pills pills pills...

[walrus67]

it seems to be quite a common theme on here to swallow mountains of pills for months and months with absolutely no effects On The whole...doesnt this tell you something?....and bloody traction?? its embarrassing enough the whole process..but thats beyond a joke....its the staunch advocacy of dozens of potions and penis stretching devices that i find odd...must be lucrative...for somebody somewhere

[QuackAttack]

Supplements are the least harmful to take and in some cases (magnesium) are essential minerals, without which, you could die from a cardiomyopathy heart attack like many athletes (Jim Fixx, runner; Reggie Lewis, NBA; Kerby Puckett, MBL to name a very few). Traction has been clinically shown to reduce curvature.  Will it completely eliminate it, unfortunately I don't think so otherwise everybody in this forum would be saying so.  As for pharmaceuticals, some are showing promise, many are marginal at best.  However, who profits from them - the drug companies and many can have terrible side effects on your liver and other systems in your body.  There are plenty of doctors out there that will take a wait and see approach and then say OK, lets slice you open because surgery is what will work, which is the most profitable for them.  That isn't to say that all doctors do that and that surgery isn't the modality some have to take.

In short, I among many think it is best to take a conservative, but aggressive approach with things that have been shown to help, but maybe not completely eliminate this problem.  Look, nobody is even 100 percent certain how this happens and what factors tend to increase the likelihood for this to happen.

Stay positive, do your research and take the approach that you are most comfortable with. Just know that there are people in this forum dealing with the same thing as you and have been for a very long time, not just 6 months like me. Unfortunately, this forum is growing, but those that are here are here for support and to lend their advice.  I would go out on a limb and say that many of the long-time forum goers know as much or more than most urologists on this issue.

[walrus67]

i wish you luck ...taking pills and supplements that may work and using devices that in my view are just plain humililiating with ultimately little effect...im just stating that conservative time consuming pointless approaches are not for everyone...time is not on anyones side...im glad it works for you...or doesnt it??..or anyone else out there....but there are scared suicidal folk out there who dont have time for conservative...correct consultation YES...but false hope NO

[Jonbinspain]

As someone who fought this disease for 4+years, I think it depends on your individual case, or condition. And what stage of the disease you're at.

In the active phase, I think medications such as Pentox can definitely help. Certain supplements may too be of help by increasing blood flow to the penis.

Similarly, I believe that traction and/or VED can be of use in helping to reduce curvature.

Now comes the but!   If you're past the active phase, and/or you have calcification, very little is going to help. I tried everything that's been advocated on the forum and elsewhere. If it had any semblance of credibility, I tried it. I tried both traction and VED.

When I finally had to give in and submit to surgery, my curvature was unchanged at just short of 90'degree dorsal. I discussed at length with Dr Kuehhas who, before I had given him any real history, had said pretty much all of what I've just said above.

Knowing what I know now, I wish I'd undergone surgery 2-3 years ago. I'm only 3 weeks post surgery, but all indications are that it was a complete success and that I now have a perfectly straight penis again.

Of course, all cases are individual. But if you're past the active phase. If you have calcified plaque, you may want to consider my personal experiences.  

[walrus67]

hi jonsbin
what op did you have?
ive just had 3 part prosthesis fitted...7 days ago

[Pfract]

Just like xiaflex is a joke to you?  

[walrus67]

what are you on about pal?

[walrus67]

try and read whats being wrote guys..it gives your counter view..purpose

[walrus67]

its interesting jonsbinpain that you feel youve wasted 2-3 years....before having inevitable surgery.....my points are based purely on acute calcification ,bend, pain and eating magnesium and humiliating myself daily with a suction device..were not an option for me..thats al im saying...it appears to rub the conservative approach, less acute members up the wrong way...im keen to liaise with pre or post op members to share there experiences..and hope fully pass on mine

[Jonbinspain]

My surgery was the stage technique, which is excision and graft using the geometric principles devised by Dr's Kuehhas & Egydio. It's similar to the Egydio technique, I believe,

Re Xiaflex. It was an option for me. However, in Dr Kuehhas's opinion, I would have needed four rounds of injections. There is no absolute guarantee that it will even work at all, and if it does, the curvature correction would be a max of 30%". 30% of an almost 90 degree curve didn't sound worth the risk. Plus, the cost of the four rounds would have totalled  not far short of the cost of the surgery.

As I put in my original post, this whole thing is subjective. Yes, Xiaflex has a good record and is used by Dr Kuehhas. It just wasn't the right option for me given my degree of incapacity.  

[walrus67]

i assume you never had any hinging..or hour glassing as well as the bend...im delighted the stage has been a success for you , delighted....i have another 5 weeks to go for my first ''inflation''...thus far apart from abdominal pain (resevoir site) and obvious soreness , im happy with my non bent non hour glassed uniform willy..looking forward to the future
good luck

[Gutted]

Seems to have got a bit heated in this thread but I would be interested to have a quick summary of all Walrus67's  and Jonbinspain's symptoms prior to surgery, if they don't mind ??

