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Author Topic: Peyronie's disease subreddit on Reddit  (Read 3682 times)

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skunkworks

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Peyronie's disease subreddit on Reddit
« on: January 31, 2017, 08:29:21 PM »

Looks like someone has started one up or restarted one - https://www.reddit.com/r/peyroniesdisease/

Pretty huge site traffic wise so if that sub got more popular it'd probably build a good bit of awareness for the condition.
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This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

Mcrmale

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Re: Peyronie's disease subreddit on Reddit
« Reply #1 on: July 14, 2021, 05:54:04 AM »

r/peyroniesdisease has been banned from Reddit
This subreddit was banned due to being unmoderated.

(Not sure about pomphan's post - think he must have meant to post that on a totally different site)
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50yrs old gay male. 45 degree upward curve. Occurred March 2020
Loss of 1.5" of length. Loss of girth - especially around base.
NHS supplied SOMAcorrect daily use for 15-30 mins since April 2021
200mg CoQ10 and Vitamin E

Benraycamp0

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Re: Peyronie's disease subreddit on Reddit
« Reply #2 on: July 14, 2021, 01:32:15 PM »

Yea I tried to revive it but was unsuccessful :(
We do have another subreddit (https://www.reddit.com/r/peyronies/) which isn't as popular but I do get messages from people and direct them here as needed.
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26 years old. 20 degree upward curve with slight clockwise twist. Symptoms onset Dec 20.
Dr. Levine says it's not Peyronie's Disease but a slow healing wound. Saw him Mar 21 and May 21.
Traction (PMP) and supplements per Dr. Levine's recommendation.

Juan

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Re: Peyronie's disease subreddit on Reddit
« Reply #3 on: July 14, 2021, 04:58:34 PM »

Discord group could be very dinamic although a bit of a mess too.
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38 yo. Onset Oct/20. 25ยบ upward bend 1cm before glans. High erection angle.
Pentoxifiline 400 2/d. Cialis 2,5. Vit E, Vit C, Propolis, Omega, Ubiquinol.
VED. Starting manual traction.

Tobyg

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Re: Subreddit de la enfermedad de Peyronie en Reddit
« Reply #4 on: July 14, 2021, 07:19:08 PM »

Discord is good, although being honest, I can't find any way to fight disease, people don't want to organize something in common for further investigation, my life is waiting for some miracle of science unfortunately
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30 years,injured at 25.
Slight curve, narrowing and retraction in flaccid and semi-erect.
Loss of sensitivity due to peyronie and circumcision  moderate erectile dysfunction, pain.
I improved the pelvic floor with kinesiology.

Mikel7

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Re: Peyronie's disease subreddit on Reddit
« Reply #5 on: July 15, 2021, 09:54:55 AM »

For a forum to be successful there has to be a combination of 1: Organization.  2: Moderators . 3 Documented info. 4 Members. 5: A Lot of Luck.
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Lump April 2020, age 60 , Dr Levine 6-26-20,
Dorsal Curve 11-1-20 , Peyronies
Vit E400mg, COQ10, ALCAR, Heat Therapy, Penimaster, Pentox, Cialis
had SNHL 7-31-20 - Stopped all Meds because ototoxicity  Heat/traction/VED are working.
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