peyronie's disease institute

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cardawg

Hi all.
Very happy to have found this forum.  I'm sure I'm not the only person that feels overwhelmed with the information overload that comes when first trying to educate oneself about this disease. I was wondering what anybody can tell me about the website in the subject line. I can guess that ill get the usual response that its all bs and a snake-oil site, which it probably is. But isnt all treatment currently available just snake-oil at this point. None have proven to be good enough for general acceptance by the medical coomunity or by the community of peyronies sufferers. The concept of the website is obviously designed to maximize sales of there pills. But can there be anything wrong with there other concept of throwing everything at the disease but the kitchen sink. Hell throw that too if it might help. Im just wondering cuz figuring out where to start is a real pain. I dont want to keep making appointments with urologists that are always a month away only to be told the same old crap about do nothing then get surgery. ive seen two so far and niether one would perscribe anything at all for me. On this forum it seems like nobody agrees on amything either and for good reason. evrybody is different. im just saying that just bombimg the crap out of the plaque with everything possible sounds better than waiting for some dickhead urologist that doesnt give two shits about my problem to tell me to wait it out. I guess im frustrated cuz everytime i have an idea for treating myself i end up reading somewhere on here that it dont work. ive got all the ingredients for the 3 pronged attack i found on the sexually  healthy man website but havent found anybody here that agrees with that either. i wonder if bruce jenner got this disease and just said F~@< it- iknow a solution. chop!
 
first symptom (hour glassing) 2011
first big symptom & Diagnosis Oct 2015 (Big bend)
Attempted every home remedy- supps DMSO TRACTION VED
Xiaflex shots in 2019 (no improvement)
Implant AMS CX 700 ms in July 2021
18 cm implant with 3 1cm RTE's = 21 CM

james1947

I don't understand why you are asking the forum opinion while you know that the answer will be "Snake oil"
Indeed it is. The website is oriented to make money. You are free to spend your money as you wish :), including what is sold on the website you mentioned.
QuoteBut isnt all treatment currently available just snake-oil at this point
NO!!!
On this forum you may find many advises regarding treatment (if you will invest time to read) and remember three things:
1. No one is trying to convince you for any treatment
2. No one on the forum want you to buy something from them
3. If something helps some, not for sure will help all

James


Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

cardawg

i guess my post was more of a rant out of the frustration. I dont want to keep waiting for urologist appts and watch the months pass me by and do nothing. are there any online pharmacy's that sell pentox?

first symptom (hour glassing) 2011
first big symptom & Diagnosis Oct 2015 (Big bend)
Attempted every home remedy- supps DMSO TRACTION VED
Xiaflex shots in 2019 (no improvement)
Implant AMS CX 700 ms in July 2021
18 cm implant with 3 1cm RTE's = 21 CM

Gutted

I think I'm OK posting that River Pharmacy (Canada) is extremely widely used on here for Pentox and Cialis and seems to be serving people well as a trustworthy reliable source.

Also, you may be surprised, as I was, that not all Urologists will prescribe Pentox anyway .... even when you say you will take a private prescription !!

PeetyPeet

I can second that. River Pharmacy is great - has delivered twice to me now with no problems.

In the UK at least, I wouldn't even bother asking for a pentox prescription - I know what the answer would be. For reasons of accountability and reputation practitioners over here are super cautious. Given that the study highlighting the benefits if Pentox was recently withdrawn, I don't think this attitude to likely to change anytime soon :(


PeetyPeet

Oh, and looking at the website the OP mentioned - my firewall flagged it has having ' a bad reputation'.