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Author Topic: My 6 year journey through prostate cancer, peyronies, grafting with/implant  (Read 1543 times)

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chorton581

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I am new here and this is a bit of my story and progress.  I am  almost 8 weeks past surgery now.
I am 56 years old now and had prostate cancer in 2009 at around age 50 and had it robotically removed at Mayo. PSA has been good since. I had nerve sparring and erections were OK but I always used Viagra to give me a boost. I discovered at least for me long term use of Viagra is expensive and very unhealthy. About 2.5 years ago I was sitting at work and I peed myself (a first since cancer) and my penis (originally about 7 inches even after PC) pulled back into my groin and left all this skin covering the head. I thought that was odd but sort of thought maybe I was going to start leaking from my PC. What I soon discovered during sex was I had a 90 degree hinge in my penis and I could feel an hourglass in there. It was like I was missing part of penis. Had a top and bottom but seemed to be nothing in the area where the hinge was. Went to my urologist who has been treating me since PC and he said it appears that I had suddenly developed Peyronies. the curve was over 60 degrees they wanted me to be stable before doing anything further. Sex was OK during the time but painful from the difficult curve.

During the stable period I lost about 50% of the length and encountered a few other issues like peeing, slight leak started up and overall just a smaller looking and acting penis.

I was sent to Seattle August 2014 and was to undergo surgery at the university of Washington men's center. My DR is an amazing specialist in this field and would highly recommend him. He is tough to see but worth it if you can wait. Of course insurance denied my first visit and refused to pre-auth anything that included an implant. I appealed and finally got the go ahead.

I had my surgery June 8th 2015 in Seattle. It was actually a very complex deal for me. The surgery lasted 7 hours from start to finish. They cut the plague first that freed up everything. I had a large graft put in along with a  AMS 700 implant. My Dr stated he likes to do the implant at the same time so he can be more aggressive on treatment.

I stayed in the hospital overnight with a cath and then the removed the wrap and was swollen and bruised but seemed to be extremely LARGE.. I left the hospital with the implant pumped up 100%. My wife drove me home the following day (7 hours in the car with my beer can and a sore ass). I was cut in 3 spots, abs for the reservoir ( first 8 days this one kept me in bed) since I could not move without this mother hurting. Also standard ball sack area for the pump and implant and at the base of the head the entire top was cut the whole way around so i could be de-gloved and DR said while I have all the skin on your penis pulled away it allows us to be aggressive in what model beer can we insert. So it is really a second circumcision for me, and the most challenging incision to tend too. That wound took 5 weeks to heal completely.

2 weeks after surgery I went to my local uro who deflated me. I grabbed his arm when he touched the pump. Balls were still swollen and hurting and generally not happy with the new roommate. He deflated it with no issue and it was still very large. I got home and deflated it more and sort of rolled my penis up at bit to drain it out.

i had my follow up in Seattle at week 6 and things were progressing fine.  I am still a bit sore but think most of that is from sitting too much.. The stuff gets pushed up and the rear tip extender appears to push forward and still hurts. I think the RTE sits right on top of where the hourglass was the worst. The pain i feel is bearable with no meds but just bothersome, I had the same sort of deal with the same area prior to surgery when i would bend my hard penis the oppisite direction of the bend.

  It is strange since the pain is different all the time.  The RTE's also like to ride up and rub me hard in my butt when i sit to long.  Low dull aching pain is still there at night.  Epsom salt baths are good for me.  Sex has been much better but still some bothersome pain.

Very glad i did this and just waiting for all the pain to eventually go away.. There are so many affected areas and procedures that were done i still feel it is an amazing way to correct peyronies.


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james1947

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chorton

Thank you for the post, it will help others to go on this way.
Wish you end of the pain so you can say the recovery is 100%

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

chorton581

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One thing that is so important in this journey is the support we get from spouses or significant others.  Having peyronies is extremely hard on them. Most men on this journey have waited at least a year and sometimes many years to be straight again.
Most bedroom activities are put on hold for long periods of time.  When something does work like pills and shots and such they are very brutal on a mans body.

Hug your partner  :)
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Stabler

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Chorton,

You  are correct in that a supportive partner is very helpful in this disease, I have not read of a member here that doesn't realize that, I am very proud of our group that they understand how important that it is. So glad to hear you are on the road to recovery, please keep us updated.

Hugs, Mamma
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Moderator since 2015- Missouri- I work in the medical field and have strong knowledge of insurance and how to obtain coverage for medication and other treatments. Being a woman I do not have Peyronies but you can ask me anything. I am happy to help.
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