... fearful

[Perspex]

Hi

I'm 34, from the uk... and feeling very worried and distracted by this

literally a couple of days ago I notice I have an odd bend to the left when my penis is erect. This is definitely very new. originating just under the head of my penis. A bit of internet self diagnosis led me to checking for any bumps or possible scaring.. and yep.... There is a small bump on the left just where the penis seems to start pulling to the left.

I'm pretty freaked out to be fair. If I have diagnosed myself correctly... I am afraid that it will get drastically worse.

I'm wondering if there is a chance it is something else. I am seeing a doctor for something unrelated this week.. of course I wil now bring this up too.

Anyway,

I really hope someone is gong to be able to put my mind at ease.... but somehow i think it might not be good news

plus, I dont have much trust in doctors to give accurate advice sometimes (from experience). GP's aren't experts in every medical area... and have given me many half truths and sloppy advice. I'm wondering if I should get straight on to a urologist somehow. Does anyone here have any suggestions? I'm in the south west... but can easily travel as far as london if needed.

[PeetyPeet]

Hi Perspex,

I feel your frustration with GPs. Nonetheless,  I'd bring up your suspected Peyronies anyway when you next have an appointment. Your GP will most likely want to refer you to a urologist. Unfortunately, not all urologists are well-read when it comes to Peyronie's. Make your GP aware of this and request that you see a specialist. Please consider a private referral, you will be seen much quicker vs 2-4 months wait on NHS, plus you can choose a urologist outside of your area. Please have a look at the forum doctors list: https://www.peyroniesforum.net/index.php/topic,4063.0.html.

Peyronies is best tackled early on. There are number of non-prescription supplements you can start taking straight away which can help, (and won't do any harm if it turns out you don't have peyronie's afterall) L-arginine, Acetyl L Carnitine & Coq10/Ubquinol. If you are diagnosed with peyronie's you might want to consider getting a VED and/or traction device. There's plenty of info on these and use-technique on the forum which I suggest you read.

I hope this is helpful.

best

Peety

[Perspex]

Thanks for the reply peety, much apreciated

I'll bring it up on friday with my gp. I can get to the urologists in Bristol relatively easily (there are two on the list). I will consider private.. if I can afford to

I'm just having a look through all those supliments. Its quite a lot to digest. Immediately I see that Citrulline can be considered more useful than L Argenine. Would you agree with that? Lots to read

I'm not too keen on taking things that i dont know anything about. I kind of avoid all pharmaceuticals when possible. But I dont want to shoot mysef in the foot either

This is could get very expensive

[Jonbinspain]

Peety is right, get to a competent, Peyronies aware urologist asap. Your description sounds suspiciously like Peyronies.

Citrulline Malate is a better bet than Arginine. ALC has been shown to be of benefit too. If buying, buy in powder form. It's far cheaper and both dissolve in water easily.

But see a Uro, asap

[Perspex]

thanks

I'm doing all the reserch now

got a urologist in mind to call tomorrow

buying some strange sounding powdered stuff to throw in to myself.... The things we'll do when we're afraid.. crazy. Trying to find the least extautionate way of getting it.

thanks for the advice!

[NeoV]

Citrulline is cheapest in powdered form, but it's highly acidic and will erode your teeth over time, so I recommend the pills. A straw will help a bit but is not entirely effective.

ALCAR has decent science behind it and a good reputation here, but the studies on Peyronie's were poorly done (not even double blind). Still, since anything that may help penile health may help peyronie's, it's worth trying. I wrote quite a lot about ALCAR in a thread called "Acetyl-l-carnitine review."

Traction and VED therapy are very effective at reducing curves or filling out dents. It's a messy science however and a long haul, just don't lose hope. A lot of us have had a lot of improvement over the years, some like myself, fortunate enough to be basically free of the disease.
 

[PeetyPeet]

Perspex, if you choose to go with l-arginine pills rather than powder, please give me a pm - I'll let you a reliable brand in the UK.

Best

[Perspex]

hey peety

I've ordered 80 quid (!!!!) of supliments .. i've got bags of powder heading my way as we speak. At the very least i'll become super fit muscle bound and mentally sharp...

i cant afford it.. but i dont want to regret not trying

cheers for the offer

[Perspex]

managed to get myself a last minute appointment at my GP today

Well.. I went armed with a bit of knowledge. but he assured me that I should wait and see how it progresses before going to a urologist. Up to 12 months he said. He only found a small amount of evidence for a plaque (in my mind it was much more obvious).

I talked about the acute phase and the chronic phases..  I said I'd read on here that it was important to try and deal with it right from the start in the acute phase.. he told me that in this acute stage it is better that I allow it to hopefully recover from the slight damage that could have caused it... therfore correcting itself.

So I kind of left feeling a bit relieved.. but at the same time.. it seems like everyone on here is contradicting him.

This is what the NHS say about it

Is it normal to have a curved penis? - Health questions - NHS Choices

[Jonbinspain]

Perspex;

No disrespect, mate, but your GP should stick to what he's there for - dealing with everyday ailments etc, not talking about things he seems to know little about. Yes, there are cases of spontaneous resolution of the disease, but they're rare! Your chances are not good! And it's far more likely that the disease will progress whilst your GP has you sitting and waiting.

If at all possible, insist on a referral to a urologist.  BTW, I strongly suspect that your GP would have a far greater sense of urgency if it was his dick that was bent and painful!!  

[NeoV]

I second Jobinspain, forget every word your GP has told you and see a specialist. Even a urologist told me when I Was 18 that I didn't have Peyronie's

That being said, the oral and non-invasive treatment options do not change, and should all be taken immediately.

If I could start over I would take pentox from the beginning at least, and be doing traction every single day even after injury.  

[james1947]

Perspex

I suppose a moderator or the administrator will close the topic as it exceeds 10 posts.
Continue the subject on an other board

James

[LWillisjr]

Now locked as an introductory topic