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Welcome to J Francois Eid, MD - Directly answering member questions in the "Medical Professionals" section below the Treatment boards.
https://www.peyroniesforum.net/index.php/topic,17819.0.html

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Author Topic: Is getting 100% of my size back possible?  (Read 1980 times)

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Trashboat

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Is getting 100% of my size back possible?
« on: April 18, 2017, 03:51:40 PM »
I need to be where i was before.  Not want,  but need.
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skunkworks

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Re: Is getting 100% of my size back possible?
« Reply #1 on: April 19, 2017, 06:06:55 AM »
Want/need/need/want.

We've all been there, I am afraid your situation is no different and stating your need will not achieve much anything at all.

Read about the treatments, apply them, hope for the best.
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This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

popopo

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Re: Is getting 100% of my size back possible?
« Reply #2 on: April 19, 2017, 06:41:16 AM »
I know that feel man and three years later I still have pain sometimes and I went from 17 to about 14/15cm rock hard. Sometimes if I really use my pelvic muscles I can get it back closer to the 17cm line, but the shape and girth is affected too by hourglassing. All in all I haven't gained back a single mm and if anything my situation has gotten worse over time, but I must say that I also don't get the care I need. The doc's I've been to don't even know about VED or pentox/cialis and would probably call me nuts if I started to use the VED again. I just hope I'll find a GOOD doctor soon cause like you I feel this is a situation I can simply not accept being in. But honestly, there just isn't a thing we can do expect for hope and get the treatments that ARE available. Do whatever you think works, as long as you aren't wasting too much time, money and effort in things that don't work, but other than that you basiically got no option besides just sitting it out trying things that are not even close to a cure and hope that in the meantime doc's are working hard for us behind the scenes.
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Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

james1947

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Re: Is getting 100% of my size back possible?
« Reply #3 on: April 19, 2017, 04:03:52 PM »
Popopo

You are 14/15 now from 17. VED, Pentox, Cialis will help you (in my opinion and own experience) not to lose more and may get back some length and girth.
I know what you say about the doctor is a shame, but you depend on yourself not him.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Trashboat

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Re: Is getting 100% of my size back possible?
« Reply #4 on: April 23, 2017, 11:39:35 AM »
If it's not 100 % normal by this time next year i will F^@$!ng kill myself. 
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popopo

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Re: Is getting 100% of my size back possible?
« Reply #5 on: April 23, 2017, 05:49:26 PM »
Yeah, but I ain't a doctor and pentox/cialis isn't a cure and VED is not just a tool to help but also a risk to take in my opinion so I can't help but wait.. It'a frustrating but I calm my mind with the thought that even when i was on pentox and cialis things got worse so I just keep hoping for better options in the future and hopefully find a doc to still help me with this.
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Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

popopo

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Re: Is getting 100% of my size back possible?
« Reply #6 on: May 12, 2017, 04:01:32 AM »
Trashboat, I tell myself that everyday too and I'm still around. Better not get caught up in that mindset because it might be worth it to stick it out a little longer.
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Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

Jack1909

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Re: Is getting 100% of my size back possible?
« Reply #7 on: May 12, 2017, 04:18:15 AM »
you go nuts for just 2 cm when you should account yourselves lucky..some people in here lost a lot more (I lost 6 cm) and that's one of the issues they are dealing with. Come guys, you cannot just kill yourselves for length/girth ssues..
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31 yrs old
Severe congenital curvature. 3 straightening surgeries
Big lump/stitch w/ left deviation after 2012 surgery
Severe Erectile Dysfunction after last one in 2014. Still crooked
Slightly improved w/ shockwave therapy
Looks like only one side of my penis works

james1947

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Re: Is getting 100% of my size back possible?
« Reply #8 on: May 13, 2017, 02:59:32 AM »
I am with you on that Jack. Lost also 6 cm length

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum
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