Open Questions on Peyronies Disease (That won't fit under any of our current topics)

[Tim468]

I agree with George, with a couple of caveats or other points.

If one comes here infrequently, then it is harder to follow the multiple sub-themes here. But the multiple threaded messages in the other discussed format is not much better IMX.

Another thing (this was recently experienced several times in the theme started by NYCJake), folks copy an irrelevant quote, and then respond to something else! That sort of defeats the purpose of quoting! But I felt it was likely due to misunderstanding how to "respond", as Jake does that with most replies (uses a text quote).

So, FYI, one need not use quotations in a response - once can avoid need that by using Title changes for the post (which I often forget to do)(and Hawk tears his hair out over); one can use quotes, but make them relevant to what you say!; and as a general rule, the response one posts should never be shorter than the quoted text. That is, it is silly to copy an entire paragraph and then say "Me too!". This is a long-standing "Netiquette" rule of thumb - that a post should not be shorter than the quoted text. It is a good rule of thumb IMHO.

Tim

[kenny82]

Hi,

I had an injury one year ago and then the problems began.

Now i have been to some doc and he did something like a ultrasound i dont know exactly. He sad that i had a small fibrous tissue, thats what causes the bend and the hardend region on the right that i have during erection. I havent asked about the details where exactly the fibrosis was, on the tunica or inside the corpora, because the doc was really a jerk, i cant describe it but he was less then serious and i felt very terrible after the visit.

As said before my biggest problem is that the penis is always somehow big in flaccid and so in hardened state. For instance during exercise or sports i slighty get smaller but also more hardend and not small and soft like it was before the injury. That causes my biggest worries that the tiussue is fibrosing or something like that.

I am currently taking nothing fancy just VitE every day and one day or the other ALC or L Arginin. That helps slightly.

I've been trying to explain the big flaccid and hardend states to me and think that it might have something to do with the arteries. MAybe i have damaged some of them during the injury and they now are somehow hyperactive and so pump to much blood 24/7.
When i press my thumb on the top of the corpora i can really feel the blood/pulse on them with the hearbeat. That i cant remember to be able to do before the injury. Not in the flaccid state anyway.


Anyone how has experienced similar behaivour? Is there something like a test that i can get done to check the bloodflow? Most of the docs have been really bad about the whole peyronies thing and i still have to find a decent one, who may get me some answers.

Thank You
Kenny

P.S.: Dont know what section this belogs so i post it in generall.

[Old Man]

Believer:

You need to settle down and get your nerves calmed. I have had many cystoscopes done over the years and yet to have one that "hurt" all that bad. A tip about how to accept doing one: take deep breaths, hold for a second, relax and repeat this several times while the scope is being inserted into the urethra. The new flexible scopes are very easy to insert without pain or damage. There should be no reason you would have a bad experience with this procedure.

Now about the decision to have one. In my experience with this subject, (having had prostate cancer, kidney stones, bladder problems and other item), have never had any problems with the procedure. So, there were many scopes done on me for these problems. I know it sounds scary, but it really is not. Your posts state several items that do not lend themselves to a problem with Peyronies Disease. It is hardly likely that any problem with the tunica area could cause slow urine flow, nor is it possible that semen could "dry out" while in the urethra. An enlarged or infected prostate gland can and will cause slow urine flow. Also, BPH (benign prostate hyperplasia) can cause varied urine flows. These items can be determined with a cystoscope.

As has been said before, we are not doctors here, but have been through many procedures for many problems and have had the experiences of them. Having said that, IMHO, if it were my decision to have or not to have the cystoscope, I would elect for the procedure. That way, I would know for sure that my bladder, urethra and all related things in the track were OK. From your posts, it sounds like that you have a urinary track infection or something wrong in the urinary track that is causing your problems.

So, only you can make the decision, but the cystoscope would tell what, it any, problems existed in the track area.

Regards, Old Man

[Believer]

Old Man,

Your advice, as usual, is rather persuasive! Thanks.

What's your take on the verapamil injections causing harm? I e-mailed Dr. Lue and I'm hoping to hear his take on it. All I'm concerned about is worsening. I am willing to subject myself to any kind of torture as long as I am confident that I won't do more harm. It's particularly scary because the darn FastSize caused my plaque to start growing in November and I can't forgive myself for that. FastSize definitely has its pluses, but one must be EXTREMELY CAREFUL with it.

