Congenital Curvature or Peyronies Disease

[newguy]

JWL - You should definitely be sure to get this checked out, and provide all of the details your given here to the doctor. From your description is sounds like you have had a slight congenitcal curve all of your life. If this has changed lately, it's 'possible' that you've developed peyronie's disease. 4 months seems a long time to wait, so if it's at all possible I'd try to get it checked out before then. In my view you should take the PAV cocktail (pentox, l-arginine and viagra) and use the VED if a urologist concedes that there is any possibility that you have peyronie's disease.  

[BentYoung]

JWL- I am in a similar situation and can relate to the struggle of getting an accurate diagnosis. I think one of the hardest things about this illness is finding a specific event that may have caused it (I guess it doesn't really matter in the end - we have it now). OldMan, I will heed your warning and avoid the cowgirl woes -thanks. Come to think of it, this is the only position I have had pain with up until now. To answer your question lwillisjr, I have had this condition for as long as I can honestly remember (and I have tried to recall everything -as we all have obsessively I'm sure). I am thinking that I may have got too aggressive with myself in my exploratory years when I was in elementary/middle school. I have never bent or had a really painful experience that sticks out to me. There are so many frustrating components to this problem the most annoying for me is: do I have Peyronies Disease or is this a congenital problem or is it congenital Peyronies Disease?AAARRRGGG. I know that I can still function sexually, but the hurtle for me has become gaining the lost confidence and enjoying sex without obsessing about re-injuring the injury I may or may not have in the first place      

[LWillisjr]

BentYoung,
I think you have summed it up extremely well. But my best advice is not to obsess about it. In the cowgirl (girl on top position) you are more prone to injury because you don't have control of here movments. She moves one way, you another......ugh.

Believe me there are many other (and just as enjoyable) positions were you are in full control ov movement. So go with the safe positions, and enjoy...... don't obsess about something that maybe did, or maybe did not, or might or might be inherited, or maybe is....... you get the point.

[Bart2]

Hey guys,

I apologize in advance for a very verbose post. So I have been reading posts on here for a while and just private messaging people that I have felt have similar conditions and relating my conditions to them. I guess I wanted to post my story on here as well just to see what people think about my course of action. So to start of, I as well do not know whether I have Peyronies Disease or whether this is a congenital problem. In my case, I have about a 70-80 degree curve mid shaft bending downwards and a 15-20 degree bend left (All of the bending seems to focus on a point on the left and underside of my penis, which is where the bend left and downwards stems from). I don't remember any traumatic event so I do not know if it is Peyronies Disease. When erect the area does feel like there is a ring there on the left, but that could actually just be me feeling the bent corpora cavernosa tissue that is induced by the curve and not an actual ring/plaque itself.

I have an appointment set up for November 30th with a local uro who specializes and deals with most of the Peyronie's cases in my city in southern Ontario. So hopefully I get a proper diagnosis sometime soon. Should I bring pictures of my condition in both flaccid and erect states on my first visit?

Since I am 23 years of age too, I do not want this to linger for a long time...although this is quite ambitious talk since this is quite a pesky problem and my case is quite severe. I wanted to ask for peoples' input on what I want to bring across with the urologist in terms of treatments. Since my case is so severe, I don't think any sort of drugs, particularly when taken orally will do much if anything. I don't want to discredit any of these treatments but I think the active therapeutic dose that arrives the target area is so small that it has minimal effect, which is made worse by the fact of my severe curvature so I just don't have the option of taking such doses for 10 years to see the effects. I have thought about intralesional injections but again not too sure about those. So I am considering more mechanical options as well as surgery. I came across a website called Peyronie's Disease Institute and the person leading the site says he's a former Peyronies Disease sufferer and he advocates mechanical stretching on your own. I was turned off by the fact that you have to buy these products and the idea of a person making profit off a vulnerable population so I didn't purchase anything. However, I did meet a person on youtube while watching videos of prosthesis surgeries and he sent me a schedule of exercises I can myself as well as a website of hand stretching techniques with some stuff directed specifically at Peyronies Disease. The concepts make sense because they are designed to stretch the shortened side of the penis, so who knows maybe it is possible to stretch it out (They allude to the concept of those cultures stretching their necks with the rings and saying that you can do the same thing with your penis). Anyways, I was wondering what peoples' opinions or experiences are we these stretching techniques?

Another thing I am considering doing is purchasing one of those penis extender devices. Specifically, the FastSize extender was used in a pilot study by Dr. Levine from Chicago and the results were published in the Journal of Sexual Medicine which used the device on Peyronies Disease patients and there were some mild to drastic improvements both subjectively and objectively reported. (As well as gains in size). You can read about the stuff on FastSize.com. Anyways, I again wanted to ask people what their opinions were with these sort of devices and whether or not they have worked. I am new to this forum so I have not had the chance to explore threads discussing any sort of related stories to this.

