols and some were very specific (I must avoid clams, but not other seafood). Most things were in the green zone for me (normal, healthy and not inflammatory).

The only thing I really need to change as a result of this is to eliminate corn, which I wasn’t doing before. Goodbye tortilla chips. Otherwise I will continue to avoid dairy, sugar, white flour, processed foods, fried foods etc. even if some of those were not particularly bad for me according to this test.

A friend who does not have Peryonies recently did this test and based on the results eliminated foods specifically inflammatory for him, which were different than mine. He’s gone mostly gluten free and only drinks clear alcohol (whiskey was not a problem for me, but tequila was). He says he’s never felt better. Of course I don’t just want to feel good, I want my penis to return to normal, which may be a big ask from a diet. Hopefully it will at least help prevent things from getting worse.

Anyways, I am curious if anyone else ever done this sort of testing? What do you guys think about a more individually targeted anti-inflammatory diet? I will also update after my next appointment if she has any Peyronies-specific advice.
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Paolo

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Re: Nutritionist and Anti-Inflammation Diet
« Reply #1 on: June 22, 2017, 03:06:47 PM »

Hi Toronto34, your post did interest me, although I haven't been tested I know that certain foods and drinks are not good for me.

At your next appointment ask about FODMAP diets (see link below)

http://www.cdhf.ca/bank/document_en/32-fodmaps.pdf#zoom=100

Don't know if you have GI issues, to some extent I think we all do. I restrict myself to three meals a day between 08.30-18.00 hours with no snacks in-between, only liquids before/after this.

Please keep posting on this  :)
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Tychy

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Re: Nutritionist and Anti-Inflammation Diet
« Reply #2 on: June 23, 2017, 02:50:57 AM »

Quote
After that she did some diagnostic, electro-acupuncture testing to determine what were the most inflammatory foods for me specifically.
Now the whole testing is a bit suspect and after researching it post-appointment I've found there’s not much real scientific support for it

Like that traditional chinese medicine doc that did some arm pendulum stuff for diagnosis. I noped out of it after four treatments. The acupuncture was helping with tension, but it was so cringeworthy  ???

Nevertheless of the diagnosis method, no corn and beer sounds like a plan. For me it was wheat and beer (bloating, diarrhea) and nowadays I'm supplementing with spelt and three to four times a year enjoying some quality gin. Otherwise sober. You don't want that expensive Cialis wasted by alcohol xD

Edit: No beer for a German is equal to a social death sentence, though :P
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Toronto34

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Re: Nutritionist and Anti-Inflammation Diet
« Reply #3 on: June 23, 2017, 11:21:58 AM »

Yeah, I went to an acupuncturist for neck/shoulder tension and she said part of my problem was to much water in the gallbladder (her English was bad so maybe I misunderstood). Anyways, her suggested treatment was to not eat any fruit for 6 months! I kind of stopped going after that.

Even weirder was that she asked me, after looking at my tongue, whether or not I had anger issues and specifically if I'd had a nightmare the night before in which I was angry or screaming. Weirdly, I had had just such a nightmare. Not sure how she gathered that from looking at my tongue or how it was going to help me get better.

Anyways, I think with dietary stuff you kind of have to read your body and see how it's reacting to things. So I'll see if avoiding corn helps. I've been off beer for years, but I think I can relate to your pain, Tychy. A Canadian avoiding beer during summer patio season is like a Catholic avoiding the Eucharist.
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csm101

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Re: Nutritionist and Anti-Inflammation Diet
« Reply #4 on: June 25, 2017, 09:44:10 PM »

Hey T.O 34, I'm in Mississauga - Small world eh! - With me I dont feel any better if I work the FODMAP diet or not. Still feel the same, Wax and Wane. Tried it all nothing works well enough for me to say it makes a difference.

Nice thread, stay in touch.

CSM101
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NeoV

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Re: Nutritionist and Anti-Inflammation Diet
« Reply #5 on: June 26, 2017, 10:32:08 AM »

My neuropathy is so severe that I've forced myself to go ketogenic for the last three days. Apparently nerve pain may improve or go away after a long long time. I'm assuming it's diabetic neuropathy, which is funny since I'm quite thin. Still, I keep reading about many fit guys getting insulin resistance and having terrible symptoms so I'm giving this a go. It may certainly help my Peyronie's. If diabetes / insulin resistance damages the nerves via damaging blood vessels, than it certainly would wreck the penis, and we know in fact that many people with diabetes get Peyronie's and Dupuytren's. I'm going all in on this, I'm afraid the nerve pain gives me no other choice. A year ago or so I tried this but gave in to temptation, but at that time I wasn't too convinced my nerve pain was from carbs and insulin resistance.

csm101

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Re: Nutritionist and Anti-Inflammation Diet
« Reply #6 on: June 26, 2017, 01:03:08 PM »

NeoV

Have you tried Lyerica or Cymblata?
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Tychy

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Re: Nutritionist and Anti-Inflammation Diet
« Reply #7 on: June 26, 2017, 04:46:06 PM »

Do you measure your blood sugar, NeoV? Test devices are around 30€. With additional stripes you should be able to do a blood sugar assessment for around 50€ in total with device for one to two weeks. You don't want to play with diabetes.

https://en.wikipedia.org/wiki/Glucose_tolerance_test
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NeoV

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Re: Nutritionist and Anti-Inflammation Diet
« Reply #8 on: June 26, 2017, 07:32:43 PM »

csm101, no I haven't but I've just started reading about them. I want to try doing this without drugs first of course, so I'll be going for the diet route for quite some time! Thanks for bringing them up.