Believer

[ComeBacKid]

Believer,

Verapamil injections have had little if any success and as documented by our unscientific yet accurate poll has made some mens peyronies cases worse!  Verapamil still isnt even proven to work itself.   The topical verapamil didn't work at all either.  Anyone who pushes you to have this done you need to challenge on what facts or evidence they have regarding the effectiveness of the procedure, I bet they won't be able to provide you with anything.  On the other hand Dr. Lue has documented success with pentox, a relatively cheap drug, it can be purchased at walmart for 30 bucks a month for three pills a day.  It is low on side effects and a handfull of men here have seen improvements using it.  Even if it doesnt improve your condition it could prevent it from getting worse by blocking tgf-beta 1 and preventing inflamation which leads to more fibrosis.  

Comebackid

[Old Man]

Believer:

After having had 12 VI injections that caused me more plaque and nodules, there is no way that I could recommend anyone to have them done. There may be advancements in the way there are given now, but I don't think there could be much better way to get them than what my uro did back then.

Just about every injection gave me more nodules and/or plaque. After the session was over, I decided there would be no more them. It took many months of VED therapy to get rid of my Peyronies Disease symptoms.

So, bottom line, I cannot and will not recommend to anyone that they should do the VI injections.

Sorry if this is not what you want to hear, but I must relate my personal experience with them.

Old Man

[despise]

Hey guys! It's me again Despise. Like usual I have to keep waiting because of our financial issues. So I want to get more advice from you guys about what you think I should do about my symptoms. I need to convince my uro and this other uro that im seeing to open their amaginations and except the possibility I might have peyronies and something else. Again im going to explain my symptoms to you guys because you are the pro's in this. Everytime I lay down my flacid penis can be so bended it will touch my left leg and sometimes way worse curving and wraping around like a half of a circle. I get swollen where my flacid penis will engorge and bend. It gets swollen where it 4 5 inches flacid and im 6 with erect. It will stick on my testicles and when I stand up the swollen penis will just go straight down. The urination hasn't been hurting as much but I still am having issues. Not being able to get the last drips of pee out sometimes and have to push to get it out. Some pain while urinating and the urine stream is always weird never a regular cindeler. As for my wet dreams they aren't pleasent and queite painful. After I have the wet dream I feel burning. My uro think I have peyronies which can be true but these are other symptoms that don't associate with peyronies right? As for my bending im always to the left even flacid. As for my erections it starts out going straight to my left touching my left leg. then when im laying down it lays almost completely on my stomach with my right vein pushing up against the skin. As if the vein is broken and instead of it going up with the erection it bends on the skin looking like its trying to burst out. when i get a full erection sitting its curved a little to the left but its also kinda straight to the left. laying down flacid is very uncomfortable I have noticed so many weird shapes it takes. It will bend down and crook left while really swollen. I need your guys advice again. You guys aren't experiencing these complications are you? What should I tell my uro to do. Should I have a cystcostopy? Sorry if I spelled that wrong im 17 remember hehe. I also noticed one thing that was really strange one day. When my  penis was really swollen I touched the bottom of my urethra right below my head. I felt a sharp pain and my penis immediately retracted in pain and lost all of its swollenness and stucked to the left. I have also noticed when my penis isn't swollen and just stuck to the left. I noticed lots of wrinkles and lines coming from the spot where my uro says I have peyronies. When I take a hot bath to try to relax my penis would get really swollen and then it would change and get small and stick to the left. When I looked at it right when it stuck to the left my right vain was stuck all the way to the left pushing up against the skin. When I layed back the vein slowly went back to going straight but still crooked to the left. Do any of you know what I might have? Or could this all possibly be peyronies disease? I really need your help guys my life is breaking apart but im being strong and im not going to give up. Really appreciate everyones dedication and sorry for not being on for a while. I busted my ankle really bad again twice in the same year couldnt wald for a month.  

[Jonny13]

Hi everyone,
Glad I found this site.  I'm not sure if i am posting in the right place, but I might as well tell my story and see what you all think.

About 3 years back I was reading a men's magazine that had an article about a website called penisimprovement.com.  It basically was penis enlargement, but talked about other benefits such as a healthy prostate, better overall penis health, etc, and claimed to be run by a physician, so as a gullible college kid, I tried it.

Well, after a couple months of using the exercise program, which I can now say is something called jelqing, kegal exercises, and manual stratching, my penis basically seemed to collapse.  Afterwards, I developed a tingly sensation, an houglass formation when flacid and when getting erect, and general numbness.  I also began having a much more difficult time getting an erection, and had trouble maintaining an erection without physical stimulation.

