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Author Topic: 3 months since diagnosis  (Read 1340 times)

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kttt

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3 months since diagnosis
« on: June 17, 2015, 08:17:16 AM »

Hi all
56yo, 3 months ago out of the blue, I felt a small lump in penis, promptly went to uro, had ultrasound.  I read the report and it described one plaque mid-way top "between" corpus "characteristic" of peyronies.  it's still there.   

so far no curve, but some minor pain toward tip during erection process - otherwise no pain.  during erection, far end fills up last and slowly and there are top and bottom flat spots/hour-glassing right behind glans, but no real loss of length or girth yet.  in flaccid state the glans seem larger than before as if it is not fully draining, and during erction glans not as full.  hard to tell if it's getting worse, but not better for sure.

uro has only prescribed vit E, to "keep it soft (plaque)".  he does not seem too concerned at this point as it has not substantially interfered with sex life.  wife of many years is very supportive and we are sexually active

seems I should be doing something to help myself instead of waiting, does anyone know of a knowledgeable uro in upstate NY ?
thanks for any advice
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Jonbinspain

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Re: 3 months since diagnosis
« Reply #1 on: June 17, 2015, 08:24:51 AM »

It will affect your sex life if it's allowed to progress, as it seems to be doing!

First off, find another Urologist! Vit E is treatment from the dark ages. It won't do you any harm, but equally it will do absolutely nothing to treat or stop the progress of this disease. Waiting is also the very worst thing you can do. Spontaneous resolution of this problem is extremely rare.

You can find a list of well regarded Urologists, many of whom specialise in treating Peyronies, here on the site. Find one in your area and see him ASAP.

In the meantime, I suggest you read all you can here about the most well regarded oral supplements, medicines, and other treatments for this affliction.
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Glassglue

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Re: 3 months since diagnosis
« Reply #2 on: June 17, 2015, 10:17:23 AM »

IME the doctor list here is a starting point but I didn't really have any luck with the ones listed. You will very likely learn much more by reading this forum than you will from any one doctor.  So my recommendation is to learn all you can here about the various treatment options, none of which are guaranteed to be effective I might add, then decide how aggressive you want to be in fighting this. Then do what you have to do to get the meds or devices you decide you want to try. It may take more than one doctor and for me my GP was as useful as any uro in that regard.

Again the key to remember in dealing with doctors is that there is no solid evidence in terms of good studies that anything really works reliably. So their attitude can range from I don't prescribe placebos to what the heck it probably won't hurt. Good luck, it may take some work to get what you think you need.
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james1947

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Re: 3 months since diagnosis
« Reply #3 on: June 17, 2015, 06:19:55 PM »

As Glassglue has written the list is a starting point. In some cases a good starting point:
http://www.peyroniesforum.net/index.php/topic,4063.0.html

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum
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