Tychy, I will likely buy something to test my blood sugar here in Japan, but I'm not sure which to get here. Maybe online would work best. My main symptoms are semi-frequent panic attacks and 24/7 pain and numbness on my feet, legs, hands, face, and penis.

Tychy

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Re: Nutritionist and Anti-Inflammation Diet
« Reply #9 on: June 27, 2017, 09:21:57 AM »

I don't want to advertise stuff, so feel free to delete the link if this violates policies: https://www.contournext.com/our-products/contour-next-products/contour-next-meter/
You should be able to get that from a pharmacy or amazon co jp.

On a side note: This sounds really bad. How long is this going on? This could be anything from diabetes, MS or tick born diseases, celiac, severe vitamin deficiency B6/9 or B12. You have this in four quadrants of your body. I would look into all the demyelinating diseases and get the most severe stuff definitely checked out.

I had episodes of tingling and burning in my extremities, but I'm looking towards Ehlers-Danloss or similar connective tissue diseases (I'm hypermobile in hands, shoulders and knees) and it improved when omitting wheat from my diet.
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JayGould

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Re: Nutritionist and Anti-Inflammation Diet
« Reply #10 on: June 27, 2017, 11:16:04 AM »

Tychy, I will likely buy something to test my blood sugar here in Japan, but I'm not sure which to get here. Maybe online would work best. My main symptoms are semi-frequent panic attacks and 24/7 pain and numbness on my feet, legs, hands, face, and penis.

Check if you have mold in your house/apartment. I struggled with very similar issues (numbness, panic attacks) for many years and eventually found out it was mold causing it. It causes an autoimmune disease and raises your tgf-beta and inflammatory markers. My tgf-beta was about 10x above the normal range (and is still pretty high).

My mold Doctor told me he has seen a lot of his patients having Peyronie's disease.
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Paolo

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Re: Nutritionist and Anti-Inflammation Diet
« Reply #11 on: June 27, 2017, 02:23:50 PM »

Mold is very bad indeed, can cause amongst other things  pleurisy  :(
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Tychy

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Re: Nutritionist and Anti-Inflammation Diet
« Reply #12 on: June 27, 2017, 02:36:23 PM »

@JayGould: funny, EDS vascular type contains mutations on TGF-beta receptors
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NeoV

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Re: Nutritionist and Anti-Inflammation Diet
« Reply #13 on: June 28, 2017, 12:17:32 PM »

Thank you for your concern everyone, that means a lot to me.

JayGould, that's so interesting, and awful of course. I have moved so many times that it's hard to imagine it's mold, but who knows? My panic attacks actually began during my masters thesis. I was extremely stressed out and eating a high carb diet, even if it was whole grains. My joint and nerve pain began when my Peyronie's did 6 years ago, all at once. The numbness did not come until several years later. How are your symptoms now?

Tychy, I had comprehensive blood work and brain scans at a neurology center (they looked for immune diseases too) along with basic nerve tests which all found nothing. The doctor DID say my blood sugar was a tiny bit high. And you know that when a doctor says that, the truth is probably that it's much higher than it should be. I've heard a lot of forums and people experienced with diabetes say that in truth, even mildly raised blood sugar levels is enough to cause nerve damage. I am of course always worrying about lyme's disease and the less diagnosed illnesses..

I'm still ketogenic, and while my nerves hurt, I have to say that my hands feel more "real" and responsive. It's odd. I have read that nerves are painful as they regrow, so perhaps this will work given enough time. Also, my Peyronie's is the best it's been in two years. It may be the new CoQ10 (veggie caps), but my penis feels a bit better now on this diet as well. I can't say anything for sure, but I will not give up on this.

Tychy

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Re: Nutritionist and Anti-Inflammation Diet
« Reply #14 on: June 28, 2017, 02:39:29 PM »

There really is no giving up. It's just not a choice :)

Diabetes type two is manageable by diet alone usually and you're doing the right thing with keto diet. But you need to have this as a definitive diagnosis. It's the most common reason for the symptoms. Then you don't have to worry about the exotic stuff. Get a provocation test with glucose at an internal medicine center or similar.

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JayGould

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Re: Nutritionist and Anti-Inflammation Diet
« Reply #15 on: June 28, 2017, 03:29:49 PM »

Thank you for your concern everyone, that means a lot to me.

JayGould, that's so interesting, and awful of course. I have moved so many times that it's hard to imagine it's mold, but who knows? My panic attacks actually began during my masters thesis. I was extremely stressed out and eating a high carb diet, even if it was whole grains. My joint and nerve pain began when my Peyronie's did 6 years ago, all at once. The numbness did not come until several years later. How are your symptoms now?