Well, that was about 3 years ago.  After being very busy and not really thinking twice about it, but also having some unsatisfying sexual experiences, it was about time to figure this out.  I researched what I had done to my penis with that stupid program 3 years ago, and realized I might have developed Peyronies or had some blood flow problem.  Currently, I still have numbness, the hourglass formation whenever not fully erect (especially present when becoming erect) and I notice some twisting and a small dent on the right side of the penis, along with a couple of ridges at the bottom right of the shaft when erect.  When flaccid, my penis hangs lower than before and has a more rubbery texture, and it does not respond even close to as quickly as before to touch.  Also, I think the head of my penis has grown a bit bigger than before those exercises.

Now, I saw a urologist in the area who did some work with Dr. Lue, and he said that this seems like Peyronie's disease, even though he found no palpable plaques when he did a flaccid examination.  He basically sent me off with Pentox and said I could try Cialis.  I am 24, and do not want this problem to consume my life in any way since I will be attending grad school very soon and would like to move on with a normal life!

I have been stressed lately, and will try to get my mind off of this soon and take the pentox.  I am glad this forum is here, and would like to know if anyone has any suggestions, and/or if you agree with my urologist's analysis based on what I have told you.

I still can get erections, but again, it is much more difficult than before.  And this happened 3 years ago, so do you think this has stabalized?  When erect, I still feel some irritation...a slightly itchy feeling...when masturbating sometimes.  I will take a break from sexual activity for awhile and just take the pentox.

As you can see, I am a bit confused by this, and if anything, it's just nice to have other people hear my story and understand!

Take care all,
Jon

[LWillisjr]

Kenny82

I havent asked about the details where exactly the fibrosis was, on the tunica or inside the corpora,

It is my understanding that Peyroines is defined by plaque or nodules that have fromed on the tunica. So if you have something going on inside the corpora chamber then it could be a different issue.

Is there something like a test that i can get done to check the bloodflow?

Yes....   The ultrasounds you have read about on this forum do indeed also measure bloodflow and in/out of the erection.

[LWillisjr]

Jonny13,

About 3 years back I was reading a men's magazine that had an article about a website called penisimprovement.com.  It basically was penis enlargement, but talked about other benefits such as a healthy prostate, better overall penis health, etc, and claimed to be run by a physician, so as a gullible college kid, I tried it.

I have read where jelqing is even a recommended cure for Peyronies Disease. But it would seem to me to cause nothing but damage to the penis. It makes me wonder how many others have tried this only to cause damage to themselves. The real question is whether the cialis helps, and is your erection straight? If so, then hopefully the erections and feeling you had before will return. Worrying about it won't help. Many of us on this forum can tell you the mental effects one can have when your erection is severly deformed, to the point of not being able to have intercourse. The mental effects can be half the challenge.

[LWillisjr]

despise,

It will bend down and crook left while really swollen. I need your guys advice again. You guys aren't experiencing these complications are you? What should I tell my uro to do.

I'm not sure you will be able to "tell" your uro anything. Honestly, I've read through your posts including your most recent one. Some of what you say is very confusing to me, and I have a hard time following your thoughts...... sorry.  But I will try to answer your question. Do I think you have more than just Peyronies going on...... yes. I believe you that you are having some pains. You mention pain during a wet dream. Are these waking you up? Generally wet dreams occur while you are sleeping. Also in your post you mention many times about being swollen, and I assume you mean while flacid. If that is the case, then talk to your uro about what could be causing the swelling. It seems the swelling is your main concern so that is where I would start.

[LWillisjr]

Believer,

It's particularly scary because the darn FastSize caused my plaque to start growing in November and I can't forgive myself for that. FastSize definitely has its pluses, but one must be EXTREMELY CAREFUL with it.

What makes you think the Fastsize caused your plaque to start growing? I'm just curios what your experience was with it.

[Jonny13]

Jonny13,

About 3 years back I was reading a men's magazine that had an article about a website called penisimprovement.com.  It basically was penis enlargement, but talked about other benefits such as a healthy prostate, better overall penis health, etc, and claimed to be run by a physician, so as a gullible college kid, I tried it.

I have read where jelqing is even a recommended cure for Peyronies Disease. But it would seem to me to cause nothing but damage to the penis. It makes me wonder how many others have tried this only to cause damage to themselves. The real question is whether the cialis helps, and is your erection straight? If so, then hopefully the erections and feeling you had before will return. Worrying about it won't help. Many of us on this forum can tell you the mental effects one can have when your erection is severly deformed, to the point of not being able to have intercourse. The mental effects can be half the challenge.

Hey thanks for responding...means a lot.  I don't know how these websites get away with it!  You know it was presented in a very convincing manner...from a claimed physician as well.  What's more is that the "physician" was interviewed by a well established and respected men's magazine website.  OTherwise, I would never have done it.

