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Welcome to J Francois Eid, MD - Directly answering member questions in the "Medical Professionals" section below the Treatment boards.
https://www.peyroniesforum.net/index.php/topic,17819.0.html

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Author Topic: Rant, really upset because my pain is back  (Read 4681 times)

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Thisismyusername

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Rant, really upset because my pain is back
« on: November 28, 2015, 12:33:54 PM »

My hyperactive 4 year old cousin decided to headbutt me in the crotch as his way of saying goodbye this Thanksgiving.  Now my chronic flaccid penis pain is back.  It's been 2 days and no sign of going away.  I'm so upset, I just want to scream and cry.

The pain distracts me all day.  Everything irritates it.  Showering, walking, wearing jeans.  Sexual activity is completely out of the question.  It just eats away at me and its impossible to be happy or enjoy life like this.

Previously I had this kind of pain for an entire year, but I'd been painfree for a year and a half.  Now all the bad memories are coming back.  I'm feeling extremely resentful right now and angry at everything.  Nobody understands what this is like.

I'm just trying to tell myself it won't last too long.  Hopefully in a few days or a week I'll be feeling better.  I had made so much progress.  I could finally wear jeans again and even masturbate about once or twice a week without much pain.  Now all the progress is gone, at least right now.  F^@% my life.
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Adam

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Re: Rant, really upset because my pain is back
« Reply #1 on: November 28, 2015, 06:06:50 PM »

Hi my friend,
lots of the people here know, hows this feels like. I for myself dislike most the rollercaster regarding pain coming back. It feels brutal. But my experience is, there are always times coming when it will get better, even if now you have experienced a setback. My pain now seems to get better with the help of Pentox, potaba in conjunction with infrarot-heat 150 Watt 2-3 times a week for 10-15 minutes. For me just a trial because of the positive heat-studies. Wish you the best and you are not alone.
Cheers Adam
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NeoV

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Re: Rant, really upset because my pain is back
« Reply #2 on: November 28, 2015, 09:26:45 PM »

Well man, that just sucks. I think we can all relate to having our issues flare up and just get hideous once in a while. It's crushing but be kind to yourself.

Thisismyusername

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Re: Rant, really upset because my pain is back
« Reply #3 on: November 29, 2015, 11:56:51 AM »

I'm so upset about all of this.  All the bad memories are coming back.  Pain is showing absolutely no signs of improvement.  I haven't felt this miserable since the year I had constant chronic pain. 

The pain is so absolutely destructive.  It is impossible to enjoy myself.  Relaxing is very difficult.  Last night I was in bad pain and had a lot anxiety and had trouble sleeping.

I've been trying to live as normally as possible and hope the pain just goes away on it's own, but so far no good.  I really want to keep my anxiety under control but it's so difficult when the pain is constantly gnawing away at me. 

I seriously can't believe this happened.  Life had been pretty decent lately.  I was actually happy again.  I was actually enjoying myself again.  Now my life is a living hell again.  This is basically a real life nightmare. 
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Adam

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Re: Rant, really upset because my pain is back
« Reply #4 on: December 03, 2015, 04:48:03 PM »

Hi fellow sufferer,
have you thought about heattreatment for the pain. I read somewhere here, that a longtermpain-patient got relieve of pain due to a heattreatment called androtherm. And if this heattreatment is not available, i would think about infrarot -heattreatment. The studies indicates some benefit, just be careful. You have tried so many things, keep your spirit up.
Best wishes!
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Adam

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Re: Rant, really upset because my pain is back
« Reply #5 on: December 03, 2015, 04:55:08 PM »

It was the user italiano, who got finally painrelieve as a longtermsufferer due to heattreatment.
Hope this helps.
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nowhereman

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Re: Rant, really upset because my pain is back
« Reply #6 on: December 04, 2015, 07:15:38 PM »

I'm so sorry that happened to you man, as you are the person who's symptoms mirror mine the most (even though I know mine is not peyronies), and it started for us both I believe about the same time, I had a mini freak out just thinking about what it was like in the beginning, utter horror. Not being able to wear jeans was terrible, even the seam of my boxers irritated the painful spot on my dick, it has only been in the last maybe 4-6 months that I don't have flaccid pain and I can finally shake my dick after peeing instead of sitting down (because of the pain of shaking it). March 2013 was when this started for me. How it can take this long for inflammation to go away just makes no sense. No help from doctors either. Hang in there.
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Thisismyusername