I think after discussing to the urologist, I will also weigh surgery as an option. After talking to another person on here who went to see a urogenital surgeon here in Ontario as well and because he has demonstrated a very similar situation as me, I am leaning towards the idea of being diagnosed with congenital curvature and my left cavernosa not having developed as fast as my right during puberty. I experience some ED, particulary when standing up, so I wonder if this makes me a candidate for the ED pills, which I really dont' want to be taking. I bring this up, because I wonder if I do pursue surgery, will something like a nesbit fix the problem, when really you're just bending the opposite side of the curve. I am trying to conceptualize whether this would allow the shorter side to straighten out and engorge more easily with blood. Saying all of this makes me want to consider a prosthesis, since this could potentially be an end-all "cure" for the curve and the possibility of getting an erection whenever you want for I guess however long you want sounds very appealing. Although, at 23 and pursuing such an option really scares me since I think the general public would think that any problems related to ED are things that come with age and disease processes and so a person of my age shouldn't need help, especially such drastic help. I don't know I'm just desperate and don't really know what to do, as evidenced by this ramble. Again, I apologize for this long post but I hope I can get some feedback for these treatment options. Many thanks,

Bart

[BentYoung]

Bart,

I feel for you man. Being 24 myself and struggling with these issues, I know firsthand just how mind f*(&^ing this is. My suggestion would be to see as many urologists as you can and weigh your options. The common perception of doctors today is that they are gods, or people who cure with magic pills and quick fixes. Many see health care as a linear process; I am broken or sick then I go to this guy who has been to medical school and he fixes my problem. Remember that the doc across the table is human and is using informed guesses to come up with some relief for you. Don't jump into surgery until you have seen as many urologists as it takes for you to be certain you are making a sound decision. This is a very complex problem that will take time to fix. Get an ultrasound and take as many diagnostic tests as you can to find some answers that will give you ammo to take some initiative. I have done that already and still have no idea what going on with me, so we are on the same page. Good luck to you...stay strong and don't get hasty to fix this and you'll be fine.

Best Wishes
 

[newguy]

I as well do not know whether I have Peyronies Disease or whether this is a congenital problem. In my case, I have about a 70-80 degree curve mid shaft bending downwards and a 15-20 degree bend left (All of the bending seems to focus on a point on the left and underside of my penis, which is where the bend left and downwards stems from). I don't remember any traumatic event so I do not know if it is Peyronies Disease. When erect the area does feel like there is a ring there on the left, but that could actually just be me feeling the bent corpora cavernosa tissue that is induced by the curve and not an actual ring/plaque itself.

Hi Bart, as a general rule, if the curve has always been there, it is congenital. If it went from being straight to curved more recently then I would feel more inclined to suspect peyronie's disease. As you don't mention pain or trauma, or over what kind of time period the curve appeared, I'm not sure what the cause is really.

Since I am 23 years of age too, I do not want this to linger for a long time...although this is quite ambitious talk since this is quite a pesky problem and my case is quite severe. I wanted to ask for peoples' input on what I want to bring across with the urologist in terms of treatments. Since my case is so severe, I don't think any sort of drugs, particularly when taken orally will do much if anything. I don't want to discredit any of these treatments but I think the active therapeutic dose that arrives the target area is so small that it has minimal effect, which is made worse by the fact of my severe curvature so I just don't have the option of taking such doses for 10 years to see the effects. I have thought about intralesional injections but again not too sure about those. So I am considering more mechanical options as well as surgery.

If your curve has alays been there, your options, I suspect would be limited to traction or surgery. Perhaps surgery would be the best choice. Should you suspect that you have peyronie's disease, I would consider taking Pentoxifylline for 6 months to a year to see if you experience any imporvment. It might be worth printing off this evidence and taking it to your urologist:


Pentox study from Iran (New Study. Check it out)
Online review article by Tom Lue - excellent (Has good Pentox support for your urologist
Pentox - Dr. Lue Case Study / Levine mentions his use of Pentox

You've made a few assumption about oral treatments. As you can see, some men with long term peyronie's disease experienced improvements by taking it (especially look at the Iran study), so it's a mistake to rule it out, or think that it's simply impossibe that any oral treatment will help. Perhaps pentox along with traction / Vaccum Erection Device (VED) may be helpful. It's worth dedicating a year to such endevours to see if improvements can be made as this will put you in a better position if you do opt for surgery later don the line. Some men here have experienced improvements with VED therapy, and of course there are the traction studies that you mention.

I think after discussing to the urologist, I will also weigh surgery as an option. After talking to another person on here who went to see a urogenital surgeon here in Ontario as well and because he has demonstrated a very similar situation as me, I am leaning towards the idea of being diagnosed with congenital curvature and my left cavernosa not having developed as fast as my right during puberty. I experience some ED, particulary when standing up, so I wonder if this makes me a candidate for the ED pills, which I really dont' want to be taking. I bring this up, because I wonder if I do pursue surgery, will something like a nesbit fix the problem, when really you're just bending the opposite side of the curve. I am trying to conceptualize whether this would allow the shorter side to straighten out and engorge more easily with blood. Saying all of this makes me want to consider a prosthesis, since this could potentially be an end-all "cure" for the curve and the possibility of getting an erection whenever you want for I guess however long you want sounds very appealing.