Well, I do have a pretty straight erection. It twists to the left a bit...kinda like a corkscrew, which has occurred in the last couple years or so.  There is also a small dent just above the base on the right side.  then the penis gets a bit bigger nearer the head, kind of like it is inflated a bit during an erection.  A bit strange looking, and I don't have the feeling that I used to...sort of replaced by this irritating feeling as I said before.  Otherwise it is pretty straight and not too odd looking.  It's just hard to maintain an erection.

Hopefully with the pentox and by getting my mind off of it, it will clear up!  (It seems you have recovered from the disease?  If so, that is awesome and thanks so much for sticking around and helping us out here). 

I haven't tried the cialis, and am not sure if or when I will...I suppose next time I get into a relationship if not all is working properly.  Any suggestions on this?  Keeping myself in shape, pentox, and grad school will hopefully do the trick, unless anyone recommends otherwise with the cialis or anything else.

jonny

[despise]

despise,

It will bend down and crook left while really swollen. I need your guys advice again. You guys aren't experiencing these complications are you? What should I tell my uro to do.

I'm not sure you will be able to "tell" your uro anything. Honestly, I've read through your posts including your most recent one. Some of what you say is very confusing to me, and I have a hard time following your thoughts...... sorry.  But I will try to answer your question. Do I think you have more than just Peyronies going on...... yes. I believe you that you are having some pains. You mention pain during a wet dream. Are these waking you up? Generally wet dreams occur while you are sleeping. Also in your post you mention many times about being swollen, and I assume you mean while flacid. If that is the case, then talk to your uro about what could be causing the swelling. It seems the swelling is your main concern so that is where I would start.

Yes the wet dreams to wake me up. I don't feel to sharp of a pain anymore but it is still uncomfortable and my penis seems to retract and hurt after ejaculating. All the forms and shapes my penis is making is to weird and my urethra is bending with it. After I ejaculate urinating stings. When I have a erection it can either go straight left almost laying on my left leg. When I get a full one its almost laying on my stomach or kind of up but to the left and it painful. After ejaculating it would bend right and bend it weird shapes. While all of this is happening my right vein hurts cause its getting pushed around. Under the vein the erection is hard and everywhere around my penis is hard and painful. Anyone know what symptoms these are?  Urethral stricture maybe urethritis? Ill try to talk to my uro again hes just hard to break through. He doesn't really listen.

[Tim468]

despise,

You do not need our advice again. You need to take the same advice we gave you before.

Tim

[kanyewest]

Not sure if I'm posting in the right place or not - this forum has an odd structure, though I'm glad I found it.

I am wondering if anyone can help.  A few months ago I started getting odd acute attacks in my penis - some pain and tingling, and then a rapid contraction which made it shrink up extremely small and get extremely painful.

This got worse and more regular until a few weeks ago, when I had a really bad attack and then the most incredible burning sensation afterwards.  This may point towards passing a large kidney stone, though my urologist couldn't see any in an earlier ultrasound.

Since then, my penis has developed some of the symptoms of Peyronies - a hard strip along the top, and a large indentation along the bottom right underside.

I am wondering if my original symptoms (acute attacks) could have been caused by the onset of Peyronies, or whether these fibrous like things are a result of the trauma my penis has experienced whilst getting this stone out.  If the latter, do you think resting it or doing anything now will help to avoid long term problems?

I am seeing uro tomorrow.  I will report back but would appreciate any opionions and advise as I am freaking out 100% here!

[LWillisjr]

kanyewest,
If you did pass a kidney stone, I'm not aware of this causing or having anything to do with Peyronies. Could any of these symptoms be onsets, it would be hard to say. What I find interesting is your reference to "a hard strip along the top". If this was fibrous tissue on the tunica (as with Peyronies) then I would think you would see a change in erection. Typical evidence of Peyronies is a a sudden and or severe curvature with your erection, hourglass type indentations, etc.

The only advice I know to give since you are seeing your uro..... is that if your erection now seems different or deformed, then take some pictures with you. If you erection is fine at this point, then just go tomorrow and discuss your symptoms with your uro and see what he thinks.

A word to the wise....  many uro's can diagnose Peyronies, but few know how to treat it.

[Nate34]

I originally posted this question under the Surgery for Peyronie's Disease thread, but didn't get any response, so I thought I would try to post here.  I had a reputable urologist who specializes in this stuff do a plication procedure on me 3 years ago to try and correct my left curvature (2 sutures were inserted into the right side of my penis to try and correct the curvature).  I have regretted having the procedure done for the past 3 years because the sensation in the right underneath side of my penis is now very dull due to the surgery.  Also, I'm not particulary fond of the feeling of 2 foreign objects (sutures) stuck inside my penis.  (I wish I had thought about these potential side effects more seriously before opting for the surgery)

I basically want to know if anyone who has had the plication (Nesbit) procedure done has later had the surgeon go back in and try to remove the sutures (basically to try and undo the original surgery).  I am debating whether I would be better off having them removed, and if there is any chance I may be able to regain more of the natural sensation that I lost.  My current loss of sensation makes sexual activity much less pleasurable now, and that has been very disappointing to me and has been wearing on me quite a bit psychologically.

