newly diagnosed

[solentneil]

Hi all
Newly diagnosed, but have been in denial of problems for some time.
In first stage with it having the hourglass shape.
Cause, well here goes. Been on flouroxitine for 7 years.
Two years ago had to up the dosage.
With this came a "prolonged painful erection" 4 nights a week for about 1-3 hours.
I was not fully awake and there were no horny feelings, just annoyance.
Was about to go to the doctor after a year of this when I read the leaflet (that no one reads) that came with the medication. It was there, a side effect PPE.
I came slowly off the flouroxitine. No more erection nightmares.
However after some months I went into meltdown.
Anger problems, ups and downs etc.
In May I told the doctor she said go back on the flouroxitine low dosage.
All ok.
In May my wife entered the menopause.
Her hormones went crazy, wanting sex every day instead of twice a year.
I could not rise to the occasion.
She said "there is something wrong with your cock".
It was oddly shaped and I had to admit that sex was painful.
In August I was marched to the doctor.
Seeing the Urologist next week.
That's where I am. Sex not possible now.
Wife is tearful.
I am 60 she is 46 and very beautiful.
Interestingly, I suffer from auto immune disease.
Four years ago my immune system attacked my retina and I lost the vision completely in my left eye.
If I was reading this I would not believe it!
But I swear this is all what has happened.
Thanks for taking the time to read my post.
Comments very welcome
Solentneil

[Ives]

Hey Solentneil,

I too just joined today. Just wanted to drop u note hoping to give you optimism for your urologist appointment.  I went from not able to have sex, and full painful erections, to being decently functional under the right circumstances, and without pain.  Going to urologist gives you the shot at improvement.  Look forward to this and good luck!  -Ives  

[kuaka]

http://expertscape.com/ex/penile+induration

Try and find a Dr. based on their knowledge of this specific condition.  Most uro's don't have the expertise.

kuaka

[LWillisjr]

https://www.peyroniesforum.net/index.php/topic,4063.0.html

[solentneil]

Seeing the Urologist for the first time on Monday at Peyronies clinic in UK.
I am trying to picture the waiting room.
Is it normal unusual for wives to attend as support?
I think it would embarrass the other men.
Wish me luck
Solentneil

[redbullmaster]

Having sat in the  UCLH waiting room, its just that a waiting room. Wives and partners and mum and dads attended as well. There's a wide range of problems the urologist treats, not just Peyronies.

[Stabler]

Your wife should go with you if she is willing and comfortable doing so., having that kind of support is a key element in going through this disease (IMO)

No one is going to know why your there unless you tell them anyway.

Hugs Mamma

[ChrisCurve]

Hello! I'm new also. Good luck with everything!  

[solentneil]

Well had my first and last meeting with the Urologist today.
Discharged! Yippee, cured...no.
I had 5 minutes. This is in the UK.
He confirmed the disease.
He said the plaque was both sides of the base so no bend.
Lots of plaque and any suction or traction procedure would not help.
This would make the "wasting" at the base worse.
Surgery possible, but the amount of plaque I have would significantly reduce the length.
I have noted the posts from people in the UK and told the consultant that people say the appointments are a waste of time. There are.
However there are people out there, who today, have been diagnosed with a terminal illness, so I have put this in perspective.
My wife is not happy, but hey we can do other stuff, go watch the football!
Thank God I have two beautiful, lovely children.
Thinking of those younger with the disease.
Time for a beer
Solentneil

[Stabler]

Ok first, I am going to suggest a different urologist because if that was the only advice he had to offer, he obviously was not one that specializes in Peyronies. Did he do an ultrasound of your penis? Did he offer you Pentox? Did you ask about Pentox? VED and Traction are never a waste of time, the fact that he said that shows how little he knows about Peyronies. It seems that healthcare in the UK is a difficult process however I urge you to speak to members of the forum that live in the UK that have had success in finding good care and see if they can help you in finding someone close to your area. I urge you not to let this one opinion be the only one you get.

Stabler67

[james1947]

The world is full with doctors that don't care about nothing except they pocket.
Not all of course, you can read about other kind of doctors in the news's.
As Stabler wrote, go urgently to another real specialist that cares about you

James

[J-A]

Hi Solentneil


Contact the London Andrology clinic.

My story is on here PM me if you want.  

[solentneil]

Hi thanks for the reply.
Saw your post, you are a brave man.
My situation is different, there is no bend.
I have significant plaque on both sides.
Pulling the penis back both sides with wasting at the base.
The cost is not a problem, but not sure if I am mentally right to face the procedure, at the moment.
I will get my wife to take a look, after dinner!
Thanks
Solentneil

[james1947]

As you say cost is no problem, make an appointment with Dr. Kuehass and decide later what to do.
Take your wife with you to the appointment.

James