You seem to be taking quite a realistic approach and not ruling anything out. If you suffer somewhat from ED, it's definitely worth considering viagra/cialis/levitra. Your situation sounds like something an experienced urologist should be commenting on, so hopefully your appointment will start to give you an idea of what decisions to make. If your condition is revealed to be peyronie's, you will perhaps have more options than if it is congenital. Keep us informed.

[LWillisjr]

Bart,
You are on the right track. Get to good urologist and at least get a proper diagnosis. If it is a congneital curve, then I think you are almost limited to "surgery only" options. If it is Peyronies Disease then there are some other therapies you can try first.

YES!!! take pictures with you for you visit. If your uro doesn't palpate or feel any plaque, he/she will have no idea how bad your curve is.

Les

[Bart2]

Hey guys,

Thanks for the responses. I agree with the idea that because this is somewhat of an underground sort of disease that likely isn't commonplace, then doctors that do encounter cases are trained to say what they've been tought, surgery. Well we'll see, this doctor I am going to see is supposed to be really good with this stuff, so hopefully he outlines everything for me and will acknowledge alternative approaches. I have been wrestling with the idea whether this is peyronie's or congenital, and when I read some earlier posts on here stating that if it's an acute bend then it's peyronie's but if gradual then it is congenital, I for some reason didn't want to agree with it. However, come to think of it, I do have a sharp bend at one point so now I have no idea and I am more borderline whether it is peyronie's or congenital. However, again I don't remember any specific trauma that could have caused injury, and also I somehow think that congenital could be a sharp bend too because during puberty, as one corpora develops quicker than the other, would it not put tension on the whole other corpora, but it budges at just one certain point and bends there (quite possibly down the middle).

I actually can't feel any plaques or rings when I am flaccid, should I normally be able to if there is a plaque there? I am just wondering because taking the pictures and showing them to the doc would just confirm I have a curve, but it wouldnt' tell him what is the problem until an examination. So would I actually have to get an erection (Or be stimulated artificially) for the doc to examine the tissue, check blood flow, and all that jazz?

Hey Les, do you not think that if you wear a traction device, it would be beneficial regardless of congenital or peyronie's? For some reason I feel like it could have more effect in congenital than peyronie's. If it's congenital, there is no disease really, no plaque to deal with, so all you attempt to do is stretch out the shorter side to match the longer side; which is done through the tension of course. On the other hand, with peyronie's, and I think I read about this on that Peyronie's Disease Institute site, would you not be stretching both of the corpora's equally, but the actual plaque would just be riding on top, or bottom or wherever, without actually nothing occuring to it? I don't know, I guess the whole point in terms of Peyronies Disease is making the plaque soft and dissolve away so maybe the traction devices put a beneficial strain on these plaques too. Anyways thanks for the advice I will take the pics and show them to the doc, as well as some of these study results for us to ponder.

Bart  

[newguy]

Do you not think that if you wear a traction device, it would be beneficial regardless of congenital or peyronie's? For some reason I feel like it could have more effect in congenital than peyronie's. If it's congenital, there is no disease really, no plaque to deal with, so all you attempt to do is stretch out the shorter side to match the longer side; which is done through the tension of course. On the other hand, with peyronie's, and I think I read about this on that Peyronie's Disease Institute site, would you not be stretching both of the corpora's equally, but the actual plaque would just be riding on top, or bottom or wherever, without actually nothing occuring to it? I don't know, I guess the whole point in terms of Peyronies Disease is making the plaque soft and dissolve away so maybe the traction devices put a beneficial strain on these plaques too. Anyways thanks for the advice I will take the pics and show them to the doc, as well as some of these study results for us to ponder.

Bart

In the levine studies, fairly good progress was made using traction, with peyronie's patients. It 'may' be the case that plaque is easier to stretch than normal tissue. Perhaps that isn't true, but it seems unlikely that the opposite is true given the study results.

The second comment in bond, I also am sure in untrue. In peyronie's, much like with a congentical condition, the shorter side will always be stretched first. I have a 25-30 degree curve and if I ever stretch by hand, (or in the past when i attempted traction), the longer side was under no tentsion whatsoever.

None of this is to say that a healthy tissue (in congenital cases) cannot be stretched using traction or other methods, though with a pronounced (congenital) curve it seems unlikely that it can be the answer to te problem. Even if it helps somewhat, a surgical solution seems to be the eventual way ahead. Once you've established if your problem is congenitcal or peyronie's, you'll likely be in a good position to make deicisons.

[LWillisjr]

Hey Les, do you not think that if you wear a traction device, it would be beneficial regardless of congenital or peyronie's? For some reason I feel like it could have more effect in congenital than peyronie's.

Everything I have read states that generally the only option for congenital curves is surgery. When you wear traction you are really stretching the tunica. The idea is to stretch the tunica which in turn applies tension to the plaque in order to stretch it back to where it was originally. Meds and injections are meant to assist in that process.

As you stated congenital curves are due to some abnormality like different sizes of corporas, etc. You might try traction but I don't know of any studies or cases where this was effective for a congenital curve. All which makes it important to get properly diagnosed so you know what you are dealing with.