[LWillisjr]

Nate34,
I haven't had the plication, so didn't respond to your first post. It seems a valid question. However this might increase the chance for more loss of sensation, and the only thing you gain is the loss of the 2 foreign objects.

I am curios as to what your curvature was in the first place. If I understand you correctly you are saying that you would have preferred to keep the curvature over the loss of sensation? Are you still able to climax?  Many here would gladly give up a little loss of sensation for a straight erection.

[Tim468]

Many would rather have more sensation than a perfectly straight erection, too!

I know of no published accounts of removing sutures, but I am sure it has happened. If it has been three years, then the nerve damage is probably done healing - what you have is permanent. But, from the sounds of it, it is not the head (the most nerve rich area) and that's a good thing.

Taking out the sutures may not put you back to the original curvature, but should resolve most of the foreign body sensation you describe. Some might remain, as numbed tissue may feel odd anyway, and some built up scar at the site of the stitches may persist.

Finally, you might want to talk to other urologists before going ahead. What if it got worse?

Tim

[Nate34]

lwillisjr, you are understanding me correctly.  I would rather have left things the way they were with the curvature and still have my full natural sensation.  And actually, the original curvature has almost completely returned to its full extent that it was before the surgery.  Therefore, not only am I left with the original curvature problem, but I'm now also stuck with less pleasure from any type of touch due to numbness.  It just feels odd and not right to have one side of your penis dull and the other side with complete normal sexual sensation...I feel off balance if that makes any sense.  While I can climax on my own through masterbation, climax during sex is much more difficult.  Maybe I am thinking about it too much and that is contributing to the difficulty.

Tim468, I agree with you.  Many people would rather have more sensation than a perfectly straight erection, and I am one of them.  It's just too bad that it took surgery for me to realize this.  The numbness is actually at the base of the head on the right underneath side, so it actually is in the most nerve rich area.  Since the sutures are farther down the shaft, I guess I never comtemplated these nerves near the head being affected before I had the surgery.  Nevertheless, they were the ones actually affected. I know there are definitely risks to going back in there to remove the sutures.  That's why I definitely want to do my due diligence this time and see if there is any track record of success vs. failure in having them removed on other patients.

[ComeBacKid]

I understand your opinion man.  I've talked to a handfull of men who had a "penile enhancement surgery," and it left them with less sensetivity then they had before.  Did you or are you considering taking pentox?  

Comebackid

[Tim468]

Here is a latest update on Peyronie's (I get weekly updates on new publications on the topic).

AU Strzelczyk A.  Vogt H.  Hamer HM.  Kramer G.
FA Strzelczyk, Adam.  Vogt, Heinrich.  Hamer, Hajo M.  Kramer,
 Gunter.
IN Swiss Epilepsy Centre, Zurich, Switzerland.
 adam.strzelczyk@med.uni-marburg.de
TI Continuous phenobarbital treatment leads to recurrent plantar
 fibromatosis.
SO Epilepsia.  49(11):1965-8, 2008 Nov.
AB Despite contrary recommendations by expert opinion and international guidelines phenobarbital remains the most widely prescribed anticonvulsant worldwide. Although associated connective tissue disorders were described in a timely way after its introduction, the association between plantar fibromatosis--also called Ledderhose syndrome--and phenobarbital seems not to be well known in general.

Our case series uniquely demonstrates that continuous phenobarbital treatment leads to recurrent plantar
fibromatosis and may result in long-term disability and numerous unnecessary operations. In general, the association between connective tissue disorders and phenobarbital most prominently appears in adult patients of northern European descent. However, our case series and data from the literature suggest that patient groups less susceptible to connective tissue disorders may as well develop Ledderhose syndrome or other associated syndromes as Dupuytren's contractures, frozen shoulder, Peyronie's disease or complex regional pain syndrome in the course of phenobarbital treatment.

PT Case Reports.  Journal Article.