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Re: Rant, really upset because my pain is back
« Reply #7 on: December 14, 2015, 08:03:46 PM »

Adam - I've tried heat packs before and it increased pain, so I don't think that route would work, but thanks for the suggestion.

nowhereman - Thanks for the empathy.  I'm really sorry about what you've had to go through and it sounds so similar to what I went through.  Even washing my penis in the shower and pulling back my foreskin to pee could be painful in the beginning and after the relapse (definitely no shaking, and I also started sitting to pee on a regular basis).  Good news is a week after the relapse I had a major improvement so that the pain was mild and I felt ok psychologically again.  Unfortunately for no reason it has come back today.  I have no idea why it came back today as there was no real trigger.  Through last night I accidentally pulled on my penis a little bit and the pain came back for a few hours but then went away.  Perhaps that is really the cause of the pain today, but it seems delayed. 

So the good news is it seems like my healing is a lot faster this time, bad news is that I'm not back to where I was and I've had another (mini? hopefully?) relapse. 

It's tough because even once the daily pain is gone, things will stay more irritable for a while and I'll have to be super super careful for a while.  Hopefully I can wear jeans again and go running again not too long from now.  And it would be nice to be able to masturbate again without really bad pain as it gets really hard to abstain for longer than a week or so at a time. 
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Adam

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Re: Rant, really upset because my pain is back
« Reply #8 on: December 15, 2015, 02:09:47 PM »

Hi thisismyusername, regarding the heattreatment have you tried it like it has been done in the studies. Meaning 2 treatments a week of 30 minutes and  a gap of 2-3 days between each treatment. I am asking, because the first day after each treatment my pain increases as well and 2-3 days after each treatment the pain improves and gets better as before the heattreatment. Just my experiences. Best wishes.
Adam
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Thisismyusername

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Re: Rant, really upset because my pain is back
« Reply #9 on: December 18, 2015, 09:43:58 AM »

Adam,

Can you show me the studies you are referring to?  What is the theory behind the treatment? 

I'm having a really tough time right now with pain all day and the smallest things exacerbating pain significantly.  Can't even take a walk without being in major pain.  Starting to really get to me.  Also I'm going insane from no sexual release for a long time now, since I know that will make the pain even worse.  This condition really is hell. 
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Adam

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Re: Rant, really upset because my pain is back
« Reply #10 on: December 18, 2015, 12:51:19 PM »

Hi, the theory behind it is, that some heatshockproteins trigger a healingresponse. The studies i meant are here on this site and some on the website mypyronie.com. There you can find them at alternative treatments. Best wishes.
Adam
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Thisismyusername

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Re: Rant, really upset because my pain is back
« Reply #11 on: January 08, 2016, 07:13:15 PM »

Still having really bad pain all day.  Life really sucks right now. 
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MoatazKad

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Re: Rant, really upset because my pain is back
« Reply #12 on: January 21, 2016, 01:04:48 AM »

maybe infra-red sauna helps
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Thisismyusername

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Re: Rant, really upset because my pain is back
« Reply #13 on: February 02, 2016, 05:39:57 PM »

Finally had some significant improvement, and now another set back.  Fuckkkkkkkkkkkkkk.
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james1947

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Re: Rant, really upset because my pain is back
« Reply #14 on: February 02, 2016, 06:48:41 PM »

Thisismyusername

Your previous post on this topic was a month ago, can you detail your sentence?
Quote
Finally had some significant improvement, and now another set back.
Maybe someone on the forum can try to help.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Glassglue

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Re: Rant, really upset because my pain is back
« Reply #15 on: February 04, 2016, 03:33:14 PM »

I just came back to this forum which I refer to as the unhappiest place on earth because my pain is becoming unbearable. And I see you are I the same situation. And so it just discourages me again. Which is why I don't come here. I have an appt with another urologist on the 18th as the first one basically kicked me out (he said peyronies doesn't cause pain.). The new one is recommended by my gp but doesn't have any particular peyronies expertise. Not that anyone really does. I'm just going because it makes me feel like I'm doing something.

My pain went away entirely for almost three weeks in October for no apparent reason. Then came back for the same reason. It went away for almost twenty four hours before Christmas. Then came back. I've had no more problems with plaque growth since the initial episode in April/May of last year, and managed to beat my dick into a semblance of normality with the VED.  But between the penile pain and the sciatic nerve pain in my legs I've given up on ever having a real life again and think about suicide every single day, as it's essentially over anyway.
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