Les

[Woodman]

I would just like to add to the subject about having a congenital curve before peyronies. Before I had Peyronies Disease I had a down ward curve all my life about 5 to 10 degrees. My first bout of peyronies was on the left side of the shaft making my penis curve left. My second bout of peyronies I had an accident during intercoarse where I slipped out from the left curve. I wasn't accustomed to it. My penis bent right in the high arc of my natural curve 3 months later I had the beginnings of plaque develop. By 6 months or so I had a new plaque accompanied with futher bending of my natural curve.

Iam sharing this story because I learned the hard way that if you have a congenital curve and are especially prone to Peyronies this is a very weak spot and can be easily injured. Imagine a soda can with no dents or creases in it. If you apply pressure to the ends it takes a lot of force to crush the can in. Put the smallest dent or crease in it and try it again the can will crush much easier.  The highest point in the arc is the weakest point and buckles like the can that has the crease or dent in it.

If you have a natural curve I would be very careful to make sure you do not buckle or bend penis at the point of curvature. I never thought about it before it was too late.

[JWL]

I don't want to concern you too much, but it's best that Peyronie's is caught early, if it is indeed Peyronie's. There are tons of other factors which can cause bending, such as blood flow issue, scarring (not related to Peyronie's), and even a  bruise.

Is this true?  In other words, a bent penis may be from something other than Peyronie's or congenital curvature?

[Bart2]

I don't want to concern you too much, but it's best that Peyronie's is caught early, if it is indeed Peyronie's. There are tons of other factors which can cause bending, such as blood flow issue, scarring (not related to Peyronie's), and even a  bruise.

Is this true?  In other words, a bent penis may be from something other than Peyronie's or congenital curvature?

That comment was odd because it still seems to refer to either something congenital (lack of blood flow-although it could be argued that this is a psychological thing but I still find it hard to believe that a tissue that is supposed to resist stress during intercourse is so prone to some small changes in blood flow. I think even if there is some inherent defect restricting blood flow to the tissue wouldn't that make it congenital as well?). Also, scarring sounds like it would be related to plaque formation,occuring after an injury say in sexual intercourse. I personally am unaware of any other scarring that can develop besides damage related to peyronie's.

The second comment in bond, I also am sure in untrue. In peyronie's, much like with a congentical condition, the shorter side will always be stretched first. I have a 25-30 degree curve and if I ever stretch by hand, (or in the past when i attempted traction), the longer side was under no tentsion whatsoever.

Also, when I was comparing the traction device and its use for either congenital or peyronie's, for some reason I forgot about the actual curve in peyronie's and that it is shorter in my thought process. However, so from what was stated, if you put tension in such a situation it stretches the shorter side without putting any pressure on the longer side. I mean isn't this the exact same principle when dealing with congenital issues? Also, unless removing the plaque fully straightens the penis, then wouldn't it be more difficult in Peyronies Disease to make the penis straight where you are not only dealing with the plaque, but also the curve? It's an interesting concept, and if the tension from traction straightens the penis in Peyronies Disease by actually putting beneficial pressure on the plaque, then I almost hope that I have Peyronies Disease from the perspective of more options to target this problematic area. (Poor blessing regardless...).

[JWL]

I had my urologist's appointment today (managed to get one earlier than expected).

He told me that Peyronie's disease does not occur in people my age (23).  He examined my penis for plaque and didn't find any, suggesting that I may have some congenital curvature.

At any rate, he asked me to take photos of my erection, from various angles, and bring them in to him tomorrow so that we could have a better look.  He said that if I do in fact have congenital curvature, then what could be done is something called a Nesbit procedure, which he said was safe and very effective.

[chiguy]

My suggestion is go to a different urologist. The first one I went to said the same thing that yours did. I then went to another and he diagnosed it right away. In my case, the curve appeared first, then the plaque. I don't want to scare you, but my suggestion is start on the natural vitamin E. 800 mg should be sufficient (that is 2 400 pills a day).

I am scheduled for a doppler ultrasound in December to locate the plaques and any blood flow issue. I am also your age, as are others on the board. There is even a member that has had peyronie's since age 15.

It's best to be proactive early.

[ComeBacKid]

Cancel your appointment, see a different urologist, tell him about your bend, your concerns and take in a copy of the Dr. Lue pentox study from our PDS Resource Library.  Tell him your totally healthy and the drug is totally safe, which he can easily research, request it, and see what happens, waiting will not help you, the earlier you can get on something like pentox the better.

Comebackid

[skunkworks]

I had my urologist's appointment today (managed to get one earlier than expected).

He told me that Peyronie's disease does not occur in people my age (23).  He examined my penis for plaque and didn't find any, suggesting that I may have some congenital curvature.

At any rate, he asked me to take photos of my erection, from various angles, and bring them in to him tomorrow so that we could have a better look.  He said that if I do in fact have congenital curvature, then what could be done is something called a Nesbit procedure, which he said was safe and very effective.

Any uro who suggests surgery while you still have functional erections should be put in jail. Find a new urologist. The Nesbit procedure carries with it not only a very large chance of losing length, but also a risk of losing erectile function. Your urologist should have his license revoked.