[ggg953]

Hey guys, I was diagnosed about 5 months ago and have been using VED therapy under Old Man as well as oral meds and supplements under Dr. Levine and Gelbard. I was wondering if anyone was noticing very sensitive areas on the skin, around the tip of the glands.  Right to the left of my urethra, there is a little circular spot which bothers me. I have to wear a jock strap for any kind of physical activity as well as be very careful the type of boxers/shorts I wear. I know I have Peyronie's, what the hell is this weird condition on my glands  

[Old Man]

G:

You could be using too high a vacuum pressure for one thing. Another cause could be that your penis is being too confined in the cylinder without proper lubrication. As you know, we advocate using plenty of lubricant at all times when using the VED therapy.

Slack off on the vacuum, make sure you are lubing well and try this for a week or so to see it the spot goes away. If not, you make some other problem needing to be checked out by your uro or GP.

Old Man

[ComeBacKid]

GGG953,

If you pump to hard you can get some spots on your penis from blood being drawn up to the skin.  I think what you have may be just that.  However, if it doesnt go away you should see a urologist.  I got a circular spot when using the VED and some red spots on the base of my penis.  They went away, be advised if your pumping and on pentox, pentox is a blood thinner and may make it more likely you will get red spots.  

Comebackid

[ggg953]

Yeah, a general sensitivity I have never had before all around my urethra. The circular spot is ever changing. Sometimes looks totally normal, other times it looks like a darker patch of skin with a slightly different taxture. Always feels uncomfortably sensitive.

Thanks guys.

[ComeBacKid]

GGG,

I had not used the VED in such awhile but I was thinking about it today and I remember getting this sensation on the tip of my penis.  I got it only when using the VED, and I got it in the head, felt like pins and needles like, or at least thats the closest thing I can say to explain it.  I figured it was from pumping and filling up the head, sometimes the head really fills up, and perhaps that puts pressure on the urethra in there and causes that sensation.  If you lighten up on the pumping see if that helps you.  

Comebackid  

[Hitman]

I was just wondering if a significant bend of one's penis would necessarily indicate calcification

[Jonny13]

Hey everyone.  I found this recent post on a med help website.  I don't know if it is appropriate to post here since it is not from me, but I find his symptoms similar to mine (and we both performed similar--albeit stupid--exercises without knowing we were hurting ourselves.

My urologist  inspected me and suspects Pyronie's...but I was wondering your thoughts on all of this person's other symptoms/problems, since as I said mine are quite similar.  Again I am on pentox and just started with Arginine.  Here's hoping they work!

Jon

taken from http://www.medhelp.org/posts/show/773337

i have seen a urologist and will again.  Injury occured after vigorous jelqing while very hard. After i was unable to get strong erections, they would come and then disappear quickly (never had performance anxiety).  The same problem exists when i masturbate.
I take cialis 10mg almost daily or whenever i think i may have sex.  It works ok, I will get very hard erections right when the medicine kicks in and it stays around (takes 6 to 8 hours for me)and sometimes in the morning after taking cialis staying hard erections appear hard, they appear though stay hard and then once it goes down i cannot get the same hard staying power.
the problem seems to be on the left side of the the shaft, at the bottom of the shaft it is slightly more spongy and bulges out more than the right side of the corpus caversom.  Also there appears to be a larger blue vein that runs up the left side of the shaft. The corpus caverson is seems to be smaller on the left as if it is cut off from blood flow or it feels as if it does not contain as much tissue, especially near the bottom and mid areas.  Also when i put a finger near the bottom of the shaft on the left side it curls over the figure futher illustrating the damage done on the left side.  the same thing is true on the upper left side.  When hard the bottom of the left side of the shaft bulges out a bit.  My penis also appears to be slightly twisted. it has gone done in size slightly, appears to be some some scarring under the glans penis and it is shriveled near the top on the left side.  There also apears to be 'nics' in the corpus caversom on the left side at various points.  After hard from the cialis the penis aches along the left side particularly at the bottom. this has lasted for a year.penis extender, vitamin e, **** ring, what helps?  

[ComeBacKid]

Jonny,

Before I found this site, I did about two months worth of daily jelqing, that I found off of the site www.penilefitness.com  it was stated it would correct peyronies disease. After doing the jelqing for awhile I got zero erections, my penis would get no erections at all.  I had heard pornstars use jelqing and some had said in the middle east they used to use weights and jelqing to stretch and enlarge their penises (arabs).  Botton line is I wouldn't jelq.  If I were you I wouldn't do any traction or VED for AWHILE!!! If your already on pentox thats a good thing as it is proven to get more blood and oxygen to your lower extremeties.  I'd stay on that and definately don't use traction or VED until your erections come back.  Eventually you can get back on the VED, but now I think it'd be to risky and might make your situation worse.  Jelqing to me is a bad idea and isn't proven to work at all.  Whether it works for pornstars I don't know, I've never heard one come out and say it improved their size, seems like you just hear that in rumors.

