Stand Up Paddleboarder w/ Peyronies, Duputrens, Ledderhose....Optimistic!!!!!

[battousai]

Dear Friends,

I hope you don't mind me referring to you all as friends, but I feel that since we are all dealing with "Peyronies" either directly (men) or indirectly (women), then we already have so much in common and so much to talk about, text about, and share all towards the goal of hopefully make each of our days better and better, and ultimately, finding a cure of this condition.

Background - I am 58 years old, and 3 years ago, I noticed the beginnings of hard cords developing in my hands (duputrens), about 12 months ago I noticed lumps forming in both of my feet (ledderhose), and 5 months ago, my normal fully erect penis (6.5" to 7" approx.) changed to an erect penis that was approximately 5" (normal-hard, full, with gurth), and with the tip area approx. 1.5" suddenly on a part-time break.  

In a loving relationship of over 5 years, I immediately knew that full disclosure to my girlfriend was my only option.   My recommendation to each of you, both men and women:  In order for you and your girlfriend to have the best chance of surviving this "temporary circumstance", you must be overly communicative.    Tell her what is going on...."in great detail"....you awakening to painful erections in your sleep, explain the size changes, firmness, girth variances, shape changes...everything.  Explain the times you assess/evaluate your condition on your own while masterbating...have thing improved....or are they the same.   What seems to be working in terms of treatment.  In turn, women, please tell your man what he can still do to maintain intimacy in your relationship, how he can bring you pleasure....I look into my girlfriends eyes so much more....and touch her, hug her, caress her...[fill in many blanks here].

This is a "temporary condition" for us....like a scar from an accident....that needs time to heal....my girlfriend explains that if her vagina was somehow injured....and we had to find other creative ways to remain intimate...we would figure it out.  We have to talk about it regularly...not all the time...but regularly...with updates.   Because the treatment is primarily self induced...you have a responsibility to do your treatment....track it, report on it...and be prepared to change it...modify it...all in an effort to see the healing process through to its successful completion.

Confession....Duputrens in both hands has not been fun (have had surgery on both hands, a second surgery in my hand in early 2017)....ledderhose....in both feet...I was sad and disappointed....but, now....with Peyronies....I could, yes, I could totally lose it OR I could choose to have a positive attitude, remain optimistic....diligent in my treatment, track what works (keep a daily journal) and plan to remedy this "temporary condition" and resume my active, very active sex life.  

I am the President and CEO of a company (not really relevant) ....but I tackle problems head on....I develop plans and execute them (in this case, under a doctor's care..both peyronies specialist urologist and homeopathic options) ....this challenge will be no different.

I have been prescribed medications and have gone on-line for complimentary organic options...following consultation with the doctor, I am deploying a combined approach.   Stay tuned....wish me luck...we are in this together!    I will share all of my successes and failures with all of you.....a play by play....in hopes that as each of you help me and my girlfriend....educate me and us....I and we can make a difference in each of your lives as well.  

Thank you for welcoming me here.....2nd Confession...when I start thinking too much about the peyronies conditions....I start reading a book.  I have read 6 books in the last month.   If I wake up....with negative thoughts....or due to a painful erection....I start reading the next chapter in my latest David Baldacci book.   Trust me....the distraction is very good for you....you will soon fall back to sleep.

Cheers, Happy Holidays and let's get after this in 2017!

Battousai



         

[NeoV]

Thanks and welcome Battousai.

I agree and always recommend you tell the girl in detail and in a positive way. This way, you can even tell girls about it from the get go as an opener and they will still be interested!  

[battousai]

NeoV,

Thank you for welcoming me to this forum.  I feel part of an "exclusive club"...not one I was intending to seek out to join...but life has a way of throwing curve balls (pun intended) at us in order to make us stronger.   Once I figure out how this site works, I will provide more details as to my treatments.   Thanks again.

Battousai  

[LWillisjr]

battousai,
Also welcome, you are among many fellow friends/sufferers here.