Unless of course your bend is so severe as to mean you cannot have sex, then he is doing ok.

http://www.mayoclinic.com/health/medical/IM01275

[LWillisjr]

In a prior post, JWL stated that he had "always had some curvature". And so it is not clear if he has Peyronies Disease or congenital curve. So for that matter alone I would suggest getting to someone who specializes in Peyronies Disease. It has been stated time and time again that many uro's may be able to diagnose Peyronies Disease, but are not experienced with how to treat it. I do disagree with his statement that Peyronies Disease does not occur in people age 23. IT may be less likely in younger people but clearly we have people on this forum in that age group and have been diagnosed with Peyronies Disease.

Any uro who suggests surgery while you still have functional erections should be put in jail. Find a new urologist. The Nesbit procedure carries with it not only a very large chance of losing length, but also a risk of losing erectile function. Your urologist should have his license revoked.

Skunkworks...... strong words but I understand your point of view. Surgery is still an individual choice If someone wants to straighten their 8 inch erection, and is willing to risk a .5 inch in length or so to do so, is their decision.

I do want to point out that the risk of any erectile dysfunction is very small with the Nesbit procedure. As we have also stated many times on this forum, I think this is more predicated on the experience of the surgeon. We've always said to go to a specialist meaning someone who is skilled in this type of surgery and has done it many times.

If JWL's doctor is convinced it is a congenital curve, then I understand his surgery recommendation. There are few alternatives to congenital curves. I would expect him to point out the risks, and if pain and sexual performance are not an issue, then I definitely DELAY the decision until such time that pain and sexual function are a factor.

I do fault his doctor in so quickly ruling out the possibility of Peyronies Disease. For that reason alone I would recommend JWL find a doctor more experienced in treating Peyronies Disease for a proper diagnosis.

Les

[JWL]

Hello to all,

Well, I would agree that I should get an opinion from somebody else... but let's just fill you in on what he told me both yesterday and today (I have seen the urologiste now two days in a row).

Yesterday he examined my penis.  He mentioned Peyronie's disease, but said that it did not occur in people my age (23), but usually in the 40-70 year old age group.  He felt my penis for plaque and didn't find any, as I have been unable to do.  He mentioned congenital curvature--gave it a funny name I don't remember--and explained that basically one side of the penis grew longer than the other.  This can be straightened, he explained, by a simple procedure called the Nesbit procedure, which he could perform if we both agreed it was the right course of action.  He encouraged me to verify this online or in a book.  I have a copy of Dr. Levine's book on Peyronie's disease from my university library, and the section on the Nesbit procedure does indicate that it is the safest, simplest, and most widely performed surgery for Peyronie's and congenital curvature.

There is no "risk" of shortening: the procedure shortens the penis, period.  It is not a side-effect, but the procedure itself.  The long side is shortened to match the short side, resulting in a straighter, though shorter, penis.  That is my understanding of the shortening effect.

Well, at the end of the appointment he asked me to go home and take pictures of my erection on a digital camera and bring them to him today.  Which I did.  His diagnosis is that I have congenital curvature.  He mentioned the rotation of my penis as a classic signifier of congenital curvature.  He also said that my penis looked fairly good (medically speaking;) and that he wouldn't worry about it if it was not causing sexual dysfunction, which it currently is not.

I have always have a curved penis, so I know I have some congenital curvature.  What was alarming me was the fact that it is notably more curved now than before, something I mentioned to him.  This is what led me to suspect Peyronie's... and you are all right, I should get a second opinion because if it is related to plaque than I should start on something like Potaba or Vitamin E right away.

Anyway, just thought I'd get the whole story out there, thanks for the input everybody.

[newguy]

He mentioned Peyronie's disease, but said that it did not occur in people my age (23), but usually in the 40-70 year old age group.  He felt my penis for plaque and didn't find any, as I have been unable to do.

Peyronie's Disease is less common in young people, but it certainly does happen. Also it isn't always possible to locate plaque. Still, if your condition has been stable for quite some time surgery in and of itself isn't a terrible idea. There are probably other angles you could could explore first, but it's your decision to make.

[need-help]

Hi,
I am new here, unsure where I start a new topic thread so I hope this is alright
I need a bit of help.
I am not sure if I have congenital curvature or peyronies disease.
I dont have any lumps, or uneven areas on my penis, it does however bend slightly to one side and upwards towards my stomach.
It is not painful, it is however difficult to insert my penis during sex, and it seems to slip out due to the upwards bend, and i find it difficult to reach orgasm during sex.

I am very upset about this as I have just started seeing someone and I worry she wont be satisifed, any comments or personal experience will be greatly appreciated!

thankyou in advance!!

[chiguy]

Needhelp,

It is difficult to suggest a potential problem without knowing more of your history. As a general rule, peyronie's is normally the result of a noticeable injury or can come on for no reason. With peyronie's, the curvature begins usually at a defined point. With congenital curvature, the problem has normally been present since birth and became noticeable during puberty. This is a result from one side being shorter than the other side.

To be safe, get checked out by a urologist as soon as possible. Many people are born with congenital curvature, but it usually isn't a problem unless the bend is particularly severe (higher than 30 degrees).  