Comebackid

[LWillisjr]

jonny13,
I hate to suggest it but I would try antother urologist for another opinion. What you describe would indicate some other type of injury. You may have some Peyronies like scarring, but I would certainly try to get to a specialist and see if you have some type of injury from a result of the jelqing that could also be treated.

[Jonny13]

Thanks for the advice guys.  Lwillis, I will probably be moving to the Chicago area within 5 months, so maybe I will try to set up an appt. with Dr. Levine at that time.

It seems I went to a very good urologist who worked with Dr. Lue, so I'm not in a hurry to get a 2nd opinion (plus unfortunately I'll be out of the country for a couple months soon) unless you really think I need one very very soon.  Otherwise I'll until I get back.  I'll continue the Pentox and arginine routine since I can still get erections, albeit with a lot of stimulation.

My case differs from his in that I have very visible hourglassing when flaccid, when getting erect, and then less so when erect, but still there.  Unfortunately I noticed a scarlike indentation on the bottom of my erect penis just 2 days ago.  It is tender to touch and is like a "valley" for lack of a better word...kind of separating my penis into 2 parts.  How I wasn't more aware of this before I'm not sure.  Ha what a mess...

[bond007]

Hello.  New to this forum.  Problem started in early January, pain w/erection and slight curve.  Self diagnosed Peyronies from internet.  Dr. confirmed in Feb.  Dr. was useless, wait a year and see what happens.  Pain continues, erections are harder to come by and intercourse is not possible due to do pain and not being hard enough.  50 years old and have a stent in my heart otherwise great condition.  I am taking several meds for my heart, Plavix, lipitor, niaspan, lisinopril, low dose asprin.  I ask my cardiologist for a recommendation for a urologist and she made me an appt for a Dr. John J Warner at St. Thomas in Nashville, TN.  It is about an hour from home.  I was wondering what I need to ask him on my first visit.  I asked  my cardio about the Trental and she said it might give me heart palpitations, but she would not let that keep me from taking it, if it would help me.  So...I am hoping this guy has some experience and will give me a prescription for this.  Also I have never used a VED and don't know anything about them.  Should I ask the Dr. about that as well?  Any info you could give me as to informed questions for the doc would be appreciated.

[despise]

i just want to ask if any of you are dealing with pain while flacid. when im laying down or sitting down on this computer it really hurts and its stuck to the left. sometimes i notice my left nut is in pain too. any experiencing this? if not please say no and if yes please say yeah. just need a little help understanding what im dealing with because i am waiting for this california insurance and untill then i can't do anything but wait. i have been waiting and waiting so a little help would be awesome! thanks guys

[Iceman]

despise - are you taking any meds - such as pentox or ALC - i was in severe pain for at least 6 months and now its stopped - man i was suffering you cant believe the pain i was going through - i used ti pull my armpit hair just to take my mind off the Peyronies Disease pain - somehow it went - jus be patient..

[Old Man]

despise:

Suggest that you might want to check with your uro or BP about a problem with your left Epididymis gland. The pain you are describing is quite similar to the pain felt with this gland when it is inflamed. This is a little gland that is attached to the Vas Fefresn tube connecting the testes to the upper urinary tract.

Had this problem for years and it resulted in removing the little gland with great success.

Old Man

[ComeBacKid]

An aching or slight pain when flaccid is normal, its from the innflamation, pentox helps stop this and let your penis heal! You might consider getting on it, its cheap and unscientifically proven to work.

As for the testicle pain, I had this and got it checked out even though I didn't want to when I was younger, doctor said I'm fine.  Every once in awhile I'll get a slight ache in my testicle, but it seemed to have went away.  It could be from the peyronies to.

Comebackid

[despise]

yeah im going to make sure i mention everything about everything thats going on. thanks for the input guys. know how messed up this sounds but glad im not the only one suffering here.

[LWillisjr]

bond007,

made me an appt for a Dr. John J Warner at St. Thomas in Nashville, TN.  It is about an hour from home.  I was wondering what I need to ask him on my first visit.  I asked  my cardio about the Trental and she said it might give me heart palpitations, but she would not let that keep me from taking it, if it would help me.

There is lots of information on this site. So much so it can a bit challenging to find. I don't know anything about Dr. Warner and haven't seen anything posted here about him. I would suggest doing a little research and see if he has any track record of TREATING Peyronies Disease. He might be a great urologist, but might know nothing about treating Peyronies. If possible I always suggest you take pictures when you are erect and take these with you.

