Peyronies today, gone tomorrow?

[Tourer]

I like to ride motorcycles ridiculous distances in fairly short time periods. Coming back from my last transcontinental trip, last November, I noticed some pain and discomfort downstairs, but wrote it off as chaffing in hot weather, having already covered over 7000 miles in 10 days. As I was only a day or two from home, I ignored it. After about a week of the discomfort not going away, I noticed one night in the shower, a distinctive lump forming on the top of my penis, close to my body. Over the next fortnight, it grew and started to form what felt like a cord heading toward the head of my penis. Time for a visit to the GP. He looked and told me I had something that sounded like a bad pizza. I'd never heard of Peyronie's disease before then. Being from a smaller city with no real specialists, he referred me to a local lsurgeon who has been slicing and dicing in that general area of anatomy of many years. I saw him a week later and he agreed it was Peyronies and sent me for what turned out to be a run of the mill ultrasound.

The surgeon rang me on the Friday before Christmas and said he had reviewed the Ultrasond and had conferred with a local Urologist. The diagnosis was the same. Treatment? Don't worry about it until you develop a bend that causes issues. (I have no bending or deformity)" At that point we will discuss surgery, Merry Christmas..."  by this stage, I'd found this forum and a large number of web pages, and had already formulated a plan to begin taking oral supplements to increase vascular flow and try and reduce any potential for calcifying plaques. The Surgeon told me out right that it "all sounded like snake oil, but you do what ever makes you feel good.." his bedside manner was apparently borrowed from the Grinch?

After checking the supplements I was planning on taking weren't going to cause me issues with a friend who's a pathologist, I began taking Acetyl L-Carnitine, CoQ10, Vitamin E and a Magnesium complex. With in 4 days the pain was gone. Now as everyone shut down for Christmas, and I wasn't happy with I'd been told, I continued taking the supplements and waited for an interstate specialist to reopen mid-January so I could speak to them. Three weeks later, the interstate specialist queried the diagnosis with no blood tests and without a chemically enhanced ultrasound. He asked for a series of blood tests to be arranged through the original GP and then a referral. By the time I could organise to get into the GP, I'd been taking the supplements for four weeks. Not only has all pain gone, but what was a pea sized lump and cord like structure, have reduced by almost 80%. A further two weeks later and I've actually now got to look for the lump to check it's progress. I'm yet to get the blood test due to being busy at work, and having just spent a week in bed with a cold. I'm now as confused as ever as to whether I even had Peyronie's in the first place? Is it possible that I simply got exceptionally lucky, catching it so early, and actually achieved a reversal? Is this even possible? The local Urologist contacted me last week for a consultation, but can't fit me into until early March. As that's about $800 cheaper than flying interstate, I'm not sure if I should wait for him, or fly interstate for something that seems to be going away. I'm now concerned that it either wasn't Peyronie's and is a precursor to something else, or it is Peyronie's and is about to come back for round two with vengeance?

I'm really now as completely  lost as when I first heard of Peyronies. Not sure where I'm going to from here.  

[Jonbinspain]

Tourer;

Welcome.

My own opinion is that it's doubtful you have/had Peyronies. But, the disease is an enigma and my recommendation would be to try to be sure, one way or another.

Here is a list of Peyronies specialists. You will see that here are a few in Oz.

https://www.peyroniesforum.net/index.php/topic,4063.0.html

[QuackAttack]

Tourer,

I can't imagine why they want blood tests and any other test other than doppler ultrasound. That is all you need to confirm peyronies along with a curve. To quote the Great Dr. Joel Wallach: "It sounds like this doc is using you for an ATM to help fund his BMW." You aren't alone in never hearing of peyronies until you have it of course. Most of the people on the forum were in that boat at one time.

[james1947]

My opinion:

The Surgeon told me out right that it "all sounded like snake oil

A surgeon get his money for cutting. Don't expect from him to know anything else

...his bedside manner was apparently borrowed from the Grinch?

I am sure from Dracula

...catching it so early, and actually achieved a reversal?

Possible, happening in rare cases, you may be on of the lucky ones

I'm not sure if I should wait for him, or fly interstate for something that seems to be going away.

Continue with the treatment, I don't think any blood test will help except to test Testosterone, that it is important
From QuackAttack:

It sounds like this doc is using you for an ATM to help fund his BMW

YES 100% the target
And no wild sex for a while

James