Have you brought your things with you when you've moved? If so your things may have been contaminated and keep on making you sick. This happened to me and to many other people. Also I would say at least 70% of buildings are mold contaminated and especially if you have an airconditioner. Most people don't get sick from it but once you've gotten really sick once (and you have the genetics which makes it impossible to clear out the toxins - which about 25-28% of all humans have), then every little amount of mold is going to continue to make/keep you sick.

Do you have any other symptoms aside from panic attacks and nerve pain? Have you been sick more often (especially after heavy exercise)? Any ADHD symptoms/brain fog? Have you checked your thyroid to see what your values are at? Testosterone? If you have lower than normal testosterone (lower than your own normal) and high TSH then those would be warning signs.

My symptoms are quite bad still. I am basically housebound since 2 years back. I can't walk more than 50 meters without getting ill. But for the first 10 years I was dealing with this I was able to exercise etc, although I would easily get sick after a heavy work out. I'm slowly getting better though by avoiding mold and taking a lot of different medications.

About whole grains, this is the most "moldy" food you can eat and everyone who is sick from mold become intolerant to grains (and many also become intolerant to dairy). If you haven't done so already, try doing a food intolerance blood test and see what it says. If it shows grains and dairy as intolerances, then it's another warning sign you may be dealing with mold.

There's a documentary out now that you can watch for free (for whoever is interested). Again with my mold Doctor saying that a lot of his patients (much higher percentage than normal) had Peyronie's, and that it increases TGF-Beta and other inflammatory markers in the body, it could be something to look further into for many people here. Not trying to be like the man with the hammer syndrome (whom to every problem looks like a nail), but who knows.

https://blog.bulletproof.com/moldy-movie-coming-soon/
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Toronto34

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Re: Nutritionist and Anti-Inflammation Diet
« Reply #16 on: July 04, 2017, 01:02:43 PM »

Hi all,

I thought I'd give a bit of an update about my 2nd appointment. I don't think there's anything too new for people familiar with an anti-inflammatory diet, but it may be slightly different than what some other sources recommend. Here are the basics:

Foods to Eat

- Most vegetables (except nightshades, see below), especially dark leafy greens.
- Most fresh and frozen fruits (some exceptions below), lemons and limes are beneficial.
- Avocados are great.
- Grains: Amaranth, buckwheat, millet, quinoa, teff and rice
- Legumes and beans, including soy products like tofu and tempeh
- Fresh fish (bake, broil, poach and steam)
- Animal protein: Organic/free range poultry, wild game, lamb, duck, rabbit and quail
- No dairy, but milk substitutes like Soy or almond milk are okay (keep to 1/2 cup a day)
- Most seeds and nuts, including butters; flax seeds and pumpkin seeds are especially good. Pumpkins seeds are high in zinc and good for the prostate. Peanuts are not good.
- Oils and fats: Cook with olive oil, sesame oil and coconut butter. Consume without heating: Omega 3 fatty acids (flax, fish oil) and Omega 6 fatty acids (sesame, sunflower, walnut, pumpkin oils)


Foods to Avoid

- Nightshade vegetables: Tomatoes, white potatoes, peppers, eggplant, tobacco (duh), CORN (specifically for me)...Sweet Potatoes are GOOD.
- Certain citrus fruits: orange, grapefruit and tangerines. Bananas can actually be bad for a lot of people (not me though).
- Wheat, oats, barely, spelt, rye, kamut and couscous.
- Shellfish
- Red meat, pork and eggs.
- Dairy (milk, cream, cheese, yoghurt, butter)
- Peanuts and peanut butter.
- Margarine, shortening, commercial salad, ghee

My nutritionist also said that these are general guidelines and are somewhat dependent on the person. For example, bananas, shellfish and wheat aren't too bad for me so I don't have to avoid like the plague, but generally steering clear of them is good. Corn and dairy are definitely not good for me. She also said, most people should limit their nightshade vegetable intake.

In addition to the above dietary recommendations, she suggested these supplements based on me having Peyronies:

- Vitamin C, every day
- Acetyl-L-Carnitine, 1 gram twice a day for 3 months (with food)
- Bromelain, 500 mg 1-3 times a day (with or without food)
- Co-Q-10, 100 mg 2 times a day with a fat containing meal (she suggested with flax oil, also good with vitamin E).

Those are the basics. Happy to answer any questions.
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Tychy

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Re: Nutritionist and Anti-Inflammation Diet
« Reply #17 on: July 04, 2017, 02:24:06 PM »

Thanks for the update! I'd like to add that Quercetin goes well with Bromelain and is one of the big players in phyto-antiinflammatories. I usually take them together in the morning on an empty stomach. Dosage between 250-500mg.
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caroline89

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Re: Nutritionist and Anti-Inflammation Diet
« Reply #18 on: September 03, 2022, 04:27:04 AM »

Celiac disease is a chronic digestive and immune disorder that damages the small intestine. This celiac disease is triggered by eating foods containing gluten. This disease can cause long-term digestive problems and prevent your body from getting all the nutrients it needs.
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