[need-help]

thank you for your reply
when erect my penis is basically parralle to my stomach (sorry about the spelling lol) it has been that way for as long as i can remember.
this is my first sexual r/ship and I just wonder if it is due to my penis or could be another reason.
It is hard to insert and constantly slips out (penis is hard enough and average size etc)

[chiguy]

I would suggest visiting a urologist. This is normally correctable thru surgery, called the nesbit procedure where they shorten the longer side to make them even. It often results in only a minimal loss of length.

[BentCock]

I'm curious for those who have undergone surgery if being uncircumcised posed a problem?  I am uncircumcised and can't remember during my consultation with the surgeon whether my foreskin would be an issue?  

[chiguy]

Normally the surgeon requires circumcision because that is how they slide the skin back to complete the procedure. I've never heard of anyone actually being able to keep the foreskin.

[Woodman]

Bentcock- read the sugery sections recent post karenbs husband just had plication surgery and was able to keep his foreskin.

[LWillisjr]

Normally the surgeon requires circumcision because that is how they slide the skin back to complete the procedure. I've never heard of anyone actually being able to keep the foreskin.

They can make an incision and slide the skin back without removing the foreskin.

[Bart2]

Hey guys,

So I wanted to comment that I finally had my appointment with the uro earlier this week. He could not feel a plaque so he stated that it was not classical peyronie's, but he said that it could also be internal where it cannot be felt so he did not rule it out. (So at 23 years of age, he did not give me a wishy washy "Doesn't occur at your age" response which was good). Also, he considerred congenital as well.

He is an older gentlemen (Also looked tired since the appt was late into the day) so I was a bit worried that he would be stubborn with his treatment options. However, I was pretty happy with the outcome of the encounter. I went in with the idea that I would like to approach things conservatively and after accumulating knowledge from this forum, I would like to try a VED/traction device, along with pentox for sure, and then some other oral med combination. He stated that the current conservative treatment option was was a combination of the VED, pentox, and L-Arginine or cialis. I chose to get the VED (Which I will be going in for an in person consulation on how to use it in early January when I will purchase it) as well as prescriptions for pentox and the L-Arg. I also read on here on the accounts of improvements thread that someone tried synthetic vitamin E without any benefits, but after trying Peyronie's Disease Institue's Full Spectrum E I think it is called they seen results so I was wondering if anyone could comment on whether this is a worthwhile product to get? Additionally, I debating also doing the VED exercises with heat application. I read a study on here with heat being beneficial as well, so I will try to get something that can achieve temperatures of around 39 degrees C. Does anyone know about the merits of this treatment or what I could get to achieve this temperature?

With respect to surgery, he said surgery is something I should consider after doing this conservative approach, which I definitely agreed upon. I am going to do all of this for 6 months, and I think I will personally extend it to 12 months if needed. We really did not discuss the surgery much, but I think the Nesbit would be the procedure performed in the long run. We did discuss prosthesis, and he totally ruled it out at the moment stating that we would have to prove that it is not an organic issue first before that would even be considered, which I guess makes sense. The only disappointment was that the Doppler would only be performed if surgery was being more seriously considered, so right now I cannot get an accurate analysis of any ED issues. However again I guess with due time approaching things conservatively I will be able to say where things are and where they are going.

Bart

[LWillisjr]

Bart,
Thanks for the update. Sounds like you found a uro who is at least willing to work with you without any predisposition of "do nothing and wait". That is half the battle.  

[Jackieo]

Hi, again, Bart.
I just read your posts to get caught-up with you.  I see that you are 23 years old.
Question 1:  When did you first notice the "bend"?  Is it something you have always had or did it appear over a very short period of time?  From what I have gathered from others on the forum, Peyronie's seems to occur after a sexual "accident (rough sex or a "bad angle"...this is often when you are on your back and your partner is sitting over you (you are not in "control" in this position)), or after rough or extended masturbation, or (as I suspect, in my case) after surgery or an accident during surgery.
Question 2:  Do you have any inflammation (anywhere on your body)?  If you do have Peyronie's you may also have other inflammation.  If you do have inflammation, redness, soreness, etc. on your penis you should avoid any stimulation (including the manual stretching and massage that you mentioned).  I should have mentioned this in my first post to you.  I had surgery after tearing my Achilles Tendon.  I was on my stomach during the surgery and I suspect I cycled through a hard-on or two while caught in my hospital gown...that is how I  believe I suffered the damage.  Anyway, I know I have/ or had excessive inflammation.  I went on an anti-inflammation diet (diet books available in bookstores or on the internet) and basically, I eliminated the inflammation (or seriously decreased the inflammation).  After which, stretching, VED, massage, masturbation and/or sex was okay.
Question 3:  You made a statement which sounded anti-erection medication (maybe due to your age).  I am 58 and I guess I never realized that I no longer experience night time erections.  I started on Viagra but had too many side effects (heat flashes, congestion, sneezing, etc) and changed to Cialis.  It's like being 28 again!  And, the night time erections (I think) are an integral part of my correction.  Why?  Blood flow is good.