I think many probably genuinely struggle with the non-invasive Vs surgery options ?

My thoughts are, I'm trying non-invasive (orals, traction, VED)  first. I personally don't find it "humiliating" and to be frank, the research I've done makes surgery sound a SCARY option ........ possible side effects .... permanent nerve damage (sensation loss), permanent Erectile Dysfunction, permanent (and significant) loss of length (ironically traction devices prescribed to try and reverse it) and loss of girth.

Be interested in others views on balancing the invasive / non-invasive decision and any surgery results / side effects experienced.....

[Dared]

I'm a year an a half in and still in the active phase. Traction for the last ten months which has straightened the curve but not solved severe hour glassing towards the base. I'm beginning to go insane though from the pain which in my case is pretty severe. I'm also on pentox and l carnitine which both help. All these non invasive solutions are bandages but they don't solve the underlying problem. Does anyone know if xiaflex can help hour glassing or just curve?

[walrus67]

i wouldn't call anything on this thread 'heated'...just healthy straight up debate apart from the guy who can't read ...i find the spectre of Peyronies Disease humiliating full stop...from ED to not being able to sexually satisfy my partner, to having to disrobe at the GP's....and basically look at my body and not recognise it....if i like to describe pumps and the use of them as humiliating, i will...if they work(ed) for you BRILLIANT...my acute stage of Peyronies Disease gave me absolutely no function or very little..wayyy beyond collogen injections...pumps or bloody magnesium...severe hour glassing or 'hinge'...huge scarring and guitar string...i could go on...the risk of any surgery is death my friend...it depends on your outlook on life...and circumstances...i make no apologies...but my surgery has been a success...the % or odds of this were in my favour ...97%...98%...95%....are my kinda odds...if you want to quote the 5% problems thats fine by me and i hope your approach is successful

[Jonbinspain]

Gutted;

You don't say at what stage of the disease you're at?  If any of you read my original post on this thread, you will see that I clearly state that all cases are individual and that a lot depends on where you're at with the disease.

My symptoms were classic Peyronies, only I didn't know that then. Pain getting an erection - which went after a while. And then a slowish curvature started developing. I went to my doctor, who's a woman and she had no idea what the problem was. I waited for a Urologist appointment and was diagnosed with Peyronies. They prescribed me the usual Vit E and, of course, it just got worse. By the time I found this forum and then went back to demand an ultrascan, my plaque had calcified. Calcification can happen at any stage of the disease, or not at all.

From there I threw anything and everything credible at it. Three years later I had improved penile and personal health considerably, but the curvature remained stubbornly unchanged.

I read about Dr Kuehhas on the forum and elsewhere. I made an appointment, listened to him and was impressed with his advice and his technique for correcting the curve. Believe me, surgery was my last resort, but I was sexually incapacitated and felt I had no other option.

I won't go into all the details of the surgery again here, suffice to say that so far it has all gone exactly as planned.

The Stage technique used by Dr Kuehhas involves no loss of length or girth.  

[walrus67]

ive stated numerous times my progression and where im at now...i had the 3 part prosthesis fitted last week and am currently recooperating....very happy indeed....major last resort for me too

[walrus67]

jonsbin..
congratulations on the procedure man
well done

[Gutted]

The Stage technique used by Dr Kuehhas involves no loss of length or girth.

Thanks for that Jonbinspain. That's what I was looking for in a constructive answer. Something I didn't know about and something to research ...... the 'stage technique'

[Jonbinspain]

I don't know your situation, where you're at with the disease, etc.

You may want to have an initial consultation with Dr. Kuehhas, he's at the London Andrology Clinic in Knightsbridge. He's pretty straightforward and will advise you on what the best options are in your case.

As I say, surgery was the best option for me due to my calcified plaque and severe curvature. Your case may be different.  

[Gutted]

Thanks again. I've definitely come across  the London Andrology Clinic. They advertise heavily and look very commercially focused, especially on getting surgery business.

With your recommendation, I will reconsider that clinic for non-surgical consultations.

I would say, I am not a dead cert surgery case. Approx 35degs upwards curve at point of hourglassing (bilateral indentations). No pain. No ED.

In my head, I think the VED therapy may help the indentations, as the results on here are very promising in that respect. So giving that a go initially, with traction as well. Orals - ALC, Ubiquinol, MgCl and shortly to add Pentox and possibly Cialis

[Jonbinspain]

Yes, Dr Kuehhas is a surgeon. However, he also handles Xiapex injections, etc. he was pretty straightforward with me. He's easy to talk to and you can ask him whatever questions you may have. At the end of the day, it's your decision.