[battousai]

Les,

Also thank you for welcoming me to this forum and exclusive club.  I look forward to being "Peyronies free" like you one day...I am being patient...hoping for sooner rather than later.  I am tracking my treatments...feeling a bit like a scientist.  Thank you for the support!

Battousai

[battousai]

Status Update:  April 19, 2017

In the past three months, I have been subjecting myself to various treatments for peyronies which for obvious reasons has been my primary concern.  That said, I did undergo duputrens contractor surgery on my right hand on March 10, and recovery is going well.  

After several consultations (3 sessions) with a doctor (urologist) who specializes in peyronies, I was not feeling very good about his prognosis.   This doctor seemed to be jumping to a surgical solution which involved replacing the insides of my penis with water chambers that "with the flip of a switch" literally...I would have a full erection.   This seems like drastic measures and after consultation with my girlfriend, we have decided it prudent to explore all kinds of healthier alternative options first.

Background: Peyronies - Yes; Duputrens - Yes (both hands), Ledderhose - both feet

Whole 30 - In mid January, I bought the book "Whole 30" - The 30 day guide to total health.   I decided I needed to become as healthy as possible if I was going to try different treatments, and then measure the success or failure of those treatments.   NOTE: Whole 30 was radical for me since it requires that you cook (all meals), no sugar, no alcohol, no diary, no grains, wheat, flower, or any breads, etc.     Anyway, in the 30 days, I lost 14 pounds and have never felt heathier.  Height 5' 8"  Weight: 165.  I ate eggs and kale, beef and kale, chicken and kale (broccoli) and an avocado every day!!!  Every other day had a sweet potato - delicious by the way.

Reminder - I have the "bottle-neck" condition - erect penis is normal girth and firmness for the first 70% to 75% and is not full for the last 30% to 25% (tip).  I do not have any curvature (yet anyway).   THE BIG PROBLEM:  Intercourse is very very difficult....have been successful in that endeavor 3 times this year.  Lucky for me my girlfriend is very supportive - remaining optimistic - "our sexual future will become brighter - patience - we will get there!"

Treatments:
TOPICAL TREATMENTS (morning): Vitamin C, Vitamin E - topical with an heat generating gel (PMD), followed by an organic Castor Oil after I wipe the other treatment away.  
TOPICAL TREATMENTS (evening):  Aloe Vera (plant) - I filet the leaf - and place my penis inside the leaf - for 30 minutes (3 to 4 days a week)
TOPICAL TREATMENT (while sleeping) - Anti-scarring treatment - Silicone (given to me by my Occupational Therapist) for reducing the scaring on my post surgery duputrens inflicted hand - now wrapping around my penis at night.

ORAL (Swallow) TREATMENTS (morning): Vitamin C, Vitamin E, Vitamin D
ORAL (Swallow) TREATMENTS (evening): Aloe Vera (plant) - I blend the fresh aloe vera and drink it.
ORAL (Swallow) TREATMENTS (during the day) - Vitamin K-12 - this is an anti-plaque vitamin.  (I don't know whether it is the same plaque, but I thought it was worth a try)

ANALYSIS:
In the 30 days before my last Duputrens surgery, I was to suspend taking all vitamins, aspirin, etc.   Towards the end of those 30 days, the pain in my erections became stronger - which was very discouraging - except for the fact that it occurred when I was not taking anything, and had suspended all other topical treatments.   I thought this would be a good "beta" test to see if what I was doing was helping.

Now having resumed my treatments (delineated above) 2 weeks ago, I am happy to report that the pain in the erections has subsided.   And, my girlfriend states that "it seems to be getting bigger".

NOTATION: Similar to many of you I presume, I go from "wanting to know of any improvement and actually checking" to "not wanting to know - and not checking" because I am afraid.

In any event, I will update you in another 30 to 45 days - there has to be cure for this condition....we will find it by working together....and sharing!

Cheers!


Battousai