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Author Topic: Optimistic  (Read 1755 times)

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coive

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Optimistic
« on: August 15, 2016, 02:23:46 PM »

Since starting treatment I'm getting better, much better. I still have symptoms, but not nearly as severe as 20 months ago when  when I first noticed a sudden and alarming upward bend of about 60+ degrees and a leftward bend of about 20 degrees at erection This upward and to-the-left bend was toward the front (distal) end. Today, after 12 months of treatment, my upward bend is reduced to less than 40 degrees and the leftward bend is reduced to zero (altogether disappeared). A  side benefit to my treatment is that my penis is significantly bigger in both length and girth, both flaccid and erect.

My earliest reaction to my alarming new condition was to look on the internet to see what I might do about it. I found much phony-baloney advertising of quick and some not-so-quick miracle cures. And I found some apparently legitimate information--though (I have learned) some of it quite incorrect. In my early internet search I came across a brief article in Andrology by Alexander Wu and Thomas Lue presenting research whose findings discounted the conventional wisdom to wait until the Peyronies Disease condition stabilizes before treating it. Seek competent treatment as soon as possible was their advice. Waiting could allow the condition to become intractable to treatment.  I already knew from looking around the internet that Dr. Lue is a leading light in the scholarship on Peyronies Disease, so I set about finding a urologist who could treat my Peyronies Disease. At first I looked locally and found urologists listing Peyronies Disease as a condition they treat, so I visited. When they suggested taking vitamin E and offered the conventional wisdom about waiting for it to "stabilize" and then have them do plication surgery (since they believed there was no medical cure), I realized I would need to travel to find an expert on Peyronies Disease, hopefully not so far as the west coast where Dr. Lue works. Thanks to this forum allowing me to read its posts as a guest, I did find that expert not as far away: Dr. Steven Morganstern in Atlanta.

Here I keep my experience with Dr. Morganstern brief (I will say more in subsequent posts). As I say in my opening, his treatment approach is obviously working for me. It is treatment under a rubric of general health first, then the overall health of the male anatomy and physiology, and then the underlying matters specific to Peyronies Disease. He sees all as interrelated. In my case, attention has been given to cardiovascular needs and hormone deficiencies. Treatments specific to my Peyronies Disease include ultrasonic sound wave treatments, carbon dioxide injections into tissues surrounding penile plaque, pentoxyfilline (Trental) injections into the plaque, Verapamil injections into the plaque, and so far one cycle of Xiaflex injections.  At home, the stuff I take daily includes a prescription for pentoxyfilline (400 mg 3/day), vitamin E, supplements l-arginine, curcumin, omega-3, and DIM. I wear an ESL-40 traction device. Dr. Morganstern promises that I will have straight erections again.

I must add a word about something that Dr. Morganstern gets worked up about: The limitations and misuses of Xiaflex. He says that its proper use is in conjunction with other therapies, and even then it is no silver bullet. The contribution of Xiaflex to reduction of penile bend varies from patient to patient. It may have no contribution at all. In any case, its proper use must follow adequate preparation of penile tissues and in light of the health of these tissues. Otherwise, the results can be disastrous. He gets worked up, I guess, because he says he is often faced with having to deal with these disastrous results.
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Jonbinspain

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Re: Optimistic
« Reply #1 on: August 15, 2016, 04:04:36 PM »

It seems you're doing pretty much all the right things. Hope it all continues to improve.

Re the comments on Xiaflex, Morganstern is spot on, it's not a silver bullet. It's very expensive and there are no guarantees of any improvement at all.
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skunkworks

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Re: Optimistic
« Reply #2 on: February 21, 2017, 04:31:07 AM »

The limitations and misuses of Xiaflex. He says that its proper use is in conjunction with other therapies, and even then it is no silver bullet. The contribution of Xiaflex to reduction of penile bend varies from patient to patient. It may have no contribution at all. In any case, its proper use must follow adequate preparation of penile tissues and in light of the health of these tissues. Otherwise, the results can be disastrous. He gets worked up, I guess, because he says he is often faced with having to deal with these disastrous results.

Did he give you any details about that?

What other therapies should be used in conjunction?

What preparation of penile tissues is required? What does it involve?

I think he's right but I would love some detail.

james1947

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Re: Optimistic
« Reply #3 on: February 21, 2017, 08:24:14 AM »

Coive was last online at December 04, 2016
Hope he is following the forum as guest so he can answer.
I am also interested in the answers to your questions Skunk.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum
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