That's my list.  Hope it helps.  Mainly, be careful when you start a treatment.  If you have inflammation go slow...
JackieO

[Stephens]

Greetings chaps  

UK, mid-20's, underwent Nesbit seven weeks ago for an approx 40degree congenital curvature to the left.

Have any gents on the forum been through this in similar circumstances? If so I'd like to pick your brains and attempt to gauge my recovery thus far.

Stephens.

[chiguy]

Stephens,

A lot of the members have undergone the nesbit (plication) procedure. The general questions for you will be:

1. Is your penis straight?
2. Have you lost any sensation?
3. Have you lost any length?
4. Can you maintain an erection?

[Stephens]

Hi Chiguy,

OK, I'll fire it out there.

At seven weeks there are still small amounts of black/blue bruising visible externally. The modified right side feels 'tight' at this stage. The material removed was quite far down near the end of the shaft and in fact at this stage there appears to be an approximate 0.5cm overcorrection... I'm not sure if this will recede and settle down as in relative terms I think this is still early days. I can envisage the correction being about right if the tightness eases. Erections are back, particularly at night! I can ward them off in the day but nights are a different story; I'm being woken up less and less by them though. I'm still wary of the possibility of the stitches breaking and cutting through.

My uro said that it takes 'months and months' for things to settle down.

For the record was uncirc'd before and not remotely bothered by the loss if the correction comes in on target.

[chiguy]

I'm not an expert, but judging by what others have posted, that sounds about normal, especially with the erection abilities and such. I am at this point going to defer to other posters about the overcorrection.

[emperordune]

Hi Chiguy,

OK, I'll fire it out there.

It looks like my man has taken two bites out of the right-hand side. At seven weeks there are still small amounts of black/blue bruising visible externally. The modified right side feels 'tight' at this stage. The material removed was quite far down near the end of the shaft and in fact at this stage there appears to be an approximate 0.5cm overcorrection... I'm not sure if this will recede and settle down as in relative terms I think this is still early days. I can envisage the correction being about right if the tightness eases. Erections are back, particularly at night! I can ward them off in the day but nights are a different story; I'm being woken up less and less by them though. I'm still wary of the possibility of the stitches breaking and cutting through.

My uro (who was great btw) said that it takes 'months and months' for things to settle down.

For the record was uncirc'd before and not remotely bothered by the loss if the correction comes in on target.

Feel free to read my history post, which can be found directly beneath my post.  I had an almost identical situation as you and also had surgery.  You can also send me a pm or email with any questions you might have.

[BentYoung]

Anyone ever heard of someone having a congenital hourglass deformity?  

[falcone]

I haven't posted here in about 3 years. I have an hour glass where my upward bend is. However I am not sure when my bend occured. 3 years ago I saw a urologist and they sent me for an ultrasound that determined I had no plaque so they said I didn't have peyronnies...hmmm. Around the time before the ultrasound I had posted here sdaying that I thought I had lost length but I can barely remember around that time.

Can you have peyronnies without a plaque? Im pretty sure I have lost length. But my hour glass is only prominent in a semi-erect state, a feel like I have a vein like a ring round it, but it moves with the foreskin so it doesn't seem to be on the penis itself. Sometimes after sex or masturbation if I get an erection soon after it hurts around the area of the curve to.

Is there anyway of telling if you have had peyronnies in the past? Even though the ultrasound didnt find a plaque I still feel like I had it - my curve seemed to improve a bit but at the expense of some length like it ate into it and made it shorter. I don't know, maybe im imagining things.

Really worries me though.  

[jackp]

falcone

If it looks like peyronies, smells like peyronies, --------you know the bit.

With the loss of length I would go to a Male Sexual Function Specialist not a general practice urologist for an evaluation. Also start the VED protocol for the lost length.

Jackp

[falcone]

Would they be able to tell me if I'd had peyronnie's in the past? The hour glass isn't prominent well full erect.

I was probably just misdiagnosed with the ultrasound. The NHS are useless.

[LWillisjr]

falcone,

Several guys on the forum share similar symptoms as you have described. Their penises seem to exhibit Peyronies Disease behavior when semi-erect, but then seem to go away with full rigidity.

My .02 on this is that you have an area that is "Peyronies like". Meaning an area that is somewhat fibroid but still has some elasticity to it. This could explain why there isn't palpable plaque or even shows up on an ultrasound. As you become erect this is the last part of the tunica that stretches or expands. So in my opinion, it is not an issue of once having Peyronies Disease and not now. I think you have some tissue that is partially Peyronies Disease like. It may stay like this, may get better, or could get worse over time.

I would approach it as possible Peyronies Disease and try to improve it or prevent any worsening effects.

Les

[Tim468]

I'm with Les here. I think that a dent or bend that fills out or straightens out when fully erect is simply tissue (tunica) that is less compliant than normal (the initial dent is due to it stretching out less well - or needing greater force to stretch out), and then only "going away" when fully erect and the tension is greatest.

If it is new, I would look at yourself as A) lucky and B) having "early Peyronie's Disease". IOW, I would get going with the treatments that folks do here.

If you do not do anything and it clears up spontaneously, great. If you do nothing and it gets worse, you're probably going to wish you had a time machine to go back for a do-over.