1. Don't accept any "wait and see" suggestion
2. Ask about different therapies, and what is the plan? for example, if he suggests doing one type of therapy, and if it doesn't work then what next?
3. Ask for a prescription for Pentoxifyline (Pentox)
4. Ask about a Full duplex color ultrasound (This checks for scarring, calcification, blood flow, etc.)
5. Ask about VED and/or traction as therapy

At this point, if you sense you know more about Peyronies than he does..... find a new doctor.

[Hawk]

Print the 2 documents on Pentox. https://www.peyroniesforum.net/index.php/topic,772.0.html

Familiarize yourself with the info and take the printouts to your appointment.

[bond007]

My wife called the Dr.'s office today and asked if he treated men with Peyronies Disease and the answer was yes.  At least he doesn't tell them to go home and wait.  I will take the info and wait and see what happens.  The reason I did not try to make an appt with Dr. Milam is that my experience with other doctors (not in regard to this) has been that a surgeon wants to operate and if you don't require surgery they don't really have time for you.  So I did not know if Dr. Milam would want to spend time seeing someone who did not require surgery.  I will update after my appt.  Thanks for your help!

[jackp]

bond007
Dr. Milam is a Male Sexual Function Specialist first and a surgeon when that is the only option left.
When I went to see him surgery (implant) was the only option left. I have been to many urologist including the head of the department of urology at UT Memphis. I am hard to impress after all the doctors and BS from the ones here. My impression of Dr. Milam and Vanderbilt are first class. They know what they are doing and how to do it. It is a world class facility.
Jackp

[Hitman]

anyone heard about Dr. J. Francois Eid?

[downeskp]

1st time user;
'have just had surgery [Nesbit's] last friday. my consultant offered no alternative procedures or therapies. he expained i could expect up to a 1cm reduction in length of erect penis. an acceptable trade off!   I however read in today's Daily Mail [british national newspaper] that with an 80 degree curvature Ishould expect to lose 8cm !!!! can any one tell me which is the more accurate figure?

[jackp]

hitman
In my research I considered going to Dr. Eid.
He uses the scrotal approach and mostly Coloplast implants. 99% of all the people that had an unfavorable outcome that I found had a Coloplast implant.
The ones that were the most happy with implants received the AMS 700 LGX.
My implant is the AMS 700 LGX and I am very satisfied.
That is just my research.

Jackp

[jackp]

doeneskp
The best explanation of what to expect was given to my by a doctor I respect.
Hold your hand up and curve your finger to the angle of your erection. Look at the short side. That is the length you can expect.
Hope this helps.
Jackp

[LWillisjr]

doeneskp,

I find it interesting that you had the Nesbit procedure. There is some very limited opinions that the Nesbit procedure is not all that effective for curvatures greater than 30-40 degrees. So I hope that it works for you and that you have very limited loss of length.

[ComeBacKid]

Does anyone have any facts on if jelqing actually works to increase size or straighten a penis?  Does anyone have any solid evidence on where it actually comes from?  A lot of these sites call it an "ancient arabic technique," sounds like a lot of bu@$##$#$@#^%@it.   Is there any reference to this in any medical literature that anyone knows of ?

"Jelqing is a method intended to enlarge the penis by exercising the smooth muscle and other tissues in the penis, with the goal of permanently increasing the maximum erect size of the penis. This technique, also called "milking", involves wrapping the thumb and index finger around the penis while semi-erect and repeatedly drawing them away from one's body to force blood into the glans, thus encouraging more vascularity in the corpus cavernosa and associated tissues. Whether jelqing actually works or not is a subject of controversy.

Risks that exist from this exercise are: burst blood vessels, sometimes causing bleeding from the urethra (which can lead to infection and other complications if not taken care of), and temporary or even permanent erectile dysfunction.

There are many products (tools, instructions, etc.) that one can buy; however, much of what they offer (instructions) is available on forums and free websites.

Jelqing is typically preceded by a warm-up with a hot compress on the genitals, and concluded the same way. The reasoning behind the 'warm-up' mimics the normal operation of the biological processes of the penise during the four stages of arousal. The third stage is heat. At this stage the smooth muscles of the 'glans' can easily expand to their present (not future)greatest potential size. However with much more advanced instruction one can over time, achieve a significant physical (not merely psychosomatic) increase in size i.e. length and girth."

Source is the Wikipedia Penis Enlargment

[Tim468]

Never been proved. Lots of anecdotal accounts of improvement. There are also anecdotal accounts (here) of this causing Peyronie's Disease.

Like the use of the VED and traction, this will probably span a spectrum from useless to helpful to harmful, and that may have to do with how vigorously it is done. What I have not heard, as I have for traction and VED (when it comes to treating Peyronie's) is what a good definition of "optimal" is.

Tim