Newbie from the UK

[ikebrighton]

Hi there
I have had peyronies for over 10 years and it didn't used to worry me, but as I've got older (I'm now 46) I have started to become more concerned about it. I have now developed a contraction of the fingers on my left hand and my GP believes they may be linked. My penis bends to the left almost in the middle and remains fairly flaccid for the end 50%. Being a gay man this causes some problems and I have not had penetrative sex since developing peyronies. Thankfully I have a very understanding partner, because penis size is very important to most gay men.
When I was first diagnosed I had shockwave therapy along with large doses of vitamin E but neither of them prevented my peyronies progressing from the acute to the chronic phase. I was offered injections directly into the penis and also vacuum pumps both of which I declined.  
I am not sure whether to go back to my GP or not because I have no idea if treatments for chronic peyronies have advanced in the UK or not.  

[kuaka]

General fibrosis issues indicate a systemic cause.  

Many Peyronie's cases are due to injury.

From a systemic standpoint, your tactics may differ a bit.  Consider a good magnesium supplement right off the bat, as magnesium deficiency is prevalent in all sorts of fibrosis issues, including Duprene's, Cystic Fibrosis and such.  Magnesium Oxide is all but useless.  Look for Magnesium Chloride or such.

[Tbones]

I would highly recommend that you spend lots of time researching this yourself.  A VED is the best, most proven way to stop the progression of Peyronies and there is a thread on here about a discount with Augusta medical.  I would also recommend you see a urologist and have an ultrasound of the penis to confirm your condition and check for venous leakage.   Are you also having ED or just loss of size and a curve?  Definitely start taking the supplements, they can't hurt and may help.  You do have options and should not ignore it,  because it could get worse.   Best of luck!

[J-A]

If you have the cash contact the london Andrology clinic, IME the NHS urologists were a waste of time

[ikebrighton]

Apologies for taking so long to say Thank You for the suggestions.
I have researched Magnesium Chloride and see that I only need a small amount so I will certainly give that a try. I will also have a chat with my GP about getting a referral back to a urologist as I have moved quite a long way from where I used to live so maybe they will have some different solutions here. I was also interested to read about VED devices possibly being available on the NHS which would be fantastic and save me a fortune.
Luckily I don't have ED just loss of size and a curve which makes penetrative sex difficult - anything else I am performing completely OK.
I will leave the Andrology clinic until last as I only want to contemplate surgery as a last resort when all else has failed.  

[Shankerbill]

Hi ikebrighton, sounds like you have Duputreyns in your hand; it's closely linked to Peyronies. I have it in both hands and occasionally it's painful when I grip something but fortunately don't have the contracture. There are videos on the web of doctors injecting the patient's hand with xiapex (xiaflex) and dissolving the fibrotic chords so the hand is immediately cured. But I'm also keen to get the xiapex for my peyronies, which I've had for five years now. Unfortunately it's not available on the NHS and looks like it's never going to get very high on the list although this disease can be totally damaging to we who suffer!! I have waisting on both sides nearly halfway down my dick. Previously it was still quite flabby on the left side when erect, and this previously caused it to bend slightly to the left and up. I have found the VED hasn't cured the waisting much, possibly a little, nor the upward curve, but it has helped fill out the end so it's firmer when erect and a bit fuller, also it's cured the left curve. I would definitely recommend VED but go easy! SB

[Jonbinspain]

Yes, go back to your doctor. Ask for an appointment with a Peyronies specialist, if possible. Request an ultrasound, you need to know at what stage of the disease you're at. If there is calcified plaque, etc. It's important to know if there is calcification or not.