Tim

[falcone]

The annoying thing is. Thats although my curve has been there for a long time, I can't remember when the hour glass got there. Would have been useful.

But, if I go see a specialist or urologist I would imagine they would just misdiagnose me again. It is definately rigid most the time when flacid but thats been the case for years.

Is there any meds that I could get directs from my GP? As it would also be like 4 months before I got a referral. The NHS is a joke.

[chiguy]

Ask for the Pentox. There are a million posts about it. It is shown to be effective in many men with peyronies. If you have congenital, it probably won't help. I saw Dr. Levine this past week, the pre eminant peyronie's scholar, he said that it is possible to have scarring that is not peyronie's and will not progress. He is not convinced I have peyronies and may just have scar tissue that won't progress. Plus, my scar tissue isn't that thick and plaque is generally thick.

It is important to get an ultrasound to show where the plaque, if any, is located. If there is no plaque or scarring, it is congenital. I would say do this before starting medication if possible.

[falcone]

Ask for the Pentox. There are a million posts about it. It is shown to be effective in many men with peyronies. If you have congenital, it probably won't help. I saw Dr. Levine this past week, the pre eminant peyronie's scholar, he said that it is possible to have scarring that is not peyronie's and will not progress. He is not convinced I have peyronies and may just have scar tissue that won't progress. Plus, my scar tissue isn't that thick and plaque is generally thick.

It is important to get an ultrasound to show where the plaque, if any, is located. If there is no plaque or scarring, it is congenital. I would say do this before starting medication if possible.

I had a flaccid ultrasound done three years ago that detected no plaque but many posters here say does not determine that I don't have it. I will look for different types of tests when I see another urologist or whatever the NHYS send me to soon.

My curve does not bother me or impede penetration. Its not the concern, its the hour glas when semi erect and the general rigid feeling of my penis (which I admit could be because im worrying). But it just doesn't feel right at all, the progress between semi erect and erect is uncomfortable althought not painful. Also if I have had sex or masturbated and do it again soon, its hurts around the bend - otherwise the bend doesn't hurt.

From the sound of it, I may have peyronnie's tissue or early developments.  I think I have lost size, but can't be sure.

[chiguy]

It is important to get an erect and semi erect ultrasound as well. I had those done, which detected some scar tissue, in addition to the flaccid one, which did not detect any scar tissue. I am not a doctor but I would go again to have this done if you can. The traction, fastsize, will help the curve or bend regardless of peyronie's or not.

[falcone]

It is important to get an erect and semi erect ultrasound as well. I had those done, which detected some scar tissue, in addition to the flaccid one, which did not detect any scar tissue. I am not a doctor but I would go again to have this done if you can. The traction, fastsize, will help the curve or bend regardless of peyronie's or not.

Ah in that case im certain my semi erect will show scar tissue. I just hope I don't lose any more size waiting for an appointment! Pretty depressed about this to be honest, its going to be a battle to get them to even have a proper look at me.

[falcone]

I have ordered some vitamin E and will hopefully be able to get some Pentox from my GP. Given that it will probably take 3-4 months to get an appointment with another urologist with the NHS, so hopefully these can so something about the hours glass and me me recover/ stop me losing any more size/elasticity - the curve doesn't really bother me.

I would like to see a specialist, but I don't think there any private ones anywhere near me here in Glasgow. According to some list I found anyway.

[keepitstraight]

Hi to all,

Happy New Year. Well i have just created a blog to discuss particularly the congenital way of the problem. Also thoso who have peyronie are welcome. I hope im not inflicting the rules of this forum. Just to let you know you are all welcome to post on my blog anytime:
http://curvaturapenianadiscussao.blogspot.com/
It is a bilingual blog, that way we can adress more people. As soon as i have some people posting and start to have feedback i will be interested in open a new discussion post concerning the application of the grafting technique to the congenital curvature and also the manipulation of ventral and surrounding tissues. It seems that in recent years there are some doctors (including Prof. Sava Perovic and Prof. Paulo Egydio) that have had good results applying both procedures, if fact it seems that manipulating some tissues of the penis (including those ventrally around the urethra) can partially or tottaly correct the congenite curvature (in ventral curvatures), but not in all cases. There are some studies about this from Dr. Devine and others.

Thank you for you attention and Happy new Year,
 Alberto

[falcone]

Masturbated a couple of hours ago, and now around the upperside area of my waistline is giving me a kind of dull throbbing pain when flaccid which im sure I havent had before. Im 100% certain I have Peyronie's and glad I found this site or else I would have took those idiots diagnoses after that flaccid ultrasound found no scar.

I look forward to taking my Vitamin E when it arrives and hopefully get some pentox from my doctor as I said. Hopefully these will delay or even stop the shortening/ thinning of my penis.

Is anyone aware of any UK "specialists"? Im in Scotland but will travel down to England if I have to.

I don't the NHS as I think the will refuse me all the tests I will ask for - erect and semi erect ultrasound (I sincerely they doubt they would give me both of these) so will have to go private I guess.

Are there any other tests I should demand? Blood flow etc?

Any answers much appreciated.